Cleft Palate-Craniofacial Journal最新文献_第6页

Sociodemographic Factors Predict Long-Term Attrition from Multidisciplinary Cleft Clinic. 社会人口因素可预测多学科裂隙诊所的长期流失率。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-02-29 DOI: 10.1177/10556656241234804

Connor S Wagner, Sarah L Barnett, Dominic Romeo, Carrie Z Morales, Lauren K Salinero, Carlos E Barrero, Matthew E Pontell, Rachel A McKenna, Nancy Folsom, Jesse A Taylor, Jordan W Swanson

{"title":"Sociodemographic Factors Predict Long-Term Attrition from Multidisciplinary Cleft Clinic.","authors":"Connor S Wagner, Sarah L Barnett, Dominic Romeo, Carrie Z Morales, Lauren K Salinero, Carlos E Barrero, Matthew E Pontell, Rachel A McKenna, Nancy Folsom, Jesse A Taylor, Jordan W Swanson","doi":"10.1177/10556656241234804","DOIUrl":"10.1177/10556656241234804","url":null,"abstract":"ObjectiveIdentify and describe factors associated with retention and attrition of patients during longitudinal follow-up at multidisciplinary cleft clinic.DesignRetrospective cohort study.SettingSingle, tertiary care center.Patients, ParticipantsPatients born between 1995 and 2007 with a diagnosis of cleft palate with or without cleft lip attending multidisciplinary cleft clinic.InterventionsNone tested, observational study.Main Outcome Measure(s)Age at last clinical appointment with a multidisciplinary cleft team provider. Attrition was defined as absence of an outpatient appointment following 15 years of age.ResultsSix hundred seventy-eight patients were included. The average age at last appointment across the entire cohort was 13.1 years (IQR 6.6-17.2). Patients who were Black (HR 1.60, 95% CI 1.10-2.32, p = 0.014) and other races (HR 1.90, 95% CI 1.22-2.98, p = 0.004) were more likely to be lost to follow-up compared to white patients. Publicly insured patients were more likely to experience attrition than those who were privately insured (HR 1.30, 95% CI 1.03-1.65, p = 0.030). Estimated income was not significantly associated with length of follow-up (p = 0.259). Those whose residence was in the fourth quartile of driving distance from our center experienced loss to follow-up significantly more than those who lived the closest (HR 2.04, 95% CI 1.50-2.78, p < 0.001).ConclusionsThere is a high degree of follow-up attrition among patients with cleft lip and palate. Race, insurance status, and driving distance to our center were associated with attrition in a large, retrospective cohort of patients who have reached the age of cleft clinic graduation.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"1003-1010"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139998032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Suprazygomatic Maxillary Nerve Block in Palatoplasty: A Retrospective Cohort Study of Perioperative Outcomes in Syndromic and Non-Syndromic Children. 腭成形术中的颧上颌神经阻滞：综合征和非综合征儿童围手术期结果的回顾性队列研究。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-03-01 DOI: 10.1177/10556656241234595

Krystof Stanek, Walid Alrayashi, Lisa Nussbaum, Ingrid M Ganske, Carolyn R Rogers-Vizena

{"title":"Suprazygomatic Maxillary Nerve Block in Palatoplasty: A Retrospective Cohort Study of Perioperative Outcomes in Syndromic and Non-Syndromic Children.","authors":"Krystof Stanek, Walid Alrayashi, Lisa Nussbaum, Ingrid M Ganske, Carolyn R Rogers-Vizena","doi":"10.1177/10556656241234595","DOIUrl":"10.1177/10556656241234595","url":null,"abstract":"ObjectiveThis study compares the impact of surgical site infiltration of local anesthesia alone to surgical site infiltration plus suprazygomatic maxillary nerve block (SMB) in non-syndromic and syndromic children undergoing primary palatoplasty.DesignRetrospective cohort study of intra- and post-operative outcomes and opioid utilization in children undergoing palatoplasty by a single surgeon.SettingUrban, academic, tertiary care children's hospital.Patients, ParticipantsChildren 24 months or younger undergoing primary palatoplasty were included (n = 102). Exclusion criteria were concurrent painful procedures, history of neonatal abstinence syndrome, and nurse-controlled analgesia (n = 30).InterventionsAll patients received epinephrine-containing local anesthetic infiltrated at the surgical site. Fifty-seven also underwent placement of ultrasound-guided SMB.Main Outcome Measure(s)Intra-operative opioid requirement, duration of anesthesia, time to wake up, post-operative opioid requirement, hypoxemic episodes, need for respiratory support, FLACC scores, and length of stay.ResultsWhen controlling for syndromic status and cleft phenotype, SMB was associated with a 57% reduction in intraoperative opioid requirements (95% CI = 15-81%, p = 0.024) but also with a 29% (∼5-min) increase in wake-up time post-surgery (95% CI = 3-50%, p = 0.048). Postoperatively, SMB was linked to a 18% reduction in hospital stay length (95% CI = 2-31%, p = 0.027) and a 88% reduction in opioid requirements within 24 h after surgery (p = 0.006). Desaturations and new respiratory support requirements were unaffected by SMB.ConclusionsCompared to surgical site infiltration of local anesthetic alone, adding SMB reduces intra- and postoperative narcotic requirements and decreases length of stay. These benefits apply to both syndromic and non-syndromic children. SMB does not meaningfully affect respiratory outcomes.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"976-984"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139998033","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Weight Gain of Infants with Robin Sequence Treated Nonsurgically Using the Stanford Orthodontic Airway Plate (SOAP): 1-Year Follow-Up. 使用斯坦福正畸气道板 (SOAP) 进行非手术治疗的罗宾序列婴儿的体重增加情况：1 年随访。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-02-19 DOI: 10.1177/10556656241233239

HyeRan Choo, Alexis S Davis, Lisa C Bain, HyoWon Ahn

引用次数: 0

Correlation between Cleft Width and Adjacent Teeth Inclination in Patients with Unilateral Cleft Lip and Palate Using CBCT: A Retrospective Study. 使用 CBCT 对单侧唇腭裂患者的裂隙宽度与邻牙倾斜度之间的相关性进行回顾性研究。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-02-28 DOI: 10.1177/10556656241236532

Reham Khaled Tayyar, Tarek Z Khattab

{"title":"Correlation between Cleft Width and Adjacent Teeth Inclination in Patients with Unilateral Cleft Lip and Palate Using CBCT: A Retrospective Study.","authors":"Reham Khaled Tayyar, Tarek Z Khattab","doi":"10.1177/10556656241236532","DOIUrl":"10.1177/10556656241236532","url":null,"abstract":"ObjectivesTo evaluate buccolingual and mesiodistal inclination of cleft-adjacent maxillary permanent central incisors (U1) and canines (U3) in patients with unilateral cleft lip and palate (UCLP) in the late mixed dentition and to investigate the correlation between the alveolar cleft width and cleft-adjacent teeth inclination using cone beam computed tomography (CBCT).DesignObservational cross-sectional retrospective study.SettingDepartment of Orthodontics, Hama University Dental School.Patients32 patients with UCLP (22 boys, 10 girls; mean age = 10.53 ± 1.51 years).Main Outcome MeasureBuccolingual and mesiodistal inclination of maxillary central incisors and canines were measured on both sides. Then, the cleft and non-cleft sides were compared using the Wilcoxon signed-rank test. Pearson's correlation was used to explore the association between the alveolar cleft width and cleft-adjacent U1 and U3 buccolingual and mesiodistal inclination.ResultsThe cleft-adjacent central incisors were significantly inclined lingually and distally compared with their non-cleft antimeres (P = .003, P < .001, respectively). The cleft-adjacent canines were significantly inclined buccally and mesially compared with their non-cleft antimeres (P < .001, for both). A positive correlation was found between the buccolingual inclination of cleft-adjacent U1 and the alveolar cleft width (r = 0.49, P = .004).ConclusionsPatients with UCLP demonstrated a significant lingual and distal inclination of cleft-adjacent U1 and a significant buccal and mesial inclination of cleft-adjacent U3. The buccolingual inclination of cleft-adjacent U1 tends to increase with increasing the alveolar cleft width; however, the correlation was weak.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"1032-1038"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139991506","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Preoperative Velopharyngeal Closure Predicts Hypernasality Outcomes of Secondary Furlow Double-Opposing Z-Plasty. 术前伶仃闭合可预测二次Furlow双闭合Z成形术的低哮鸣音结果

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-03-14 DOI: 10.1177/10556656241237422

Kayla Prezelski, Carolyn Kim, Jeyna Perez, Cortney Vant Slot, Alex A Kane, James R Seaward

{"title":"Preoperative Velopharyngeal Closure Predicts Hypernasality Outcomes of Secondary Furlow Double-Opposing Z-Plasty.","authors":"Kayla Prezelski, Carolyn Kim, Jeyna Perez, Cortney Vant Slot, Alex A Kane, James R Seaward","doi":"10.1177/10556656241237422","DOIUrl":"10.1177/10556656241237422","url":null,"abstract":"ObjectiveTo determine if preoperative velopharyngeal closure percentage (VCP) is predictive of successful Furlow double opposing Z-plasty (DOZP) and subsequently determine the optimal velopharyngeal closure cutoff for successful DOZP.DesignRetrospective studySettingTertiary academic centerPatients110 patients with repaired cleft lip and palate having hypernasality treated with DOZPInterventionsSpeech videofluoroscopy images were used to obtain the preoperative VCP and other measurements.Main Outcome MeasuresChanges in hypernasality scores using the Cleft Audit Protocol for Speech-Augmented-Americleft Modification (CAPS-A-AM) rating system were used as the primary outcome measure. A successful DOZP was defined as a postoperative hypernasality score of ≤ 1 or an improvement of 2 or more scores from baseline. A receiver operating characteristic (ROC) curve was calculated to determine preoperative VCP cutoff.ResultsThere were 110 patients who underwent DOZP for treatment of velopharyngeal insufficiency. Of these patients, 94 (85%) had successful surgery as determined by their postoperative CAPS-A-AM hypernasality score. Preoperative VCP was a statistically significant predictor of successful DOZP (P < .0001). The ROC curve with Youden index (J) determined a cutoff (c*) of 55% preoperative VCP or greater to optimize surgical success rate. Grouping by preoperative VCP showed that surgical success increases directly with preoperative VCP, and patients with low VCP had above a 50% success rate in reducing hypernasality scores.ConclusionsPreoperative VCP was significantly associated with improved hypernasality ratings postoperatively. A preoperative VCP of ≥55% may be used to help predict success of Furlow palatoplasty treatment. Patients with lower VCP can still benefit from secondary DOZP.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"1023-1031"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12120201/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140132986","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Presurgical Infant Orthopedic Videos on YouTube™: A Thematic Analysis of Caregiver Narratives. YouTube™ 上的婴儿矫形手术前视频：护理人员叙述的专题分析。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-02-23 DOI: 10.1177/10556656241233115

Raed Alrubaiaan, Bhavana Nair, Fatemeh Amir-Rad, May Aljanahi, Vijay Kumar S, Sabarinath Prasad

{"title":"Presurgical Infant Orthopedic Videos on YouTube™: A Thematic Analysis of Caregiver Narratives.","authors":"Raed Alrubaiaan, Bhavana Nair, Fatemeh Amir-Rad, May Aljanahi, Vijay Kumar S, Sabarinath Prasad","doi":"10.1177/10556656241233115","DOIUrl":"10.1177/10556656241233115","url":null,"abstract":"ObjectiveInformation regarding how caregivers cope when using presurgical infant orthopedic (PSIO) appliances is sparse. This study aimed to understand caregivers' perspectives and experiences with contemporary PSIO treatment.DesignPSIO videos shared on the YouTube™ platform were used as the data source. Videos with caregivers were identified (n = 21) and portions with caregiver narratives were transcribed. This was followed by the application of a six-step thematic analysis as conceptualized by Braun and Clarke (2006, 2019).ResultsTwo themes were identified from the caregiver narratives in the PSIO videos. The Family Journey theme included reaction to diagnosis, choice of center, burden of care, care commitment, coping, and testimonials. The Information theme included PSIO techniques and PSIO benefits.ConclusionMultifaceted challenges and coping strategies were described by caregivers during the PSIO phase. Caregivers remained committed to treatment despite the burden of care, were motivated by an understanding of the benefits of PSIO, and customized care based on their individual strengths and needs. Study results can help providers gain an understanding of what caregivers experience outside the clinical environment.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"921-931"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139933768","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Occlusal Outcomes in Non-Robin Sequence Patients with Isolated Cleft Palate. 非罗宾序列孤立性腭裂患者的咬合效果。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-02-22 DOI: 10.1177/10556656241236078

Catherine Beaumont, Audrey Bellerive, Anne-Sophie Julien, Jacques E Leclerc

{"title":"Occlusal Outcomes in Non-Robin Sequence Patients with Isolated Cleft Palate.","authors":"Catherine Beaumont, Audrey Bellerive, Anne-Sophie Julien, Jacques E Leclerc","doi":"10.1177/10556656241236078","DOIUrl":"10.1177/10556656241236078","url":null,"abstract":"Objectives1. To assess the skeletal class occlusion and lateral cephalometry in children with isolated cleft palates (non-Robin sequence) and 2. to identify associations between these findings and pre-palatoplasty cleft palate measurements.Study designRetrospective cohort study.SettingNorth American Institutional Tertiary Paediatric Center.PatientsOur cleft database was reviewed, and patients were included if they had an isolated cleft palate without a Robin Sequence diagnosis, had a Furlow palatoplasty and had available per operative cleft palate measurements and available lateral cephalogram between 6 and 8 years old. Thirty-two patients matched to inclusion criteria.InterventionFurlow's Palatoplasty.Main Outcome and MeasuresCleft size at palatoplasty, cephalometric measurements and skeletal occlusal classes were analysed. ANOVA was used to test the association between cephalometric measurements and occlusal classes. Results are presented as means with a 95% confidence interval. The association between cleft measurements and cephalometric parameters was tested with Spearman Correlation (rs).ResultsThe skeletal occlusal outcome at 7 years old for this series of patients was: Class I: 19%; Class II: 59% and Class III: 22%. No single cleft measurement at palatoplasty was predictive of the skeletal occlusal outcome. A larger hard palate cleft was associated with a shorter antero-posterior maxilla.ConclusionsThe skeletal occlusal class outcomes were similar to those found in a previous study in the literature. The occlusal prognosis appears to be better than in patients with Robin Sequence or with an associated cleft lip. No preoperative measurement was found to be associated with the occlusal outcome.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"995-1002"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12120202/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139933765","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Cleft Laterality Dental Arch Relationship Outcomes for Children with Unilateral Cleft Lip and Palate in New Zealand. 新西兰单侧唇腭裂儿童的侧裂牙弓关系结果。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-02-27 DOI: 10.1177/10556656241234599

Peter V Fowler, H Keall, D Kennedy, D Healey, J M D Thompson

{"title":"Cleft Laterality Dental Arch Relationship Outcomes for Children with Unilateral Cleft Lip and Palate in New Zealand.","authors":"Peter V Fowler, H Keall, D Kennedy, D Healey, J M D Thompson","doi":"10.1177/10556656241234599","DOIUrl":"10.1177/10556656241234599","url":null,"abstract":"ObjectivesTo investigate cleft laterality dental arch relationship outcomes of children with non-syndromic complete unilateral cleft lip and palate (UCLP) in New Zealand.DesignA retrospective nationwide study.SettingsVirtual 3D orthodontic study models collected prior to undertaking secondary alveolar bone grafting.ParticipantsA total of 104 patients with UCLP (L = 80: R = 24).Outcome measuresFour calibrated assessors used the GOSLON Yardstick and 100 mm Visual Analogue Scale (VAS) to score the randomised models on 2 separate assessment sessions. Weighted Kappa were used to determine the intra/inter-rater reliability for the GOSLON and correlations for the VAS.ResultsIntra-rater reliability ranged from 0.57-0.88 (GOSLON) and 0.45-0.93 (VAS). Inter-rater reliability ranged from 0.62-0.86 (GOSLON) and 0.64-0.93 (VAS).GOSLON scores for the left UCLP were 31.2% for good/very good; 26.3% for fair; 42.5% for poor/very poor while the right UCLP scored 8.3% for good/very good; 37.5% for fair; 54.2% for poor/very poor. The mean VAS for left and right UCLP were 53.4 (sd 22.5) and 44.6 (sd 17.1) respectively. Neither the GOSLON nor VAS differences reached statistical significance (both P = .08).ConclusionsFrom a clinical perspective right UCLP had worse dental arch relationship outcomes, however, these differences failed to reach statistical significance. Further studies using larger sample sizes are required to determine if cleft laterality is an important consideration when investigating UCLP dental arch outcomes.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"959-963"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12120204/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139984286","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Overjet in Infants: A Cross-Sectional Study. 婴儿的牙齿过度前突：横断面研究

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-02-23 DOI: 10.1177/10556656241235030

Mohamed El-Rabbany, Ryan Shargo, Pat Ricalde

{"title":"Overjet in Infants: A Cross-Sectional Study.","authors":"Mohamed El-Rabbany, Ryan Shargo, Pat Ricalde","doi":"10.1177/10556656241235030","DOIUrl":"10.1177/10556656241235030","url":null,"abstract":"ObjectiveThe purpose of this study was to determine the normal ranges for overjet in healthy infants under 12 months of age.DesignA cross sectional study of consecutive patients below 12 months of age.SettingThe study was conducted at a private practice in Tampa, FL that specializes in pediatric craniomaxillofacial disorders.PatientsAll patients under the age 12 months were considered for entry into the study. Patients were excluded if they had temporomandibular joint pathology, sleep disordered breathing, facial trauma, or were diagnosed with a craniofacial anomaly.InterventionsMeasures of overjet, defined as the distance between the anterior surfaces of the alveolar ridges when in centric relation, were obtained.Main Outcome MeasureThe primary study outcome was the overjet of the enrolled patients.ResultsA total of 152 infants were included in this study. Of these, 51 were female, and 40 were born prematurely (ranging from 32-37 weeks of gestation). In neonates below 1 month of age, the mean overjet was 2.25 mm (95% CI 1.31-3.19). Multivariate linear regression analysis showed overjet to significantly decrease with age, at a mean rate of approximately 0.1 mm per month (coefficient of -0.09, 95% CI -1.61 to -0.02, p = 0.01). When controlling for potential confounders, average overjet was not shown to vary significantly between the sexes, with prematurity, with race, or with primary diagnosis at presentation.ConclusionThis paper establishes normative values for overjet in infants below 12 months of age.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"901-904"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139933766","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"When I was Younger, My Story Belonged to Everyone Else": Co-production of Resources for Adults Living with Craniosynostosis. "当我年轻时，我的故事属于所有人"：为患有颅骨发育不良症的成年人共同制作资源。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-03-18 DOI: 10.1177/10556656241236580

Nicola M Stock, Bruna Costa, William Bannister, Charlotte Ashby, Nammie Matthews, Louise Hebden, Laura Melles, Zoe Hilton-Webb, Sally Smith, Kristian Kane, Lewis Carter, Anna Kearney, Katie Piggott, Charlotte Russell, Karen Wilkinson-Bell

{"title":"\"When I was Younger, My Story Belonged to Everyone Else\": Co-production of Resources for Adults Living with Craniosynostosis.","authors":"Nicola M Stock, Bruna Costa, William Bannister, Charlotte Ashby, Nammie Matthews, Louise Hebden, Laura Melles, Zoe Hilton-Webb, Sally Smith, Kristian Kane, Lewis Carter, Anna Kearney, Katie Piggott, Charlotte Russell, Karen Wilkinson-Bell","doi":"10.1177/10556656241236580","DOIUrl":"10.1177/10556656241236580","url":null,"abstract":"ObjectiveDespite growing recognition that congenital craniofacial conditions have lifelong implications, psychological support for adults is currently lacking. The aim of this project was to produce a series of short films about living with craniosynostosis in adulthood, alongside a psychoeducational booklet.DesignThe resources were developed using multiple focus groups and meetings attended by researchers, patient representatives, a leading charitable organisation, an award-winning film production company, clinicians, and other experts in the field.ResultsAn online mixed-methods survey was developed based on prior work to request feedback on the acceptability and utility of the resources from the craniosynostosis community. While data collection to evaluate the resources is ongoing, preliminary results (n = 36) highlight an acceptability rating of 100%.ConclusionsThe resources developed represent a step forward in addressing the unmet information and support needs of adults with craniosynostosis and highlight the benefits of co-production in research.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"1074-1078"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140159285","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0