Journal of Pediatric Health Care最新文献_第4页

Double Trouble: Metabolic Dysfunction-Associated Fatty Liver Disease in Fraternal Twins 双重麻烦异卵双胞胎代谢功能障碍相关性脂肪肝。

IF 2.5 4区医学

Journal of Pediatric Health Care Pub Date : 2025-05-01 DOI: 10.1016/j.pedhc.2024.10.012

Jodiey Bondurant DNP, CPNP-PC/AC, FNP-BC, Suzanne Paul DNP, FNP-c

{"title":"Double Trouble: Metabolic Dysfunction-Associated Fatty Liver Disease in Fraternal Twins","authors":"Jodiey Bondurant DNP, CPNP-PC/AC, FNP-BC, Suzanne Paul DNP, FNP-c","doi":"10.1016/j.pedhc.2024.10.012","DOIUrl":"10.1016/j.pedhc.2024.10.012","url":null,"abstract":"<div><div>Pediatric cases of metabolic dysfunction-associated fatty liver disease (MASLD, formerly termed non-alcoholic fatty liver disease (NAFLD) are a troubling new outcome of the pediatric obesity epidemic. Advising patients and families with this condition is challenging considering the nutrition needed to sustain developmentally appropriate growth in youth. Describing risk factors, comorbidities, management, and referrals for MASLD could improve surveillance and outcomes for this condition. MASLD is commonly seen with other comorbidities such as dyslipidemia, obstructive sleep apnea, type 2 diabetes, hypothyroidism, anxiety, and depression. Considerations of epigenetics, diabetes, and adverse childhood experiences will be explored as additional underlying contributors to MASLD. Screening patients for this condition in conjunction with other comorbidities is essential to preventing the progression to non-alcoholic steatohepatitis (NASH) and cirrhosis, as well as lowering the risk for hepatocellular carcinoma. This fraternal twin case report describes pertinent diagnostics, recommendations for referrals, follow-up consultations, and red flags for more advanced liver disease.</div></div>","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"39 3","pages":"Pages 466-473"},"PeriodicalIF":2.5,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142584427","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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The Difficulties Experienced by Children with Celiac Disease in the Kahramanmaras Centered Earthquake in Turkey: A Qualitative Research 土耳其Kahramanmaras震中地震中乳糜泻儿童所经历的困难：一项定性研究。

IF 2.5 4区医学

Journal of Pediatric Health Care Pub Date : 2025-05-01 DOI: 10.1016/j.pedhc.2024.11.015

Yeliz Suna Dağ PhD, Mürşide Zengin PhD, Emriye Hilal Yayan PhD, Gülse Güleç MSc

{"title":"The Difficulties Experienced by Children with Celiac Disease in the Kahramanmaras Centered Earthquake in Turkey: A Qualitative Research","authors":"Yeliz Suna Dağ PhD, Mürşide Zengin PhD, Emriye Hilal Yayan PhD, Gülse Güleç MSc","doi":"10.1016/j.pedhc.2024.11.015","DOIUrl":"10.1016/j.pedhc.2024.11.015","url":null,"abstract":"<div><h3>Introduction</h3><div>In natural disasters, children encounter serious health problems.</div></div><div><h3>Method</h3><div>This qualitative phenomenological study investigated the problems encountered by children with a diagnosis of celiac disease who lived in the earthquake region of Kahramahmaras in Turkey. Colaizzi method, a phenomenological research method, was used in the study. Data collection involved in-depth interviews conducted with the 'Introductory Information Form' and 'Semi-structured Interview Form,' both developed by the researchers.</div></div><div><h3>Results</h3><div>This study was conducted with 17 children diagnosed with celiac disease living in the Kahramanmaras earthquake region of Turkey. Four main themes emerged from the data: (1) nutrition security and access problems, (2) dietary noncompliance, (3) psychological effects, and (4) difficulties in accessing health services.</div></div><div><h3>Conclusions</h3><div>The earthquake not only disrupted the physical and emotional well-being of children with celiac disease but also highlighted systemic vulnerabilities in disaster preparedness and response for individuals with special dietary needs.</div></div>","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"39 3","pages":"Pages 387-395"},"PeriodicalIF":2.5,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143043151","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Editorial Board Page

IF 2.5 4区医学

Journal of Pediatric Health Care Pub Date : 2025-05-01 DOI: 10.1016/S0891-5245(25)00074-4

引用次数: 0

PEDIATRIC EXPERT RESEARCHERS FOR JPHC

IF 2.5 4区医学

Journal of Pediatric Health Care Pub Date : 2025-05-01 DOI: 10.1016/S0891-5245(25)00099-9

引用次数: 0

Implementation of a Pilot Study in Adolescent Health Care Transition Program for Chronic Granulomatous Disease: A Single Institution Experience 慢性肉芽肿性疾病青少年卫生保健过渡项目试点研究的实施：单一机构经验。

IF 2.5 4区医学

Journal of Pediatric Health Care Pub Date : 2025-05-01 DOI: 10.1016/j.pedhc.2024.11.006

Patricia Driscoll RN, MSN, Beatriz E. Marciano MD, Alison Han MD, MS, Steven M. Holland MD, Maryland Pao MD, Christa S. Zerbe MD, MS

{"title":"Implementation of a Pilot Study in Adolescent Health Care Transition Program for Chronic Granulomatous Disease: A Single Institution Experience","authors":"Patricia Driscoll RN, MSN, Beatriz E. Marciano MD, Alison Han MD, MS, Steven M. Holland MD, Maryland Pao MD, Christa S. Zerbe MD, MS","doi":"10.1016/j.pedhc.2024.11.006","DOIUrl":"10.1016/j.pedhc.2024.11.006","url":null,"abstract":"<div><h3>Background</h3><div>The transition to adult health care is challenging for adolescents and young adults (AYA) with Chronic Granulomatous Disease (CGD). This pilot study aimed to facilitate the learning of AYA with CGD about their health care and to aid in the development of life skills to enhance self-care.</div></div><div><h3>Methods</h3><div>AYA and caregivers (for participants <18 years of age) completed an adapted Transition Readiness Assessment. Educational sessions were held both in person and via telehealth and included virtual meetings with subject matter experts or a designated program mentor. Twenty-five participants were invited, 13 entered the pilot and 8 completed the transition readiness assessment.</div></div><div><h3>Results</h3><div>The pilot study was well-received by CGD participants and caregivers. In the future, a larger cohort may provide more data to comment on efficacy and outcome in the AYA population.</div></div><div><h3>Conclusion</h3><div>Expansion of an educational transition program for AYA with primary immunodeficiencies (PIDs) might be useful.</div></div>","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"39 3","pages":"Pages 408-416"},"PeriodicalIF":2.5,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142814797","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Relapsed AML in a Patient Presenting to a College Health Center: A Case Report 一名到高校医疗中心就诊的患者复发的急性髓细胞白血病：病例报告。

IF 2.5 4区医学

Journal of Pediatric Health Care Pub Date : 2025-05-01 DOI: 10.1016/j.pedhc.2024.10.006

Jessica D. Murphy DNP, CRNP, CPNP-AC, CPHON®, CNE®, Nancy G. Russell DNP, FNP-BC, CNE®, Deborah W. Busch DNP, CPNP-PC, IBCLC®, CNE®, FAANP, FAAN

引用次数: 0

The Resurgence of Syphilis: A Critical Public Health Concern

IF 2.5 4区医学

Journal of Pediatric Health Care Pub Date : 2025-05-01 DOI: 10.1016/j.pedhc.2024.09.003

Mandy W. Glikas DNP, APRN, FNP-C, Mercedes Day DNP, APRN, FNP-C, Molly Toon DNP, MSN, APRN, CPNP-PC

{"title":"The Resurgence of Syphilis: A Critical Public Health Concern","authors":"Mandy W. Glikas DNP, APRN, FNP-C, Mercedes Day DNP, APRN, FNP-C, Molly Toon DNP, MSN, APRN, CPNP-PC","doi":"10.1016/j.pedhc.2024.09.003","DOIUrl":"10.1016/j.pedhc.2024.09.003","url":null,"abstract":"<div><div>Syphilis, a sexually transmitted infection caused by <em>Treponema pallidum</em>, has become a concerning resurgence in recent years, particularly in the United States. Of significant concern is the steep rise in congenital syphilis cases, which poses grave risks to maternal and neonatal health. This article provides an overview of the epidemiology, risk factors, clinical manifestations, screening methods, and treatment strategies for syphilis, with a specific focus on congenital transmission. Drawing upon current literature and guidelines, the paper underscores the importance of early detection and intervention to prevent adverse outcomes associated with congenital syphilis. Furthermore, the article highlights the challenges in syphilis diagnosis, including the interpretation of serological tests and the management of neurosyphilis. Recommendations for practice, including screening protocols and treatment regimens, are discussed in detail. The conclusion emphasizes the urgent need for collaborative efforts among healthcare providers, public health agencies, and community stakeholders to address the syphilis epidemic effectively. By adhering to evidence-based guidelines and leveraging available resources, clinicians can play a pivotal role in reducing the burden of syphilis and safeguarding the health of vulnerable populations, particularly pregnant women and infants.</div></div>","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"39 3","pages":"Pages 479-488"},"PeriodicalIF":2.5,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143943589","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Reflecting on the Past Year

IF 2.5 4区医学

Journal of Pediatric Health Care Pub Date : 2025-05-01 DOI: 10.1016/j.pedhc.2025.02.009

Daniel Crawford DNP, ARNP, CPNP-PC, CNE, FAANP

引用次数: 0

Primary Care Clinicians’ Views of Parents’ Roles in Clinical Preventive Services for Adolescents 初级保健医生对家长在青少年临床预防服务中的作用的看法。

IF 2.5 4区医学

Journal of Pediatric Health Care Pub Date : 2025-05-01 DOI: 10.1016/j.pedhc.2024.11.019

Renee E. Sieving PhD, RN, FAAN, FSAHM, Yunqi He MA, Sydnee Lucas DNP, RN, FNP-BC, Pooja Brar PhD, CFLE-P, Janna R. Gewirtz O'Brien MD, MPH, FAAP, Amy L. Gower PhD, Shari Plowman MPH, Jill Farris MPH, Christina Ross RN, PhD, John Santelli MD, MPH, Christopher J. Mehus PhD

{"title":"Primary Care Clinicians’ Views of Parents’ Roles in Clinical Preventive Services for Adolescents","authors":"Renee E. Sieving PhD, RN, FAAN, FSAHM, Yunqi He MA, Sydnee Lucas DNP, RN, FNP-BC, Pooja Brar PhD, CFLE-P, Janna R. Gewirtz O'Brien MD, MPH, FAAP, Amy L. Gower PhD, Shari Plowman MPH, Jill Farris MPH, Christina Ross RN, PhD, John Santelli MD, MPH, Christopher J. Mehus PhD","doi":"10.1016/j.pedhc.2024.11.019","DOIUrl":"10.1016/j.pedhc.2024.11.019","url":null,"abstract":"<div><h3>Introduction</h3><div>This study examines primary care clinicians’ (PCCs) views of parents’ roles in adolescent preventive services, and strategies they use to engage with a wide range of parents.</div></div><div><h3>Method</h3><div>Using a generic qualitative approach, researchers conducted semistructured interviews with a purposive sample of PCCs (n = 25) from urban and rural Minnesota communities. Interviews explored PCCs’ experiences and perspectives on multiple topics, including parents’ roles in adolescent care. Researchers used thematic analysis to answer the question “How do PCCs view parents’ role(s) in adolescent health care?”</div></div><div><h3>Results</h3><div>Clinicians noted that parents (1) are interested, but not experts in adolescent health, (2) can be coached to be a source of support to teens, (3) can be a barrier to adolescent health and health care, (4) can facilitate adolescents’ health care. Specific types of PCC-parent interactions corresponded with each theme.</div></div><div><h3>Discussion</h3><div>Findings highlight multiple strategies for clinicians to work collaboratively with adolescents’ parents.</div></div>","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"39 3","pages":"Pages 377-386"},"PeriodicalIF":2.5,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143191233","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Changes in Symptom Clusters Over the Course of Chemotherapy in Children With Acute Lymphoblastic Leukemia: A Longitudinal Survey 急性淋巴细胞白血病儿童化疗过程中症状群的变化：一项纵向调查。

IF 2.5 4区医学

Journal of Pediatric Health Care Pub Date : 2025-05-01 DOI: 10.1016/j.pedhc.2025.01.009

Xi Wang BSN , Manyu Zhang BSN , Jixiu Liu BSN, Yixin Wang BSN, Qi Liu BSN, Hong Ye BSN

{"title":"Changes in Symptom Clusters Over the Course of Chemotherapy in Children With Acute Lymphoblastic Leukemia: A Longitudinal Survey","authors":"Xi Wang BSN , Manyu Zhang BSN , Jixiu Liu BSN, Yixin Wang BSN, Qi Liu BSN, Hong Ye BSN","doi":"10.1016/j.pedhc.2025.01.009","DOIUrl":"10.1016/j.pedhc.2025.01.009","url":null,"abstract":"<div><h3>Background</h3><div>Acute Lymphoblastic Leukemia (ALL) in children is associated with diverse symptoms affecting quality of life and treatment efficacy. This study aimed to evaluate symptom progression in children with ALL to inform targeted interventions.</div></div><div><h3>Methods</h3><div>We assessed children with ALL from January 2023 to June 2024 using the Memorial Symptom Assessment Scale for Children (MSAS-C) at different chemotherapy stages.</div></div><div><h3>Results</h3><div>A total of 102 children were included and they experienced an average of 15.52 symptoms. Initially, three symptom clusters predominated: emotional, gastrointestinal, and somatic. As chemotherapy advanced through induction and consolidation phases, the symptom profile expanded to include neurological, self-image disturbance, and skin and mucosal symptoms. During the maintenance phase, the clusters were emotional, gastrointestinal, somatic, neurological, and self-image disturbance.</div></div><div><h3>Conclusion</h3><div>Symptom clusters in pediatric ALL patients change dynamically with chemotherapy phases, highlighting the need for meticulous assessment tailored interventions to enhance clinical management and patient care.</div></div>","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"39 3","pages":"Pages 346-354"},"PeriodicalIF":2.5,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143587896","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0