Journal of Spinal Cord Medicine最新文献

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Gait recovery in patients with late assessment of incomplete spinal cord injury: A retrospective study in Argentina. 不完全脊髓损伤晚期评估患者的步态恢复:阿根廷的一项回顾性研究。
IF 1.8 4区 医学
Journal of Spinal Cord Medicine Pub Date : 2024-12-11 DOI: 10.1080/10790268.2024.2434304
Marcelo A Gatti, Yamila Dieni, Lucia Yaccuzzi, María E Rivas, Daniela G L Terson de Paleville
{"title":"Gait recovery in patients with late assessment of incomplete spinal cord injury: A retrospective study in Argentina.","authors":"Marcelo A Gatti, Yamila Dieni, Lucia Yaccuzzi, María E Rivas, Daniela G L Terson de Paleville","doi":"10.1080/10790268.2024.2434304","DOIUrl":"https://doi.org/10.1080/10790268.2024.2434304","url":null,"abstract":"<p><strong>Study design: </strong>Retrospective data analysis study.</p><p><strong>Objectives: </strong>To assess gait recovery rates in subjects with motor incomplete spinal cord injury (SCI) at the start of rehabilitation and to report their gait performance.</p><p><strong>Setting: </strong>Tertiary inpatient Rehabilitation Center in Argentina.</p><p><strong>Methods: </strong>The study analyzed data from 143 individuals with traumatic and non-traumatic SCI (AIS/ASIA Impairment Scale C and D) within 90 days of injury, all non-ambulatory upon admission. Gait status at discharge was evaluated using the 6-minute walk test and the Walking Index for Spinal Cord Injury II (WISCI II). Statistical evaluations utilized Pearson chi-square and Mann-Whitney U-tests. Approval was obtained from Fleni's Ethics Committee.</p><p><strong>Results: </strong>Among the 65 patients with AIS C, 69% regained walking function, compared to 87% of the 74 patients with AIS D (<i>p</i> = 0.01). Walkers had a mean total motor score of 67 (±19) versus 51.7 (±25.5) for non-walkers (<i>p</i> = 0.002), and a total pinprick sensation score of 69.8 (± 27.5) vs. 49.5 (± 29) (<i>p</i> = 0.001). Additionally, 54% of AIS C and 86% of AIS D patients aged ≥ 50 regained walking ability; however, age-related differences were statistically significant only in AIS C group (<i>p</i> = 0,015). AIS D patients walked a mean of 249 meters (±134), while AIS C walked 207 meters (±128) (<i>p</i> = 0.07). The median WISCI II score between the two groups were not statistically significant.</p><p><strong>Conclusions: </strong>Most patients with incomplete motor SCI who participated in inpatient rehabilitation regained walking, with motor score and pinprick sensation correlating to walking ability. Gait performance was comparable between AIS C and D.</p>","PeriodicalId":50044,"journal":{"name":"Journal of Spinal Cord Medicine","volume":" ","pages":"1-8"},"PeriodicalIF":1.8,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142808445","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evolution of the Veterans Health Administration Spinal Cord Injuries and Disorders (SCI/D) Registry (VHA SCIDR): Characterization from 1994 to 2022. 退伍军人健康管理局脊髓损伤和疾病(SCI/D)登记处(VHA SCIDR)的演变:1994年至2022年的特征
IF 1.8 4区 医学
Journal of Spinal Cord Medicine Pub Date : 2024-12-11 DOI: 10.1080/10790268.2024.2434305
Jennifer L Sippel, Rafer Willenberg, Charlesnika T Evans, Zhiping Huo, Gabriel Escudero, Kevin T Stroupe, Adam Eberhart, Stephen P Burns, Belinda Frazier, I Manosha Wickremasinghe, Bridget M Smith
{"title":"Evolution of the Veterans Health Administration Spinal Cord Injuries and Disorders (SCI/D) Registry (VHA SCIDR): Characterization from 1994 to 2022.","authors":"Jennifer L Sippel, Rafer Willenberg, Charlesnika T Evans, Zhiping Huo, Gabriel Escudero, Kevin T Stroupe, Adam Eberhart, Stephen P Burns, Belinda Frazier, I Manosha Wickremasinghe, Bridget M Smith","doi":"10.1080/10790268.2024.2434305","DOIUrl":"https://doi.org/10.1080/10790268.2024.2434305","url":null,"abstract":"<p><strong>Context: </strong>Veterans Health Administration (VHA) maintained a registry of identified and verified cases of US Veterans with spinal cord injuries and disorders (SCI/D) since 1994: VHA SCI/D Registry (VHA SCIDR). Data elements, capture, and storage methods varied over time.</p><p><strong>Objective: </strong>Describe the consolidation and harmonization of historical VHA SCIDR data spanning three decades during its evolution to an automated platform and report population characteristics.</p><p><strong>Methods: </strong>The VHA SCIDR captured data using four distinct acquisition methods over 28 years, including cases of Veterans with SCI/D receiving SCI/D System of Care services, via 25 SCI/D Centers and 122 Spoke Sites throughout the VHA healthcare system. Foundational elements of VHA SCIDR data capture methods, harmonization of data elements with the current automated algorithm, access protocol, and governance structure are described.</p><p><strong>Results: </strong>From Fiscal Years (FYs) 1994 to 2022, VHA SCIDR identified 52,407 Veterans with traumatic or non-traumatic SCI/D, and 96.95% were male, 56.09% White, 16.57% were Black, 1.23% Asian and Pacific Islander, 0.75% Native American, and 25.36% unknown. Traumatic etiology comprised 53.39% of the sample, while 31.75% were non-traumatic, with 14.87% missing etiology classification. Injury category proportions were 5.19% high tetraplegia, 5.83% low tetraplegia, 5.85% high paraplegia, 7.53% low paraplegia, and 23.35% AIS D, with 52.25% missing or unable to be calculated.</p><p><strong>Conclusions: </strong>VHA SCIDR is one of the three largest SCI/D registries in North America and is the case-identification platform for VHA SCI/D operations, program evaluation, and research studies. VHA SCIDR is connected to each Veteran's VHA healthcare data, facilitating big data research.</p>","PeriodicalId":50044,"journal":{"name":"Journal of Spinal Cord Medicine","volume":" ","pages":"1-11"},"PeriodicalIF":1.8,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142814664","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Adaptation of the German language version of the QUAlity of life assessment of spina bifida for adults (QUALAS-A-G). 德语版成人脊柱裂生活质量评估(QUALAS-A-G)的改编。
IF 1.8 4区 医学
Journal of Spinal Cord Medicine Pub Date : 2024-12-11 DOI: 10.1080/10790268.2024.2420141
Nina Younsi, Raimund Stein, Konrad M Szymanski
{"title":"Adaptation of the German language version of the QUAlity of life assessment of spina bifida for adults (QUALAS-A-G).","authors":"Nina Younsi, Raimund Stein, Konrad M Szymanski","doi":"10.1080/10790268.2024.2420141","DOIUrl":"https://doi.org/10.1080/10790268.2024.2420141","url":null,"abstract":"<p><strong>Introduction: </strong>Spina bifida (SB) affects almost all activities in daily life and therefore also health-related quality of life (HRQOL). To assess the HRQOL of adults with SB, a self-reported QUAlity of Life Assessment of Spina bifida in Adults (QUALAS-A) was validated in English. The purpose of this study was to develop and validate a German version of QUALAS-A.</p><p><strong>Methods: </strong>German-speaking adults > = 18 years were recruited at a tertiary center and through an SB association. Two urologists translated the QUALAS-A into German. Face and content validity were assessed by adults with SB. Back-translation into English was performed. QUALAS-A-G was administered online as part of a larger study of sexuality in SB. Internal consistency was verified using Cronbach's alpha. Factor analysis, convergent validity, and differences between groups based on continence were established.</p><p><strong>Results: </strong>A total of 45 adults with SB participated (median age of 29 years old). Domain scores demonstrated no floor and minimal ceiling effects. Cronbach's alpha determined good internal consistency (0.58-0.70). The factor analysis converged to a somewhat different three-factor structure compared to the original version, but otherwise had similar properties to the original. Construct validity revealed moderate associations (<i>r </i>= 0.36-0.65) between QUALAS-A-G domains, indicating they measure different aspects of HRQOL. Adults who were continent of both urine and stool reported higher QUALAS-A-G scores than those who were incontinent.</p><p><strong>Conclusion: </strong>We demonstrated QUALAS-A-G to be reliable and valid in German-speaking adults with SB. The QUALAS-A-G could be a useful tool for communication between adults with SB and medical staff.</p>","PeriodicalId":50044,"journal":{"name":"Journal of Spinal Cord Medicine","volume":" ","pages":"1-6"},"PeriodicalIF":1.8,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142808441","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Taking risk to heart: An evaluation of cardiometabolic risk and screening guideline adherence in outpatients with spinal cord injury. 心脏风险:脊髓损伤门诊患者心脏代谢风险和筛查指南依从性的评估。
IF 1.8 4区 医学
Journal of Spinal Cord Medicine Pub Date : 2024-12-10 DOI: 10.1080/10790268.2024.2420142
Luxshmi Nageswaran, Dalton L Wolfe, Laura J Graham, Emma A Bateman
{"title":"Taking risk to heart: An evaluation of cardiometabolic risk and screening guideline adherence in outpatients with spinal cord injury.","authors":"Luxshmi Nageswaran, Dalton L Wolfe, Laura J Graham, Emma A Bateman","doi":"10.1080/10790268.2024.2420142","DOIUrl":"10.1080/10790268.2024.2420142","url":null,"abstract":"<p><strong>Objectives: </strong>To evaluate cardiometabolic disease (CMD) in outpatients with spinal cord injury/disease (SCI/D). The study aims were to (1) estimate the prevalence of CMD risk factors in a cohort of Canadian adults with SCI/D; (2) assess whether the frequency of CMD screening aligns with evidence-based guidelines; and (3) gain a preliminary understanding of the barriers to CMD screening and/or treatment within a rehabilitation program setting.</p><p><strong>Design: </strong>Quality improvement initiative involving chart review extracting the presence of and frequency of screening for four CMD risk factors (obesity, hypertension, dyslipidemia, diabetes mellitus). Values were compared to evidence-based guidelines for CMD risk identification and management. Root cause analysis and focused interviews were conducted with clinic staff to identify barriers.</p><p><strong>Setting: </strong>Academic, tertiary rehabilitation hospital.</p><p><strong>Participants: </strong>Consecutive outpatients with SCI/D from October 2020 to December 2021 (<i>n</i> = 73).</p><p><strong>Results: </strong>43.8% of outpatients sampled had established CMD (≥3 risk factors) and 94.5% had at least one risk factor. Obesity was the most prevalent (82.2%), followed by dyslipidemia (71.7%), hypertension (46.5%), and diabetes mellitus (34.8%). Hypertension and obesity screening were completed at 14.3% and 10.4% of appointments. The frequency of dyslipidemia and diabetes mellitus screening could not be determined. Eighteen barriers to timely CMD screening and treatment intensification were identified.</p><p><strong>Conclusions: </strong>The prevalence of CMD risk factors in outpatients with SCI/D was high. While approximately two of every five outpatients had established CMD, adherence to screening guidelines was poor. These findings reinforce the need for strategies to improve screening and reduce preventable harm from CMD in this vulnerable population.</p>","PeriodicalId":50044,"journal":{"name":"Journal of Spinal Cord Medicine","volume":" ","pages":"1-11"},"PeriodicalIF":1.8,"publicationDate":"2024-12-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142803126","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Shockwave therapy in persons with a spinal cord injury and spasticity: A multiple single-case experimental design study. 脊髓损伤和痉挛患者的冲击波治疗:一项多例单例实验设计研究。
IF 1.8 4区 医学
Journal of Spinal Cord Medicine Pub Date : 2024-12-09 DOI: 10.1080/10790268.2024.2379067
Boris S G Hellenbrand, Charlotte C M van Laake-Geelen, Henk A M Seelen
{"title":"Shockwave therapy in persons with a spinal cord injury and spasticity: A multiple single-case experimental design study.","authors":"Boris S G Hellenbrand, Charlotte C M van Laake-Geelen, Henk A M Seelen","doi":"10.1080/10790268.2024.2379067","DOIUrl":"https://doi.org/10.1080/10790268.2024.2379067","url":null,"abstract":"<p><strong>Objective: </strong>To determine whether ESWT is able to safely and positively influence specific ADL activities in people with SCI and spasticity, measured by Goal Attainment Scaling (GAS).</p><p><strong>Study design: </strong>Multiple single-case experimental design with a randomized baseline length.</p><p><strong>Setting: </strong>Rehabilitation centre.</p><p><strong>Subjects: </strong>This study included 11 participants with SCI, aged >18 years (mean (SD) 63 (12.2) years), mean (SD) duration after injury 9 (8.1) years, with hindering spasticity in the upper or lower limb.</p><p><strong>Methods: </strong>During the 3-week treatment phase, radial ESWT in the plantar flexors of the calf (<i>n</i> = 6) or in the flexors of the wrist/hand (<i>n</i> = 5) was applied weekly, followed by a 12-week follow-up phase. The primary outcome measure consisted of the Goal Attainment Scaling (GAS), in which three individual goals were set. Secondary outcome measures included range of joint motion, pain (0-10), 10-m walking test and Van-Lieshout-hand-function-test-for-Tetraplegia (short form).</p><p><strong>Results: </strong>At descriptive level, in total, 28 of the 33 GAS items improved after ESWT and these effects generally were maintained during the follow-up phase. The results of all secondary outcome measures varied. No serious adverse events occurred.</p><p><strong>Conclusions: </strong>In this study, ESWT resulted in improved performance of specific ADL items in most persons with SCI. More research is needed to confirm these results in a larger cohort.</p>","PeriodicalId":50044,"journal":{"name":"Journal of Spinal Cord Medicine","volume":" ","pages":"1-9"},"PeriodicalIF":1.8,"publicationDate":"2024-12-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142803124","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluation of bowel management efficacy and subjects' satisfaction in people with spinal cord injury (SCI): An Italian multicenter survey via the MENTOR tool. 评估脊髓损伤(SCI)患者的肠道管理效果和受试者满意度:意大利通过MENTOR工具进行的一项多中心调查。
IF 1.8 4区 医学
Journal of Spinal Cord Medicine Pub Date : 2024-12-02 DOI: 10.1080/10790268.2024.2414147
Simone Tiberti, Claudio Pilati, Astrid Bonaccorsi, Luigi G Rizzato, Michele Spinelli, Giulio Del Popolo, Gabriele Righi, Valentina Cicioni, Aquilina Colonna, Ilaria Rosso, Giuseppina Frasca, Luisa De Palma, Antonella Andreottola, Lucia Feltroni, Serena V Capobianco, Giorgio Scivoletto
{"title":"Evaluation of bowel management efficacy and subjects' satisfaction in people with spinal cord injury (SCI): An Italian multicenter survey via the MENTOR tool.","authors":"Simone Tiberti, Claudio Pilati, Astrid Bonaccorsi, Luigi G Rizzato, Michele Spinelli, Giulio Del Popolo, Gabriele Righi, Valentina Cicioni, Aquilina Colonna, Ilaria Rosso, Giuseppina Frasca, Luisa De Palma, Antonella Andreottola, Lucia Feltroni, Serena V Capobianco, Giorgio Scivoletto","doi":"10.1080/10790268.2024.2414147","DOIUrl":"https://doi.org/10.1080/10790268.2024.2414147","url":null,"abstract":"<p><strong>Study design: </strong>Observational prospective multicenter study.</p><p><strong>Objectives: </strong>The aim of this study is to evaluate the efficacy of bowel management and subjects' satisfaction by the Monitoring the Efficacy of Neurogenic Bowel Treatment On Response (MENTOR) tool and the impact of demographic and clinical factors on bowel management.</p><p><strong>Methods: </strong>Consecutive patients with SCI were recruited by nine Italian Spinal Units. The MENTOR tool is a three-dimensional questionnaire assessing objective bowel score measures, patient's subjective perceptions, and \"special attention symptoms\"; the combination of these results defines the allocation of each subject into one of three categories reflecting the possible therapeutic recommendations (red for \"recommend change\", yellow for \"further discussion\", and green for \"monitoring\").</p><p><strong>Results: </strong>We recruited 352 subjects with subacute or chronic SCI. The NBD average score was 11.7 ± 7.2 with 69.9% that expresses \"good\" or \"adequate\" satisfaction. 33.1% had one or more \"special attention symptoms (SAS)\". About the MENTOR tool color: 34.6% of the current treatment was adequate (green), 29.7% needed a revaluation (yellow), and 35% required a change (red). While in \"green\" patients the subjective perception coincided with the score, 24% of \"yellow\" patients and 34.4% of \"red\" patients answered they were well managed. None of the clinical or demographic characteristics was associated with patients' satisfaction or belonging to the three color zones.</p><p><strong>Conclusions: </strong>Effective bowel management in subjects with SCI did not correlate with patient characteristics or satisfaction. Many patients have inappropriate bowel management despite their satisfaction and the chronicity of the injury. This disparity calls for a periodic assessment with an objective tool such as MENTOR to identify the individual that requires intervention.</p>","PeriodicalId":50044,"journal":{"name":"Journal of Spinal Cord Medicine","volume":" ","pages":"1-10"},"PeriodicalIF":1.8,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142773740","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Improving current understanding of cognitive impairment in patients with a spinal cord injury: A UK-based clinician survey. 提高当前对脊髓损伤患者认知障碍的认识:英国临床医生调查。
IF 1.8 4区 医学
Journal of Spinal Cord Medicine Pub Date : 2024-11-22 DOI: 10.1080/10790268.2024.2426313
Hamish Patel, Daniel Blackburn, Ram Hariharan, Krishnan Padmakumari Sivaraman Nair, Simon M Bell
{"title":"Improving current understanding of cognitive impairment in patients with a spinal cord injury: A UK-based clinician survey.","authors":"Hamish Patel, Daniel Blackburn, Ram Hariharan, Krishnan Padmakumari Sivaraman Nair, Simon M Bell","doi":"10.1080/10790268.2024.2426313","DOIUrl":"https://doi.org/10.1080/10790268.2024.2426313","url":null,"abstract":"<p><strong>Context: </strong>Emerging data suggests that patients with a spinal cord injury (SCI) have a higher risk of developing cognitive impairment. The true incidence of cognitive impairment in this group is unclear due to the difficulty in administering commonly used assessment tools, which are dependent on functional abilities e.g. drawing and writing.</p><p><strong>Methods: </strong>A 16-question online survey, that aims to understand current practices on the assessment of cognition and the limitations of currently available tools, was sent via a Research Network Group to British Association of Spinal Cord Injury Specialists (BASCIS) registered clinicians at each of the 12 Spinal Injuries Centers in the UK and Ireland.</p><p><strong>Results: </strong>41 responses from 11 different SCI centers, with most from clinicians who have worked with SCI patients for over 10 years. 68% felt that there was a higher incidence of cognitive impairment in those with an SCI. However, 15% reported not using tools to screen for cognitive impairment, primarily due to lack of time, lack of guidelines, and physical disabilities affecting the ability to complete tests. When used, the most commonly utilized tools were those that rely on intact hand function.</p><p><strong>Conclusions: </strong>Clinicians report a higher incidence of cognitive impairment in those with an SCI. However, currently used tools are not always appropriate, and patients with impaired hand function may be under-represented or undiagnosed. Further work is needed for a more standardized assessment tool to ensure that these patients receive appropriate diagnosis and management, particularly since cognitive impairment in this group can increase care needs and reduce engagement with rehabilitation.</p>","PeriodicalId":50044,"journal":{"name":"Journal of Spinal Cord Medicine","volume":" ","pages":"1-7"},"PeriodicalIF":1.8,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142689379","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Shelter-in-place during the COVID-19 pandemic: Impact on secondary health conditions, anxiety, loneliness, social isolation, social connectedness, and positive affect and well-being. COVID-19 大流行期间的就地避难:对继发性健康状况、焦虑、孤独、社会隔离、社会联系以及积极情绪和幸福感的影响。
IF 1.8 4区 医学
Journal of Spinal Cord Medicine Pub Date : 2024-11-22 DOI: 10.1080/10790268.2024.2420430
Melissa L Zahl, Jennifer A Piatt, Cedomir Stanojevic, Shu Cole, Harold D Green
{"title":"Shelter-in-place during the COVID-19 pandemic: Impact on secondary health conditions, anxiety, loneliness, social isolation, social connectedness, and positive affect and well-being.","authors":"Melissa L Zahl, Jennifer A Piatt, Cedomir Stanojevic, Shu Cole, Harold D Green","doi":"10.1080/10790268.2024.2420430","DOIUrl":"https://doi.org/10.1080/10790268.2024.2420430","url":null,"abstract":"<p><strong>Context/objective: </strong>The objective of this study was to examine the implications of shelter-in-place (SIP) during the COVID-19 pandemic on secondary health conditions (SHC), loneliness, social isolation, social connectedness, anxiety, and positive affect and well-being (PAWB) among community-dwelling adults with spinal cord injury (SCI).</p><p><strong>Design: </strong>An online exploratory cross-sectional descriptive design.</p><p><strong>Participants: </strong>131 community-dwelling adults with SCI.</p><p><strong>Outcome measures: </strong>UCLA Loneliness Scale, SCI-QOL - Anxiety and PAWB.</p><p><strong>Results: </strong>Respondents were approximately 33 years old, mostly male and Caucasian. More than half reported being married, living with their spouse in a home with modifications, or living in a household of three or more people. More than half reported experiencing more pain during SIP but not experiencing more of any other SHC than before SIP. On average, participants experienced a moderate level of loneliness, severe anxiety, and higher levels of PAWB during SIP.</p><p><strong>Conclusion: </strong>Respondents reported that they experienced more pain, loneliness, and anxiety while at the same time reporting higher PAWB. Future research should focus on understanding the nuances of the seemingly counterintuitive relationship described here to develop better ways to support community-dwelling adults with SCI during public health emergencies and SIP.</p>","PeriodicalId":50044,"journal":{"name":"Journal of Spinal Cord Medicine","volume":" ","pages":"1-7"},"PeriodicalIF":1.8,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142689393","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
First report of a new exoskeleton in incomplete spinal cord injury: FreeGait®. 首次报道用于不完全脊髓损伤的新型外骨骼:FreeGait®。
IF 1.8 4区 医学
Journal of Spinal Cord Medicine Pub Date : 2024-11-22 DOI: 10.1080/10790268.2024.2426314
Meriç Selim Şipal, Evren Yaşar, Zuhal Özişler, Emre Adıgüzel, Sinem Yıldırım, Ömür Deler, Selin Kirdiş, Halil İbrahim Çelik, Seda Biçici Uluşahin, Gülseren Kayalar, Aynur Ayşe Karaduman
{"title":"First report of a new exoskeleton in incomplete spinal cord injury: FreeGait<sup>®</sup>.","authors":"Meriç Selim Şipal, Evren Yaşar, Zuhal Özişler, Emre Adıgüzel, Sinem Yıldırım, Ömür Deler, Selin Kirdiş, Halil İbrahim Çelik, Seda Biçici Uluşahin, Gülseren Kayalar, Aynur Ayşe Karaduman","doi":"10.1080/10790268.2024.2426314","DOIUrl":"https://doi.org/10.1080/10790268.2024.2426314","url":null,"abstract":"<p><strong>Context: </strong>Intensive walking practice often demands capabilities that go beyond the limits for both patients and therapists. As a solution, robot-assisted exoskeletons have been developed to deliver efficient rehabilitation sessions.</p><p><strong>Objective: </strong>The primary aim was to evaluate the effect of adding exoskeleton training, the FreeGait®, to conventional treatment on walking status in patients with motor incomplete spinal cord injury. The secondary aim was to assess its impact on mobility, functional independence, and health-related quality of life.</p><p><strong>Methods: </strong>This study compared exoskeleton gait training with conventional therapy (RBCT) versus conventional therapy alone (CT). Fourteen participants with motor incomplete spinal cord injury were included, with seven in each group. Both groups had 40-minute conventional therapy sessions 5 days a week. Additionally, the RBCT performed exoskeleton walking and balance exercises 3 days a week. The WISCI II (primary outcome), 10MWT, gait speed, TUG, BBS, SCIM III, and WHOQOL-BREF were used for evaluation (see text for acronyms).</p><p><strong>Results: </strong>Walking status and mobility-related measures showed significant improvements in the RBCT (p < 0.05), whereas no significant differences were observed in the CT (p > 0.05). There was a significant difference in the physical health domain of the WHOQOL-BREF only in the RBCT. However, no significant differences were found in the WHOQOL-BREF total score in both groups (p > 0.05). Furthermore, no significant difference was observed between the groups in terms of change (p > 0.05).</p><p><strong>Conclusions: </strong>Gait training with the new exoskeleton combined with conventional therapy, positively contributes to walking status, mobility, and functional independence.<b>Trial registration:</b> ClinicalTrials.gov identifier: NCT06137456.</p>","PeriodicalId":50044,"journal":{"name":"Journal of Spinal Cord Medicine","volume":" ","pages":"1-11"},"PeriodicalIF":1.8,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142689378","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The association between locus of control and general mental health in patients with lumbar spinal cord injury: A cross-sectional study. 腰部脊髓损伤患者的控制感与一般心理健康之间的关系:一项横断面研究。
IF 1.8 4区 医学
Journal of Spinal Cord Medicine Pub Date : 2024-11-22 DOI: 10.1080/10790268.2024.2426309
Amir Bazrafshan, Moein Fahimy, Hamid Reza Farpour, Amin Sayyadi, Alireza Heiran
{"title":"The association between locus of control and general mental health in patients with lumbar spinal cord injury: A cross-sectional study.","authors":"Amir Bazrafshan, Moein Fahimy, Hamid Reza Farpour, Amin Sayyadi, Alireza Heiran","doi":"10.1080/10790268.2024.2426309","DOIUrl":"https://doi.org/10.1080/10790268.2024.2426309","url":null,"abstract":"<p><strong>Background: </strong>Spinal cord injuries (SCIs) are major sources of socioeconomic burdens and are still rising globally. SCIs also cause several personal sufferings in both physical and psychological aspects. Individuals' reactions following a traumatic incident can vary based on the severity and nature of the damage, as well as their psychological dispositions. Locus of control (an individual's belief in his/her ability to control the outcome of events surrounding them) is an important factor in determining individuals' quality of life (QoL) in the aftermath of an incident.</p><p><strong>Methods: </strong>We conducted a cross-sectional study to investigate the association between locus of control and general health in patients with lumbar SCI. This study was carried out on 108 patients with lumbar SCI using the Rotter's Locus of Control Scale and the General Health questionnaires, as well as demographic data.</p><p><strong>Results: </strong>Patients with an internal locus of control had a significantly better general health score than those with an external locus of control (32 vs. 38.5; <i>P</i> < 0.0001). There was a moderate positive correlation between general health and locus of control score (R = 0.575; <i>P</i> < 0.0001). Also, employed patients had a significantly more internal locus of control score compared to unemployed patients (7 vs. 8; <i>P</i> = 0.004).</p><p><strong>Conclusion: </strong>Scores of locus of control and general health are significantly correlated, and internal locus of control could lead to better general mental health in patients with lumbar SCI. Although there is a need for more studies with better study designs to approve of this association, the results of this study emphasize the importance of interventions targeting locus of control, improving socio-economic conditions, and rehabilitation measures in improving the general health of these patients.</p>","PeriodicalId":50044,"journal":{"name":"Journal of Spinal Cord Medicine","volume":" ","pages":"1-6"},"PeriodicalIF":1.8,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142689398","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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