Qualitative Health Research最新文献_第8页

The Wishes, Perceived Barriers, and Support Needs of People Living in Persistent Poverty. 生活在持续贫困中的人们的愿望、感知到的障碍和支持需求。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-28 DOI: 10.1177/10497323241309803

Lincy Scholten, Sandra H H Schel, Linda van den Dries, Gerdine A J Fransen-Kuppens, Renée de Vet, Judith R L M Wolf

{"title":"The Wishes, Perceived Barriers, and Support Needs of People Living in Persistent Poverty.","authors":"Lincy Scholten, Sandra H H Schel, Linda van den Dries, Gerdine A J Fransen-Kuppens, Renée de Vet, Judith R L M Wolf","doi":"10.1177/10497323241309803","DOIUrl":"https://doi.org/10.1177/10497323241309803","url":null,"abstract":"This study explores the wishes, perceived barriers, and support needs of people living in persistent poverty. These remain undetermined, yet are essential for developing effective support for this group. We conducted semi-structured video call interviews with people living in persistent poverty (n = 14), peer workers (n = 5), and practitioners (n = 5) in five municipalities in the Netherlands. The findings show that wishes revolve around improving individuals' socio-economic security, their (loved-ones') well-being, and relatedness. The realization of these wishes is hindered by socio-economic barriers, support structures, psychological processes, and an intergroup reality gap. Participants therefore advocated for structural changes in policy and practice. These include more income, a focus on poverty prevention, easily accessible and tailor-made support, and bridging the gap between the living and system world. In addition, service provision for people living in persistent poverty should prioritize the quality of the working alliance, self-direction, a holistic approach, and the engagement of peer workers.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323241309803"},"PeriodicalIF":2.6,"publicationDate":"2025-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143736230","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Unreachable Loneliness: Informal Supports Role Amid Low Belonging Perceptions of Suicide-Vulnerable Youth. 遥不可及的孤独：易自杀青少年低归属感中的非正式支持角色。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-28 DOI: 10.1177/10497323251316192

Matt Drabenstott, Nishad Khanna, Tanya Halsall

{"title":"Unreachable Loneliness: Informal Supports Role Amid Low Belonging Perceptions of Suicide-Vulnerable Youth.","authors":"Matt Drabenstott, Nishad Khanna, Tanya Halsall","doi":"10.1177/10497323251316192","DOIUrl":"https://doi.org/10.1177/10497323251316192","url":null,"abstract":"Suicide remains a leading cause of death for young people. This study explores the critical role of informal supports in the lives of youth facing suicidal crises by tracing the role of belonging throughout suicidal episodes. Using interpretative phenomenological analysis, this study aims to provide a holistic view of belongingness couched in the rich context of lived experience, broadening the scope of belongingness while taking into account the acute nature of the construct. Three young adults who experienced suicidal episodes during adolescence were interviewed. Participants described how their suicidal thoughts often overshadowed their ability to perceive support from family and friends, rendering them emotionally unreachable at crucial moments. Yet, these significant others played critical roles at every level of analysis. The study identifies key strategies for informal supports, including persistent engagement, non-abandonment, openness, and reciprocal support, to effectively address suicidal episodes. Additionally, this work draws out upstream policy recommendations for communities and policy makers. Findings underscore the importance of understanding and navigating the complex dynamics of belongingness and informal support during suicidal episodes. This research contributes to suicide prevention by emphasizing the need for informal supports, as key links of a social safety net, in bridging the gap between perceived and actual care.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251316192"},"PeriodicalIF":2.6,"publicationDate":"2025-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143743503","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Uncovering the Meaning of Parent-Nurse Relationships in Childhood Cancer Care: A Gadamerian Hermeneutic Study. 揭示儿童癌症护理中父母与护士关系的意义：加达默尔诠释学研究》。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-28 DOI: 10.1177/10497323251320001

Jennifer Costa

{"title":"Uncovering the Meaning of Parent-Nurse Relationships in Childhood Cancer Care: A Gadamerian Hermeneutic Study.","authors":"Jennifer Costa","doi":"10.1177/10497323251320001","DOIUrl":"https://doi.org/10.1177/10497323251320001","url":null,"abstract":"The diagnosis of cancer in a child thrusts parents into a complex healthcare system where they find themselves developing new relationships with pediatric oncology nurses. While parents and nurses acknowledge the meaningfulness and complexity of these relationships, many find it difficult to articulate. The purpose of this study was to understand the meaning and experience of the parent-nurse relationship in childhood cancer care. This study employed the tenets of Gadamerian hermeneutic philosophy. Data analysis looked to articulate meaningful interpretations of the interviews with parents and nurses of children with cancer through interpretive data analysis and utilized the hermeneutic circle as a way of conceptualizing and understanding the interpretive process. Sixteen interviews (n = 8 parents, n = 8 nurses) were completed. The findings suggested that both parents and nurses of children with cancer navigate through an evolving inner world unique to the cancer experience. The parent-nurse relationships were mutually identified as dynamic, complex, and emotionally laden, and drew on the shared strength, trust, humanity, and interconnectedness of one another. The parent-nurse relationships played a significant role in traversing the challenges encountered with entry into and navigation through the pediatric cancer world. The findings provide practical knowledge to inform and enhance relationship development at the clinical level, impact how relationship development is taught at the academic level, and inform professional development. This study contributes to the understanding of parent-nurse relationships and opens the door for integration of innovative practices in nursing education and clinical care.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251320001"},"PeriodicalIF":2.6,"publicationDate":"2025-03-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143736231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Cultural Mechanisms of Leprosy-Related Stigma: A Gendered Analysis Using the What Matters Most Framework in Far-Western Nepal. 麻风相关污名的文化机制：在尼泊尔远西部使用最重要的框架进行性别分析。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-27 DOI: 10.1177/10497323251318604

Marlies J Visser, Eliza A Kc, Yoslien Sopamena, Pirt B Bist, Sita Bist, Madhusudan Subedi, Nand Lal Banstola, Sarju S Rai, Lawrence H Yang, Dadun, Ruth M H Peters

{"title":"Cultural Mechanisms of Leprosy-Related Stigma: A Gendered Analysis Using the What Matters Most Framework in Far-Western Nepal.","authors":"Marlies J Visser, Eliza A Kc, Yoslien Sopamena, Pirt B Bist, Sita Bist, Madhusudan Subedi, Nand Lal Banstola, Sarju S Rai, Lawrence H Yang, Dadun, Ruth M H Peters","doi":"10.1177/10497323251318604","DOIUrl":"https://doi.org/10.1177/10497323251318604","url":null,"abstract":"Leprosy-related stigma in Nepal adversely affects socioeconomic and health outcomes. The cultural shaping of stigma is often overlooked in stigma (reduction) research. Therefore, this study aimed to (i) identify cultural capabilities in daily life that \"matter most\" for men and women; (ii) extend and corroborate perspectives and experiences of leprosy-related stigma; and (iii) explore how \"what matters most\" (WMM) intensifies or protects against leprosy-related stigma in Far-Western Nepal. We performed a directed content analysis of 38 interviews and 8 focus group discussions with a total of 80 men and women affected by leprosy, family members, and healthcare workers-directed by the WMM framework. WMM included key personal and family capabilities, centered around personal and family honor and prestige (ijjat). Stigma was rooted in cultural beliefs of leprosy as karma or divine punishment leading to apahelana (disrespect or disregard) and social exclusion, indicating a loss of personhood. This hinders attainment of WMM in both family and community settings which can negatively affect self-confidence and (mental) health, exacerbating stigma. The study supports the applicability of WMM to leprosy and found that family support and involvement alongside treatment could mitigate some powerful aspects of stigma attached to leprosy. Given its dual role found in this study, family support should be leveraged for stigma reduction efforts enabling families to facilitate WMM for persons affected by leprosy. This study advances the work on WMM and stigma by exploring an infectious condition historically associated with deeply rooted misconceptions, fear, and exclusionary practices.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251318604"},"PeriodicalIF":2.6,"publicationDate":"2025-03-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732422","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Representations of Meta-Ethnography: In Limbo in the Jungle of Misguided Paths? 元民族志的表现：在迷途丛林的边缘？

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-27 DOI: 10.1177/10497323251316841

Terese Elisabet Bondas

{"title":"Representations of Meta-Ethnography: In Limbo in the Jungle of Misguided Paths?","authors":"Terese Elisabet Bondas","doi":"10.1177/10497323251316841","DOIUrl":"https://doi.org/10.1177/10497323251316841","url":null,"abstract":"Since its origin in the ethnography of education by Noblit and Hare in 1988, meta-ethnography has been molded between its qualitative research heritage as an interpretative synthesizing method and an increasing influence from systematic reviews. The eMERGe reporting guidance was introduced in 2019 to help improve the reporting of meta-ethnographies; however, the impact of this is not yet fully known, and the trustworthiness of meta-ethnographies has been challenged. Therefore, the aim of this study is to illuminate representations of meta-ethnography in the method literature in relation to the original publication by Noblit and Hare in 1988 and overviews on qualitative synthesizing methods. This meta-method study is based on published methodological research that focuses on descriptions of meta-ethnography. Using an overarching metaphor of meta-ethnography being in limbo in the jungle of misguided paths, three representations are illuminated. Meta-ethnography seems to be removed from its qualitative interpretive original tradition due to the recent impact of systematic quantitative reviews. Researchers' uncritical use of references has created a terminological mismatch risking misunderstanding and distortion in descriptions and suggested implementation. To strengthen future research, an in-depth understanding of meta-ethnography, its assumptions, and its characteristics, an interpretive application is needed. In addition, maintaining a critical attitude to secondary method references that deviate from the original interpretative epistemology and implementation is also required.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251316841"},"PeriodicalIF":2.6,"publicationDate":"2025-03-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732459","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Review on Carspecken's Critical Ethnography. 卡尔斯伯肯的批判民族志述评。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-27 DOI: 10.1177/10497323251325472

Nayyere Davoudi, Nahid Dehghan Nayeri, Mohammad Saeed Zokaei, Nematallah Fazeli, Phil Francis Carspecken

引用次数: 0

Kept at a Distance: A Qualitative Study of Bereaved Individuals' Experiences of How Death Was Addressed When Their Partner Died at Home. 保持距离：一项关于失去亲人的个人在他们的伴侣在家中去世时如何处理死亡的经历的定性研究。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-27 DOI: 10.1177/10497323251328294

Margareta Aurén-Møkleby, Gunvor Aasbø, Anne Marit Mengshoel, Kari Nyheim Solbrække, Lisbeth Thoresen

{"title":"Kept at a Distance: A Qualitative Study of Bereaved Individuals' Experiences of How Death Was Addressed When Their Partner Died at Home.","authors":"Margareta Aurén-Møkleby, Gunvor Aasbø, Anne Marit Mengshoel, Kari Nyheim Solbrække, Lisbeth Thoresen","doi":"10.1177/10497323251328294","DOIUrl":"https://doi.org/10.1177/10497323251328294","url":null,"abstract":"Open awareness and dialogue concerning dying are considered essential for planning and realizing death at home. Moreover, much help and support throughout the dying process and death trajectory are provided by a person's next of kin, often a spouse or partner. To explore how death was addressed among couples when one of the partners had died at home, we interviewed 14 bereaved individuals. The results were grouped into the following themes: \"Idea(l)s and realities of communication,\" \"Different kinds of talks,\" and \"Unspoken understandings and showing without talking.\" We found that prevailing narratives about how death should be discussed in socially and culturally expected ways affected how the bereaved addressed the imminent death of their partner, both at the time and in their retrospective reflections. In a few cases, death had been talked about directly using words such as \"death\" and \"dying,\" although indirect or avoidant discussions about death were more common. The bereaved mentioned unspoken understandings about how it was unnecessary to address death-that is, one just knew. In cases where the couple could not share a silent understanding, the bereaved had experienced loneliness. Death could also be addressed through actions, such as becoming closer or the ill person arranging for an easier subsequent life for their partner. To reduce the expectations that dying people and their partners might have to interact in certain ways at the end of life, it is important to acknowledge that awareness of dying can be expressed and shared in various ways.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251328294"},"PeriodicalIF":2.6,"publicationDate":"2025-03-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143732451","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Knowledge and Health Beliefs About Dementia Prevention Among Chinese Older Adults: A Qualitative Study. 中国老年人痴呆预防知识与健康信念的质性研究

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-25 DOI: 10.1177/10497323251324127

Jiankun Dong, Shumin Yu, Yun Qin, Xiaoyuan Jin, Yiqun Xing, Hongmei Wang

{"title":"Knowledge and Health Beliefs About Dementia Prevention Among Chinese Older Adults: A Qualitative Study.","authors":"Jiankun Dong, Shumin Yu, Yun Qin, Xiaoyuan Jin, Yiqun Xing, Hongmei Wang","doi":"10.1177/10497323251324127","DOIUrl":"https://doi.org/10.1177/10497323251324127","url":null,"abstract":"Self-management interventions are becoming more prevalent for individuals aiming to prevent dementia. However, the effectiveness of this approach is heavily shaped by health beliefs. This study seeks to investigate Chinese older adults' knowledge and health beliefs about dementia prevention and examine the unique characteristics and transformations of Chinese culture with their associated implications. These insights aim to inform the development of more effective prevention strategies. Using the informed grounded theory approach, guided by the health belief model, we conducted semi-structured interviews with 42 older adults. The conceptual framework centered on three themes, allowing the identification of both barriers and facilitators to dementia prevention. These factors reflect the cultural influences on dementia prevention, including positive cultural transformations: the decline of traditional superstitions, the emergence of modern scientific thinking, the shift from negative to positive aging paradigms, and the growing acceptance of digital technologies among older adults. At the same time, traditional cultural elements-such as aversion to illness, fear of death, and the importance placed on \"mianzi\"-persist in reinforcing the stigma associated with dementia. Moreover, collectivist values exert dual influences, both facilitating and inhibiting individual health behaviors.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251324127"},"PeriodicalIF":2.6,"publicationDate":"2025-03-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143711647","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Wide-Ranging Responses to Temporary Abstinence Challenges Among UK-Based Heavier Drinkers: A Three-Wave Longitudinal Interpretative Phenomenological Analysis. 对英国重度饮酒者暂时戒酒挑战的广泛回应：三波纵向解释现象学分析。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-20 DOI: 10.1177/10497323251320913

Dom Conroy, Ashlea Bartram

{"title":"Wide-Ranging Responses to Temporary Abstinence Challenges Among UK-Based Heavier Drinkers: A Three-Wave Longitudinal Interpretative Phenomenological Analysis.","authors":"Dom Conroy, Ashlea Bartram","doi":"10.1177/10497323251320913","DOIUrl":"https://doi.org/10.1177/10497323251320913","url":null,"abstract":"Temporary abstinence challenges (TACs) encouraging people to abstain from alcohol for typically 1 month time periods have acquired considerable popularity. TACs may promote longer-term reductions in alcohol consumption, but it is unclear how TACs influence behavior changes and whether positive changes are held among adults identifiable as relatively heavy drinkers. Drawing on a UK-based sample of six heavier drinkers, we measured self-reported alcohol consumption and drink-refusal self-efficacy and conducted interviews at three timepoints: pre-TAC participation (T1), and immediately following (T2) and 6 months post-TAC (T3) participation. Using longitudinal interpretative phenomenological analysis, an analytic technique for understanding change over time, and via integration with quantitative self-report measures, we identified three patterns of evidence about longer-term change (or not) in alcohol use linked to TAC participation: \"mainly clear change,\" \"unclear/complicated change,\" and \"no change or limited change,\" each with narrative illustrations from two participants. We found evidence of greater reflection about alcohol consumption at T2 and lower levels of T3 alcohol intake among four of six participants. For some, TAC participation revealed downsides of drinking, and linked participation to reductions in their alcohol consumption. However, other interviews suggested ambivalence about and \"backfire effects\" associated with TAC participation, in that positives of alcohol consumption were highlighted, with apparently linked negligible changes in consumption practices. Research implications suggest that inoculation against renewed alcohol appreciation may strengthen TAC campaign successes. Future research must test the tenability of our identified trajectories and explore, experimentally, drinking trajectories among registered versus unregistered TAC participants.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251320913"},"PeriodicalIF":2.6,"publicationDate":"2025-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143665153","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Evaluating the Quality of a Public Deliberation Through the Use of Enhanced Qualitative Analysis. 通过使用增强的定性分析来评估公共审议的质量。

IF 2.6 2区医学

Qualitative Health Research Pub Date : 2025-03-20 DOI: 10.1177/10497323251324800

Claire Draucker, Andrés Carrión, Mary A Ott, Amelia Knopf

{"title":"Evaluating the Quality of a Public Deliberation Through the Use of Enhanced Qualitative Analysis.","authors":"Claire Draucker, Andrés Carrión, Mary A Ott, Amelia Knopf","doi":"10.1177/10497323251324800","DOIUrl":"https://doi.org/10.1177/10497323251324800","url":null,"abstract":"Public deliberations engage a diverse group of stakeholders to discuss and deliberate on issues that are value-based or contentious. Evaluating the quality of deliberations is critical because outcomes can inform public policy decisions. Quality evaluations often include a qualitative analysis of verbatim transcripts of deliberation sessions to determine if deliberation goals are met, but the analytic methods that are often used are often not well developed. The purpose of this report is to describe a quality evaluation of a public deliberation on the acceptability of minor self-consent for biomedical HIV prevention trials that used enhanced qualitative analysis. The analysis included a directed content analysis using an established framework of deliberation principles, frequency code counts displayed on distribution tables, and an inductive content analysis to describe the nature of the remarks coded to each principle. The evaluation confirmed the overall high quality of the deliberation but also revealed that quality would have been enhanced by strategies that better encouraged deliberants to (a) challenge opinions of others, (b) consider a societal perspective in forming their views, (c) consistently provide reasons for stated opinions, and (d) apply information provided by experts in their arguments. The results of the quality evaluation can be used to inform protocol refinement and facilitator training for future deliberations.","PeriodicalId":48437,"journal":{"name":"Qualitative Health Research","volume":" ","pages":"10497323251324800"},"PeriodicalIF":2.6,"publicationDate":"2025-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143665150","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0