Cleft Palate-Craniofacial Journal最新文献

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Online Resources for Robin Sequence; an Analysis of Readability. 罗宾序列的在线资源;可读性分析。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-02-19 DOI: 10.1177/10556656241234587
R Browne, C M Hurley, S Carr, C de Blacam
{"title":"Online Resources for Robin Sequence; an Analysis of Readability.","authors":"R Browne, C M Hurley, S Carr, C de Blacam","doi":"10.1177/10556656241234587","DOIUrl":"10.1177/10556656241234587","url":null,"abstract":"<p><p><i>Objective</i>The objective was to evaluate the readability of easily accessible parent-directed information concerning Robin Sequence (RS) online, compared to the American Medical Association (AMA)-recommended sixth grade (age 11-12) readability level.<i>Design</i>A Google search of the term \"Pierre Robin Sequence information\" was performed. The first ten websites were evaluated using six commonly used readability formulas. Sample texts from three websites were 'translated' by the authors, with the aim of achieving a sixth grade readability level.<i>Main outcome measures</i>The following outcomes were used: Automated Readability Index (ARI), Coleman Liau Index (CLI), Gunning Fog Score, Simple Measure of Gobbledygook (SMOG), Flesch Kincaid Grade Level (FKGL), and Flesch Reading Ease (FRE) score.<i>Results</i>The mean pooled grade level of the top 10 included websites was 12.1 (age 17-18). The overall FRE Index was 45.8, which is equivalent to a College-grade reading level. The mean grade level by each test used was: Flesch-Kincaid Grade Level 11.6 (age 16-17), Gunning Fog Score 13.3 (age 18+), SMOG 10.0 (age 14-15), Coleman-Liau Index 13.8 (age 18+), and ARI 12.0 (age 17-18). The author-translated resources achieved pooled mean grade levels of 6.3-6.5.<i>Conclusions</i>Parent-directed online materials concerning RS have a readability in excess of the AMA-recommended sixth grade reading level. Even though the condition is complex, more readable resources are achievable. Coproduction of parent-directed resources in association with public an patient involvement (PPI) contributors is encouraged.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"964-969"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139906731","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Validating the Modified Small Double Opposing Z-Plasty for Palatal Lengthening in Primary Palatoplasty. 验证原发性腭成形术中用于腭延长的改良小双对位Z成形术
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-02-12 DOI: 10.1177/10556656241233151
Rafael Denadai, Chi-Chin Lo, Hyung Joon Seo, Nobuhiro Sato, Dax Carlo Go Pascasio, Srinisha Murali, Junior Chun-Yu Tu, Pang-Yung Chou, Lun-Jou Lo
{"title":"Validating the Modified Small Double Opposing Z-Plasty for Palatal Lengthening in Primary Palatoplasty.","authors":"Rafael Denadai, Chi-Chin Lo, Hyung Joon Seo, Nobuhiro Sato, Dax Carlo Go Pascasio, Srinisha Murali, Junior Chun-Yu Tu, Pang-Yung Chou, Lun-Jou Lo","doi":"10.1177/10556656241233151","DOIUrl":"10.1177/10556656241233151","url":null,"abstract":"<p><p>ObjectiveTo appraise the degree of intraoperative palatal lengthening with the modified Furlow small double-opposing Z-plasty (sDOZ).DesignRetrospective single-surgeon (R.D.) study.PatientsNonsyndromic children (n = 167) with Veau types I to IV cleft palates who underwent primary sDOZ palatoplasty.InterventionsIntraoperative measurements of palatal lengths and widths were collected using calipers, paper rulers, and metal rulers before the administration of local anesthetic solution and before the removal of the mouth gag (initial and final palatal dimensions, respectively).Main Outcome MeasuresAssessment of the intraoperative percentage change (difference between final and initial values) in surface palatal length, straight palatal length, and soft palatal length. Bivariate and multivariate analyses were performed to identify independent predictors (sex, age at surgery, Veau, Kernahan/ Stark, and Randall classifications, widest cleft width, presence of lateral relaxing incision, type of coverage with buccal fat flap, and postoperative complications) of soft palatal lengthening.ResultsSurface palatal, straight palatal, and soft palatal lengths had an intraoperative increase of 8%, 14.7%, and 27.7%, respectively. The degree of intraoperative soft palatal lengthening significantly varied among Veau cleft types (I = II < III = IV). Veau type III and cleft lip/palate were independent positive predictors (P < .001) of soft palatal lengthening, while other tested variables were not correlated (P > .05) with this outcome.ConclusionsOverall intraoperative palatal lengthening occurs with the modified sDOZ palatoplasty, with differences within the spectrum of cleft palate deformity.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"932-942"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139724616","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Facial Analysis of Patients with Unilateral or Bilateral Cleft Lip and Palate Using 3D Stereophotogrammetry. 利用三维立体摄影测量法对单侧或双侧唇腭裂患者进行面部分析。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-02-25 DOI: 10.1177/10556656241234603
Vanessa Ota Nogueira, Maria Carolina Neves, Karin Neppelenbroek, Thaís Marchini Oliveira, Chiarella Sforza, Simone Soares
{"title":"Facial Analysis of Patients with Unilateral or Bilateral Cleft Lip and Palate Using 3D Stereophotogrammetry.","authors":"Vanessa Ota Nogueira, Maria Carolina Neves, Karin Neppelenbroek, Thaís Marchini Oliveira, Chiarella Sforza, Simone Soares","doi":"10.1177/10556656241234603","DOIUrl":"10.1177/10556656241234603","url":null,"abstract":"<p><p>ObjectivesTo evaluate the quantitative values of linear and angular facial anthropometrics in patients with unilateral cleft lip and palate (UCLP) and compare them with those of patients with bilateral cleft lip and palate (BCLP) using three-dimensional (3D) facial imaging.DesignRetrospective, observational, and cross-sectional study.SettingHospital for Rehabilitation of Craniofacial Anomalies/USP (HRAC/USP).Patients/ ParticipantsIn total, 61 non-syndromic patients with CLP who underwent multidisciplinary treatment and rehabilitated with a prosthesis were enrolled and divided into those with UCLP (G1; n = 31) and those with BCLP (G2; n = 30).InterventionFacial images were captured using a 3D camera after landmarks were marked on each patient's face. The software evaluated linear and angular parameters. Statistical tests were applied. Significance was determined as <i>P </i>< 0.05.Main Outcome MeasurementsOverall, 22 linear and 13 angular measurements were evaluated.ResultsThe nasal length (<i>P </i>= 0.08), middle third of the face (<i>P </i>= 0.06), base nose width (<i>P </i>< 0.001), nasal root width (<i>P </i>< 0.001), nasal tip angle (<i>P </i>= 0.018), philtrum width (<i>P </i>< 0.001), lower face width (<i>P </i>= 0.039) and midfacial depth (<i>P </i>= 0.040) were significantly higher in G2; the upper cutaneous lip height was significantly higher in G1. Sexual dimorphism was observed except for linear measurements (linear distance between the labiale superius and labiale inferius landmarks, nasal root width, and upper cutaneous lip length) and angular measurements.ConclusionsG2 had a greater length and width of nose and nasal root, nasal tip angle, philtrum width, and lower face width, midfacial depth, and midface third than G1. These findings also revealed the presence of sexual dimorphism.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"985-994"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139974172","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Hearing Outcomes in Patients with Cleft Lip and Palate in a Resource Limited Setting. 在资源有限的环境中,唇腭裂患者的听力效果。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-02-21 DOI: 10.1177/10556656241234570
Kanachai Boonpiraks, Yanin Nawachartkosit, Nattayaporn Charunruengterakul, Dhave Setabutr
{"title":"Hearing Outcomes in Patients with Cleft Lip and Palate in a Resource Limited Setting.","authors":"Kanachai Boonpiraks, Yanin Nawachartkosit, Nattayaporn Charunruengterakul, Dhave Setabutr","doi":"10.1177/10556656241234570","DOIUrl":"10.1177/10556656241234570","url":null,"abstract":"<p><p><i>Objective</i>To compare hearing outcomes of early versus late tympanostomy tube insertion in patients with cleft lip and palate in a resource limited setting<i>Design</i>Retrospective cohort study.<i>Setting</i>Conducted at Queen Sirikit National Institute of Child Health, a tertiary care hospital in Bangkok, Thailand.<i>Patients</i>Included 76 patients under 18 with cleft anomalies undergoing tympanostomy tube insertion between January 2018 and July 2022, categorized into early (<i>n</i> = 11) and late (<i>n</i> = 65) tympanostomy groups.<i>Interventions</i>Early tympanostomy tube placement at ≤ 3 months old, coordinated with cleft lip repair, following failed transitory evoked otoacoustic emission (TEOAE) and Type B tympanogram. Late tympanostomy tube placement preceded by a diagnosis of middle ear effusion and typically a failed TEOAE and subsequent level of testing.<i>Main Outcome Measures</i>Primary outcomes: normal hearing rates and age at normal hearing. Secondary outcomes: repeated tympanostomy tube placement rate, postoperative complications, and length of hospital stays.<i>Results</i>Early tympanostomy tube placement was associated with higher rates of normal hearing (100% vs. 75%. <i>P</i> = .103) and significantly younger age at normal hearing (11 vs. 19 months, <i>P</i> = .036). Time to normal hearing was shorter in the early group. Postoperative complications, including otorrhea, occurred more frequently in the early group, but differences were not significant.<i>Conclusion</i>Early tympanostomy tube insertion improves hearing outcomes in pediatric patients with cleft lip and palate, achieving normal hearing at a significantly younger age. This approach offers a valuable alternative in resource-limited settings with constrained audiological services. Further research on long-term speech outcomes and cost-effectiveness is warranted.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"943-949"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139913891","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A 10-Year Nationwide Analysis of Risk Factors of Readmission and the Implications of Same-Day Discharge Following Velopharyngeal Insufficiency Correcting Surgery. 一项为期 10 年的全国性研究分析了伶牙俐齿矫正手术后再次入院的风险因素和当天出院的影响。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-03-15 DOI: 10.1177/10556656241233248
Idean Roohani, Eloise Stanton, Collean Trotter, Dylan G Choi, Sarah Alfeerawi, Pasha Shakoori, Ishani D Premaratne, Aydin Hammoudeh, Artur Fahradyan, Mark M Urata
{"title":"A 10-Year Nationwide Analysis of Risk Factors of Readmission and the Implications of Same-Day Discharge Following Velopharyngeal Insufficiency Correcting Surgery.","authors":"Idean Roohani, Eloise Stanton, Collean Trotter, Dylan G Choi, Sarah Alfeerawi, Pasha Shakoori, Ishani D Premaratne, Aydin Hammoudeh, Artur Fahradyan, Mark M Urata","doi":"10.1177/10556656241233248","DOIUrl":"10.1177/10556656241233248","url":null,"abstract":"<p><p>ObjectiveTo investigate risk factors for readmission and the implications of same-day discharge for surgical management of velopharyngeal insufficiency (VPI).DesignRetrospective cohort.SettingMulti-institutional/national.Patients and ParticipantsPatients who underwent VPI-correcting surgery (n = 4479) were identified in the National Surgical Quality Improvement Program Pediatric database from 2012-2021.Main outcomes measure(s)30-day unplanned readmission.ResultsA total of 3878 (86.6%) patients were admitted inpatient following surgical intervention, while 601 (13.4%) were discharged on the same day. Thirty-day readmission rate was 1.7% across all patients. Based on multivariate logistic regression, patient factors identified as significant predictors of 30-day readmission included ASA class 4 (OR 11.22 [95% CI 1.01-124.91]; p = 0.049), steroid use (OR 7.30 [95% CI 2.22-23.97]; p = 0.001), and gastrointestinal disease (OR 2.48 [95% CI 1.22-5.00]; p = 0.012). Upon interaction analysis, patients with cardiac or neuromuscular disease who were discharged on the same day of surgery were associated with a higher readmission rate than those admitted to the hospital (cardiac disease RR 6.72 [95% CI 1.41-32.06]; p = 0.017) and (neuromuscular disease RR 12.39 [95% CI 1.64-93.59]; p = 0.015).ConclusionsApproximately 90% of VPI-correcting procedures are completed inpatient nationwide. Cardiac and/or neuromuscular disease significantly increased the patients' readmission risk when discharged on the same day of surgery. The inpatient setting should remain the best practice as adequate resources are available to mitigate life-threatening complications.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"950-958"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140137326","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Two Chinese Patients of Auriculocondylar Syndrome 2: A Novel PLCB4 Splicing Variant and 5-Year Follow-up. 两名中国耳软骨综合征 2 患者:新型 PLCB4 剪接变异和 5 年随访。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-02-28 DOI: 10.1177/10556656241234575
Yunting Lin, Ye Zhang, Jian Ma, Shu Liu, Yongxi Liu, Chaoxiang Yang, Chunhua Zeng, Xianqiong Luo
{"title":"Two Chinese Patients of Auriculocondylar Syndrome 2: A Novel <i>PLCB4</i> Splicing Variant and 5-Year Follow-up.","authors":"Yunting Lin, Ye Zhang, Jian Ma, Shu Liu, Yongxi Liu, Chaoxiang Yang, Chunhua Zeng, Xianqiong Luo","doi":"10.1177/10556656241234575","DOIUrl":"10.1177/10556656241234575","url":null,"abstract":"<p><p>ObjectiveAuriculocondylar syndrome (ARCND) is a set of rare craniofacial malformations characterized by variable micrognathia, ear malformations, and mandibular condyle hypoplasia, and other accompanying features with phenotypic complexity. ARCND2 caused by pathogenic variants in the <i>PLCB4</i> gene is a very rare disease with less than 50 patients reported and only 36 different variants of the <i>PLCB4</i> gene recorded in HGMD. This study aims to enrich the patient resources, clinical data and mutational spectrum of ARCND2.DesignCase series study.SettingGuangzhou Women and Children's Medical Center and Guangdong Women and Children Hospital.PatientsTwo Chinese patients with ARCND2.Main Outcome MeasuresClinical, radiological and molecular findings.ResultsBoth the two patients presented with craniofacial and ear malformations, and feeding difficulties. Whole exome sequencing identified two different variants of the <i>PLCB4</i> gene in these two patients with a heterozygous allele and a <i>de novo</i> mode of inheritance respectively. Patient 1 carried a known pathogenic c.1861C > T(p.Arg621Cys) missense variant, whereas Patient 2 had a novel c.225 + 1G > A splicing variant. Sanger sequencing confirmed the presence of <i>PLCB4</i> variants in the proband and absence in the unaffected parents. These two <i>PLCB4</i> variants were suggested as disease-causing candidates for these two patients. During a 5-year follow-up, Patient 2 gradually manifested crowded teeth, underweight, motor delay and intellectual disability.ConclusionsIn this study, we report two Chinese patients with ARCND2, describe their clinical and mutational features, and share a 5-year follow-up of one patient. Our study adds two additional patients to ARCND2, reveals a novel <i>PLCB4</i> variant, and expands the phenotypic and genotypic spectrum.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"914-920"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139984289","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Sociodemographic Factors Predict Long-Term Attrition from Multidisciplinary Cleft Clinic. 社会人口因素可预测多学科裂隙诊所的长期流失率。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-02-29 DOI: 10.1177/10556656241234804
Connor S Wagner, Sarah L Barnett, Dominic Romeo, Carrie Z Morales, Lauren K Salinero, Carlos E Barrero, Matthew E Pontell, Rachel A McKenna, Nancy Folsom, Jesse A Taylor, Jordan W Swanson
{"title":"Sociodemographic Factors Predict Long-Term Attrition from Multidisciplinary Cleft Clinic.","authors":"Connor S Wagner, Sarah L Barnett, Dominic Romeo, Carrie Z Morales, Lauren K Salinero, Carlos E Barrero, Matthew E Pontell, Rachel A McKenna, Nancy Folsom, Jesse A Taylor, Jordan W Swanson","doi":"10.1177/10556656241234804","DOIUrl":"10.1177/10556656241234804","url":null,"abstract":"<p><p>ObjectiveIdentify and describe factors associated with retention and attrition of patients during longitudinal follow-up at multidisciplinary cleft clinic.DesignRetrospective cohort study.SettingSingle, tertiary care center.Patients, ParticipantsPatients born between 1995 and 2007 with a diagnosis of cleft palate with or without cleft lip attending multidisciplinary cleft clinic.InterventionsNone tested, observational study.Main Outcome Measure(s)Age at last clinical appointment with a multidisciplinary cleft team provider. Attrition was defined as absence of an outpatient appointment following 15 years of age.ResultsSix hundred seventy-eight patients were included. The average age at last appointment across the entire cohort was 13.1 years (IQR 6.6-17.2). Patients who were Black (HR 1.60, 95% CI 1.10-2.32, p = 0.014) and other races (HR 1.90, 95% CI 1.22-2.98, p = 0.004) were more likely to be lost to follow-up compared to white patients. Publicly insured patients were more likely to experience attrition than those who were privately insured (HR 1.30, 95% CI 1.03-1.65, p = 0.030). Estimated income was not significantly associated with length of follow-up (p = 0.259). Those whose residence was in the fourth quartile of driving distance from our center experienced loss to follow-up significantly more than those who lived the closest (HR 2.04, 95% CI 1.50-2.78, p < 0.001).ConclusionsThere is a high degree of follow-up attrition among patients with cleft lip and palate. Race, insurance status, and driving distance to our center were associated with attrition in a large, retrospective cohort of patients who have reached the age of cleft clinic graduation.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"1003-1010"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139998032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"It's On Your Shoulders Now" Transitioning from Child-to-Adult UK Cleft Lip/Palate Services: An Exploration of Young Adults' Narratives. 从儿童向成人过渡的英国唇腭裂服务 "现在在你的肩上":对年轻人叙述的探索。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-03-04 DOI: 10.1177/10556656241236006
Danielle McWilliams, Maia Thornton, Matthew Hotton, Marc C Swan, Nicola Marie Stock
{"title":"\"It's On Your Shoulders Now\" Transitioning from Child-to-Adult UK Cleft Lip/Palate Services: An Exploration of Young Adults' Narratives.","authors":"Danielle McWilliams, Maia Thornton, Matthew Hotton, Marc C Swan, Nicola Marie Stock","doi":"10.1177/10556656241236006","DOIUrl":"10.1177/10556656241236006","url":null,"abstract":"<p><p>ObjectivesTreatment for cleft lip and/or palate (CL/P) in the United Kingdom is administered on a standardised pathway from diagnosis to early adulthood, with options to be re-referred in later life. At age 16, patients become responsible for their treatment decisions. Evidence from the wider health literature indicates this transition can be challenging and that this population may require additional support. The present study explored young people's experiences of transition to adult care in the context of CL/P services, with the aim of identifying support needs and informing future service delivery.DesignIndividual semi-structured interviews were conducted with 15 individuals with CL/P (aged 17-25 years) to explore transition experiences. Interviews lasted an average of 69 min and data were analysed using reflexive thematic analysis.ResultsFour themes, with subthemes, were identified: 1) Readiness for Transition covered feelings of preparedness and how health professionals approached transition; 2) Making Decisions as an Adult described concerns and considerations when making treatment decisions; 3) Finding and Using Support, reflected the roles of caregivers and peers in developing self-advocacy; and 4) Reflections on Transition Care offered insight into how care could be improved.ConclusionIndividuals born with CL/P may experience challenges in becoming responsible for their own care and treatment decisions. The findings of this study indicate that a dedicated transition protocol may be beneficial, such that adolescents are prepared to confidently access and manage their care into adulthood. Opportunities for improvements in transition planning and provision are discussed.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"1039-1052"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140029388","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Suprazygomatic Maxillary Nerve Block in Palatoplasty: A Retrospective Cohort Study of Perioperative Outcomes in Syndromic and Non-Syndromic Children. 腭成形术中的颧上颌神经阻滞:综合征和非综合征儿童围手术期结果的回顾性队列研究。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-03-01 DOI: 10.1177/10556656241234595
Krystof Stanek, Walid Alrayashi, Lisa Nussbaum, Ingrid M Ganske, Carolyn R Rogers-Vizena
{"title":"Suprazygomatic Maxillary Nerve Block in Palatoplasty: A Retrospective Cohort Study of Perioperative Outcomes in Syndromic and Non-Syndromic Children.","authors":"Krystof Stanek, Walid Alrayashi, Lisa Nussbaum, Ingrid M Ganske, Carolyn R Rogers-Vizena","doi":"10.1177/10556656241234595","DOIUrl":"10.1177/10556656241234595","url":null,"abstract":"<p><p>ObjectiveThis study compares the impact of surgical site infiltration of local anesthesia alone to surgical site infiltration plus suprazygomatic maxillary nerve block (SMB) in non-syndromic and syndromic children undergoing primary palatoplasty.DesignRetrospective cohort study of intra- and post-operative outcomes and opioid utilization in children undergoing palatoplasty by a single surgeon.SettingUrban, academic, tertiary care children's hospital.Patients, ParticipantsChildren 24 months or younger undergoing primary palatoplasty were included (n = 102). Exclusion criteria were concurrent painful procedures, history of neonatal abstinence syndrome, and nurse-controlled analgesia (n = 30).InterventionsAll patients received epinephrine-containing local anesthetic infiltrated at the surgical site. Fifty-seven also underwent placement of ultrasound-guided SMB.Main Outcome Measure(s)Intra-operative opioid requirement, duration of anesthesia, time to wake up, post-operative opioid requirement, hypoxemic episodes, need for respiratory support, FLACC scores, and length of stay.ResultsWhen controlling for syndromic status and cleft phenotype, SMB was associated with a 57% reduction in intraoperative opioid requirements (95% CI = 15-81%, p = 0.024) but also with a 29% (∼5-min) increase in wake-up time post-surgery (95% CI = 3-50%, p = 0.048). Postoperatively, SMB was linked to a 18% reduction in hospital stay length (95% CI = 2-31%, p = 0.027) and a 88% reduction in opioid requirements within 24 h after surgery (p = 0.006). Desaturations and new respiratory support requirements were unaffected by SMB.ConclusionsCompared to surgical site infiltration of local anesthetic alone, adding SMB reduces intra- and postoperative narcotic requirements and decreases length of stay. These benefits apply to both syndromic and non-syndromic children. SMB does not meaningfully affect respiratory outcomes.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"976-984"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139998033","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Weight Gain of Infants with Robin Sequence Treated Nonsurgically Using the Stanford Orthodontic Airway Plate (SOAP): 1-Year Follow-Up. 使用斯坦福正畸气道板 (SOAP) 进行非手术治疗的罗宾序列婴儿的体重增加情况:1 年随访。
IF 1.1 4区 医学
Cleft Palate-Craniofacial Journal Pub Date : 2025-06-01 Epub Date: 2024-02-19 DOI: 10.1177/10556656241233239
HyeRan Choo, Alexis S Davis, Lisa C Bain, HyoWon Ahn
{"title":"Weight Gain of Infants with Robin Sequence Treated Nonsurgically Using the Stanford Orthodontic Airway Plate (SOAP): 1-Year Follow-Up.","authors":"HyeRan Choo, Alexis S Davis, Lisa C Bain, HyoWon Ahn","doi":"10.1177/10556656241233239","DOIUrl":"10.1177/10556656241233239","url":null,"abstract":"<p><p>ObjectiveTo identify weight gain trends of infants with Robin sequence (RS) treated by the Stanford Orthodontic Airway Plate treatment (SOAP).DesignRetrospective longitudinal cohort study.SettingSingle tertiary referral hospital.PatientsEleven infants with RS treated with SOAP.InterventionsNonsurgical SOAP.Main Outcome MeasuresBody weight, Weight-for-age (WFA) Z-scores, and WFA percentiles at birth (T0), SOAP delivery (T1), SOAP graduation (T2), and 12-months old (T3).ResultsBetween T0 and T1, the weight increased but the WFA percentile decreased from 36.5% to 15.1%, and the Z-score worsened from -0.43 to -1.44. From T1 to T2, the percentile improved to 22.55% and the Z-score to -0.94. From T2 to T3, the percentile and the Z-scores further improved to 36.59% and -0.48, respectively.ConclusionsSOAP provided infants experiencing severe respiratory distress and oral feeding difficulty with an opportunity to gain weight commensurate with the WHO healthy norms without surgical intervention.</p>","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":" ","pages":"1053-1060"},"PeriodicalIF":1.1,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139906732","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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