Qualitative Health Research最新文献

Creating "a Safe Place to Go": Yarning With Health Workers About Stroke Recovery Care for Aboriginal Stroke Survivors-A Qualitative Study. 创造 "安全去处"：与医护人员一起学习土著卒中幸存者的卒中康复护理--定性研究。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-01 Epub Date: 2024-08-28 DOI: 10.1177/10497323241268776

Heidi Janssen, Simone Owen, Amy Thompson, Jackson Newberry-Dupe, Natalie Ciccone, Reakeeta Smallwood, Uncle Neville Sampson, Vickie Brandy, Joe Miller, Aunty Audrey Trindall, Rachel Peake, Kim Usher, Christopher Levi

{"title":"Creating \"a Safe Place to Go\": Yarning With Health Workers About Stroke Recovery Care for Aboriginal Stroke Survivors-A Qualitative Study.","authors":"Heidi Janssen, Simone Owen, Amy Thompson, Jackson Newberry-Dupe, Natalie Ciccone, Reakeeta Smallwood, Uncle Neville Sampson, Vickie Brandy, Joe Miller, Aunty Audrey Trindall, Rachel Peake, Kim Usher, Christopher Levi","doi":"10.1177/10497323241268776","DOIUrl":"10.1177/10497323241268776","url":null,"abstract":"Stroke affects Aboriginal people at disproportionate rates compared to other populations in Australia. Aboriginal peoples are less likely to receive a timely stroke diagnosis, or timely culturally responsive treatment, as there are very few stroke resources and recovery plans that have been developed by Aboriginal peoples for Aboriginal peoples. Understanding how to develop and implement culturally responsive stroke care requires research approaches that are informed by and with Aboriginal people. A qualitative Indigenous research methodology including \"yarning\" was undertaken to understand the experiences of both Aboriginal and non-Aboriginal health workers from nine health services providing stroke rehabilitation and recovery support to Aboriginal people living within the participating communities. Data were analyzed using an inductive approach driven by an Indigenous research approach. Yarns revealed three themes: (i) the role of culturally safe health environments to support stroke survivors, their family, and health workers; and how (ii) complicated, under-resourced systems impede the capacity to support stroke survivors; and (iii) collaborative and adaptive practices prevent people \"falling through the cracks.\" This study highlights the need to scrutinize the cultural safety of health care, current health systems, workforce, and culture and how these influence the capacity of health workers to provide care that is responsive to the individual needs of Aboriginal stroke survivors and their families. These learnings will inform the co-design of a culturally responsive stroke recovery care strategy to improve the recovery experience and health and well-being of Aboriginal people and their families living with stroke.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"366-378"},"PeriodicalIF":2.6,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142086330","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Dealing With Temporality in Patients With Life-Limiting Disease: An International Qualitative Study. 限期生存疾病患者的时间性处理：一项国际定性研究。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-01 Epub Date: 2024-08-26 DOI: 10.1177/10497323241263751

Melanie Joshi, Guðlaug Helga Ásgeirsdóttir, Miša Bakan, Hana Kodba Čeh, Dagny Renata Faksvåg Haugen, Urška Lunder, Eva Víbora Martín, Beth Morris, Birgit H Rasmussen, Elisabeth Romarheim, Vilma Tripodoro, Agnes van der Heide, Verónica Veloso, Berivan Yildiz, Sofía Zambrano, Julia Strupp, Raymond Voltz

{"title":"Dealing With Temporality in Patients With Life-Limiting Disease: An International Qualitative Study.","authors":"Melanie Joshi, Guðlaug Helga Ásgeirsdóttir, Miša Bakan, Hana Kodba Čeh, Dagny Renata Faksvåg Haugen, Urška Lunder, Eva Víbora Martín, Beth Morris, Birgit H Rasmussen, Elisabeth Romarheim, Vilma Tripodoro, Agnes van der Heide, Verónica Veloso, Berivan Yildiz, Sofía Zambrano, Julia Strupp, Raymond Voltz","doi":"10.1177/10497323241263751","DOIUrl":"10.1177/10497323241263751","url":null,"abstract":"The prospect of death influences people's thoughts about and how they deal with their remaining time. We aimed to understand whether patients with progressive, life-limiting diseases are oriented in the past, present, or future and how they deal with temporality. We conducted 57 in-depth interviews with end-of-life patients in 10 countries using thematic analysis at three levels (i.e., locally in three countries, with codes shared in the three-country subgroup, and in all 10 countries with a codebook that we developed). We found that the patients' thoughts were oriented toward all three time levels (i.e., past, present, and future). Complementing these levels, we identified another, namely, the future after death. Each time level included patients actively and passively dealing with their thoughts. Past themes were remorse and regret, nostalgia, and coming to terms with past choices; present themes were feeling grateful for being alive, a time for farewells, and living for the day; future themes were worries about the future, to miss out, hope, ideas about death and dying, and planning the near future; and future after death themes were not being there, worries about loved ones, and preparations for a future after death. A changed view on lifetime and avoidance of thinking about a certain time level related to several time levels, while desire to die fluctuated between levels and between acting on and feeling about it. Living for the day, worries about the future, and worries about the well-being of loved ones were common themes in all countries.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"335-348"},"PeriodicalIF":2.6,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142074251","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Disruption and Improvisation: Experiences of Loneliness for People With Chronic Illness. 中断与即兴：慢性病患者的孤独体验》。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-01 Epub Date: 2024-08-26 DOI: 10.1177/10497323241265329

Melissa Mei Yin Cheung, Sophie Lewis, Revati Raja, Karen Willis, Leslie Dubbin, Anne Rogers, Maja Lindegaard Moensted, Lorraine Smith

{"title":"Disruption and Improvisation: Experiences of Loneliness for People With Chronic Illness.","authors":"Melissa Mei Yin Cheung, Sophie Lewis, Revati Raja, Karen Willis, Leslie Dubbin, Anne Rogers, Maja Lindegaard Moensted, Lorraine Smith","doi":"10.1177/10497323241265329","DOIUrl":"10.1177/10497323241265329","url":null,"abstract":"Chronic illness can disrupt many aspects of life, including identity, social relationships, and anticipated life trajectories. Despite significant scholarship on chronic illness, we know less about the ways in which chronic illness impacts feelings of loneliness and how people with chronic illness deal with loneliness. Drawing on concepts of biographical disruption and liminality and data from walking and photo-elicitation interviews with 14 people, we aimed to explore how people with chronic illness experience loneliness in their everyday lives. Tracing how past and present illness experiences are implicated in the lived experience of loneliness and the strategies people use to manage loneliness, our findings illustrated that being caught in a liminal state where participants struggled to maintain and adapt to a new normality in life with chronic illness was a central thread woven throughout their experience of loneliness. Although participants drew on their personal agency and adopted strategies to account for, manage, and limit disruptions from chronic illness and loneliness, they found that their strategies were not completely effective or satisfactory. Chronic illness and loneliness continue to be largely considered as an individual's problem, limiting opportunities for people with chronic illness who experience loneliness to seek support and social connection. Our research highlighted that chronic illness and loneliness need to be acknowledged as both a personal and collective problem, with multi-level responses that involve individuals, communities, and society.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"319-334"},"PeriodicalIF":2.6,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11852523/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142074252","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring the Health Impact of Intersectional Minority Identity Stressors on Arab Sexual Minority Women Migrants to the United States. 探索交叉少数群体身份压力对移居美国的阿拉伯性少数群体妇女的健康影响。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-01 Epub Date: 2024-08-22 DOI: 10.1177/10497323241265288

Aeysha Chaudhry, Jennifer Hebert-Beirne, Edward J Alessi, Maya Z Khuzam, Uchechi Mitchell, Yamile Molina, Dhuha Wasfie, Samara Fox, Sarah Abboud

{"title":"Exploring the Health Impact of Intersectional Minority Identity Stressors on Arab Sexual Minority Women Migrants to the United States.","authors":"Aeysha Chaudhry, Jennifer Hebert-Beirne, Edward J Alessi, Maya Z Khuzam, Uchechi Mitchell, Yamile Molina, Dhuha Wasfie, Samara Fox, Sarah Abboud","doi":"10.1177/10497323241265288","DOIUrl":"10.1177/10497323241265288","url":null,"abstract":"Using an intersectionality lens and the minority stress theory as our theoretical grounding, this qualitative study is the first to examine the mental health of Arab sexual minority women (SMW) migrants to the United States. The study aimed to (1) explore the perceptions and experiences of intersectional minority identity-related life stressors and (2) discern their impact on the mental health of first-generation Arab SMW migrants. From December 2022 to March 2023, we conducted 20 semi-structured interviews with Arab SMW migrants. Guided by principles of community engagement in research, four community advisors, including three Arab SMW migrants and a mental health service provider, assisted in mock interviews, recruitment, and data analysis. This enriched our thematic analysis providing a nuanced understanding of Arab SMW migrant experiences. Participants reflected diverse nationalities, socioeconomic statuses, and religions and identified as lesbian, bisexual, or queer. Our sample included asylum seekers, documented migrants, and non-binary individuals (assigned female at birth). Findings revealed three major themes: (1) Community- and Interpersonal-Level Stressors, (2) Strategies for Coping with Stressors, and (3) Impact of Intersectional Life Stressors on Mental Health. Community- and interpersonal-level stressors included challenges navigating migration-related stressors, rejection and discrimination from the Arab, queer, and dominant-group (i.e., non-Arab, non-White) communities, and experiences of invalidation of their intersectional identities. Coping mechanisms included avoidance, identity concealment, and seeking social support. Participants reported various mental health impacts, from anxiety, depression to suicidal thoughts, emphasizing the urgency for tailored interventions. Participants called for the development of support groups specifically for Arab SMW migrants.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"305-318"},"PeriodicalIF":2.6,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142019133","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Conceptualizing Community Engagement for Mental and Brain Health Research in Low- and Middle-Income Countries: A Case of Kilifi County, Kenya. 中低收入国家精神与脑健康研究的社区参与概念化：肯尼亚基利菲县案例。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-01 Epub Date: 2024-08-19 DOI: 10.1177/10497323241255084

Edna N Bosire, Linda Khakali, Jasmit Shah, Lucy Wambui, Andrew Aballa, Willie Njoroge, Anthony Ngugi, Zul Merali

{"title":"Conceptualizing Community Engagement for Mental and Brain Health Research in Low- and Middle-Income Countries: A Case of Kilifi County, Kenya.","authors":"Edna N Bosire, Linda Khakali, Jasmit Shah, Lucy Wambui, Andrew Aballa, Willie Njoroge, Anthony Ngugi, Zul Merali","doi":"10.1177/10497323241255084","DOIUrl":"10.1177/10497323241255084","url":null,"abstract":"Community engagement (CE) has increasingly been recognized as a critical element for successful health promotion and intervention programs. However, the term CE has been used to mean different things in different settings. In this article, we explore how CE has been conceptualized in the field of mental and brain health in Kilifi County, Kenya. We used ethnographic methods encompassing focused group discussions, key informant interviews, and observations with 65 participants, purposively recruited from Kilifi County. Data were transcribed verbatim and thematically analyzed. Our findings show that community members and stakeholders had diverse perceptions of and experiences with CE. Factors such as trust between researchers and community members, sensitization, and awareness creation were key for acceptance of research projects. Partial involvement in research, lack of access to information, poverty and socio-economic challenges, and financial expectations from researchers hindered CE and led to resistance to participation in research projects. For effective CE, there is a need to work closely with community gatekeepers, create awareness of the research projects, use local languages, and ensure continuous engagement that promotes equitable research participation. Our findings suggest that tacit knowledge, context, and mechanisms for research are all critical features of CE and should be considered to enhance acceptance and sustainability of mental and brain health interventions in Kenya.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"275-290"},"PeriodicalIF":2.6,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142005596","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Black Family Members' Experiences and Interpretations of Supportive Resources for Them and Their Relatives With Substance Use Disorders: A Focused Ethnography. 黑人家庭成员的经历及其对为他们及其患有药物使用障碍的亲属提供的支持性资源的理解：重点民族志。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-01 Epub Date: 2024-08-30 DOI: 10.1177/10497323241263261

Esther N Monari, Richard Booth, Cheryl Forchuk, Rick Csiernik

{"title":"Black Family Members' Experiences and Interpretations of Supportive Resources for Them and Their Relatives With Substance Use Disorders: A Focused Ethnography.","authors":"Esther N Monari, Richard Booth, Cheryl Forchuk, Rick Csiernik","doi":"10.1177/10497323241263261","DOIUrl":"10.1177/10497323241263261","url":null,"abstract":"While previous research explored the utilization of culturally supportive resources in multiethnic communities, there is a paucity of information regarding culturally relevant resources for Black Canadian family members. The study explored Black family members' experiences and interpretations regarding access to culturally supportive resources for family members and their relatives who suffer from substance use disorders. Black family members are defined as African Canadians, Caribbean Canadians, or Caribbean Blacks. A focused ethnography was conducted with a purposive sample of 26 Black family members in Ontario, Canada. The interviews were conducted from June to September 2021. Seventeen participants originated from parts of Africa, and nine were from different parts of the Caribbean. The participants comprised mothers (n = 5), fathers (n = 2), step-fathers (n = 1), husbands (n = 1), wives (n = 2), uncles (n = 5), aunties (n = 2), siblings (n = 5), in-laws (n = 2), and guardians (n = 1). Leininger's four Phases of Ethnonursing Qualitative Data Analysis were used for data analysis. Three themes were generated: (1) Navigating Existing Options and Resources for Families and Their Relatives; (2) Drawing upon Religion and Spirituality as Perceived Resources; and (3) Call for Culturally Relevant Programs for Substance Use Disorders Harm Reduction. Participants described experiencing a lack of culturally relevant resources and subsequently opting to navigate other resources. One such option was to send their relatives back to their country of origin to access cultural rehabilitation treatment options. There is a significant need for guidelines and policies regarding creating timely access to culturally relevant resources in Canada that support families and their relatives towards harm reduction and recovery outcomes.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"379-392"},"PeriodicalIF":2.6,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11852534/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113531","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Barriers to Childhood Immunization in Rural and Remote Areas: A Qualitative Exploration From the Perspectives of Community Leaders in Sindh, Pakistan. 农村和偏远地区儿童免疫接种的障碍：从巴基斯坦信德省社区领袖的角度进行的定性研究。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-01 Epub Date: 2024-08-27 DOI: 10.1177/10497323241263279

Sundeep Sahitia, Idayu Badilla Idris, Nazarudin Safian, Rozina F Ali, Khadijah Shamsuddin, Rozita Hod

{"title":"Barriers to Childhood Immunization in Rural and Remote Areas: A Qualitative Exploration From the Perspectives of Community Leaders in Sindh, Pakistan.","authors":"Sundeep Sahitia, Idayu Badilla Idris, Nazarudin Safian, Rozina F Ali, Khadijah Shamsuddin, Rozita Hod","doi":"10.1177/10497323241263279","DOIUrl":"10.1177/10497323241263279","url":null,"abstract":"Despite overall improvements observed at the national level, there is a significant disparity in childhood vaccination coverage rates between urban and rural regions, particularly within tribal and remote areas in Pakistan. Our study aimed to explore the views of community/tribal leaders concerning barriers and their local solutions for improving vaccine uptake, with a specific focus on remote settings. An exploratory qualitative research study was conducted from July to September 2019 in Shikarpur, Sindh, Pakistan. We interviewed 11 community leaders, after developing a semi-structured interview guide based on the health belief model. Following validation, the collected data was transcribed and subsequently translated into the English language. A stepwise process of manual familiarization, coding, theme generation, and theme review using an inductive approach was followed. While most of the rural community leaders expressed a willingness to support vaccinations, numerous unexplored barriers were identified. These barriers included an unsustainable communication system heavily dependent on polio mobile teams, discourteous behavior of healthcare personnel, cultural restrictions that limited women's involvement, economic hardships, limited transportation options, insufficient collaboration with the education sector, poor knowledge among community leaders, and security concerns. Additionally, they proposed some innovative solutions of information dissemination methods through the Ottaque system, ethics-based training, subsidized transportation services or voucher system, and addressing security concerns in collaboration with community leaders. Our findings suggest policymakers take both community leaders and members for an inclusive policy-making process to redraft the special policy for these remote and rural areas.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"349-365"},"PeriodicalIF":2.6,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142074250","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Collusion in the Clinic: Constructing Patients' Moral Responsibility to Treat Cancer.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-02-28 DOI: 10.1177/10497323251316768

Alexandra Tate, Tanya Stivers

引用次数: 0

Corrigendum to "A Prospective Qualitative Inquiry of Patient Experiences of Cognitive Functional Therapy for Chronic Low Back Pain During the RESTORE Trial".

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-02-27 DOI: 10.1177/10497323251320187

引用次数: 0

How Do University Students Navigate Distress? An Examination of Determinants, Coping Strategies, and Support Systems Through the Lens of Self-Determination Theory.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-02-10 DOI: 10.1177/10497323251315430

Daniel Hernández-Torrano, Laura Ibrayeva

{"title":"How Do University Students Navigate Distress? An Examination of Determinants, Coping Strategies, and Support Systems Through the Lens of Self-Determination Theory.","authors":"Daniel Hernández-Torrano, Laura Ibrayeva","doi":"10.1177/10497323251315430","DOIUrl":"https://doi.org/10.1177/10497323251315430","url":null,"abstract":"Entrance to university is marked by significant changes and challenges that can impact mental health and well-being. This study investigated the determinants of psychological distress, coping strategies used, and the availability of support systems among university students in a non-Western country through the lenses of self-determination theory. The thematic analysis of 16 in-depth interviews revealed several academic, socio-demographic, and situational factors crucial in facilitating or impeding university students' sense of self-determination and, consequently, their psychological distress. The study uncovered students' relative preference for avoidance coping mechanisms, the limited presence of perceived formal support systems in higher education institutions, and a clear reliance of students on informal sources of support to buffer the effects of distress. Moreover, it was evident that students perceived their higher education settings as leaning toward being controlling rather than autonomy-supportive. Implications for promoting well-being among university students are discussed.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251315430"},"PeriodicalIF":2.6,"publicationDate":"2025-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392175","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0