Journal of Pediatric Nursing-Nursing Care of Children & Families最新文献

{"title":"An update on healthcare legislation: Trends in pediatric endocrinology.","authors":"Mandi Cafasso","doi":"10.1016/j.pedn.2026.07.042","DOIUrl":"10.1016/j.pedn.2026.07.042","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":"839-841"},"PeriodicalIF":2.6,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148708249","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Corrigendum to the article 'Development and validation of a workload prediction tool for nurses in pediatric intensive care units - The QuantI²S tool' [Journal of Pediatric Nursing, 88(2026) 393-400].","authors":"Camille Jutras, Julien Gardner, Jean Théroux, Alexa Eberle, Johanne Déry, Philippe Jouvet, Alexandre Leclair, Nicole Hung, Sylvie Charette, Samira Harakat, Karine Bouchard, Sylvie Le May","doi":"10.1016/j.pedn.2026.07.041","DOIUrl":"10.1016/j.pedn.2026.07.041","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":"847"},"PeriodicalIF":2.6,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148609155","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Neonatal Pain as a Maternal-Infant Dyadic Health Issue: Evidence and Implementation Gaps","authors":"D. Abebe, A. Hailegebireal, M. Foster, J.A. Barrowclough, S. Platt","doi":"10.1016/j.pedn.2026.08.007","DOIUrl":"10.1016/j.pedn.2026.08.007","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"90 ","pages":"Pages A1-A4"},"PeriodicalIF":2.6,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148698173","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Winning Poster Project V.O.I.C.E - Valuing Opportunities for Inclusive Communication Excellence","authors":"Anna Tenorio MSN, RN, CPN,&nbsp;Amanda Armijo RN, BSN, CMSRN","doi":"10.1016/j.pedn.2026.07.048","DOIUrl":"10.1016/j.pedn.2026.07.048","url":null,"abstract":"<div><div>Background: Patients with limited English proficiency (LEP) often experience barriers to safe, high-quality care due to underutilization and inconsistent documentation of interpreter services. On the Inpatient Medical/Pediatric unit, HCAHPS scores for “Nurses explain things in a way I can understand” reflected this gap, with baseline performance at 50% at the end of FY24. Interpreter service use among pediatric patients was only 75% and documentation compliance was 83%. These findings highlighted a substantial need to strengthen equitable communication practices. Purpose: The purpose of this project was to improve interpreter service utilization and documentation accuracy while enhancing patient experience scores in communication-related HCAHPS domains. Methods: Using the DMAIC quality improvement framework, interprofessional team identified barriers including convenience, awareness, availability, knowledge gaps and documentation practices. Interventions included implementation of universal signage, creation of unit-based standard work and development of a structured staff education plan. Unit champions and clinical leadership supported adoption through real-time coaching, rounding and data feedback. Results: Post-intervention data demonstrated substantial improvement. Pediatric interpreter utilization increased from FY24 75% to FY25 91%, and documentation improved from FY24 83% to FY25 100%. Overall HCAHPs scores for the target domain rose from 50% at baseline (Aug 2024 end of FY24) to 77.8% (August 2025, FY25) by the end of the fiscal year. Additionally, language-related safety events (NETs) decreased from 11 to 1 over six months, underscoring the impact on patient safety and communication clarity. Implications for Practice: This project demonstrates that relatively simple interventions “standardize signage, clear documentation processes and focused education“ can yield measurable improvements in communication, equity and patient experience. Sustaining these results requires ongoing staff engagement and spread of interventions across additional units. Broader adoption of Project V.O.I.C.E can support system-wide goals of inclusive care and equitable communication for patients with LEP.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"90 ","pages":"Page 837"},"PeriodicalIF":2.6,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148934341","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Management of spinal muscular atrophy: nursing clinical commentary and best practices update","authors":"Elena Gotti,&nbsp;Giusy Bruscino,&nbsp;Claudia Carta,&nbsp;Patrizia Cellamare,&nbsp;Laura Cosma,&nbsp;Elena Mangia,&nbsp;Monica Fontana,&nbsp;Paola Genzone,&nbsp;Nicolaia Palumbo,&nbsp;Maria Cristina Pellegrino,&nbsp;Emilia Rufini,&nbsp;Viola Sangiorgi,&nbsp;Franca Sarracino,&nbsp;Chiara Bravetti","doi":"10.1016/j.pedn.2026.04.017","DOIUrl":"10.1016/j.pedn.2026.04.017","url":null,"abstract":"<div><h3>Background</h3><div>Spinal muscular atrophy (SMA) is a rare neuromuscular disorder that has seen a paradigm shift in its management due to early diagnostic strategies, disease-modifying therapies, and integrated care models. Despite these advances, the nursing role – essential across the care continuum – remains underrepresented in clinical protocols and guidelines.</div></div><div><h3>Main body</h3><div>This Clinical commentary, authored by Italian nurses with direct expertise in SMA care, outlines the key responsibilities, practices, and procedural frameworks that define specialized nursing contributions. Nurses are involved from the earliest phases of care, including neonatal screening and diagnostic communication, and extend their role into the long-term home-based management of children with SMA. Responsibilities include administering and monitoring advanced therapies (onasemnogene abeparvovec, nusinersen, risdiplam), delivering therapeutic education, managing care transitions, and maintaining consistent family engagement. Emphasis is placed on nurses as coordinators of care, clinical educators, and relational anchors. Structured follow-up flowcharts for each therapy illustrate the clinical and educational dimensions of nursing practice. The paper highlights the need for specialized training and standardized roles – such as nurse case managers – as well as for health systems to track nursing-sensitive outcomes.</div></div><div><h3>Conclusion</h3><div>The integration of specialized nursing into SMA care is not only ethically and clinically warranted—it is essential to achieving sustainable, equitable, and high-quality outcomes for patients and families. This paper calls for the formal recognition of nursing as a core component of multidisciplinary SMA care teams.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"89 ","pages":"Pages A7-A13"},"PeriodicalIF":2.6,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147844739","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Diabetes in youth mixed methods research: Exploring Type 1 Diabetes through story & poem writing","authors":"Shari Liesch MSN, APNP","doi":"10.1016/j.pedn.2026.05.033","DOIUrl":"10.1016/j.pedn.2026.05.033","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"89 ","pages":"Pages 615-616"},"PeriodicalIF":2.6,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148587552","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Preliminary demographic and compensation findings from the Pediatric Endocrinology Advanced Practice Workforce Landscape Survey (PEARLS)","authors":"Leslie Pitts PhD, DNP, CPNP-AC, AP-PEN,&nbsp;Lauren Culbreth MPAS, PA-C, ACSM-EP, CDCES","doi":"10.1016/j.pedn.2026.05.032","DOIUrl":"10.1016/j.pedn.2026.05.032","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"89 ","pages":"Page 615"},"PeriodicalIF":2.6,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148587568","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Endocrine considerations for children with duchenne muscular dystrophy","authors":"Marcy DeEmedio MSN, RN, CPNP","doi":"10.1016/j.pedn.2026.05.034","DOIUrl":"10.1016/j.pedn.2026.05.034","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"89 ","pages":"Page 616"},"PeriodicalIF":2.6,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148565718","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Pediatric nursing excellence awards: Program growth, lessons learned, and future directions","authors":"Amy Marks MSN, RN, CPHQ, CPN","doi":"10.1016/j.pedn.2026.05.013","DOIUrl":"10.1016/j.pedn.2026.05.013","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"89 ","pages":"Pages 612-613"},"PeriodicalIF":2.6,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148036816","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Improving linear growth measurement accuracy in endocrinology clinic","authors":"Linda Steinkrauss MSN, CPNP,&nbsp;Kristine Welsh MSN, CPNP,&nbsp;Marcy DeEmedio MSN, CPNP","doi":"10.1016/j.pedn.2026.05.029","DOIUrl":"10.1016/j.pedn.2026.05.029","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"89 ","pages":"Page 614"},"PeriodicalIF":2.6,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148587565","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}