Qualitative Health Research最新文献_第3页

How and Why Do Multimorbid Patients Decide to Follow Their Multiple Medication Prescriptions? Looking Beyond the Risk-Benefit Scale.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-28 DOI: 10.1177/10497323241311508

Juliette Artignan, Kevin Diter, Pascal Clerc, Perrine Capmas, Nathalie Pelletier-Fleury

{"title":"How and Why Do Multimorbid Patients Decide to Follow Their Multiple Medication Prescriptions? Looking Beyond the Risk-Benefit Scale.","authors":"Juliette Artignan, Kevin Diter, Pascal Clerc, Perrine Capmas, Nathalie Pelletier-Fleury","doi":"10.1177/10497323241311508","DOIUrl":"https://doi.org/10.1177/10497323241311508","url":null,"abstract":"Current public health guidelines emphasize the necessity to optimize medication prescriptions for multimorbid patients with multiple medications to ensure patient adherence while minimizing harm and waste. Nevertheless, there is limited understanding of how these patients choose to follow their medication regimen. This study aimed to describe the variations in the way patients account for their adherence (and non-adherence) to multiple medications and to draw links between these variations and patients' socioeconomic status. Twenty semi-structured interviews were conducted with patients aged 47-82 years with cardiovascular disease and multiple medically treated chronic conditions. They were transcribed and analyzed using reflexive thematic analysis. We first describe shared concerns about multiple medication taking and situations of medical uncertainty which arose when patients encounter conflicting medical instructions. We then highlight two overarching approaches through which patients conceptualized following their medical prescriptions. Some patients predominantly deferred the choice of medication to their physicians, while others steered the decision-making process and closely monitored what they were prescribed. These styles reflected different ways of engaging with doctors, dealing with side effects, and evaluating prescriptions and were linked to patients' socioeconomic status. We discuss our results by borrowing from Hirschman's theory of voice, exit, and loyalty. Findings argue in favor of better coordinated care to reduce prescription ambiguities and highlight the importance of patients with multimorbidity being given sufficient time and space to voice their concerns.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241311508"},"PeriodicalIF":2.6,"publicationDate":"2025-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143736227","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Navigating the Digital Divide: Utilization of Patient Portals Among Older Adults During the COVID-19 Pandemic in the United States.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-28 DOI: 10.1177/10497323251316194

Chung Hyeon Jeong, BoRin Kim, Maria Bessette

{"title":"Navigating the Digital Divide: Utilization of Patient Portals Among Older Adults During the COVID-19 Pandemic in the United States.","authors":"Chung Hyeon Jeong, BoRin Kim, Maria Bessette","doi":"10.1177/10497323251316194","DOIUrl":"https://doi.org/10.1177/10497323251316194","url":null,"abstract":"The COVID-19 pandemic has accelerated the adoption of patient portals, which enhance patient-provider communication, streamline medical records management, and provide tailored educational materials. However, older patients face challenges in adopting these technologies, potentially exacerbating health and healthcare disparities. Guided by the Senior Technology Acceptance and Adoption Model (STAM), this study explores older adults' experiences with patient portals during the pandemic to gain an in-depth understanding of the factors influencing their adoption. We conducted semi-structured virtual interviews in 2021 with 31 older adults aged 60 or older with healthcare needs. The interviews were thematically coded and analyzed using the constant comparative method in grounded theory. The three phases of technology acceptance in STAM-objectification, incorporation, and conversion-served as sensitizing concepts in our analysis. The findings showed that some older patients felt compelled to use patient portals during the pandemic, bypassing the objectification phase, which is crucial for building an intention to use new technology. Older patients who lack a strong intention to use patient portals tended to report challenges in the incorporation phase, focusing more on the difficulties rather than the usefulness. These themes highlight obstacles to the adoption of patient portals during the conversion phase. Various suggestions for patient portal training and educational programs tailored to the needs of older adults were proposed to facilitate their adoption of patient portals. The study suggests areas for improvement to increase patient portal adoption among older patients, offering valuable insights for healthcare providers and policymakers to enhance equitable access to digital healthcare services.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251316194"},"PeriodicalIF":2.6,"publicationDate":"2025-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143736228","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Paradoxes in Mental Healthcare: Exploring Service Gaps in Treatment and Care for Patients With Extensive Hospitalization Experience.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-28 DOI: 10.1177/10497323241309259

Henrik Wang Iversen, Henriette Riley, Geir Fagerjord Lorem

{"title":"Paradoxes in Mental Healthcare: Exploring Service Gaps in Treatment and Care for Patients With Extensive Hospitalization Experience.","authors":"Henrik Wang Iversen, Henriette Riley, Geir Fagerjord Lorem","doi":"10.1177/10497323241309259","DOIUrl":"https://doi.org/10.1177/10497323241309259","url":null,"abstract":"Patients with extensive hospitalization experience present challenges for mental healthcare by disrupting continuity of care across service systems. This study explores how mental healthcare services address the needs of these patients, focusing on service gaps between hospitalization and community services. By examining the underlying reasons for their reliance on hospitals, the study offers insights into the lived experiences of this marginalized group. The study aims to provide knowledge that can enhance treatment and care for patients with severe mental disorders. Using a narrative explanatory design, we interviewed 14 patients with extensive hospitalization experience. A holistic-content analysis revealed shortcomings in community services that contributed to frequent hospitalizations. These inconsistencies contributed to paternalistic treatment and collaboration issues, misaligning services with patients' needs. Patients were frequently labeled as \"difficult\" and placed at inappropriate levels of care, sometimes resorting to extreme measures to access the care they required. The study highlights paradoxes and contradictions between goals, policies, and service provision in mental healthcare. Patients were caught between two extremes entrenched in a struggle with services, either to gain access to support or to break free from service constraints. We argue that better access to institution-based treatment and care could provide benefits to these patients and help bridge service gap. Establishing long-term, well-staffed residential facilities would not only relieve hospitals of the burden of frequent readmissions but also enhance service integration. This would provide a much-needed middle ground, ensuring that patients receive the appropriate level of care while preventing unnecessary hospitalization.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241309259"},"PeriodicalIF":2.6,"publicationDate":"2025-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143736229","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Coping With a Dead End by Relying on Your Own Compass: A Qualitative Study on Illness and Treatment Models in the Context of Fibromyalgia.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-28 DOI: 10.1177/10497323251320866

Maité Van Alboom, Fleur Baert, Sónia F Bernardes, Piet Bracke, Liesbet Goubert

{"title":"Coping With a Dead End by Relying on Your Own Compass: A Qualitative Study on Illness and Treatment Models in the Context of Fibromyalgia.","authors":"Maité Van Alboom, Fleur Baert, Sónia F Bernardes, Piet Bracke, Liesbet Goubert","doi":"10.1177/10497323251320866","DOIUrl":"https://doi.org/10.1177/10497323251320866","url":null,"abstract":"Fibromyalgia lacks a coherent illness and treatment model, which includes a set of conceptual ideas shaping individuals' perceptions and understandings of pain, its causing and maintaining factors, and management strategies. Developing personalized illness models that can guide treatment plans and alleviate feelings of uncertainty is of crucial importance. This study investigates how individuals with fibromyalgia develop a personal illness and treatment model while navigating the current healthcare system and explore their experiences during this process. Semi-structured interviews were conducted with 15 cis women with fibromyalgia, which were analyzed using reflexive thematic analysis. The analysis produced two themes, each including two subthemes. The first theme encompassed the difficulty of developing a comprehensive illness model due to the biomedical perspective of the healthcare system; the second theme described the importance of participants (re)gaining ownership and agency over their pain management, by constructing their own illness and treatment model. Most women in this study got stuck in the biomedical healthcare web not being provided with a clear illness and treatment model. Consequently, most women gained ownership of this process by developing their personal illness and treatment model (self-empowerment). Conversely, a few women felt powerless and paralyzed. This study underscores the importance of promoting patient empowerment in chronic pain management. Agency is undervalued in the treatment of fibromyalgia and warrants more thorough examination. Increasing knowledge about agency could enhance treatment effectiveness.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251320866"},"PeriodicalIF":2.6,"publicationDate":"2025-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732255","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Positioning Positionality and Reflecting on Reflexivity: Moving From Performance to Practice.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-28 DOI: 10.1177/10497323241309230

Kaitlin R Sibbald, Shanon K Phelan, Brenda L Beagan, Tara M Pride

{"title":"Positioning Positionality and Reflecting on Reflexivity: Moving From Performance to Practice.","authors":"Kaitlin R Sibbald, Shanon K Phelan, Brenda L Beagan, Tara M Pride","doi":"10.1177/10497323241309230","DOIUrl":"https://doi.org/10.1177/10497323241309230","url":null,"abstract":"Researcher reflexivity and acknowledgement of positionality are emerging as key concepts for evaluating the quality of qualitative research. Collectively, we explore the relationship between reflexivity and positionality statements as reflexive practice, considering who benefits, who has authority, and our expectations of each other as qualitative researchers. Moving between examples of doing reflexivity in practice and what is often requested of authors during the peer review and editorial processes, we challenge the idea that positionality statements in the form of identity disclosures ought to be taken as the token performance of reflexive work, despite their frequent use as such. We begin by outlining the role and purpose of reflexivity in qualitative research and follow by examining the turn toward identity disclosure as fulfilling this purpose. Following, we examine the ways in which a \"shopping list\" positionality statement can create disproportionate risk, reinforce stereotypes, and homogenize researchers identifying with marginalized groups, without necessarily benefiting the research process or how research is communicated. In addition, we present alternative ways of doing and communicating reflexivity in qualitative research that, although not without their own challenges, allow reflexivity to take up the space it deserves during the research process and dissemination.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241309230"},"PeriodicalIF":2.6,"publicationDate":"2025-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732456","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Engaging in Palliative Care Conversations With Healthcare Providers: A Phenomenological Young Adult Cancer Study.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-28 DOI: 10.1177/10497323251325471

Emily K Drake, Lori E Weeks, Dani Taylor, Ian Ricci, Janet Curran, Michael van Manen

{"title":"Engaging in Palliative Care Conversations With Healthcare Providers: A Phenomenological Young Adult Cancer Study.","authors":"Emily K Drake, Lori E Weeks, Dani Taylor, Ian Ricci, Janet Curran, Michael van Manen","doi":"10.1177/10497323251325471","DOIUrl":"https://doi.org/10.1177/10497323251325471","url":null,"abstract":"What is it like for young adults living with metastatic/advanced cancers to engage in conversations about palliative care with healthcare providers? Often, young people are not introduced to palliative care. Instead, healthcare providers may assume that they are already well-supported, that their symptoms are aptly managed, or that introducing palliative care will somehow spoil any remaining hope they live with. While some of the benefits of palliative care have been explored in the literature, the experiences of young people living with metastatic/advanced cancers as they are introduced to these conversations have largely been ignored. Drawing on interviews with young adults, the aim of this study was to gain insights into these experiences. From their reflections, we may understand these conversations as an experience of an opening for talk, conversations as an experience of need and relief, and conversations as an experience of reflection. Having a discussion about palliative care may serve as a conversational opening not only to discuss additional support, but also to explore that which is meaningful for them as they live with serious illnesses. We may appreciate at the heart of these conversations are physical, relational, and existential needs that may be relieved by palliation. Significantly, these conversations afford personal reflections and frank discussions of dying and death. In this way, a phenomenological understanding of palliative care conversations provides healthcare providers with reflective insights and practical considerations for approaching these important conversations with young people, recognizing that the conversations themselves may be deeply personal and decidedly individual.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251325471"},"PeriodicalIF":2.6,"publicationDate":"2025-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732439","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Unreachable Loneliness: Informal Supports Role Amid Low Belonging Perceptions of Suicide-Vulnerable Youth.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-28 DOI: 10.1177/10497323251316192

Matt Drabenstott, Nishad Khanna, Tanya Halsall

{"title":"Unreachable Loneliness: Informal Supports Role Amid Low Belonging Perceptions of Suicide-Vulnerable Youth.","authors":"Matt Drabenstott, Nishad Khanna, Tanya Halsall","doi":"10.1177/10497323251316192","DOIUrl":"https://doi.org/10.1177/10497323251316192","url":null,"abstract":"Suicide remains a leading cause of death for young people. This study explores the critical role of informal supports in the lives of youth facing suicidal crises by tracing the role of belonging throughout suicidal episodes. Using interpretative phenomenological analysis, this study aims to provide a holistic view of belongingness couched in the rich context of lived experience, broadening the scope of belongingness while taking into account the acute nature of the construct. Three young adults who experienced suicidal episodes during adolescence were interviewed. Participants described how their suicidal thoughts often overshadowed their ability to perceive support from family and friends, rendering them emotionally unreachable at crucial moments. Yet, these significant others played critical roles at every level of analysis. The study identifies key strategies for informal supports, including persistent engagement, non-abandonment, openness, and reciprocal support, to effectively address suicidal episodes. Additionally, this work draws out upstream policy recommendations for communities and policy makers. Findings underscore the importance of understanding and navigating the complex dynamics of belongingness and informal support during suicidal episodes. This research contributes to suicide prevention by emphasizing the need for informal supports, as key links of a social safety net, in bridging the gap between perceived and actual care.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251316192"},"PeriodicalIF":2.6,"publicationDate":"2025-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143743503","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Wishes, Perceived Barriers, and Support Needs of People Living in Persistent Poverty. 生活在持续贫困中的人们的愿望、感知到的障碍和支持需求。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-28 DOI: 10.1177/10497323241309803

Lincy Scholten, Sandra H H Schel, Linda van den Dries, Gerdine A J Fransen-Kuppens, Renée de Vet, Judith R L M Wolf

{"title":"The Wishes, Perceived Barriers, and Support Needs of People Living in Persistent Poverty.","authors":"Lincy Scholten, Sandra H H Schel, Linda van den Dries, Gerdine A J Fransen-Kuppens, Renée de Vet, Judith R L M Wolf","doi":"10.1177/10497323241309803","DOIUrl":"https://doi.org/10.1177/10497323241309803","url":null,"abstract":"This study explores the wishes, perceived barriers, and support needs of people living in persistent poverty. These remain undetermined, yet are essential for developing effective support for this group. We conducted semi-structured video call interviews with people living in persistent poverty (n = 14), peer workers (n = 5), and practitioners (n = 5) in five municipalities in the Netherlands. The findings show that wishes revolve around improving individuals' socio-economic security, their (loved-ones') well-being, and relatedness. The realization of these wishes is hindered by socio-economic barriers, support structures, psychological processes, and an intergroup reality gap. Participants therefore advocated for structural changes in policy and practice. These include more income, a focus on poverty prevention, easily accessible and tailor-made support, and bridging the gap between the living and system world. In addition, service provision for people living in persistent poverty should prioritize the quality of the working alliance, self-direction, a holistic approach, and the engagement of peer workers.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241309803"},"PeriodicalIF":2.6,"publicationDate":"2025-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143736230","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Uncovering the Meaning of Parent-Nurse Relationships in Childhood Cancer Care: A Gadamerian Hermeneutic Study. 揭示儿童癌症护理中父母与护士关系的意义：加达默尔诠释学研究》。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-28 DOI: 10.1177/10497323251320001

Jennifer Costa

{"title":"Uncovering the Meaning of Parent-Nurse Relationships in Childhood Cancer Care: A Gadamerian Hermeneutic Study.","authors":"Jennifer Costa","doi":"10.1177/10497323251320001","DOIUrl":"https://doi.org/10.1177/10497323251320001","url":null,"abstract":"The diagnosis of cancer in a child thrusts parents into a complex healthcare system where they find themselves developing new relationships with pediatric oncology nurses. While parents and nurses acknowledge the meaningfulness and complexity of these relationships, many find it difficult to articulate. The purpose of this study was to understand the meaning and experience of the parent-nurse relationship in childhood cancer care. This study employed the tenets of Gadamerian hermeneutic philosophy. Data analysis looked to articulate meaningful interpretations of the interviews with parents and nurses of children with cancer through interpretive data analysis and utilized the hermeneutic circle as a way of conceptualizing and understanding the interpretive process. Sixteen interviews (n = 8 parents, n = 8 nurses) were completed. The findings suggested that both parents and nurses of children with cancer navigate through an evolving inner world unique to the cancer experience. The parent-nurse relationships were mutually identified as dynamic, complex, and emotionally laden, and drew on the shared strength, trust, humanity, and interconnectedness of one another. The parent-nurse relationships played a significant role in traversing the challenges encountered with entry into and navigation through the pediatric cancer world. The findings provide practical knowledge to inform and enhance relationship development at the clinical level, impact how relationship development is taught at the academic level, and inform professional development. This study contributes to the understanding of parent-nurse relationships and opens the door for integration of innovative practices in nursing education and clinical care.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251320001"},"PeriodicalIF":2.6,"publicationDate":"2025-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143736231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Cultural Mechanisms of Leprosy-Related Stigma: A Gendered Analysis Using the What Matters Most Framework in Far-Western Nepal.

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-27 DOI: 10.1177/10497323251318604

Marlies J Visser, Eliza A Kc, Yoslien Sopamena, Pirt B Bist, Sita Bist, Madhusudan Subedi, Nand Lal Banstola, Sarju S Rai, Lawrence H Yang, Dadun, Ruth M H Peters

{"title":"Cultural Mechanisms of Leprosy-Related Stigma: A Gendered Analysis Using the What Matters Most Framework in Far-Western Nepal.","authors":"Marlies J Visser, Eliza A Kc, Yoslien Sopamena, Pirt B Bist, Sita Bist, Madhusudan Subedi, Nand Lal Banstola, Sarju S Rai, Lawrence H Yang, Dadun, Ruth M H Peters","doi":"10.1177/10497323251318604","DOIUrl":"https://doi.org/10.1177/10497323251318604","url":null,"abstract":"Leprosy-related stigma in Nepal adversely affects socioeconomic and health outcomes. The cultural shaping of stigma is often overlooked in stigma (reduction) research. Therefore, this study aimed to (i) identify cultural capabilities in daily life that \"matter most\" for men and women; (ii) extend and corroborate perspectives and experiences of leprosy-related stigma; and (iii) explore how \"what matters most\" (WMM) intensifies or protects against leprosy-related stigma in Far-Western Nepal. We performed a directed content analysis of 38 interviews and 8 focus group discussions with a total of 80 men and women affected by leprosy, family members, and healthcare workers-directed by the WMM framework. WMM included key personal and family capabilities, centered around personal and family honor and prestige (ijjat). Stigma was rooted in cultural beliefs of leprosy as karma or divine punishment leading to apahelana (disrespect or disregard) and social exclusion, indicating a loss of personhood. This hinders attainment of WMM in both family and community settings which can negatively affect self-confidence and (mental) health, exacerbating stigma. The study supports the applicability of WMM to leprosy and found that family support and involvement alongside treatment could mitigate some powerful aspects of stigma attached to leprosy. Given its dual role found in this study, family support should be leveraged for stigma reduction efforts enabling families to facilitate WMM for persons affected by leprosy. This study advances the work on WMM and stigma by exploring an infectious condition historically associated with deeply rooted misconceptions, fear, and exclusionary practices.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251318604"},"PeriodicalIF":2.6,"publicationDate":"2025-03-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732422","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0