Qualitative Health Research最新文献

Integrating Equity, Diversity, and Inclusion Principles Into Qualitative Research Design.

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-10-07 DOI: 10.1177/10497323251376238

Jennifer Lane, Megan White, Neil Forbes, Neda Alizadeh, Helen Wong, Holly McCulloch, Emily K Drake, S M Kawser Zafor Prince, Tatianna Bolton, Kris Lane, Courtney Pennell, Lori Wozney

引用次数: 0

Cultural and Language Discrimination in Healthcare as Experienced by Basque Women and Gender Non-Normative Individuals in the Basque Country. 巴斯克地区巴斯克妇女和性别不规范个体在医疗保健中的文化和语言歧视

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-10-03 DOI: 10.1177/10497323251365466

Garbiñe Elizegi Narbarte, Stella Aguinaga Bialous, Iratxe Perez-Urdiales, Jennifer Elyse James, Leslie Dubbin

{"title":"Cultural and Language Discrimination in Healthcare as Experienced by Basque Women and Gender Non-Normative Individuals in the Basque Country.","authors":"Garbiñe Elizegi Narbarte, Stella Aguinaga Bialous, Iratxe Perez-Urdiales, Jennifer Elyse James, Leslie Dubbin","doi":"10.1177/10497323251365466","DOIUrl":"https://doi.org/10.1177/10497323251365466","url":null,"abstract":"Basque women and gender non-normative individuals are a part of an Indigenous and ethnic minority culture, thus more likely to be exposed to discrimination and sub-optimal healthcare services. This study explores their experiences with healthcare and identifies the barriers and facilitators to implement culturally safe healthcare practices in the Basque Country. We used a critical ethnographic approach to conduct 37 semi-structured interviews, 36 hours of health clinic observations, and 4 focus groups. Using a thematic analytic approach, we find that euskalfobia in the healthcare system presents a major barrier to culturally safe healthcare through the normalization of euskarafobia, systematic invisibilizing of Basque language and culture, and the devaluing of cultural healing practices. Language and culturally concordant care, acknowledgment of cultural healing practices, and training regarding the concept of cultural safety at an individual and institutional level can facilitate the implementation of cultural safety in the Basque context.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251365466"},"PeriodicalIF":2.4,"publicationDate":"2025-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145214206","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Improving the Ethics Review of Qualitative Health Research: A Comparison of Review Practices and Suggestions for Improvement by Researchers and Members of Research Ethics Committees. 改进质性健康研究的伦理审查：研究人员和研究伦理委员会成员的审查实践比较和改进建议。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-10-01 Epub Date: 2024-12-05 DOI: 10.1177/10497323241293709

Sarah Potthoff, Fee Roth, Jochen Vollmann, Matthé Scholten

{"title":"Improving the Ethics Review of Qualitative Health Research: A Comparison of Review Practices and Suggestions for Improvement by Researchers and Members of Research Ethics Committees.","authors":"Sarah Potthoff, Fee Roth, Jochen Vollmann, Matthé Scholten","doi":"10.1177/10497323241293709","DOIUrl":"10.1177/10497323241293709","url":null,"abstract":"Most qualitative health research is subject to ethics review and approval by a research ethics committee (REC). While many studies have identified the challenges that current ethics review practices pose to qualitative health research, there is currently a call to move the research focus from the shortcomings of ethics review practices to the possibilities for improvement. The aim of this grounded theory study was to identify possibilities for improvement of current ethics review practices which can count on endorsement from qualitative health researchers and members of REC alike. To this end, we developed interventions for improving review practices through a comparative analysis of qualitative health researchers' experiences with review practices and REC members' discussions about how their review practices operate. Data collection proceeded by means of problem-centered interviews with seven qualitative health researchers and three focus group discussions with 14 REC members in Germany. Our analysis shows two overarching dimensions in the ethics review practice related to the distribution of responsibility for ethically legitimate research and the reasons for ethical concerns about qualitative health research studies. While there was disagreement about concrete suggestions for improvement, our analysis shows that researchers and REC members pursue three shared overarching aims: increasing expertise in qualitative methods among REC members and researchers, improving communication between researchers and RECs, and tailoring ethics review procedures to qualitative health research. We conclude that researchers and REC members need to promote collaboration and collegiality to ensure ethically appropriate review practices for qualitative health research.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"1326-1341"},"PeriodicalIF":2.4,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142786038","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Chronic Concealment and Awareness in the Affective Worlds of Young People Living With Chronic Illness. 慢性疾病青年情感世界中的慢性隐藏与意识。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-10-01 Epub Date: 2024-12-04 DOI: 10.1177/10497323241304571

Imogen Harper, Alex Broom, Katherine Kenny

{"title":"Chronic Concealment and Awareness in the Affective Worlds of Young People Living With Chronic Illness.","authors":"Imogen Harper, Alex Broom, Katherine Kenny","doi":"10.1177/10497323241304571","DOIUrl":"10.1177/10497323241304571","url":null,"abstract":"From the onset of chronic illness, a variety of challenges emerge-challenges that both persist and evolve as life progresses. For young adults living with chronic illness, the age-specific difficulties of becoming ill while young form a foundation that shapes their experience of illness in enduring ways. This paper draws on a series of in-depth qualitative interviews with 33 young adults (aged 19-29 years old) living with a range of chronic illnesses, including fatigue syndromes, auto-immune diseases, and neurological conditions. Participants demonstrated an emergent chronic consciousness of how others perceived their health, which created a series of fraught affective tussles centered on relational recognition and feared judgment. This article explores the difficulties and concerns participants had when communicating the nature and realities of illness; the emotional toll of attempting to avoid attention and judgment from others regarding their conditions; and the ways in which others could productively and sensitively acknowledge participants' illness experiences. We demonstrate that the process of learning how to navigate these issues was one important way that participants began to integrate their illness (and its implications) into their emerging sense of self and adult life.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"1283-1296"},"PeriodicalIF":2.4,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12379040/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142773836","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Jarring Encounters: Discomfort, Disruption, and Dominant Narratives of Suicide. 不和谐的遭遇：不适、破坏和自杀的主导叙事。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-10-01 Epub Date: 2024-12-04 DOI: 10.1177/10497323241302653

Rebecca Helman, Sarah I Huque, Amy Chandler

{"title":"Jarring Encounters: Discomfort, Disruption, and Dominant Narratives of Suicide.","authors":"Rebecca Helman, Sarah I Huque, Amy Chandler","doi":"10.1177/10497323241302653","DOIUrl":"10.1177/10497323241302653","url":null,"abstract":"In researching experiences and understandings of suicide bereavement across diverse communities in Scotland, we expected to hear difficult, distressing, and painful narratives. However, one of the 31 in-depth qualitative interviews that we conducted was particularly and unexpectedly jarring. In this narrative, Freya explained how her ex-partner took his life after she escaped from his domestic abuse. This narrative produces a deep sense of discomfort in the interviewer, as her expectations about suicide bereavement are disrupted. Taking this discomfort as a starting point, we explore what this jarring encounter tells us about dominant and absent narratives of suicide. We interrogate how this narrative of suicide within the context of domestic violence perpetration bumps up against dominant narratives of a \"male suicide crisis\" and \"relationship breakdown,\" through which men are positioned solely as \"victims.\" Drawing on perspectives from feminist, affective, and reflexive qualitative research, critical suicide studies, and an abductive approach to analysis, we explore how attending to uncomfortable feelings that are generated within the research encounter can enable us to develop more complex, nuanced, and messy understandings of suicide.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"1297-1310"},"PeriodicalIF":2.4,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12379052/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142773840","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Made for or Made by? A Qualitative Investigation into the Diverse Practices and Roles of Medical Congress Participants. 为谁制造还是由谁制造？对医学大会参与者的不同实践和角色的定性调查。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-10-01 Epub Date: 2024-12-09 DOI: 10.1177/10497323241301610

Anna Schneider-Kamp, Finja Petersen

{"title":"Made for or Made by? A Qualitative Investigation into the Diverse Practices and Roles of Medical Congress Participants.","authors":"Anna Schneider-Kamp, Finja Petersen","doi":"10.1177/10497323241301610","DOIUrl":"10.1177/10497323241301610","url":null,"abstract":"Medical congresses play a pivotal role in the continuing medical education of healthcare professionals (HCPs), particularly in light of the rapid advancements in medical knowledge and technology. Notwithstanding, little is known about the internal dynamics of such events and how they contribute to the learning processes in communities of health professional practice. This study aims to uncover and elucidate what motivates HCPs to participate in medical congresses and how they experience their participation through a qualitative study. Attending six in-person medical congresses in Western Europe in 2023, we collected data through a combination of ethnographic methods including 69 in-situ interviews, 17 in-depth interviews, and extensive participant observations. We analyzed the role of the physical environment, participant motivation, interdisciplinarity, and participant diversity for medical congress attendance, ultimately identifying four types of congress participants: Explorers, Newcomers, Drivers, and Updaters, each characterized by unique patterns of professional experience and engagement within the professional communities. Our findings elucidate the complex motivational landscape of medical congress participants, where the desire for learning is routinely complemented by the pursuit of peer recognition. Our insights and the qualitative typology of medical congress participants introduced have the potential to optimize continuous medical education and shape the structure of future medical congresses by shedding light on the evolving needs of HCPs in diverse medical fields.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"1378-1392"},"PeriodicalIF":2.4,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142802588","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Psychological Effects of Guillain-Barré Syndrome: A Grounded Theory Study. 格林-巴勒综合征的心理效应：一个扎根的理论研究。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-10-01 Epub Date: 2024-12-09 DOI: 10.1177/10497323241304641

Katie Bell, S J Summers, Jenna Moffitt, Geoff Hill

引用次数: 0

Adaptability as a Journey: A Constructivist Grounded Theory Study Exploring the Transition to Motherhood in the Context of Bipolar Disorder. 适应性之旅：建构主义理论在双相障碍背景下向母性过渡的探索。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-10-01 Epub Date: 2024-12-05 DOI: 10.1177/10497323241297076

Aigli Raouna, Andreea Miruna Mihut, Angus MacBeth

{"title":"Adaptability as a Journey: A Constructivist Grounded Theory Study Exploring the Transition to Motherhood in the Context of Bipolar Disorder.","authors":"Aigli Raouna, Andreea Miruna Mihut, Angus MacBeth","doi":"10.1177/10497323241297076","DOIUrl":"10.1177/10497323241297076","url":null,"abstract":"Despite growing evidence that women with bipolar disorder (BD) diagnoses are at a particularly increased risk for perinatal mental and physical health complications, our understanding of their experiences and support needs from pre-conception to early postnatal years is still in its early stages. To address this gap, a qualitative study was carried out employing a constructivist grounded theory approach to identify the underlying processes shaping women's journeys to motherhood in the context of BD. In-depth, semi-structured online interviews were conducted with 10 mothers worldwide with a pre-existing diagnosis of BD and a first child under 5 years of age. Mothers' experiences revolved around a constant interplay between vulnerability and adaptability, leading to the development of the substantive theory of adaptability as a journey. This study proposes that becoming adaptable constitutes a process, with the concept of \"projecting adaptability\" being influential in this journey. Characterized by the interconnected elements of self-awareness of vulnerability, perceived support from external sources, and ownership of experiences, the ability to envision an adaptable version of oneself along with understanding the path to achieving it played a significant role in women's experiences. Overall, there is a need for a more dynamic understanding of these experiences, providing appropriate support rather than viewing women as simply vulnerable or adaptable. Further research is necessary to explore the transferability of this theoretical framework, especially among mothers from diverse socio-economic backgrounds.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"1311-1325"},"PeriodicalIF":2.4,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12379046/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142785741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Navigating "Being Seen": Experiences of Older Adult Arab Immigrants and Family Caregivers Accessing Health Care Services in Ontario. 导航“被看到”：老年阿拉伯移民和家庭照顾者在安大略省获得医疗保健服务的经验。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-10-01 DOI: 10.1177/10497323251367171

Selma Tobah, Lorie Donelle, Jodi Hall, Lloy Wylie, Sandra Regan

{"title":"Navigating \"Being Seen\": Experiences of Older Adult Arab Immigrants and Family Caregivers Accessing Health Care Services in Ontario.","authors":"Selma Tobah, Lorie Donelle, Jodi Hall, Lloy Wylie, Sandra Regan","doi":"10.1177/10497323251367171","DOIUrl":"https://doi.org/10.1177/10497323251367171","url":null,"abstract":"Immigrants to Canada face unique barriers to accessing health care including communication barriers, socioeconomic limitations, and a lack of health care system navigation knowledge. Arabs in particular face mainstream negative attitudes, propagated through political discourses as well as entertainment media. We sought to understand how older adult Arab immigrants and family caregivers accessed and experienced health care in Ontario. We conducted a critical constructivist grounded theory, using Charmaz's approach to grounded theory. A critical constructivist grounded theory method asks not only \"what\" social processes are happening and \"how\" but also \"why\" and \"who\" benefits. Both older adult immigrant Arabs and family caregivers negotiated their visibility and being seen in the context of accessing health care. The subcategories co-constructed grounded in the data resulted in the grounded theory of being seen. The four subcategories included (1) Being seen as family, (2) Being seen by the Arab community, (3) Being seen in their countries of origin, and (4) Being seen as foreign. We found participants to be describing how and when they are being seen in health care settings, by health care providers, in relation to their diasporic communities, and in the context of their visibility as minorities in Canada. These findings point to the ways in which health care providers can begin to consider Arab older adult immigrants as service users to reduce barriers to service access and delivery.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251367171"},"PeriodicalIF":2.4,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145201700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Long-Term Adverse Effects After Electroconvulsive Therapy (ECT): A Narrative Analysis Exploring People's Experiences, Meaning-Making, and Coping. 电休克治疗（ECT）后的长期不良反应：一个探索人们经历、意义制造和应对的叙事分析。

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-10-01 Epub Date: 2024-12-09 DOI: 10.1177/10497323241303391

Emily Shipwright, David Murphy

{"title":"Long-Term Adverse Effects After Electroconvulsive Therapy (ECT): A Narrative Analysis Exploring People's Experiences, Meaning-Making, and Coping.","authors":"Emily Shipwright, David Murphy","doi":"10.1177/10497323241303391","DOIUrl":"10.1177/10497323241303391","url":null,"abstract":"Approximately 2500 people receive electroconvulsive therapy (ECT) annually in the United Kingdom; however, there is growing evidence of long-term adverse effects. Few studies have focused on people's experience of ECT, particularly over the long term. The experience of ECT is known to be complex, requiring qualitative exploration. Therefore, this study aimed to explore the long-term adverse experiences of ECT, including psychological impacts, meaning-making, and coping. Narrative analysis considered thematic, structural, and performative elements of seven people's stories. Themes were explored across the timeline of participants' experiences. Before ECT, participants felt misinformed regarding ECT and misunderstood by healthcare professionals. They noticed immediate changes in their cognition, memory, and mood after ECT. Returning home was important in participants' discovery of differences. Long-term impacts were loss (of ability, memory, humanity, and connection), the realization that ECT had been damaging, and understanding ECT to have caused brain damage. The extensive nature of loss experienced by participants was comparable to the concept of ambiguous loss. They experienced a lack of follow-up care and denial of their experiences, which could contribute to psychological iatrogenic harm. Participants coped with adverse experiences by using prompts and strategies and connecting with others. Further research is needed into the adverse long-term effects of ECT, especially considering cognitive effects, memory loss, and how these contribute to a changed sense of self. Service development is urgently required, especially for ECT follow-up care.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"1365-1377"},"PeriodicalIF":2.4,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12379039/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142802495","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0