Cleft Palate-Craniofacial Journal最新文献_第2页

Spanish Terms for Cleft Lip Within the United States. 美国境内有关唇裂的西班牙语术语。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2024-10-21 DOI: 10.1177/10556656241292232

John H Munday, Robert Brinton Fujiki, Susan L Thibeault

{"title":"Spanish Terms for Cleft Lip Within the United States.","authors":"John H Munday, Robert Brinton Fujiki, Susan L Thibeault","doi":"10.1177/10556656241292232","DOIUrl":"https://doi.org/10.1177/10556656241292232","url":null,"abstract":"To examine Spanish terms used for \"cleft lip\" within the United States. Perceived acceptability of these terms was also considered.An online survey was distributed to Spanish-speaking medical interpreters, clinicians, and parents of children with cleft lip. Survey questions probed demographics, language use, preferred term for \"cleft lip,\" and perceived acceptability of terms for cleft lip.There were 158 respondents. Significant differences were observed with profession (P < .001) as 62.5% of medical providers used labio hendido, while 71.8% of interpreters preferred labio leporino. Perceived acceptability of terms was consistent with the term use patterns reported by respondent groups. Significant differences were also observed with geographical region (P = .001) as 90% of respondents from the Northeast United States employed labio leporino, compared to 60% to 70% of respondents from other regions.Selection and perception of Spanish terms for \"cleft lip\" may differ across regions and professions. Cleft teams should invite stakeholders to discuss what terms best suit their community.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142478878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Confronting Craniosynostosis: Maternal Concerns, Challenges, and Coping for their Children. 面对颅骨发育不良：母亲对子女的关注、挑战与应对。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2024-10-21 DOI: 10.1177/10556656241286835

Ethan D Paliwoda, Alejandro Torres, Elma Dema, Avi A Gajjar, Mason J Horne, Mathew Trandafirescu, Matthew A Adamo, Benjamin J Schalet, Stephanie M C Bray

{"title":"Confronting Craniosynostosis: Maternal Concerns, Challenges, and Coping for their Children.","authors":"Ethan D Paliwoda, Alejandro Torres, Elma Dema, Avi A Gajjar, Mason J Horne, Mathew Trandafirescu, Matthew A Adamo, Benjamin J Schalet, Stephanie M C Bray","doi":"10.1177/10556656241286835","DOIUrl":"https://doi.org/10.1177/10556656241286835","url":null,"abstract":"Objective: The study objective was to characterize shared online experiences surrounding craniosynostosis.Methods: Isolated and syndromic craniosynostosis-related consecutive posts (N = 700) made by patients and caregivers were extracted from TikTok and Instagram between 2017-2024. A cross-sectional qualitative analysis following guidelines for practical thematic analysis was performed.Results: The majority of posts were by caregivers (96%) and by females (97%). Forty categorical subthemes from social media posts were synthesized into 4 predominant themes. Overarching thematic trends included Emotional and Psychological Support (47%), Medical Information and Treatment (27%), Family and Social Dynamics (15%), and Awareness, Education, and Advocacy (12%).Conclusion: Social media is used by caregivers, primarily mothers, for emotional support, processing health information, sharing experiences, raising awareness, and celebrating \"cranioversaries.\" Male and patient perspectives were underrepresented. Physicians may use social media to gain insights, disseminate quality health information, and connect with patients.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142478872","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Content Analysis of Brief Telephonic Conversation with Parents of Children with Cleft Lip and Palate During Sustained Anticipatory Guidance Sessions. 在持续的预期指导过程中与唇腭裂患儿家长进行简短电话交谈的内容分析。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2024-10-21 DOI: 10.1177/10556656241288200

K Esther, M S Muthu, Anitha R Sagarkar, Ankita Saikia

{"title":"Content Analysis of Brief Telephonic Conversation with Parents of Children with Cleft Lip and Palate During Sustained Anticipatory Guidance Sessions.","authors":"K Esther, M S Muthu, Anitha R Sagarkar, Ankita Saikia","doi":"10.1177/10556656241288200","DOIUrl":"https://doi.org/10.1177/10556656241288200","url":null,"abstract":"Objectives: Cleft lip and palate (CLP) represents complex congenital anomalies that necessitate a comprehensive approach to care, involving multiple healthcare disciplines. The primary aim of the study is to explore the content of periodic telephone support calls between parents/caregivers of children with CLP and pediatric dentist during sustained anticipatory guidance.Design: The qualitative analysis was conducted with the available telephonic recordings that was obtained from the STOP database. 40 recordings of 8 children were used for this study. The recorded interviews were translated and transcribed verbatim and analysed using the thematic content analysis method.Results: The four major themes that were addressed by the dentist were the general health of the baby, oral health and development, surgery-related concerns and emotional support. It was also observed that the parents demonstrated a positive shift in oral health related behaviour significantly improving their child's oral hygiene practices.Conclusions: The telephonic support calls offer valuable insights into the concerns and topics the parents of children with CLP are eager to discuss. These calls not only address general concerns, receiving emotional support from the professionals, demonstrate the health related behavior shift that takes place during SAG and reassures parents of their support.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142478874","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Realistic Ingeniously Designed Cleft Palate Simulator for Training of Residents: Bridging the Gap Between Theory and Practice. 为培训住院医师而设计的逼真巧妙的腭裂模拟器：缩小理论与实践之间的差距。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2024-10-18 DOI: 10.1177/10556656241290669

Madhubari Vathulya, Smruti Srinivasan, Hemanth Kumar K, Devi Prasad Mohapatra, N Nasida Fathima, Akshay Kapoor

{"title":"A Realistic Ingeniously Designed Cleft Palate Simulator for Training of Residents: Bridging the Gap Between Theory and Practice.","authors":"Madhubari Vathulya, Smruti Srinivasan, Hemanth Kumar K, Devi Prasad Mohapatra, N Nasida Fathima, Akshay Kapoor","doi":"10.1177/10556656241290669","DOIUrl":"https://doi.org/10.1177/10556656241290669","url":null,"abstract":"Objective: Cleft palate is a congenital deformity that presents significant challenges in surgical correction. Proper training with an educational model for can greatly enhance the learning curve and improve patient outcomes. This article discusses the development and evaluation of an economical cleft palate model designed to enhance surgical skills and confidence among residents.Design: The model was constructed using dental casts, acrylic resin, foam sheets, double-sided adhesives, infant feeding tubes, and red dye.Setting: Tertiary care center.Participants: Surgical residents.Main outcome measure: The assembly time and material costs were recorded. To evaluate its effectiveness, participants' feedbacks were collected and analyzed.Results: The cleft palate model was produced at a cost of 250 INR per unit, with assembly taking approximately 15 minutes. Overall, 32 residents completed the simulation exercise of cleft surgery on the model. Participants gave the model an average score of 4 (±0.60) for realistic anatomical appearance, 3.5 (±1.3) for replicating the tactile nature of human tissue. Anatomical accuracy and ability to manipulate tissue and perform suturing received a rating of 3.4 (±1.1) and 3.7 (±0.81), respectively. The model's value as a training tool scored 4.4 (±0.51), with an overall satisfaction rating of 4.6 (±0.22) among residents.Conclusion: Our cleft palate model offers an economical, practical, and accessible solution for surgical training. This model is a viable alternative to more complex and expensive training tools and potentially enhancing the training of healthcare professionals in cleft palate repair.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142478861","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Central Auditory Processing Abilities in Children with Non-Syndromic Cleft Lip and Palate: An Electrophysiological Study. 非突发性唇腭裂儿童的中枢听觉处理能力：电生理学研究

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2024-10-17 DOI: 10.1177/10556656241290732

Deepshikha Kujur, Chandni Jain

{"title":"Central Auditory Processing Abilities in Children with Non-Syndromic Cleft Lip and Palate: An Electrophysiological Study.","authors":"Deepshikha Kujur, Chandni Jain","doi":"10.1177/10556656241290732","DOIUrl":"https://doi.org/10.1177/10556656241290732","url":null,"abstract":"Background: The present study compared the central auditory processing abilities using electrophysiological tests in children with non-syndromic cleft lip and palate (NSCLP) and their age-matched control group.Method: Thirty children aged 7 to 15 years were recruited for the study. Participants were divided into 2 groups. The clinical group (children with NSCLP) comprised 15 children, while the control group (craniofacially typical peers) comprised 15 children with normal hearing sensitivity and auditory processing skills. Electrophysiological tests, including auditory brainstem responses (ABR), binaural interaction component (BIC) of ABR, auditory late latency responses (ALLR), and P300 were assessed.Results: The results showed deviant responses in ABR, BIC, and ALLR in children with NSCLP compared to craniofacially typical counterparts. However, no significant difference was observed in P300 between the two groups.Conclusion: Children with NSCLP may be at a higher risk of central auditory processing disorder due to their abnormal neural transmission in the auditory nervous system. Also, assessing auditory processing abilities in children with NSCLP should include electrophysiological tests in the test battery for additional information regarding neural transmission.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-10-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142478871","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Surgical Correction of Secondary Bilateral Cleft lip and Nasal Deformities Using the Delaire-Precious Technique. 利用德莱尔-普利斯技术对继发性双侧唇裂和鼻畸形进行手术矫正。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2024-10-17 DOI: 10.1177/10556656241287079

Akira Watanabe, Kenichiro Suga, Jean-Charles Doucet, Shuji Yoshida, Masato Narita, Katsuya Kanno, Takeshi Uchiyama

{"title":"Surgical Correction of Secondary Bilateral Cleft lip and Nasal Deformities Using the Delaire-Precious Technique.","authors":"Akira Watanabe, Kenichiro Suga, Jean-Charles Doucet, Shuji Yoshida, Masato Narita, Katsuya Kanno, Takeshi Uchiyama","doi":"10.1177/10556656241287079","DOIUrl":"https://doi.org/10.1177/10556656241287079","url":null,"abstract":"Objective: This study aimed to determine the efficacy of the surgical correction of secondary bilateral cleft lip and nasal deformities using the Delaire-Precious technique for Asian patients with bilateral cleft lip +/- palate (BCL+/-P).Design: Retrospective cohort study.Subjects: Thirty-six patients with BCL+/-P in Japan, the Philippines, and Vietnam underwent secondary lip correction using the Delaire-Precious technique by a single surgeon.Methods: The critical concepts of this surgical technique are discussed and clarified. A patient/parent satisfaction survey was carried out to evaluate the usefulness of this technique.Results: The Delaire-Precious technique improves Cupid's bow's symmetry and the central tubercule's volume. The scar tissue between lateral and medial philtrum incisions is excised. The orbicularis oris muscle is then reconstructed with a midline suture placed above the periosteum of the premaxilla. Most patients (90.9%) and all parents were at satisfied with the surgical result. The technique was highly satisfactory to patients and parents except at the level of scar correction.Conclusion: The secondary bilateral cleft lip and nasal repair using the Delaire-Precious technique is an adaptable technique that can be applied to various ethnic groups. It was found to be a satisfactory technique for Asian patients with BCL+/-P.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-10-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142478879","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Hospital-based Costs to the National Health Service (UK) for Children and Adolescents Born with Cleft from Birth to 20 Years. 英国国民健康服务局为出生至 20 岁的裂隙儿童和青少年支付的住院费用。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2024-10-15 DOI: 10.1177/10556656241289669

Kyle Durman, Saleem Hasanally, Joanna Thorn, Anthony Ireland, Peter Fowler, Scott Deacon, Jonathan Sandy

{"title":"Hospital-based Costs to the National Health Service (UK) for Children and Adolescents Born with Cleft from Birth to 20 Years.","authors":"Kyle Durman, Saleem Hasanally, Joanna Thorn, Anthony Ireland, Peter Fowler, Scott Deacon, Jonathan Sandy","doi":"10.1177/10556656241289669","DOIUrl":"https://doi.org/10.1177/10556656241289669","url":null,"abstract":"Objective: The primary aim was to assess the cost (£) to the National Health Service (NHS) of hospital treatment for individuals born with bilateral cleft lip and palate (BCLP), unilateral cleft lip and palate (UCLP), and cleft palate (CP), from birth to 20 years. The secondary aim was to assess the number of scheduled clinical outpatient and inpatient/outpatient surgical visits for this cohort.Design: Retrospective micro-costing analysis.Setting: Patients treated within the South West of England Cleft Service (UK).Patients: Twenty-three case-notes of children born with cleft (5 BCLP; 10 UCLP; 8 CP) were identified from birth up to and including secondary alveolar bone graft (ABG), and a second group of 23 hospital case-notes (3 BCLP; 10 UCLP; 10 CP) were identified, post-ABG to 20 years.Results: Mean costs from birth to ABG were £17,004 (BCLP), £11,620 (UCLP), and £6137 (CP), and post-ABG to 20 years were £9,463, £7,945, and £3,816, respectively. The largest costs were for staff. Repeat surgery had a significant impact on costs. The mean number of clinical outpatient visits for BCLP, UCLP, and CP were 140, 110 and 83 respectively and 8, 6 and 2 for inpatient/outpatient surgical visits, respectively.Conclusions: Costs for provision of cleft care by the NHS are significant. The greatest costs were incurred with care for patients with BCLP. Patients were expected to attend many appointments, with BCLP experiencing the most visits. Engagement with quality improvement programmes to minimise repeat surgery, and remote consultation for certain appointments, to reduce the patient burden are recommended.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-10-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142478875","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Sociodemographic Influence on the Management of Orofacial Cleft in Urban and Rural Indonesia. 社会人口学对印度尼西亚城市和农村地区口腔裂隙管理的影响。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2024-10-15 DOI: 10.1177/10556656241288762

H Hasanuddin, Aisha Ah Al-Jamaei, M Ruslin, Fridus Steijlen, A Tajrin, M N Helder, T Forouzanfar

{"title":"Sociodemographic Influence on the Management of Orofacial Cleft in Urban and Rural Indonesia.","authors":"H Hasanuddin, Aisha Ah Al-Jamaei, M Ruslin, Fridus Steijlen, A Tajrin, M N Helder, T Forouzanfar","doi":"10.1177/10556656241288762","DOIUrl":"https://doi.org/10.1177/10556656241288762","url":null,"abstract":"Objective: To explore the social experiences of orofacial cleft patients and contextualize sociodemographic influence on management disparities in rural and urban areas of Indonesia.Design: This study explores patients' lives in two demographical settings in South Sulawesi Province, Makassar and Selayar Islands Regency. It employs ethnography, including open-ended interviews and observations of patients, their neighborhoods, schools, and workplaces. Secondary data from the two regencies and South Sulawesi province are employed to demonstrate demographic disparities in patient care between urban and rural areas. Thematic content analysis was performed according to socio-demographical differences and networks involved in the management.Participants: This study engaged a diverse group of participants, including patients, family caregivers, medical team members, and patient peers (n = 40), primarily from middle to low-income families.Results: Parents in both regions had limited knowledge about treatment modalities, which resulted in concerns regarding the safety of surgical procedures and the postponement of mandatory surgeries. In rural areas, patients faced significant financial burdens when referred to Makassar. In contrast to parents in Selayar, parents in Makassar prioritized more social interaction to ensure that their children attended school, college, and work. Patients in both settings reported facing various obstacles at different stages of their lives.Conclusions: Sociodemographic conditions contribute to disparities in treatment, social positioning, and self-perception. Promoting education about the safety of medical and rural surgical procedures is vital. Involving patients in public activities and providing support from family caregivers is paramount to nurturing patients' optimistic outlooks.","PeriodicalId":49220,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-10-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142478877","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Considering the Environmental Impact of Cleft Lip and Palate Surgery. 考虑唇腭裂手术对环境的影响。

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2024-10-15 DOI: 10.1177/10556656241290065

Muireann Keating, Catherine de Blacam

引用次数: 0

Midline Cervical Cleft: Case Report and Current Understanding. 中线颈椎裂：病例报告与当前认识

IF 1.1 4区医学

Cleft Palate-Craniofacial Journal Pub Date : 2024-10-15 DOI: 10.1177/10556656241289363

Joshua Christopher Hwang, Robert Perry

引用次数: 0