Journal of Pediatric Psychology最新文献

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Unwanted or negative treatment reactions in digital psychological interventions for adolescents with chronic pain. 数字心理干预对青少年慢性疼痛的不良或负面治疗反应。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-12-16 DOI: 10.1093/jpepsy/jsae099
Rocío de la Vega, Kaylee Yokoyama, Kristen Daniels, Tonya M Palermo
{"title":"Unwanted or negative treatment reactions in digital psychological interventions for adolescents with chronic pain.","authors":"Rocío de la Vega, Kaylee Yokoyama, Kristen Daniels, Tonya M Palermo","doi":"10.1093/jpepsy/jsae099","DOIUrl":"https://doi.org/10.1093/jpepsy/jsae099","url":null,"abstract":"<p><strong>Objective: </strong>Reports of pain clinical trials evaluating psychological treatments often lack sufficient details on the potential and actual harm resulting from intervention. We aimed to understand how frequent and intense treatment reactions, conceptualized as unwanted symptoms, were in three clinical trials of digital Cognitive Behavioral Therapy (CBT) for adolescents with: (1) chronic primary pain, (2) sickle cell disease, and (3) chronic pancreatitis. We also aimed to understand any differences by demographic and clinical variables.</p><p><strong>Method: </strong>Analyses were conducted with 246 youths (12-18 years old) experiencing chronic pain and one of their caregivers. 66% of the total sample was female. The number, intensity, and type of treatment reactions experienced were assessed post treatment. T-tests and Chi-squared tests were conducted to explore whether certain treatment reactions were more frequent as a function of baseline or clinical characteristics.</p><p><strong>Results: </strong>9% of participants experienced some negative treatment reaction. The average intensity of those events was very low on a 0-3 scale (M = 0.1, SD = 0.4). There were no differences in the prevalence or intensity as a function of participant's sex, age, race, or baseline pain intensity. However, baseline anxiety [t = -2.4 (244); p < .05] and baseline pain interference [t = -2.2 (223); p < .05] were significantly higher in those who experienced negative treatment reactions.</p><p><strong>Conclusions: </strong>A small number of participants reported experiencing negative treatment reactions, with a low intensity level. Those experiencing negative treatment reactions showed higher baseline anxiety and pain interference. Future research may build from our example to standardize collection of harms data in trials of psychological interventions.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2024-12-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142830534","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Having more resilience factors only gets you so far in the context of neighborhood disadvantage: understanding differential predictors of internalizing symptoms and body mass index in youth with spina bifida. 在邻里关系不利的情况下,拥有更多的抗逆力因素也只能是杯水车薪:了解脊柱裂青少年内化症状和体重指数的不同预测因素。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-12-05 DOI: 10.1093/jpepsy/jsae102
Samantha Ruby Scott, Robin L Peterson, Samantha J North, Jillian Sari Merrick, Christine L Petranovich, Pamela E Wilson, Ann Lantagne, Tess S Simpson
{"title":"Having more resilience factors only gets you so far in the context of neighborhood disadvantage: understanding differential predictors of internalizing symptoms and body mass index in youth with spina bifida.","authors":"Samantha Ruby Scott, Robin L Peterson, Samantha J North, Jillian Sari Merrick, Christine L Petranovich, Pamela E Wilson, Ann Lantagne, Tess S Simpson","doi":"10.1093/jpepsy/jsae102","DOIUrl":"https://doi.org/10.1093/jpepsy/jsae102","url":null,"abstract":"<p><strong>Objective: </strong>The primary aim of this study was to determine if neighborhood disadvantage predicted internalizing symptoms and body mass index (BMI) in youth with spina bifida (SB), while accounting for several sociodemographic factors. We also explored whether resilience factors helped explain associations between neighborhood disadvantage and internalizing symptoms or neighborhood disadvantage and BMI.</p><p><strong>Methods: </strong>Participants (n = 69, Mage=14.13, Range: 8-20, 51% biological female, 25% Hispanic/Latinx White, 28% Other/Multiracial, 48% non-Hispanic/Latinx White) were drawn from a retrospective chart review of clinical data, including self-reported resilience factors and internalizing symptoms, collected as part of the standard of care in a multidisciplinary pediatric SB clinic. Neighborhood disadvantage scores were extracted from participant addresses. Using structural equation modeling, we examined whether neighborhood disadvantage predicted BMI and internalizing symptoms. We explored whether these paths were mediated by resilience factors.</p><p><strong>Results: </strong>Higher neighborhood disadvantage predicted higher BMI and lower internalizing symptoms. Higher neighborhood disadvantage predicted higher resilience factors, which predicted lower internalizing symptoms. Higher resilience factors did not predict BMI.</p><p><strong>Conclusions: </strong>Neighborhood disadvantage may require youth with SB to navigate their way to additional resilience factors to maintain better psychosocial outcomes. However, having more resilience factors may not help offset the physical health costs of disadvantaged neighborhoods.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2024-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142830533","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Temporal summation of pain in sickle cell disease: comparison of adolescents and young adults with chronic vs. infrequent pain. 镰状细胞病疼痛的时间总和:青少年慢性疼痛与非经常性疼痛的比较。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-12-01 DOI: 10.1093/jpepsy/jsae090
Cynthia Karlson, Harrison Dickens, Wynette Williams-Kirkwood, Megan Mascaro, Erin Jackson, Veronica Carullo, Melissa McNaull, Matthew C Morris
{"title":"Temporal summation of pain in sickle cell disease: comparison of adolescents and young adults with chronic vs. infrequent pain.","authors":"Cynthia Karlson, Harrison Dickens, Wynette Williams-Kirkwood, Megan Mascaro, Erin Jackson, Veronica Carullo, Melissa McNaull, Matthew C Morris","doi":"10.1093/jpepsy/jsae090","DOIUrl":"10.1093/jpepsy/jsae090","url":null,"abstract":"<p><strong>Objective: </strong>This study examined the role of central sensitization in the experience of pain among adolescents and young adults with the most severe genotypes of sickle cell disease (SCD). We hypothesized that adolescents and young adults with chronic SCD pain would demonstrate a higher perceptual response to repeated stimulation of identical intensity (i.e., temporal summation of pain, TSP) compared to counterparts with infrequent pain. We also examined psychological risk factors that can impact pain sensitivity.</p><p><strong>Methods: </strong>Patients ages 12-21 years, diagnosed with SCD type Hb SS or Hb S Beta0Thalasemia, who reported infrequent pain (≤2 pain days/month; n = 25) or met AAPT criteria for chronic SCD pain (n = 25) were enrolled. Patients were age- and sex-matched, with similar proportions receiving chronic blood transfusion and hydroxyurea. Patients completed static quantitative sensory testing (QST) and dynamic TSP testing to assess pain sensitivity. Patients and a caregiver completed demographic and psychological measures (depression, anxiety, pain interference, pain catastrophizing).</p><p><strong>Results: </strong>Simple slope analysis revealed differentially elevated heat TSP among adolescents and young adults with chronic SCD pain (b = 3.14, p = .002) but not those with infrequent pain (b = 0.45, p = .61). Faster habituation was further observed for those with chronic compared to infrequent pain. Adolescents and young adults with chronic pain reported more frequent depression, anxiety, and pain interference symptoms; however, psychological symptoms and pain catastrophizing were not associated with QST or TSP (ps >.17).</p><p><strong>Conclusion: </strong>Current results demonstrate that a well-established, prognostic, QST risk marker (i.e., TSP) may distinguish chronic from infrequent pain subgroups of adolescents and young adults with SCD.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"882-890"},"PeriodicalIF":2.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142607089","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Examining the psychometric properties of the CEFIS-AYA using item response theory. 利用项目反应理论研究 CEFIS-AYA 的心理测量特性。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-12-01 DOI: 10.1093/jpepsy/jsae084
Meghan M Howe, Steven A Miller, Susan Tran, Joanna Buscemi, Lindsey Bugno, Rachel N Greenley
{"title":"Examining the psychometric properties of the CEFIS-AYA using item response theory.","authors":"Meghan M Howe, Steven A Miller, Susan Tran, Joanna Buscemi, Lindsey Bugno, Rachel N Greenley","doi":"10.1093/jpepsy/jsae084","DOIUrl":"10.1093/jpepsy/jsae084","url":null,"abstract":"<p><strong>Objective: </strong>The COVID-19 Exposure and Family Impact Scale, Adolescent and Young Adult Version (CEFIS-AYA; Schwartz, L. A., Lewis, A. M., Alderfer, M. A., Vega, G., Barakat, L. P., King-Dowling, S., Psihogios, A. M., Canter, K. S., Crosby, L., Arasteh, K., Enlow, P., Hildenbrand, A. K., Kassam-Adams, N., Pai, A., Phan, T. L., Price, J., Schultz, C. L., Sood, E., Wood, J., & Kazak, A. (2022). COVID-19 exposure and family impact scales for adolescents and young adults. Journal of Pediatric Psychology, 47, 631-640. https://doi.org/10.1093/jpepsy/jsac036) was developed to assess the pandemic's effects on adolescents and young adults (AYA). Via principal component analysis, measure developers examined the structure and reliability of the CEFIS-AYA and identified seven exposure and five impact components. This study built upon prior work through use of item response theory (IRT) models to characterize the dimensionality of the CEFIS-AYA, determine the strength of relations between items and underlying trait(s), and examine associations between trait scores and pandemic-related distress.</p><p><strong>Methods: </strong>This was a secondary analysis of data collected between July 2020 and July 2021 from three studies of emerging adults (ages 18-29; N = 834).</p><p><strong>Results: </strong>The CEFIS-AYA structure was multidimensional, with the strongest support for five traits. Trait 1 represented pandemic impact on social/emotional functioning and self-care. Trait 2 reflected other pandemic disruptions. Trait 3 represented pandemic disruptions to education and/or other milestones. Trait 4 represented pandemic impact on physical well-being. Trait 5 assessed pandemic disruptions to work/financial circumstances. Item loadings and parameters indicated variability in how consistently trait level was associated with item endorsement. Trait scores did not predict distress, except that increases in Trait 3 were associated with lower distress.</p><p><strong>Conclusions: </strong>The present study examined the psychometric properties of the CEFIS-AYA among emerging adults using a statistical framework better suited for modeling categorical data. The identified dimensional structure was relatively consistent with the initial psychometric evaluation of the CEFIS-AYA, albeit more parsimonious. However, replication is critical in light of sample demographic characteristics.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"856-865"},"PeriodicalIF":2.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142401635","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Barriers to healthy behaviors: perspectives from teens with comorbid Type 1 diabetes and overweight/obesity, caregivers, and pediatric endocrinologists. 健康行为的障碍:患有合并 1 型糖尿病和超重/肥胖症的青少年、照顾者和儿科内分泌专家的观点。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-12-01 DOI: 10.1093/jpepsy/jsae086
Jennifer L Warnick, Katherine E Darling, Lisa Swartz Topor, Elissa Jelalian
{"title":"Barriers to healthy behaviors: perspectives from teens with comorbid Type 1 diabetes and overweight/obesity, caregivers, and pediatric endocrinologists.","authors":"Jennifer L Warnick, Katherine E Darling, Lisa Swartz Topor, Elissa Jelalian","doi":"10.1093/jpepsy/jsae086","DOIUrl":"10.1093/jpepsy/jsae086","url":null,"abstract":"<p><strong>Objectives: </strong>This study aimed to understand barriers to engagement in healthy lifestyle behaviors among adolescents with comorbid Type 1 diabetes (T1D) and overweight/obesity (n = 12), their caregivers (n = 12), and pediatric endocrinologists (n = 9).</p><p><strong>Methods: </strong>Participants (n = 33) completed individual, semi-structured interviews. Interviews were transcribed verbatim, and applied thematic analysis was used to analyze the interview data.</p><p><strong>Results: </strong>Results from adolescents, caregivers, and pediatric endocrinologists revealed three thematic barriers to healthy lifestyle behaviors for adolescents with T1D and overweight/obesity: (1) discomfort with aspects of T1D that draw attention to the self; (2) T1D as a barrier to engagement in healthy lifestyle behaviors; and (3) physiological dysregulation due to T1D impacting health behaviors.</p><p><strong>Conclusions: </strong>Results identify perceived limitations to engaging in recommended healthy lifestyle behaviors and diabetes management concurrently. Results may assist research and clinical care in identifying supports and guidance needed to support adolescents in meeting behavioral recommendations for their health.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"874-881"},"PeriodicalIF":2.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11659607/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142510526","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The association of resilience with HbA1c and key psychosocial factors in emerging adults with type 1 diabetes. 新发 1 型糖尿病成人患者的复原力与 HbA1c 和主要社会心理因素的关系。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-12-01 DOI: 10.1093/jpepsy/jsae085
Alison O'Daffer, Joyce P Yi-Frazier, Alissa J Roberts, Sarah J Lowry, Catherine Pihoker, Irl B Hirsch, Kathryn W Weaver, Anna Zenno, Faisal S Malik
{"title":"The association of resilience with HbA1c and key psychosocial factors in emerging adults with type 1 diabetes.","authors":"Alison O'Daffer, Joyce P Yi-Frazier, Alissa J Roberts, Sarah J Lowry, Catherine Pihoker, Irl B Hirsch, Kathryn W Weaver, Anna Zenno, Faisal S Malik","doi":"10.1093/jpepsy/jsae085","DOIUrl":"10.1093/jpepsy/jsae085","url":null,"abstract":"<p><strong>Objective: </strong>Emerging adults (EAs) with type 1 diabetes (T1D) have difficulty meeting glycemic targets and have a high prevalence of mental health comorbidities. Resilience, the ability to harness resources needed to sustain one's emotional and physical well-being, may be a key factor impacting poor mental health and glycemic outcomes. We aimed to (a) evaluate the association between resilience, HbA1c, and key psychosocial factors and (b) explore whether resilience moderates the relationship between psychosocial factors (depression, diabetes-related distress, anxiety) and HbA1c in EAs with T1D.</p><p><strong>Method: </strong>EAs with T1D (N = 233) (mean age = 19.9 years (SD = 1.6), range 16.8-24.7) seen at an EA-specific diabetes clinic completed resilience, diabetes-related distress, depression, and anxiety measures and had their HbA1c level evaluated. We used linear regression models and conducted moderation analyses for the resilience factor.</p><p><strong>Results: </strong>Resilience was strongly associated with HbA1c, depression, diabetes-related distress, and anxiety in EAs with T1D. We did not find evidence that resilience moderates the relationship between depression, anxiety, or diabetes-related distress and HbA1c.</p><p><strong>Conclusions: </strong>This study found that resilience is a highly relevant psychological factor associated with HbA1c and a key mental health factor for EAs with T1D. Novel interventions are needed to ameliorate high diabetes-related distress and HbA1c, and bolstering resilience may be one avenue to explore. Future research on resilience should longitudinally characterize and evaluate whether resilience may be a mechanism underlying the relationship between poor psychosocial outcomes and not meeting glycemic targets in EAs with T1D.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"866-873"},"PeriodicalIF":2.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477960","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Cognitive and affective links between childhood adversity and psychological adjustment in emerging adults with chronic medical conditions. 童年逆境与新近成年慢性病患者心理适应之间的认知和情感联系。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-12-01 DOI: 10.1093/jpepsy/jsae091
Alexandra M DeLone, Nathan L Basile, John M Chaney, Larry L Mullins, Christina M Sharkey
{"title":"Cognitive and affective links between childhood adversity and psychological adjustment in emerging adults with chronic medical conditions.","authors":"Alexandra M DeLone, Nathan L Basile, John M Chaney, Larry L Mullins, Christina M Sharkey","doi":"10.1093/jpepsy/jsae091","DOIUrl":"10.1093/jpepsy/jsae091","url":null,"abstract":"<p><strong>Objective: </strong>Childhood adversity has been linked to poor psychological adjustment and decreased emotion regulation (ER) abilities. The extended process model of ER outlines the pivotal role of cognitive appraisals in the generation and expression of emotion as well as the pursuit of ER. The aim of the current study is to examine whether illness-related cognitive appraisals (i.e., illness uncertainty and illness intrusiveness) and emotion dysregulation serially mediate the relationship between childhood adversity and psychological adjustment for emerging adults with chronic medical conditions (CMCs).</p><p><strong>Methods: </strong>Participants included 557 undergraduate college students (Mage= 19.53 years, SD = 1.34) enrolled in a Midwestern public university with self-reported CMCs. Participants completed measures of adverse childhood experiences (ACEs), illness uncertainty, illness intrusiveness, emotion dysregulation, anxious symptoms, and depressive symptoms. A path analysis was conducted examining ACEs → cognitive appraisals (i.e., illness uncertainty, illness intrusiveness) → emotion dysregulation → depressive and anxious symptoms.</p><p><strong>Results: </strong>The overall model was significant and predicted 63.5% of the variability in anxious symptoms and 60.2% of the variability in depressive symptoms. All anticipated direct and indirect paths were significant.</p><p><strong>Conclusions: </strong>The current study indicates that greater childhood adversity is indeed associated with negative appraisals of one's CMC, such as greater perceived uncertainty and intrusiveness. Negative illness-related cognitive appraisals thus may limit one's ability to effectively employ adaptive strategies to regulate emotions, which could contribute to greater depressive and anxious symptoms.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"891-899"},"PeriodicalIF":2.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11659606/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477946","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Sexual and reproductive health guidelines for Black girls: a call to action. 黑人女孩性健康和生殖健康指南:行动呼吁。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-12-01 DOI: 10.1093/jpepsy/jsae080
Natasha Crooks, Kimberly Sanker-Panchal, Annette Okafor, Di'Avionne Irving, Randi Singer, Geri Donenberg
{"title":"Sexual and reproductive health guidelines for Black girls: a call to action.","authors":"Natasha Crooks, Kimberly Sanker-Panchal, Annette Okafor, Di'Avionne Irving, Randi Singer, Geri Donenberg","doi":"10.1093/jpepsy/jsae080","DOIUrl":"10.1093/jpepsy/jsae080","url":null,"abstract":"<p><strong>Objective: </strong>Black girls disproportionately face adverse sexual and reproductive health outcomes in their lifetime. In healthcare, Black girls experience racism and misogyny, which manifest as a combination of discriminatory practices and biases that result in their symptoms being dismissed or neglected, their voices silenced, inadequate treatment, and higher mortality rates. Pediatric providers are in an ideal position to influence, advocate, and strengthen Black girls' sexual and reproductive health. The purpose of this topical review is to discuss current guidelines and provide recommendations to improve pediatric sexual and reproductive care for Black girls.</p><p><strong>Methods: </strong>We examine current pediatric guidelines and recommendations for adolescent sexual and reproductive health.</p><p><strong>Results: </strong>Current guidelines recommended by organizations and professional societies such as the Centers for Disease Control and Prevention, World Health Organization, Society of Adolescent Health Medicine, and American Academy of Pediatrics are inconsistent and insufficient for the unique needs of Black girls.</p><p><strong>Conclusions: </strong>We offer three recommendations for pediatric providers to ensure the optimal sexual and reproductive health care for Black girls. These provider recommendations will aid in the protection of Black girls' sexual and reproductive health.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"851-855"},"PeriodicalIF":2.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477947","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A qualitative account of mothers of pediatric heart transplant recipients' experience at a pilot mindfulness-based retreat: insights for implementation. 小儿心脏移植受者母亲在试点正念静修中的定性体验:对实施的启示。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-12-01 DOI: 10.1093/jpepsy/jsae093
Jia Lin, Enid K Selkirk, Sara Ahola Kohut, Joanna Mitchell, Taylor Robertson, Ani Jamyang Donma, Mirna Seifert-Hansen, Heather Telfer, Samantha J Anthony
{"title":"A qualitative account of mothers of pediatric heart transplant recipients' experience at a pilot mindfulness-based retreat: insights for implementation.","authors":"Jia Lin, Enid K Selkirk, Sara Ahola Kohut, Joanna Mitchell, Taylor Robertson, Ani Jamyang Donma, Mirna Seifert-Hansen, Heather Telfer, Samantha J Anthony","doi":"10.1093/jpepsy/jsae093","DOIUrl":"10.1093/jpepsy/jsae093","url":null,"abstract":"<p><strong>Objective: </strong>To explore participants' shared experience attending a pilot mindfulness-based retreat (MBR) intervention supporting the psychological well-being of mothers of pediatric heart transplant (HTx) recipients.</p><p><strong>Methods: </strong>A qualitative description approach was used within a larger hybrid mixed-methods pilot study evaluating the implementation-effectiveness of a 2-day MBR tailored specifically for a pediatric HTx population. A purposive sample of mothers was recruited from a leading Canadian pediatric HTx center, and each represented a primary, female-identifying caregiver, sharing residence with a pediatric HTx recipient of at least 4 months post-transplant. Two focus groups were conducted after and 16 individual interviews 3 months after the MBR to elicit participants' in-depth experience attending the MBR. Reflexive thematic data analysis led to theme development through an iterative process with consensus among team members.</p><p><strong>Results: </strong>Sixteen mothers of pediatric HTx recipients (mean patient age 9.8 years; mean time post-transplant 8.2 years) participated in the MBR held in Ontario, Canada. Qualitative findings illuminated mothers' shared experience attending the MBR, reflecting three themes that describe key intervention elements beyond those affiliated with mindfulness practice alone: \"respite,\" \"readiness,\" and \"relationships.\" Findings highlight acceptability and appropriateness as distinct yet interrelated implementation outcomes.</p><p><strong>Conclusions: </strong>Elements of \"respite,\" \"readiness,\" and \"relationships\" are key components of the MBR experience that offer valuable intervention and clinical considerations related to mothers' psychological well-being. Aligning intervention acceptability and appropriateness through tailored strategies may aid implementation. Future research considering maternal readiness relative to support intervention participation is warranted.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"911-918"},"PeriodicalIF":2.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142559154","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pilot study of a parent-based intervention for functional somatic symptoms in children. 以家长为基础的儿童功能性躯体症状干预试点研究。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-12-01 DOI: 10.1093/jpepsy/jsae092
Rebecca G Etkin, Sara M Winograd, Amanda J Calhoun, Wendy K Silverman, Eli R Lebowitz, Eugene D Shapiro
{"title":"Pilot study of a parent-based intervention for functional somatic symptoms in children.","authors":"Rebecca G Etkin, Sara M Winograd, Amanda J Calhoun, Wendy K Silverman, Eli R Lebowitz, Eugene D Shapiro","doi":"10.1093/jpepsy/jsae092","DOIUrl":"10.1093/jpepsy/jsae092","url":null,"abstract":"<p><strong>Objective: </strong>Functional somatic symptoms are associated with significant distress and impairment for children and their families. Despite the central role that families play in their children's care, there is little clinical research to guide how parents can support their children with functional somatic symptoms and promote better functioning. To address this gap, we developed a parent-based intervention for functional somatic symptoms in children and obtained preliminary data on acceptability, feasibility, treatment satisfaction, and clinical outcomes.</p><p><strong>Method: </strong>The intervention was adapted from SPACE (Supportive Parenting for Anxious Childhood Emotions), an evidence-based treatment for anxiety and related disorders in children. The intervention, SPACE-Somatic, was delivered to parents of 16 children (Mage = 14.50 years; 75% girls) with a range of functional somatic symptoms. Parents participated in seven weekly group sessions conducted via telehealth.</p><p><strong>Results: </strong>We found that SPACE-Somatic was acceptable, feasible, and satisfactory to parents. There were significant improvements in several clinical outcomes from baseline to posttreatment, including children's level of functional impairment, with some gains maintained at 3-month follow-up. Parents also reported improvements in their own stress and their accommodation of children's symptoms.</p><p><strong>Conclusion: </strong>This pilot study provides preliminary evidence that a parent-based intervention is viable and beneficial to children with functional somatic symptoms and their parents.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"900-910"},"PeriodicalIF":2.7,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142523386","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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