土耳其照顾有特殊保健需要儿童的父母的心理弹性和照顾负担调查：一项横断面研究

IF 2.1 4区医学 Q2 NURSING

Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-05-02 DOI:10.1016/j.pedn.2025.04.022

Ali Ceylan , Ertuğrul Demirdel

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引用次数: 0

摘要

目的本研究旨在调查土耳其照料父母的心理弹性和照料负担。方法记录人口统计学和描述性特征。心理弹性采用简短弹性量表（BRS）评估，照顾负担采用Zarit照顾负担量表（ZCBS）评估。采用独立样本t检验和方差分析Mann-Whitney U检验和Kruskall Wallis检验对数据进行分析。采用事后检验进行多变量方差分析，以确定组间差异。意义p <；接受0.05。结果共有112名护理人员参与研究，其中女性97人，平均年龄39.84±10.73岁。有特殊保健需要儿童的平均年龄为10.83±8.56岁，男性占61.6%，身心残疾占42.9%。在有特殊健康需要的儿童中，41.1%有行动障碍，43.8%有交流问题，44.6%有学习问题，31.3%有营养问题。有特殊保健需要的儿童的行动能力限制、沟通、学习和营养问题水平，以及照顾者是否存在慢性疾病或肌肉骨骼系统问题，被发现与照顾负担有关(p <；0.05)。中度照顾负担者的照顾者心理弹性低于轻度照顾负担者(p <；0.05)。照顾者心理弹性与照顾负担呈负向、中度显著相关(r = - 0.356；p & lt;0.001)。结论应制定新的策略，提高照顾复杂特殊儿童的心理弹性，减轻照顾负担。对实践的启示：通过卫生专业人员的心理和实际护理支持，可以改善照顾有特殊保健需要儿童的护理人员的生活经验。

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Investigation of psychological resilience and care burden of parents caring for children with special healthcare needs in Turkey: A cross-sectional study

Aim

The study was planned to investigate the resilience and care burden of caregiving parents in Turkey.

Methods

Demographic and descriptive characteristics were recorded. Psychological resilience was assessed using the Brief Resilience Scale (BRS) and caregiving burden was assessed using the Zarit Caregiving Burden Scale (ZCBS). Independent Sample t-test and ANOVA Mann-Whitney U and Kruskall Wallis tests were used to analyze the data.Multivariate variance analysis was performed with post-hoc tests to determine the differences between the groups. Significance p < 0.05 was accepted.

Results

A total of 112 caregivers, 97 of whom were women, with a mean age of 39.84 ± 10.73 years, participated in the study. The mean age of with children with special healthcare needs was 10.83 ± 8.56 years, 61.6 % were male, and 42.9 % had both physical and mental disabilities. In children with special health needs, 41.1 % had mobility limitations, 43.8 % had communication problems, 44.6 % had learning problems and 31.3 % had nutritional problems. The level of mobility limitation, communication, learning and nutrition problems in children with special healthcare needs and the presence of chronic disease or musculoskeletal system problems in caregivers were found to be associated with care burden (p < 0.05). Psychological resilience of caregivers of those with moderate care burden was lower than those with mild care burden (p < 0.05). There was a negative, moderately significant relationship between caregivers' psychological resilience and care burden (r = −0.356; p < 0.001).

Conclusion

New strategies should be developed to increase psychological resilience and reduce the burden of care in caregivers of complex children with special healthcare needs.

Implications to practice

The lived experience of caregivers who support children with special healthcare needs can be improved with psychological and practical care support from health professionals.

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来源期刊

Journal of Pediatric Nursing-Nursing Care of Children & Families NURSING-PEDIATRICS

CiteScore

3.70

自引率

8.30%

发文量

291

审稿时长

65 days

期刊介绍： Official Journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society (PENS) The Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) is interested in publishing evidence-based practice, quality improvement, theory, and research papers on a variety of topics from US and international authors. JPN is the official journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society. Cecily L. Betz, PhD, RN, FAAN is the Founder and Editor in Chief. Journal content covers the life span from birth to adolescence. Submissions should be pertinent to the nursing care needs of healthy and ill infants, children, and adolescents, addressing their biopsychosocial needs. JPN also features the following regular columns for which authors may submit brief papers: Hot Topics and Technology.