Elana R Abelson, Kristen E Jastrowski Mano, Lori E Crosby
{"title":"Stigma among youth with sickle cell disease in community and medical settings: a scoping review.","authors":"Elana R Abelson, Kristen E Jastrowski Mano, Lori E Crosby","doi":"10.1093/jpepsy/jsaf028","DOIUrl":"10.1093/jpepsy/jsaf028","url":null,"abstract":"<p><strong>Objective: </strong>Sickle cell disease (SCD), the most common genetic disorder in the United States, disproportionately affects Black individuals. A major aspect of SCD is the experience of vaso-occlusive episodes, a feature often characterized by debilitating pain which may necessitate emergency department (ED) visits. In the ED, adults with SCD often experience discrimination due to intersecting identities of race and disease status. Considerably less is known about experiences of discrimination for youth with SCD. This review aims to: (1) critically examine available research on the experiences of discrimination and stigma among youth with SCD in the United States, (2) describe measures currently used to assess pediatric stigma and/or discrimination, and (3) identify gaps in the literature to guide research.</p><p><strong>Method: </strong>We conducted a scoping review using a modified version of the Preferred Reporting Items for Systematic Review (PRISMA) and Meta-Analyses guidelines. Data were searched from database inception to May 2023. Initially, 285 articles were retrieved; after duplicate removal, 214 articles remained.</p><p><strong>Results: </strong>Reports of stigma varied by informant (i.e., caregiver, youth, or providers), method (i.e., qualitative or quantitative), and measure.</p><p><strong>Conclusions: </strong>A better understanding of experiences of stigma and discrimination across development for youth with SCD is needed. Research aimed at reducing stigma and discrimination and its consequences in youth with SCD is warranted to enhance quality of life and improve health outcomes.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"511-524"},"PeriodicalIF":2.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144112414","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Melissa A Faith, Sarah Sobalvarro, Allison Schimmel-Bristow, Jonathan T Rawlins, Rachel Glock, Ana S P Miranda, Vedanta Dariya, Dailyn Acosta
{"title":"Motivational interviewing pilot randomized trial targeting ethnically-, linguistically-, and racially-diverse mothers' Neonatal Intensive Care Unit (NICU) bedside presence.","authors":"Melissa A Faith, Sarah Sobalvarro, Allison Schimmel-Bristow, Jonathan T Rawlins, Rachel Glock, Ana S P Miranda, Vedanta Dariya, Dailyn Acosta","doi":"10.1093/jpepsy/jsaf030","DOIUrl":"10.1093/jpepsy/jsaf030","url":null,"abstract":"<p><strong>Objective: </strong>We evaluated feasibility, acceptability, and fidelity of motivational interviewing (MI) designed to increase neonatal intensive care unit (NICU) presence among ethnically/linguistically/racially diverse mothers. We also assessed study design feasibility to inform a larger, future randomized controlled trial.</p><p><strong>Method: </strong>We randomized 95 mothers to receive MI (intervention condition) or treatment as usual (control condition) during their baby's Level IV NICU admission. Eligibility criteria included mothers' adult age, English- and/or Spanish-language proficiency, and having a NICU-hospitalized infant. Using single-blind methodology, we assigned mothers to receive MI (n = 47) or treatment-as-usual (n = 42). Mothers rated intervention satisfaction, the extent to which MI motivated their NICU presence, and their openness to additional MI intervention. We evaluated MI fidelity to further assess MI feasibility.</p><p><strong>Results: </strong>Of 131 eligible mothers, 72.5% enrolled. Motivational interviewing-arm mothers received 1-6 weekly MI sessions. Regarding MI-arm mothers, 100% agreed to subsequent MI intervention, and 90% reported strong MI satisfaction. Eighty-seven percent of mothers reported that MI motivated them to be present in the NICU. Motivational interviewing interventionists achieved expert proficiency for 72.7% of coded MI sessions and basic competency for the remaining 27.3% of coded sessions. Mothers' MI perceptions did not differ by ethnic or linguistic groups.</p><p><strong>Conclusions: </strong>Motivational interviewing was feasible and highly acceptable across all ethnic/linguistic/racial groups, making MI a promising intervention to increase maternal NICU presence among mothers from traditionally marginalized groups. Future research should evaluate the extent to which MI can increase maternal NICU presence and enhance infant (e.g., medical/developmental) and maternal (e.g., postpartum depression, infant bonding) outcomes.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"456-466"},"PeriodicalIF":2.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144310616","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Exploring academic achievement and relevant risk factors among a community sample of adolescents with chronic pain compared to peers.","authors":"Darragh Mullen, Melissa Pielech, Agnieszka Graham, Anthea Percy","doi":"10.1093/jpepsy/jsaf015","DOIUrl":"10.1093/jpepsy/jsaf015","url":null,"abstract":"<p><strong>Objective: </strong>To compare adolescents in the United Kingdom with chronic pain with their peers in relation to psychological and behavioral outcomes (i.e., mental health, bullying, substance use) and academic achievement.</p><p><strong>Methods: </strong>Participants were adolescents with chronic pain (n = 856) and peers without chronic pain (n = 3,093) from the Avon Longitudinal Study of Parents and Children (ALSPAC) who attended a research clinic in the United Kingdom at 17 years and completed data collection at multiple timepoints. Chi-square and t-tests were used to explore group differences across psychological and behavioral measures. Regression and mediation analyses examined the relationship between chronic pain and academic achievement measures, including the derived variables of pathway to higher education and educational qualifications.</p><p><strong>Results: </strong>Adolescents with chronic pain were found to experience more difficulties with mental health, bullying, and substance use. Additionally, a relationship between chronic pain and reporting a pathway to higher education was found after key variables were accounted for, although group differences were not observed across other academic achievement measures. Further analyses identified a moderate indirect effect of chronic pain on reporting a pathway to higher education when mediated by sleep difficulties.</p><p><strong>Conclusions: </strong>The limited predictive relationship between chronic pain and academic achievement potentially indicates that, despite struggling more with factors such as mental health, bullying, and substance use, adolescents with chronic pain may utilize enhanced skills in maintaining a developmental trajectory at school or external factors such as support from their caregivers or school. The complex interrelationship between sleep and chronic pain is also an important consideration for the ability to achieve academically.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"467-478"},"PeriodicalIF":2.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12206300/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144042175","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Commentary: Enhancing positive mental health outcomes for siblings of children with chronic conditions through group intervention.","authors":"Stephanie V Madden, Samantha A Miadich","doi":"10.1093/jpepsy/jsaf042","DOIUrl":"10.1093/jpepsy/jsaf042","url":null,"abstract":"","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"454-455"},"PeriodicalIF":2.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144025229","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Olivia Dobson, Carter Janssen, Anna Taddio, Frank J Symons, C Meghan McMurtry
{"title":"Online environmental scan and content analysis of social stories about needle procedures.","authors":"Olivia Dobson, Carter Janssen, Anna Taddio, Frank J Symons, C Meghan McMurtry","doi":"10.1093/jpepsy/jsaf025","DOIUrl":"10.1093/jpepsy/jsaf025","url":null,"abstract":"<p><p>Needle procedures are often difficult for autistic children. Preparatory education is an evidence-based strategy that is especially important for autistic children given they commonly struggle with unpredictability. Carol Gray developed Social Stories to walk autistic children through new/challenging situations step-by-step. Although needle-related Social Stories exist online, no research has investigated whether their content aligns with best practices for needle pain and fear management and Gray's guidelines for Social Story development.</p><p><strong>Objective: </strong>This study aimed to characterize the content of online Social Stories about vaccination and venipuncture. Specifically, the degree to which Social Stories (a) depict evidence-based/helpful and unhelpful coping strategies, (b) follow Gray's guidelines, and (c) depict accurate procedural steps, was examined in an exploratory manner.</p><p><strong>Methods: </strong>An online environmental scan (systematic method of collecting and synthesizing information) characterized the content of Social Stories. A Google search was conducted, including free, English-language stories. After screening, two coders conducted deductive content analysis (>80 codes) with the sample of 82 eligible Social Stories; frequency statistics and quotes were derived.</p><p><strong>Results: </strong>Most Social Stories focused on vaccination (89%). Social Stories commonly conveyed evidence-based strategies (e.g., 70% depicted distraction), accurate procedural information (e.g., >80% depicted step of needle insertion), and followed Gray's guidelines (e.g., 90% had meaningful titles). Several areas for improvement exist, including allowing for user customization and depicting less commonly shown evidence-based strategies like topical anesthetics.</p><p><strong>Conclusion: </strong>Social Stories may have utility for supporting autistic children and their caregivers through needle procedures. Examining effectiveness/outcomes of usage is a future research avenue.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"500-510"},"PeriodicalIF":2.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12206299/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144032574","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Solveig M Kirchhofer, Stian Orm, Nancy E Briggs, Trude Fredriksen, Erica Zahl, Caitlin M Prentice, Matteo Botta, Lauren Kelada, Ursula M Sansom-Daly, Torun M Vatne, Krister W Fjermestad
{"title":"Siblings in families of children with chronic disorders: a model of risk and protective factors.","authors":"Solveig M Kirchhofer, Stian Orm, Nancy E Briggs, Trude Fredriksen, Erica Zahl, Caitlin M Prentice, Matteo Botta, Lauren Kelada, Ursula M Sansom-Daly, Torun M Vatne, Krister W Fjermestad","doi":"10.1093/jpepsy/jsaf017","DOIUrl":"10.1093/jpepsy/jsaf017","url":null,"abstract":"<p><strong>Objective: </strong>We empirically tested a family systems model's ability to explain variance in psychosocial adjustment among siblings of children with chronic developmental and physical disorders (CDs). The model included the impact of CD severity, family social support, parental mental health, and parent-sibling communication quality. We hypothesized that family social support would moderate the relationship between CD severity and parent mental health, and that sibling-reported communication quality with their parents would mediate the relationship between parent mental health and sibling psychosocial adjustment.</p><p><strong>Methods: </strong>We used baseline data from a sibling intervention trial (SIBS-RCT) comprising 288 families with siblings aged 8-16 years and their parents, recruited from health services and user organizations. Parents reported CD severity, parental mental health, and family social support. Siblings self-reported their psychosocial adjustment, including mental health, CD-related adjustment, quality of life, and prosocial behavior. We employed structural equation modeling to test the hypothesized relationships.</p><p><strong>Results: </strong>Higher parent-sibling communication quality was significantly associated with better sibling-reported quality of life and more prosocial behavior. Lower levels of paternal depression were significantly associated with better sibling-reported quality of life and mental health, whereas maternal depression was not. We did not find support for the hypothesized mediating and moderating pathways for family social support and parent-sibling communication.</p><p><strong>Conclusions: </strong>The findings highlight the importance of addressing paternal mental health and parent-sibling communication in promoting sibling psychosocial adjustment. Future studies should use comprehensive, multi-informant approaches and consider the complex interplay of family factors in the context of childhood CD.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"488-499"},"PeriodicalIF":2.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12206301/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144021145","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Bouncing Back Better: development of a family intervention program after young child burn injury.","authors":"Nakisa Asefnia, Aaron Mun, Carrie Tully","doi":"10.1093/jpepsy/jsaf027","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf027","url":null,"abstract":"<p><strong>Objective: </strong>Burn injuries are a common form of unintentional childhood injury. The psychological sequelae of pediatric burn injury on the injured child and caregivers can be significant, including traumatic stress, anxiety, and depression. Factors such as parent capacity for monitoring and child ADHD (attention-deficit/hyperactivity disorder) symptoms can significantly increase the risk of injury in early childhood. A dual-foci intervention was created to improve family functioning and coping after a burn injury. The current proof-of-concept study examines the Bouncing Back Better (BBB) intervention, which targets parent mood and child externalizing behaviors after unintentional burn injury.</p><p><strong>Methods: </strong>BBB intervention was completed by 10 parent-child dyads (12 enrolled). Inclusion comprised children (2-5 years) who sustained an unintentional burn injury and demonstrated hyperactivity symptoms upon standard clinical care psychosocial screening. BBB included four (30-45 min) sessions that involve CBT-focused behavioral intervention skills. Feasibility was assessed through recruitment, enrollment, and retention rates. Acceptability was assessed through satisfaction questionnaires and qualitative interviews. Proof-of-concept was demonstrated through analyses of findings from validated measures of depression, distress, and ADHD symptoms.</p><p><strong>Results: </strong>Findings support acceptability and feasibility of the intervention and provide evidence of a successful proof-of-concept by demonstrating significant decreases in reported parental depression symptoms and improvements in child inattentive and hyperactive behaviors.</p><p><strong>Conclusions: </strong>An intervention focused on both caregiver well-being and child behaviors improves overall family functioning. Future research aims to expand the BBB intervention to a larger sample and examine initial efficacy through pilot testing using a randomized design and a larger team of treatment providers.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144162943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Leila Sachner, Jessica S Flynn, Chia-Wei Hsu, Haitao Pan, Niki Jurbergs, Alise Blake, Rose B McGee, Lynn Harrison, Missy Robinson, Tolulope Adanri, Kim E Nichols, Katianne M Howard Sharp
{"title":"The moderating role of parental cognitive perceptions in the link between children's cancer predisposition genetic testing results and parent psychological adjustment.","authors":"Leila Sachner, Jessica S Flynn, Chia-Wei Hsu, Haitao Pan, Niki Jurbergs, Alise Blake, Rose B McGee, Lynn Harrison, Missy Robinson, Tolulope Adanri, Kim E Nichols, Katianne M Howard Sharp","doi":"10.1093/jpepsy/jsaf026","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf026","url":null,"abstract":"<p><strong>Objective: </strong>Children with cancer increasingly undergo germline genetic testing to identify genetic predispositions and inform clinical care options. Parents of children with pathogenic/likely pathogenic (P/LP) germline results have reported more distress than parents of children with negative results. Little is known about modifiable risk and resilience factors for intervention, such as cognitive perceptions. This study examined the moderating effects of parents' cognitive perceptions on adjustment to their child's germline genetic test results.</p><p><strong>Methods: </strong>Parents (N = 191) completed surveys reporting cognitive perceptions (i.e., intolerance of uncertainty, symptom attributions, and perceptions of child physical vulnerability) and psychological adjustment 1-3.99 years post-disclosure of their child's genetic test results. Moderation analyses examined whether parents' cognitive perceptions moderated the relation between children's cancer predisposition genetic testing results (P/LP, uncertain [VUS], or negative) and parental psychological adjustment.</p><p><strong>Results: </strong>Moderation analyses revealed significant interactions between genetic test results and both intolerance of uncertainty and psychological attributions for children's symptoms. Specifically, parents of children with P/LP results endorsed significantly more distress and uncertainty compared to each VUS and negative results, only in cases of moderate to high intolerance of uncertainty and psychological attributions (distress outcomes). In contrast, somatic attributions for symptoms and perceived child vulnerability were directly associated with higher distress regardless of results.</p><p><strong>Conclusions: </strong>Cognitions such as intolerance of uncertainty and psychological symptom attribution may contribute to distress among parents of children with P/LP results. Therefore, cognitive interventions (e.g., Cognitive Behavioral Therapy, Acceptance and Commitment Therapy) may help parents manage distress regarding their child's genetic cancer risk.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144143975","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Where you are matters: Daily health-related quality of life in parents of children with special healthcare needs.","authors":"Lyndsey N Graham, Shevaun D Neupert","doi":"10.1093/jpepsy/jsaf036","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf036","url":null,"abstract":"<p><strong>Objective: </strong>Parents of children with special healthcare needs (CSHCNs) tend to report low health-related quality of life (HRQoL) in general, however, little is known about parents' day-to-day experiences particularly while their child is in the hospital. Hospital experiences are especially important for families of CSHCN, who are known to spend a considerable amount of time at the hospital. The goals of this study were to examine how daily HRQoL fluctuates in parent caregivers, and to further examine the role of context (hospital vs. home) in daily HRQoL.</p><p><strong>Method: </strong>One hundred parents of CSHCN (18-69 years, M = 38.12, SD = 8.64) were recruited to participate in the TRIUMPH study (To Research, Illuminate, and Understand Medical Parent Health) from inpatient pediatric units at one children's hospital. For 14 consecutive days, participants received email prompts to complete online survey measures reporting on their daily HRQoL.</p><p><strong>Results: </strong>Multilevel models indicated that daily HRQoL fluctuated significantly at both between- and within-person levels. Further, daily HRQoL was significantly lower and had significantly more within-person variability on hospital days as compared to home days.</p><p><strong>Conclusions: </strong>Our results indicated that parents' HRQoL is both poorer and more volatile within the hospital environment. Our results call attention to the need to assess intraindividual variability in parents of CSHCN, as it is clear that parent caregivers are a nuanced population with contextually relevant support needs.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144143977","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ariel A Williamson, Brizhay Davis, Chimereodo Okoroji, Olivia Cicalese, Amanda Ayala, Kristina Boling-Smith, Bethany Harvey, Rachel Honore, L'Vonne McMillan, Amy Kratchman, Rosemary Laberee, Heather Cathrall, Alexander G Fiks, Jodi A Mindell, Thomas J Power
{"title":"Family partnerships to support equity and cultural humility in pediatric intervention research.","authors":"Ariel A Williamson, Brizhay Davis, Chimereodo Okoroji, Olivia Cicalese, Amanda Ayala, Kristina Boling-Smith, Bethany Harvey, Rachel Honore, L'Vonne McMillan, Amy Kratchman, Rosemary Laberee, Heather Cathrall, Alexander G Fiks, Jodi A Mindell, Thomas J Power","doi":"10.1093/jpepsy/jsaf032","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf032","url":null,"abstract":"<p><strong>Objective: </strong>Family partnerships in community-engaged research (CEnR) can promote family-centered, equitable interventions. This paper describes the process (meeting frequency, content) of a collaborative research family partnership and related methodological modifications to support equity and cultural humility during a multi-phase project adapting and evaluating an early childhood sleep intervention (Sleep Well!) for families of primarily lower socioeconomic status (SES) backgrounds in urban (large, metropolitan) primary care.</p><p><strong>Methods: </strong>The Children's Hospital of Philadelphia Research Family Partners Program consulted on initial project development. Research family partners collaborated to modify intervention content, delivery methods, and research procedures in an open-pilot (NCT04046341) and randomized controlled trial (NCT04473222). We reviewed family partners meeting agendas, presentations, and minutes to identify meeting frequency, content, and resulting project modifications and to generate related themes. Family partners also provided recommendations for researchers, including for those without existing institutional CEnR resources.</p><p><strong>Results: </strong>Ten 60-120-min meetings with 4-6 family partners occurred over 4 years. Themes representing the partnership process and project modifications included enhancing flexibility, centering cultural humility, and incorporating contextual factors (coronavirus pandemic, police violence, racism). These factors were especially relevant as project participants were primarily Black mothers and/or of lower-SES backgrounds. Family partner recommendations highlighted the need for collaborative, meaningful, and communicative relationships in pediatric intervention research.</p><p><strong>Conclusions: </strong>The extent of recommended project modifications highlights the importance of family partnerships to support equity and cultural humility in pediatric psychology research and practice. Findings also underscore the need for representation of racial and ethnic minoritized scholars and families in this work.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144112412","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}