Journal of Rheumatology最新文献

{"title":"Practical Issues Relating to the Use of Antifibrotic Therapy in Patients With Interstitial Lung Disease and Rheumatoid Arthritis.","authors":"Clive A Kelly, Muddassir Shaikh","doi":"10.3899/jrheum.2025-0103","DOIUrl":"10.3899/jrheum.2025-0103","url":null,"abstract":"","PeriodicalId":50064,"journal":{"name":"Journal of Rheumatology","volume":" ","pages":"405-407"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143765468","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Pediatric Rheumatology Care in the Canadian Context: A Qualitative Analysis of Care Providers.","authors":"Molly J Dushnicky, Eden S Har-Gil, Jennifer J Y Lee, Deborah M Levy","doi":"10.3899/jrheum.2024-0965","DOIUrl":"10.3899/jrheum.2024-0965","url":null,"abstract":"<p><strong>Objective: </strong>Previous work highlighted a national deficit in pediatric rheumatologists and allied health professionals (AHPs), with a geographic maldistribution in Canada. The aim of this current study was to further evaluate the clinical care structures and processes in place within Canadian pediatric rheumatology centers that promote or impede care delivery from the perspective of pediatric rheumatology healthcare providers.</p><p><strong>Methods: </strong>Data were collected through semistructured interviews with pediatric rheumatologists and Advanced Clinician Practitioners in Arthritis Care (ACPACs) across Canada. Analysis was performed by 2 investigators following the 4 stages of qualitative content analysis: decontextualization, recontextualization, categorization, and compilation. Data were analyzed through latent analysis due to the informal nature of interviews, and themes were identified iteratively.</p><p><strong>Results: </strong>Twelve individuals (9 pediatric rheumatologists, 3 AHPs) agreed to participate in the study. Interviewees practiced across Canada with a range of career experience. The following themes emerged: (1) geographic barriers negatively affect access to care; (2) ACPAC practitioners and community pediatric rheumatologists improve access to care; and (3) there is inconsistent access to physiotherapists, social workers, and occupational therapists who are knowledgeable about pediatric rheumatology care and disease.</p><p><strong>Conclusion: </strong>Although there was variation in pediatric rheumatology practice across Canada, there were common themes of supports and barriers to clinical care. The description of these themes can (1) help guide pediatric rheumatology practice by highlighting thriving practice patterns, and (2) concomitantly emphasize the deficits in resources and functioning, both of which can advise future advocacy work.</p>","PeriodicalId":50064,"journal":{"name":"Journal of Rheumatology","volume":" ","pages":"498-504"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143076117","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Hydrocephalus-Related Dementia in Paget Disease of the Skull.","authors":"João Daniel Ferreira Carvalho, José Carlos Romeu","doi":"10.3899/jrheum.2024-0818","DOIUrl":"10.3899/jrheum.2024-0818","url":null,"abstract":"","PeriodicalId":50064,"journal":{"name":"Journal of Rheumatology","volume":" ","pages":"512"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142564958","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Assessing Disease Activity in Axial Spondyloarthritis: Finding the Balance Between the Bath Ankylosing Spondylitis Disease Activity Index and Axial Spondyloarthritis Disease Activity Score.","authors":"Antoni T Y Chan","doi":"10.3899/jrheum.2025-0258","DOIUrl":"10.3899/jrheum.2025-0258","url":null,"abstract":"","PeriodicalId":50064,"journal":{"name":"Journal of Rheumatology","volume":" ","pages":"408-411"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143765460","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Application of EULAR/ACR Classification Criteria for Polymyalgia Rheumatica in a Series of Patients With Acute Parvovirus B19 Infection.","authors":"Bernardo D'Onofrio, Carlo Selmi","doi":"10.3899/jrheum.2024-1024","DOIUrl":"10.3899/jrheum.2024-1024","url":null,"abstract":"","PeriodicalId":50064,"journal":{"name":"Journal of Rheumatology","volume":" ","pages":"522-523"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143634709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Association Between Depressive Symptoms and Self-Reported Physical Activity in Persons With Knee Osteoarthritis.","authors":"Alan M Rathbun, Alice S Ryan, Michelle D Shardell, Yu Dong, Brock A Beamer, Mark Luborsky, Marc C Hochberg","doi":"10.3899/jrheum.2024-0940","DOIUrl":"10.3899/jrheum.2024-0940","url":null,"abstract":"<p><strong>Objective: </strong>Depressive symptoms are common in patients with knee osteoarthritis (KOA) and reduce energy, motivation, and movement; thus, declines in physical activity (PA) could worsen as clinical disease progresses. The objective was to evaluate the longitudinal relationship between depressive symptoms and self-reported PA over time among persons with KOA.</p><p><strong>Methods: </strong>The sample included Osteoarthritis Initiative participants (N = 2602) with radiographic disease (Kellgren-Lawrence grade ≥ 2). Depressive symptoms were measured using the Center for Epidemiologic Studies Depression Scale (CES-D; score ≥ 16) at baseline and first 3 follow-up visits. Self-reported PA was assessed with the Physical Activity Scale for the Elderly (PASE) at the first 4 follow-up visits. Marginal structural models controlling for time-invariant and time-varying confounders evaluated the longitudinal relationship between depressive symptoms and PASE <i>z</i> scores.</p><p><strong>Results: </strong>Depressive symptoms were associated with lower PA (β -0.09; 95% CI -0.20 to 0.01) over time, but the relationship was not statistically significant. When including depressive symptoms-by-time interactions, the relationship was nonlinear from the first to fourth follow-up visit: visit 1 = -0.18 (95% CI -0.33 to -0.02), visit 2 = -0.05 (95% CI -0.22 to 0.11), visit 3 = -0.01 (95% CI -0.19 to 0.16), and visit 4 = -0.11 (95% CI -0.29 to 0.08). However, the interaction terms were not statistically significant.</p><p><strong>Conclusion: </strong>Depressive symptoms may contribute to worse self-reported PA levels in persons with KOA. Future research should determine whether lower physical function is a further sequela of decreased PA related to depressive symptoms.</p>","PeriodicalId":50064,"journal":{"name":"Journal of Rheumatology","volume":" ","pages":"505-511"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12045742/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143425792","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Rare Case of Parvovirus B19-Induced Atlantoaxial Arthritis.","authors":"Cristina Valero-Martínez","doi":"10.3899/jrheum.2024-1293","DOIUrl":"10.3899/jrheum.2024-1293","url":null,"abstract":"","PeriodicalId":50064,"journal":{"name":"Journal of Rheumatology","volume":" ","pages":"524-525"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143634694","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient Perspectives and Clinical Insights Into the Diagnostic Journey From Connective Tissue Disease to Pulmonary Arterial Hypertension.","authors":"Kristin B Highland, Rumon Chakravarty, Sylvia Georgi, Michelle Han","doi":"10.3899/jrheum.2024-0613","DOIUrl":"10.3899/jrheum.2024-0613","url":null,"abstract":"<p><p>Plain Language SummaryPeople with connective tissue disorders (CTDs), like systemic lupus erythematosus (SLE), mixed CTD, and systemic sclerosis (SSc), are at risk for a lung condition called pulmonary arterial hypertension (PAH). Since PAH gets worse over time if it is not treated, it is important for anyone with PAH to be diagnosed and treated with medication as early as possible. This article describes the experiences of 4 adults who have CTD and PAH, including their journey of being diagnosed with CTD and then PAH, which healthcare providers they saw, and the types of information they were given to learn about their conditions. All 4 people described having a rash as their first symptom of CTD, and said their symptoms got worse over time, which made them see their primary care provider. Two people felt their doctor dismissed their symptoms. Everyone was eventually referred to a rheumatologist or dermatologist and diagnosed with a type of CTD: 1 had SLE, 2 had mixed CTD, and 1 had SSc. Only 1 person was told that having a CTD meant they had a higher risk of getting PAH. It took between 2 and 11 years after their CTD diagnosis to be diagnosed with PAH, all while they were at risk for more intense PAH symptoms. The group recommended better education for doctors and support staff about CTD, so that they are able to screen their patients for PAH, recognize the disease, and quickly refer patients to PAH specialists at accredited pulmonary hypertension centers for further testing.</p>","PeriodicalId":50064,"journal":{"name":"Journal of Rheumatology","volume":" ","pages":"515-519"},"PeriodicalIF":3.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143426495","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Trust in Health Information Sources Among Patients With Systemic Lupus Erythematosus in the Social Networking Era: The TRUMP2-SLE Study.","authors":"Takanori Ichikawa, Dai Kishida, Yasuhiro Shimojima, Nobuyuki Yajima, Nao Oguro, Ryusuke Yoshimi, Natsuki Sakurai, Chiharu Hidekawa, Ken-Ei Sada, Yoshia Miyawaki, Keigo Hayashi, Kenta Shidahara, Yuichi Ishikawa, Yoshiki Sekijima, Noriaki Kurita","doi":"10.3899/jrheum.2024-1088","DOIUrl":"10.3899/jrheum.2024-1088","url":null,"abstract":"<p><strong>Objective: </strong>The growing use of social networking services (SNS) has affected how patients with systemic lupus erythematosus (SLE) access health information, potentially influencing their interaction with healthcare providers. This study aimed to examine patients' preferences, actual use, and trust in various health information sources, along with the factors influencing the trust among patients with SLE.</p><p><strong>Methods: </strong>A multicenter, cross-sectional survey was conducted from June 2020 to August 2021, involving 510 Japanese adults with SLE. Participants reported their preferred and actual sources of health information, including SNS, and their level of trust in these sources. Modified Poisson regression was used to analyze factors influencing trust, including internet usage and health literacy (HL; functional, communicative, and critical).</p><p><strong>Results: </strong>Most respondents (98.2%) expressed trust in doctors, whereas trust in websites and blogs (52%) and SNS (26.8%) was lower. Despite this, the internet was the most frequent initial source of health information (45.3%), encompassing medical institution websites, patient blogs, X (formerly known as Twitter), and Instagram. Longer internet usage periods were associated with a greater trust in websites and blogs and SNS. Higher functional HL was correlated with an increased trust in doctors but decreased trust in homepages/blogs and SNSs. Higher communicative HL was linked to a greater trust in doctors, websites, and blogs.</p><p><strong>Conclusion: </strong>Although many patients with SLE initially seek health information online, they prefer to consult rheumatologists. Internet usage duration and multidimensional HL influence trust in online sources. Healthcare providers should consider these factors when disseminating health information and engaging with patients.</p>","PeriodicalId":50064,"journal":{"name":"Journal of Rheumatology","volume":" ","pages":""},"PeriodicalIF":3.6,"publicationDate":"2025-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143634794","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Unveiling the Dual Benefits of Bosentan in Systemic Sclerosis: Risk and Relief.","authors":"Matthew R Lammi, Monica Mukherjee","doi":"10.3899/jrheum.2025-0049","DOIUrl":"10.3899/jrheum.2025-0049","url":null,"abstract":"","PeriodicalId":50064,"journal":{"name":"Journal of Rheumatology","volume":" ","pages":"305-307"},"PeriodicalIF":3.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12026298/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143426446","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}