Qualitative Health Research最新文献_第8页

Body Image as a Case Topic for Eliciting Sensitive Health Experiences in Men. 身体意象作为引发男性敏感健康体验的个案主题。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-07-01 DOI: 10.1177/10497323251342923

Fabio Zucchelli, Latika Ahuja, Beth Herring, Caterina Gentili, Jade Smith, Helena Lewis-Smith

引用次数: 0

How Do Men Who Post Publicly on Social Media Author Themselves and Their Experiences of Crohn's Disease? A Dialogical Analysis of Three Cases. 在社交媒体上公开发帖的男性如何为自己和他们的克罗恩病经历撰写文章？三个案例的对话分析。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-07-01 Epub Date: 2024-10-25 DOI: 10.1177/10497323241287453

Lucy Prodgers, Brendan Gough, Anna Madill

{"title":"How Do Men Who Post Publicly on Social Media Author Themselves and Their Experiences of Crohn's Disease? A Dialogical Analysis of Three Cases.","authors":"Lucy Prodgers, Brendan Gough, Anna Madill","doi":"10.1177/10497323241287453","DOIUrl":"10.1177/10497323241287453","url":null,"abstract":"Despite distinct sex- and gender-related differences in the presentation and manifestation of Crohn's disease (CD), little research to date has considered men's particular experiences. Whilst hegemonic masculine ideals have been reported to negatively impact men's mental and physical health, increasingly research has emphasized that men engage in a diverse range of practices, including those beneficial to health. One such practice is posting about their illness experiences on social media. The interactive nature of posting online means that a dialogical approach, based on a relational epistemology, is particularly useful. This study therefore asked: \"How do men who post publicly on social media author themselves and their experiences of CD?\" Three participants were recruited, all of whom had a diagnosis of CD, wrote a blog, and posted on other social networking sites (SNSs) about CD. Two resided in Canada and one in the United Kingdom. All were white. For each participant, 2 years of multimodal social media data was downloaded. After screening, in-depth analysis was conducted using a dialogical approach focusing on three key dialogical concepts: genre, chronotope, and forms of authorship. The key findings emphasized the participants' different responses to the lack of predictability caused by CD and the different ways they used social media to gain a greater sense of control over their illness stories and identities, providing important insights into the interaction between masculine identities and illness. Finally, the potential deployment of such methods in future research and within therapeutic contexts was considered.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"887-900"},"PeriodicalIF":2.6,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12117138/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142510592","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Self-Management and Relationships: Perspectives of Young Adults With Chronic Conditions and Their Peers. 自我管理与人际关系：患有慢性疾病的青少年及其同伴的观点。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-07-01 Epub Date: 2024-11-01 DOI: 10.1177/10497323241285761

Uwe Flick, Gundula Röhnsch

{"title":"Self-Management and Relationships: Perspectives of Young Adults With Chronic Conditions and Their Peers.","authors":"Uwe Flick, Gundula Röhnsch","doi":"10.1177/10497323241285761","DOIUrl":"10.1177/10497323241285761","url":null,"abstract":"Because their disease is largely managed in the private environment, people with chronic conditions perform \"chronic homework.\" The environment with which self-management is coordinated forms a kind of \"chronic care infrastructure\" in dealing with the disease and, in the case of young adults with chronic conditions (YACCs), is essentially formed by peers. The article investigates how YACCs handle their illness in the context of their peer relationships and how peers see their own role in the context of the YACCs' self-management. What do chronic homework and chronic care infrastructures look like, if the chronic conditions concern young adults in comparatively unstable and non-committal relationships with their peers? Episodic interviews were conducted with 60 YACCs (with type 1 diabetes, cancer, chronic inflammatory bowel disease, and rare conditions) and 30 peers. The interviews were analyzed using thematic coding. The YACCs' statements were compared to the peer perspectives on a case-by-case basis. We found that peers differ in the extent to which they seek to monitor or control the YACCs' self-management. We identified three groups of YACCs: (a) those who focus on their health needs; (b) those who seek to balance their disease management with their need for sociability and belonging; and (c) those who deprioritize their illness in their everyday life in favor of peer acceptance. The multi-perspective approach to YACCs' and their peers' experiences with self-management on the one hand and referring to a range of chronic conditions on the other allows to analyze this issue in a complex and comprehensive way.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"916-931"},"PeriodicalIF":2.6,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12117129/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142559160","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Contesting Cannabinoid Hyperemesis Syndrome: How Narratives of Cannabis Shape Diagnosis Contestation and Treatment Resistance. 争论大麻致吐综合征：大麻叙事如何影响诊断争论和治疗阻力》（Contesting Cannabinoid Hyperemesis Syndrome: How Narratives of Cannabis Shape Diagnosis Contestation and Treatment Resistance）。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-07-01 Epub Date: 2024-10-25 DOI: 10.1177/10497323241279079

Heith Copes, Megan Webb, Jessica Valles

{"title":"Contesting Cannabinoid Hyperemesis Syndrome: How Narratives of Cannabis Shape Diagnosis Contestation and Treatment Resistance.","authors":"Heith Copes, Megan Webb, Jessica Valles","doi":"10.1177/10497323241279079","DOIUrl":"10.1177/10497323241279079","url":null,"abstract":"Cannabinoid hyperemesis syndrome (CHS) is characterized by the onset of cyclic bouts of severe nausea and vomiting in chronic cannabis users. As the number of CHS diagnoses rises, it is important to understand how people experience the disease. Using a narrative framework, we explore how the symbolic meaning participants associated with cannabis shaped the way they experienced diagnosis and treatment of CHS. To do this, we relied on semi-structured interviews with 24 people who self-reported having CHS. Participants had very positive perceptions of cannabis, which contributed to them contesting the diagnosis and resisting the treatment. They initially contested the diagnosis because they believed that cannabis was beneficial and helped with nausea, that claims about the harms of cannabis were part of a larger medical conspiracy to stigmatize it, and that they had different symptoms than those with CHS. They resisted treatment recommendations of abstinence and sought to continue using cannabis by trying new routes of administration, using only certain types of cannabis, reducing the amount or frequency of use, or substituting other substances. Findings point to the importance of understanding how narratives can shape the way people respond to diagnosis and treatment.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"876-886"},"PeriodicalIF":2.6,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142510590","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Making Conscientious Decisions: Engaging in Venous Leg Ulcer Self-Management Following Nurse-Led Patient Education. 做出良心决定：在护士对患者进行教育后参与静脉性腿部溃疡自我管理。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-07-01 Epub Date: 2024-10-28 DOI: 10.1177/10497323241285692

Paul Bobbink, Géraldine Gschwind, Philip Larkin, Sebastian Probst

{"title":"Making Conscientious Decisions: Engaging in Venous Leg Ulcer Self-Management Following Nurse-Led Patient Education.","authors":"Paul Bobbink, Géraldine Gschwind, Philip Larkin, Sebastian Probst","doi":"10.1177/10497323241285692","DOIUrl":"10.1177/10497323241285692","url":null,"abstract":"Venous leg ulcers (VLUs) provoke multiple symptoms and impact individuals and society as a whole. Their treatment and prevention strategies require individual's involvement in self-management strategies. Insufficient knowledge with regard to prevention, management, and treatment has been identified as a critical factor related to VLUs and their recurrence. Therapeutic patient education (TPE) proposed as part of a management strategy for this population provides unclear benefits regarding wounds healing or prevention of recurrence. The aim of the study was to develop a theory explaining how individuals with a VLU experience an individualized nurse-led TPE program regarding self-management strategies. The constructivist approach of Charmaz to the grounded theory method was used to develop the theory. A total of 26 individuals contributed to the co-construction of the theory through face-to-face or telephone semi-structured interviews. Data analysis and data collection occurs simultaneously with a comparative process to reveal the conceptual categories, apply theoretical sampling, and define theoretical saturation. The theory of \"Conscientiously Engaging in Self-Management\" was co-constructed with the participants encapsulating four categories: \"Being influenced by my own story,\" \"Being personally informed,\" \"Making conscientious decisions to engage in self-adapted management strategies,\" and \"Integrating a conscientious way of living.\" This theory highlights individuals' voices and stories toward their journey of VLU self-management taking contextual factors into consideration. This new theory offers new knowledge about implementation of self-management strategies for individuals living with a VLU and will inform clinical practice and contribute to the development of targeted interventions.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"901-915"},"PeriodicalIF":2.6,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12117134/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142510593","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Participatory Surveillance and Candidacy: A Discourse Analysis of Views on Self-Testing for Proteinuria in Pregnancy. 参与式监督与候选资格：对妊娠期蛋白尿自我检测观点的论述分析》。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-07-01 Epub Date: 2024-10-17 DOI: 10.1177/10497323241274270

Bethany E Jakubowski, Katherine L Tucker, Layla Lavallee, Hannah Wilson, Lucy Mackillop, Lucy C Chappell, Richard J McManus, Lisa Hinton

{"title":"Participatory Surveillance and Candidacy: A Discourse Analysis of Views on Self-Testing for Proteinuria in Pregnancy.","authors":"Bethany E Jakubowski, Katherine L Tucker, Layla Lavallee, Hannah Wilson, Lucy Mackillop, Lucy C Chappell, Richard J McManus, Lisa Hinton","doi":"10.1177/10497323241274270","DOIUrl":"10.1177/10497323241274270","url":null,"abstract":"Actively involving people in self-monitoring and management during their pregnancy is an emerging clinical and social practice. Self-monitoring of blood pressure and self-testing for proteinuria, key diagnostic tests for pre-eclampsia, are becoming commonplace in hypertensive pregnancies. While evidence exists on the acceptability and feasibility of self-monitoring blood pressure, evidence for self-testing for proteinuria in pregnancy is thin, with little knowledge of how it might affect the traditional structures of maternity care. As part of a diagnostic accuracy study on self-testing for proteinuria, pregnant people and healthcare professionals were recruited to a qualitative study to understand their experiences of, and attitudes to, self-testing. Multiple qualitative methods were used, including interviews, focus groups, and free text postcards. A discourse analysis was conducted to understand how self-testing might inform and reshape routine antenatal care. Analysis revealed a tension between the empowering concept of participatory surveillance, which pregnant people and healthcare professionals were broadly positive about, and the adjudications made by healthcare professionals about the candidacy, or suitability, of certain pregnant people to self-test. Candidacy is a framework for understanding what influences access to healthcare for socially disadvantaged groups, including professional judgments that impact access to interventions. While participatory surveillance was felt to have the potential to empower pregnant people in antenatal care, the loss of the traditional clinical gaze was disquieting for some, and pregnant people and healthcare professionals were reluctant to cede professional responsibility.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"863-875"},"PeriodicalIF":2.6,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12117135/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142478029","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"I Thought About Whether My Answers Represent What I Am Like": Hong Kong Autistic Females' Perspectives on Autism Spectrum Quotient (AQ). “我思考我的答案是否代表我是什么样的人”：香港自闭症女性对自闭症谱系商的看法。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-06-27 DOI: 10.1177/10497323251343773

Constance Kit Ching Chow, Gary Yu Hin Lam

{"title":"\"I Thought About Whether My Answers Represent What I Am Like\": Hong Kong Autistic Females' Perspectives on Autism Spectrum Quotient (AQ).","authors":"Constance Kit Ching Chow, Gary Yu Hin Lam","doi":"10.1177/10497323251343773","DOIUrl":"https://doi.org/10.1177/10497323251343773","url":null,"abstract":"One argument for the more frequent diagnosis of autism in males than females is the gender bias inherent in understanding and identifying autism. Despite the widespread use of standardized autism assessment tools, their relevance to the experience and needs of autistic females is rarely examined. There is also scant research focusing on the cultural responsiveness of these tools in non-Western contexts. In this study, we interviewed 13 autistic females in Hong Kong were interviewed about their experience with completing the Autism Spectrum Quotient (AQ) and interpreting the items. Results from thematic analysis revealed participants resisted the stereotypical definitions of autism depicted by the assessment tool. They elaborated on how the neurotypical world contributed to their challenges. They attempted to adjust their behaviors or even hide their autistic self to adapt to the expectations of the neurotypical society. The AQ was critiqued for its contents, translation, and administration formats. This study has implications for better understanding and meaningfully representing diverse presentations of autism in both research and clinical practice. Autism assessment tools should be improved and tailored to meet the specific needs of different genders and cultural subgroups.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251343773"},"PeriodicalIF":2.6,"publicationDate":"2025-06-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144508912","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"I Believe in Santa Claus" and Ozempic: A Foucauldian Discourse Analysis of Holiday Health Advertising. “我相信圣诞老人”与奥兹匹克：假日健康广告的福柯话语分析。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-06-19 DOI: 10.1177/10497323251350876

Phillip Joy, Meredith Bessey, Linda Mann

引用次数: 0

Using Qualitative Research in Community Engagement to Capture and Mitigate Vulnerability Mechanisms in the Face of Infectious Diseases: Insights From a Research-Based Program in Five European Countries During the COVID-19 Pandemic. 在社区参与中使用定性研究来捕捉和减轻传染病面前的脆弱性机制：来自2019冠状病毒病大流行期间五个欧洲国家基于研究的项目的见解

IF 2.4 2区医学

Qualitative Health Research Pub Date : 2025-06-16 DOI: 10.1177/10497323251346407

Mandy Geise, Jacob Osborne, Paul Grohma, Tamara Giles-Vernick, Benedetta Lana, Papa Mamadou Diagne, Zeliha Öcek, Uršula Lipovec Čebron, Neza Vodopivec, Anja Brunec, Jean Paul Baldacchino, Maurice Said, Gisella Orsini, Victoria Sultana, Concetta Vaccaro, Anna-Maria Volkmann, Ruth Kutalek, Michel Dückers

{"title":"Using Qualitative Research in Community Engagement to Capture and Mitigate Vulnerability Mechanisms in the Face of Infectious Diseases: Insights From a Research-Based Program in Five European Countries During the COVID-19 Pandemic.","authors":"Mandy Geise, Jacob Osborne, Paul Grohma, Tamara Giles-Vernick, Benedetta Lana, Papa Mamadou Diagne, Zeliha Öcek, Uršula Lipovec Čebron, Neza Vodopivec, Anja Brunec, Jean Paul Baldacchino, Maurice Said, Gisella Orsini, Victoria Sultana, Concetta Vaccaro, Anna-Maria Volkmann, Ruth Kutalek, Michel Dückers","doi":"10.1177/10497323251346407","DOIUrl":"10.1177/10497323251346407","url":null,"abstract":"Various frameworks have been proposed for carrying out community engagement (CE) in the context of infectious disease response, but few have done so through a lens of vulnerability and even fewer, if any, have compared cases across countries. This paper reflects on the implementation of a project based on social science research and CE to capture and mitigate vulnerability mechanisms, which was carried out in France, Germany, Italy, Malta, and Slovenia during the COVID-19 pandemic. Using qualitative data collected through interviews, a focus group discussion, and project meetings, we describe how a stepwise CE process was carried out in the context of an international, multi-sectoral project. As such, this paper sheds light on the applicability of the methodology, the strategies followed, and overlapping themes encountered during the CE implementation. In all five countries, researchers created overviews of multiple vulnerability case descriptions situated in communities affected by the COVID-19 pandemic. Several recurring themes played a role in the CE process in the different settings: the challenges of finding, defining, and working with(in) communities; the role and position of researchers \"in action\"; stakeholders and power dynamics; timing of stakeholder involvement; translating qualitative data on vulnerability mechanisms into practical solutions; and sustainability and institutional integration. It is important to consider these themes when planning future initiatives to apply social and behavioral science methods to address and mitigate vulnerabilities in communities confronted with pandemics or other crisis contexts.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251346407"},"PeriodicalIF":2.4,"publicationDate":"2025-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144303340","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Losing and Regaining Sense of Control: A Cancer Patient's Interactions With Healthcare Professionals. 失去和恢复控制感：癌症患者与医疗保健专业人员的互动。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-06-14 DOI: 10.1177/10497323251347896

Satu Koskinen, Eeva Aromaa, Päivi Eriksson

{"title":"Losing and Regaining Sense of Control: A Cancer Patient's Interactions With Healthcare Professionals.","authors":"Satu Koskinen, Eeva Aromaa, Päivi Eriksson","doi":"10.1177/10497323251347896","DOIUrl":"https://doi.org/10.1177/10497323251347896","url":null,"abstract":"By jointly telling the story of one of us, the authors, we highlight how supportive healthcare relationships can support a patient's sense of agency and open pathways for restoring a sense of control in the midst of serious illness. Drawing on personal experiences of living through cancer as a patient or a caregiver in Finland led us to explore how a sense of control can be lost and gradually regained. Drawing on our shared reflections and experiences as collaborating autoethnographers, we analyzed Satu's, the first author of this article, changing sense of agency and control, focusing on five key episodes over the 18 months following her diagnosis. As we revisited these episodes together, we identified how impersonal and one-sided communication within the healthcare system contributed to her loss of a sense of control. Over time, however, through more dialogic, respectful, and participatory interactions with healthcare professionals, she found ways to reclaim control and agency-not just in navigating illness but in shaping life beyond it. Our collaborative analysis offers new insights into the evolving dynamics of control, agency, and patient-professional interaction. We contribute to the literature on illness management by foregrounding relational, contextual, and socially constructed understandings of control. By illustrating the importance of patient-professional interactions, the study highlights the potential for rebuilding a sense of agency and control through supportive healthcare relationships.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251347896"},"PeriodicalIF":2.6,"publicationDate":"2025-06-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144295142","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0