Journal of Pediatric Nursing-Nursing Care of Children & Families最新文献

{"title":"Play-based training program for overcoming hospital fear in children","authors":"Musa Özsavran ,&nbsp;Aleyna Baz ,&nbsp;Cihangir Karakaya","doi":"10.1016/j.pedn.2025.02.016","DOIUrl":"10.1016/j.pedn.2025.02.016","url":null,"abstract":"<div><h3>Purpose</h3><div>Whether or not they have had medical procedures in hospitals before, children experience fear of medical procedures performed in hospitals or in general. These children need to be given information about the medical procedures or general procedures performed in the hospital in an effective way through different methods. One of these methods is play. This study aims to determine the effect of play-based training program on the fear of medical procedures in healthy children aged 7–12 years.</div></div><div><h3>Design and methods</h3><div>The research was conducted in an intervention with the control group. The study was conducted with 120 children who met the inclusion criteria in two different primary and secondary schools in Türkiye. Training was given to 60 children in the intervention group for four weeks. Data were collected from both groups using the Medical Procedures Fear Scale at three different stages: pre-training, post-training, and follow-up. Analyses were performed using the SPSS 25 program.</div></div><div><h3>Results</h3><div>It was observed that the control group's post-test and follow-up test medical procedure fear score was greater than that of the intervention group (<em>p</em> &lt; 0.05). Intervention group's post-test and follow-up test medical procedure fear score was more significant than the pre-test (p &lt; 0.05).</div></div><div><h3>Conclusion</h3><div>Play-based hospital fear overcoming training is a method that reduces the fear of medical procedures in healthy children aged 7–12 years. It may benefit children if these training practices are carried out in schools with the co-operation of healthcare professionals.</div></div><div><h3>Practical implications</h3><div>Play-based training programs can be implemented in various healthcare settings to reduce children's fear of medical procedures and improve their overall well-being through collaboration among healthcare professionals and community organizations.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"82 ","pages":"Pages 21-30"},"PeriodicalIF":2.1,"publicationDate":"2025-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143511387","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Parent and pediatric nurse practitioner views on integrating the digital TELL tool intervention into clinical practice.","authors":"Patricia E Hershberger, Kirby Adlam, Martha Driessnack, Valerie Gruss, Harold D Grotevant, Susan C Klock, Lauri Pasch, Agatha M Gallo","doi":"10.1016/j.pedn.2025.02.009","DOIUrl":"https://doi.org/10.1016/j.pedn.2025.02.009","url":null,"abstract":"<p><strong>Purpose: </strong>To understand the views of parent participants in our larger pilot randomized controlled trial (RCT) about the Tool to Empower Parental TeLling and TaLking or the TELL Tool, a digital, psychoeducational and decision-support intervention; and to foster understanding about how pediatric nurse practitioners (PNPs) viewed integrating the TELL Tool into pediatric clinical settings.</p><p><strong>Design and methods: </strong>In this qualitative descriptive study, a purposive sample of 10 parents and 10 PNPs completed in-depth, semi-structured interviews by Zoom. The recordings were auto transcribed, checked for accuracy, and analyzed for themes. The rigorous and accelerated data reduction (RADaR) technique was incorporated into the analytic plan.</p><p><strong>Results: </strong>Five themes emerged following analysis, including Perceptions, Optimal Time for Delivery, Most Appropriate Healthcare Provider to Counsel Parents about Disclosure, Challenges to Administering in Practice, and Recommendations for Implementing the TELL Tool into Pediatric Healthcare Settings.</p><p><strong>Conclusions: </strong>Parents found the TELL Tool to be helpful and PNPs were supportive of incorporating the TELL Tool into clinical practice. Parents thought the TELL Tool increased their confidence about sharing information and appreciated its age-appropriate approach and language. PNPs perceived the tool as supporting their ability to provide anticipatory guidance and counseling/education to families seeking support in beginning and subsequent conversations with their children about their genetic origins.</p><p><strong>Practice implications: </strong>The TELL Tool is an evidence-based intervention that can serve as a resource for PNPs while supporting parents as they navigate challenges about talking with their children about their genetic origins through gamete and embryo donation.</p>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-02-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143524558","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"'I feel like the final missing piece of the puzzle': Examination of pediatric oncology nurses' experiences regarding healing care environment.","authors":"Meltem Gürcan, Emine Kumbul, Münevver Erkul, Sevcan Atay Turan","doi":"10.1016/j.pedn.2025.02.011","DOIUrl":"https://doi.org/10.1016/j.pedn.2025.02.011","url":null,"abstract":"<p><strong>Purpose: </strong>The purpose of this study is to explore pediatric oncology nurses' experiences related to the healing care environment in the pediatric hematology and oncology clinic, guided by Watson's Theory of Human Caring.</p><p><strong>Design and method: </strong>A descriptive qualitative design was used for the present study. Semi-structured interviews were conducted from December 2022 to February 2023. Data were collected through in-depth individual interviews with 16 nurses at a university hospital's pediatric hematology and oncology clinic. A content analysis was performed. The Consolidated Criteria for Reporting Qualitative Research (COREQ) were used to ensure transparent reporting.</p><p><strong>Results: </strong>The analysis identified three main themes, supported by 11 subthemes: 'contribution of healing care behaviors', 'advantages of being a pediatric oncology nurse', and 'barriers to creating a healing environment'.</p><p><strong>Conclusion: </strong>Watson's Theory of Human Caring could provide a useful and practical framework for conceptualizing the experiences of pediatric oncology nurses in the context of a healing care environment. This study revealed that nurses recognize the contributions of healing care behaviors for both patients and their parents. They observed positive effects and received feedback when providing emotional support through their presence. Working in a pediatric oncology clinic provided professional and personal development opportunities. However, nurses encountered challenges in creating a healing care environment, including compassion fatigue, fear of compassion, communication problems, and high workloads.</p><p><strong>Practice implications: </strong>This study revealed the beneficial effects of nurses' caring behaviors in the clinic, emphasizing the critical role these behaviors play in patient outcomes.</p>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-02-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143517150","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Paediatric pain management: Strengthening child and parent voices and partnership for improved care.","authors":"Elizabeth M Forster, Catherine Kotzur, John S Gilmour, Julianne Richards","doi":"10.1016/j.pedn.2025.02.003","DOIUrl":"https://doi.org/10.1016/j.pedn.2025.02.003","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-02-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143477221","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Living with the delusion of autism recovery: A grounded theory study on the experiences of mothers.","authors":"A Elif Işık-Uslu, Zeynep Çetin","doi":"10.1016/j.pedn.2025.02.004","DOIUrl":"https://doi.org/10.1016/j.pedn.2025.02.004","url":null,"abstract":"<p><strong>Purpose: </strong>This study employs Charmaz's (2014) constructivist Grounded Theory (GT) approach to explore and construct a theory about the experiences of mothers raising children diagnosed with autism spectrum disorder (ASD).</p><p><strong>Methods: </strong>Data were collected over 1.5 years from online forum posts written by 10 mothers and in-depth qualitative interviews conducted with nine mothers. During the theoretical sampling phase, an additional four mothers were interviewed face-to-face. The analysis adhered to Charmaz's constructivist GT methodology, encompassing initial coding, focused coding, and theoretical coding.</p><p><strong>Results: </strong>The study introduces the grounded theory, \"Living with the Delusion of Autism Recovery,\" which encapsulates mothers' oscillation between hope and despair as they navigate their children's developmental journeys. This longitudinal analysis traces mothers' experiences from the pre-diagnosis phase through special education, addressing a significant gap in the literature by examining the progression of experiences rather than isolated moments.</p><p><strong>Conclusions: </strong>The findings underscore the urgent need for timely interventions and robust support systems. Delays in diagnosis, driven by healthcare professionals' reluctance to diagnose early and the lack of a formal early intervention system, exacerbate developmental challenges. This research provides a unique contribution to the literature by centering on the experiences of Turkish mothers, shedding light on cultural nuances and the dynamic nature of parenting a child with ASD in Türkiye. It is notable as the first study of its kind in Türkiye, offering invaluable insights into the evolving experiences of these mothers.</p>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-02-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143469737","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"PENS updated position statement on stimulation testing.","authors":"Meg F Keil, Erika McCann, Amy Gilliland","doi":"10.1016/j.pedn.2025.02.001","DOIUrl":"https://doi.org/10.1016/j.pedn.2025.02.001","url":null,"abstract":"<p><p>The Pediatric Endocrinology Nursing Society (PENS) is committed to the advancement of the art and science of pediatric endocrinology nursing. Stimulation (provocative) testing is an important part of the endocrine clinical evaluation of children and adolescents to assess the function of the hypothalamic pituitary adrenal and gonadal axes and determine appropriate treatment. PENS recognizes that nurses have a critical role as advocates for safe and reliable stimulation testing to produce valid clinical results to guide the treatment of endocrine disorders in children. This position statement outlines recommendations for healthcare facilities to provide safe, high quality, culturally sensitive, family-centered care that promotes the well-being and development of the child and supports exceptional pediatric nursing care for endocrine stimulation testing.</p>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143460122","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Healing ceilings: A collaborative exploration of pediatric preferences in ceiling tile artwork.","authors":"Katherine S Biddle, Lia M Boggs, Melissa L Wolfe, Sarah Rogers, Cindy M Petersen, Katrina King-Singh, Elizabeth Pearce, Skyler D Prowten, Christine Fish-Huson","doi":"10.1016/j.pedn.2025.02.005","DOIUrl":"https://doi.org/10.1016/j.pedn.2025.02.005","url":null,"abstract":"<p><strong>Aim: </strong>While incorporating artwork within healthcare settings can improve health outcomes, limited research exists to guide art selection for pediatric patients. This study aimed to improve an ongoing collaboration between a healthcare system and local art museum through which community members painted 100 custom ceiling tiles for display in pediatric clinical areas. The researchers sought to determine if artwork content and/or color tone impacted patient experience and/or preference of artwork.</p><p><strong>Methods: </strong>Nursing directors surveyed 65 patients within the healthcare system's children's hospital on their experiences and preferences of ceiling tile artwork. Patients in \"young\" (4-7 years), \"middle\" (8-11 years), and \"older\" (12-17 years) age groups were asked whether they felt \"better,\" \"worse,\" or \"no different\" when viewing images within each of six artwork content categories and three color tone categories. Patients who felt \"better\" were invited to complete the Five Degrees of Happiness Scale to determine preference of artwork content and color tone.</p><p><strong>Results: </strong>Overall, patients responded positively to viewing the images. The most positive experience resulted from artwork featuring realistic nature, realistic animal, and cartoon content. Patients tended to have a more positive experience of and greater preference for bright color tones. Younger children reported the best experience overall.</p><p><strong>Conclusion: </strong>Pediatric patient feedback informed the design and installation of ceiling tiles toward greatest patient experience. Patients' enthusiasm to participate in this study suggests the benefits of involving children's feedback in healthcare design include relational aspects of care.</p>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143460119","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effectiveness of social robots in improving psychological well-being of hospitalised children: A systematic review and meta-analysis","authors":"Xin Yi Or ,&nbsp;Yu Xuan Ng ,&nbsp;Yong Shian Goh","doi":"10.1016/j.pedn.2025.01.032","DOIUrl":"10.1016/j.pedn.2025.01.032","url":null,"abstract":"<div><h3>Aim</h3><div>To evaluate the effectiveness of social robots in reducing pain, stress, and anxiety among hospitalised children.</div></div><div><h3>Background</h3><div>Children are often subjected to painful medical procedures during hospitalisation, resulting in pain, stress and anxiety. This can have significant implications for a child's psychological and overall well-being. Therefore, it is essential to alleviate these emotions among hospitalised children.</div></div><div><h3>Methods</h3><div>The review included studies involving hospitalised children ages 1–12 who underwent any medical procedure and received interventions involving social robots. Six databases were searched for articles published on the review topic. The search timeline was from January 2013 to January 2024. The included studies need to assess the effectiveness of the robots in improving primary outcomes such as pain, stress, distress, or anxiety levels. A meta-analysis of these variables was conducted.</div></div><div><h3>Results</h3><div>The meta-analysis of 313 participants found that social robots had a standardised mean difference (SMD) of −0.10 (95 % CI: −0.41 to 0.22, <em>P</em> = 0.54) in reducing pain, indicating no significant effect. For stress and distress, with a total of 309 participants, the SMD was −0.33 (95 % CI: −0.62 to −0.03, <em>P</em> = 0.003), and for anxiety, including 335 participants, the SMD was −0.42 (95 % CI: −0.73 to −0.10, <em>P</em> = 0.09). These findings suggest that while social robots are not effective in reducing pain, however, they are effective in lowering stress and anxiety levels in hospitalised children undergoing painful medical procedures.</div></div><div><h3>Conclusion</h3><div>This review highlights the efficacy of social robots when introduced to hospitalised children who are undergoing painful medical procedures. Nurses could consider integrating social robots into patient care protocols, which would yield advantages for anxious young children and their parents, as social robots help improving the child's psychological and overall well-being during medical procedures.</div></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":"82 ","pages":"Pages 11-20"},"PeriodicalIF":2.1,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143428038","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Relationship of caregiving burden and adaptive behaviors in mothers of children with chronic diseases.","authors":"Zahra Hosseini Chirani, Moluk Pouralizadeh, Yasaman Yaghobi, Ehsan Kazemnejad Leili","doi":"10.1016/j.pedn.2025.02.007","DOIUrl":"https://doi.org/10.1016/j.pedn.2025.02.007","url":null,"abstract":"<p><strong>Introduction: </strong>Mothers of children with chronic diseases, as the main caregivers, face the care burden. The care burden of mothers can affect their adaptive behaviors and lead to the use of inappropriate adaptive behaviors. This study was conducted to determine the relationship between the caregiving burden and adaptive behaviors of mothers of children with chronic diseases.</p><p><strong>Methods: </strong>In this descriptive-analytical cross-sectional study, 238 mothers of children with chronic diseases participated by the convenience sampling method. Data collection tools included a demographic information questionnaire, a zarit care burden questionnaire, and a health matching questionnaire for parents. Data were analyzed using descriptive statistics, t-test, ANOVA, and Pearson analysis in SPSS software version 26.</p><p><strong>Results: </strong>The majority of mothers had a mean age of 34.6 ± 7.6 years. The caregiving burden on the mothers of children with chronic diseases was high (21.95 ± 7.76) and most of the mothers had favorable adaptive behaviors in facing their child's illness (95.14 ± 17.15). The most intensity of the significant correlation was in the pattern of \"family integrity and optimization of the situation\" (P < 0.001, r = -0.434). The mother's illness (P = 0.009, β = 2.874), care of the child with chronic disease only by the mother (P = 0.008, β = 3.142), and immunodeficiency disease of the child (P = 0.021, β = 4.456) positively predicted the caregiving burden.</p><p><strong>Conclusion: </strong>These findings help healthcare systems plan supportive and educational programs for decreasing the caregiving burden and increasing adaptive behaviors in mothers of children with chronic diseases.</p><p><strong>Lay summary: </strong>A cross-sectional study was conducted to determine care burden and adaptive behaviors in mothers with chronically ill children. The results showed that mothers' care burden was high and significantly related to their behavior and adaptation. Mothers had favorable adaptive behaviors.</p>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143450608","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The effect of intolerance of uncertainty, sleep quality, and social support on caregiver burden in parents of children with chronic diseases: A cross-sectional study.","authors":"Furkan Doğaner, Raziye Celen","doi":"10.1016/j.pedn.2025.02.006","DOIUrl":"https://doi.org/10.1016/j.pedn.2025.02.006","url":null,"abstract":"<p><strong>Aim: </strong>This study aims to determine the effect of intolerance of uncertainty, sleep quality, and social support on caregiver burden among parents of children with chronic diseases.</p><p><strong>Methods: </strong>This cross-sectional study was carried out on parents of children with chronic illnesses (n = 144), who were admitted to a medical faculty hospital in Turkey from June 2023 until June 2024. The data collection was conducted using the \"Family Information Form,\" the \"Pittsburgh Sleep Quality Index,\" the \"Multidimensional Scale of Perceived Social Support,\" the \"Intolerance of Uncertainty Scale,\" and the \"Caregiver Burden Scale\". Data were analyzed using Student's t-test, one-way ANOVA, and multiple linear regression analysis.</p><p><strong>Results: </strong>Participants' mean scores were found to be 37.5 ± 14.43 on the Caregiver Burden scale, 8.37 ± 3.25 on the Pittsburgh Sleep Quality Index, 66.06 ± 13.87 on the Multidimensional Scale of Perceived Social Support, and 38.97 ± 10.25 on the Intolerance of Uncertainty Scale. Income level (β = 0.252), level of intolerance of uncertainty (β = 0.200), and the number of the child's hospitalizations in the past year (β = 0.266) were significant predictors affecting the caregiver burden.</p><p><strong>Conclusion: </strong>This study revealed that parental caregiver burden was related with intolerance of uncertainty, income status, and the number of the child's hospitalizations.</p>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143450611","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}