Qualitative Health Research最新文献_第9页

Physicians' Explanatory Models of Pediatric Inflammatory Bowel Disease: A Qualitative Interview Study. 医生对小儿炎症性肠病的解释模型：定性访谈研究

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-05-01 Epub Date: 2023-12-21 DOI: 10.1177/10497323231218159

Catalina Berenblum Tobi, Mara Buchbinder

{"title":"Physicians' Explanatory Models of Pediatric Inflammatory Bowel Disease: A Qualitative Interview Study.","authors":"Catalina Berenblum Tobi, Mara Buchbinder","doi":"10.1177/10497323231218159","DOIUrl":"10.1177/10497323231218159","url":null,"abstract":"Explanatory models are culturally informed representations of illness that convey understandings of the etiology and expected course of disease. Substantial research has explored lay explanatory models, but examining physicians' clinical explanatory models can also provide insight into patients' understandings of illness because physicians are a foundational source of authoritative knowledge that shapes lay concepts of illness and disease. This study characterized the explanatory models used by pediatric gastroenterologists when explaining inflammatory bowel disease (IBD) to children. We conducted semi-structured qualitative interviews with 20 pediatric gastroenterologists across the United States about their clinical communication and explanatory models. We identified two primary explanatory models used to describe immune dysregulation in pediatric IBD: the defense and protection model, which characterizes the immune system as an army that erroneously sees the body as \"non-self\" and attacks it; and the switch model, which conceptualizes treatment as activating a switch that turns off a faulty immune response. We also identified two models used by some physicians to describe inflammation: the scratch and scrape model, which compares IBD inflammation to scratches or scrapes on the skin; and the bonfire model, which compares inflammation to a fire in need of extinguishing. While the use of militaristic metaphors is pervasive in medicine, describing autoimmunity as a battle against the self may lead children to perceive their body as the enemy. This may be compounded by describing the immune system as \"confused\" while noting its ongoing protective function. Use of these explanatory models may nevertheless improve patient disease-related knowledge.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":null,"pages":null},"PeriodicalIF":2.6,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11080382/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138832380","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Perceptions and Attitudes Toward Genetic Counselors and Genetic Testing Among Certified Professional Midwives in Vermont: A Modified Grounded Theory Study. 佛蒙特州注册专业助产士对遗传咨询师和遗传检测的看法和态度：修改后的基础理论研究。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-05-01 Epub Date: 2023-12-27 DOI: 10.1177/10497323231222395

Jazmine L Gabriel, Paul Burcher, Melissa Cheyney

{"title":"Perceptions and Attitudes Toward Genetic Counselors and Genetic Testing Among Certified Professional Midwives in Vermont: A Modified Grounded Theory Study.","authors":"Jazmine L Gabriel, Paul Burcher, Melissa Cheyney","doi":"10.1177/10497323231222395","DOIUrl":"10.1177/10497323231222395","url":null,"abstract":"Increasingly, pregnant people in the United States are choosing to give at birth at home, and certified professional midwives (CPMs) often attend these births. Care by midwives, including home birth midwives, has the potential to decrease unnecessary medical interventions and their associated health care costs, as well as to improve maternal satisfaction with care. However, lack of integration into the health care system affects the ability of CPMs to access standard medications and testing for their clients, including prenatal screening. Genetics and genomics are now a routine part of prenatal screening, and genetic testing can contribute to identifying candidates for planned home birth. However, research on genetics and midwifery care has not, to date, included the subset of midwives who attend the majority of planned home births, CPMs. The purpose of this study was to examine CPMs' access to, and perspectives on, one aspect of prenatal care, genetic counselors and genetic counseling services. Using semi-structured interviews and a modified grounded theory approach to narrative analysis, we identified three key themes: (1) systems-level issues with accessing information about genetic counseling and genetic testing; (2) practice-level patterns in information delivery and self-awareness about knowledge limitations; and (3) client-level concerns about the value of genetic testing relative to difficulties with access and stress caused by the information. The results of this study can be used to develop decision aids that include information about genetic testing and genetic counseling access for pregnant people intending home births in the United States.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":null,"pages":null},"PeriodicalIF":2.6,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139049602","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

StigmaBeat: Collaborating With Rural Young People to Co-Design Films Aimed at Reducing Mental Health Stigma. 耻辱:与农村年轻人合作，共同设计旨在减少心理健康耻辱的电影。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-05-01 Epub Date: 2023-11-29 DOI: 10.1177/10497323231211454

Rochelle Hine, Brenda Gladstone, Andrea Reupert, Lotti O'Dea, Rose Cuff, Scott Yates, Anneli Silvén Hagström, Violette McGaw, Kim Foster

{"title":"StigmaBeat: Collaborating With Rural Young People to Co-Design Films Aimed at Reducing Mental Health Stigma.","authors":"Rochelle Hine, Brenda Gladstone, Andrea Reupert, Lotti O'Dea, Rose Cuff, Scott Yates, Anneli Silvén Hagström, Violette McGaw, Kim Foster","doi":"10.1177/10497323231211454","DOIUrl":"10.1177/10497323231211454","url":null,"abstract":"Little is known about the experience and impact of intersectional stigma experienced by rural young people (15-25 years) who have a parent with mental health challenges. The StigmaBeat project employed a co-design approach to create short films to identify and challenge mental health stigma from the perspective of young people who have experienced this phenomenon. The aim of this paper is to describe the co-design methodological approach used in StigmaBeat, as an example of a novel participatory project. We describe one way that co-design can be employed by researchers in collaboration with marginalised young people to produce films aimed at reducing mental health stigma in the community. Through describing the processes undertaken in this project, the opportunities, challenges, and tensions of combining community development methods with research methods will be explored. Co-design with young people is a dynamic and engaging method of collaborative research practice capable of harnessing lived experience expertise to intervene in social issues and redesign or redevelop health services and policies. The participatory approach involved trusting and implementing the suggestions of young people in designing and developing the films and involved creating the physical and social environment to enable this, including embedding creativity, a critical element to the project's methodological success. Intensive time and resource investment are needed to engage a population that is often marginalised in relation to stigma discourse.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":null,"pages":null},"PeriodicalIF":2.6,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11080393/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138463719","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Intraprofessionalism and Peer-to-Peer Learning in American Medical Education. 美国医学教育中的专业内学习和同行学习。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-05-01 Epub Date: 2023-12-11 DOI: 10.1177/10497323231218137

Julia Knopes, M Ariel Cascio, Barbara Warner

{"title":"Intraprofessionalism and Peer-to-Peer Learning in American Medical Education.","authors":"Julia Knopes, M Ariel Cascio, Barbara Warner","doi":"10.1177/10497323231218137","DOIUrl":"10.1177/10497323231218137","url":null,"abstract":"As previous research has observed, medical students and physicians alike confront vast amounts of knowledge in their education and practice, such that no one clinician can know everything there is to know about biomedicine. Even before clerkships, medical students learn to cope with this impossibility by prioritizing certain information based on its perceived utility for exams and clinical practice. Many factors can shape this process, including teamwork, wherein individual medical students rely on one another to address gaps in knowledge at the level of the group. This paper will draw on qualitative data from two allopathic medical schools in the American Midwest to demonstrate that peer-to-peer learning, a widely utilized pedagogical modality in North American medical schools, is amongst the earliest places where future physicians learn how to rely on their peers in the profession as they make choices about what to know and what not to know about biomedicine: cultivating a culture of \"intraprofessionalism\" between students with different knowledges and values, as they prepare to enter the same profession. The paper will also consider how differences in the student populations at two field sites impact intraprofessional development. Drawing on scholarship of peer-based learning strategies and the sociology and anthropology of medical education, the authors argue that peer-to-peer learning is a key site in the professional socialization of medical students toward the effective management of medical knowledge.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":null,"pages":null},"PeriodicalIF":2.6,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138812628","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"I'm Not Comfortable With COVID, But …": Dilemmas and Decision-Making to Mitigate Risks Among Mothers Who Gave Birth During the COVID-19 Pandemic. "我对 COVID 感兴趣，但......"：在 COVID-19 大流行期间分娩的母亲为降低风险所面临的困境和决策。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-05-01 Epub Date: 2023-12-11 DOI: 10.1177/10497323231217594

Nicole L Johnson, Maria Brann, Susanna F Scott, Jennifer J Bute

{"title":"\"I'm Not Comfortable With COVID, But …\": Dilemmas and Decision-Making to Mitigate Risks Among Mothers Who Gave Birth During the COVID-19 Pandemic.","authors":"Nicole L Johnson, Maria Brann, Susanna F Scott, Jennifer J Bute","doi":"10.1177/10497323231217594","DOIUrl":"10.1177/10497323231217594","url":null,"abstract":"Individuals have faced unprecedented uncertainty and risk surrounding the COVID-19 pandemic, and decision-making dilemmas have been complicated by quickly evolving and often contradictory recommendations for staying healthy. Using tenets of problematic integration theory and risk orders theory, we analyzed interview data from 50 mothers who gave birth during the pandemic to understand how uncertainty and risk perceptions shaped their decision-making about keeping themselves and their infants healthy in the first year after birth. Results describe how some mothers in our sample made sense of their decision-making to prioritize first-order risks to their own and their family's physical health, and other mothers prioritized second-order risks to their relationships and identities. We also discuss the social nature of mitigating risk during the COVID-19 pandemic and the catalysts for shifting risk perceptions. Theoretical and practical implications include improving public health messaging and clinical conversations to enable individuals to effectively manage social and identity needs alongside serious threats to physical health.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":null,"pages":null},"PeriodicalIF":2.6,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138812624","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"You're Not Alone": How Adolescents Share Dysmenorrhea Experiences Through Vlogs. "你并不孤单"：青少年如何通过 Vlog 分享痛经经历。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-05-01 Epub Date: 2023-12-21 DOI: 10.1177/10497323231216654

Sarah S Mohammed, Michelle M Gagnon, Jorden A Cummings

{"title":"\"You're Not Alone\": How Adolescents Share Dysmenorrhea Experiences Through Vlogs.","authors":"Sarah S Mohammed, Michelle M Gagnon, Jorden A Cummings","doi":"10.1177/10497323231216654","DOIUrl":"10.1177/10497323231216654","url":null,"abstract":"Many adolescents experience severe pain during menstruation, yet their attempts to receive medical attention to alleviate or manage this pain are often met with dismissal or disbelief. In light of these barriers to care, many adolescents turn to social media to share their experiences with menstruation and pain, as well as hear from other members of their community. In this study, we investigated how adolescents present their experiences with menstruation in vlogs (or \"video blogs\"). Using critical qualitative methods and a four-column analysis structure, we transcribed and thematically analyzed the audio and video content of 17 YouTube vlogs wherein adolescents described their experiences with menstrual pain. We found that stylistically, the vloggers modulated between a polished documentary style and an intimate storytime style of video production. We additionally found that vloggers spoke about their menstrual pain experiences from three perspectives: as a Patient managing and diagnosing physical symptoms, as a Self considering how the pain affects their life and ambitions, and as a Teacher educating their audience. Considering both the visual and audio data, we discuss how healthcare providers can use these findings to inform their approach to discussing menstrual pain with adolescents. We further discuss possible future directions for research into health story sharing on social media.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":null,"pages":null},"PeriodicalIF":2.6,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11080392/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138832376","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"I Want to Do Something" - Exploring What Makes Activities Meaningful for Community-Dwelling People Living With Dementia: A Focused Ethnographic Study. "我想做一些事情"--探索是什么让社区痴呆症患者的活动变得有意义：重点人种学研究。

IF 3.2 2区医学

Qualitative Health Research Pub Date : 2024-04-22 DOI: 10.1177/10497323241239487

Emma Harding, Mary Pat Sullivan, Paul M Camic, Keir Yong, Joshua Stott, Sebastian J Crutch

{"title":"\"I Want to Do Something\" - Exploring What Makes Activities Meaningful for Community-Dwelling People Living With Dementia: A Focused Ethnographic Study.","authors":"Emma Harding, Mary Pat Sullivan, Paul M Camic, Keir Yong, Joshua Stott, Sebastian J Crutch","doi":"10.1177/10497323241239487","DOIUrl":"https://doi.org/10.1177/10497323241239487","url":null,"abstract":"Supporting ageing in place, quality of life, and activity engagement are public health priorities for people with dementia. The importance of maintaining opportunities for meaningful activities has been widely acknowledged for those with dementia in long-term care, but little is known about what makes activities meaningful for, and how they are experienced by, people with different types of dementia in their own homes. This study used focussed ethnographic methods to explore the motivations and meanings of everyday activity engagement within the homes of 10 people with memory-led Alzheimer's disease and 10 people with posterior cortical atrophy. While participants' interactions with their everyday environments were challenged by their diagnoses, they were all finding ways to continue meaning-making via various activities. The main findings are encapsulated in three themes: (1) The fun and the function of activities; (2) Reciprocities of care, and (3) The constitution and continuity of (a changing) self. Ongoing engagement with both fun and functional activities offered participants living with different dementias opportunities to connect with others, to offer care and support (as well as receive it), and to maintain a sense of self and identity. Implications are discussed regarding the development and delivery of tailored interventions and support to enable continued engagement in meaningful activities for people with different types of dementia living in the community.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":null,"pages":null},"PeriodicalIF":3.2,"publicationDate":"2024-04-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140673201","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Group Level Assessment Methodology as a Liberating Structure Within Qualitative and Participatory Research. 小组层面的评估方法是定性和参与式研究中的一种解放结构。

IF 3.2 2区医学

Qualitative Health Research Pub Date : 2024-04-22 DOI: 10.1177/10497323241240654

Lisa M. Vaughn

引用次数: 0

The Development of Elder-Governed Adjuvant Cultural Therapy for Aboriginal and/or Torres Strait Islander Young People With Mental Health Conditions 为患有精神疾病的土著居民和/或托雷斯海峡岛民青少年开发由长者管理的辅助文化疗法

IF 3.2 2区医学

Qualitative Health Research Pub Date : 2024-04-15 DOI: 10.1177/10497323241234010

Alasdair Vance, Janet McGaw, Di O’Rorke, Selena White, Sandra Eades

{"title":"The Development of Elder-Governed Adjuvant Cultural Therapy for Aboriginal and/or Torres Strait Islander Young People With Mental Health Conditions","authors":"Alasdair Vance, Janet McGaw, Di O’Rorke, Selena White, Sandra Eades","doi":"10.1177/10497323241234010","DOIUrl":"https://doi.org/10.1177/10497323241234010","url":null,"abstract":"A 10-year review of the 2008 Council of Australian Governments’ (COAG) Close the Gap Strategy identified the lack of involvement of Indigenous people in developing policies as a key reason health disparities persist. It also posits that disconnection from Country and culture have been crucial factors. Physical and mental health cannot be separated from spiritual health and well-being amongst Indigenous Australians. This article describes the co-development of a cultural enrichment research study with Indigenous Elders, health service leaders, and community members that places culture at the centre of care to augment traditional Western mental health management. The study has been overseen and nurtured from its inception by a governance board of Traditional Custodian Elders and an Advisory Group of Indigenous health workers. Qualitative data were collected through community ‘zoom- yarns’ between an Indigenous research assistant and 44 community members during COVID-19 lockdowns. These yarns were analysed through an innovative, constructivist, multi-perspectival discursive grounded theory method. Findings have led to an Elder-governed adjuvant cultural therapy which is currently being trialled and will be evaluated using the same multi-perspectival discursive grounded theory research methodology. One third of all Indigenous Australians now live in capital cities, so developing models to bring culture and Country into urban health facilities are becoming increasingly important. The Indigenous-led research approach outlined in this paper suggests a model for engaging Indigenous communities that mainly distrust Western research and have been failed by Western mental health care. It has the potential to shape future policy.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":null,"pages":null},"PeriodicalIF":3.2,"publicationDate":"2024-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140565330","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Orchestrating Care: A Grounded Theory Study of Family Caregiving for Older Adults in Rural Areas 协调护理：农村地区家庭照顾老年人的基础理论研究

IF 3.2 2区医学

Qualitative Health Research Pub Date : 2024-04-10 DOI: 10.1177/10497323241236308

Jacqueline A. Michaels, Mary Ann Meeker

{"title":"Orchestrating Care: A Grounded Theory Study of Family Caregiving for Older Adults in Rural Areas","authors":"Jacqueline A. Michaels, Mary Ann Meeker","doi":"10.1177/10497323241236308","DOIUrl":"https://doi.org/10.1177/10497323241236308","url":null,"abstract":"Family caregivers provide the majority of long-term care and support of older adults as they age or approach the end of life. Studies often refer to family caregivers as invisible because the American healthcare system, public policy, and society do not support or recognize their work. Family caregivers who provide care to older adults who live in rural areas face unique challenges due to the rural environment. The purpose of this study was to inductively develop a theoretical framework that explains the process of family caregiving to older adults who live at home in rural areas and require daily assistance while exploring their experiences regarding access, utilization, challenges, and effectiveness of patient healthcare services and caregiver resources in rural areas. The grounded theory method of Strauss and Corbin was used for sampling, data collection, and data analysis. Fifteen family caregivers who oversaw and/or provided care on a daily basis to an older adult living in two rural counties of New York State participated in the study. Data were collected through two semi-structured interviews with each participant, yielding 30 interviews. Findings revealed that family caregivers engaged in the process of orchestrating care by growing into caregiving, integrating technology, and utilizing networks when providing and managing caregiving. Understanding caregiving from the perspective of family caregivers engaged in the process can inform healthcare practice, healthcare education, and public policy and can support better outcomes for both older adults and their family caregivers.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":null,"pages":null},"PeriodicalIF":3.2,"publicationDate":"2024-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140565189","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0