Journal of Pediatric Nursing-Nursing Care of Children & Families最新文献

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Emotional and psychosocial functioning in youngsters with a congenital heart disease (CHD) in comparison to healthy controls 与健康对照组相比,患有先天性心脏病(CHD)的青少年的情绪和社会心理功能
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-01-20 DOI: 10.1016/j.pedn.2025.01.006
Saskia Mels , Fé De Mulder , Lien Goossens , Kristof Vandekerckhove , Katya De Groote
{"title":"Emotional and psychosocial functioning in youngsters with a congenital heart disease (CHD) in comparison to healthy controls","authors":"Saskia Mels ,&nbsp;Fé De Mulder ,&nbsp;Lien Goossens ,&nbsp;Kristof Vandekerckhove ,&nbsp;Katya De Groote","doi":"10.1016/j.pedn.2025.01.006","DOIUrl":"10.1016/j.pedn.2025.01.006","url":null,"abstract":"<div><h3>Objective</h3><div>Due to their medical vulnerability, youngsters with congenital heart disease (CHD) may experience more overwhelming emotions than healthy peers. This multi-informant-based study aims to examine differences between these youngsters and their peers in psychosocial functioning, attachment and emotion regulation.</div></div><div><h3>Study design</h3><div>217 youngsters (8–18 years) with CHD (53.9 % boys, 46.1 % girls) were compared to 232 healthy controls (52.6 % boys, 47.4 % girls) matched for gender, age and education. Participants and parents completed online self-report questionnaires assessing psychosocial functioning (SDQ), attachment (ECR-RC), and maladaptive Emotion Regulation Strategies (ERS; FEEL-KJ).</div></div><div><h3>Results</h3><div>Based on child's self-reports MANOVA's showed no significant differences between the groups in psychosocial functioning. However, based on parent reports, differences were found between the groups in psychosocial functioning for the total scales and overarching subscales. No differences were found between the groups for insecure attachment to either parent. However, youngsters with CHD and their fathers reported more use of self-devaluation compared to controls (<em>p</em> = .03). Other maladaptive ERS (giving up, withdrawal, rumination, aggressive actions) showed no differences.</div></div><div><h3>Conclusions</h3><div>Care interventions for children with CHD should address medical, emotional, and social needs, with a focus on multi-informant evaluations to support emotional well-being. Nurses are important partners in detecting psychosocial difficulties and providing family support. Patient- and family-centered care involves patients, parents and caregivers in the care plan, recognizing their key role, especially as youngsters often perceive their psychosocial health differently than their parents. Although differences were noted compared to the control group, the study's cross-sectional design limits conclusions on evolution with time.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"81 ","pages":"Pages 8-15"},"PeriodicalIF":2.1,"publicationDate":"2025-01-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014425","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Facilitators and barriers of accessing community health services for children in the early years: An Australian qualitative study 儿童早期获得社区保健服务的促进因素和障碍:澳大利亚的一项定性研究。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-01-17 DOI: 10.1016/j.pedn.2025.01.009
Helen J. Nelson , Ailsa Munns , Bethany Angus , Eleanor Arbuckle , Sharyn K. Burns
{"title":"Facilitators and barriers of accessing community health services for children in the early years: An Australian qualitative study","authors":"Helen J. Nelson ,&nbsp;Ailsa Munns ,&nbsp;Bethany Angus ,&nbsp;Eleanor Arbuckle ,&nbsp;Sharyn K. Burns","doi":"10.1016/j.pedn.2025.01.009","DOIUrl":"10.1016/j.pedn.2025.01.009","url":null,"abstract":"<div><h3>Introduction</h3><div>Foundations for health are set in the first years of life, however many children in Australia do not attain optimal development due to inequitable access to specialist care through impacting social determinants of health. There is a research gap in evidence for sustaining early years services that address these barriers. This study aimed to understand experiences and priorities of parents/carers and service providers around access to specialist early years health services in low socioeconomic areas of Armadale, Western Australia.</div></div><div><h3>Methods</h3><div>Thematic analysis was used to interpret meanings across focus group discussion data and find priorities for access to care and service delivery using a multilevel socio-ecologic model. Facilitators and barriers to access were identified related to each theme.</div></div><div><h3>Results</h3><div>Two major themes were identified. Within theme ‘Finding Help’, facilitators to access included extended family, community, and childcare. Barriers included social isolation, and overwhelm. In theme ‘Structural Factors’, facilitators included safe places and practices, political action and universal care. Barriers included social determinants of health, institutional bias, and fiscal policy.</div></div><div><h3>Conclusion/Discussion</h3><div>Findings will inform policy, service delivery, and research priorities toward facilitating timely access to integrated care for vulnerable families with young children. Health equity will focus on co-design to remove structural barriers using a “one-stop-shop” model with soft entry, triage capacity, and a key worker to coordinate care for at risk families. To promote structural equity, a focus on access will include continuing engagement with families, facilitated by relational models of care to scaffold and support families toward autonomy.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"81 ","pages":"Pages 1-7"},"PeriodicalIF":2.1,"publicationDate":"2025-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014428","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
“Assessment of the psychometric properties of the Turkish version of the parenting scale for adolescents” "评估土耳其版青少年养育量表的心理测量特性"。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-01-01 DOI: 10.1016/j.pedn.2024.10.038
Burcu Arkan , Aylin Bostanlı , Murat Bektaş
{"title":"“Assessment of the psychometric properties of the Turkish version of the parenting scale for adolescents”","authors":"Burcu Arkan ,&nbsp;Aylin Bostanlı ,&nbsp;Murat Bektaş","doi":"10.1016/j.pedn.2024.10.038","DOIUrl":"10.1016/j.pedn.2024.10.038","url":null,"abstract":"<div><h3>Background</h3><div>Adolescence is the period of human development between childhood and adulthood. Parent-child interaction differs qualitatively in different developmental periods, the development of separate scales sensitive to different age periods regarding parental attitudes is one of the most important issues in this field.</div></div><div><h3>Aim</h3><div>This study aimed to adapt the Parenting Scale for Adolescents to Turkish culture and to evaluate the psychometric properties of the scale.</div></div><div><h3>Design and method</h3><div>This study was designed as a methodological, descriptive, cross-sectional study. The study was conducted in a province in the western region of Türkiye with 104 parents whose healthy children were not receiving any psychiatric treatment. A Sociodemographic Data Form and the Parenting Scale for Adolescents were used to obtain the data.</div></div><div><h3>Results</h3><div>The fit index of the scale was above 0.80 in terms of both I-CVI (Item Content Validity) and S-CVI (Scale Content Validity). The results of the content validity analysis showed that the scale provided both content and language validity for the Turkish sample, as well as measuring the subject matter as adequately as its original version.</div></div><div><h3>Conclusion</h3><div>According to the results of this study, the Parenting Scale for Adolescents is a valid and reliable tool in Turkish culture.</div></div><div><h3>Practice implications</h3><div>The Parenting Scale for Adolescents is an effective measurement tool for predicting and preventing adolescent problems, determining parental behaviors when problems occur, and evaluating treatment outcomes.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages e34-e39"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142584672","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Translational research – Parenting children with chronic conditions and special needs: Enhancing coping through supportive environments 转化研究-养育有慢性病和特殊需要的儿童:通过支持性环境增强应对能力。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-01-01 DOI: 10.1016/j.pedn.2025.01.012
Becky J. Christian PhD, RN, FNAP, FAAN
{"title":"Translational research – Parenting children with chronic conditions and special needs: Enhancing coping through supportive environments","authors":"Becky J. Christian PhD, RN, FNAP, FAAN","doi":"10.1016/j.pedn.2025.01.012","DOIUrl":"10.1016/j.pedn.2025.01.012","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages 183-185"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143075981","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Emotions experienced by parents whose children have spinal muscular atrophy: A qualitative research 脊髓性肌萎缩症患儿父母的情绪体验:一项定性研究。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-01-01 DOI: 10.1016/j.pedn.2024.11.027
Didem Coşkun Şimşek Associate professor , Kerime Deniz Kiliç Çetin
{"title":"Emotions experienced by parents whose children have spinal muscular atrophy: A qualitative research","authors":"Didem Coşkun Şimşek Associate professor ,&nbsp;Kerime Deniz Kiliç Çetin","doi":"10.1016/j.pedn.2024.11.027","DOIUrl":"10.1016/j.pedn.2024.11.027","url":null,"abstract":"<div><h3>Background</h3><div>The lifelong and intensive treatment and care process of Spinal Muscular Atrophy may cause a decrease in the life quality of the child and the parents. This study aims to examine the emotions of parents who have a child with Spinal Muscular Atrophy within the framework of a phenomenological design.</div></div><div><h3>Methods</h3><div>This study was conducted with a phenomenological design. The study was carried out between August 2022 and April 2024 with the parents of children treated for Spinal Muscular Atrophy in the pediatric ward of a university hospital. Using a purposive sampling method, 11 parents were involved in interviews. A semi-structured questionnaire was employed during the interviews, and all the interviews were audio recorded. The data analysis done by applying the inductive thematic analysis method. The study was carried out according to the COREQ checklist.</div></div><div><h3>Findings</h3><div>It was found that 54.54 % of the children who participated in the study were diagnosed with Spinal Muscular Atrophy between the ages of 0 and 1 year, 72.72 % between 0 and 6 months, and 54.54 % were Spinal Muscular Atrophy TYPE 1 patients. As a result of thematic analysis method, five main and ten sub-themes had emerged. These are; (1) helplessness (helplessness of having to accept, helplessness of not being able to spare time), (2) being upset (being upset about the symptoms of the disease, feeling misunderstood, sadness about their healthy children), (3) stress (stress due to the intensive and exhausting treatment and care process, stress due to the economic situation), (4) fear (fear of death, fear of future pregnancies), (5) unhappiness (being unhappy with the changing living conditions).</div></div><div><h3>Discussion</h3><div>It was observed that parents who have a child with Spinal Muscular Atrophy experience emotional challenges.</div></div><div><h3>Application to practice</h3><div>Gaining insights into the perspectives of parents can enable healthcare professionals to better understand the negative emotional experiences of parents caring for children with Spinal Muscular Atrophy. Such understanding may guide the development of targeted strategies to provide comprehensive psychological support aimed at improving parental mental health outcomes. Increasing awareness among healthcare professionals and the broader society fosters a more informed and empathetic approach to addressing the challenges faced by children with Spinal Muscular Atrophy and their families, enhancing the quality of care and support provided.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages e111-e119"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792653","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
An evaluation of parents' and caregivers' preferences managing fever in children based on experiences in using ibuprofen and paracetamol: A systematic review 基于使用布洛芬和扑热息痛的经验,对父母和照顾者管理儿童发烧的偏好进行评估:一项系统综述。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-01-01 DOI: 10.1016/j.pedn.2024.12.018
Muhammad Alqudah , Michelle Anne Stubbs , Mahmoud Al-Masaeed , Ritin Fernandez
{"title":"An evaluation of parents' and caregivers' preferences managing fever in children based on experiences in using ibuprofen and paracetamol: A systematic review","authors":"Muhammad Alqudah ,&nbsp;Michelle Anne Stubbs ,&nbsp;Mahmoud Al-Masaeed ,&nbsp;Ritin Fernandez","doi":"10.1016/j.pedn.2024.12.018","DOIUrl":"10.1016/j.pedn.2024.12.018","url":null,"abstract":"<div><h3>Objective</h3><div>This review aims to investigate parents' preference for and use of Ibuprofen and Paracetamol in managing and treating children's fevers as well as the factors influencing their decision-making and practices.</div></div><div><h3>Introduction</h3><div>Parents globally face concern over managing children's fever, seeking relief while ensuring safety, often relying on accessible medications like Paracetamol and Ibuprofen.</div></div><div><h3>Inclusion criteria</h3><div>The review included quantitative studies involving parents and caregivers managing fever in children aged 0–17 years. Studies published in English or in other languages with an English language version from January 2000 to March 2024 were included, excluding hospital-based or healthcare professional-managed studies.</div></div><div><h3>Methods</h3><div>Searches were conducted using MEDLINE, PubMed, SCOPUS, and CINAHL databases using specific search strategies. Titles and abstracts were screened online, and full reports were obtained for any publication considered useful for this overview. Methodological quality was assessed independently by two reviewers using the JBI critical appraisal instrument. Data extraction was performed in Excel, and statistical meta-analysis was undertaken using JBI SUMARI software.</div></div><div><h3>Results</h3><div>Approximately 27.4 % of participants utilized Ibuprofen, while 64.3 % opted for Paracetamol. Subgroup analyses revealed that 29.8 % and 63.2 % administered Ibuprofen and Paracetamol to children under five. Additionally, 20.3 % alternated between these medications. Syrup emerged as the preferred mode of administration, with prominent parental involvement in dosage determination. Factors influencing medication choices included efficacy, safety profile, age, weight, ease of administration, and healthcare provider recommendations.</div></div><div><h3>Conclusion</h3><div>The prevalence of Ibuprofen and Paracetamol usage for pediatric fever management varies significantly. Parental involvement is prominent, guided by factors like efficacy and healthcare provider recommendations. Understanding these dynamics is crucial for informed decision-making and optimizing pediatric medication practices.</div></div><div><h3>Implications to practice</h3><div>This review highlights the importance of enhancing parental education on antipyretic use, emphasizing safe dosage practices and clear communication with healthcare providers. Healthcare professionals should address misconceptions and provide tailored guidance, fostering more effective and safer fever management strategies for children.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages e272-e281"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142957259","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Board of Directors 董事会
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-01-01 DOI: 10.1016/S0882-5963(25)00017-X
{"title":"Board of Directors","authors":"","doi":"10.1016/S0882-5963(25)00017-X","DOIUrl":"10.1016/S0882-5963(25)00017-X","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Page vi"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143159071","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluation of the impact of family-centered care training on pediatric nurses' attitudes 评估以家庭为中心的护理培训对儿科护士态度的影响。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-01-01 DOI: 10.1016/j.pedn.2024.12.003
Adnan Batuhan Coşkun , Mohammad Al-Motlaq , Merve Pişkin , Erhan Elmaoğlu , Ayda Çelebioğlu
{"title":"Evaluation of the impact of family-centered care training on pediatric nurses' attitudes","authors":"Adnan Batuhan Coşkun ,&nbsp;Mohammad Al-Motlaq ,&nbsp;Merve Pişkin ,&nbsp;Erhan Elmaoğlu ,&nbsp;Ayda Çelebioğlu","doi":"10.1016/j.pedn.2024.12.003","DOIUrl":"10.1016/j.pedn.2024.12.003","url":null,"abstract":"<div><h3>Objective</h3><div>This study aimed to evaluate the impact of structured Family-Centered Care training on pediatric nurses' attitudes toward Family-Centered Care.</div></div><div><h3>Methods</h3><div>This quasi-experimental study utilized a pretest-posttest control group design with 140 pediatric nurses (70 intervention, 70 control). Conducted in public hospitals from March to August 2024, the intervention group received a four-week Family-Centered Care training. The Family-Centered Care Attitude Scale was used to measure attitudes, and data collection included a demographic data form administered both before the training and six weeks after its completion. Statistical analysis included <em>t</em>-tests and chi-square tests.</div></div><div><h3>Results</h3><div>Nurses in the intervention group showed significant improvement in their attitudes toward Family-Centered Care after training, with higher posttest scores compared to the control group (<em>P</em> &lt; 0.05). The control group showed no significant changes between pretest and posttest scores. These findings confirmed the hypothesis that Family-Centered Care training positively influences pediatric nurses' attitudes.</div></div><div><h3>Conclusions</h3><div>Structured Family-Centered Care training significantly improved pediatric nurses' attitudes toward Family-Centered Care, emphasizing the importance of innovative educational methods in promoting Family-Centered Care adoption in pediatric nursing.</div></div><div><h3>Implications for practice</h3><div>Incorporating regular Family-Centered Care training into pediatric nursing practices can foster more Family-Centered Care approaches, improve patient and family satisfaction, and promote nurses' professional growth, ultimately enhancing the overall quality of care in pediatric settings.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages e136-e143"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142824531","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors related to quality of life in children with chronic illness from their own perspectives: A cross-sectional study 从儿童自身角度看与慢性病患儿生活质量相关的因素:一项横断面研究。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-01-01 DOI: 10.1016/j.pedn.2024.12.016
Idyatul Hasanah , Nursalam , Chui Ping Lei , Apriani Susmita Sari , Susi Roida Simanjuntak , Agus Supinganto , Zulkahfi , Sopian Halid , Irwan Hadi , Misroh Mulianingsih
{"title":"Factors related to quality of life in children with chronic illness from their own perspectives: A cross-sectional study","authors":"Idyatul Hasanah ,&nbsp;Nursalam ,&nbsp;Chui Ping Lei ,&nbsp;Apriani Susmita Sari ,&nbsp;Susi Roida Simanjuntak ,&nbsp;Agus Supinganto ,&nbsp;Zulkahfi ,&nbsp;Sopian Halid ,&nbsp;Irwan Hadi ,&nbsp;Misroh Mulianingsih","doi":"10.1016/j.pedn.2024.12.016","DOIUrl":"10.1016/j.pedn.2024.12.016","url":null,"abstract":"<div><h3>Purpose</h3><div>This study aims to explore the demographic, clinical, and psychological factors that influence the quality of life in children with chronic illnesses.</div></div><div><h3>Design and methods</h3><div>A descriptive, cross-sectional study was conducted between February and July 2023. The sample consisted of 120 pediatric patients, aged 7 to 18 years, diagnosed with chronic illnesses and treated in outpatient and inpatient wards. Participants were selected using purposive sampling based on specific inclusion and exclusion criteria. Data were collected using 11 validated questionnaires covering demographic, clinical, and psychological factors, as well as the Pediatric Quality of Life Inventory (PedsQL). Data were analyzed using <em>t</em>-tests, ANOVA, and multivariate linear regression to identify the most influential factors on children's quality of life, with a significance threshold set at <em>p</em> &lt; 0.05.</div></div><div><h3>Results</h3><div>Gender, age, duration of illness, disease symptoms, and pain level were significantly correlated with children's quality of life (<em>p</em> &lt; 0.05). Another factors like self-efficacy, self-concept, and role function had a strong positive impact (<em>p</em> &lt; 0.01), while coping mechanisms, resilience, self-esteem, and family support showed no significant effect. Duration of illness was the most influential factor (B = 0.969).</div></div><div><h3>Conclusions</h3><div>Children's quality of life is strongly influenced by factors like gender, age, illness duration, symptoms, self-efficacy, self-concept, and role function, with illness duration having the greatest impact.</div></div><div><h3>Practice implications</h3><div>Healthcare providers should take a holistic approach, addressing clinical, demographic, and psychosocial factors, with special attention to children with longer illness durations, as this greatly affects their quality of life.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages e218-e227"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142915624","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Global prevalence of depression in caregivers of children with autism: A systematic review and meta-analysis 自闭症儿童照料者抑郁的全球患病率:一项系统回顾和荟萃分析。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-01-01 DOI: 10.1016/j.pedn.2024.11.020
Xin Rong Lam , Ling Jie Cheng , Celest Su Yi Leo , Zheng An Toh , Hong-Gu He
{"title":"Global prevalence of depression in caregivers of children with autism: A systematic review and meta-analysis","authors":"Xin Rong Lam ,&nbsp;Ling Jie Cheng ,&nbsp;Celest Su Yi Leo ,&nbsp;Zheng An Toh ,&nbsp;Hong-Gu He","doi":"10.1016/j.pedn.2024.11.020","DOIUrl":"10.1016/j.pedn.2024.11.020","url":null,"abstract":"<div><h3>Problem</h3><div>Depression is reported as the most common disorder among caregivers, especially for caregivers of children with autism. However, limited systematic reviews have investigated the prevalence of depressive symptoms among these caregivers. This systematic review and meta-analysis aim to synthesize the prevalence of global depressive symptoms among caregivers of children with autism and identify associated factors.</div></div><div><h3>Eligibility criteria</h3><div>Articles were limited to English language and reported on the prevalence of depressive symptoms among formal or informal caregivers, aged 18 or older, of children with ASD, with no publication year restrictions.</div></div><div><h3>Sample</h3><div>A total of 40 included studies involving 13,853 caregivers of children with autism were included.</div></div><div><h3>Results</h3><div>Meta-analysis of 40 included studies involving 13,853 caregivers of children with autism showed a pooled prevalence estimate of 45 % (95 % CI: 39.0–51.0). Depressive symptoms were most prevalent in European studies, with a rate of 54 % (N: 980), closely followed by the Eastern Mediterranean region at 53 % (N:1071). The South-East Asia and Western Pacific region exhibited a prevalence of 40 % (N: 5719), while the Americas reported a rate of 38 % (N: 6083).</div></div><div><h3>Conclusion</h3><div>This review presents compelling evidence of a high global prevalence rate of 45 % for depressive symptoms among caregivers of children with ASD.</div></div><div><h3>Implications</h3><div>To enhance nursing support for caregivers of children with ASD, specific interventions are needed. Nurses should integrate mental health screenings into regular check-ups, link caregivers to community resources, and receive specialized training. Promoting respite care and collaborating with stakeholders can further address caregiver stress and mental health stigma.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"80 ","pages":"Pages e74-e85"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142773864","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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