Qualitative Health Research最新文献_第10页

An Exploration Into the Processes of Change in a Non-Residential "Fusion" Therapeutic Community. 一个非住宅“融合”治疗社区的变迁过程探索。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-12-24 DOI: 10.1177/10497323251389791

Candida Fernandes, Katy Sivyer, Natasha Berthollier, Tessa Maguire

{"title":"An Exploration Into the Processes of Change in a Non-Residential \"Fusion\" Therapeutic Community.","authors":"Candida Fernandes, Katy Sivyer, Natasha Berthollier, Tessa Maguire","doi":"10.1177/10497323251389791","DOIUrl":"https://doi.org/10.1177/10497323251389791","url":null,"abstract":"Therapeutic communities (TCs) have been a longstanding intervention for individuals with complex mental health needs; however, there remains a lack of research into how UK-based TCs work to support their members. Modifications to TCs include the merging of \"concept\" and \"democratic\" TC practices, producing a \"fusion\" model. The aim of this study was to explore processes of change that occur within a community-based, non-residential \"fusion\" TC across two community sites. This was done through exploring lived experiences of active members and graduates of an established and a newer TC site. Eleven participants took part in online or face-to-face interviews. Interviews were analyzed using interpretative phenomenological analysis. Three themes emerged from the analysis: (1) Exploring the Authentic Self: Encouraged and Supported in Showing Emotional Vulnerability Within the TC (subthemes: \"Nowhere to Hide\": Sharing With Others and Looking Back to Move Forward: Reflecting On Change and Self-Discovery); (2) Developing a Sense of Community: Learning to Navigate Relationships Within the TC (subthemes: \"They seem to fit\": Building Connection With Others and Unravelling the Clashes: Holding Space to Manage and Tolerate Conflict); and (3) \"Me to We\": The Lasting Benefits of the TC Co-Production Experience. Staff were integral in supporting change identified across all three themes. The findings highlight processes that could be implemented into existing TCs to support change for members and evolve the community structure. The study provides insights into how TC practice could be informed to accommodate the growing diversity of TC members and support staff development.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251389791"},"PeriodicalIF":2.4,"publicationDate":"2025-12-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145821651","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

It Absolutely Broke Me: A Psychoanalytic Exploration of the Staff Experience of COVID-19. 它绝对击垮了我：对COVID-19员工经历的精神分析探索。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-12-18 DOI: 10.1177/10497323251401829

Sarah M Ramsey, Helen Hurst, Celeste Foster

{"title":"It Absolutely Broke Me: A Psychoanalytic Exploration of the Staff Experience of COVID-19.","authors":"Sarah M Ramsey, Helen Hurst, Celeste Foster","doi":"10.1177/10497323251401829","DOIUrl":"https://doi.org/10.1177/10497323251401829","url":null,"abstract":"This study was conceived by nurse researchers working throughout the pandemic on a COVID ward, aiming to explore in depth the experience of ward staff. Full ethical approval was obtained and in-depth unstructured interviews were conducted with staff members (two doctors, two healthcare assistants, two allied health professionals, and four nurses). Data analysis followed a psychosocial approach using psychoanalytic theory as a tool for examining data. Whilst previous research has identified the emotional labor of work during the COVID pandemic, with subsequent impact on staff mental health and well-being, this is the first study to demonstrate the usefulness of psychoanalytic methodology in this context. Deeper consideration of the internal world and affective experience of the participants in relationship to external events and context enables a complex interpretive understanding of the phenomena. This study therefore provides valuable insight on a different level to that attained through traditional quantitative and qualitative research methods. A psychoanalytic lens of analysis enabled us to develop a model of the elements which combined to lead to psychological disturbance, the institutional defences that inadvertently compounded the experience as traumatic, the personal meaning derived from the experience, which staff members relied on to survive, and the lasting impact. We add to the evidence base around experience of the COVID pandemic, highlighting the profound and long-lasting impact on staff and demonstrating the value of psychoanalytic research methodology. We conclude by discussing the implications of our study for future practice, particularly in terms of leadership and staff well-being.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251401829"},"PeriodicalIF":2.4,"publicationDate":"2025-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145775851","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Mask and the Stage: A Dramaturgical Analysis of Online Identity and Depression Among Youth from South Africa. 面具与舞台：南非青年网络身份与抑郁的戏剧分析。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-12-16 DOI: 10.1177/10497323251401824

Lesedi Kgatla

{"title":"The Mask and the Stage: A Dramaturgical Analysis of Online Identity and Depression Among Youth from South Africa.","authors":"Lesedi Kgatla","doi":"10.1177/10497323251401824","DOIUrl":"https://doi.org/10.1177/10497323251401824","url":null,"abstract":"This study examined how young adults navigate digital self-representation during episodes of depression, focusing on the shift from curated personas to vulnerable disclosures on social media. Grounded in Goffman's dramaturgical theory and Meyrowitz's notion of blurred frontstage/backstage boundaries, the research explores social media as both a performative stage and an emotional refuge. A two-phase qualitative method was employed: digital content related to depression was first mined from participants' social media accounts, and then explored further through semi-structured interviews. Thematic analysis revealed that participants initially masked their struggles to avoid stigma, but many transitioned to more authentic disclosures as a means of seeking support. This shift introduced emotional risks including misrecognition and judgment prompting users to strategically curate content and manage visibility. Rather than a binary of \"real\" versus \"fake\" identity, online self-presentation emerged as fluid, contextual, and emotionally negotiated. The study contributes methodologically and theoretically to qualitative health research by adapting dramaturgical theory to digital contexts and highlighting social media's dual role in youth mental health: performative and therapeutic.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251401824"},"PeriodicalIF":2.4,"publicationDate":"2025-12-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145764204","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Insights Into Dialysis Initiation: A Foucauldian Discourse Analysis of the r/dialysis Reddit Forum. 透析启动的洞察：r/透析Reddit论坛的福柯话语分析。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-12-16 DOI: 10.1177/10497323251394206

Su Han Ong, Allie Slemon, Vera Caine

{"title":"Insights Into Dialysis Initiation: A Foucauldian Discourse Analysis of the r/dialysis Reddit Forum.","authors":"Su Han Ong, Allie Slemon, Vera Caine","doi":"10.1177/10497323251394206","DOIUrl":"https://doi.org/10.1177/10497323251394206","url":null,"abstract":"Patients on dialysis develop unique relationships with their providers, fellow patients, and the broader healthcare system. This network of relationships is a well-established key factor influencing both their healthcare experience and mortality rates. Yet, despite ongoing efforts to improve these networks of relationships, health outcomes remain unfavorable for dialysis patients. Investigating the formation of these relationships through a social media platform provides valuable insight into patients lived experiences, shedding light on pervasive power dynamics as seen from the patient perspective while addressing methodological gaps present in the literature. Analyzing social media platforms helps identify critical areas for improvement that may have been overlooked to enhance the experience and outcomes of patients on dialysis. In this paper, we use Foucauldian discourse analysis to examine 41 posts and their associated comments from the r/dialysis forum on Reddit, focusing on the first year of dialysis initiation and exploring how societal discourse shapes and is shaped by peer-to-peer interactions, impressions, communities, and frameworks. In this study, we highlight how power and resistance are reflected in the discursive choices made by patients, as well as its influence on their conceptualizations of the patient-provider relationship as they begin their dialysis journey. These insights add to the dearth of current literature that use social media platforms and discourse analysis in investigating healthcare experiences. They lay the groundwork for better supporting a vulnerable clinical population and provide a foundation for future academic research using this methodology.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251394206"},"PeriodicalIF":2.4,"publicationDate":"2025-12-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145764207","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Fathering a Child With a Progressive Life-Limiting Condition in the Context of Pediatric Palliative Care: A Qualitative Interview Study. 在儿童姑息治疗的背景下，有进行性生命限制的孩子的父亲：一项质性访谈研究。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-12-13 DOI: 10.1177/10497323251398383

Marianne Sjuls, Liv Fegran, Mette Spliid Ludvigsen, Nastasja Robstad

{"title":"Fathering a Child With a Progressive Life-Limiting Condition in the Context of Pediatric Palliative Care: A Qualitative Interview Study.","authors":"Marianne Sjuls, Liv Fegran, Mette Spliid Ludvigsen, Nastasja Robstad","doi":"10.1177/10497323251398383","DOIUrl":"https://doi.org/10.1177/10497323251398383","url":null,"abstract":"Fathers report feeling sidelined and being treated as secondary parents in healthcare settings. Despite their vital caregiving contributions, fathers remain underrepresented in pediatric palliative care research, particularly outside oncological contexts. This qualitative study, using a phenomenological hermeneutical design, explores the lived experiences of Norwegian fathers raising children with progressive life-limiting conditions. Thirteen fathers of children aged 1-18 years participated in in-depth, semi-structured interviews conducted online or in person. All children had received a diagnosis at least 12 months prior, lived at home, and received varying levels of care support. The analysis followed a modified version of Ricoeur's interpretation theory, as described by Lindseth and Norberg in their three-step phenomenological hermeneutical method, and revealed four themes: (1) \"Balancing between grief and relief,\" where fathers described emotional ambivalence during the diagnostic phase; (2) \"Searching for stability in an unpredictable life,\" where fathers often turned to information and peer support to manage uncertainty; (3) \"Feeling homebound yet making space for life,\" where many felt confined to the home but made deliberate efforts to create meaningful experiences for their children and themselves; and (4) \"Juggling between being a dad, caregiver, and breadwinner,\" where fathers navigated complex and often conflicting roles. The findings highlight the emotional and practical challenges fathers face and underscore the importance of recognizing their unique support needs. Proactive involvement in care planning, access to pediatric palliative care services, peer networks, and respite opportunities are essential not only for the child's well-being but also to sustain fathers' caregiving capacity.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251398383"},"PeriodicalIF":2.4,"publicationDate":"2025-12-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145744727","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Healthcare Support Workers Working With People With Dementia on Mental Health Wards: A Practice Model Informed by Care Aesthetics. 在精神卫生病房与痴呆症患者一起工作的卫生保健支持工作者：一个由护理美学告知的实践模型。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-12-09 DOI: 10.1177/10497323251393890

Jackie Kindell, Kate Maguire-Rosier, Reka Polonyi, James Thompson, Rebecca Cleasby, Ruth Watson, John David Keady

{"title":"Healthcare Support Workers Working With People With Dementia on Mental Health Wards: A Practice Model Informed by Care Aesthetics.","authors":"Jackie Kindell, Kate Maguire-Rosier, Reka Polonyi, James Thompson, Rebecca Cleasby, Ruth Watson, John David Keady","doi":"10.1177/10497323251393890","DOIUrl":"https://doi.org/10.1177/10497323251393890","url":null,"abstract":"This study explores the practice of healthcare support workers (HCSWs) working with people with dementia on mental health wards for older people within the National Health Service in the United Kingdom. People with dementia in these settings have complex physical and mental health needs with significant behaviors that challenge and therefore require high levels of staff expertise to meet their needs. Underpinned by the theory of care aesthetics, our primary aim was to raise the visibility of HCSWs' everyday practice in this under-researched area of dementia. Working with three mental health wards over two sites, we used an exploratory, participatory action research methodology with qualitative and ethnographic methods to refine and clarify our understanding of care aesthetics in this practice setting. Over the course of the study, and through a series of collaborative learning groups in each site, we developed an explanatory practice model applying constant comparative analysis to the data to ensure that each stage of the model was iteratively developed and refined with the participating HCSWs. The model demonstrates how HCSWs use sensory, embodied, and relational practice to effectively \"tune in\" to the person with dementia, to the ward and their colleagues, to themselves and their values, to their craft, and to ward visitors. Being co-present was a resulting linking schema that demonstrated high-quality in-the-moment person-centered care. The model illustrates the range of everyday practices delivered by HCSWs and how care aesthetics has the potential to inform and develop the language of person-centered dementia care.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251393890"},"PeriodicalIF":2.4,"publicationDate":"2025-12-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145709998","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Young Men and Relationship Breakdown: A Grounded Theory. 年轻男性与关系破裂：一个有根据的理论。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-12-07 DOI: 10.1177/10497323251398369

Michael J Wilson, John L Oliffe, Jacqui A Macdonald, Krista Fisher, Zac E Seidler

{"title":"Young Men and Relationship Breakdown: A Grounded Theory.","authors":"Michael J Wilson, John L Oliffe, Jacqui A Macdonald, Krista Fisher, Zac E Seidler","doi":"10.1177/10497323251398369","DOIUrl":"https://doi.org/10.1177/10497323251398369","url":null,"abstract":"Intimate partner relationship breakdown is a significant risk factor for suicide in men. Linked to this risk is the emotional upheaval tied to grief and loss-an area that has received little research attention in young men. This study aimed to theorize the emotional and social processes by which young men react to and recover from relationship breakdown. Twenty-two Australian men (aged 19-30 years) who had been through a breakup in the preceding three years participated in individual semi-structured interviews. Constructivist grounded theory was used to analyze interviews and explicate a theory of post-breakup reaction and recovery, that was conceptually advanced with a masculinities framework. Our theory highlighted a process of mixing emotions, where diverse emotions interacted to exacerbate or buffer a core of sadness. The mixing of emotions often spilled into overwhelm, indicated by massing emotions and featuring suicidality for some young men. In response, young men mobilized varied strategies for managing emotions, featuring interlinked processes of withdrawing, distracting, and expressing. With time, recovering was indicated by prioritizing self, wherein participants purposefully centered their needs as requisite to healing. This comprised triaging influences, where young men simultaneously engaged social supports, amid disregarding peer advice to immediately re-partner as this was deemed incompatible with recovering. Finally, in reconciling, young men took on their breakup experiences as a source of learning and resilience. Findings add to the growing body of evidence centering healthy adjustment to relationship breakdown as critical for suicide prevention in men.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251398369"},"PeriodicalIF":2.4,"publicationDate":"2025-12-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145702349","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

From Small Ripples to a Sea Change: Elucidating Long-Term and Multi-Level Youth Mental Health Intervention Impacts Using Ripple Effects Mapping. 从微小的涟漪到海洋变化：利用涟漪效应映射来阐明长期和多层次的青少年心理健康干预影响。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-12-04 DOI: 10.1177/10497323251398385

Emily Jenkins, Tonje M Molyneux, Liza McGuinness, Corey McAuliffe, Constance Easton

{"title":"From Small Ripples to a Sea Change: Elucidating Long-Term and Multi-Level Youth Mental Health Intervention Impacts Using Ripple Effects Mapping.","authors":"Emily Jenkins, Tonje M Molyneux, Liza McGuinness, Corey McAuliffe, Constance Easton","doi":"10.1177/10497323251398385","DOIUrl":"https://doi.org/10.1177/10497323251398385","url":null,"abstract":"Ripple effects mapping (REM), a qualitative participatory approach to intervention evaluation, is gaining recognition as a useful method for elucidating the long-term intended and unintended impacts of complex public health interventions. The present study applied an adapted REM approach to capture systems and community change associated with the Agenda Gap program. This population-level youth mental health promotion intervention is embedded in multi-sectoral partnerships with long-term and relational outcomes post-program that are difficult to elucidate using traditional program evaluation methods. Using transcript and mind map data generated through an REM process with former Agenda Gap youth collaborators and adult allies, reflexive thematic analysis supported the construction of three thematic program outcomes: (1) Reimagining Future Possibilities, (2) Systems Integration: Transforming School Practices, and (3) Progressing From Ripple Effects to Sea Change. Spanning socioecological levels (i.e., individual, family, community, and societal), the outcomes and their associated sub-themes captured the meaningful impacts experienced by Agenda Gap participants, as well as those more distal to the intervention, in the years following implementation. These findings demonstrate the substantive, multi-level impacts of the program and also illustrate how qualitative, participatory approaches, such as REM, can complement other forms of evaluation to reveal outcomes that are typically overlooked. Recommendations and implications for future research and applications of REM are offered.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251398385"},"PeriodicalIF":2.4,"publicationDate":"2025-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145679155","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Navigating Uncertainty: Professional Trajectories and Recognition Boundaries in Integrative Medicine in Spain. 导航不确定性：专业轨迹和识别边界在西班牙的结合医学。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-11-26 DOI: 10.1177/10497323251385881

Rosa Martínez-Cuadros, Maribel Blázquez-Rodríguez, Mónica Cornejo-Valle, Mar Griera

{"title":"Navigating Uncertainty: Professional Trajectories and Recognition Boundaries in Integrative Medicine in Spain.","authors":"Rosa Martínez-Cuadros, Maribel Blázquez-Rodríguez, Mónica Cornejo-Valle, Mar Griera","doi":"10.1177/10497323251385881","DOIUrl":"https://doi.org/10.1177/10497323251385881","url":null,"abstract":"Integrative medicine should be understood not as an isolated entity but as a boundary field-a contested space where medical legitimacy, scientific authority, and professional jurisdiction are continuously negotiated. The Spanish case illustrates how regulation functions not merely as a technical or legal instrument but as a mechanism that structures professional practice while also defining what constitutes legitimate medical knowledge. In the absence of formal recognition, integrative medicine practitioners in Spain operate in a contested space where legal ambiguity, institutional constraints, and economic pressures shape their professional trajectories. Drawing on in-depth interviews with Spanish medical professionals engaged in integrative practices, this article explores how these practitioners navigate this terrain and makes two main contributions. First, at the empirical level, it provides one of the first in-depth qualitative analyses of the professional trajectories of integrative medicine practitioners in Spain, a context where CAM remains legally unregulated and politically contested. Second, at the theoretical level, it introduces the concept of \"recognition boundaries\" to capture how legitimacy is not only a matter of institutional inclusion but also of symbolic and cultural validation. By building on boundary theory and Lamont's work on recognition, we argue that recognition boundaries operate as dynamic, contested markers that shape what is considered acceptable within medical institutions-and who is authorized to speak and act as a legitimate professional. This concept may be applicable to other health systems where professionals operate in liminal spaces, negotiating belonging in the absence of institutional support.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251385881"},"PeriodicalIF":2.4,"publicationDate":"2025-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145606923","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Lived Experience of Mortality in Cancer Care: A Phenomenologically Grounded Qualitative Study of Being-Towards-Death. 癌症护理中死亡的生活经验：一种现象学基础的面向死亡的定性研究。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-11-26 DOI: 10.1177/10497323251395568

Thomas Byrne, Susan E Leggett, Jonas Techmanski, Aaryanna Zapata, Fanny Smithing, Rami Jameel, Richard Jun, Josh MacLeod, Addison McMillian, Vishwa Mallampooty, Peyton Blodgett, Joseph Tennant, Sheldon T White, Liangtong Wu

{"title":"The Lived Experience of Mortality in Cancer Care: A Phenomenologically Grounded Qualitative Study of Being-Towards-Death.","authors":"Thomas Byrne, Susan E Leggett, Jonas Techmanski, Aaryanna Zapata, Fanny Smithing, Rami Jameel, Richard Jun, Josh MacLeod, Addison McMillian, Vishwa Mallampooty, Peyton Blodgett, Joseph Tennant, Sheldon T White, Liangtong Wu","doi":"10.1177/10497323251395568","DOIUrl":"https://doi.org/10.1177/10497323251395568","url":null,"abstract":"This paper presents findings from qualitative interviews with 19 cancer patients and survivors, examining how they experience and articulate the existential structure Heidegger calls being-towards-death. The study accomplishes two goals. First, it responds to the widespread misinterpretation of Heidegger in contemporary death studies, palliative care, and psycho-oncology. While existing research often treats being-towards-death as a vague metaphor or rhetorical gesture, this study takes Heidegger's account as a serious philosophical framework. Our team-composed largely of phenomenological philosophers-integrated his concepts into every stage of inquiry, from the design of interview protocols to the interpretation of participant narratives. We also employed an original qualitative method, presented in a form that is clear and transferable to future research. Second, we show how engaging Heidegger's account as a substantial framework has direct and unsettling implications for clinical care. If care is to address the human being-not merely stabilize the body-then two practices must be reconsidered. First, the collapse of meaning following diagnosis should not automatically be pathologized, but recognized as a possible opening to authentic existence. Second, symbolic reframing, legacy projects, and spiritual reassurance are not neutral forms of support. They function to deny death's finality and re-anchor the patient in social norms just as those norms begin to lose their hold. Rather than fostering resilience, these strategies may interrupt the one moment when patients can begin to live-and die-on their own terms.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251395568"},"PeriodicalIF":2.4,"publicationDate":"2025-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145606934","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0