Qualitative Health Research最新文献

{"title":"Barriers to Childhood Immunization in Rural and Remote Areas: A Qualitative Exploration From the Perspectives of Community Leaders in Sindh, Pakistan.","authors":"Sundeep Sahitia, Idayu Badilla Idris, Nazarudin Safian, Rozina F Ali, Khadijah Shamsuddin, Rozita Hod","doi":"10.1177/10497323241263279","DOIUrl":"10.1177/10497323241263279","url":null,"abstract":"<p><p>Despite overall improvements observed at the national level, there is a significant disparity in childhood vaccination coverage rates between urban and rural regions, particularly within tribal and remote areas in Pakistan. Our study aimed to explore the views of community/tribal leaders concerning barriers and their local solutions for improving vaccine uptake, with a specific focus on remote settings. An exploratory qualitative research study was conducted from July to September 2019 in Shikarpur, Sindh, Pakistan. We interviewed 11 community leaders, after developing a semi-structured interview guide based on the health belief model. Following validation, the collected data was transcribed and subsequently translated into the English language. A stepwise process of manual familiarization, coding, theme generation, and theme review using an inductive approach was followed. While most of the rural community leaders expressed a willingness to support vaccinations, numerous unexplored barriers were identified. These barriers included an unsustainable communication system heavily dependent on polio mobile teams, discourteous behavior of healthcare personnel, cultural restrictions that limited women's involvement, economic hardships, limited transportation options, insufficient collaboration with the education sector, poor knowledge among community leaders, and security concerns. Additionally, they proposed some innovative solutions of information dissemination methods through the Ottaque system, ethics-based training, subsidized transportation services or voucher system, and addressing security concerns in collaboration with community leaders. Our findings suggest policymakers take both community leaders and members for an inclusive policy-making process to redraft the special policy for these remote and rural areas.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"349-365"},"PeriodicalIF":2.6,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142074250","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Collusion in the Clinic: Constructing Patients' Moral Responsibility to Treat Cancer.","authors":"Alexandra Tate, Tanya Stivers","doi":"10.1177/10497323251316768","DOIUrl":"10.1177/10497323251316768","url":null,"abstract":"<p><p>American healthcare involves expanding medical technologies and innovations in treatment to improve health outcomes and longevity. Social scientists have argued that this is explained by the moralization of health and cultural attitudes toward imperatives to treat, pointing to the U.S. healthcare system as one that rewards healthy behaviors and \"curing\" rather than \"caring.\" In this article, we analyze early-stage oncology encounters to understand how patients come to understand what constitutes oncology treatment at the outset of their treatment journey. In these visits (<i>n</i> = 23), we use conversation analysis to identify behaviors used across interactants to frame medically intensive treatment. Ultimately, we find that physicians, patients, and their families orient to patients having a moral responsibility to extend their lives as much as possible through aggressive treatment even when that entails unpleasant side effects, risks, or substantial time investments.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251316768"},"PeriodicalIF":2.6,"publicationDate":"2025-02-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143531972","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Corrigendum to \"A Prospective Qualitative Inquiry of Patient Experiences of Cognitive Functional Therapy for Chronic Low Back Pain During the RESTORE Trial\".","authors":"","doi":"10.1177/10497323251320187","DOIUrl":"https://doi.org/10.1177/10497323251320187","url":null,"abstract":"","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251320187"},"PeriodicalIF":2.6,"publicationDate":"2025-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143523554","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"How Do University Students Navigate Distress? An Examination of Determinants, Coping Strategies, and Support Systems Through the Lens of Self-Determination Theory.","authors":"Daniel Hernández-Torrano, Laura Ibrayeva","doi":"10.1177/10497323251315430","DOIUrl":"https://doi.org/10.1177/10497323251315430","url":null,"abstract":"<p><p>Entrance to university is marked by significant changes and challenges that can impact mental health and well-being. This study investigated the determinants of psychological distress, coping strategies used, and the availability of support systems among university students in a non-Western country through the lenses of self-determination theory. The thematic analysis of 16 in-depth interviews revealed several academic, socio-demographic, and situational factors crucial in facilitating or impeding university students' sense of self-determination and, consequently, their psychological distress. The study uncovered students' relative preference for avoidance coping mechanisms, the limited presence of perceived formal support systems in higher education institutions, and a clear reliance of students on informal sources of support to buffer the effects of distress. Moreover, it was evident that students perceived their higher education settings as leaning toward being controlling rather than autonomy-supportive. Implications for promoting well-being among university students are discussed.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251315430"},"PeriodicalIF":2.6,"publicationDate":"2025-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392175","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Relevance of Constructivist Grounded Theory in Transgender Mental Health Research: A Methodological Review.","authors":"David Sidney Mangwegape, Miriam Mmamphamo Moagi, Seepaneng Salaminah Moloko-Phiri, Molekodi Jacob Matsipane, Rorisang Machailo","doi":"10.1177/10497323241309232","DOIUrl":"10.1177/10497323241309232","url":null,"abstract":"<p><p>Transgender individuals experience mental health challenges that prompt research in order to come up with evidence-based interventions to address them. Constructivist grounded theory (CGT) is a type of qualitative research method that is used in the development of a theory grounded in data. The purpose of this article was to discuss the relevance of using CGT in research with transgender individuals. The article also explored how CGT can be used to conduct research on transgender people. CGT is recommended as an ideal methodology for researching transgender people on issues of mental health. The use of CGT is compatible with transgender research investigations since it is sensitive to understanding their human experiences. The pursuit of social justice for the transgender population can be easily realized with the application of CGT.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241309232"},"PeriodicalIF":2.6,"publicationDate":"2025-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392178","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"I Am the Minority of the Minority of the Minority, I Can't Help Thinking About My Brothers\": An Intersectional Approach to Self-Care Strategies Developed by LGBTQIA+ Adolescents and Young People During COVID-19 Quarantine in Brazil.","authors":"Eliana Miura Zucchi, Dulce Ferraz, Ramiro Fernandez Unsain, Laura Ferguson, Charlotte Bauquier, Ayra Urbano, Inês Dourado, Marie Préau, Alexandre Grangeiro, Márcia Thereza Couto","doi":"10.1177/10497323241307913","DOIUrl":"https://doi.org/10.1177/10497323241307913","url":null,"abstract":"<p><p>We aimed to understand how COVID-19 impacted LGBTQIA+ adolescents' and young people's well-being and to explore self-care strategies developed by them to address such effects. A qualitative investigation was conducted with adolescents and young people including 39 men who have sex with men and transgender women aged 15-22 years in Brazil. Data collection comprised digital-based diaries and semi-structured interviews and occurred during physical distancing measures. We adopted an iterative thematic analysis from an intersectional lens to examine how participants' multiple social identities-such as gender, sexuality, race, and class-influenced their self-care practices. The process of reflecting on and adapting to COVID-19-related restrictions prompted participants to recognize experiences that impacted their well-being throughout their lives, such as stigma, discrimination, and violence. Social class emerged as the primary factor in social differentiation, rather than race, leading to varied effects of the pandemic on participants' lives. In their quest for a sense of wholeness, participants became more critical of their relationships, often choosing to end toxic and abusive connections while seeking new sources of social support as a key strategy for protecting their well-being. Transgender participants noted that certain aesthetics within the transgender community could be oppressive rather than emancipatory. Engaging with new social media circles and participating in volunteer work were important forms of community engagement, particularly among Black participants. Future research on the long-term effects of COVID-19 on the well-being of adolescents should prioritize articulating structural drivers of inequality in qualitative health research.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241307913"},"PeriodicalIF":2.6,"publicationDate":"2025-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143366285","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Family Coping Among Patients With Heart Failure: A Qualitative Study.","authors":"Xiong Zhang, Min Zhou, Huilin Zhou, Yimei Zhang, Xiaorong Jin, Xu Su, Wei Wei, Yangjuan Bai, Fang Ma","doi":"10.1177/10497323241290379","DOIUrl":"https://doi.org/10.1177/10497323241290379","url":null,"abstract":"<p><p>Heart failure is a severe and terminal stage of various heart diseases characterized by complex clinical syndromes. With regard to the management of HF, the patient's family is the most common and essential resource. The manner in which the family copes with the disease can lead to effective or ineffective management. It is necessary to explore how families of patients with heart failure as a whole are coping with the disease. Our qualitative descriptive study involved 18 families of patients with HF, including 18 patients and 13 family members. Based on the trichotomy of coping strategies proposed by Weiten, the text of the interviews was analyzed via content analysis. Four categories emerged from the data: (1) problem-oriented coping, (2) appraisal-oriented coping, (3) emotion-oriented coping, and (4) family dynamic-oriented coping. Nine subcategories were extracted: fighting the disease during an episode; managing the disease in daily life; embarking on a journey for support; understanding the disease in a diverse way; accepting the disease or not, optimistic; worried and powerlessness; alternating role responsibilities; and adjusting family interactions. The identification of the predominant category of 'family dynamic-oriented coping' in our study has significant implications for health care professionals. By recognizing and addressing the unique dynamics of family interactions and coping mechanisms, health care providers can develop targeted strategies to improve overall outcomes for both patients and their families impacted by HF.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241290379"},"PeriodicalIF":2.6,"publicationDate":"2025-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143366289","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Sero-Kinship: How Young People Living With HIV/AIDS Survive in Southeast Nigeria.","authors":"Elochukwu Ernest Uzim, Ijeoma Igwe, Po-Han Lee","doi":"10.1177/10497323241254256","DOIUrl":"10.1177/10497323241254256","url":null,"abstract":"<p><p>Research on the lived experiences of HIV survivors, including young people living with HIV, has primarily emphasized broader sociocultural concerns, such as stigmatization and cultural attitudes toward sexuality and gender, while giving less attention to the interconnectedness of these issues with the mental well-being of those affected by the illness. This study, drawing on relational ethnography including observations and interviews at four antiretroviral-administering healthcare facilities in Enugu State, southeast Nigeria, explores how young people living with HIV strive toward viral suppression and how they develop collaborative psychosocial support along with the global efforts in eradicating the HIV epidemic. We found that, in and between themselves, young people living with HIV weave for themselves a network of relationships, though discreetly, to foster and encourage survivorship. Such relatedness, where mutual trust and support have emerged and rebuilt HIV survivors' faith in a livable life, forms what we conceptualize as \"sero-kinship.\" That is, sero-kinship, which focuses on how people create and change meanings in their everyday lives that ultimately contribute to controlling HIV and treatment management, forms an essential foundation on which a life with HIV becomes thinkable, bearable, then manageable, and acceptable.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"190-200"},"PeriodicalIF":2.6,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141898692","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Conceptualizing Symptom Invalidation as Experienced by Patients With Endometriosis.","authors":"Allyson C Bontempo","doi":"10.1177/10497323241253418","DOIUrl":"10.1177/10497323241253418","url":null,"abstract":"<p><p>The aim of this paper is to provide foundational work to standardize the conceptual definition of what I refer to as <i>symptom invalidation</i> by using invalidating environments and illness representations as guiding conceptual frameworks. Mixed deductive-inductive thematic analysis was used to analyze survey responses to an open-ended question gauging an invalidating interaction patients experienced with a clinician among 1038 patients with endometriosis. Dissimilarity in illness representations between patients and clinicians, as perceived by patients, occurred with feelings of invalidation. Invalidation was experienced in relationship to all identified domains of illness representations including how clinicians communicated the diagnosis (<i>identity label</i>), the internal (<i>internal cause</i>) and/or external (<i>external cause</i>) nature of the cause, clinicians' understanding of the timeline (<i>timeline</i>) and consequences (<i>consequences</i>), and clinicians' understanding of control over the symptoms via the efficacy of patients (<i>self-efficacy</i>) and coping procedures (<i>response efficacy</i>). Inductive analysis revealed invalidation can also be related to how clinicians communicate judgments of whether patients are presenting with ulterior motives (<i>secondary gains</i>). Clinicians' actions appear to compound experiences of invalidation by not having symptoms investigated (<i>investigative experiences</i>). Invalidating environments and illness representations serve as effective conceptual frameworks for providing a conceptual definition of symptom invalidation.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"248-263"},"PeriodicalIF":2.6,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141908016","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"Switching Hats\": Insights From Experienced Clinical Interviewers Turned Novice Research Interviewers.","authors":"Brightlin N Dhas, Jackie Fox, Benshamir Bright, Dina B El Haj, Abraham P James, Hussain A H J Bu Hazaa, Sultan S H Al Abdulla","doi":"10.1177/10497323241234008","DOIUrl":"10.1177/10497323241234008","url":null,"abstract":"<p><p>Health professionals/clinicians interview people regularly as part of their role. However, a qualitative research interview differs considerably to a clinical interview. If clinicians approach qualitative research interviewing based on their expertise in clinical interviewing, it could cause insufficiencies in qualitative data generation. In this reflection article, we, a team of four experienced clinical occupational therapists with no previous experience in qualitative research interviewing, share our experiences while learning to become qualitative research interviewers before undertaking our first qualitative research project. We engaged in self-directed reading, formal training on qualitative interviewing, and practice interviews and used peer feedback and reflection to prepare ourselves to conduct qualitative interviews. We drew upon the work-role transitions theory to work through our adjustment to the new role. Although we set out to \"switch hats\" as the research topic itself was not clinical, interviewing people on health-related topics will mean bringing our clinical instincts into our research role, while still recognizing the difference between a clinical and research interview. This article can inform experienced clinicians/novice qualitative researchers as they develop this new skillset.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"135-143"},"PeriodicalIF":2.6,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11755977/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140144350","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}