Qualitative Health Research最新文献_第10页

"This Is Fate! Nothing We Can Do to Change It": Triggers of Learned Helplessness Among Patients in Maintenance Hemodialysis - A Qualitative Study. "这就是命运！我们无力改变"：维持性血液透析患者习得性无助感的触发因素--一项定性研究。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-12-12 DOI: 10.1177/10497323241301296

Shaona Cai, Caixia Li, Zhenping Du, Shengzi Liu, Lifang Zhou, Yina Zhao, Yingying Li, Xia Fu

{"title":"\"This Is Fate! Nothing We Can Do to Change It\": Triggers of Learned Helplessness Among Patients in Maintenance Hemodialysis - A Qualitative Study.","authors":"Shaona Cai, Caixia Li, Zhenping Du, Shengzi Liu, Lifang Zhou, Yina Zhao, Yingying Li, Xia Fu","doi":"10.1177/10497323241301296","DOIUrl":"https://doi.org/10.1177/10497323241301296","url":null,"abstract":"As the global population of patients undergoing maintenance hemodialysis continues to grow, more than half are experiencing the psychological distress associated with learned helplessness, a condition potentially linked to adverse outcomes such as depression and suicidal ideation. However, the triggers contributing to learned helplessness in these patients remain poorly understood. This study employs an interpretative phenomenological approach to explore the experiences and triggers of learned helplessness among 26 maintenance hemodialysis patients across five hospitals in China. The analysis of participants' narratives reveals that learned helplessness in these patients is influenced by a combination of physiological, psychological, and social factors. Physical discomfort and psychological changes contribute to their sense of helplessness. Despite seeking support from family and healthcare providers, their distress often goes unnoticed. Additionally, the social stigma of being perceived as a \"special group\" further exacerbates their learned helplessness. Based on the findings, the following recommendations are provided to effectively mitigate learned helplessness: Healthcare professionals must reduce symptom burden, provide psychological assessment and support, and assist in rebuilding positive patient cognition. It is also crucial to enhance connections between patients, their families, and social support groups, reduce misunderstandings and stigmatization, and strengthen community support systems.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241301296"},"PeriodicalIF":2.6,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142819794","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Enhancing Rigor, Quality, and Patient Engagement in Qualitative Research: A Step-By-Step Guide to Applying Reflexive Thematic Analysis to the Experience-Based Co-Design Methodology. 在定性研究中提高严谨性、质量和患者参与度：将反思性主题分析应用于基于经验的协同设计方法的一步一步指南。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-12-12 DOI: 10.1177/10497323241291798

Rebecca Wright, Kavita Chapla, Ashley Booth, Katie E Nelson, Anna Peeler, Christy Swain, Sarah Won, David S Wu

{"title":"Enhancing Rigor, Quality, and Patient Engagement in Qualitative Research: A Step-By-Step Guide to Applying Reflexive Thematic Analysis to the Experience-Based Co-Design Methodology.","authors":"Rebecca Wright, Kavita Chapla, Ashley Booth, Katie E Nelson, Anna Peeler, Christy Swain, Sarah Won, David S Wu","doi":"10.1177/10497323241291798","DOIUrl":"https://doi.org/10.1177/10497323241291798","url":null,"abstract":"Experience-based co-design (EBCD) is a qualitative form of participatory action research supported by a toolkit providing guidance and recommendations. The toolkit is intentionally non-prescriptive, allowing EBCD practitioners the freedom to flex the approach to cater to the needs of their specific populations and contexts. For less experienced researchers, the lack of specificity can be a challenge when navigating activities such as data analysis, particularly as wider literature provides limited insights to methods, processes, methodological critique, and lessons learned. Despite increasing use of EBCD, few practitioners publish details of their methods, processes, or decision-making for how they adapt EBCD for their studies, focusing more often on findings and outcomes. This can impact understanding and development of rigor in EBCD literature. In this methodology paper, we respond to this gap by providing a case example and step-by-step guide for application of reflexive thematic analysis to EBCD, with consideration of reflexivity, a conceptual framing for interpreting experiences, opportunities for greater participant involvement, and strengths and challenges of using reflexive thematic analysis within EBCD.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241291798"},"PeriodicalIF":2.6,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142819804","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

What Obstructs Health Policy Implementation? A Multi-Method Qualitative Case Study of the Delayed Deployment of Community Pharmacies in Ireland's National COVID-19 Vaccination Programme. 是什么阻碍了卫生政策的实施？爱尔兰国家 COVID-19 疫苗接种计划中社区药房延迟部署的多方法定性案例研究》（A Multi-Method Qualitative Case Study of the Delayed Deployment of Community Pharmacies in Ireland's National COVID-19 Vaccination Programme）。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-12-12 DOI: 10.1177/10497323241302239

Aaron Koay, Camilla Devitt

{"title":"What Obstructs Health Policy Implementation? A Multi-Method Qualitative Case Study of the Delayed Deployment of Community Pharmacies in Ireland's National COVID-19 Vaccination Programme.","authors":"Aaron Koay, Camilla Devitt","doi":"10.1177/10497323241302239","DOIUrl":"https://doi.org/10.1177/10497323241302239","url":null,"abstract":"During the COVID-19 pandemic, there were months of delay in deploying community pharmacies for the National COVID-19 Vaccination Programme in Ireland. We aimed to explore what may have accounted for this delay between 15th December 2020 (publication of policies) and 14th June 2021 (commencement of community pharmacy-based vaccination). We carried out a multi-method qualitative case study that involved engaging with 11 stakeholders, reviewing 246 documents, and conducting semi-structured interviews with 11 policy elites. Using reflexive thematic analysis, we developed three themes. The first provides evidence that the delay was, in part, due to operational barriers related to the logistical and safety aspects of the Programme. The second, on the other hand, presents a perspective that the delay was unreasonable as it was based on perceived deficits in community pharmacies. Finally, the third highlights the inability of the pharmacy profession to influence health policy due to a lack of strategic and cohesive leadership and the dominance of the medical profession. Overall, we argue that the delay can be explained by a complex interplay between technical, socio-political, institutional, and regulatory factors, underpinned by a chronic lack of strategic direction for pharmacy in the Irish health system.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241302239"},"PeriodicalIF":2.6,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142819861","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Access to Healthcare for Black Women in Alberta: An Interpersonal-Level Analysis of Barriers and Facilitators. 艾伯塔省黑人妇女获得医疗保健的机会：对障碍和促进因素的人际层面分析。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-12-12 DOI: 10.1177/10497323241301968

Mary Olukotun, Lucy Karanja, Aloysius Maduforo, Andre Renzaho, Maria-Beatriz Ospina, Solina Richter, Modupe Tunde-Byass, Oluwakemi Amodu, Bukola Salami

{"title":"Access to Healthcare for Black Women in Alberta: An Interpersonal-Level Analysis of Barriers and Facilitators.","authors":"Mary Olukotun, Lucy Karanja, Aloysius Maduforo, Andre Renzaho, Maria-Beatriz Ospina, Solina Richter, Modupe Tunde-Byass, Oluwakemi Amodu, Bukola Salami","doi":"10.1177/10497323241301968","DOIUrl":"https://doi.org/10.1177/10497323241301968","url":null,"abstract":"Alberta is home to one of Canada's fastest growing populations of Black people, driven by an influx of African immigrants to major metropolitan areas such as Edmonton and Calgary. As the Black population in Alberta continues to grow, it is crucial to the well-being of these communities that we understand their health service needs. Black women are a vulnerable group within the Black population due to inequities in social determinants of health such as access to healthcare. In Canada, little is known about the healthcare access experiences of Black women despite reported disparities in their health outcomes. As such, we undertook a qualitative study to examine access to health services for Black women in Alberta. Semi-structured interviews were completed with 30 Black women from Edmonton and Calgary. We applied intersectionality as an analytical framework to guide our understanding of how interconnected social processes shape Black women's experiences of accessing healthcare. Following our thematic analysis, we identified two major barriers to healthcare access: patient-provider discordance and negative healthcare encounters. We identified two key facilitators: positive patient-provider dynamics and individual and social network strengths. Our findings suggest that Black women have distinct experiences of accessing the healthcare system which are best understood as a confluence of their race, gender, and other aspects of their personhood.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241301968"},"PeriodicalIF":2.6,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142819796","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

From Pills to Practices: Interpretative Phenomenological Analysis of Medication Experience and Self-Management in Schizophrenia. 从药丸到实践：精神分裂症患者用药经验和自我管理的解释性现象学分析。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-12-11 DOI: 10.1177/10497323241299673

Linghui Zhang, Yubin Chen, Hong Yu, Jiayuan Zhang, Yujing Sun, Qi Li, Yuqiu Zhou

{"title":"From Pills to Practices: Interpretative Phenomenological Analysis of Medication Experience and Self-Management in Schizophrenia.","authors":"Linghui Zhang, Yubin Chen, Hong Yu, Jiayuan Zhang, Yujing Sun, Qi Li, Yuqiu Zhou","doi":"10.1177/10497323241299673","DOIUrl":"https://doi.org/10.1177/10497323241299673","url":null,"abstract":"Schizophrenia, a mental disorder characterized by delayed onset, high relapse rates, and significant disability, ranks among the top 20 contributors to the global burden of disease and poses a substantial public health challenge. Effective self-management is crucial for the recovery of individuals with schizophrenia, with medication experience playing a vital role. However, the underlying mechanisms and logical relationships remain elusive, hindering the development of effective self-management and enhancement strategies from the perspective of medication experience. This research aimed to illuminate these aspects by conducting semi-structured interviews to delve into the impacts of medication experience on self-management behaviors among individuals with schizophrenia. The goal was to elucidate the role of medication in self-management and to identify potential barriers and facilitators via patient narratives. We employed interpretive phenomenological analysis to examine interview transcripts from 12 participants diagnosed with schizophrenia. This analysis yielded three superordinate themes: \"Medicine isn't just medicine,\" \"Experience is a catalyst for action,\" and \"Action shaped by experience.\" We discuss these themes in the context of existing literature and theoretical frameworks and propose specific recommendations, such as motivational interviewing for clinicians, tailored psycho-educational programs, and supportive systems respecting patient autonomy. This study offers a contextual understanding of the medication experience for individuals with schizophrenia, enhancing our knowledge of self-management behaviors and how they can be promoted in this population.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241299673"},"PeriodicalIF":2.6,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142814670","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Reconstructing a Meaningful Self: The Identity Work of People Living With Chronic Disease. 重建有意义的自我：慢性病患者的身份认同工作。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-12-10 DOI: 10.1177/10497323241303393

Loraine Sonia Clur, Antoni Barnard

{"title":"Reconstructing a Meaningful Self: The Identity Work of People Living With Chronic Disease.","authors":"Loraine Sonia Clur, Antoni Barnard","doi":"10.1177/10497323241303393","DOIUrl":"https://doi.org/10.1177/10497323241303393","url":null,"abstract":"With the escalating number of people diagnosed with chronic disease globally, research aimed at supporting their adjustment and coping is invaluable. Reconstructing a sense of self is core to the psychosocial adjustment of people with chronic disease (PwCD), and meaning making is central to their coping with the diagnosis. Despite the growing number of PwCD living productive lives, their identity work is underexplored. This article reports on an in-depth multiple case study that explored the identity work of PwCD from a meaning-making perspective. Data were gathered from three cases using semi-structured interviews, document analysis, and diaries. Data analysis entailed interpretative phenomenological analysis and flexible pattern matching. Three themes describe participants' identity work process: First, they narrate a broken identity, having experienced identity disruption, discontinuity, and loss; second, they envision an ideal identity through existential reflection; and third, they reconstruct a meaningful identity. Reconciling the broken self with an ideal self leads to the construction of a meaningful self. The meaningful self is conceptualized in participants' application of Frankl's meaning-making principles, as they constructed a purposeful self (creative), a connected self (experiential), and a determined self (attitudinal). The article discusses the implications for helping professionals and organizations in supporting PwCD as they work toward rebuilding a meaningful self, facilitating their identity work in the search of a meaningful self.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241303393"},"PeriodicalIF":2.6,"publicationDate":"2024-12-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142802589","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Made for or Made by? A Qualitative Investigation into the Diverse Practices and Roles of Medical Congress Participants. 为谁制造还是由谁制造？对医学大会参与者的不同实践和角色的定性调查。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-12-09 DOI: 10.1177/10497323241301610

Anna Schneider-Kamp, Finja Petersen

{"title":"Made for or Made by? A Qualitative Investigation into the Diverse Practices and Roles of Medical Congress Participants.","authors":"Anna Schneider-Kamp, Finja Petersen","doi":"10.1177/10497323241301610","DOIUrl":"https://doi.org/10.1177/10497323241301610","url":null,"abstract":"Medical congresses play a pivotal role in the continuing medical education of healthcare professionals (HCPs), particularly in light of the rapid advancements in medical knowledge and technology. Notwithstanding, little is known about the internal dynamics of such events and how they contribute to the learning processes in communities of health professional practice. This study aims to uncover and elucidate what motivates HCPs to participate in medical congresses and how they experience their participation through a qualitative study. Attending six in-person medical congresses in Western Europe in 2023, we collected data through a combination of ethnographic methods including 69 in-situ interviews, 17 in-depth interviews, and extensive participant observations. We analyzed the role of the physical environment, participant motivation, interdisciplinarity, and participant diversity for medical congress attendance, ultimately identifying four types of congress participants: Explorers, Newcomers, Drivers, and Updaters, each characterized by unique patterns of professional experience and engagement within the professional communities. Our findings elucidate the complex motivational landscape of medical congress participants, where the desire for learning is routinely complemented by the pursuit of peer recognition. Our insights and the qualitative typology of medical congress participants introduced have the potential to optimize continuous medical education and shape the structure of future medical congresses by shedding light on the evolving needs of HCPs in diverse medical fields.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241301610"},"PeriodicalIF":2.6,"publicationDate":"2024-12-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142802588","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Psychological Effects of Guillain-Barré Syndrome: A Grounded Theory Study. 格林-巴勒综合征的心理效应：一个扎根的理论研究。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-12-09 DOI: 10.1177/10497323241304641

Katie Bell, S J Summers, Jenna Moffitt, Geoff Hill

引用次数: 0

Long-Term Adverse Effects After Electroconvulsive Therapy (ECT): A Narrative Analysis Exploring People's Experiences, Meaning-Making, and Coping. 电休克治疗（ECT）后的长期不良反应：一个探索人们经历、意义制造和应对的叙事分析。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-12-09 DOI: 10.1177/10497323241303391

Emily Shipwright, David Murphy

{"title":"Long-Term Adverse Effects After Electroconvulsive Therapy (ECT): A Narrative Analysis Exploring People's Experiences, Meaning-Making, and Coping.","authors":"Emily Shipwright, David Murphy","doi":"10.1177/10497323241303391","DOIUrl":"https://doi.org/10.1177/10497323241303391","url":null,"abstract":"Approximately 2500 people receive electroconvulsive therapy (ECT) annually in the United Kingdom; however, there is growing evidence of long-term adverse effects. Few studies have focused on people's experience of ECT, particularly over the long term. The experience of ECT is known to be complex, requiring qualitative exploration. Therefore, this study aimed to explore the long-term adverse experiences of ECT, including psychological impacts, meaning-making, and coping. Narrative analysis considered thematic, structural, and performative elements of seven people's stories. Themes were explored across the timeline of participants' experiences. Before ECT, participants felt misinformed regarding ECT and misunderstood by healthcare professionals. They noticed immediate changes in their cognition, memory, and mood after ECT. Returning home was important in participants' discovery of differences. Long-term impacts were loss (of ability, memory, humanity, and connection), the realization that ECT had been damaging, and understanding ECT to have caused brain damage. The extensive nature of loss experienced by participants was comparable to the concept of ambiguous loss. They experienced a lack of follow-up care and denial of their experiences, which could contribute to psychological iatrogenic harm. Participants coped with adverse experiences by using prompts and strategies and connecting with others. Further research is needed into the adverse long-term effects of ECT, especially considering cognitive effects, memory loss, and how these contribute to a changed sense of self. Service development is urgently required, especially for ECT follow-up care.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241303391"},"PeriodicalIF":2.6,"publicationDate":"2024-12-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142802495","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Speaking Stoma: Creating a Communication Guide for People With an Ostomy. 说话造口术：为造口术患者创建交流指南。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2024-12-09 DOI: 10.1177/10497323241293719

Braidyn Lazenby, Ashley Guidry, Erin E Donovan, René Dailey, Srinivas Joga Ivatury

{"title":"Speaking Stoma: Creating a Communication Guide for People With an Ostomy.","authors":"Braidyn Lazenby, Ashley Guidry, Erin E Donovan, René Dailey, Srinivas Joga Ivatury","doi":"10.1177/10497323241293719","DOIUrl":"https://doi.org/10.1177/10497323241293719","url":null,"abstract":"An ostomy is a life-changing procedure. Individuals who have ostomy surgery must adjust to changes post-operation, some of which involve changes to communication and managing social situations. The purpose of this project was to create an evidence-based communication guide for people with ostomies while transitioning to life after surgery and serve as a reference for the creation of communication guides for similar chronic illnesses. Emphasizing co-production, the first stage of the project, referred to as Pre-Design, included a needs assessment through qualitative interviews with (n = 27) individuals who have had an ostomy for at least a year. In the second stage of the project, Co-Design, our team used information gathered from the interviews with participants to create a rough draft of our communication guide. In the last stage, called Post-Design, we invited seven participants from the Pre-Design stage and recruited eight new participants (n = 15) to take part in both interviews and focus groups to evaluate the proposed communication guide. We reflect on both the strengths and weaknesses of the proposed communication guide based on feedback gathered from ostomates, followed by a discussion of the benefits of incorporating and applying this guide into practice. Results suggest that there are benefits to co-production as a method for healthcare delivery and multiple needs for guidance related to salient social situations for people with ostomies. These results can be applied to create evidence-based communication guidance for other relevant health contexts.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241293719"},"PeriodicalIF":2.6,"publicationDate":"2024-12-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142796413","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0