Journal of Pediatric Psychology最新文献

{"title":"Rigor and equity in intervention study design in pediatric psychology: a focus on comparator conditions from diabetes research.","authors":"Francesca Lupini, Marisa E Hilliard, Idia B Thurston, Sarah S Jaser, Samantha A Carreon, Ana M Gutierrez-Colina, Randi Streisand, Kristoffer S Berlin, Eleanor R Mackey","doi":"10.1093/jpepsy/jsaf069","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf069","url":null,"abstract":"<p><strong>Objectives: </strong>To advance the science of health intervention research, pediatric psychologists must carefully design and conduct intervention research studies, including clinical trials. In contrast to guidance about scientific rigor in the selection of comparator groups in clinical trials, far less has been published on equity considerations in this process. The purpose of this paper is to review considerations for centering both equity and rigor in the study design decision, with a focus on the selection of comparator conditions for clinical trials of pediatric psychology interventions and propose potential solutions.</p><p><strong>Methods: </strong>We reviewed existing guidance on (1) intervention study design with a focus on selection of comparator conditions from health psychology, medicine, and other similar fields, and (2) integration of both rigor and equity considerations into the design of intervention studies.</p><p><strong>Results: </strong>We present a range of options for study design choices regarding comparator conditions and discuss potential benefits, limitations, and practical considerations for each type of comparator condition. Examples from behavioral intervention trials in pediatric type 1 diabetes or type 2 diabetes were used to illustrate how each comparator condition functions in practice. We developed a practical guide for researchers to consider both rigor and equity in decisions related to intervention study design and comparator condition selection.</p><p><strong>Conclusions: </strong>The process of selecting an appropriate comparator condition is one aspect of study design that can advance both equity and scientific rigor in pediatric psychology intervention research.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144974572","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Systematic review of assessment instruments measuring outcomes in psychological interventions for pediatric functional neurological disorders.","authors":"Barbara Zuro Jakovac, David Hevey, Phillip Coey, Clare Harris, Gary Byrne","doi":"10.1093/jpepsy/jsaf071","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf071","url":null,"abstract":"<p><strong>Objective: </strong>This systematic review focused on identifying and evaluating assessment tools used to measure outcomes of psychological interventions for pediatric functional neurological disorder (FND).</p><p><strong>Method: </strong>A comprehensive search was conducted on September 24, 2024, across Web of Science, PsycINFO, and Medline. Studies were included if they involved individuals under 18 with FND diagnosis, utilized a psychological intervention, and assessed treatment outcomes using validated measures. Sixteen studies qualified for inclusion, and 26 different assessment instruments were identified. These were assessed against the Core Outcome Measures in Effectiveness Trials framework, covering symptoms, life impact, and resource utilization. The psychometric characteristics of these assessment tools were examined through further searches which concentrated on reliability, validity, and factorial invariance. The Joanna Briggs Institute critical appraisal tools were used to evaluate the risk of bias. Findings were synthesized narratively due to the descriptive and exploratory nature of the research aims.</p><p><strong>Results: </strong>No outcome assessment tools designed specifically for pediatric FND populations were identified. Most studies employed measures targeting mental health symptoms and life impact, however, none of these tools were validated with FND samples, and several lacked validation in pediatric populations.</p><p><strong>Conclusions: </strong>This review highlights significant gaps, including the need for psychometric assessment of tools and validation studies on FND samples. The current evidence does not support recommending FND-specific measures due to their limited development and validation. Instead, using existing questionnaires validated on broader pediatric populations is recommended. Research should prioritize the validation of measures in FND populations to establish more robust, standardized tools for clinical and research use.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144974553","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The impact of leukodystrophies on parents' lives.","authors":"Laura Zampini, Laura Cordolcini, Lara Draghi, Paola Zanchi, Ylenia Vaia, Eleonora Bonaventura, Davide Tonduti","doi":"10.1093/jpepsy/jsaf072","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf072","url":null,"abstract":"<p><strong>Objective: </strong>Leukodystrophies are a group of genetically determined neurological disorders affecting the white matter of the central nervous system and they have a profound impact on the daily lives of patients and their caregivers. However, only a few studies have analyzed the psychological experiences of parents of children with these conditions. The main aims of the present study were to assess parental burden and parenting stress in caregivers and to evaluate the relationships between parents' experiences and the perceived clinical characteristics of their children.</p><p><strong>Methods: </strong>Forty-one parents of children and young adults diagnosed with leukodystrophies completed an online survey specifically designed to assess: the characteristics of parents and their children (i.e., current abilities, perceived severity level, and possible regression) and the psychological experiences of parents (i.e., caregiver burden, parenting stress, and perceived social support).</p><p><strong>Results: </strong>A significant proportion of parents who participated in the study were at risk of experiencing caregiver burden (63%) or parenting stress (49%). Regression analysis showed that perceived social support and the degree of regression (i.e., loss of competence) manifested by the children and young adults emerged as significant factors in determining caregiver burden. However, neither the severity of the child's condition nor the age of the child/young adult appeared to be a determining factor in predicting parental burden or parenting stress.</p><p><strong>Conclusions: </strong>This study highlights the importance of considering parental well-being in both research and clinical practice, particularly for parents of children with progressive conditions.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144974556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Memory outcomes and interventions after sports-related traumatic brain injuries in pediatric and young adult athletes: a scoping review.","authors":"Angelina R Davis, Skylar D Charles, Megan H Papesh, Jeffrey Gerson, Jiabin Shen","doi":"10.1093/jpepsy/jsaf075","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf075","url":null,"abstract":"<p><strong>Objective: </strong>Numerous pediatric and young adult athletes sustain sports-related traumatic brain injuries (TBIs) annually. One of the most common cognitive symptoms of TBIs is memory impairment. This scoping review aimed to synthesize literature on memory impairments following a sports-related TBI and what intervention programs are available to support post-TBI memory rehabilitation in pediatric and young adult athletes.</p><p><strong>Methods: </strong>Following the PRISMA guidelines, studies that examined memory after a sports-related TBI in athletes 24 years old and younger were eligible for inclusion. Among 1,067 abstracts screened, 161 full texts were reviewed and a total of 95 articles were included in this review. Risk of bias was also evaluated, including selection bias, measurement bias, and bias related to the reporting of data.</p><p><strong>Results: </strong>95 full-text articles were included in this review. 60 of 84 (71.43%) studies that included a comparison group or baseline score, observed a decrease in memory functions post-TBI in at least one type of memory. Visual and verbal memory were the two most studied types of memory, which were typically measured by the Immediate Post-Concussion Assessment and Cognitive Testing (ImPACT). American football and soccer were the most studied sports among the injured athletes. Only three interventional studies were identified that examined post-TBI memory rehabilitation in this population.</p><p><strong>Conclusions: </strong>Memory impairment is common following a sport-related TBI in pediatric and young adult athletes. However, there is a lack of interventional efforts that target this cognitive deficit post-TBI.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144974604","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluating the effect of sleep kits and training in foster care clinic visits.","authors":"Chidiogo Anyigbo, Katie Fox, Constance A Mara, Julie Bemerer, Kendra Krietsch, Megan Radenhausen, Meera Patel, Sarah J Beal, Mary V Greiner","doi":"10.1093/jpepsy/jsaf065","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf065","url":null,"abstract":"<p><strong>Objective: </strong>This three-arm pragmatic control trial tested the effectiveness of a single-dose evidence-based psychological intervention (EBPI) with and without a sleep kit (treatment arms) to usual care (control arm) among young people (ages 2-20 years) new to a foster care placement.</p><p><strong>Methods: </strong>Caregivers and youth were screened for sleep concerns before their foster care clinic visit; if a concern was identified, enrolled young people and caregivers (N = 177) completed sleep assessments before the start of their clinic visit. On days when a psychologist was unavailable to address sleep concerns, participants were enrolled in the control arm. When a psychologist was present, clinic days were randomly assigned to condition (EBPI, EBPI + sleep kit). Participants and clinicians were masked to treatment arm during the clinician portion of their visit. Participants were unmasked at the end of their visit. At follow-up visits, surveys assessing sleep were re-administered. Chart reviews captured documented sleep concerns at clinic visits outside the foster care clinic in the 6 months following intervention.</p><p><strong>Results: </strong>Compared to controls, those receiving EBPI reported less medicinal sleep aid use (e.g., melatonin) following intervention. Sleep concerns persisted in approximately half of enrolled youth and did not vary by study assignment; sleep outcomes were also similar.</p><p><strong>Conclusions: </strong>A single-dose EBPI to address sleep concerns may be effective for reducing use of medicinal sleep aids but is not effective for addressing sleep concerns more generally for young people in foster care.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144974474","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding the role of pediatric psychologists in supporting caregivers: a national survey.","authors":"Ameena Ahmed, Nicole R Dempster, Stefanie Poehacker, Isabella Sereno, Cate Flanagan, Nicole A Kahhan","doi":"10.1093/jpepsy/jsaf063","DOIUrl":"10.1093/jpepsy/jsaf063","url":null,"abstract":"<p><strong>Objective: </strong>This study aimed to benchmark pediatric psychologists' involvement in caregiver support and identify actionable strategies to enhance training, practice, and advocacy for caregiver well-being and health equity.</p><p><strong>Methods: </strong>A benchmark survey was completed by 119 pediatric psychologists and trainees, primarily recruited through Society of Pediatric Psychology membership. The 36-item survey assessed training, supervision, screening/intervention practices, billing, documentation, institutional support, and confidence in delivering culturally adapted, evidence-based care for caregivers. Descriptive analyses were conducted to identify baseline trends and develop actionable goals.</p><p><strong>Results: </strong>Findings revealed substantial variability in the practice of caregiver support by pediatric psychologists and trainees. About half of the respondents reported regularly screening and/or providing interventions for caregivers, though implementation varied significantly. Only 38% of respondents regularly billed for caregiver services, typically using mental health and health/behavior codes, and often documented these services in the child's medical record. Many participants (54%) expressed a need for additional training, and 70% reported insufficient institutional support for navigating caregiver-focused care. Confidence in providing culturally adapted, evidence-based treatments for caregivers varied widely, highlighting significant gaps in training and institutional resources to address diverse caregiver needs.</p><p><strong>Conclusions: </strong>These findings emphasize the need for enhanced training, institutional support, and resources for pediatric psychologists to address caregiver well-being, with a focus on cultural sensitivity. Strengthening these areas is critical to advancing health equity, and pediatric psychologists are well-positioned to lead efforts in integrating science, practice, and advocacy to address systemic disparities in caregiver support.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144884037","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Commentary: Evaluating the impact of grit as a measure of resilience among families affected by pediatric cancer.","authors":"Erinne R Benedict, Lila M Pereira","doi":"10.1093/jpepsy/jsaf073","DOIUrl":"10.1093/jpepsy/jsaf073","url":null,"abstract":"","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144876100","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"The caregiver's life is the uncared-for life\": experiences of mothers of children with cerebral palsy in mental health care in Brazil.","authors":"Danton Matheus de Souza, João Vitor de Jesus Santana, Letícia Cristina Pereira Coelho, Sofia de Souza Cruz, Ana Paula Scoleze Ferrer, Jaqueline Lemos de Oliveira, Lisabelle Mariano Rossato","doi":"10.1093/jpepsy/jsaf044","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf044","url":null,"abstract":"<p><strong>Objective: </strong>To understand the experiences of mothers of children with cerebral palsy (CP) regarding the impact of caregiving on their mental health and their engagement with Brazil's psychosocial care network.</p><p><strong>Method: </strong>This descriptive-exploratory qualitative study employed the theoretical framework of Symbolic Interactionism by Herbert Blumer. Interviews were conducted with Brazilian women aged 18 years or older, who had at least one child with CP aged between 28 days and under 19 years. Data collection focused on their experiences with mental health care and their interactions with Brazil's psychosocial care network. The interviews were transcribed and subjected to thematic content analysis.</p><p><strong>Results: </strong>Fifteen women participated, with an average age of 36 years, predominantly with high school and higher education, who were distanced from the workforce and were married. Two central categories emerged from the interactions analyzed: \"My life is not normal\": Maternal life with a child with CP amidst mental health demands; and \"If you need me, I'm here\": The pursuit of maternal self-care, the obstacles faced, and an alternative route, with interconnected subcategories.</p><p><strong>Conclusion: </strong>The mental health of Brazilian mothers of children with CP is marked by invisibility and multiple challenges. Their social interactions influence their psychosocial well-being, which, while acknowledged, is often neglected in favor of caregiving for their child. These challenges extend to the psychosocial care network in Brazil, characterized by barriers to accessing appropriate care for their needs. As an alternative, mothers engage in self-care activities to reconnect with their personal needs as women.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144838292","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Community-engaged research in psychological interventions for pediatric sickle cell disease: a scoping review.","authors":"Bridget N Murphy, Kristine Durkin, Desireé N Williford, Ariel O Blakey, Chloe Musa, Anna M Hood, Elizabeth L McQuaid, Idia Thurston, Malika Muhammad, Lori E Crosby","doi":"10.1093/jpepsy/jsaf008","DOIUrl":"10.1093/jpepsy/jsaf008","url":null,"abstract":"<p><strong>Objective: </strong>The aim of this scoping review was to identify and describe the community-engaged research (CEnR) methods used in the development and evaluation of psychological interventions for pediatric sickle cell disease (SCD).</p><p><strong>Methods: </strong>We conducted a systematic search of three databases in April 2024 (PubMed, Scopus, and PsycINFO). The review was registered with Open Science Framework (DOI: 10.17605/OSF.IO/956AV). All titles, abstracts, and full texts for papers that appeared to meet criteria were independently reviewed by two members of the research team. Inclusion criteria were pediatric or young adult age and use of CEnR for a psychological SCD intervention. Data were extracted from articles meeting these criteria.</p><p><strong>Results: </strong>The search yielded 235 original articles, of which eight met the inclusion criteria. These articles showed that the involvement levels of community collaborators (patients, families, and community-based organizations) varied across research phases. Notable gaps in the literature were: (1) few studies reported utilizing CEnR methods, (2) variability in language/terms used to describe CEnR methods, (3) limited demographic data about community collaborators, and (4) a lack of description of CEnR frameworks guiding intervention development and evaluation.</p><p><strong>Conclusions: </strong>This scoping review found few studies describing the use of CEnR methods in a way that would facilitate reproducibility. Recommendations include using MeSH CEnR keywords, identifying CEnR methods and frameworks, and including specific information about community when possible (e.g., demographic information, meeting frequency, etc.).</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"766-781"},"PeriodicalIF":2.1,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12448314/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143659141","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Interactive interdisciplinary pain research in adolescent and young adult females: a pilot investigation of brain, physiological, and emotional functioning following orthopedic surgery.","authors":"Ziyan Wu, Margaret Moreland, Maya L Jotwani, Melissa A Christino, David Borsook, Christine B Sieberg","doi":"10.1093/jpepsy/jsaf041","DOIUrl":"10.1093/jpepsy/jsaf041","url":null,"abstract":"<p><strong>Objective: </strong>In this pilot investigation, we aimed to explore the neurological and biobehavioral mechanisms underlying pain outcomes in adolescent and young adult (AYA) females following orthopedic surgery, an area largely unexplored.</p><p><strong>Methods: </strong>Functional near-infrared spectroscopy was used to investigate brain responses in the primary sensory cortex (sensory pain processing) and the prefrontal regions (emotional processing) in 24 AYA females who underwent orthopedic surgery within the previous 2 years compared to 20 group-matched controls without a surgical or chronic pain history. A battery of self-reported pain-related and emotional functioning measures (PROMIS; pain catastrophizing) were also administered. Cortical activations and functional connectivity (FC), involving the prefrontal (PFC) and somatosensory cortices (SMC), were assessed during resting state and a descending pain modulation task (conditioned pain modulation).</p><p><strong>Results: </strong>In the control group, PFC-SMC FC in response to pain was significantly linked to anxiety, whereas this correlation was absent in the post-surgical cohort.</p><p><strong>Conclusion: </strong>These results highlight distinct altered responses in sensory and emotional brain functioning in AYA females following orthopedic surgery. We suggest that such changes may be related to the involvement of the PFC-SMC communication in the maintenance of chronic pain.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"718-730"},"PeriodicalIF":2.1,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12448288/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144692065","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}