Journal of Pediatric Nursing-Nursing Care of Children & Families最新文献

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Validation of the Chinese version of the autism spectrum knowledge scale general population version (ASKSG) with a parent sample 自闭症谱系知识量表普通人群版(ASKSG)中文版在家长样本中的验证。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-09-01 DOI: 10.1016/j.pedn.2024.07.009
{"title":"Validation of the Chinese version of the autism spectrum knowledge scale general population version (ASKSG) with a parent sample","authors":"","doi":"10.1016/j.pedn.2024.07.009","DOIUrl":"10.1016/j.pedn.2024.07.009","url":null,"abstract":"<div><h3>Background</h3><p>The early detection and diagnosis of autism spectrum disorder (ASD) in children are a first step in determining follow-up assessments and personalized treatment plans. Parents play an extremely crucial role in children's development; therefore, it is essential to identify a valid and reliable instrument to evaluate the knowledge of parents about ASD. The aim of this study was to translate and determine the psychometric properties of the Autism Spectrum Knowledge Scale General Population Version (ASKSG) with a parent sample.</p></div><div><h3>Design and methods</h3><p>A cross-sectional study was conducted with 858 parents of children aged 0–14 years in China. The demographic characteristics form and ASKSG were used for data collection. The psychometric properties of the ASKSG were evaluated by examining reliability, exploratory factor analysis (EFA), categorical confirmatory factor analysis (CCFA), unidimensionality, person and item reliability, item fit and item difficulty, and item–person mapping.</p></div><div><h3>Results</h3><p>The Cronbach's alpha coefficient of the ASKSG was 0.865. In terms of EFA, principal component analysis revealed a fixed number of five factors, explaining 41.642% of the total variance. For the CCFA, the structure of the thematically derived five-factor model was observed to be a marginal fit to the data. The eigenvalue was 31.00, with a variance of 62.7%. The person reliability was 0.85, and the person separation was 2.38. The item reliability was 1.00, and the item separation was 15.02. The infit and outfit statistical analysis fell within acceptable ranges from 0.75 to 1.35, and the item difficulty ranged from −2.43 to 2.44. An item-person map with excellent targeting would be symmetric along the vertical axis from more difficult endorsement at the top (question 1 and question 20) to easier endorsement at the bottom (question 1). Some items do appear to function differently across sexes, and they assess the latent trait unequally across both sexes.</p></div><div><h3>Conclusions</h3><p>The Chinese version of the ASKSG is a reliable and valid tool for assessing knowledge of parents about ASD.</p></div><div><h3>Practice implications</h3><p>Chinese ASKSG now offers medical professionals and teachers a robust means of assessing parental knowledge about ASD. Therefore, professionals may use the scale to help them screen or identify parents who are in need of additional support or advice.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141761933","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Corrigendum to “The effect of structured supportive approach based on Kolcaba's comfort theory applied to parents of children with cerebral palsy on child's comfort, quality of life, and parent's self-efficacy: A randomised controlled trial” [Journal of Pediatric Nursing / 75 (2024) e65–e74] 基于科尔卡巴舒适理论的结构化支持方法对脑瘫儿童家长在儿童舒适度、生活质量和家长自我效能方面的影响:随机对照试验" [Journal of Pediatric Nursing / 75 (2024) e65-e74]。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-09-01 DOI: 10.1016/j.pedn.2024.07.035
{"title":"Corrigendum to “The effect of structured supportive approach based on Kolcaba's comfort theory applied to parents of children with cerebral palsy on child's comfort, quality of life, and parent's self-efficacy: A randomised controlled trial” [Journal of Pediatric Nursing / 75 (2024) e65–e74]","authors":"","doi":"10.1016/j.pedn.2024.07.035","DOIUrl":"10.1016/j.pedn.2024.07.035","url":null,"abstract":"","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0882596324003002/pdfft?md5=446b483d9526c0fc8c4f04a85415d2be&pid=1-s2.0-S0882596324003002-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141903315","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Transition readiness and coping styles in adolescents with type 1 diabetes 1 型糖尿病青少年的过渡准备和应对方式。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-09-01 DOI: 10.1016/j.pedn.2024.07.023
{"title":"Transition readiness and coping styles in adolescents with type 1 diabetes","authors":"","doi":"10.1016/j.pedn.2024.07.023","DOIUrl":"10.1016/j.pedn.2024.07.023","url":null,"abstract":"<div><h3>Purpose</h3><p>Although promoting positive coping and reducing negative coping improves health, little research has examined how types of coping relate to transition readiness in adolescents with type 1 diabetes (T1D). This study aimed to clarify the direct and indirect relations between coping style and transition readiness. We first examined which coping styles predict transition readiness in adolescents with T1D and then explored whether diabetes distress mediates the relation between disengagement coping and transition readiness.</p></div><div><h3>Design and methods</h3><p>Using a cross-sectional observational design, 68 families with an adolescent with T1D were recruited during routine clinic appointments. Surveys on family demographics, coping styles, transition readiness, and diabetes distress were completed electronically. Medical information was extracted from electronic health records.</p></div><div><h3>Results</h3><p>Neither primary control, secondary control, nor disengagement coping had a direct significant association with transition readiness after controlling for HbA1c. There was a significant indirect effect of disengagement coping on transition readiness through greater diabetes distress (adolescent report β = −0.13; 95% CI, LL = −0.27, UL = −0.02; parent report β = −0.12; 95% CI, LL = −0.26, UL = −0.02).</p></div><div><h3>Conclusions</h3><p>Coping style did not have a direct effect on transition readiness. However, disengagement coping was associated with diabetes distress, which in turn was significantly related to transition readiness.</p></div><div><h3>Practice implications</h3><p>Clinicians and researchers should consider incorporating coping strategies within transition readiness interventions to decrease distress and improve transition readiness. Disease-specific psychosocial screening may enhance routine diabetes transition education.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141914360","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Association between nurse-child communication and family caregivers' global ratings to hospital: a retrospective study 护士与儿童的沟通与家庭护理人员对医院的总体评价之间的关系:一项回顾性研究。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-09-01 DOI: 10.1016/j.pedn.2024.08.004
{"title":"Association between nurse-child communication and family caregivers' global ratings to hospital: a retrospective study","authors":"","doi":"10.1016/j.pedn.2024.08.004","DOIUrl":"10.1016/j.pedn.2024.08.004","url":null,"abstract":"<div><h3>Purpose</h3><p>Effective nurse-child communication is a fundamental aspect of delivering pediatric nursing care. Family caregivers' global ratings to hospital are considered a proxy-reported measure for assessing a child's inpatient stay experience. We investigate the associations between nurse-child communication and family caregivers' global ratings to hospital.</p></div><div><h3>Design and methods</h3><p>A retrospective analysis of a national child patient experience survey data was conducted. Patient experience with nurse-child communication and the family caregivers' global ratings of hospital were measured using the Child Hospital Consumer Assessment of Healthcare Providers and Systems. Hierarchical linear models were constructed to examine the association between nurse-child communication measures and family caregivers' global ratings to hospital.</p></div><div><h3>Results</h3><p>Data from 1010 patients at six National Regional Centers for Pediatric in China were collected. The overall rating of hospitals and the willingness to recommend the hospital showed increasing trends as the nurse-child communication score increased. How often nurses encourage children to ask questions was significantly associated with family caregivers' overall ratings of hospital and the family caregivers' willingness to recommend the hospital.</p></div><div><h3>Conclusions</h3><p>Effective communication by nurses with the child is associated with significantly higher global ratings to the hospital by family caregivers during inpatient care. Encouraging children to ask questions is a promising contributor to caregivers' global ratings to hospital.</p></div><div><h3>Practice implications</h3><p>Pediatric nurses should emphasis encouraging children to ask questions for effective communication in nursing practice. Future research is also needed to develop more targeted strategies to assist pediatric nurse to communicate with child better.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141989281","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family-centered care for child cancer treatment in Ethiopia—A qualitative descriptive study 埃塞俄比亚以家庭为中心的儿童癌症治疗护理--定性描述性研究。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-09-01 DOI: 10.1016/j.pedn.2024.07.030
{"title":"Family-centered care for child cancer treatment in Ethiopia—A qualitative descriptive study","authors":"","doi":"10.1016/j.pedn.2024.07.030","DOIUrl":"10.1016/j.pedn.2024.07.030","url":null,"abstract":"<div><h3>Background</h3><p>Families are the primary source of support and strength in the care process of children with cancer. Family-centered care (FCC) is a healthcare delivery approach that considers parents as both partners and care recipients, characterized by providing care based on dignity and respect, information sharing, participation, and collaboration or partnership.</p></div><div><h3>Aim</h3><p>This study aimed to describe the delivery of care based on the family-centered care approach at the Tikur Anbessa Specialized Hospital pediatric cancer unit.</p></div><div><h3>Method</h3><p>An exploratory, descriptive qualitative study was conducted from March 2023 to August 2023. Eighteen participants (thirteen parents and five health care providers) were interviewed using a semi-structured interview guide. All interviews were audio-recorded, transcribed verbatim, and translated into English. The translated transcripts were used for inductive, data-driven thematic analysis. ATLAS.ti 9 software was used to assist the analysis process.</p></div><div><h3>Result</h3><p>Two themes have emerged during the analysis. These are (1) Information sharing, and (2) Enabling and partnership. Under the information sharing theme, we described parents' understanding of child cancer, parents' information-related expectations, the process of obtaining information, adequacy of information received, and factors inhibiting information sharing. Under the enabling and partnership theme, we presented family participation in childcare, discussion among parents, parents' communication with healthcare providers and psychosocial support.</p></div><div><h3>Conclusion</h3><p>Suboptimal implementation of family-centered care practice was identified at the pediatric oncology unit.</p></div><div><h3>Practice implications</h3><p>The findings from this study indicate the need to strengthen the provision of child cancer-related information, improve communication, and strengthen family participation in childcare.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141861277","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Parent perspectives on education to support hospital discharge for children with invasive mechanical ventilation 家长对有创机械通气患儿出院支持教育的看法。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-09-01 DOI: 10.1016/j.pedn.2024.07.002
{"title":"Parent perspectives on education to support hospital discharge for children with invasive mechanical ventilation","authors":"","doi":"10.1016/j.pedn.2024.07.002","DOIUrl":"10.1016/j.pedn.2024.07.002","url":null,"abstract":"<div><h3>Background</h3><p>Children with invasive mechanical ventilation<span> (IMV) often live at home, but for safety, parents must be prepared to assume primary responsibility for all aspects of their child's medically complex care. Prior studies have described discharge education programs, however often without perspectives of parents with lived experience transitioning home.</span></p></div><div><h3>Purpose</h3><p>To describe parent perspectives on hospital-based education for discharging home a child with IMV.</p></div><div><h3>Design and methods</h3><p>A secondary qualitative analysis of 23 parent interviews between February 2019 to January 2022 on topics related to caring for a child with IMV. Each interview was coded independently and discussed to consensus. Data from codes related to parent education and training were analyzed to identify themes and sub-themes.</p></div><div><h3>Results</h3><p>Parents of 23 children with IMV participated in the primary interviews a month after hospital discharge. Four main themes in the secondary dataset were identified: (1) Training context: The hospital can be a stressful and difficult learning environment; (2) Training characteristics: Parents receive thorough training from interdisciplinary providers; (3) Learner characteristics: Parents are motivated learners who independently seek out knowledge; (4) Post-discharge education: Parents gain confidence in their expertise after navigating an emergency.</p></div><div><h3>Conclusions</h3><p>Parents who have transitioned from hospital-to-home describe sufficiently detailed hospital-based education; many felt trained as capably as nurses. However, parents experienced in-hospital training as inflexible and stressful.</p></div><div><h3>Practice implications</h3><p>Parents of children with IMV are eager learners but parent education is not always family-centered. Reforming the hospital learning environment to match parent needs will improve family experiences and training.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141724835","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effect of different materials used in the removal of orogastric catheter adhesive on the skin in premature babies in Turkey 清除口胃导管粘合剂时使用的不同材料对土耳其早产儿皮肤的影响。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-09-01 DOI: 10.1016/j.pedn.2024.06.026
{"title":"Effect of different materials used in the removal of orogastric catheter adhesive on the skin in premature babies in Turkey","authors":"","doi":"10.1016/j.pedn.2024.06.026","DOIUrl":"10.1016/j.pedn.2024.06.026","url":null,"abstract":"<div><p>Purpose</p><p>To compare the effectiveness of sunflower<span> oil and silicone-based spray used to remove medical adhesives from the orogastric catheter in preventing the skin injury of premature infants in the neonatal intensive care unit.</span></p></div><div><h3>Methods</h3><p>This randomized controlled experimental study was conducted on premature infants, born between 32 and 36 weeks, hospitalized in the Neonatal Intensive Care Unit located in the city center of the Black Sea region. There were 86 participants in the study; 43 were in the control group (silicone-based spray), and 43 were in the intervention group (sunflower oil). The “Neonatal Skin Condition Score Scale” evaluated premature infants' skin.</p></div><div><h3>Results</h3><p>Mean skin condition score of premature infants for whom silicone-based adhesive remover spray was applied was 3.63 ± 0.78, whereas the mean skin condition score measured three hours later was 3.17 ± 0.37. Mean skin condition score of premature infants for whom sunflower oil was applied as a medical adhesive remover was 3.40 ± 0.62, whereas the mean skin condition score measured three hours later was 3.07 ± 0.25. No statistically significant difference was determined between the mean skin condition scores of premature infants in both groups evaluated immediately after removing the medical adhesive and 3 h there after (p<span><math><mo>&gt;</mo><mn>0</mn></math></span>.05).</p></div><div><h3>Conclusions</h3><p>There is no difference between the skin condition of premature infants for whom silicone-based medical adhesive remover spray is used and the skin condition of premature infants for whom sunflower oil is used to remove the orogastric tube adhesive.</p></div><div><h3>Practice implications</h3><p><span>Pediatric nurses should use </span>medical supplies suitable for the skin condition of premature infants and should frequently evaluate the baby's skin condition. Since silicone-based adhesive remover sprays have a risk of toxicity by being absorbed by the skin, it is recommended to use herbal, cost-effective, non-toxic products.</p><p><span>Clinical Trial Number: </span><span><span>NCT06280326</span><svg><path></path></svg></span></p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141545408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Non-pharmacological interventions to reduce procedural needle pain in children (6–12 years): A systematic review 减少儿童(6-12 岁)手术针刺疼痛的非药物干预措施:系统综述。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-09-01 DOI: 10.1016/j.pedn.2024.06.025
{"title":"Non-pharmacological interventions to reduce procedural needle pain in children (6–12 years): A systematic review","authors":"","doi":"10.1016/j.pedn.2024.06.025","DOIUrl":"10.1016/j.pedn.2024.06.025","url":null,"abstract":"<div><h3>Problem</h3><p>Children of different age groups frequently undergo painful procedures involving needles, which can be a source of significant discomfort. Regrettably, this aspect of care often receives insufficient attention from healthcare professionals. The existing literature proposes several methodologies for managing procedural pain, with nonpharmacological techniques being particularly promising. These techniques should be adapted to the patient's age, but literature predominantly emphasizes their use with infants. Thus, it is necessary to evaluate their effectiveness in diverse age groups. Consequently, the purpose of this systematic review is to identify non-pharmacological interventions used to prevent needle-related procedural pain in children (age group 6–12 years).</p></div><div><h3>Eligibility criteria</h3><p>Primary studies in English language on non-pharmacological interventions in children aged 6–12 years undergoing needle-related procedures found on PubMed, CINAHL and Embase.</p></div><div><h3>Sample</h3><p>A total of 18 studies were included.</p></div><div><h3>Results</h3><p>The results indicate the potential application of various non-pharmacological techniques, with distraction methods standing out. These techniques include activities like utilizing cards, watching cartoons, employing virtual reality and playing video games.</p></div><div><h3>Conclusions</h3><p>Children's procedural pain represents a significant challenge in treatment plans. Literature offers several approaches, including nonpharmacologic methods, to control this problem. Prioritizing procedural pain management is critical both at clinical and organizational levels to improve the quality of pediatric care.</p></div><div><h3>Implications</h3><p>These findings offer different options to support clinical practice, holding the potential to enhance the quality of patient care.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0882596324002537/pdfft?md5=effed8a06f4eab90881aafe8425173a2&pid=1-s2.0-S0882596324002537-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141628037","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resilience and challenges: A qualitative exploration of Jordanian Mothers' experiences with children who have cerebral palsy 复原力与挑战:对约旦母亲与脑瘫儿童相处经历的定性研究。
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-09-01 DOI: 10.1016/j.pedn.2024.07.020
{"title":"Resilience and challenges: A qualitative exploration of Jordanian Mothers' experiences with children who have cerebral palsy","authors":"","doi":"10.1016/j.pedn.2024.07.020","DOIUrl":"10.1016/j.pedn.2024.07.020","url":null,"abstract":"<div><h3>Purpose</h3><p>This study aimed to explore the experiences of Jordanian mothers of children with cerebral palsy (CP) in order to better understand the challenges they face while caring for their children.</p></div><div><h3>Design and methods</h3><p>A qualitative descriptive study was applied, using semi-structured face to face interviews with a purposive sample of 10 mothers of children with CP.</p></div><div><h3>Findings</h3><p>Mothers caring for children with CP embark on a challenging journey. <strong><em>Navigating the diagnosis</em></strong> begins with shock and disbelief, followed by emotional struggles as they deal with the new reality. This initial phase also involves <strong><em>caregiving challenges and hardships.</em></strong> Mothers may experience societal stigma and feelings of rejection, which can contribute to social isolation. Additionally, the physical demands of care can lead to financial hardships. These financial constraints can further limit access to specialized care, creating a frustrating cycle for mothers. Throughout this process, mothers demonstrate resilience by <strong><em>adapting to the illness</em></strong>. This encompasses making changes in their lives, actively seeking support, and developing expertise in managing their child's specific needs.</p></div><div><h3>Conclusions</h3><p>The results shed light on the emotional, physical, and social challenges faced by mothers of children with CP. The findings show a narrative of adaptation, resilience, and strength, encompassing adjustments to the diagnosis, substantial life changes, seeking support, and addressing challenges such as social stigma, isolation, and various hardships.</p></div><div><h3>Practice implications</h3><p>Our findings lay the foundation for tailored interventions and empathic support for mothers caring for a child with CP.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141761931","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The mediator role of parenting stress in the effect of stigmatization on burnout in parents of children with autism: A structural equality model 自闭症儿童家长的污名化对职业倦怠的影响中养育压力的中介作用:结构平等模型
IF 2.1 4区 医学
Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2024-09-01 DOI: 10.1016/j.pedn.2024.07.021
{"title":"The mediator role of parenting stress in the effect of stigmatization on burnout in parents of children with autism: A structural equality model","authors":"","doi":"10.1016/j.pedn.2024.07.021","DOIUrl":"10.1016/j.pedn.2024.07.021","url":null,"abstract":"<div><h3>Purpose</h3><p>The purpose of this study was to report on the mediator role of parenting stress in the effect of stigmatization on burnout in parents of children with autism.</p></div><div><h3>Design and methods</h3><p>A descriptive and correlational research design was used in this study. The sample consisted of 146 parents who had children diagnosed with autism spectrum disorder and volunteered to participate in the study. A “Personal Information Form”, the “Parents' Internalized Stigma of Mental Illness Scale”, the “Parenting Stress Scale”, and the “Parental Burnout Assessment” were used for data collection.</p></div><div><h3>Results</h3><p>In the study, it was observed that the feeling of stigmatization increased as the education level increased and that variables such as the ages of the parent and the child and an increase in the number of children requiring care also affected the feeling of stigmatization. Parenting stress was found to have a “partial mediator” role in the effect of stigmatization on parental burnout.</p></div><div><h3>Conclusion</h3><p>Our findings emphasized the heterogeneous correlation between stigmatization, burnout, and stress levels of parents of children with autism.</p></div><div><h3>Practice implications</h3><p>This study has key implications for pediatric nursing practices. Pediatric nurses can educate the community about autism, what issues should be considered, and how to support parents. Furthermore, nurses can introduce parents who have children with autism to each other and direct them to parent-child activities that can regulate their moods.</p></div>","PeriodicalId":48899,"journal":{"name":"Journal of Pediatric Nursing-Nursing Care of Children & Families","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141761932","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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