Grace Koob, Carolyn Black Becker, Vivienne M Hazzard, Kelsey A Varzeas, Nicole Y Wesley, Miriam Rowan, Tiffany M Stewart
{"title":"Intolerance of uncertainty as a potential modifiable risk factor for eating disorder pathology in women athletes: a longitudinal investigation.","authors":"Grace Koob, Carolyn Black Becker, Vivienne M Hazzard, Kelsey A Varzeas, Nicole Y Wesley, Miriam Rowan, Tiffany M Stewart","doi":"10.1186/s40337-026-01703-w","DOIUrl":"10.1186/s40337-026-01703-w","url":null,"abstract":"<p><strong>Background: </strong>Research indicates that elevated intolerance of uncertainty (IU) is cross-sectionally associated with eating disorder (ED) pathology in women. Although longitudinal data is needed to better understand whether IU is a prospective risk factor for EDs in the general population, IU also influences the performance of athletes, a population at risk for EDs. Despite the relevance of both IU and ED within athletics, research assessing the association of IU and ED pathology in athletes has yet to be conducted. The current study longitudinally explored IU as a potential modifiable risk factor for ED pathology in a sample of women athletes.</p><p><strong>Methods: </strong>IU at baseline was hypothesized to predict downstream ED pathology. Participants (N = 393) were women athletes aged 18-39 years from athletic teams/activities across the United States who responded to surveys at baseline and at least one follow-up assessment (3-, 6-, and/or 12-months) as part of a large multi-measure longitudinal study of women athletes. IU and ED pathology were measured using the two-factor, 12-item Intolerance of Uncertainty Scale (IUS-12) and the nine-item Brief Eating Disorders in Athletes Questionnaire (BEDA-Q), respectively. Age-adjusted modified Poisson regression generalized estimating equations (GEEs) examined baseline IUS subscale scores as predictors of subsequent changes in prevalence of a probable ED.</p><p><strong>Results: </strong>The prevalence of a probable ED in this sample was 22.7% at baseline. ED outcomes were significantly predicted by baseline scores of the prospective anxiety subscale of the IUS-12 but not the inhibitory anxiety subscale. A one-standard-deviation higher baseline score on the prospective anxiety subscale was associated with an 18% increase in prevalence of a probable ED over the course of the longitudinal study (p = .01).</p><p><strong>Conclusions: </strong>Based on these findings, desire for predictability is a potentially modifiable target in preventing ED in women athletes.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":" ","pages":""},"PeriodicalIF":5.7,"publicationDate":"2026-07-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13632329/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148425588","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Body image dissatisfaction and disordered eating behaviors among female students at Birzeit university: a cross-sectional study.","authors":"Shahed Mohammad, Shahad Hassan, Mawada Zeyad, Yezan Mohammad, Mohanad Samaheen, Yousef Alnajjar, Zahra Makhamreh, Maen Mohammad","doi":"10.1186/s40337-026-01698-4","DOIUrl":"10.1186/s40337-026-01698-4","url":null,"abstract":"<p><strong>Background: </strong>Body image dissatisfaction (BID) is a growing psychosocial concern and is strongly associated with disordered eating behaviors (DEBs), especially among young women. Although global awareness of these issues is increasing, research exploring the prevalence and relationship between BID and DEBs in Palestine remains scarce. This study aimed to assess the prevalence of DEBs and examine their association with BID among female university students.</p><p><strong>Methods: </strong>A cross-sectional study was conducted at Birzeit University from February to June 2025 among 295 female students aged 18-25 years recruited through convenience sampling. Data were collected using a structured, self-administered questionnaire that included sociodemographic and anthropometric characteristics, the Eating Attitudes Test-26 (EAT-26), and the Body Shape Questionnaire-16B (BSQ-16B). DEB risk was defined as an EAT-26 score ≥ 20.</p><p><strong>Results: </strong>A total of 12.9% of participants were identified as being at risk of DEBs. BSQ-16B and EAT-26 scores were moderately positively correlated (r = 0.535, p < 0.001). DEBs were significantly associated with higher BMI, smoking, previous DEBs, social media influence, binge eating, weight-loss attempts, and a positive BMI discrepancy between actual and ideal BMI.</p><p><strong>Conclusion: </strong>This study found that a notable proportion of Palestinian university women were at risk of DEBs and that BID was moderately associated with DEBs. These findings support the importance of screening for disordered eating behaviors and body image concerns among female university students in Palestine.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":" ","pages":""},"PeriodicalIF":5.7,"publicationDate":"2026-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13637245/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148413377","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
C R André Lange, Emma Claesdotter-Knutsson, Peik Gustafsson, Ulf Wallin
{"title":"Long-term follow-up study of low-weight avoidant/restrictive food intake disorder and childhood-onset anorexia nervosa: comparison of autistic eating behaviours.","authors":"C R André Lange, Emma Claesdotter-Knutsson, Peik Gustafsson, Ulf Wallin","doi":"10.1186/s40337-026-01697-5","DOIUrl":"10.1186/s40337-026-01697-5","url":null,"abstract":"<p><strong>Background: </strong>Anorexia nervosa (AN) is characterized by restrictive eating associated with weight and shape concerns, whereas avoidant/restrictive food intake disorder (ARFID) is not. Evidence supports an association between AN and autism, and emerging data suggest a similar overlap between ARFID and autism. However, long-term data on autistic eating behaviours in these groups remain scarce. This study examined autistic eating behaviours at long-term follow-up in former patients with childhood-onset AN and low-weight ARFID.</p><p><strong>Methods: </strong>Participants were 56 former patients treated in specialist child and adolescent eating disorder services in Sweden (37 with AN and 19 with ARFID at treatment start) who were assessed at a mean follow-up of 15.9 years. Autistic eating behaviours were measured with the Swedish Eating Assessment for Autism Spectrum Disorders questionnaire (SWEAA; primary measure). Secondary measures were the Morgan-Russell Outcome Assessment Schedule (M-R OAS) and the Eating Disorder Examination Questionnaire (EDE-Q) [21, 27]. Follow-up assessment also included a structured diagnostic interview (SCID) and measured height and weight. ARFID diagnoses were assigned retrospectively using all available clinical information. Mann-Whitney U tests, Kruskal-Wallis tests, descriptive statistics, and linear regression were used for group comparisons and association analyses.</p><p><strong>Results: </strong>Both the AN and ARFID groups showed elevated SWEAA scores at follow-up, with no significant difference between groups. Participants with an ongoing eating disorder at follow-up had the highest SWEAA scores, whereas those with no diagnosis had the lowest scores. In both diagnostic groups, the body mass index (BMI) < 20 category showed the lowest SWEAA scores. In the ARFID group, higher BMI was positively associated with SWEAA total score. M-R OAS scores differentiated follow-up diagnostic groups, whereas EDE-Q scores showed no clear pattern across groups.</p><p><strong>Conclusions: </strong>Autistic eating behaviours were common at long-term follow-up in both childhood-onset AN and low-weight ARFID. Higher SWEAA scores were associated with concurrent psychopathology, particularly an ongoing eating disorder, but autistic eating behaviours were not more pronounced in AN than in ARFID. The unexpectedly low SWEAA scores in the low-BMI group warrant further investigation.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":"14 1","pages":""},"PeriodicalIF":5.7,"publicationDate":"2026-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13343798/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148413362","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Prevalence and clinical correlates of avoidant/restrictive food intake disorder in children and adolescents with Celiac disease: a cross-sectional study.","authors":"Halenur Teke, Aydan Sogut, Hilal Tuter Mavi, Selcuk Teke, Yasin Maruf Ergen, Birce Izgi Akcay, Seda Bozduman Celebi, Mehmet Ayhan Congologlu, Necati Balamtekin","doi":"10.1186/s40337-026-01699-3","DOIUrl":"10.1186/s40337-026-01699-3","url":null,"abstract":"<p><strong>Background: </strong>Avoidant/Restrictive Food Intake Disorder (ARFID) may represent a clinically important problem in celiac disease (CD), where lifelong dietary restriction, ongoing gastrointestinal symptoms, and food-related anxiety may promote food avoidance beyond gluten-containing foods and contribute to maladaptive eating patterns. Although adult studies have reported high rates of ARFID symptoms in CD, pediatric data are limited. This study aimed to evaluate the prevalence and clinical correlates of ARFID in children and adolescents with CD using a multidisciplinary assessment approach involving pediatric gastroenterology and child and adolescent psychiatry specialists, including anthropometric, nutritional, bone health, psychological, and health-related quality-of-life (QoL) correlates.</p><p><strong>Methods: </strong>A cross-sectional study was conducted at a tertiary-care center involving children and adolescents aged 8-17 years with biopsy-confirmed CD (n = 101). Participants were assessed using a combination of clinical interviews and psychometric scales, including the Nine Item ARFID Screen (NIAS), the Revised Child Anxiety and Depression Scale (RCADS), and the Pediatric QoL Inventory (PedsQL). ARFID diagnosis was established through a DSM-5-guided clinical evaluation by two child and adolescent psychiatrists, and clinical and anthropometric data were collected alongside laboratory results. Multivariable regression models were used to identify factors independently associated with ARFID and clinical outcomes.</p><p><strong>Results: </strong>The prevalence of ARFID in the cohort was 42.6%. Children with ARFID exhibited significantly lower weight and BMI z-scores (p < 0.001 and p = 0.002, respectively), a higher prevalence of osteopenia/osteoporosis (p = 0.005) and micronutrient deficiencies (p < 0.001), poorer QoL (p < 0.001), and higher anxiety and depressive symptom scores (p < 0.001 and p = 0.003, respectively). Presence of gastrointestinal symptoms and higher anxiety score were independently associated with ARFID in children and adolescents with CD.</p><p><strong>Conclusion: </strong>In this cohort, ARFID appeared to be a clinically relevant comorbidity in pediatric CD, with adverse physical and psychosocial correlates. Restrictive eating extending beyond gluten avoidance should be recognized during clinical assessment, particularly in children with gastrointestinal symptoms, prominent anxiety symptoms, poor weight gain, or persistent micronutrient deficiencies. Longitudinal studies are needed to clarify the clinical course of ARFID symptoms and to inform targeted multidisciplinary care in this population.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":" ","pages":""},"PeriodicalIF":5.7,"publicationDate":"2026-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13556089/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148406501","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Operationalising adult eating disorders admission criteria in Australian emergency departments: a clinical decision-support approach.","authors":"Laurence Cobbaert","doi":"10.1186/s40337-026-01694-8","DOIUrl":"10.1186/s40337-026-01694-8","url":null,"abstract":"<p><p>Emergency departments operate under conditions that constrain clinical decision-making, including high patient volume, time pressure, workflow disruption, frequent interruptions, and variability in clinician experience. Eating disorders present a particular challenge within these settings because assessment requires integration of physiological, biochemical, behavioural, nutritional, mental health, and psychosocial risk factors, many of which may not be immediately apparent even during acute presentations. Although guideline-based admission criteria exist, their application requires clinicians to synthesise and cross-reference heterogeneous clinical information in real time, which may contribute to variability in decision-making and risk of unsafe discharge. This paper examines eating disorder-related emergency department practice as an operational implementation problem, drawing on existing literature, clinical guidelines, and lived experience perspectives to identify why established adult eating disorder admission criteria may be difficult to apply consistently in acute care settings. Based on this analysis, a clinical decision-support framework is proposed to operationalise existing guideline-based admission criteria within emergency department workflow. The framework is intended for use after initial triage, when clinical observations, biochemical findings, behavioural information, mental health risk, psychosocial context, and response to outpatient treatment are reviewed, and before final admission or discharge decisions are made. It is designed to support more consistent and transparent assessment of risk by organising clinical input across key domains and mapping these inputs directly to established admission criteria. This is intended to support clinical judgement by increasing visibility of clinically significant risk factors and prompting documentation when decisions diverge from guideline-based recommendations. As a proposed framework, empirical evaluation is required to determine feasibility, usability, implementation barriers, clinician acceptability, and potential effects on decision-making, clinical outcomes, and patient safety.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":"14 1","pages":""},"PeriodicalIF":5.7,"publicationDate":"2026-07-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13340384/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148399764","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Understanding eating behaviors in obesity: a DEBQ-based analysis of clinical and demographic factors.","authors":"Yasemin Koçyiğit, Hatice Ayça Kaloğlu","doi":"10.1186/s40337-026-01701-y","DOIUrl":"10.1186/s40337-026-01701-y","url":null,"abstract":"<p><strong>Background: </strong>Obesity is a multifactorial chronic disease influenced by metabolic, genetic, behavioral, and psychosocial factors. This study aimed to assess eating behaviors in treatment-seeking individuals with obesity using the Dutch Eating Behavior Questionnaire (DEBQ) and to explore the associations of its emotional, external, and restrained eating subscales with clinical and sociodemographic characteristics.</p><p><strong>Methods: </strong>This study included 220 individuals with obesity who were followed at the Etlik City Hospital Obesity Center. Psychiatric diagnoses were assessed using the Structured Clinical Interview for DSM-5 Disorders (SCID-5). Data were collected through face-to-face interviews using a sociodemographic form and the DEBQ. Regression analyses were conducted as exploratory, hypothesis-generating models to identify variables associated with DEBQ subscale scores, without implying causal relationships.</p><p><strong>Results: </strong>Emotional eating was positively associated with years of education, depression, obsessive-compulsive disorder (OCD), and the presence of an eating disorder-related condition. The strongest association was observed for the presence of an eating disorder-related condition, which may partly reflect conceptual and measurement overlap with the emotional eating construct assessed by the DEBQ. Restrained eating was positively associated with duration of obesity and negatively associated with the presence of an eating disorder-related condition. External eating was positively associated with years of education and the presence of an eating disorder-related condition.</p><p><strong>Conclusion: </strong>Eating behaviors among treatment-seeking individuals with obesity appear heterogeneous and are associated with both psychiatric and sociodemographic factors. In particular, emotional eating was linked to depression, OCD, and the presence of an eating disorder-related condition; however, associations involving eating disorder-related condition should be interpreted cautiously due to potential construct overlap. These findings underscore the importance of assessing psychiatric comorbidities and eating behavior patterns in the individualized management of obesity.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":" ","pages":""},"PeriodicalIF":5.7,"publicationDate":"2026-07-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13621460/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148392246","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The intersection of ADHD and anorexia: a qualitative exploration of how ADHD shapes eating disorder experiences.","authors":"Romi Goldschlager, Kurea Adrian, Eva Gregertsen, Katia Manariti, Eveline Mu, Jayashri Kulkarni","doi":"10.1186/s40337-026-01682-y","DOIUrl":"https://doi.org/10.1186/s40337-026-01682-y","url":null,"abstract":"<p><strong>Introduction: </strong>Anorexia nervosa (AN) is an eating disorder (ED) characterised by restrictions in energy intake, intense fear of weight gain and distorted body image. AN may coexist with attention-deficit/hyperactivity disorder (ADHD), a neurotype characterised by differences in attention and/or impulsivity and hyperactivity. Despite increasing recognition of neurodivergence in EDs, the co-occurrence of ADHD and AN remains markedly under-researched. Clarifying their interaction will improve diagnostic accuracy, tailor treatments, and ultimately enhance outcomes for individuals living with both neurobiological profiles. The objective of this study is to investigate how features of ADHD and AN influence the lived experience of adults with both profiles.</p><p><strong>Methods: </strong>Fifteen adults with co-occurring ADHD and AN participated in semi-structured interviews exploring how features of each profile shaped their experience. Qualitative data was analysed using Braun and Clarke's reflexive thematic analysis.</p><p><strong>Results: </strong>Four themes were developed. The interaction and overlap of features of ADHD and AN as well as challenges teasing the two apart was central for participants. ADHD and AN features were intentionally and unintentionally instrumentalised, perpetuating the co-occurring profile and making participants' experiences of co-occurring ADHD-AN challenging to navigate. Participants experienced profound shame resulting from ADHD-related systemic factors which in some cases appeared to predispose them to the development of AN. Overall, participants emphasised the importance of making ADHD-AN visible, highlighting the need for both this research and clinical attunement and dexterity to support individual patient experiences.</p><p><strong>Conclusions: </strong>To our knowledge, this is the first qualitative study providing evidence of how the features of ADHD and AN interact. The findings emphasise shared challenges in living with the co-occurring profiles, highlighting the need for increased understanding and greater recognition of ADHD-AN.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":" ","pages":""},"PeriodicalIF":5.7,"publicationDate":"2026-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148383077","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Cystatin-C outperforms creatinine for estimating renal function in adolescents with anorexia nervosa: cross-sectional method-comparison study.","authors":"Marine Bouron, Anne-Laure Lapeyraque, Olivier Jamoulle, Danielle Taddeo, Chantal Stheneur","doi":"10.1186/s40337-026-01700-z","DOIUrl":"10.1186/s40337-026-01700-z","url":null,"abstract":"<p><strong>Background: </strong>Individuals with anorexia nervosa are at increased risk of renal impairment, but assessing renal function in this population remains challenging. Cystatin-C, which is less affected by nutritional status than creatinine, may provide a more reliable biomarker. However, equations based on cystatin-C (CKiD‑U25, EKFC, and CKD-EPI) have not yet been evaluated against isotopic scintigraphy in individuals with anorexia nervosa.</p><p><strong>Objective: </strong>This study aimed to compare the performance of creatinine-based and cystatin-C-based equations (CKiD-U25, EKFC, CKD-EPI) against 99mTc-DTPA renal scintigraphy as the reference standard in adolescents with restrictive anorexia nervosa.</p><p><strong>Methods: </strong>Glomerular filtration rate was measured using renal scintigraphy and estimated with creatinine-based and cystatin-C-based equations. Serum cystatin-C and creatinine were measured at hospital admission (day 0), whereas renal scintigraphy was performed as soon as feasible after admission (mean of 5 days), in adolescents with restrictive anorexia nervosa. Correlation coefficients, mean bias, root mean square error, and Bland-Altman plots were assessed.</p><p><strong>Results: </strong>Across all equations, cystatin-C-based formulas consistently outperformed creatinine-based ones in terms of correlation, bias, and precision. The CKiD-U25 using cystatin-C equation showed the strongest correlation with renal scintigraphy (r = 0.77; bias = - 11.5 mL/min/1.73 m<sup>2</sup>).</p><p><strong>Conclusions: </strong>At admission for restrictive anorexia nervosa, cystatin-C-based equations, particularly the CKiD-U25, demonstrate superior agreement with renal scintigraphy compared to creatinine-based equations, making cystatin-C-based equations more reliable in this context.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":" ","pages":""},"PeriodicalIF":5.7,"publicationDate":"2026-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13602572/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148383005","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lea Pueschel, Stefanie Claire Fuhrberg, Leonie Kuhn, Josephine Conrad, Marina Florea, Navid Pueschel, Linda Schemann, Yilmaz Rohat Kala, Konstantina Atanasova, Laura-Louise Knoedler, Wolfgang Reindl, Eva Lina Wilke, Moritz Middelhoff, Anne Kerstin Thomann, Miriam Wiestler
{"title":"Sex-specific patterns of avoidant and restrictive eating in inflammatory bowel disease: validation of the German version of the Nine Item Avoidant/Restrictive Food Intake disorder screen (NIAS).","authors":"Lea Pueschel, Stefanie Claire Fuhrberg, Leonie Kuhn, Josephine Conrad, Marina Florea, Navid Pueschel, Linda Schemann, Yilmaz Rohat Kala, Konstantina Atanasova, Laura-Louise Knoedler, Wolfgang Reindl, Eva Lina Wilke, Moritz Middelhoff, Anne Kerstin Thomann, Miriam Wiestler","doi":"10.1186/s40337-026-01702-x","DOIUrl":"10.1186/s40337-026-01702-x","url":null,"abstract":"<p><strong>Background: </strong>Avoidant/Restrictive Food Intake Disorder (ARFID) is a possible comorbidity in patients with Inflammatory Bowel Disease (IBD). Early detection and intervention are crucial to prevent malnutrition and related complications. However, ARFID often remains undiagnosed due to its subtle presentation.</p><p><strong>Methods: </strong>This multicenter study enrolled 235 patients with IBD at German tertiary referral centers between March and September 2025. The Nine Item Avoidant/Restrictive Food Intake disorder screen (NIAS), a screening tool for ARFID, was translated into German and administered at baseline and follow-up. The validity and reliability of the NIAS German were assessed via hypothesis testing and Cronbach's α coefficient.</p><p><strong>Results: </strong>The NIAS German demonstrated excellent internal consistency (Cronbach's α = 0.810) and test-retest reliability (p < 0.001). A significant correlation was found between the initial and follow-up NIAS scores for all items (p < 0.001). Furthermore, the intraclass correlation coefficient of 0.896 (95% CI: 0.846-0.931) confirmed the reliability of the German questionnaire version. Notably, women with IBD scored significantly higher on the NIAS and its subscales, indicating a greater likelihood and severity of ARFID symptoms, as screened by the NIAS (Md [IQR]: women = 13 [7-17]; men = 10 [6-15]; p = 0.007).</p><p><strong>Conclusions: </strong>The German version of the NIAS demonstrated good reliability and initial evidence supporting its use as a screening instrument in German-speaking men and women with IBD. The findings of this study highlight the importance of sex-specific assessment and suggest that IBD women may be at higher risk of developing ARFID. Early detection and targeted interventions are essential to prevent malnutrition and related complications in this vulnerable population.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":" ","pages":""},"PeriodicalIF":5.7,"publicationDate":"2026-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13339524/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148383041","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"From establishment to network consolidation: Registrant engagement and collaborative development in the international Consortium for Research in Eating Disorders (CoRe-ED).","authors":"Gemma Sharp, Hao Hu, Peter Wigley","doi":"10.1186/s40337-026-01696-6","DOIUrl":"10.1186/s40337-026-01696-6","url":null,"abstract":"<p><strong>Background: </strong>Eating disorders are a global health concern, yet research in this field has historically been underfunded and sometimes perceived as \"niche\". To attempt to address these challenges, the international charity Consortium for Research in Eating Disorders (CoRe-ED) was launched in September 2024. CoRe-ED aims to promote innovations in eating disorders research by empowering all voices and supporting the development of new therapies. The present study examined the characteristics of individuals who joined CoRe-ED over the first ~ 15 months, their engagement with consortium initiatives and their expected benefits and experiences.</p><p><strong>Methods: </strong>Between 25 September 2024 and 31 December 2025, CoRe-ED registrants completed an online registration form and consented to the use of deidentified, aggregated data for research. Data were analysed for registrant characteristics, including primary country of residence and role(s) (e.g., researcher, health professional, lived experience), and for perceived expectations and experiences, using inductive thematic analysis. Survey feedback from ten CoRe-ED events, engagement with collaborative CoRe-ED initiatives, and an overarching survey capturing overall registrant experiences were also analysed.</p><p><strong>Results: </strong>A total of 960 individuals from 37 countries across five continents registered with CoRe-ED, representing researchers, health professionals, individuals with lived experience, advocates, not-for-profit representatives and industry professionals. Registrants' expectations included networking and community building, research contribution and collaboration, learning and professional development, advocacy, facilitation of innovation, integration of lived experience into research, global collaboration and mentorship. CoRe-ED also implemented a structured \"Next Big Research Idea\" initiative, which involved 18 internationally distributed multidisciplinary teams across 20 countries in collaborative research proposal development. Event-specific and overall feedback indicated high satisfaction with CoRe-ED activities, particularly valuing the diversity of presenters, global perspectives, inclusive environment and opportunities to learn and connect.</p><p><strong>Conclusions: </strong>Over the first ~ 15 months, CoRe-ED engaged a diverse, international registrant group and developed activities consistent with early registrant expectations. The consortium implemented initiatives intended to support cross-disciplinary research collaboration, knowledge exchange and innovation, while expanding international representation. Future research should examine longer-term experiences, including impacts on research outputs, mentorship, co-design and policy translation, to better understand how the consortium evolves in response to the needs of its international community.</p>","PeriodicalId":48605,"journal":{"name":"Journal of Eating Disorders","volume":" ","pages":""},"PeriodicalIF":5.7,"publicationDate":"2026-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13599308/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148377279","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}