Cleft Palate-Craniofacial Journal最新文献

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Publication Trends and Surgeon Perceptions: A Comprehensive Analysis of Gender Disparities in Craniofacial Surgery. 出版趋势与外科医生的看法:颅面外科性别差异综合分析》。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2024-08-28 DOI: 10.1177/10556656241274020
Molly F MacIsaac, Iman F Khan, Rafael Felix P Tiongco, Joshua M Wright, Fatima Qamar, Carisa M Cooney, Richard J Redett, Jordan N Halsey
{"title":"Publication Trends and Surgeon Perceptions: A Comprehensive Analysis of Gender Disparities in Craniofacial Surgery.","authors":"Molly F MacIsaac, Iman F Khan, Rafael Felix P Tiongco, Joshua M Wright, Fatima Qamar, Carisa M Cooney, Richard J Redett, Jordan N Halsey","doi":"10.1177/10556656241274020","DOIUrl":"https://doi.org/10.1177/10556656241274020","url":null,"abstract":"<p><p>In academic craniofacial surgery, gender disparities exist across various metrics including faculty positions, leadership roles, and conference representation. This study benchmarks the academic productivity of craniofacial surgeons in 2022 and surveys their perspectives regarding diversity, equity, and inclusion (DEI).</p><p><p>Total, first author, and senior author PubMed publications in 2022 were recorded for 193 craniofacial attendings and fellows. Craniofacial surgeons were also surveyed regarding academic experience, leadership roles, and DEI perceptions.</p><p><p>Electronic.</p><p><p>26 craniofacial attendings.</p><p><p>Total, first author, and senior author publication counts in 2022.</p><p><p>Women comprised 27% (n = 53) of the craniofacial surgeon cohort. Men led total publications (81% vs 19%, p < 0.001), senior-author publications (84% vs 16%, p < 0.001), average total publications (6.6 vs 4.0, p = 0.043), and average senior-author publications (3.1 vs 1.5, p = 0.02). Sub-analysis of craniofacial fellows showed a higher proportion of women (65%) with no statistical difference in total or average publication counts. Survey responses (n = 26) included a perceived lack of female representation in academic and leadership roles. Barriers included inadequate support from current leadership, systemic issues, and biases. Recommendations for improvement included mentorship programs, targeted recruitment, and equitable conference speaker selection.</p><p><p>Ongoing gender disparities are evident in craniofacial surgery, particularly in academic metrics. However, trends in younger cohorts exhibit more balanced gender representation, publication records, and leadership positions, indicating potential improvements. Further studies are needed to examine these cohorts more comprehensively and longitudinally. Sustained commitment, including mentorship programs and enhanced DEI efforts, is needed to continue this progress.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"10556656241274020"},"PeriodicalIF":1.1,"publicationDate":"2024-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142086388","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
What Free Flaps Are Surgeons Using for Palatal Fistula Repair in Patients with Cleft Palate? A Systematic Review. 外科医生在腭裂患者的腭瘘修复中使用何种游离皮瓣?系统回顾。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2024-08-23 DOI: 10.1177/10556656241266243
Eugene E Zheng, Lauren Gates-Tanzer, Sai Cherukuri, Samir Mardini, M Hassan Murad, Uldis Bite, Waleed Gibreel
{"title":"What Free Flaps Are Surgeons Using for Palatal Fistula Repair in Patients with Cleft Palate? A Systematic Review.","authors":"Eugene E Zheng, Lauren Gates-Tanzer, Sai Cherukuri, Samir Mardini, M Hassan Murad, Uldis Bite, Waleed Gibreel","doi":"10.1177/10556656241266243","DOIUrl":"https://doi.org/10.1177/10556656241266243","url":null,"abstract":"<p><strong>Objective: </strong>Recalcitrant palatal fistulas in patients with cleft palate history sometimes require free flap reconstruction. This study reviews the literature on described flaps and outcomes.</p><p><strong>Design: </strong>A systematic review was conducted per the Preferred Reporting Items for Systematic Reviews and Meta-analyses guidelines.</p><p><strong>Setting: </strong>All study designs were included. Non-English articles were excluded.</p><p><strong>Patients and participants: </strong>Patients with a history of cleft palate who underwent free flap reconstruction for a oronasal fistula.</p><p><strong>Interventions: </strong>Free tissue transfer for a palatal fistula repair.</p><p><strong>Main outcomee measures: </strong>Information regarding defect and flap characteristics were reviewed. Surgical outcomes such as flap loss rates, rates of recurrent fistula formation, and speech outcomes were also obtained.</p><p><strong>Results: </strong>Our search returned 894 articles, of which 23 were included. All studies were retrospective case series and reports. A total of 65 patients were described with an average age of 19.3 (range 3-55) years and a median fistula size of 8.00 cm<sup>2</sup> (range 2.54 cm<sup>2</sup> - 24 cm<sup>2</sup>). The most common flap was the radial forearm flap (n = 37). Nine patients (13.8%) had recurrent fistula formation with surgical revision successful in all cases in which the patient returned to the operating room. There were two partial flap losses and no total flap losses. Speech outcomes showed improvement in 27 patients across 10 studies.</p><p><strong>Conclusions: </strong>Palatal fistula repair with free tissue transfer is safe with an acceptable risk profile and low flap loss rate. Early recurrence due to partial flap necrosis and dehiscence are successfully managed with flap readvancement.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"10556656241266243"},"PeriodicalIF":1.1,"publicationDate":"2024-08-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142037459","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Genetic Testing in Craniofacial Care: Development of Algorithms for Testing Patients with Orofacial Clefting, Branchial Arch Anomalies, and Craniosynostosis. 颅面护理中的基因检测:为口腔裂隙、腮弓畸形和颅畸形患者制定检测算法。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2024-08-18 DOI: 10.1177/10556656241276857
Emily R Gallagher, Penny Chow, Maria R Mills, Hazel Perry, Allison C Tam, Glenn Rosenbluth, Yvonne R Gutierrez, Jessica Kianmahd Shamshoni, Marisa Matthews, Daniela N Schweitzer, Anne Hing
{"title":"Genetic Testing in Craniofacial Care: Development of Algorithms for Testing Patients with Orofacial Clefting, Branchial Arch Anomalies, and Craniosynostosis.","authors":"Emily R Gallagher, Penny Chow, Maria R Mills, Hazel Perry, Allison C Tam, Glenn Rosenbluth, Yvonne R Gutierrez, Jessica Kianmahd Shamshoni, Marisa Matthews, Daniela N Schweitzer, Anne Hing","doi":"10.1177/10556656241276857","DOIUrl":"10.1177/10556656241276857","url":null,"abstract":"<p><strong>Objective: </strong>To develop consensus-based algorithms for genetic testing in patients with common craniofacial conditions.</p><p><strong>Design: </strong>An online collaborative consisting of online meetings, independent work, and feedback across groups. <i>Setting/Participants:</i> A collaborative of genetics and pediatrics providers from three regional craniofacial centers (four institutions).</p><p><strong>Methods: </strong>Collaborative participants agreed upon a shared initial framework, developed algorithms independently, and presented/tested the algorithms with a national audience. Algorithms were modified based on consensus feedback.</p><p><strong>Results: </strong>The collaborative group developed final algorithms for genetic testing in patients with orofacial cleft, branchial arch conditions, and craniosynostosis.</p><p><strong>Conclusions: </strong>Timely and accurate diagnosis of genetic conditions can support medical management recommendations that result in safer surgical interventions. Algorithms can help guide best-practices for testing, particularly in institutions without easy access to genetics providers.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"10556656241276857"},"PeriodicalIF":1.1,"publicationDate":"2024-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142001127","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Interactive iPad-Based Education for Parents of Patients with Cleft Lip and Palate. 为唇腭裂患者家长提供基于 iPad 的互动教育。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2024-08-18 DOI: 10.1177/10556656241275534
Jagmeet S Arora, Nima Khoshab, Megan Donnelly, Sharon Vargas, Touran Zadeh, Raj M Vyas
{"title":"Interactive iPad-Based Education for Parents of Patients with Cleft Lip and Palate.","authors":"Jagmeet S Arora, Nima Khoshab, Megan Donnelly, Sharon Vargas, Touran Zadeh, Raj M Vyas","doi":"10.1177/10556656241275534","DOIUrl":"https://doi.org/10.1177/10556656241275534","url":null,"abstract":"<p><strong>Objective: </strong>To assess the effectiveness of an interactive iPad-based educational module (cleft iBook) in enhancing parent/caregiver education related to cleft lip and/or cleft palate (CL/P) care.</p><p><strong>Design: </strong>A prospective study involving pre- and post-intervention surveys.</p><p><strong>Setting: </strong>The study was conducted at a craniofacial clinic in a dedicated children's hospital specifically during initial consultations for CL/P care.</p><p><strong>Participants: </strong>Thirty-two participants (parents/legal guardians/caregivers) ≥18 years of age, English and/or Spanish-speaking, and attending with a child with CL/P.</p><p><strong>Interventions: </strong>Participants were provided with iPads and engaged with the interactive iPad-based educational module. Pre- and post-intervention surveys were administered.</p><p><strong>Main outcome measure(s): </strong>The survey assessed the understanding of a CL/P diagnosis and management and usability of the iBook. Survey responses were graded on a 5-point Likert scale. Total scores for pre- and post-intervention surveys were compared.</p><p><strong>Results: </strong>Utilizing the cleft iBook module before consultation significantly enhanced comprehension in multiple domains: prenatal development of CL/P, dento-facial molding, surgical techniques, steps after the initial consultation, postoperative care, and the necessity of long-term care for affected children (<i>P </i>< .01). Cumulative survey scores increased by 10.2 points, reflecting significantly improved responses regarding overall comprehension (<i>P </i>< .001).</p><p><strong>Conclusions: </strong>The interactive, iPad-based cleft educational module emerges as a viable, digital strategy for providing education and empowerment to parents and caregivers navigating the challenges of caring for a child with CL/P. The cleft iBook serves as a readily accessible resource, fostering connections among the child, caregivers, and care team.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"10556656241275534"},"PeriodicalIF":1.1,"publicationDate":"2024-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142001128","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using Artificial Intelligence for Assessment of Velopharyngeal Competence in Children Born With Cleft Palate With or Without Cleft Lip. 利用人工智能评估先天性腭裂伴或不伴唇裂儿童的咽喉能力。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2024-08-16 DOI: 10.1177/10556656241271646
Måns Cornefjord, Joel Bluhme, Andreas Jakobsson, Kristina Klintö, Anette Lohmander, Tofig Mamedov, Mia Stiernman, Rebecca Svensson, Magnus Becker
{"title":"Using Artificial Intelligence for Assessment of Velopharyngeal Competence in Children Born With Cleft Palate With or Without Cleft Lip.","authors":"Måns Cornefjord, Joel Bluhme, Andreas Jakobsson, Kristina Klintö, Anette Lohmander, Tofig Mamedov, Mia Stiernman, Rebecca Svensson, Magnus Becker","doi":"10.1177/10556656241271646","DOIUrl":"https://doi.org/10.1177/10556656241271646","url":null,"abstract":"<p><strong>Objective: </strong>Development of an AI tool to assess velopharyngeal competence (VPC) in children with cleft palate, with/without cleft lip.</p><p><strong>Design: </strong>Innovation of an AI tool using retrospective audio recordings and assessments of VPC.</p><p><strong>Setting: </strong>Two datasets were used. The first, named the SR dataset, included data from follow-up visits to Skåne University Hospital, Sweden. The second, named the SC + IC dataset, was a combined dataset (SC + IC dataset) with data from the Scandcleft randomized trials across five countries and an intercenter study performed at six Swedish CL/P centers.</p><p><strong>Participants: </strong>SR dataset included 153 recordings from 162 children, and SC + IC dataset included 308 recordings from 399 children. All recordings were from ages 5 or 10, with corresponding VPC assessments.</p><p><strong>Interventions: </strong>Development of two networks, a convolutional neural network (CNN) and a pre-trained CNN (VGGish). After initial testing using the SR dataset, the networks were re-tested using the SC + IC dataset and modified to improve performance.</p><p><strong>Main outcome measures: </strong>Accuracy of the networks' VPC scores, with speech and language pathologistś scores seen as the true values. A three-point scale was used for VPC assessments.</p><p><strong>Results: </strong>VGGish outperformed CNN, achieving 57.1% accuracy compared to 39.8%. Minor adjustments in data pre-processing and network characteristics improved accuracies.</p><p><strong>Conclusions: </strong>Network accuracies were too low for the networks to be useful alternatives for VPC assessment in clinical practice. Suggestions for future research with regards to study design and dataset optimization were discussed.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"10556656241271646"},"PeriodicalIF":1.1,"publicationDate":"2024-08-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141989217","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Orthognathic Surgery Rates in Furlow Double-Opposing Z-Plasty Versus Straight-Line Repair: A Review of Three Decades of Experience. Furlow 双闭合 Z 形成形术与直线修复术的正颌手术率:三十年经验回顾
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2024-08-16 DOI: 10.1177/10556656241277395
Sasha Lasky, Tayla Moshal, Marah Jolibois, Idean Roohani, Artur Manasyan, Fatemah Husain, Samuel Harris, Eric S Nagengast, Mark M Urata, William P Magee, Jeffrey A Hammoudeh
{"title":"Orthognathic Surgery Rates in Furlow Double-Opposing Z-Plasty Versus Straight-Line Repair: A Review of Three Decades of Experience.","authors":"Sasha Lasky, Tayla Moshal, Marah Jolibois, Idean Roohani, Artur Manasyan, Fatemah Husain, Samuel Harris, Eric S Nagengast, Mark M Urata, William P Magee, Jeffrey A Hammoudeh","doi":"10.1177/10556656241277395","DOIUrl":"https://doi.org/10.1177/10556656241277395","url":null,"abstract":"<p><strong>Objective: </strong>The influence of different surgical techniques on maxillary growth remains unclear. This study investigates the long-term impact of Furlow double-opposing Z-plasty versus straight-line repair (SLR) techniques on midface growth and subsequent orthognathic surgery.</p><p><strong>Design: </strong>Retrospective cohort study.</p><p><strong>Setting: </strong>Tertiary children's hospital.</p><p><strong>Patients/participants: </strong>This study evaluated patients who underwent primary palatoplasty with Furlow or SLR techniques from 1994-2023. Patients were >14 years old at their most recent follow-up.</p><p><strong>Interventions: </strong>No interventions were performed.</p><p><strong>Main outcome measure(s): </strong>Primary outcomes were orthognathic surgery and orthognathic surgery recommendation rates to correct midface hypoplasia (MFH). Cephalometrics at the time of orthognathic surgery recommendation were traced to validate MFH.</p><p><strong>Results: </strong>In total, 1857 patients underwent palatoplasty, of which 335 met inclusion criteria (49 SLR, 286 Furlow). Average age at last follow-up was 18.5±2.6 years. Patients who underwent Furlow versus SLR showed no significant difference in orthognathic surgery rates (p=0.428) or recommendation for orthognathic surgery rates (p=0.900). Patients recommended to undergo orthognathic surgery had more negative ANB angles (p<0.001) and smaller SNA angles (p<0.001) than patients not recommended for orthognathic surgery, demonstrating maxillary hypoplasia. Upon multivariate regression, patients with Veau III and IV clefts had an increased need for orthognathic surgery, p=0.047 and p=0.008, respectively.</p><p><strong>Conclusions: </strong>Our findings suggest that higher cleft severity contributes to future orthognathic surgery. However, palatoplasty technique did not influence orthognathic surgery rates. Our results provide valuable data when surgeons are considering the impact of palatoplasty technique on sagittal growth restriction.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"10556656241277395"},"PeriodicalIF":1.1,"publicationDate":"2024-08-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141989215","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Profiling the Roles and Responsibilities of Professionals and Non-Professionals Providing Speech Language Services for Individuals with CLP in Resource-Limited Regions. 剖析在资源有限地区为慢性阻塞性肺病患者提供言语语言服务的专业人员和非专业人员的角色和责任。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2024-08-16 DOI: 10.1177/10556656241271640
B Subramaniyan, Debbie Sell, Valerie Pereira, Triona Sweeney, Roopa Nagarajan, Erika Bostock, Selena Ee-Li Young, Karen Goldschmied, Benjamas Prathanee, Malka Jayathilake, Yoshiko Takei, Nargis Jahan, Veronica Yu
{"title":"Profiling the Roles and Responsibilities of Professionals and Non-Professionals Providing Speech Language Services for Individuals with CLP in Resource-Limited Regions.","authors":"B Subramaniyan, Debbie Sell, Valerie Pereira, Triona Sweeney, Roopa Nagarajan, Erika Bostock, Selena Ee-Li Young, Karen Goldschmied, Benjamas Prathanee, Malka Jayathilake, Yoshiko Takei, Nargis Jahan, Veronica Yu","doi":"10.1177/10556656241271640","DOIUrl":"10.1177/10556656241271640","url":null,"abstract":"<p><p>Fourteen Speech and Language Therapists/Pathologists (SLT/Ps) from 13 countries across 5 continents made up the International Confederation of Cleft Lip and Palate and Related Craniofacial Anomalies (ICCPCA) CLEFT 2022 Speech Taskforce. Following a group consensus activity led by an external facilitator using Lightning Design Thinking principles, \"task-shifting\" was identified as the topic for this Taskforce. Absence and scarcity of SLT/Ps in many parts of the world have led to non-SLT/Ps delivering speech and language therapy services to individuals with cleft lip +/- palate. This narrative is the first known attempt to develop a framework, describing the different types of providers and their scope of practice.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"10556656241271640"},"PeriodicalIF":1.1,"publicationDate":"2024-08-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141989216","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
AI-based Cleft Lip and Palate Surgical Information is Preferred by Both Plastic Surgeons and Patients: Comment. 基于人工智能的唇腭裂手术信息受到整形外科医生和患者的青睐:评论。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2024-08-16 DOI: 10.1177/10556656241277435
Hinpetch Daungsupawong, Viroj Wiwanitkit
{"title":"AI-based Cleft Lip and Palate Surgical Information is Preferred by Both Plastic Surgeons and Patients: Comment.","authors":"Hinpetch Daungsupawong, Viroj Wiwanitkit","doi":"10.1177/10556656241277435","DOIUrl":"https://doi.org/10.1177/10556656241277435","url":null,"abstract":"","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"10556656241277435"},"PeriodicalIF":1.1,"publicationDate":"2024-08-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141989214","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using the SCAR-Q to Evaluate Morbidity of Scars in Craniosynostosis Repair. 使用 SCAR-Q 评估颅颧骨整形修复术中疤痕的发病率。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2024-08-14 DOI: 10.1177/10556656241272473
Neil Parikh, Kevin G Hu, Omar Allam, Katelyn Lewis, Jacqueline M Ihnat, Albert L Rancu, Sam Boroumand, John A Persing, Michael Alperovich
{"title":"Using the SCAR-Q to Evaluate Morbidity of Scars in Craniosynostosis Repair.","authors":"Neil Parikh, Kevin G Hu, Omar Allam, Katelyn Lewis, Jacqueline M Ihnat, Albert L Rancu, Sam Boroumand, John A Persing, Michael Alperovich","doi":"10.1177/10556656241272473","DOIUrl":"https://doi.org/10.1177/10556656241272473","url":null,"abstract":"<p><strong>Objective: </strong>While previous literature has investigated the psychosocial impact and aesthetic satisfaction associated with post-operative scarring for certain pediatric craniofacial conditions, the impact of the scar burden resulting from craniosynostosis surgery has not been adequately studied.</p><p><strong>Participants: </strong>SCAR-Q was shared with patients ages 8 and older. Thirty-two complete patient responses were recorded.</p><p><strong>Interventions: </strong>SCAR-Q is a PROM that consists of three independent scales - appearance, symptoms, and psychosocial impact - associated with a scar.</p><p><strong>Main outcome measures: </strong>Mann-Whitney U, linear regression, and Pearson correlation tests were used to evaluate associations between the scales, in addition to patient characteristics such as sex and suture involvement.</p><p><strong>Results: </strong>Mean ages at time of surgery and survey completion were 9.65 ± 10.10 months and 12.10 ± 3.92 years, respectively. Mean scale scores were 81.5 ± 17.9 for appearance, 86.8 ± 12.4 for symptoms, and 79.3 ± 25.7 for psychosocial impact. Higher patient dissatisfaction with scar appearance correlated with more scar-related symptoms (r = 0.389; p = 0.028) and a greater psychosocial impact (r = 0.725; p < 0.001). SCAR-Q scales did not significantly correlate with age at surgery, age at survey completion, type of synostosis, or type of surgery; however, female patients reported lower mean appearance (65.4 vs. 86.0; p = 0.012) and psychosocial impact (57.3 vs. 85.5; p = 0.010) scores when compared to their male counterparts.</p><p><strong>Conclusions: </strong>It is vital that surgeons discuss patients' aesthetic satisfaction following craniosynostosis surgery in order to appropriately address and limit deleterious, long-term physical and psychosocial outcomes.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"10556656241272473"},"PeriodicalIF":1.1,"publicationDate":"2024-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141977013","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Assessment of Online Arabic Patient-Centered Knowledge About Orthognathic Surgery: An Infodemiologic Study. 以患者为中心的阿拉伯语正颌外科在线知识评估:一项信息神经学研究。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2024-08-12 DOI: 10.1177/10556656241275542
Muath Saad Alassaf, Shadan H Sharbib, Reem H Alhammad, Faisal Hussain Alabdali, Osama A Habib, Ashraf Abdelfattah, Ayoub Aboalkhair, Hasan Albeshir, Mahmood Samman
{"title":"Assessment of Online Arabic Patient-Centered Knowledge About Orthognathic Surgery: An Infodemiologic Study.","authors":"Muath Saad Alassaf, Shadan H Sharbib, Reem H Alhammad, Faisal Hussain Alabdali, Osama A Habib, Ashraf Abdelfattah, Ayoub Aboalkhair, Hasan Albeshir, Mahmood Samman","doi":"10.1177/10556656241275542","DOIUrl":"https://doi.org/10.1177/10556656241275542","url":null,"abstract":"<p><strong>Background: </strong>Orthognathic surgery, addressing skeletal and dental irregularities, is pivotal for patients suffering from malocclusion, facial asymmetry, and related disorders. With the internet becoming a primary source of health information, the accuracy, quality, and reliability of online Arabic-language patient-centered information on orthognathic surgery necessitate thorough evaluation. This study aimed to assess the quality, reliability, and readability of Arabic online resources about orthognathic surgery to ascertain their potential as reliable patient education tools.</p><p><strong>Methods: </strong>An infodemiological approach was employed, analyzing the top 100 websites from Google, Yahoo, and Bing based on specific Arabic search terms related to orthognathic surgery. Websites were evaluated for affiliation, content specialization, and presentation and excluded based on predetermined criteria to ensure relevance and focus. Quality assessment was conducted using the DISCERN instrument, Journal of the American Medical Association (JAMA) benchmarks, and Health On the Net code evaluation. Readability was assessed using the Flesch-Kincaid Grade Level, Simplified Measure of Gobbledygook, and Flesch Reading Ease scales.</p><p><strong>Results: </strong>Of 600 initial websites, 96 met the inclusion criteria. Most were affiliated with universities or medical centers (53.1%), followed by commercial (28.1%), and non-profit organizations (16.7%). The majority of websites (96.9%) were only partially related to orthognathic surgery. Content analysis revealed a moderate quality of information, with a median overall DISCERN quality rating of 3 out of 5. The JAMA benchmarks showed a lack of comprehensive adherence, with currency being the most achieved criterion. Readability assessments indicated the content was generally accessible yet highlighted the need for Arabic-specific readability evaluation tools.</p><p><strong>Conclusion: </strong>The study reveals a critical need for enhancing Arabic online resources on orthognathic surgery. Despite the available content's moderate quality and acceptable readability, there is a substantial gap in providing comprehensive, patient-centered, and easily understandable information. Future efforts should focus on developing high-quality, reliable, and readable online resources to aid Arabic-speaking patients in making informed decisions about orthognathic surgery.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"10556656241275542"},"PeriodicalIF":1.1,"publicationDate":"2024-08-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141972137","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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