Jennifer Dean Durning PhD, RN, CPNP-PC, Jennifer Yost PhD, RN, Elizabeth B. Dowdell PhD, RN, AFN-C, FAAN
{"title":"An Exploration of the Understanding and Experiences of Health in Urban Dominican American Adolescents","authors":"Jennifer Dean Durning PhD, RN, CPNP-PC, Jennifer Yost PhD, RN, Elizabeth B. Dowdell PhD, RN, AFN-C, FAAN","doi":"10.1016/j.pedhc.2024.08.013","DOIUrl":"10.1016/j.pedhc.2024.08.013","url":null,"abstract":"<div><h3>Introduction</h3><div>This study explored the understanding and experiences related to health among Dominican American adolescents in an urban setting in the northeastern United States.</div></div><div><h3>Method</h3><div>A qualitative descriptive study was conducted, applying thematic analysis to focus group interview data from 23 students.</div></div><div><h3>Results</h3><div>Five themes emerged: (1) <em>Health is All About Healthy Eating</em>, (2) <em>Sugarcoating</em>, (3) <em>Dynamics Affecting Adherence</em>, (4) <em>Dominican Cultural Influences on Health</em>, and (5) <em>Toll of the Immigrant Life.</em></div></div><div><h3>Discussion</h3><div>Cultural expectations, particularly deference to family members, substantially impact health care providers’ interactions with Dominican American adolescents. Limited communication hinders discussion on topics like healthy eating and mental health. Parental reliance on home remedies over seeking professional care adds another layer of complexity. This study establishes a foundational understanding of Dominican American adolescents’ health experiences, highlighting areas where pediatric nurse practitioners can target interventions to support Dominican American adolescents’ health journeys.</div></div>","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"39 1","pages":"Pages 33-40"},"PeriodicalIF":2.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142373408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jessica L. Williams MS, CCC-SLP, Megan Halvorson MSNRN, Katelyn J. Kotlarek PhD, CCC-SLP
{"title":"Lack of Immediate Diagnosis and Appropriate Intervention Leads to Malnutrition in an Infant With Cleft Palate","authors":"Jessica L. Williams MS, CCC-SLP, Megan Halvorson MSNRN, Katelyn J. Kotlarek PhD, CCC-SLP","doi":"10.1016/j.pedhc.2024.07.004","DOIUrl":"10.1016/j.pedhc.2024.07.004","url":null,"abstract":"<div><div>This case report describes a full-term infant with a cleft palate who experienced malnutrition because of the delayed introduction of a cleft-adapted bottle and identifies potential areas for improvement in clinical practice. The infant's weight for age z-score at birth was 0.05 and dropped to −1.45 by 2 months of age, indicating mild malnutrition. The infant established care with a cleft team and a cleft-adapted bottle was recommended as the primary feeding method. Feeding time subsequently decreased from 60 minutes per feeding to 20 minutes. The infant presented for palate repair at 9 months of age, and his z-score was −0.01, indicating he was no longer malnourished. Cleft-adapted bottles aid in feeding efficiency in infants with cleft palate, which may subsequently impact weight gain. Appropriate weight gain is essential to receive timely cleft palate repair and support healing.</div></div>","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"39 1","pages":"Pages 101-106"},"PeriodicalIF":2.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141753168","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Information for Readers","authors":"","doi":"10.1016/S0891-5245(24)00351-1","DOIUrl":"10.1016/S0891-5245(24)00351-1","url":null,"abstract":"","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"39 1","pages":"Page A10"},"PeriodicalIF":2.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143166226","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Pediatric Expert Research","authors":"","doi":"10.1016/S0891-5245(24)00350-X","DOIUrl":"10.1016/S0891-5245(24)00350-X","url":null,"abstract":"","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"39 1","pages":"Page A7"},"PeriodicalIF":2.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143166770","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
David Geyer PhD, RN, CPNP-PC, Jane M. Flanagan PhD, RN, AHN-BC, ANP-BC, FAAN, Brittney van de Water PhD, RN, CPNP-PC, Susan McCarthy, Judith A. Vessey PhD, MBA, RN, FAAN
{"title":"A Qualitative Descriptive Study Exploring the Systemic Challenges of Caring for Children With Medical Complexity at Home","authors":"David Geyer PhD, RN, CPNP-PC, Jane M. Flanagan PhD, RN, AHN-BC, ANP-BC, FAAN, Brittney van de Water PhD, RN, CPNP-PC, Susan McCarthy, Judith A. Vessey PhD, MBA, RN, FAAN","doi":"10.1016/j.pedhc.2024.08.010","DOIUrl":"10.1016/j.pedhc.2024.08.010","url":null,"abstract":"<div><h3>Introduction</h3><div>The purpose of this study is to explore challenges within the home care system encountered by parental caregivers of children with medical complexity in Massachusetts.</div></div><div><h3>Method</h3><div>A qualitative descriptive study was completed with 11 parental caregivers interviewed.</div></div><div><h3>Results</h3><div>Using conventional content analysis of transcripts, three themes emerged: (1) lack of discharge preparedness causes emotional distress, (2) care becomes increasingly complex creating new unanticipated challenges, and (3) psychological toll of parents assuming provider role.</div></div><div><h3>Discussion</h3><div>Navigating a variety of complex systemic challenges with minimal preparation or support contributes to an overall feeling of parental caregiver burnout. Additionally, mental health supports for parental caregivers are lacking, further exacerbating the negative impact of these challenges. Future work should focus on research, advocacy, and system reform that ensures parental caregivers receive necessary supports to care for children within a sustainable and supportive home care model. Nurses across the profession are in unique position to facilitate this change.</div></div>","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"39 1","pages":"Pages 24-32"},"PeriodicalIF":2.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142382202","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Advanced Practice Nursing in Pediatrics and Child Health: A New Hope in Europe","authors":"Sébastien Colson RN, PhD","doi":"10.1016/j.pedhc.2024.10.003","DOIUrl":"10.1016/j.pedhc.2024.10.003","url":null,"abstract":"","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"39 1","pages":"Pages 22-23"},"PeriodicalIF":2.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142548580","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Corrigendum to: Health Equity and Children with Medical Complexity/Children and Youth with Special Health Care Needs: A Scoping Review [Journal of Pediatric Health Care 38/2 (2024) 210–218]","authors":"Elizabeth A. Flasch","doi":"10.1016/j.pedhc.2024.10.020","DOIUrl":"10.1016/j.pedhc.2024.10.020","url":null,"abstract":"","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"39 1","pages":"Page 139"},"PeriodicalIF":2.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142548581","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Take a Closer Look: Considerations for Autism Spectrum Disorder Assessment in Female Children and Adolescents","authors":"Daphna Shaw Zack DNP, APRN, CPNP-PC, Bridgette Carroll MS, Amy Magallanes MS, Veronica Bordes Edgar PhD, ABPP","doi":"10.1016/j.pedhc.2024.07.008","DOIUrl":"10.1016/j.pedhc.2024.07.008","url":null,"abstract":"<div><div>Assessment for autism spectrum disorder (ASD) in the pediatric female population entails unique diagnostic complexities. Females are often misdiagnosed, undiagnosed, or receive an ASD diagnosis at a later age than males. Male bias in ASD, masking behaviors, cultural norms, and overlapping neurodevelopmental comorbidities (such as attention deficit/hyperactivity disorder and intellectual disability) contribute to this phenomenon. The authors present two clinical cases evaluated in an interdisciplinary developmental behavioral pediatrics (DBP) team to highlight these considerations. Cases describe adolescent and school aged females with medical complexity who did not initially appear to have ASD symptoms but later were diagnosed with ASD. Patient anonymity is preserved. Best practice recommendations are discussed. Shared decision making, intentional history taking, thorough observation of behavior and restrictive/repetitive/sensory interests in multiple settings, and attention to social communication in the context of cognitive capacity are essential for ASD assessment in pediatric females.</div></div>","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"39 1","pages":"Pages 107-111"},"PeriodicalIF":2.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141914460","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Expanding Our Impact","authors":"","doi":"10.1016/j.pedhc.2024.10.021","DOIUrl":"10.1016/j.pedhc.2024.10.021","url":null,"abstract":"","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":"39 1","pages":"Page 4"},"PeriodicalIF":2.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143166227","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Crystal S Lim, Dustin E Sarver, Dustin C Brown, Russell McCulloh, Lacy Malloch, Tre D Gissandaner, Robert D Annett
{"title":"Caregiver Willingness to Participate in Pediatric Clinical Research During COVID-19.","authors":"Crystal S Lim, Dustin E Sarver, Dustin C Brown, Russell McCulloh, Lacy Malloch, Tre D Gissandaner, Robert D Annett","doi":"10.1016/j.pedhc.2024.12.001","DOIUrl":"10.1016/j.pedhc.2024.12.001","url":null,"abstract":"<p><strong>Introduction: </strong>Understanding caregiver willingness to participate in pediatric clinical research is needed. We examined caregiver perceptions of pediatric clinical research during COVID-19 and examined research attitudes and sociodemographic factors as predictors of willingness.</p><p><strong>Methods: </strong>A cross-sectional telephone survey was administered to caregivers of children from August 2020 to April 2021. We examined caregiver willingness to participate in the following research modalities during COVID-19: telehealth, in-person, and vaccine-focused.</p><p><strong>Results: </strong>Participants included 600 caregivers (52.8% non-Hispanic White; Child Age M = 9.3 years; 50.0% from rural areas). Caregivers reported more willingness to participate in nonvaccine research (64.0% telehealth, 59.4% face-to-face) compared to vaccine research (22.1%). Different predictors were found for caregivers living in rural and nonrural areas and specific research attitudes predicted willingness.</p><p><strong>Discussion: </strong>Caregiver willingness to participate in pediatric clinical research during COVID-19 differed by modality and research attitudes predicting willingness differed by geography. Surveillance regarding pediatric vaccine and clinical research hesitancy broadly should continue.</p>","PeriodicalId":50094,"journal":{"name":"Journal of Pediatric Health Care","volume":" ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2024-12-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142903453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}