自闭症谱系障碍患儿家长的干预依从性及其预测因素

IF 2.3 4区医学 Q2 NURSING

Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-09-25 DOI:10.1016/j.pedn.2025.09.015

Mengyu Cai , Yushen Dai , Mengqi Duan , Miaoying Chen , Yan Ji , Linlin Zhou , Lu Chen , Lifeng Zhang

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引用次数: 0

摘要

目的了解自闭症谱系障碍（ASD）患儿家长的干预依从性，并探讨其预测因素。方法本横断面研究于2022年9月至2023年8月在中国广州某三级医院招募了209名ASD患儿家长。采用治疗依从性量表（TCS）、自闭症行为检查表（ABC）、父母能力感量表（PSOC）和父母压力指数简表（PSI-SF）进行数据收集。采用多元线性回归分析探讨干预依从性的预测因素。结果TCS得分为60.18±12.81，专业治疗、家庭干预和定期随访的项目平均得分分别为3.73±1.02、2.98±0.80和3.65±0.93。多元线性回归分析显示，父亲受教育程度（β = 0.272, P < 0.01）、母亲每日与孩子相处时间（β = 0.257, P < 0.05）、ABC感觉域（β = 0.146, P < 0.05）、父母自我成就感（β = 0.229, P = 0.001）和父母满意度（β = 0.152, P < 0.05）对TCS有显著预测作用，占方差的24.7% [F (P) = 6.256, P < 0.001]。结论ASD患儿家长的干预依从性处于中等水平。父母的自信（自我效能感和满意度）、父亲的受教育程度、母亲与孩子的日常相处时间以及孩子的感觉加工异常显著地预测了依从性。这些发现表明，有针对性的干预措施侧重于增强父母的信心，并根据家庭特征提供量身定制的支持，可能会提高父母的干预依从性。

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Intervention adherence and its predictors among parents of children with autism spectrum disorder

Aims

To investigate the intervention adherence among parents of children with Autism Spectrum Disorder (ASD) and explore its predictors.

Methods

In this cross-sectional study, a total of 209 parents of children with ASD were recruited from a tertiary hospital in Guangzhou, China, from September 2022 to August 2023. Treatment Compliance Scale (TCS), Autism Behavior Checklist (ABC), Parenting Sense of Competence Scale (PSOC), and Parenting Stress Index-Short Form (PSI-SF) were used for data collection. Multiple linear regression analysis was performed to explore the predictors of intervention adherence.

Results

The TCS score was 60.18 ± 12.81, and the item mean scores of professional treatment, family intervention and regular follow-up were 3.73 ± 1.02, 2.98 ± 0.80 and 3.65 ± 0.93, respectively. Multiple linear regression analysis showed that fathers' educational level (β = 0.272, P < 0.01), mothers' daily time with children (β = 0.257, P < 0.05), sensory domain in ABC (β = 0.146, P < 0.05), parenting self-efficacy (β = 0.229, P = 0.001) and parenting satisfaction (β = 0.152, P < 0.05) statistically significantly predicted TCS, accounting for 24.7 % of the variance [F (P) = 6.256, P < 0.001].

Conclusion

Intervention adherence among parents of children with ASD was at a moderate level. Parenting confidence (self-efficacy and satisfaction), fathers' education level, mothers' daily time with children, and children's sensory processing abnormalities significantly predicted adherence. These findings suggest that targeted interventions focusing on enhancing parental confidence and providing tailored support based on family characteristics may improve parents' intervention adherence.

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来源期刊

Journal of Pediatric Nursing-Nursing Care of Children & Families NURSING-PEDIATRICS

CiteScore

3.70

自引率

8.30%

发文量

291

审稿时长

65 days

期刊介绍： Official Journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society (PENS) The Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) is interested in publishing evidence-based practice, quality improvement, theory, and research papers on a variety of topics from US and international authors. JPN is the official journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society. Cecily L. Betz, PhD, RN, FAAN is the Founder and Editor in Chief. Journal content covers the life span from birth to adolescence. Submissions should be pertinent to the nursing care needs of healthy and ill infants, children, and adolescents, addressing their biopsychosocial needs. JPN also features the following regular columns for which authors may submit brief papers: Hot Topics and Technology.