Journal of Pediatric Nursing-Nursing Care of Children & Families最新文献

{"title":"“A meta-synthesis of the language of pediatric pain” as the reviewers were suggested","authors":"","doi":"10.1016/j.pedn.2024.08.020","DOIUrl":"10.1016/j.pedn.2024.08.020","url":null,"abstract":"<div><h3>Aim</h3><p>This study aims to conduct a meta-synthesis to explore the language of pain in children.</p></div><div><h3>Method</h3><p>We conducted a meta-synthesis, following the outline proposed by Sandelowski. Our search encompassed six electronic databases, namely PubMed, Scopus, EBSCO, Web of Science, SAGE, and Wiley. The Primary keywords used were pediatric pain, pain expression, communication, and qualitative studies. We included articles in English within the field of pediatric nursing between 1989 and 2023. Initially, 563 records were identified which reduced to 508 references after removing duplicates. Subsequently, we assessed 172 full-text articles for eligibility and 10 relevant studies were ultimately included. Quality appraisal was conducted with no study being excluded. Data were synthesized using the qualitative thematic analysis method.</p></div><div><h3>Results</h3><p>The analysis of the data yielded one main theme (the language of pain) and four subthemes. The subthemes were expressive discourse (phonetic expressions, verbal expression, and symbolic expression), subtle gestures of expression (behavioral discrepancies, self-harm, face grimaces, and eye changes), embodied communication (early neonatal to infant movements, older infants movements, and somatic movement), and silent endurance (endurance due to fear of invasive procedure, worrying family, and social isolation).</p></div><div><h3>Conclusion</h3><p>From phonetic utterances to nuanced gestures, this study underscores the intricate ways children convey their pain.</p></div><div><h3>Implication</h3><p>These findings underscore the importance of healthcare practitioners recognizing and interpreting diverse modes of children's pain expression for accurate assessment. Implementing a holistic approach that integrates verbal, nonverbal, and embodied communication can enhance pediatric pain management practices.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-08-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142076027","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Influence of the Olfatín Project on the reduction of pain related to intranasal influenza vaccination, as part of a school influenza vaccination program","authors":"","doi":"10.1016/j.pedn.2024.08.022","DOIUrl":"10.1016/j.pedn.2024.08.022","url":null,"abstract":"<div><h3>Purpose</h3><p>To evaluate the influence of viewing the Olfatín Project video on the assessment of school LAIV-associated pain in three and four-year-old children through the Wong Baker Faces® pain classification scale.</p></div><div><h3>Design and methods</h3><p>A three-arm randomized multicenter clinical trial with a placebo control group was carried out. The main variable measured was pain, assessed through the score on the Wong Baker Faces® Pain Rating Scale. There were a total population of 4591 children three and four-year-olds (born in 2019 and 2020) and who attended the 1st and 2nd year of early childhood education. Before the school vaccination, researchers randomly assigned participant schools corresponding to each of the basic health areas to each of the three study groups: Olfatín's video viewing, a control video viewing not related to influenza and no video viewing.</p></div><div><h3>Results</h3><p>No significant differences according to sex, age or the minor's grade according to the assigned intervention were detected. 72.3% of those vaccinated assigned a 0 from the Wong Baker Faces® scale: 75.4% of those who watched Olfatín's video, 68.3% for those in Drilo's group and 72.8% for those who didn't watch any video, but without significant differences (<em>p</em> = 0.08). There were no significant differences either stratifying by sex.</p></div><div><h3>Conclusion</h3><p>LAIV is a painless vaccine for children, which has to be taken into account by the health authorities when planning the pediatric influenza vaccination campaign.</p></div><div><h3>Practice implications</h3><p>Olfatín's cartoon video can be used by professionals to create a greater experience for children and therefore a better acceptance.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-08-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142083268","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Predictors of the quality of life in siblings of children with chronic diseases.","authors":"Fatemeh Eidi, Mahshid Mirzaie Taklimi, Zahra Taheri-Ezbarami, Elnaz Faraji-Nesfechi, Ehsan Kazemnejad Leili","doi":"10.1016/j.pedn.2024.08.012","DOIUrl":"https://doi.org/10.1016/j.pedn.2024.08.012","url":null,"abstract":"<p><strong>Purpose: </strong>Advances in medical sciences have contributed to the increase in children living with chronic diseases. The diagnosis of a chronic disease in a child can affect the quality of life of all family members, including siblings. Therefore, this study aimed to identify the predictors of quality of life among siblings aged 8 to 12 years who have a brother or sister with chronic diseases.</p><p><strong>Methods: </strong>In this case-control study conducted in Rasht, 85 siblings of children with chronic diseases as the case group and 172 siblings of healthy children as the control group were recruited using cluster sampling. The two groups were matched for age and gender. Data were collected using the Pediatric Quality of Life Inventory (PedsQL TM) and a demographic questionnaire. The collected data were analyzed using Mann-Whitney U, Kruskal-Wallis, and logistic regression analysis tests via SPSS version 16.</p><p><strong>Results: </strong>The mean quality of life scores in the case and control groups were 88.86 ± 10.33 and 87.39 ± 10.89, respectively, indicating a desirable level within both groups. No statistically significant difference was found in this regard between the two groups. Based on the logistic regression analysis, three variables of number of family members (P = 0.03), mother's education level (P = 0.025), and family's income level (P = 0.023) were identified as significant predictors of quality of life. In this regard, it was found that the number of family members and the mother's education level were positively related to the quality of life, increasing the mean scores by 2.32 and 1.48, respectively. Conversely, a higher family income level was associated with a decrease in quality of life scores by 0.543.</p><p><strong>Conclusions: </strong>The study found that the quality of life among siblings of children with chronic diseases is good, comparable to that of their peers. The findings imply that the chronicity of the disease does not significantly impair siblings' adaptation and overall well-being.</p><p><strong>Practice implications: </strong>The findings of this study can be used in various fields, including healthcare management, nursing clinical services, nursing education, and nursing research.</p>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-08-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142094003","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Association of nurse–mother partnerships with parenting stress and family resilience among South Korean mothers of children with congenital heart disease","authors":"","doi":"10.1016/j.pedn.2024.08.021","DOIUrl":"10.1016/j.pedn.2024.08.021","url":null,"abstract":"<div><h3>Purpose</h3><p>Advances in the management of congenital heart disease (CHD) have significantly decreased mortality rates, indicating a need for continuous care as a chronic condition throughout the child's lifespan. This study examined the association of nurse–mother partnerships with parenting stress and family resilience among South Korean mothers of children with CHD.</p></div><div><h3>Design and methods</h3><p>This descriptive study involved 93 mothers of children aged six years or younger with CHD admitted to a hospital. Data were collected from September to November 2020 and analyzed using SPSS/WIN (version 29.0) for <em>t</em>-tests, analyses of variance, Pearson's correlation coefficient, and multiple regression analyses.</p></div><div><h3>Results</h3><p>The means and standard deviations of the nurse<strong>–</strong>mother partnership, parenting stress, and family resilience were 4.13 ± 0.47, 76.98 ± 16.6, and 56.54 ± 7.86 points, respectively. Parenting stress increased as the number of hospitalizations and surgeries increased and with complex types of CHD. Nurse–mother partnerships were stronger with longer hospital stays. Family resilience was higher with younger children, fewer rehospitalizations, and shorter hospital stays. A positive correlation was found between nurse–mother partnerships and family resilience, and a negative correlation between parenting stress and family resilience. Factors influencing parenting stress included family resilience, rehospitalizations, and complex types of CHD, and those affecting family resilience were nurse–mother partnerships, parenting stress, and the child's age.</p></div><div><h3>Conclusion</h3><p>Nurse–mother partnerships significantly affect family resilience.</p></div><div><h3>Practical implications</h3><p>Enhancing nurse–mother partnerships can improve family resilience, which in turn can reduce parenting stress, thus offering guidance for future nursing interventions.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142076024","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The lived experience of mothers caring for school-age children with Pompe disease: A qualitative study","authors":"","doi":"10.1016/j.pedn.2024.08.008","DOIUrl":"10.1016/j.pedn.2024.08.008","url":null,"abstract":"<div><h3>Purpose</h3><p>To explore the lived experiences of mothers caring for school-age children with Pompe disease.</p></div><div><h3>Design and methods</h3><p>A qualitative study using a descriptive phenomenology approach. Semi-structured interviews were conducted from October to December 2022 with 10 mothers of school-age children diagnosed with Pompe disease, which were identified through the Taiwan Pompe Disease Association. Colaizzi's phenomenological method was employed for data analysis.</p></div><div><h3>Results</h3><p>The study identified five themes in the caregiving experiences of mothers: 1. unwavering parenting beliefs; 2. child-centric approach; 3. focus on peer relationships and coping strategies; 4. integration of learning, treatment, and rehabilitation; and 5. embracing and navigating life's challenges. Mothers balanced education, treatment, and rehabilitation for their children with Pompe disease, offering perspectives into the caregiving experience.</p></div><div><h3>Conclusions</h3><p>This study highlights the complex experiences of mothers caring for children with Pompe disease, emphasizing the importance of comprehensive support.</p></div><div><h3>Practice implications</h3><p>Insights into the perspectives of mothers can aid health-care professionals in understanding the challenges faced by families with children diagnosed with Pompe disease and can enable the development of strategies for providing comprehensive psychological support to improve mental health outcomes for these children and their families. Increased awareness among health-care professionals and in the society leads to an informed and empathetic approach to addressing the unique challenges faced by children with Pompe disease and their families.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142076025","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Associations of health literacy and sleep quality with depressive symptoms in Turkish adolescents: A descriptive cross-sectional study","authors":"","doi":"10.1016/j.pedn.2024.08.017","DOIUrl":"10.1016/j.pedn.2024.08.017","url":null,"abstract":"<div><h3>Purpose</h3><p>The purpose of this study was to determine the associations of health literacy and sleep quality with depressive symptoms in adolescents.</p></div><div><h3>Design and methods</h3><p>This descriptive cross-sectional study was conducted with 1081 high school students in Turkey. The data were collected online using the Health Literacy for School-Aged Children Scale, Pittsburg Sleep Quality Index, and the Center for Epidemiological Studies Depression Scale for Children. The chi-square test and binary logistic regression analysis were used to analyze the data obtained from the scales.</p></div><div><h3>Results</h3><p>The prevalence of depressive symptoms, sleep problems, and low health literacy was 78.4%, 70.6%, and 11.3%, respectively. Sleep problems were significantly positively correlated with depressive symptoms (OR = 4.187, 95% CI: 2.998 —5.848). The students who were experiencing sleep problems and had low health literacy were at risk of the most severe depressive symptoms (OR = 12.696, 95% CI: 5.122—31.474).</p></div><div><h3>Conclusions</h3><p>Overall, depressive symptoms and sleep problems were common among the adolescents in the study sample. The students who had sleep problems and low health literacy were at an increased risk for depressive symptoms.</p></div><div><h3>Practical implications</h3><p>To prevent mental health problems in adolescents, intervention programs focused on increasing the health literacy levels and improving sleep quality in this population are recommended.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142040200","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Mothers' phubbing behaviors and parental role: A cross-sectional correlational study","authors":"","doi":"10.1016/j.pedn.2024.08.016","DOIUrl":"10.1016/j.pedn.2024.08.016","url":null,"abstract":"<div><h3>Objective</h3><p>This study was conducted to determine the relationship between mothers' phubbing behaviors and the parental role.</p></div><div><h3>Methods</h3><p>The study was conducted as a cross-sectional correlational design with the mothers of 340 babies hospitalized in the pediatric clinics of a training and research hospital in X between March 2023 and September 2023. An introductory information form, the Generic Scale of Phubbing and the Self-Perception of Parental Scale were used in the study. Mothers filled out the data collection forms face to face within 15-20 minutes.</p></div><div><h3>Results</h3><p>It was found that the mean age was 29.65 ± 4.38 years, the mean hours of using social media per day was 6.86 ± 1.64, and the mean hours spent with the baby was 20.40 ± 3.78 for mothers. There was a negative relationship between The Generic Scale of Phubbing- Interpersonal Conflict sub-dimension mean score (−0.264; &lt;0.001), Problem Acknowledgement sub-dimension mean score (−0.118; 0.030) and total mean score (−0.145; 0.007) with the Self-Perception of Parental Scale-Competence sub-dimension mean score.</p></div><div><h3>Conclusion</h3><p>This study found a relationship between mothers' phubbing behavior and their parental roles. It suggests investigating this important issue with different variables.</p></div><div><h3>Implications to practice</h3><p>Pediatric nurses can provide training to reduce mothers' phubbing behaviors or develop practices to change phubbing behaviors.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-08-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142009767","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Transition from the neonatal unit to home: Parents' educational needs to promote their psychological well-being and sleep quality.","authors":"Valérie Lebel, Marilyn Aita, Isabelle Landry, Marie-Josée Martel, Paméla Hamel-Hilaréguy","doi":"10.1016/j.pedn.2024.07.024","DOIUrl":"https://doi.org/10.1016/j.pedn.2024.07.024","url":null,"abstract":"<p><strong>Purpose: </strong>Parents may experience altered psychological well-being and sleep following the discharge of their preterm infant. They also perceive a lack of information from healthcare professionals. This study aims to describe the educational needs of parents regarding their psychological well-being and their sleep quality following their infant's discharge from the neonatal unit.</p><p><strong>Design and methods: </strong>This descriptive quantitative study uses an online survey to assess parental information needs. Multiple parents (n = 87) completed the survey. Descriptive statistics were conducted to report the results of the survey.</p><p><strong>Results: </strong>According to parents, the most helpful information given by health professionals to reduce the stress felt during this period concerned the follow-up of the infant after hospitalization and access to a health professional in case of questions (n = 12; 31.6%). Few parents (n = 17; 19.5%) reported seeing a health professional about their sleep in the past six months. According to 54.8% of parents, none of the information received by health professionals when preparing for their infant's transition home helped improve their sleep quality.</p><p><strong>Conclusion: </strong>After discharge, parents have several information needs that may impact their psychological well-being and the quality of their sleep.</p><p><strong>Practice implications: </strong>Healthcare professionals must address these informational needs before and after discharge from the neonatal unit to enhance the experience of parents during the transition of their preterm infant in the family environment.</p>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141856860","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“It's challenging but not impossible”: Exploring clinical instructors' experiences of child and family centered care in clinical nursing education","authors":"Mohammad Al-Motlaq PhD, RN, CNS, MBS, Associate professor","doi":"10.1016/j.pedn.2024.07.001","DOIUrl":"https://doi.org/10.1016/j.pedn.2024.07.001","url":null,"abstract":"<div><h3>Background</h3><p>Clinical instructors (CIs) assist student nurses within the context of their pediatric clinical education to assimilate into their new roles and develop their own clinical expertise. This involves acquisition of knowledge and skills including the adoption of Child and Family Centered Care (CFCC) principles.</p></div><div><h3>Aims</h3><p>This study explored CIs experiences of CFCC in clinical settings by investigating their views and perceptions of its implementation within the clinical education process.</p></div><div><h3>Methods</h3><p>A mixed-method approach was used. A focus group was employed to collect data from 7 participants recruited from one faculty of nursing. A questionnaire was also completed by 5 participants to enrich the data collection process. Descriptive statistics used to describe their perceived importance of CFCC, and conventional content analysis was used to organize data and identify themes.</p></div><div><h3>Results</h3><p>While quantitative responses revealed discrepant findings, qualitative data resulted in three themes 1) Clinical instructors (CIs) know CFCC, acknowledge its importance, and take action for that 2) Facilitators and challenges of adopting CFCC in clinical education, and 3) CIs approaches to implement CFCC.</p></div><div><h3>Conclusions</h3><p>While CI's were able to facilitate the implementation of CFCC despite the barriers, their whole experience circulated around external factors including the clinical environment and its role in facilitating or hindering the educational process including CFCC implementation.</p></div><div><h3>Implications</h3><p>Program administrators should address clinical instructors concerns regarding barriers to CFCC implementation in clinical practice including the evaluation process. They should also ensure appropriate training is provided for healthcare professionals to enable them to effectively engage in CFCC.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-07-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141540918","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Digital education–supported telehealth intervention in mothers of children with tracheostomy: A quasi-experimental study","authors":"Elif Gözetici ,&nbsp;Hatice Dönmez","doi":"10.1016/j.pedn.2024.04.047","DOIUrl":"10.1016/j.pedn.2024.04.047","url":null,"abstract":"<div><h3>Purpose</h3><p>The burden of care is high for parents of children with special care needs. Mothers need to be supported in home care to reduce the burden of care. This study aimed to determine the effects of providing digital education–supported telehealth application to mothers of children with tracheostomy receiving home care on the development of complications, hospital admission, care burden, and knowledge level of mothers.</p></div><div><h3>Design and methods</h3><p>A one-group quasi-experimental, pretest–posttest study. The study was conducted with mothers of children with tracheostomy in the pediatric pulmonology outpatient clinic of a university hospital (<em>n</em> = 37). Digital education–supported telehealth application was provided to mothers. The digitally assisted education intervention lasted 6 weeks. Data were collected using the Child and Mother Identification Form, Complication Development Follow-up Form, Hospital Admission Follow-up Form, Caregiver Burden Scale (CBS), and Tracheostomy Care Knowledge Evaluation Questionnaire. The data were collected at three time points: before, immediately after, and 3 months after the education. For data analysis, repeated-measures analysis of variance and the Shapiro–Wilk, Friedman's, and Cochran's Q tests were used.</p></div><div><h3>Results</h3><p>In the study, 51% of the mothers were aged between 31 and 40 years; 56% of children were male and 37% were aged ≤3 years. A total of 62% of children aged ≥25 months received respiratory support through home care with tracheostomy and mechanical ventilator. There was no significant difference between the mean number of complications (<em>p</em> = 0.286) and number of hospital admissions (<em>p</em> = 0.079) in the pretest, posttest, and follow-up measurements. The mean CBS score of the mothers decreased in the pretest (36.08 ± 12.04), posttest (33.27 ± 9.58), and follow-up (32.76 ± 11.18) measurements; however, there was no significant difference (<em>p</em> = 0.058). The mean Tracheostomy Care Knowledge Level posttest (13.73 ± 1.28) and follow-up (13.97 ± 1.14) scores increased significantly compared with the pretest (12.14 ± 1.55) scores (<em>p</em> &lt; 0.001).</p></div><div><h3>Conclusions</h3><p>The digital education–supported telehealth application provided to mothers reduced their care burden and increased their knowledge level. There was no change in the number of complications and hospital admissions.</p></div><div><h3>Practice implications</h3><p>Digital education–supported telehealth intervention, applied to parents of children requiring special care, is an effective and easy-to-access nursing intervention in reducing the burden of care.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140904315","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}