{"title":"Role of Informal Support Networks in Immigrant Young Adults' Navigation of Mental Healthcare Services.","authors":"Melanie Escue, Heide Castañeda, Elizabeth Aranda","doi":"10.1177/10497323251330219","DOIUrl":"https://doi.org/10.1177/10497323251330219","url":null,"abstract":"<p><p>Prior studies reveal that both structural (e.g., legal status, lack of health insurance, and cost) and sociocultural (e.g., religious beliefs and stigma) barriers prevent immigrants from utilizing formal healthcare services. This problem is exacerbated for immigrants with temporary legal statuses. Less is known about how they navigate barriers to receiving care for mental health needs and how they cope with these barriers. One form of temporary status, the Deferred Action for Childhood Arrivals (DACA) program, offers limited benefits to eligible undocumented young adults-providing increased access to healthcare services and insurance opportunities for some through college or work. However, these opportunities are conditional, predicated on the continuance of a program constantly at risk of termination. While DACA is generally considered a form of stability and privilege within the context of irregular legal statuses, it comes with its own stressors including additional responsibilities and the instability of the program. Drawing on the concept of <i>liminal legality</i>, we illustrate how 51 young adults with DACA navigate barriers to accessing and receiving mental healthcare services using reflexive thematic analysis. Our findings offer insight into the pivotal role of support networks in healthcare-seeking behaviors and highlight the importance of communication support among close others. Findings offer suggestions for future research exploring the mental healthcare-seeking behaviors of temporary migrants in the United States and implications for policy changes.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251330219"},"PeriodicalIF":2.6,"publicationDate":"2025-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144080478","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Neneh Rosalía Quadflieg, Patiani Batchati, Alva Träbert, Eike Leidgens, Georg Juckel, Jakov Gather, Amma Yeboah, Mirjam Faissner
{"title":"Discriminatory Practices in the German Mental Healthcare System: An Intersectional Grounded Theory Study.","authors":"Neneh Rosalía Quadflieg, Patiani Batchati, Alva Träbert, Eike Leidgens, Georg Juckel, Jakov Gather, Amma Yeboah, Mirjam Faissner","doi":"10.1177/10497323251325793","DOIUrl":"https://doi.org/10.1177/10497323251325793","url":null,"abstract":"<p><p>Discriminatory practices within mental healthcare are a major barrier to the equitable provision of care to <i>all</i> mental healthcare service users. Understanding mechanisms of discrimination is a prerequisite for developing suitable measures to address them. Intersectionality, a framework rooted in Black feminism, has proven to be a powerful tool for understanding the specific forms and experiences of discrimination within interconnected systems of oppression. This study is the first to use an intersectional lens to examine discriminatory practices within the German mental healthcare system from the perspectives of service users, providers, and psychosocial counselors. In collaboration with local organizations in Bochum, Germany, we conducted 17 semi-structured interviews. The data were analyzed according to constructed grounded theory methodology. Our results indicate that discriminatory practices undermine access to and quality of healthcare delivery for marginalized mental healthcare service users. On an interpersonal level, these practices included stereotyping, devaluation, Othering, invalidation, silencing, withholding information, and treatment refusals. On an organizational level, care was undermined by a lack of interpretation services, discriminatory admission practices and documentation procedures, a lack of competencies among mental healthcare providers, as well as suitable treatment options and environments for marginalized service users. Service users described various strategies to navigate mental healthcare, including confrontation and selective narration. Mental healthcare providers showed various reactions toward discriminatory practices, ranging from defensiveness to acknowledgment. We discuss the results in their interrelationship with institutional Whiteness, cis-heteronormativity, and mental illness.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251325793"},"PeriodicalIF":2.6,"publicationDate":"2025-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144080232","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Shoshana Cantwell, Johanna Creswell Báez, Elise Johnson, Lauri Goldkind
{"title":"\"You Hear About These Healthcare Workers, You Never Hear About the Social Workers\": Hospital Social Workers and Collective Care in the COVID-19 Pandemic.","authors":"Shoshana Cantwell, Johanna Creswell Báez, Elise Johnson, Lauri Goldkind","doi":"10.1177/10497323251335840","DOIUrl":"https://doi.org/10.1177/10497323251335840","url":null,"abstract":"<p><p>Throughout the COVID-19 global pandemic, hospital social workers simultaneously experienced trauma along with the rest of the world impacted by the pandemic, as well as treating others for trauma in their professional capacities. This qualitative study of hospital social workers (<i>n</i> = 27) documents their experiences. Using a reflexive thematic analysis method, four themes were created from our interview data: organizational scarcity, organizational failures, care responsibilities, and the challenges of virtual care. We discuss how these themes relate to a model of collective care seeking to relocate responsibility for employee well-being from the individual to the organization, promoting institutional accountability and an embedding of care as a shared priority.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251335840"},"PeriodicalIF":2.6,"publicationDate":"2025-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144081643","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jonathan M Lassiter, Kainaat Anwar, Khanh Pham, Muraiye Pierre, Stacy W Smallwood
{"title":"\"Unlocking Healthier Ways of Living and Being\": Black Same Gender Loving Men's Insights Into Developing a Spirituality-Based Holistic Health Intervention.","authors":"Jonathan M Lassiter, Kainaat Anwar, Khanh Pham, Muraiye Pierre, Stacy W Smallwood","doi":"10.1177/10497323251336709","DOIUrl":"https://doi.org/10.1177/10497323251336709","url":null,"abstract":"<p><p>Black same gender loving (SGL) men in the United States continue to experience mental, physical, relational, and financial health inequities due to the impact of various systems of oppression. Despite this fact, there are few health interventions developed specifically for Black SGL men that address health outcomes beyond sexual health. Despite strong evidence that spirituality is a cultural strength associated with positive health outcomes for Black SGL men, it has seldom been incorporated into health interventions as a central mechanism for facilitating this group's well-being. The present qualitative study utilized a hybrid (i.e., codebook and reflexive) approach of thematic analysis to analyze data from individual semi-structured interviews with 29 Black SGL men across the United States. Three themes were generated: (1) Harmful and Nonresponsive Institutions; (2) Diversity, Detail, and Black SGL Men's Preferences in Intervention Design; and (3) Multilevel Positive Holistic Impact. Findings from this study may be used to develop spirituality-based holistic health interventions for Black SGL men in the United States. Such interventions have the potential to effectively reduce health inequities among this population.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251336709"},"PeriodicalIF":2.6,"publicationDate":"2025-05-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144051933","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Tessa M Nápoles, Emily A Ekl, Jeff Nicklas, Laura Gómez-Pathak, Irene H Yen, Dani Carrillo, Kathleen de Leon, Nancy J Burke, Brea L Perry, Janet K Shim
{"title":"Mixed Methods for Research on Support Networks of People Experiencing Chronic Illness and Social Marginalization.","authors":"Tessa M Nápoles, Emily A Ekl, Jeff Nicklas, Laura Gómez-Pathak, Irene H Yen, Dani Carrillo, Kathleen de Leon, Nancy J Burke, Brea L Perry, Janet K Shim","doi":"10.1177/10497323241235031","DOIUrl":"10.1177/10497323241235031","url":null,"abstract":"<p><p>Substantial research has focused on how social networks help individuals navigate the illness experience. Sociologists have begun to theorize beyond the binary of strong and weak social network ties (e.g., compartmental, elastic, and disposable ties), citing the social, economic, and health conditions that shape their formation. However, limited research has employed mixed social network methods, which we argue is especially critical for examining the \"non-traditional\" social support networks of marginalized individuals. We employ quantitative social network methods (i.e., the egocentric network approach) in addition to in-depth interviews and observations, with a novel tool for capturing network data about social groups, to surface these kinds of supportive relationships. Using the case of \"nameless ties\"-non-kin, non-provider ties who were unidentifiable by given name or were grouped by context or activity rather than individually distinguished-we show how mixed social network methods can illuminate supporters who are commonly overlooked when only using traditional social network analysis. We conclude with a proposal for mixed methods and group alter approaches to successfully observe liminal support ties that is ideal for research about individuals experiencing chronic disability, poverty, housing insecurity, and other forms of social marginalization.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"575-588"},"PeriodicalIF":2.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140177205","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Luke T Bayliss, Andrea Lamont-Mills, Carol du Plessis
{"title":"\"I Will Die by My Own Hand\": Understanding the Development of Suicide Capability in the Narratives of Individuals Who Have Attempted Suicide.","authors":"Luke T Bayliss, Andrea Lamont-Mills, Carol du Plessis","doi":"10.1177/10497323241235861","DOIUrl":"10.1177/10497323241235861","url":null,"abstract":"<p><p>Suicide capability is a multidimensional concept that facilitates the movement from suicidal ideation to suicide attempt. The three-step theory of suicide posits that three overarching contributors comprise suicide capability: acquired (fearlessness about death and high pain tolerance), dispositional (genetics), and practical (knowledge and access to lethal means) capability. Although extensive research has investigated relationships between individual contributors of capability and suicide attempts, little research has considered how an individual's capability for suicide develops as a combination of contributors. Given suicide is multifaceted and complex, our understanding of capability development is relatively limited. This potentially negatively impacts prevention and capacity reduction-focused intervention efficacy. Therefore, this study aimed to explore how suicide capability develops. Fourteen community-based suicide attempt survivors were recruited using convenience sampling. Individual narratives were collected using open-ended interviews, and data were analysed using narrative analysis. Results indicated that participant narratives contained two elements. The first included how capability development and suicide attempt facilitation were often underpinned by the relational interplay between acquired and practical contributors. For example, participants without a high pain tolerance seeking attempt methods that were perceived to be painless. The second element contained a novel finding relating to the agentic role of participants when deciding and attempting suicide. Agency was revealed within and across narratives emphasising the active role the individual plays in their movement from ideation-to-action. The role of individual agency in coming to a decision to take one's own life and then acting warrants further consideration within contemporary suicide theories.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"589-600"},"PeriodicalIF":2.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12041613/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141447382","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Leilani Dodgen, Emily Spence, Heather Kitzman, Brittany Ajoku, Scott T Walters, Diana Cervantes
{"title":"A Closer Look: Examining Cultural-Contextual Influences on Weight Management Through Focus Groups With Church-Going African American Women.","authors":"Leilani Dodgen, Emily Spence, Heather Kitzman, Brittany Ajoku, Scott T Walters, Diana Cervantes","doi":"10.1177/10497323241274327","DOIUrl":"10.1177/10497323241274327","url":null,"abstract":"<p><p>Chronic diseases continue to rise among African American women making lifestyle programs a critical aspect of risk reduction and disease prevention. Weight management programs often have a reduced impact among African American women compared to White women, in part due to interactions between individual, social, and environmental factors. A secondary analysis of focus group data evaluated how cultural elements and contextual factors identified by church-going African American women influence intervention design, approaches for cultural adaptation, and solutions to weight management. Using the Community Energy Balance framework and the Community-Based Participatory Research model, research questions were formed, and a thematic analysis was conducted using data from six focus groups held in predominately African American churches (<i>n</i> = 6). Four themes emerged that represent identity and body appearance perspectives inside African American cultural contexts and across social and environmental contexts for how they work as motivators and barriers to health behaviors. These themes provide guidance for intervention approaches that center the experiences and needs of church-going African American women and identify targets for future cultural adaptations. Further work is needed to measure how specific cultural adaptations connect to improving health outcomes and engagement among African American women.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"650-664"},"PeriodicalIF":2.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298898","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"In Pursuit of a Person-Centered Approach to Care Delivery: A Qualitative Descriptive Study of the Patient Experience of a Long-Term Conditions Clinic in General Practice.","authors":"Gillian Wilson, Jacqueline Sarah Hutchison","doi":"10.1177/10497323241272003","DOIUrl":"10.1177/10497323241272003","url":null,"abstract":"<p><p>Innovative ways of working are emerging in health care to meet the complex needs of people living with multiple long-term conditions. While these initiatives are often measured for their health and economic outcomes, few studies prioritize the patient experience. This qualitative descriptive study is one of a few studies exploring the patient experience of attending a dedicated long-term conditions annual review clinic in a primary care setting in England. The service model aims to provide a person-centered, holistic approach to the management and support of people living with multiple long-term conditions. The study presents findings from in-depth interviews with 12 participants. Data analyzed through framework analysis revealed four themes relating to the patient experience: the clinic as a place, continuity, staying healthy, and partnership opportunities. Results highlight the challenges to providing personalized care. We found that attendance at the clinic prompted self-care behaviors, however, patients wanted a more holistic, integrated, and consistent service that provided continuity of therapeutic relationships that involved them in decision-making and care planning. We conclude that the experience of patients in this study suggests this service model can enable patients to manage their health and improve well-being, however, while a person-centered philosophy may underpin service models, our research shows that ensuring this philosophy is born out in service delivery and recognized by patients is problematic. Therefore, service providers need to recognize the values and perspectives of patients, aligning these with the design and delivery of services.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"680-696"},"PeriodicalIF":2.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142337183","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Yaping Zhong, Huan Zhao, Xinyi Wang, Min Wang, Lili Wang, Ji Ji
{"title":"Voices of Parent-Carers Navigating the Care for Children With Osteogenesis Imperfecta.","authors":"Yaping Zhong, Huan Zhao, Xinyi Wang, Min Wang, Lili Wang, Ji Ji","doi":"10.1177/10497323241272020","DOIUrl":"10.1177/10497323241272020","url":null,"abstract":"<p><p>Parent-carers of children with rare diseases, including osteogenesis imperfecta (OI), represent a vulnerable and largely invisible population. Despite existing research on familial OI caregiving, the unique experiences, perspectives, and feelings of parent-carers remain poorly understood, prompting this study to delve into these aspects through the subjective lens of voices. The aim of this study was to explore the voices of parent-carers in navigating the complexities of pediatric OI care. Employing a narrative design informed by social constructionism, 15 parent-carers of pediatric OI patients were purposively sampled from a tertiary hospital in Shandong Province, China, between May and August 2021. Individual face-to-face interviews were conducted, and data were analyzed using the voice-centered relational approach followed by thematic analysis. Parent-carers' narratives revealed two overarching themes. The first theme, \"the all-encompassing caregiver role,\" highlighted the profound internal transformation parent-carers underwent, with three key aspects of experiences: \"the centrality of care,\" \"life on hold,\" and \"guarded silence.\" The second theme, \"navigating ambivalence,\" captured the complex psycho-emotional journey of parent-carers as they balanced denial and acceptance, experienced the burden and responsibility of caregiving, navigated uncertainty with hope, and sought to normalize the care recipients' experiences while acknowledging their unique needs. Our findings suggest the need for developing tailored support strategies that address not only practical challenges but also the psychosocial dimensions of caregiving, to effectively assist and empower this marginalized carer population.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"640-649"},"PeriodicalIF":2.6,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Patient Influencers: Understanding Cultural Inclusivity in Health Communication on Social Media.","authors":"Erin Willis, Kate Friedel, Marjorie Delbaere","doi":"10.1177/10497323251326842","DOIUrl":"https://doi.org/10.1177/10497323251326842","url":null,"abstract":"<p><p>A new form of social media influencer is the patient influencer, or patients who share \"lived experiences\" of chronic disease online and who build communities of patients. Trust in the healthcare system is a challenge for people of color due to the systemic racism and other barriers encountered. This article explores the intersection of health communication, patient influencers, and cultural inclusivity. Using the Theory of Planned Behavior's theoretical constructs (subjective norms, personal attitudes, and perceived behavioral control), thematic analysis was used to understand culturally inclusive health communication strategies used by patient influencers of color. In-depth interviews (<i>N</i> = 18) were conducted. Findings suggest that patient influencers of color have the capacity to promote inclusivity and trust within their social networking communities. Patient influencers want to empower others through their authentic content about living with and managing chronic disease. Theoretical and practical applications are addressed.</p>","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251326842"},"PeriodicalIF":2.6,"publicationDate":"2025-04-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143990971","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}