在污名化的阴影下:有一个特殊需要的孩子对基耶父母的心理影响:一项定性研究

IF 2.3 4区 医学 Q2 NURSING
Merve Şahin , Hava Salik , Savaş Berk , Mustafa Durmuş
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引用次数: 0

摘要

目的本研究旨在深入研究特殊需要儿童的父母所经历的心理影响,以及他们在 rkiye中遭遇的污名化。抚养有特殊需要的孩子对父母来说是相当大的心理和社会挑战。值得注意的是,被污名化的经历会对父母的心理健康产生不利影响,导致排斥和社会孤立。在缅甸,对有特殊需要儿童的父母的污名化经历缺乏科学研究。本研究试图通过对父母经历的深入调查来阐明污名化对心理健康的影响。方法本研究采用解释性现象学分析这一定性研究方法。这项研究是在2025年1月6日至2月28日期间对居住在日本东部的26名父母进行的。访谈是在线进行的,采用半结构化的访谈形式。使用MAXQDA 22程序进行主题内容分析并对获得的数据进行评估。结果从访谈中收集的数据分为六个主题类别:遇到障碍、对父母角色的影响、对障碍的反应、污名化的经历、应对策略和建议的解决方案。结论本研究对特殊需要儿童的父母的污名化经历及其应对策略有重要的发现。结果表明,由于污名化,父母经常感到倦怠、孤独、不称职和被排斥。然而,他们通过社会支持和个人应对机制努力克服这些挑战。研究结果提倡减少污名化,并增加父母获得社会心理支持系统的机会。对护理和卫生政策的影响精神卫生护士和其他卫生保健专业人员必须理解有特殊需要儿童的父母所遇到的污名化经历,并对他们的社会心理支持需求表现出敏感性。应将旨在减少耻辱感的教育方案和提高认识运动纳入卫生保健系统。此外,为有特殊需要儿童的家庭建立心理咨询和支助小组对于防止父母孤立至关重要。保健政策的结构应促进为有特殊需要的儿童及其家庭提供全面和可获得的服务。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
In the shadow of stigmatization: The psychological effects of having a child with special needs on parents in Türkiye: A qualitative research

Aim

This study aimed to conduct an in-depth examination of the psychological effects experienced by parents of children with special needs, as well as their encounters with stigmatization in Türkiye.

Background

Raising children with special needs presents considerable psychological and social challenges for parents. Notably, experiences of stigmatization can adversely affect parents' mental health, leading to exclusion and social isolation. There is a paucity of scientific research on the stigmatizing experiences of parents of children with special needs in Türkiye. This study sought to elucidate the effects of stigmatization on mental health by conducting an in-depth examination of parental experiences.

Methods

This study employed interpretative phenomenological analysis, a qualitative research method. The study was conducted with 26 parents residing in eastern Türkiye from January 6 to February 28, 2025. The interviews were conducted online, using a semi-structured interview form. Thematic content analysis was performed and the data obtained were evaluated using the MAXQDA 22 program.

Results

Data collected from the interviews were systematically analyzed across six thematic categories: meeting the obstacle, impact on the parenting roles, reactions to the obstacle, experiences of stigmatization, coping strategies, and proposed solutions.

Conclusions

This study elucidates significant findings regarding the stigmatization experiences encountered by parents of children with special needs as well as their coping strategies. The results indicated that parents frequently experienced feelings of burnout, loneliness, inadequacy, and exclusion as a consequence of stigmatization. However, they endeavored to overcome these challenges through social support and individual coping mechanisms. The findings advocate for the reduction of stigmatization and enhancement of parents' access to psychosocial support systems.

Implications for nursing and health policy

Mental health nurses and other healthcare professionals must comprehend the stigmatization experiences encountered by parents of children with special needs, and demonstrate sensitivity to their psychosocial support requirements. Educational programs and awareness campaigns aimed at reducing stigma should be integrated into the health care system. Furthermore, the establishment of psychological counseling and support groups for families of children with special needs is essential to prevent parental isolation. Health policies should be structured to promote comprehensive and accessible services for children with special needs and for their families.
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来源期刊
CiteScore
3.70
自引率
8.30%
发文量
291
审稿时长
65 days
期刊介绍: Official Journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society (PENS) The Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) is interested in publishing evidence-based practice, quality improvement, theory, and research papers on a variety of topics from US and international authors. JPN is the official journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society. Cecily L. Betz, PhD, RN, FAAN is the Founder and Editor in Chief. Journal content covers the life span from birth to adolescence. Submissions should be pertinent to the nursing care needs of healthy and ill infants, children, and adolescents, addressing their biopsychosocial needs. JPN also features the following regular columns for which authors may submit brief papers: Hot Topics and Technology.
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