Journal of Pediatric Nursing-Nursing Care of Children & Families最新文献

{"title":"Management of spinal muscular atrophy: nursing clinical commentary and best practices update.","authors":"Elena Gotti, Giusy Bruscino, Claudia Carta, Patrizia Cellamare, Laura Cosma, Elena Mangia, Monica Fontana, Paola Genzone, Nicolaia Palumbo, Maria Cristina Pellegrino, Emilia Rufini, Viola Sangiorgi, Franca Sarracino, Chiara Bravetti","doi":"10.1016/j.pedn.2026.04.017","DOIUrl":"https://doi.org/10.1016/j.pedn.2026.04.017","url":null,"abstract":"<p><strong>Background: </strong>Spinal muscular atrophy (SMA) is a rare neuromuscular disorder that has seen a paradigm shift in its management due to early diagnostic strategies, disease-modifying therapies, and integrated care models. Despite these advances, the nursing role - essential across the care continuum - remains underrepresented in clinical protocols and guidelines.</p><p><strong>Main body: </strong>This Clinical commentary, authored by Italian nurses with direct expertise in SMA care, outlines the key responsibilities, practices, and procedural frameworks that define specialized nursing contributions. Nurses are involved from the earliest phases of care, including neonatal screening and diagnostic communication, and extend their role into the long-term home-based management of children with SMA. Responsibilities include administering and monitoring advanced therapies (onasemnogene abeparvovec, nusinersen, risdiplam), delivering therapeutic education, managing care transitions, and maintaining consistent family engagement. Emphasis is placed on nurses as coordinators of care, clinical educators, and relational anchors. Structured follow-up flowcharts for each therapy illustrate the clinical and educational dimensions of nursing practice. The paper highlights the need for specialized training and standardized roles - such as nurse case managers - as well as for health systems to track nursing-sensitive outcomes.</p><p><strong>Conclusion: </strong>The integration of specialized nursing into SMA care is not only ethically and clinically warranted-it is essential to achieving sustainable, equitable, and high-quality outcomes for patients and families. This paper calls for the formal recognition of nursing as a core component of multidisciplinary SMA care teams.</p>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":""},"PeriodicalIF":2.3,"publicationDate":"2026-05-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147844739","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“I don't think either of us have really got over the diagnosis.” Caregiver perspectives on medical trauma in adolescent type 1 diabetes; a trauma-informed qualitative investigation","authors":"Sara Coombs ,&nbsp;Rigel Paciente ,&nbsp;Karen Lombardi ,&nbsp;Helen Milroy ,&nbsp;Jeneva Ohan ,&nbsp;Keely Bebbington ,&nbsp;Heather C. Roby ,&nbsp;Craig E. Taplin ,&nbsp;Nicole Hanna ,&nbsp;Stella Rose ,&nbsp;Alix Woolard","doi":"10.1016/j.pedn.2026.02.005","DOIUrl":"10.1016/j.pedn.2026.02.005","url":null,"abstract":"<div><h3>Purpose</h3><div>Type 1 Diabetes (T1D) is a ‘family illness’; diagnoses and management can be perceived as invasive or traumatic. Caregivers bear the brunt of the diagnostic shock, influencing their child's experience. Children and adolescents may grapple with the psychological effects of past/ongoing medical trauma. Additionally, adolescents may struggle with their mental health as they navigate tensions between caregiver involvement and their developmental need for autonomy. Despite this, limited research addresses the interplay between adolescent and caregiver mental health. This study sought to explore caregivers' perspectives of their adolescent's T1D-related mental health experience, using paediatric medical traumatic stress as a theoretical framework.</div></div><div><h3>Design and methods</h3><div>A descriptive qualitative approach using reflexive thematic analysis was implemented through online semi-structured focus groups and interviews with caregivers (<em>n</em> = 9) of adolescents (aged 10–19 years) with T1D diagnosed before age 18.</div></div><div><h3>Results</h3><div>Four themes were identified: 1) perceived trauma, shock and adjustment in early stages; 2) support is important for healing; 3) caregiver difficulty relinquishing control; and 4) adolescent struggle with T1D. Caregivers reported their child's stoicism as characteristic of early stages, while adolescence was described as a period of waning resilience. Unresolved trauma often resurfaced during the transition of management responsibility, revealing caregiver hypervigilance and adolescent disengagement.</div></div><div><h3>Conclusions</h3><div>Findings highlight how medical trauma underpins a caregiver and adolescent's T1D-related mental health experience.</div></div><div><h3>Practice implications</h3><div>Findings support the application of a model of paediatric medical trauma to the caregiver and adolescent T1D experience, informing how trauma-sensitive care may be applied in this field.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"88 ","pages":"Pages 22-33"},"PeriodicalIF":2.3,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146193155","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effects of a puppet-assisted house-tree-person test on fear and anxiety in children receiving chemotherapy and associated influencing factors: A projective, quasi-experimental study","authors":"Ilknur KAHRIMAN ,&nbsp;Bahar AKSOY ,&nbsp;Ufuk KANDAZ ,&nbsp;Serpil BORAN ,&nbsp;Berrin GÖGER ,&nbsp;Zila Özlem KIRBAŞ","doi":"10.1016/j.pedn.2026.02.007","DOIUrl":"10.1016/j.pedn.2026.02.007","url":null,"abstract":"<div><h3>Objectives</h3><div>This study investigated the effect of the puppet-assisted House-Tree-Person Test (HTP-T) on fear and anxiety levels in children undergoing chemotherapy treatment and the factors influencing these outcomes.</div></div><div><h3>Methods</h3><div>The study employed a one-group pretest–posttest quasi-experimental design combined with HTP-T analysis. The study was conducted with 29 children aged 5–12 years receiving chemotherapy at the pediatric hematology-oncology outpatient clinics of a university hospital in the Eastern Black Sea Region of Türkiye during the 2022–2024 years. Data were collected using “the Demographic Information Form for Children and Parents, the Children's State Anxiety Scale (CSA), the Children's Fear Scale (CFS), and HTP-T\". Data analysis was performed using descriptive statistics, repeated measures ANOVA, and HTP-T analysis.</div></div><div><h3>Results</h3><div>Statistically significant differences were observed in children's mean CSA (F = 3.898, <em>p</em> = 0.026, η2 = 0.122) and CFS (F = 5.313, <em>p</em> = 0.008, η² = 0.159) scores across the pre-treatment, during-treatment, and post-treatment measurements. The HTP-T analysis revealed that children had difficulty regulating anxiety and fear, expressed concerns about family and environmental events, reported feelings of loneliness, and exhibited strong emotional attachment to their families.</div></div><div><h3>Conclusion</h3><div>The study demonstrated that incorporating puppet-assisted HTP-T during chemotherapy contributed to reducing children's fear and anxiety and offered a useful approach for identifying influencing factors.</div></div><div><h3>Implications for nursing practice</h3><div>HTP-T, a therapeutic play technique incorporating puppetry and projective methods, may be effective in reducing fear and anxiety among children undergoing chemotherapy.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"88 ","pages":"Pages 34-43"},"PeriodicalIF":2.3,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146193156","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring the role of virtual nursing in pediatric inpatient settings.","authors":"Ann Spence, Jennifer Baird","doi":"10.1016/j.pedn.2026.01.044","DOIUrl":"10.1016/j.pedn.2026.01.044","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":"697-699"},"PeriodicalIF":2.3,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147436812","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Addressing parental stress: The contribution of nursing care","authors":"Rafaela Reis ,&nbsp;Fernanda Loureiro","doi":"10.1016/j.pedn.2026.02.004","DOIUrl":"10.1016/j.pedn.2026.02.004","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"88 ","pages":"Pages 10-11"},"PeriodicalIF":2.3,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146161803","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Diabetes and diagnostic confusion.","authors":"Chris Yedinak","doi":"10.1016/j.pedn.2026.03.024","DOIUrl":"10.1016/j.pedn.2026.03.024","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":"700-702"},"PeriodicalIF":2.3,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147533603","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Comparing the effects of clinical aromatherapy with rose and peppermint on postoperative pain in children aged 6–12 years: A randomized controlled trial","authors":"Fatemeh Ghasemi ,&nbsp;Zahra Nadri ,&nbsp;Fatemeh Valizadeh ,&nbsp;Rasool Mohammadi ,&nbsp;Hanieh Seifosadat","doi":"10.1016/j.pedn.2026.01.049","DOIUrl":"10.1016/j.pedn.2026.01.049","url":null,"abstract":"<div><h3>Objective</h3><div>Effective postoperative pain management in children is essential. Aromatherapy using rose and peppermint essential oils has been suggested as a complementary approach. This study aimed to compare the effects of inhalation aromatherapy with rose and peppermint essential oils on postoperative pain in children.</div></div><div><h3>Methods</h3><div>This randomized controlled trial was conducted in 2024 at a pediatric surgical center in Tehran, Iran. One hundred children aged 6–12 years undergoing abdominal surgery were randomly allocated to a rose essential oil group (<em>n</em> = 34), a peppermint essential oil group (<em>n</em> = 34), or a control group (<em>n</em> = 32). The intervention groups received inhalation aromatherapy at predetermined postoperative intervals, while the control group received saline pads. Pain intensity was assessed using the Face, Legs, Activity, Cry, Consolability (FLACC) Behavioral Pain Scale. Data were analyzed using chi-square tests, one-way analysis of variance, and repeated-measures analysis of variance with SPSS version 26.</div></div><div><h3>Results</h3><div>Significant differences in mean pain scores were observed between groups at 6, 9, 12, and 16 h post-surgery (<em>P</em> &lt; 0.001). The peppermint group demonstrated lower pain scores compared with the rose group, and both intervention groups had lower pain scores than the control group (<em>P</em> &lt; 0.001).</div></div><div><h3>Conclusion</h3><div>Inhalation aromatherapy with both peppermint and rose essential oils was effective in reducing postoperative pain in children, with greater efficacy observed for peppermint.</div></div><div><h3>Implications for nursing practice</h3><div>Peppermint and rose essential oil aromatherapy can be safely integrated into pediatric postoperative nursing care as supportive, non-pharmacologic interventions to enhance pain management.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"88 ","pages":"Pages 1-9"},"PeriodicalIF":2.3,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146161804","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Corrigendum to 'Development of the observational kangaroo care assessment scale (OKCAS): A validity and reliability study' [Journal of Pediatric Nursing 87 (2026) 479-490].","authors":"Edanur Tar Bolacali, Sibel Kücükoğlu","doi":"10.1016/j.pedn.2026.03.028","DOIUrl":"10.1016/j.pedn.2026.03.028","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":"707"},"PeriodicalIF":2.3,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147533517","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Nurses' moral courage in addressing child maltreatment.","authors":"S Platt, A Winquist, L Lines","doi":"10.1016/j.pedn.2026.03.025","DOIUrl":"10.1016/j.pedn.2026.03.025","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":"A1-A2"},"PeriodicalIF":2.3,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147522507","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effectiveness of exercise interventions for adolescent idiopathic scoliosis: An umbrella review","authors":"Xinchun Wang ,&nbsp;Tongnian Yang ,&nbsp;Hongyu Chen ,&nbsp;Zhihui Li ,&nbsp;Jian Yang ,&nbsp;Yishan Liu","doi":"10.1016/j.pedn.2026.01.050","DOIUrl":"10.1016/j.pedn.2026.01.050","url":null,"abstract":"<div><h3>Background</h3><div>As nonsurgical alternatives, exercise interventions have been widely investigated for the prevention and management of adolescent idiopathic scoliosis (AIS).</div></div><div><h3>Purpose</h3><div>To systematically review the evidence from existing systematic reviews regarding the effects of exercise interventions on AIS.</div></div><div><h3>Methods</h3><div>A comprehensive search was conducted in Scopus, EBSCOHost, PubMed, Web of Science, The Cochrane Library, and China National Knowledge Infrastructure. The search period included studies published between January 2015 and November 2025. Two reviewers independently conducted data extraction and assessed methodological quality using the AMSTAR 2 checklist. This review followed the PRISMA 2020 guidelines and was registered in PROSPERO (CRD420251179072).</div></div><div><h3>Results</h3><div>A total of 14 studies were ultimately included, originating from Spain, China, India, Japan, and the United Kingdom (<em>n</em> = 30,098). Reported health outcomes included improvements in posture and spinal curvature angles, enhanced physical function, and better quality of life among patients. The effects of interventions indicated that moderate-intensity exercise, daily exercise duration exceeding three hours, and outdoor physical activities were associated with significant therapeutic benefits. Among the various programs, integrated therapeutic strategy demonstrated the most favorable overall outcomes.</div></div><div><h3>Conclusion</h3><div>Exercise is an effective intervention that plays a positive role in the prevention and treatment of AIS.</div></div><div><h3>Practical implications</h3><div>Exercise interventions can effectively enhance pediatric nursing care, and their integration into routine clinical practice may offer patients with AIS a more positive healthcare experience.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"88 ","pages":"Pages 12-21"},"PeriodicalIF":2.3,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146161802","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}