Journal of Pediatric Nursing-Nursing Care of Children & Families最新文献

筛选
英文 中文
Effect of white noise during nasal continuous positive airway pressure application on newborn's pain and stress levels, physiological parameters, and crying durations: A randomized controlled study 鼻腔持续正压通气过程中的白噪声对新生儿疼痛和压力水平、生理参数和哭闹持续时间的影响:随机对照研究。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-09-01 DOI: 10.1016/j.pedn.2024.07.022
{"title":"Effect of white noise during nasal continuous positive airway pressure application on newborn's pain and stress levels, physiological parameters, and crying durations: A randomized controlled study","authors":"","doi":"10.1016/j.pedn.2024.07.022","DOIUrl":"10.1016/j.pedn.2024.07.022","url":null,"abstract":"<div><h3>Purpose</h3><p>The study was conducted to determine the effects of white noise during nasal continuous positive airway pressure (CPAP) application on the newborn's pain and stress levels, physiological parameters, and crying durations.</p></div><div><h3>Design and methods</h3><p>The study used a randomized, controlled experimental design. The study was completed with 80 newborns (40 in the intervention group and 40 in the control group). The Newborn Descriptive Data Form, ALPS Newborn Pain and Stress Assessment Scale, and Follow-up Form were used to collect the study data. Routine nasal CPAP application was performed to newborns in the control group. White noise was played to newborns in the intervention group before, during, and after the nasal CPAP application. The study was approved by an ethics committee.</p></div><div><h3>Results</h3><p>It was found that the newborn's pain and stress levels of the intervention group were lower than the control group before, during, and after the nasal CPAP application (<em>p</em> &lt; 0.05). Before nasal CPAP application, the intervention group's SpO2 average was lower than that of the control group (<em>p</em> &lt; 0.01). During nasal CPAP application, the intervention group's heart rate, SpO2, and crying duration averages were found to be lower than the control group (<em>p</em> &lt; 0.05). After nasal CPAP application, the intervention group's crying duration average was lower than the control group (<em>p</em> &lt; 0.01).</p></div><div><h3>Conclusions</h3><p>It was found that white noise before, during, and after the nasal CPAP application reduced newborns' pain and stress levels.</p></div><div><h3>Practice implication</h3><p>It is recommended that white noise be used as an easily applicable, economical, safe, and non-pharmacological method to reduce the pain and stress caused by nasal CPAP application in newborns.</p><p><strong>Clinical trials registration</strong>: The study was registered at <span><span>Clinical-Trials.gov</span><svg><path></path></svg></span> (<span><span>NCT05440669</span><svg><path></path></svg></span>).</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141767785","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Burnout inpediatric nurses: Examining the relationship between moral distress and missed nursing care 儿科护士的职业倦怠:研究道德压力与护理失误之间的关系。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-09-01 DOI: 10.1016/j.pedn.2024.08.001
{"title":"Burnout inpediatric nurses: Examining the relationship between moral distress and missed nursing care","authors":"","doi":"10.1016/j.pedn.2024.08.001","DOIUrl":"10.1016/j.pedn.2024.08.001","url":null,"abstract":"<div><h3>Purpose</h3><p>This study investigates the relationship between burnout levels of moral distress and missed nursing care in pediatric nurses.</p></div><div><h3>Design and method</h3><p>A cross-sectional study was conducted between November and December 2023. Pediatric nurses working in two hospitals and providing direct care to children (<em>n</em> = 140) completed the Moral Distress Scale-Revised Pediatric Nurses, MISSCARE Survey - Pediatric Version and Burnout Measure-Short Version questionnaire. Multivariate regression analysis modeling was applied to test the mediating effect on the relationship between burnout, moral distress, and missed nursing care.</p></div><div><h3>Results</h3><p>There was a significant positive correlation between the Moral Distress Scale-Revised Pediatric Nurses and its sub-dimensions and the Burnout Measure-Short Version (<em>p</em> &lt; 0.05). There was a significant positive correlation between the mean MISSCARE- Survey-Ped score of the nurses participating in the study and its sub-dimensions and Burnout Measure-Short Version (<em>p</em> &lt; 0.05). Providing Benefit-Do No Harm, one of the Moral Distress Scale-Revised Pediatric Nurses sub-dimensions, and Labour Resources, one of the MISSCARE sub-dimensions, were found to be predictors of burnout. The ethical principle of Providing Benefit-Do No Harm was found to mediate between moral distress and burnout and reduce burnout associated with missed care.</p></div><div><h3>Conclusions</h3><p>Accordingly, as the nurses' moral distress and inability to meet the necessary patient care increase, their burnout levels also increase. Providing Benefit-Do No Harm is an basic ethical principle that will positively affect the burnout level of pediatric nurses.</p></div><div><h3>Practice implications</h3><p>This study may provide insights into ethics training, communication improvement strategies, and individual support intervention programs aimed at reducing moral distress, and burnout and improving the coping mechanisms of nurses working in pediatric wards.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141903240","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Uncertainty, knowledge, and anxiety of mothers concerning febrile seizure: A comparison between affected and unaffected mothers 母亲对热性惊厥的不确定性、知识和焦虑:受影响母亲与未受影响母亲的比较。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-09-01 DOI: 10.1016/j.pedn.2024.08.002
{"title":"Uncertainty, knowledge, and anxiety of mothers concerning febrile seizure: A comparison between affected and unaffected mothers","authors":"","doi":"10.1016/j.pedn.2024.08.002","DOIUrl":"10.1016/j.pedn.2024.08.002","url":null,"abstract":"<div><h3>Background</h3><p>Febrile seizures are the most common type of convulsions affecting children aged six months to five years. However, febrile seizures can be difficult to identify due to the vague nature of the symptoms, which can lead to incorrect diagnosis and treatment. Thus, this study explores febrile seizure-related uncertainty, knowledge, and anxiety among mothers.</p></div><div><h3>Design and methods</h3><p>A cross-sectional design included 190 Jordanian mothers, about half with children having febrile seizure history. Instruments included the State-Trait Anxiety Inventory (STAI), Parental Perception of Uncertainty Scale (PPUS), and Parental Knowledge, Attitudes, Concerns, and Practices (KACP).</p></div><div><h3>Results</h3><p>Mothers exhibited poor febrile seizure knowledge, with affected mothers significantly scoring higher than unaffected. Affected mothers had higher state and trait anxiety and uncertainty. Correlations showed uncertainty positively correlated with anxiety. Regression analysis showed that trait anxiety and knowledge predicted uncertainty in affected mothers, while only trait anxiety predicted uncertainty in unaffected mothers.</p></div><div><h3>Conclusion</h3><p>Mothers, especially those with affected children, demonstrated low febrile seizure knowledge, high anxiety, and uncertainty. Lack of knowledge may contribute to ineffective febrile seizure management. The study identifies trait anxiety and knowledge as predictors of uncertainty, emphasizing the need for tailored interventions.</p></div><div><h3>Practice implications</h3><p>Healthcare professionals can design interventions targeting febrile seizure education and anxiety reduction. Policymakers should focus on raising awareness and allocating resources for effective interventions, potentially improving children with febrile seizure outcomes. This study underscores the importance of addressing maternal knowledge gaps, anxiety, and uncertainty related to febrile seizures, suggesting the need for comprehensive educational programs and support strategies for mothers.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0882596324003026/pdfft?md5=44b4af1a80bff5de4d1370e288de9af8&pid=1-s2.0-S0882596324003026-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141903317","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Atraumatic care practice from the child and parent perspective: The case of a pediatric phlebotomy unit 从儿童和家长的角度看创伤护理实践:儿科抽血室的案例。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-09-01 DOI: 10.1016/j.pedn.2024.08.014
{"title":"Atraumatic care practice from the child and parent perspective: The case of a pediatric phlebotomy unit","authors":"","doi":"10.1016/j.pedn.2024.08.014","DOIUrl":"10.1016/j.pedn.2024.08.014","url":null,"abstract":"<div><h3>Purpose</h3><p>This study aimed to determine the effect of the child's self-selected distraction methods used during the phlebotomy procedure on the feeling of fear and pain in children and parental satisfaction.</p></div><div><h3>Methods</h3><p>The study, planned as a randomized controlled trial, was conducted with 219 children aged 5–10 years and their parents in the pediatric phlebotomy unit between March and June 2023. Different distraction methods (foam balloon, stress ball, musical book) were applied to the children in the intervention group during the phlebotomy procedure. The data were analyzed with the SPSS 22.0 package program.</p></div><div><h3>Results</h3><p>There was a statistically significant difference between the scores of the children in the intervention and control groups on the Children's Fear Scale before the phlebotomy, and on the Wong-Baker Faces Pain Rating Scale after phlebotomy according to self- and parental assessment (p &lt; 0.05). A statistically significant difference was found between the satisfaction levels of the parents after the procedure in the intervention and control groups with the health care service provided during the phlebotomy process (p &lt; 0.05).</p></div><div><h3>Conclusion</h3><p>Distraction methods, one of the atraumatic nursing interventions used before the phlebotomy procedure, were determined to be effective in reducing the child's fear and the pain experienced due to the procedure. The study also showed that the satisfaction of parents was positively affected by the atraumatic care provided to their children.</p></div><div><h3>Practice implications</h3><p>The atraumatic care approach should be used to prevent anxiety and fear experienced by parents and children and to reduce the child's pain.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141996735","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Interventions to support young adults and families with the healthcare transition between paediatric and adult nephrology health services: A systematic scoping review 在儿科和成人肾脏病医疗服务之间的医疗过渡中,为年轻成人和家庭提供支持的干预措施:系统性范围审查。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-09-01 DOI: 10.1016/j.pedn.2024.07.026
{"title":"Interventions to support young adults and families with the healthcare transition between paediatric and adult nephrology health services: A systematic scoping review","authors":"","doi":"10.1016/j.pedn.2024.07.026","DOIUrl":"10.1016/j.pedn.2024.07.026","url":null,"abstract":"<div><h3>Background</h3><p>Healthcare transition can be challenging for young people and families living with chronic kidney conditions, including those with rare renal disorders who often have multi-systemic conditions, those who have undergone kidney transplantation, and those who face intense treatments like dialysis. Comprehensive, holistic healthcare transition interventions are required, encompassing physical, psychosocial, sexual, educational and vocational support.</p></div><div><h3>Aim</h3><p>This manuscript presents a systematic scoping review synthesising the healthcare transition interventions to support youth and families within nephrology services.</p></div><div><h3>Methods</h3><p>This review followed Arksey and O’Malley's five-stage framework, updated by Levac, Colquhoun and O'Brien and the Joanna Briggs Institute. Six databases were systematically searched: CINAHL Plus with Full Text, Embase, PsycINFO, Web of Science, PubMed, and the Applied Social Sciences Index and Abstracts (ASSIA), locating 12,662 records. Following a systematic screening process, 28 articles met the inclusion criteria. Results were analysed systematically and presented using the PAGER framework developed by <span><span>Bradbury-Jones et al. (2022)</span></span>.</p></div><div><h3>Results</h3><p>Various interventions were sourced. Three broad patterns emerged: 1. Contextual Factors, <em>e.g.</em> cultural differences between paediatric and adult services; 2. Major Intervention Components, <em>e.g.</em> parental/familial/peer-to-peer support, and 3. Personal factors, <em>e.g.</em>, self-management ability.</p></div><div><h3>Conclusion</h3><p>Few interventions are available to support youth with rare renal disorders, specifically. Future research must be directed at this cohort. Healthcare transition timing remains hotly contested, with additional guidance required to support decision-making. Finally, limited interventions have been evaluated for practice.</p></div><div><h3>Implications</h3><p>This review has provided various considerations/recommendations that should be taken into account when designing, implementing or evaluating future healthcare transition supports.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0882596324002884/pdfft?md5=dcac4d990bae93e4a3b48dc4ca843f08&pid=1-s2.0-S0882596324002884-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141996737","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Accuracy, precision and diagnostic accuracy of oral thermometry in pediatric patients 儿科患者口腔温度测量的准确性、精确性和诊断准确性
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-08-30 DOI: 10.1016/j.pedn.2024.08.023
{"title":"Accuracy, precision and diagnostic accuracy of oral thermometry in pediatric patients","authors":"","doi":"10.1016/j.pedn.2024.08.023","DOIUrl":"10.1016/j.pedn.2024.08.023","url":null,"abstract":"<div><h3>Purpose</h3><p>To determine the accuracy and precision of oral thermometry in pediatric patients, along with its sensitivity and specificity for detecting fever and hypothermia, with rectal thermometry as reference standard.</p></div><div><h3>Design and methods</h3><p>This method-comparison study enrolled patients aged between 6 and 17 years, admitted to the surgical ward during a 21-month period. KD-2150 and IVAC Temp Plus II were used for oral and rectal temperature measurements respectively. Fever and hypothermia were defined as core temperature ≥38.0 °C and ≤ 35.9 °C respectively. Accuracy and precision of oral thermometry were determined by the Bland-Altman method. Sensitivity, specificity, positive and negative predictive value, and correct classification of oral temperature cutoffs for detecting fever and hypothermia were calculated.</p></div><div><h3>Results</h3><p>Based on power analysis, 100 pediatric patients were enrolled. The mean difference between oral and rectal temperatures was −0.34 °C, with 95 % limits of agreement ranging between −0.52 and −0.16. Sensitivity and specificity of oral thermometry for detecting fever were 0.50 and 1.0 respectively; its sensitivity and specificity for detecting hypothermia were 1.0 and 0.88 respectively. The oral temperature value of 37.6 °C provided excellent sensitivity for detecting fever, while the value of 35.7 °C provided optimal sensitivity and specificity for detecting hypothermia.</p></div><div><h3>Conclusions</h3><p>Oral thermometry had low sensitivity for detecting fever and suboptimal specificity for detecting hypothermia; thus, temperature values &lt;38.0 °C and &lt;36.0 °C cannot exclude fever and confirm hypothermia respectively with high certainty.</p></div><div><h3>Practice implications</h3><p>Diagnostic accuracy of oral thermometry can be improved by the use of oral temperature thresholds &lt;38.0 °C for detecting fever and &lt;35.9 °C for detecting hypothermia.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-08-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142098214","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Addressing antimicrobial resistance: The potential role of parental health literacy and intensive parenting attitudes in antibiotic use. 应对抗生素耐药性:父母的健康素养和强化养育态度在抗生素使用中的潜在作用。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-08-29 DOI: 10.1016/j.pedn.2024.08.025
Néstor Montoro-Pérez, Enrique Castro-Sánchez, Silvia Escribano, Miguel Richart-Martínez, Raimunda Montejano-Lozoya
{"title":"Addressing antimicrobial resistance: The potential role of parental health literacy and intensive parenting attitudes in antibiotic use.","authors":"Néstor Montoro-Pérez, Enrique Castro-Sánchez, Silvia Escribano, Miguel Richart-Martínez, Raimunda Montejano-Lozoya","doi":"10.1016/j.pedn.2024.08.025","DOIUrl":"https://doi.org/10.1016/j.pedn.2024.08.025","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113805","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Epilepsy knowledge scale for parents (EKS-P): Development and psychometric evaluation in Turkish sample 家长癫痫知识量表(EKS-P):土耳其样本的开发和心理测量评估
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-08-29 DOI: 10.1016/j.pedn.2024.08.013
{"title":"Epilepsy knowledge scale for parents (EKS-P): Development and psychometric evaluation in Turkish sample","authors":"","doi":"10.1016/j.pedn.2024.08.013","DOIUrl":"10.1016/j.pedn.2024.08.013","url":null,"abstract":"<div><h3>Background</h3><p>Epilepsy is the most prevalent chronic neurological condition in childhood, affecting approximately 0.5%–1% of children worldwide.</p></div><div><h3>Objective</h3><p>This study aimed to (1) develop an “Epilepsy Knowledge Scale for Parents”, (2) evaluate the content validity of the scale, and (3) assess its psychometric properties.</p></div><div><h3>Methods</h3><p>This methodological study was conducted in a tertiary hospital's pediatric neurology outpatient clinic in Turkey. The study comprised two stages involving 500 parents of children with epilepsy. The first stage included validity and reliability analyses, while the second stage involved the calculation of the scale scoring.</p></div><div><h3>Results</h3><p>Exploratory Factor Analysis for the preliminary scale development with 36 items based on expert opinions yielded 29 items and three dimensions. The factors explained 62.83% of the total variance, and the scale exhibited high reliability (Cronbach's alpha = 0.885). Confirmatory Factor Analysis, it was determined that the fit indices were at acceptable (CFI = 0.957, NFI = 0.932) or good level (χ2/df = 2.32, RMSEA = 0.048, GFI = 0.951). Consequently, a final structure comprising 29 items and three dimensions was obtained. The scale score's cutoff value was set at 15.50 points, with scores above this value indicating diagnostic value with 55.6% sensitivity and 80.2% specificity.</p></div><div><h3>Conclusions</h3><p>The study demonstrated that the “Epilepsy Knowledge Scale for Parents (EKS-P)”, designed to assess parents' knowledge of epilepsy, is a reliable and valid measurement tool for the Turkish population.</p></div><div><h3>Implications for practice</h3><p>This scale (EKS-P) developed for parents is recommended to be used in clinical settings and both experimental and non-experimental research.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142098213","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Caring for the child with a tracheostomy through the eyes of their caregiver: A photovoice study 看护人眼中的气管造口术患儿护理:摄影选择研究
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-08-29 DOI: 10.1016/j.pedn.2024.08.024
{"title":"Caring for the child with a tracheostomy through the eyes of their caregiver: A photovoice study","authors":"","doi":"10.1016/j.pedn.2024.08.024","DOIUrl":"10.1016/j.pedn.2024.08.024","url":null,"abstract":"<div><h3>Purpose</h3><p>This qualitative descriptive study aimed to explore the daily experiences of caregivers of children with medical complexity with a tracheostomy at home.</p></div><div><h3>Methods</h3><p>This study used photovoice, a participatory action research methodology. Adult English-speaking caregivers of children with a tracheostomy, living in Texas, with access to a smartphone were recruited. Photographs taken by participants and an interview guide were used to guide semi-structured interviews with caregivers.</p></div><div><h3>Results</h3><p>Eight participants were recruited. After analyzing photographs and caregiver interviews, four main themes were identified: role transition, daily challenges, finding support, and thriving in the new normal.</p></div><div><h3>Conclusions</h3><p>Caregivers take on multiple roles, including providing medical care, advocating for their children, and educating others. While facing emotional challenges such as guilt, fear, and exhaustion, caregivers rely on external support systems, emphasizing the need for nurses and healthcare providers to provide comprehensive support and improve the accessibility of home nursing services.</p></div><div><h3>Practice implications</h3><p>The findings of this study can inform nurse-led interventions and advocacy efforts aimed at supporting marginalized children with medical complexity with a tracheostomy and their families. These efforts may include enhancing communication and collaboration between families, healthcare workers, and the public, providing comprehensive, proactive support for caregivers, and improving access to home nursing services.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142098212","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Australian rural emergency nurses' care of paediatric patients: A qualitative study 澳大利亚农村急救护士对儿科病人的护理:定性研究
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-08-27 DOI: 10.1016/j.pedn.2024.08.018
{"title":"Australian rural emergency nurses' care of paediatric patients: A qualitative study","authors":"","doi":"10.1016/j.pedn.2024.08.018","DOIUrl":"10.1016/j.pedn.2024.08.018","url":null,"abstract":"<div><h3>Background</h3><p>Rural emergency nurses (RENs) are expected to provide care to paediatric patients presenting to their facilities however, as generalist nurses, they experience challenges and feelings that are unique to the rural context.</p></div><div><h3>Design and methods</h3><p>An exploratory qualitative study of 13 RENs via semi structured interviews of perceptions and experiences of caring for paediatrics and self-determination of autonomous practice, motivations and connectedness in care was the approach used.</p></div><div><h3>Findings</h3><p>Inductive thematic analysis of data identified four themes with sub-themes identified within each theme. The four themes were: Caring for Children, Professional Roles, Professional Care and Connection and Professional Development.</p></div><div><h3>Conclusion</h3><p>RENs describe feeling fear, stress and anxiety when caring for sick children, particularly when known to the patient and family in their community yet will self-determine autonomous practice and use gatekeeping in certain situations of paediatric care. RENs are motivated to increase their paediatric knowledge and skills, seeking paediatric education opportunities but face barriers in attendance such as travel and costs. RENs rely on connectedness with other rural nurses, seeking paediatric nursing guidance or telehealth support, particularly when performing multiple roles or in the absence of a doctor in the ED.</p></div><div><h3>Practice implications</h3><p>Provision of opportunities for RENs to lead education in paediatric nursing, that is contextually appropriate and co-designed with paediatric experts is preferred. This would yield greater REN engagement and participation in paediatric education for knowledge and skill proficiency, would increase rural nurse professional development and reduce feelings of fear and anxiety when caring for paediatrics.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-08-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S088259632400318X/pdfft?md5=5cb22ae4ef0bb1e69aa276560ff5cd55&pid=1-s2.0-S088259632400318X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142076028","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信