Qualitative Health Research最新文献_第2页

Sankofa: The Relevance of the Past for the Future of Qualitative Health Research. 胜博发：过去对未来定性健康研究的意义。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-04-01 Epub Date: 2025-04-02 DOI: 10.1177/10497323251322421

Jori N Hall, Lorien S Jordan

引用次数: 0

"It's Like a Double Whammy!": A Photo-Phenomenological Analysis of the Experiences of Lesbian, Gay, Bisexual, and Queer People Living With Multiple Sclerosis.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-04-01 Epub Date: 2025-04-02 DOI: 10.1177/10497323241309583

Periklis Papaloukas, Iain Williamson

{"title":"\"It's Like a Double Whammy!\": A Photo-Phenomenological Analysis of the Experiences of Lesbian, Gay, Bisexual, and Queer People Living With Multiple Sclerosis.","authors":"Periklis Papaloukas, Iain Williamson","doi":"10.1177/10497323241309583","DOIUrl":"https://doi.org/10.1177/10497323241309583","url":null,"abstract":"Multiple sclerosis (MS) is a neurological, autoimmune condition which affects the nervous system, creating several physiological and psychosocial issues. Simultaneously, there is an expanding body of research on lesbian, gay, bisexual, and queer (LGBQ) populations which indicates health inequalities due to heteronormativity. Despite this, research exploring chronic illness, neurological conditions, and MS within LGBQ contexts remains limited. Therefore, we aimed to investigate the experience of LGBQ people living with MS. We undertook a culturally responsive multi-method approach, employing verbal and visual data through phenomenological interviews and participant-authored photographs. Twenty-three LGBQ individuals from several countries took part. All data collected from the three groups were analyzed separately using interpretative phenomenological analysis (IPA). We created three interrelated themes: (a) (Loss and) the perceived incompatibility of MS and LGBQ Identities, (b) Multiple stigmas, estrangement, and discrimination, and (c) Surfacing through community, resistance, and resilience. It was revealed that from the moment of confirmed MS diagnosis, LGBQ individuals in this study appear to progress to an individual transformation of the self. Subsequently, the LGBQ persons living with MS typically experience an amended social exposure whereby they experience the enhanced force of multiple stigmas and incidents of discrimination. However, participants noted reaction and resistance against both the attack of MS on their identity and against the multiple discriminations. These different phases and stages are revisited and retouched dynamically and non-linearly, echoing the fluidity and episodic nature of MS. The findings have academic and real-world impact through recommendations for advocacy, policy change, future research, and healthcare.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":"35 4-5","pages":"522-538"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143765510","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring "Language of Suffering": Idioms of Distress Among Eritrean Refugees Living in Israel. 探索 "苦难语言"：生活在以色列的厄立特里亚难民的苦难成语。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-04-01 Epub Date: 2025-04-02 DOI: 10.1177/10497323241309253

Maya Fennig, Myriam Denov

{"title":"Exploring \"Language of Suffering\": Idioms of Distress Among Eritrean Refugees Living in Israel.","authors":"Maya Fennig, Myriam Denov","doi":"10.1177/10497323241309253","DOIUrl":"https://doi.org/10.1177/10497323241309253","url":null,"abstract":"In this paper, we explore idioms of distress among Eritrean refugees currently living in Israel, a refugee population that has experienced profound forms of violence and upheaval in their country of origin, yet largely overlooked in clinical research. A significant portion of Eritrean refugees have, over the past decade, sought asylum in Israel, and Eritrean refugees make up Israel's largest refugee population. To explore their unique idioms of distress, data collection methods included 200 hours of participant observation. It also involved in-depth interviews with Eritrean refugees (n = 26) and key informant interviews (n = 9) with people of Eritrean descent, who were not only active in the Eritrean community but also engaged in service provision for community members. Findings uncovered four groups of idioms of distress for our Eritrean sample including mind-head-related idioms (Bzuh mhasab, Ab aemroy selam ysen, Bzuh hasabat nab resey ymetseni, Hamam Resi), distress-related idioms (Chincket, Tsekti, and Tsulul), trauma-related idioms (Sineaemrawi Smbrat), and supernatural-related idioms (Buda and Tabib). Our findings reveal that Eritrean refugees possess distinct idiomatic expressions rooted in broader cultural frameworks and systems of knowledge. These idioms reference a range of both pathological and non-pathological states, with meanings that may vary based on factors such as education, gender, duration of stay in the host country, and context of use. We argue that clinicians need to take the time to listen to refugees' \"language of suffering\" and its cultural and contextual complexities in order to better understand their patients' distress and provide more culturally appropriate and effective care.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":"35 4-5","pages":"476-490"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143765538","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Love and Tradition of the Grand Design: Exploring Culturally Responsive Qualitative Methods With Intergenerational and Intercultural Teams and Participants.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-04-01 Epub Date: 2025-04-02 DOI: 10.1177/10497323251321710

Asha S Winfield, Nabila Mushtarin, Joshua Jordan

{"title":"Love and Tradition of the Grand Design: Exploring Culturally Responsive Qualitative Methods With Intergenerational and Intercultural Teams and Participants.","authors":"Asha S Winfield, Nabila Mushtarin, Joshua Jordan","doi":"10.1177/10497323251321710","DOIUrl":"https://doi.org/10.1177/10497323251321710","url":null,"abstract":"In this reflective article, our research team discusses the lessons, tools, and experiences we gained while conducting culturally responsive qualitative research (CRQR) in the Deep US South. According to researchers, CRQR is a research methodology that includes qualitative designs and centers culture. With CRQR in mind, our team takes a look at four different research projects and a graduate class service-learning trip to explore the impacts of qualitative health research on both the participants and the researchers. Moreover, our intercultural team, which is composed of intergenerational researchers, discusses how to conduct research with participants living in the culturally rich, politically diverse, historically complex region of Gulf South. From the rural communities in North Louisiana to the capital city of Baton Rouge to Cancer Alley near our beloved New Orleans, we identified several tools and lessons we gathered at each pedagogical site. We share those lessons as storied data for other emerging researchers in the field.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":"35 4-5","pages":"491-505"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143765528","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring the Role of Language Choice: A Catalyst for Transforming Research Dynamics and Relationships.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-04-01 Epub Date: 2025-04-02 DOI: 10.1177/10497323251315444

Pei-Jung Li, Xinqing Dorcas Miao

{"title":"Exploring the Role of Language Choice: A Catalyst for Transforming Research Dynamics and Relationships.","authors":"Pei-Jung Li, Xinqing Dorcas Miao","doi":"10.1177/10497323251315444","DOIUrl":"https://doi.org/10.1177/10497323251315444","url":null,"abstract":"With the increasing multicultural and multilingual populations in the United States, health providers and researchers are striving to improve the quality of cross-cultural and cross-lingual interactions and promote more equitable health services, research practices, and outcomes. However, research has raised concerns about neglecting or excluding non-English language options and their speakers, highlighting ethical and power-related issues. In this study, we interviewed 29 international students from diverse disciplines and nationalities to explore the role of language and the potential benefits of multilingualism in qualitative research. At the beginning of the interviews, we explicitly invited participants to choose their preferred language(s). At the end of the interviews, we encouraged participants to reflect on their language choices and usage. Through these reflections, we uncovered several intersecting relationships among participants, researchers, and settings: (1) At the individual level, participants described the cognitive load experienced when narrating in a non-native language, as well as the emotional nuances they felt when comparing it to using their native languages. (2) Participants tailored their narratives to the audiences/researchers, recognizing that cultural knowledge, norms, and culturally appropriate interactions are expected when using certain languages. They also considered the researchers' positions, selecting a language they believed would be most beneficial to the researchers. (3) Participants' language choices reflected their assumptions about research and their lifeworld experiences shared during the interviews. (4) By offering language choices and the option to switch languages, researchers transformed participants' presumptions about research, fostering more transcendent and mutually respectful interactions.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":"35 4-5","pages":"462-475"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143765467","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Translation of Cultures and Texts: Envisioning a Culturally Responsive Translational Practice in Qualitative Research.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-04-01 Epub Date: 2025-04-02 DOI: 10.1177/10497323251316757

Pengfei Zhao, Pei-Jung Li, Wen Qi

{"title":"Translation of Cultures and Texts: Envisioning a Culturally Responsive Translational Practice in Qualitative Research.","authors":"Pengfei Zhao, Pei-Jung Li, Wen Qi","doi":"10.1177/10497323251316757","DOIUrl":"10.1177/10497323251316757","url":null,"abstract":"In this methodological paper, we raise the question of what a culturally responsive translational practice might look like in qualitative research. Through examining the literature on translation in culturally responsive theories and qualitative research methodology, we distinguish two approaches in addressing the issue of translation: translation as texts and translation as cultures. To enact a culturally responsive translational practice, qualitative researchers should maintain an intimately linked dual-focus in their work, attending to both the practical aspects of translation that directly lead to the production of the final translated texts, as well as translation's multi-layered cultural and political effects. This proposal is further unpacked on three levels: (1) On the level of social and cultural processes and structure, we examine the routes and gatekeepers of translation in the context of knowledge production and mobilization; (2) on the level of intersubjective relationality, we explore the significance of visibilizing translation and translators; and (3) on the level of human-text interaction, we consider how interpretive approaches, untranslatability, and styles of translation may shape researchers' translation practice. While drawing insights from culturally responsive theories, we also substantiate our argument using critical translational studies and examples from our empirical research projects. Taken together, this paper outlines some important considerations qualitative researchers should take into account as they envision a culturally responsive translational practice in qualitative research and calls for researchers to engage in this work with multilingual awareness, reflexivity, and criticality.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":"35 4-5","pages":"448-461"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11963441/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143764854","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Justice in Health? Studying the Role of Legal Support in a Culturally Responsive Mental Health Service in Australia.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-04-01 Epub Date: 2025-04-02 DOI: 10.1177/10497323251315435

Stefanie Plage, Rebecca E Olson, Nathalia Costa, Karime Mescouto, Sameera Suleman, Asma Zulfiqar, Jenny Setchell, Rita Prasad-Ildes

{"title":"Justice in Health? Studying the Role of Legal Support in a Culturally Responsive Mental Health Service in Australia.","authors":"Stefanie Plage, Rebecca E Olson, Nathalia Costa, Karime Mescouto, Sameera Suleman, Asma Zulfiqar, Jenny Setchell, Rita Prasad-Ildes","doi":"10.1177/10497323251315435","DOIUrl":"10.1177/10497323251315435","url":null,"abstract":"Health Justice Partnerships (HJPs) are collaborations across law, health, and social care seeking more equitable health outcomes. This article aims to explore an HJP embedded within a culturally responsive mental health service in Australia for people who are culturally and racially marginalized (CARM). We draw on data produced for an evaluation of this service between August and November 2022 to conduct a reflexive thematic analysis. Thinking conceptually with the social determinants of health and intersectionality operationalized as structural, political, and representational, we present findings from individual and group interviews with 16 service users and 37 service providers. First, we describe the variety of legal issues service providers and service users encounter and how they affect opportunities for good health. Second, we provide insights into how care coordination across practitioners from different sectors and professions takes place to support service users. Third, we identify service principles and values that inform practices of integrated and culturally responsive care. We tie these insights together to demonstrate how multiple social categories flow together in the experiences of people from CARM communities in Western, White normative, and/or settler colonial societies. People confront built-in legal issues, for example, related to immigration legal status, welfare, housing, employment, or family, that affect mental health. Health, legal, and social systems have the dual capacity to capture people from CARM backgrounds in relations of care as well as oppression. We offer methodological reflections on studying these dynamics through culturally responsive qualitative research and discuss implications for culturally responsive HJP practice.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":"35 4-5","pages":"418-432"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11967093/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143764386","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Using Structural Competency to Augment Culturally Responsive Research on Mental Health in Neoliberal Context: Ethnographic Reflections.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-04-01 Epub Date: 2025-04-02 DOI: 10.1177/10497323241311493

Neha Jain, Arpita Gupta, Deepika Sharma, Shilpi Kukreja, Kumar Ravi Priya

{"title":"Using Structural Competency to Augment Culturally Responsive Research on Mental Health in Neoliberal Context: Ethnographic Reflections.","authors":"Neha Jain, Arpita Gupta, Deepika Sharma, Shilpi Kukreja, Kumar Ravi Priya","doi":"10.1177/10497323241311493","DOIUrl":"https://doi.org/10.1177/10497323241311493","url":null,"abstract":"Culturally responsive methodologies (CRMs) foreground critical engagement, people's voices, and connection with cultural heritage. Similarly, structural competency (SC) advocates for structural humility and cultural safety to address the structural hierarchies and humanize interactions within health care and research settings. In the Global South countries like India, where persistent colonial legacy and neoliberal influences in the post-colonial era continue to dehumanize mental health care and disempower minoritized communities, CRMs are often overlooked. This paper argues that integrating SC could potentially augment the deconstructing and humanizing features of CRM for mental health research in developing countries. Three ethnographic reflections from research on mental health care in India are utilized to highlight (a) the influence of power discourses on the process of developing humanizing dialogic spaces, (b) the potential of research dialogue in building insights about human distress, possibilities, or paradoxes of recovery or healing, and (c) the possibility of creating a more holistic mental health care of the distressed in the neoliberal times. The paper discusses how mental health researchers' structural competencies contribute toward centering the voices (needs, aspirations, and priorities) and reaffirming the dignity of the minoritized communities by enabling documentation of (a) the challenges in developing humanizing research space amidst the dehumanizing and hierarchical care settings and (b) the narratives of distress and healing paradoxes among participants in care settings, influenced by social gender and class hierarchies, shared within these humanizing spaces.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":"35 4-5","pages":"433-447"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143764859","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Using a Decolonizing Research Method to Address Underrepresentation and Health Disparities of Filipinx/a/o Americans: The Importance of Kuwentuhan as a Research Method. 使用非殖民化研究方法解决菲律宾裔美国人代表性不足和健康差异问题：Kuwentuhan作为一种研究方法的重要性。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-04-01 Epub Date: 2025-04-02 DOI: 10.1177/10497323251323219

Melissa L Palma, Donna Lynne Demanarig, Kristine Cecile Alarcon, Maria Acedo Kronenburg, Meredith Anne Capuli, Jamille Nagtalon-Ramos, Melanie Sabado-Liwag, Joyce Javier

{"title":"Using a Decolonizing Research Method to Address Underrepresentation and Health Disparities of Filipinx/a/o Americans: The Importance of Kuwentuhan as a Research Method.","authors":"Melissa L Palma, Donna Lynne Demanarig, Kristine Cecile Alarcon, Maria Acedo Kronenburg, Meredith Anne Capuli, Jamille Nagtalon-Ramos, Melanie Sabado-Liwag, Joyce Javier","doi":"10.1177/10497323251323219","DOIUrl":"https://doi.org/10.1177/10497323251323219","url":null,"abstract":"Kuwentuhan is an indigenous Filipino oral storytelling method used to preserve history and values and demonstrates how cultural values and knowledge are passed down through generations. Kuwentuhan incorporates collaborative experiences as individuals share their personal stories and perspectives. Indigenous Filipinos use the practice of kuwentuhan to build kapwa (shared identity) and spiritual connection with each other. Kuwentuhan is used by researchers in public health to examine health behaviors and health outcomes, including social determinants of health, within the social, political, and historical context of U.S. colonialism and continued imperialism in the Philippines for those living in diaspora as a minoritized group. Kuwentuhan builds connections in Filipinx/a/o American communities through shared stories of resilience and community care. This paper describes the use of kuwentuhan for public health that involves the elements of (1) embodying kapwa, (2) collective storying and memory, (3) co-producing knowledge, and (4) generational language. The following public health case studies will demonstrate the application of well-documented kuwentuhan in public health research in Filipinx/a/o American communities.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":"35 4-5","pages":"506-521"},"PeriodicalIF":2.6,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143764857","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Assessing the Effects of Home-Based Primary Care on Alzheimer's Caregivers and Support Organizations: An Application of the Health Equity Implementation Framework.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-29 DOI: 10.1177/10497323251316775

Rachel Zimmer, Aylin Aguilar, Kandice Reilly, Allison Chandler, Sydney-Evelyn Gibbs, Haley Park, Mia Yang

{"title":"Assessing the Effects of Home-Based Primary Care on Alzheimer's Caregivers and Support Organizations: An Application of the Health Equity Implementation Framework.","authors":"Rachel Zimmer, Aylin Aguilar, Kandice Reilly, Allison Chandler, Sydney-Evelyn Gibbs, Haley Park, Mia Yang","doi":"10.1177/10497323251316775","DOIUrl":"https://doi.org/10.1177/10497323251316775","url":null,"abstract":"Alzheimer's disease and related dementias (ADRD) pose significant challenges for care partners and community-based organizations (CBOs) involved in providing care. Home-based medical care (HBMC) models have emerged as a potentially equitable solution to support these individuals and organizations. Utilizing the Health Equity Implementation Framework (HEIF), this study explores the barriers and facilitators experienced by care partners and CBO staff in Black and Latino communities. Data were collected through thirteen semi-structured interviews and four focus groups, with participants recruited from those providing care to patients enrolled in the AHWFB house call program in Winston-Salem, North Carolina. Interviews were conducted in English and Spanish, and thematic analysis was applied to the data to identify key themes within the HEIF domains. I-Poems were presented to participants as a member-checking technique. The study identified historical mistrust and systemic racism, economic barriers, and logistical challenges as significant impediments to healthcare access. Cultural beliefs and care partner roles were explored in the context of Black and Latino care partners and their impact on approaches to care of PLWD. The HBMC model was valued for its convenience and personalized approach, though participants identified a need for improved communication with providers and greater cultural sensitivity. Additionally, participants from focus groups and caregiver interviews provided several actionable recommendations for enhancing the healthcare experiences of those dealing with ADRD.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251316775"},"PeriodicalIF":2.6,"publicationDate":"2025-03-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143743495","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0