养育1型糖尿病儿童：挑战和社会支持的作用

IF 2.3 4区医学 Q2 NURSING

Journal of Pediatric Nursing-Nursing Care of Children & Families Pub Date : 2025-08-01 DOI:10.1016/j.pedn.2025.07.024

Melike Taşdelen Baş PhD, RN , Hatice Dönmez PhD, RN , Birsel Molu PhD, RN , Funda Özpulat PhD, RN , Beray Selver Eklioğlu MD

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引用次数: 0

摘要

1型糖尿病是一种慢性疾病，通常发生在儿童时期，需要加强日常管理。这种责任不仅影响到孩子，而且给父母带来了相当大的情感和实际压力。社会支持被认为是帮助父母应对这些挑战的关键因素。目的了解1型糖尿病儿童家长所面临的挑战，并探讨这些挑战与他们感知到的社会支持水平之间的关系。方法对0-18岁诊断为1型糖尿病儿童的父母进行描述性横断面研究。数据通过面对面的调查收集，使用“1型糖尿病儿童父母所经历的挑战问卷”和“感知社会支持的多维尺度”。结果家长最担心的是夜间低血糖（95.8%）和害怕低血糖（94%）。父母对注射恐惧的担忧与家庭支持之间存在显著关联（p = 0.013），预防低血糖困难与同伴支持之间存在显著关联（p = 0.035）。总体而言，较高的感知社会支持与较低的疾病管理总体担忧显著相关（p = 0.034）。结论1型糖尿病患儿家长焦虑程度高。来自家庭、同伴和社会网络的感知支持在应对这些挑战时起着保护作用。强烈建议加强社会支持系统，扩大家庭糖尿病教育项目。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Parenting a child with type 1 diabetes: Challenges and the role of social support

Background

Type 1 diabetes is a chronic condition that typically develops in childhood and requires intensive daily management. This responsibility not only affects children but also places considerable emotional and practical strain on parents. Social support is thought to be a key factor in helping parents cope with these challenges.

Objective

This study aims to identify the challenges faced by parents of children with Type 1 diabetes and to explore the relationship between these challenges and their perceived levels of social support.

Methods

A descriptive, cross-sectional study was conducted with parents of children aged 0–18 years diagnosed with Type 1 diabetes. Data were collected via face-to-face surveys using the “Challenges Experienced by Parents of Children with Type 1 Diabetes Questionnaire” and the “Multidimensional Scale of Perceived Social Support.”

Results

Parents reported their greatest concerns as nocturnal hypoglycemia (95.8 %) and fear of hypoglycemia (94 %). A significant association was found between parental concern over fear of injections and family support (p = .013), and between difficulty preventing hypoglycemia and peer support (p = .035). Overall, higher perceived social support was significantly related to lower general concerns about disease management (p = .034).

Conclusion

Parents of children with Type 1 diabetes experience high levels of anxiety. Perceived support from family, peers, and social networks plays a protective role in managing these challenges. Enhancing social support systems and expanding diabetes education programs for families is strongly recommended.

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来源期刊

Journal of Pediatric Nursing-Nursing Care of Children & Families NURSING-PEDIATRICS

CiteScore

3.70

自引率

8.30%

发文量

291

审稿时长

65 days

期刊介绍： Official Journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society (PENS) The Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) is interested in publishing evidence-based practice, quality improvement, theory, and research papers on a variety of topics from US and international authors. JPN is the official journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society. Cecily L. Betz, PhD, RN, FAAN is the Founder and Editor in Chief. Journal content covers the life span from birth to adolescence. Submissions should be pertinent to the nursing care needs of healthy and ill infants, children, and adolescents, addressing their biopsychosocial needs. JPN also features the following regular columns for which authors may submit brief papers: Hot Topics and Technology.