Journal of Pediatric Nursing-Nursing Care of Children & Families最新文献

{"title":"Understanding frailty in adolescents with congenital heart disease: A dyadic phenomenological study.","authors":"Ching-I Chen, Chen-Yan Huang, Hung-Tao Chung, Chun-Wei Lu, Ming-Tai Lin, Jou-Kou Wang, Ying-Mei Shu, Chi-Wen Chen","doi":"10.1016/j.pedn.2026.03.001","DOIUrl":"10.1016/j.pedn.2026.03.001","url":null,"abstract":"<p><strong>Purpose: </strong>Adolescents with congenital heart disease (CHD) face multifaceted challenges that may impair development and quality of life, raising concerns about frailty. However, the impact of frailty on their daily functioning remains unclear. This study aimed to understand how adolescents with CHD experience frailty and how their primary caregivers perceive it.</p><p><strong>Design and methods: </strong>A descriptive phenomenological study was conducted using semi-structured interviews with 20 adolescent-caregiver dyads recruited from two medical centers in Taiwan. Adolescents aged 12-18 years with a CHD diagnosis were classified as prefrail or frail based on Fried's frailty criteria. Data were collected between September and October 2023 and analyzed using Colaizzi's method.</p><p><strong>Results: </strong>Six key themes emerged: accumulating physical burden with growth, consequences of energy depletion in daily life, facing unavoidable judgment while striving for normalcy, social disconnection shaped by fatigue and peer perception, adaptive strategies for energy conservation, and supportive relationships enabling emotional growth and autonomy.</p><p><strong>Conclusions: </strong>Frailty in adolescents with CHD affects not only physical health but also identity, autonomy, and social inclusion, highlighting the need for developmentally responsive, relationship-based care.</p><p><strong>Implications for practice: </strong>Nurses play a key role in early detection and coordinated support, emphasizing the importance of age-appropriate assessments and personalized interventions to promote long-term well-being. These findings underscore the value of frailty-informed care in pediatric cardiology and adolescent health nursing.</p>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":"687-696"},"PeriodicalIF":2.3,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147459830","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Translational research - Maintaining resilience despite the psychosocial challenges of coping with children's complex chronic conditions: Adaptation and quality of life.","authors":"Becky J Christian","doi":"10.1016/j.pedn.2026.03.045","DOIUrl":"10.1016/j.pedn.2026.03.045","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":"703-706"},"PeriodicalIF":2.3,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147617101","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Living beyond cancer in childhood and adolescence: A systematic review","authors":"Kyung-Ah Kang ,&nbsp;Shin-Jeong Kim ,&nbsp;In-Hye Song","doi":"10.1016/j.pedn.2026.01.029","DOIUrl":"10.1016/j.pedn.2026.01.029","url":null,"abstract":"<div><h3>Purpose</h3><div>This study aimed to synthesize qualitative evidence on the lived experiences of childhood and adolescent cancer survivors (CACSs), focusing on both challenges and positive transformations after treatment.</div></div><div><h3>Methods</h3><div>A qualitative meta-synthesis was conducted following PRISMA guidelines. Nineteen qualitative studies published between 2015 and 2025 were critically appraised using the Joanna Briggs Institute checklist. Data were analyzed through thematic and content analysis to generate descriptive and analytical themes.</div></div><div><h3>Results</h3><div>Five overarching themes and 21 sub-themes were identified. (1) Returning to school and self-identity: CACSs reported academic disruption, body image concerns, and struggles in peer relationships, but also identity reconstruction and renewed belonging. (2) Endeavor for healthy life: CACSs actively engaged in health-promoting behaviors, self-management, and digital or educational tools. (3) Psychosocial support needs: multidimensional support from family, peers, professionals, and spirituality was crucial. (4) Survivorship-related difficulties: participants expressed fear of relapse, long-term physical and cognitive late effects, and barriers in healthcare, education, and society. (5) Growth, transformation, and positive meaning: CACSs described gratitude, resilience, maturity, and future orientation, reframing cancer as a source of personal growth.</div></div><div><h3>Conclusions</h3><div>CACSs are characterized by both significant challenges and transformative growth. Findings highlight the necessity for tailored, multidimensional interventions addressing education, healthcare, psychosocial support, and resilience-building strategies.</div></div><div><h3>Implications to practice</h3><div>Educational, digital, and psychosocial strategies should be strengthened to enhance school reintegration, self-management, and resilience. This synthesis provides important evidence to inform clinical practice, educational programs, and policy development aimed at improving CACSs' long-term quality of life.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 314-329"},"PeriodicalIF":2.3,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146078316","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The effect of mothers' digital health literacy on fever management: The mediating role of perceived maternal self-efficacy","authors":"Fatoş Uncu PhD, RN ,&nbsp;Hasan Evcimen PhD, RN ,&nbsp;Elanur Bulut MSc, RN","doi":"10.1016/j.pedn.2026.01.004","DOIUrl":"10.1016/j.pedn.2026.01.004","url":null,"abstract":"<div><h3>Aim</h3><div>This study examined the mediating role of perceived maternal parenting self-efficacy in the relationship between digital health literacy and fever management in children.</div></div><div><h3>Methods</h3><div>A cross-sectional design was employed with 408 mothers of children aged 0–6 years in Eastern Turkey. Data collection was conducted through face-to-face interviews in a pediatric outpatient clinic using three validated scales: Digital Health Literacy Scale, Perceived Maternal Parenting Self-Efficacy Questionnaire, and Parent Fever Management Scale. Structural Equation Modeling with maximum likelihood estimation tested the hypothesized mediation model. Model fit was evaluated using multiple indices (χ²/df = 4.060, CFI = 0.911, RMSEA = 0.075), and bootstrapping with 5000 resamples assessed indirect effects.</div></div><div><h3>Results</h3><div>Digital health literacy demonstrated significant positive associations with both fever management (β = 0.284, <em>p</em> = 0.001) and perceived maternal self-efficacy (β = 0.370, <em>p</em> &lt; 0.001). Perceived maternal self-efficacy was a strong predictor of fever management (β = 0.233, p &lt; 0.001). The mediation analysis revealed a significant indirect effect (β = 0.087, 95 % CI [0.043, 0.136], p &lt; 0.001), confirming partial mediation.</div></div><div><h3>Conclusions</h3><div>These findings highlight that digital health literacy influences fever management through dual pathways: directly, and indirectly through its effect on maternal self-efficacy. Healthcare interventions should integrate components that enhance both digital literacy and parenting confidence to optimize child health outcomes.</div></div><div><h3>Practical implications</h3><div>Pediatric nursing practice should incorporate assessments of digital health literacy and implement evidence-based strategies to build maternal competence, ultimately bridging the gap between health knowledge and practice in fever management.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 58-65"},"PeriodicalIF":2.3,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145935750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The relationship between fathers' e-health literacy levels and pediatric fever management: A cross sectional study","authors":"Hilal Kurt Sezer Ph.D., RN ,&nbsp;Funda Gurbuz M.Sc., RN","doi":"10.1016/j.pedn.2025.12.031","DOIUrl":"10.1016/j.pedn.2025.12.031","url":null,"abstract":"<div><h3>Aim</h3><div>Pediatric nurses play a crucial role in promoting fathers' active involvement in managing pediatric fever by enhancing their health literacy behaviors. This study aimed to examine the relationship between fathers' e-health literacy levels and pediatric fever management.</div></div><div><h3>Methods</h3><div>This cross-sectional study was conducted with 155 fathers between February and April 2025. Data were collected using the Demographic Information Form, Parent Fever Management Scale, and <em>E</em>-Health Literacy Scale. Descriptive statistics (frequency, percentage, mean, and standard deviation), independent samples <em>t</em>-test, one-way analysis of variance, multivariate regression analysis, and correlation analysis were used for data collection. Statistical significance was set at <em>p</em> &lt; 0.05.</div></div><div><h3>Results</h3><div>Fathers' mean scores were 30.32 ± 8.19 on the <em>E</em>-Health Literacy Scale and 33.78 ± 5.42 on the Parent Fever Management Scale. A statistically significant positive relationship was found between fathers' e-health literacy and fever management (<em>p</em> &lt; 0.05). The variables related to fathers explained 25 % of the variance in e-health literacy and 42 % of the variance in fever management.</div></div><div><h3>Conclusion</h3><div>The study identified a significant relationship between e-health literacy and fever management. Raising fathers' awareness of accessing reliable health information sources and providing educational support can enhance both e-health literacy and fever management practices.</div></div><div><h3>Practical implications</h3><div>Considering the positive relationship between fathers' e-health literacy and fever management, pediatric nurses have a key responsibility to support fathers through training programs that enable them to obtain accurate and adequate information regarding fever management.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 43-49"},"PeriodicalIF":2.3,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145919025","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Staying true while evolving: The Society of Pediatric Nurses' January 2026–April 2027 strategic plan","authors":"Michaela Lewis DNP, ARNP, CPNP-AC/PC, PMHS, CPN, CPEN, CNE, CNE-cl, VA-BC, CCRN ,&nbsp;Jennifer Baird PhD, MPH, MSW, RN, NEA-BC, NPD-BC, CPN","doi":"10.1016/j.pedn.2025.12.007","DOIUrl":"10.1016/j.pedn.2025.12.007","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 491-492"},"PeriodicalIF":2.3,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147515995","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Impact of caregivers' psychological well-being on mental health and disease management in children with type 1 diabetes: A cross-sectional study using structural equation modeling","authors":"Ridvan Akdogan Ph.D ,&nbsp;Mehmet Emin Düken Ph.D","doi":"10.1016/j.pedn.2026.01.040","DOIUrl":"10.1016/j.pedn.2026.01.040","url":null,"abstract":"<div><h3>Background</h3><div>Childhood type 1 diabetes poses substantial challenges for disease management and psychosocial well-being. Caregivers play a central role in diabetes care, and their psychological distress and caregiving burden may negatively influence children's mental health and illness-related outcomes. This study aimed to examine the associations between caregivers' psychological well-being and caregiving burden and the mental health and illness attitudes of children with type 1 diabetes.</div></div><div><h3>Methods</h3><div>This cross-sectional study included 129 child–caregiver dyads (caregivers were all mothers) of children aged 10–18 years with type 1 diabetes who were followed at a pediatric endocrinology outpatient clinic in Turkey. Data were collected using validated questionnaires and analyzed using structural equation modeling.</div></div><div><h3>Results</h3><div>Caregivers' depression, anxiety, stress, and caregiving burden were significantly associated with children's emotional, behavioral, and social difficulties (<em>r</em> = 0.51–0.77, <em>p</em> &lt; 0.001). Structural equation modeling supported a sequential pathway in which caregiving burden predicted parental psychological distress, which in turn influenced children's illness attitudes and psychosocial outcomes (β = 0.52–0.66, <em>p</em> &lt; 0.001).</div></div><div><h3>Conclusion</h3><div>Caregiver mental health plays a critical role in children's illness perception and psychosocial adjustment. Supporting caregivers may indirectly improve coping and psychosocial well-being in children with type 1 diabetes.</div></div><div><h3>Practice implications</h3><div>Pediatric and family nurses should incorporate caregiver psychological assessment and support into diabetes management. Family-centered interventions addressing caregiver distress and burden may enhance children's coping capacity, illness attitudes, and psychosocial well-being.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 374-380"},"PeriodicalIF":2.3,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146121090","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"School needs of children with chronic illnesses: A phenomenological study in Turkiye","authors":"Ayşe Dilara Sal ,&nbsp;Türkan Doğan","doi":"10.1016/j.pedn.2026.02.003","DOIUrl":"10.1016/j.pedn.2026.02.003","url":null,"abstract":"<div><h3>Purpose</h3><div>This study explores the experiences of school-age children with chronic illnesses in Türkiye.</div></div><div><h3>Method</h3><div>The sample consisted of 27 students aged 8–14 in Türkiye: nine with type 1 diabetes, eight with asthma, eight with allergies, and two with epilepsy. Data were collected through semi-structured interviews using a form developed by the researcher and analyzed via Interpretative Phenomenological Analysis.</div></div><div><h3>Results</h3><div>The analysis revealed six categories: (1) school, (2) psychosocial factors, (3) friends, (4) teachers, (5) family, and (6) information and support resources.</div></div><div><h3>Conclusion</h3><div>Students reported the need for supportive relationships and open communication for illness management. Concerns about school absenteeism during the diagnosis and treatment periods were common, with a call for greater tolerance from school personnel. Worries about the future—especially regarding careers—were frequently expressed. Some participants experienced peer bullying and expected counselor intervention, yet most had not received support due to a lack of counselor awareness. Mothers were typically identified as the main caregivers, and children expressed both gratitude and guilt. <em>Implications for practice:</em> Action plans involving all stakeholders should be developed for the management of chronic illnesses in schools, and school counseling services should be made more inclusive in order to provide psychosocial support to children.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 468-478"},"PeriodicalIF":2.3,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146182831","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development of the observational kangaroo care assessment scale (OKCAS): A validity and reliability study","authors":"Edanur Tar Bolacali ,&nbsp;Sibel Kücükoğlu","doi":"10.1016/j.pedn.2026.01.048","DOIUrl":"10.1016/j.pedn.2026.01.048","url":null,"abstract":"<div><h3>Purpose</h3><div>This study aimed to develop the Observational Kangaroo Care Assessment Scale (OKCAS) and evaluate its psychometric properties.</div></div><div><h3>Design and methods</h3><div>This methodological study was conducted with 562 newborns and their families who received care and treatment in the obstetrics and gynecology department of a university hospital. Data were collected using the “Family and Newborn Identification Information Form” and “OKCAS,” “The Kangaroo Care Comfort Scale (KCCS),” and “The Newborn Comfort Behavior Scale (COMFORTneo).” In the psychometric analysis of the scale, content validity, exploratory and confirmatory factor analysis, Cronbach's alpha coefficient, and McDonald's Omega coefficient were evaluated. Additionally, inter-observer reliability was determined using the Intraclass Correlation Coefficient (ICC).</div></div><div><h3>Results</h3><div>For OKCAS, <em>KMO</em> = 0.955 and Bartlett's test <em>χ</em>^<em>2</em> = 1772.423, <em>p</em> &lt; 0.001 were found. As a result of Exploratory Factor Analysis, it was determined that the scale showed a single-factor structure; the eigenvalue was 6.259 and the total variance explained was 62.594%. In the confirmatory analysis, the model fit indices were calculated as <em>χ</em>^<em>2</em> = 83.359, <em>df</em> = 35, <em>χ</em>^<em>2</em><em>/df</em> = 2.382, <em>RMSEA</em> = 0.070, <em>NFI</em> = 0.949, <em>CFI</em> = 0.970, <em>IFI</em> <em>=</em> 0.970, <em>TLI</em> = 0.961, and <em>GFI</em> = 0.944. The scale has high internal consistency (Cronbach <em>α</em> = 0.928; McDonald <em>ω</em> = 0.929). Spearman-Brown = 0.928, Guttman = 0.925, and the two-half correlation is <em>r</em> = 0.966. The ICC value for agreement between two observers is 0.962.</div></div><div><h3>Conclusions</h3><div>Findings indicated that the developed scale is a valid and reliable tool. The scale will enable the objective assessment of the position in which kangaroo care is implemented effectively.</div></div><div><h3>Implications for practice</h3><div>During OKCAS kangaroo care, it determines the appropriate position for the comfort and health of the kangaroo caregiver and newborns.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 479-490"},"PeriodicalIF":2.3,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146188850","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The lived experiences of parents of children with cerebral palsy. A phenomenological study in a tertiary care facility, Ghana","authors":"Ruth Nkpezah Nimota ,&nbsp;Ndekugri Damata Huldah Atame ,&nbsp;Kennedy Diema Konlan","doi":"10.1016/j.pedn.2026.01.001","DOIUrl":"10.1016/j.pedn.2026.01.001","url":null,"abstract":"<div><h3>Introduction</h3><div>Cerebral palsy is a group of permanent movement disorders that appear in early childhood, affecting muscle tone, posture, and movement. This study explored the lived experiences of parents of children with cerebral palsy.</div></div><div><h3>Method</h3><div>A phenomenological qualitative research approach was used to collect data from parents of children with cerebral palsy. Interviews were conducted with purposely selected parents of children until data saturation at the 13th interview. Data was analysed using thematic analysis. Four themes were identified and included: 1) burden of caring for children with cerebral palsy, 2) impact of diagnosis on family and other socioeconomic factors, 3) coping mechanisms and support systems, and 4) factors influencing care experience.</div></div><div><h3>Results</h3><div>Parents reported significant physical, emotional, and financial burdens associated with caring for children with cerebral palsy and relied on personal resilience, support from family and friends, and faith-based practices to manage their stress. Parents reported positive and supportive relationships with healthcare professionals. Access to support groups, community resources, and specialized services varied significantly among participants, impacting their ability to manage their child's condition effectively. Parents with better access to these resources reported a higher quality of life and better coping mechanisms.</div></div><div><h3>Conclusion</h3><div>This study underscores the need for improved healthcare practices and policies to prioritize comprehensive support for families of children with cerebral palsy.</div></div><div><h3>Implications to practice</h3><div>Key strategies for supporting parents of children with cerebral palsy included establishing structured routines, effective planning and organization, prioritising self-care, seeking social support, utilizing professional help, and maintaining flexibility.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"87 ","pages":"Pages 78-87"},"PeriodicalIF":2.3,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145940542","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}