Journal of Eating Disorders最新文献

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Sexual orientation discrimination and eating disorder symptoms in early adolescence: a prospective cohort study. 青春期早期的性取向歧视与饮食失调症状:一项前瞻性队列研究。
IF 3.5 3区 医学
Journal of Eating Disorders Pub Date : 2024-11-29 DOI: 10.1186/s40337-024-01157-y
Jason M Nagata, Thang Diep, Christiane K Helmer, Sydnie K Domingue, Abubakr A Al-Shoaibi, Julia H Raney, Kyle T Ganson, Alexander Testa, Jinbo He, Claire D Brindis, Fiona C Baker
{"title":"Sexual orientation discrimination and eating disorder symptoms in early adolescence: a prospective cohort study.","authors":"Jason M Nagata, Thang Diep, Christiane K Helmer, Sydnie K Domingue, Abubakr A Al-Shoaibi, Julia H Raney, Kyle T Ganson, Alexander Testa, Jinbo He, Claire D Brindis, Fiona C Baker","doi":"10.1186/s40337-024-01157-y","DOIUrl":"10.1186/s40337-024-01157-y","url":null,"abstract":"<p><strong>Background: </strong>Sexual orientation discrimination increases the risks of negative health outcomes for sexual minorities. Previous studies have found increased rates of eating disorder symptoms in sexual minority individuals, which is attributable to minority stress and discrimination that they experience. Emerging research suggests relationships between sexual orientation discrimination and eating disorder symptoms. However, there is a lack of studies focusing on early adolescents. The objective of this study was to determine prospective associations between discrimination based on sexual orientation and eating disorder symptoms in a national sample of 10-13-year-old early adolescents in the U.S.</p><p><strong>Methods: </strong>We examined prospective data from Year 2 (2018-2020) and Year 3 (2019-2021) of the Adolescent Brain Cognitive Development (ABCD) Study (N = 8976). Multiple logistic regression analyses were used to estimate associations between self-reported experiences of sexual orientation discrimination in Year 2 and eating disorder symptoms in Year 3, adjusting for potential confounders, including eating disorder symptoms in Year 2. Sexual orientation discrimination was assessed based on the Perceived Discrimination Scale, which measures adolescents' perception of being treated unfairly based on various sociodemographic characteristics. Eating disorder symptoms were based on the parent-reported Kiddie Schedule for Affective Disorders and Schizophrenia (KSADS-5).</p><p><strong>Results: </strong>In this demographically diverse sample of early adolescents (N = 8976, age range 10-13 years at Year 2), 5.5% of adolescents reported sexual orientation discrimination in Year 2. The prevalence of parent-reported eating disorder symptoms in Year 3 varied from 1.0 to 8.3%. In the adjusted models, sexual orientation discrimination was prospectively associated with worry about weight gain (adjusted odds ratio [aOR] 2.33, 95% confidence interval [CI] 1.15-4.69) and self-worth tied to weight (aOR 1.60, 95% CI 1.01-2.53) one year later.</p><p><strong>Conclusions: </strong>Early adolescents who have experienced sexual orientation discrimination have higher odds of experiencing eating disorder symptoms, particularly worrying about weight gain and tying self-worth to weight. Clinicians may consider screening for sexual orientation discrimination and providing affirmative, trauma-informed care when evaluating and treating even younger sexual minority adolescents for eating disorder symptoms.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":"12 1","pages":"196"},"PeriodicalIF":3.5,"publicationDate":"2024-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11606175/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142755458","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Sociocultural attitudes towards appearance questionnaire-4-revised (SATAQ-4R): validation in a community sample of Norwegian adolescents. 社会文化对外貌的态度问卷-4-修订版(SATAQ-4R):在挪威青少年社区样本中的验证。
IF 3.5 3区 医学
Journal of Eating Disorders Pub Date : 2024-11-28 DOI: 10.1186/s40337-024-01151-4
Selma Øverland Lie, Rafael Valdece Sousa Bastos, Christine Sundgot-Borgen, Line Wisting, Camilla Lindvall Dahlgren
{"title":"Sociocultural attitudes towards appearance questionnaire-4-revised (SATAQ-4R): validation in a community sample of Norwegian adolescents.","authors":"Selma Øverland Lie, Rafael Valdece Sousa Bastos, Christine Sundgot-Borgen, Line Wisting, Camilla Lindvall Dahlgren","doi":"10.1186/s40337-024-01151-4","DOIUrl":"10.1186/s40337-024-01151-4","url":null,"abstract":"<p><strong>Background: </strong>Negative body image and disordered eating are common among adolescents and young adults. The Sociocultural Attitudes Towards Appearance Questionnaire-4-Revised (SATAQ-4R) captures the internalization of societal appearance ideals and perceived pressures from others but has not been validated in a Norwegian adolescent population.</p><p><strong>Methods: </strong>The current study explored the factor structure of SATAQ-4R in a sample of adolescent Norwegian males and females (n = 1558, mean age 17.04 ± 0.95) using confirmatory factor analysis (CFA) for a 6- and 7-factor structure in females, and a 7-factor structure in males. Correlations between subscales, internal consistency and reliability, and comparisons with convergent measures (disordered eating, body mass index, negative influence of social media) were explored.</p><p><strong>Results: </strong>The CFA supported a 7-factor structure of the SATAQ-4R for both males and females. Internal consistency and reliability were acceptable. SATAQ-4R subscales largely correlated with disordered eating and additional convergent measures.</p><p><strong>Conclusions: </strong>Results confirm the structure and reliability of the SATAQ-4R in a Norwegian adolescent population. The subscales showed good convergent validity, and high scores on internalization and societal pressures were related to higher levels of disordered eating and negative social media influence. The Norwegian version of the SATAQ-4R thus demonstrates good psychometric properties in adolescent males and females, and is well suited to capture internalization and sociocultural pressures that particularly affect adolescents. Results highlight the need to continue working towards reducing adverse internalization and improving body image among adolescents.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":"12 1","pages":"195"},"PeriodicalIF":3.5,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11603771/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142752048","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Central pontine myelinolysis in anorexia nervosa: case report of a Chinese adolescent. 神经性厌食症中枢神经髓鞘溶解症:一例中国青少年病例报告。
IF 3.5 3区 医学
Journal of Eating Disorders Pub Date : 2024-11-27 DOI: 10.1186/s40337-024-01154-1
Gaohan Yin, Tianhang Zhou, Qingmei Kong
{"title":"Central pontine myelinolysis in anorexia nervosa: case report of a Chinese adolescent.","authors":"Gaohan Yin, Tianhang Zhou, Qingmei Kong","doi":"10.1186/s40337-024-01154-1","DOIUrl":"10.1186/s40337-024-01154-1","url":null,"abstract":"<p><p>Central pontine myelinolysis (CPM) is a rare neurologic disorder characterized by symmetric demyelination in the central region of pons. Until recently its prognosis was considered poor if not fatal. CPM may manifest as a severe complication of eating disorders, especially anorexia nervosa (AN), primarily due to a rapid correction of hyponatremia. In this report, we presented the case of a 13-year-old girl with a five-month history of AN who exhibited typical CPM brain lesions, confirmed by magnetic resonance imaging (MRI) examination without the context of severe electrolyte imbalances. Surprisingly, despite the patient's critical clinical manifestations in the initial stages, her prognoses of both AN and CPM were relatively optimistic. We discussed these observations in the light of recent reports on CPM and AN comorbidity. Although the clinical implications of MRI-detected lesions remain uncertain, psychiatrists should be cautious about CPM when refeeding patients with AN. Further studies about the relationship between CPM and AN are imperative.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":"12 1","pages":"194"},"PeriodicalIF":3.5,"publicationDate":"2024-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11600743/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142740480","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Probiotics and eating disorders: a systematic review of humans and animal model studies. 益生菌与进食障碍:人类和动物模型研究的系统回顾。
IF 3.5 3区 医学
Journal of Eating Disorders Pub Date : 2024-11-25 DOI: 10.1186/s40337-024-01143-4
Hossein Bahari, Camellia Akhgarjand, Seyedeh Nooshan Mirmohammadali, Mahsa Malekahmadi
{"title":"Probiotics and eating disorders: a systematic review of humans and animal model studies.","authors":"Hossein Bahari, Camellia Akhgarjand, Seyedeh Nooshan Mirmohammadali, Mahsa Malekahmadi","doi":"10.1186/s40337-024-01143-4","DOIUrl":"10.1186/s40337-024-01143-4","url":null,"abstract":"<p><strong>Background: </strong>Eating disorders are complex mental health conditions that significantly impact physical and mental well-being. Current research suggests a potential link between eating disorders and the gut microbiota, highlighting the role of gut-brain communication and its influence on nutrient absorption. Probiotics, which are beneficial bacteria, have shown promise in modulating the gut microbiota and may offer complementary interventions in the treatment of eating disorders.</p><p><strong>Methods: </strong>A comprehensive search was conducted in electronic databases, including PubMed/Medline, Scopus, and Web of Science, from inception to January 2024 to analyze the existing literature on the effects of probiotic supplementation in eating disorders. The search strategy included terms related to probiotics, prebiotics, eating disorders, and food addiction. The human studies were assessed for risk of bias using the Cochrane tool. The quality of animal studies was evaluated using the risk of bias (RoB) tool from the Systematic Review Centre for Laboratory Animal Experimentation.</p><p><strong>Results: </strong>Of the 417 papers, 12 eligible studies were included comprising five animal and seven clinical studies. Clinical trials ranged from 10 to 20 weeks and were randomized and parallel-arm design. The included studies varied in terms of sample characteristics, intervention types, and outcome measures. Preliminary findings suggest that probiotics may influence gut microbiota composition and may offer support in the treatment of eating disorders.</p><p><strong>Conclusions: </strong>The reviewed studies showed that probiotic supplementation may have a role in reducing food addiction and binge eating, and enhancing satiety, regulating food intake as well as positively affecting mood. However, further studies with better quality and larger sample size are needed to further validate these findings.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":"12 1","pages":"193"},"PeriodicalIF":3.5,"publicationDate":"2024-11-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11587709/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142717435","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Growing up in a larger body: youth- and parent-reported triggers for illness and barriers to recovery from anorexia nervosa. 在更大的身体中成长:青少年和家长报告的厌食症发病诱因和康复障碍。
IF 3.5 3区 医学
Journal of Eating Disorders Pub Date : 2024-11-23 DOI: 10.1186/s40337-024-01156-z
Grace B Jhe, Michelle Recto, Julia A Vitagliano, Kelsey L Rose, Tracy Richmond, Melissa Freizinger, Jessica Lin
{"title":"Growing up in a larger body: youth- and parent-reported triggers for illness and barriers to recovery from anorexia nervosa.","authors":"Grace B Jhe, Michelle Recto, Julia A Vitagliano, Kelsey L Rose, Tracy Richmond, Melissa Freizinger, Jessica Lin","doi":"10.1186/s40337-024-01156-z","DOIUrl":"10.1186/s40337-024-01156-z","url":null,"abstract":"<p><strong>Background: </strong>A significant portion of youth with anorexia nervosa (AN) or atypical anorexia nervosa (AAN) have history of 'overweight/obesity' (i.e., body mass index ≥ 85th percentile for age-and-sex) prior to the onset of the eating disorder (ED) diagnosis, but research on this population remains limited. The present study used semi-structured interviews to explore themes related to triggers of weight loss, treatment, and recovery among youth with AN/AAN and history of 'overweight/obesity,' and their parents.</p><p><strong>Method: </strong>The sample included eleven youth and parent dyads (Median [IQR] age of youth = 16.0 (1.5) years, 90.9% female, 90.9% White, 27.3% Hispanic) who were evaluated for an ED in a multidisciplinary ED program at a pediatric hospital between November 2020 and April 2021. Nine youth and separately, nine parents of these 11 dyads completed semi-structured interviews with the research team. Seven matched pairs of patients and parents completed demographic surveys and study interviews. Interviews were recorded, transcribed, and coded by four research team members using a reflexive thematic approach.</p><p><strong>Results: </strong>Weight stigma was the most frequently reported theme for a trigger for weight loss that led to the onset for developing AN/AAN by both youth and parents. Regarding barriers to recovery, themes from more than a half of youth included uncertainty of weight goals in treatment and feeling they are \"not sick enough.\" Notable themes for attitudes towards treatment from most parents included general agreement with clinician recommendations, but also an uncertainty of weight restoration goals and a belief that their child need to have a \"normal\" weight.</p><p><strong>Conclusion: </strong>These results highlighted how the majority of interviewed youth with history of 'overweight/obesity' reported weight stigma as both a trigger for the development of AN/AAN as well as a barrier to recovering. Internalized weight stigma among parents may influence their attitudes towards weight restoration as a treatment goal where these youth and parents may experience uncertainty of weight goals in treatment. This study demonstrated triggers and barriers to treatment that may be unique to youth with ED and history of 'overweight/obesity' and more research is needed to address weight stigma in multidisciplinary ED treatment for this understudied population.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":"12 1","pages":"192"},"PeriodicalIF":3.5,"publicationDate":"2024-11-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11585085/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142695957","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
From fixing to connecting: parents' experiences supporting adult children with eating disorders. 从固定到连接:父母支持患有饮食失调症的成年子女的经验。
IF 3.5 3区 医学
Journal of Eating Disorders Pub Date : 2024-11-23 DOI: 10.1186/s40337-024-01140-7
J Geller, A Fernandes, S Marshall, S Srikameswaran
{"title":"From fixing to connecting: parents' experiences supporting adult children with eating disorders.","authors":"J Geller, A Fernandes, S Marshall, S Srikameswaran","doi":"10.1186/s40337-024-01140-7","DOIUrl":"10.1186/s40337-024-01140-7","url":null,"abstract":"<p><strong>Background: </strong>Unlike evidence-based guidelines that exist for families of youth with eating disorders, little is known about the optimal role for families of adult patients. Given issues of patient autonomy and confidentiality, it is common for family members to report high levels of distress, confusion about how to offer support, and feelings of exclusion. Nevertheless, interactions with parents play a critical role in the recovery process. The purpose of this research was to increase understanding of support experiences of parents of adult children while identifying what they believe to be the most beneficial forms of support.</p><p><strong>Methods: </strong>Sixteen parents of adults who were either recovered or actively engaged in intensive eating disorders treatment participated in semi-structured interviews. Participants were asked to describe the nature of their relationship, beliefs about their child's support needs, and factors that challenged or facilitated their capacity to offer what they deemed as optimal support.</p><p><strong>Results: </strong>In the context of receiving support and practicing self-care, parents' aspiration shifted from fixing the eating disorder to prioritizing a relational goal of unrelenting connection with their child. Achieving this involved three key skills: managing reactions and expectations, learning boundaries, and practicing validation.</p><p><strong>Conclusions: </strong>This research highlights the ongoing challenges faced by parents, indicating that interventions aimed at supporting their own well-being and fostering connection with their child may be of benefit.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":"12 1","pages":"191"},"PeriodicalIF":3.5,"publicationDate":"2024-11-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11585114/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142693770","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correction: The role of impulsivity and binge eating in outpatients with overweight or obesity: an EEG temporal discounting study. 更正:超重或肥胖门诊患者的冲动性和暴饮暴食的作用:脑电图时间折扣研究。
IF 3.5 3区 医学
Journal of Eating Disorders Pub Date : 2024-11-21 DOI: 10.1186/s40337-024-01153-2
Sara Ferracci, Valerio Manippa, Anita D'Anselmo, Luca Bovolon, Maria Teresa Guagnano, Alfredo Brancucci, Piero Porcelli, Chiara Conti
{"title":"Correction: The role of impulsivity and binge eating in outpatients with overweight or obesity: an EEG temporal discounting study.","authors":"Sara Ferracci, Valerio Manippa, Anita D'Anselmo, Luca Bovolon, Maria Teresa Guagnano, Alfredo Brancucci, Piero Porcelli, Chiara Conti","doi":"10.1186/s40337-024-01153-2","DOIUrl":"10.1186/s40337-024-01153-2","url":null,"abstract":"","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":"12 1","pages":"190"},"PeriodicalIF":3.5,"publicationDate":"2024-11-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11580545/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142688503","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Muscularity-oriented disordered eating: investigating body image concerns and the moderating role of emotion dysregulation in cyclists. 以肌肉为导向的饮食失调:研究自行车运动员对身体形象的关注以及情绪失调的调节作用。
IF 3.5 3区 医学
Journal of Eating Disorders Pub Date : 2024-11-21 DOI: 10.1186/s40337-024-01109-6
Jack Mazaraki, Kay Bussey, Mitchell Cunningham, Tom Jewell, Nora Trompeter
{"title":"Muscularity-oriented disordered eating: investigating body image concerns and the moderating role of emotion dysregulation in cyclists.","authors":"Jack Mazaraki, Kay Bussey, Mitchell Cunningham, Tom Jewell, Nora Trompeter","doi":"10.1186/s40337-024-01109-6","DOIUrl":"10.1186/s40337-024-01109-6","url":null,"abstract":"<p><p>A lean muscular body of low weight is often associated with performance for cyclists and can be difficult to achieve. Disordered eating for some cyclists may develop in the pursuit of lean muscularity which is perceived to be beneficial to performance. Further, emotion dysregulation may exacerbate negative feelings about body image, increasing the risk of developing disordered eating as a means of controlling weight and shape. While research in athlete populations has been substantial, disordered eating in cyclists is relatively under-explored. The current study examined whether shape and weight concern and drive for leanness were associated with muscularity-oriented disordered eating and whether these relationships were moderated by emotion dysregulation. Interactions between these factors were also investigated. Participants were 139 Australian competitive cyclists (112 males, 27 females, aged 18-68 years) who completed a self-report questionnaire comprised of measures of shape and weight concern, drive for leanness, muscularity-oriented eating and emotion dysregulation variables. Both shape and weight concern and drive for leanness had a unique association with muscularity-oriented disordered eating. Emotion dysregulation was found to have a unique association with muscularity-oriented disordered eating when controlling for drive for leanness, but not when shape and weight concern was controlled. Additionally, emotion dysregulation moderated the association between shape and weight concern and muscularity-oriented disordered eating, whereby the relationship was intensified at higher levels of emotion dysregulation. Our study has extended the literature by indicating that cyclists' desire to attain a lean body is associated with muscularity-oriented disordered eating. Further, emotion dysregulation moderated this link, suggesting it could be a maintaining factor worth addressing.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":"12 1","pages":"189"},"PeriodicalIF":3.5,"publicationDate":"2024-11-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11580638/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142688767","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Neurodivergence, intersectionality, and eating disorders: a lived experience-led narrative review. 神经差异、交叉性和饮食失调:以生活经验为主导的叙事回顾。
IF 3.5 3区 医学
Journal of Eating Disorders Pub Date : 2024-11-20 DOI: 10.1186/s40337-024-01126-5
Laurence Cobbaert, Anna Rose Millichamp, Rosiel Elwyn, Scout Silverstein, Kai Schweizer, Elysia Thomas, Jane Miskovic-Wheatley
{"title":"Neurodivergence, intersectionality, and eating disorders: a lived experience-led narrative review.","authors":"Laurence Cobbaert, Anna Rose Millichamp, Rosiel Elwyn, Scout Silverstein, Kai Schweizer, Elysia Thomas, Jane Miskovic-Wheatley","doi":"10.1186/s40337-024-01126-5","DOIUrl":"10.1186/s40337-024-01126-5","url":null,"abstract":"<p><p>Autistic people and those with attention deficit hyperactivity disorder are at a high risk of developing an eating disorder. While there is limited evidence on the relationship between other forms of neurodivergence and eating disorders, research suggests associations between giftedness, intellectual disability, obsessive-compulsive disorder, psychosis, Tourette's syndrome, and disordered eating. Factors underlying disordered eating and/or eating disorder risk for neurodivergent people are multifaceted and complex, encompassing a wide range of intertwined psychosocial, environmental, and biological processes. Moreover, research shows that neurodivergent individuals experience poorer treatment outcomes compared to neurotypical individuals. However, there is a paucity of research in this area overall. More specifically, lived experience-led research remains rare, despite its critical role for improving individualised eating disorder care, as well as mental healthcare more broadly. Indeed, the importance of eating disorder care individuation is increasingly being recognised, particularly within the context of neurodivergence, given the heterogeneous experiences and support needs of neurodivergent people affected by disordered eating and/or eating disorders. Furthermore, despite documented overlaps between various forms of neurodivergence (e.g., co-occurring autism and attention deficit hyperactivity disorder), research looking at eating disorders in the context of neurodivergence through a transdiagnostic perspective is scarce. This lived experience-led narrative review aims to shed light on the intersectional factors underlying elevated disordered eating and/or eating disorder risk for neurodivergent individuals. First, an overview of prevalence data is provided, followed by a thematic framework identifying factors underlying disordered eating and/or eating disorder risk in relation to neurodivergence. A critical appraisal of current eating disorder research and care is then offered before suggestions for neurodiversity-affirming eating disorder care are made. In this view, this paper offers a foundation for future empirical work in this nascent field of inquiry by providing a lived experience-led, transdiagnostic, and intersectional account of eating disorders in the context of neurodivergence.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":"12 1","pages":"187"},"PeriodicalIF":3.5,"publicationDate":"2024-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11580580/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142682262","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Participatory development of evidence-based patient narrative videos for patients with eating disorders: a methodological approach and pilot data. 为饮食失调症患者参与开发以证据为基础的患者叙事视频:一种方法论方法和试点数据。
IF 3.5 3区 医学
Journal of Eating Disorders Pub Date : 2024-11-20 DOI: 10.1186/s40337-024-01146-1
Melissa-Claire Daugelat, Bettina Gregg, Sophia Helen Adam, Kathrin Schag, Joachim Kimmerle, Katrin Elisabeth Giel
{"title":"Participatory development of evidence-based patient narrative videos for patients with eating disorders: a methodological approach and pilot data.","authors":"Melissa-Claire Daugelat, Bettina Gregg, Sophia Helen Adam, Kathrin Schag, Joachim Kimmerle, Katrin Elisabeth Giel","doi":"10.1186/s40337-024-01146-1","DOIUrl":"10.1186/s40337-024-01146-1","url":null,"abstract":"<p><strong>Background: </strong>Patient narratives can best be defined as personal stories of persons previously or currently affected by a physical or mental health disorder. The collaborative development and implementation of such narratives reflects a participatory approach between researchers, patients, and members of the public towards the development of new interventions. Patient narratives can foster feelings of support and belonging, as well as increase hope and motivation towards recovery. Aims of this pilot study were (a) the collaborative development of a series of evidence-based patient narrative videos about eating disorders, (b) their initial evaluation with a group of participants without (current) eating disorders, and (c) to provide a reproducible documentation of this methodological approach.</p><p><strong>Method: </strong>A multi-stage participatory process was used including a) a systematic review, b) focus groups with affected persons, c) the participatory narrative development, and d) an initial pilot study with participants without (current) eating disorders. A former and currently recovered patient was recruited as a lived experience representative, while a psychotherapist provided the same information from a professional perspective. Control group videos featured the lived experience representative discussing a somatic condition unrelated to eating disorders (i.e., torn knee ligament). Two videos were created for each perspective with varying degrees of emotionality of the content.</p><p><strong>Results: </strong>Nineteen female participants without (current) eating disorders were recruited for the pilot study. All videos received positive ratings, however, participants rated videos in which the lived experience representative discussed her eating disorder as significantly more authentic than the control group videos, as well as significantly more empathic, useful, and better overall than the psychotherapist and control group videos. Participants further indicated a clear preference for videos with higher emotionality, regardless of which perspective or disorder was being presented.</p><p><strong>Discussion: </strong>The use of patient narratives for eating disorders is a relatively new methodological approach. This paper provides one example of how evidence-based patient narratives can be constructed. The patient narratives created in this study received positive feedback from participants without (current) eating disorders and are currently being tested in a 4-arm randomised controlled pilot study with patients affected by eating disorders.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":"12 1","pages":"188"},"PeriodicalIF":3.5,"publicationDate":"2024-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11580210/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142682496","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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