Journal of Pediatric Psychology最新文献

{"title":"Bouncing Back Better: development of a family intervention program after young child burn injury.","authors":"Nakisa Asefnia, Aaron Mun, Carrie Tully","doi":"10.1093/jpepsy/jsaf027","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf027","url":null,"abstract":"<p><strong>Objective: </strong>Burn injuries are a common form of unintentional childhood injury. The psychological sequelae of pediatric burn injury on the injured child and caregivers can be significant, including traumatic stress, anxiety, and depression. Factors such as parent capacity for monitoring and child ADHD (attention-deficit/hyperactivity disorder) symptoms can significantly increase the risk of injury in early childhood. A dual-foci intervention was created to improve family functioning and coping after a burn injury. The current proof-of-concept study examines the Bouncing Back Better (BBB) intervention, which targets parent mood and child externalizing behaviors after unintentional burn injury.</p><p><strong>Methods: </strong>BBB intervention was completed by 10 parent-child dyads (12 enrolled). Inclusion comprised children (2-5 years) who sustained an unintentional burn injury and demonstrated hyperactivity symptoms upon standard clinical care psychosocial screening. BBB included four (30-45 min) sessions that involve CBT-focused behavioral intervention skills. Feasibility was assessed through recruitment, enrollment, and retention rates. Acceptability was assessed through satisfaction questionnaires and qualitative interviews. Proof-of-concept was demonstrated through analyses of findings from validated measures of depression, distress, and ADHD symptoms.</p><p><strong>Results: </strong>Findings support acceptability and feasibility of the intervention and provide evidence of a successful proof-of-concept by demonstrating significant decreases in reported parental depression symptoms and improvements in child inattentive and hyperactive behaviors.</p><p><strong>Conclusions: </strong>An intervention focused on both caregiver well-being and child behaviors improves overall family functioning. Future research aims to expand the BBB intervention to a larger sample and examine initial efficacy through pilot testing using a randomized design and a larger team of treatment providers.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144162943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The moderating role of parental cognitive perceptions in the link between children's cancer predisposition genetic testing results and parent psychological adjustment.","authors":"Leila Sachner, Jessica S Flynn, Chia-Wei Hsu, Haitao Pan, Niki Jurbergs, Alise Blake, Rose B McGee, Lynn Harrison, Missy Robinson, Tolulope Adanri, Kim E Nichols, Katianne M Howard Sharp","doi":"10.1093/jpepsy/jsaf026","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf026","url":null,"abstract":"<p><strong>Objective: </strong>Children with cancer increasingly undergo germline genetic testing to identify genetic predispositions and inform clinical care options. Parents of children with pathogenic/likely pathogenic (P/LP) germline results have reported more distress than parents of children with negative results. Little is known about modifiable risk and resilience factors for intervention, such as cognitive perceptions. This study examined the moderating effects of parents' cognitive perceptions on adjustment to their child's germline genetic test results.</p><p><strong>Methods: </strong>Parents (N = 191) completed surveys reporting cognitive perceptions (i.e., intolerance of uncertainty, symptom attributions, and perceptions of child physical vulnerability) and psychological adjustment 1-3.99 years post-disclosure of their child's genetic test results. Moderation analyses examined whether parents' cognitive perceptions moderated the relation between children's cancer predisposition genetic testing results (P/LP, uncertain [VUS], or negative) and parental psychological adjustment.</p><p><strong>Results: </strong>Moderation analyses revealed significant interactions between genetic test results and both intolerance of uncertainty and psychological attributions for children's symptoms. Specifically, parents of children with P/LP results endorsed significantly more distress and uncertainty compared to each VUS and negative results, only in cases of moderate to high intolerance of uncertainty and psychological attributions (distress outcomes). In contrast, somatic attributions for symptoms and perceived child vulnerability were directly associated with higher distress regardless of results.</p><p><strong>Conclusions: </strong>Cognitions such as intolerance of uncertainty and psychological symptom attribution may contribute to distress among parents of children with P/LP results. Therefore, cognitive interventions (e.g., Cognitive Behavioral Therapy, Acceptance and Commitment Therapy) may help parents manage distress regarding their child's genetic cancer risk.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144143975","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Where you are matters: Daily health-related quality of life in parents of children with special healthcare needs.","authors":"Lyndsey N Graham, Shevaun D Neupert","doi":"10.1093/jpepsy/jsaf036","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf036","url":null,"abstract":"<p><strong>Objective: </strong>Parents of children with special healthcare needs (CSHCNs) tend to report low health-related quality of life (HRQoL) in general, however, little is known about parents' day-to-day experiences particularly while their child is in the hospital. Hospital experiences are especially important for families of CSHCN, who are known to spend a considerable amount of time at the hospital. The goals of this study were to examine how daily HRQoL fluctuates in parent caregivers, and to further examine the role of context (hospital vs. home) in daily HRQoL.</p><p><strong>Method: </strong>One hundred parents of CSHCN (18-69 years, M = 38.12, SD = 8.64) were recruited to participate in the TRIUMPH study (To Research, Illuminate, and Understand Medical Parent Health) from inpatient pediatric units at one children's hospital. For 14 consecutive days, participants received email prompts to complete online survey measures reporting on their daily HRQoL.</p><p><strong>Results: </strong>Multilevel models indicated that daily HRQoL fluctuated significantly at both between- and within-person levels. Further, daily HRQoL was significantly lower and had significantly more within-person variability on hospital days as compared to home days.</p><p><strong>Conclusions: </strong>Our results indicated that parents' HRQoL is both poorer and more volatile within the hospital environment. Our results call attention to the need to assess intraindividual variability in parents of CSHCN, as it is clear that parent caregivers are a nuanced population with contextually relevant support needs.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144143977","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Family partnerships to support equity and cultural humility in pediatric intervention research.","authors":"Ariel A Williamson, Brizhay Davis, Chimereodo Okoroji, Olivia Cicalese, Amanda Ayala, Kristina Boling-Smith, Bethany Harvey, Rachel Honore, L'Vonne McMillan, Amy Kratchman, Rosemary Laberee, Heather Cathrall, Alexander G Fiks, Jodi A Mindell, Thomas J Power","doi":"10.1093/jpepsy/jsaf032","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf032","url":null,"abstract":"<p><strong>Objective: </strong>Family partnerships in community-engaged research (CEnR) can promote family-centered, equitable interventions. This paper describes the process (meeting frequency, content) of a collaborative research family partnership and related methodological modifications to support equity and cultural humility during a multi-phase project adapting and evaluating an early childhood sleep intervention (Sleep Well!) for families of primarily lower socioeconomic status (SES) backgrounds in urban (large, metropolitan) primary care.</p><p><strong>Methods: </strong>The Children's Hospital of Philadelphia Research Family Partners Program consulted on initial project development. Research family partners collaborated to modify intervention content, delivery methods, and research procedures in an open-pilot (NCT04046341) and randomized controlled trial (NCT04473222). We reviewed family partners meeting agendas, presentations, and minutes to identify meeting frequency, content, and resulting project modifications and to generate related themes. Family partners also provided recommendations for researchers, including for those without existing institutional CEnR resources.</p><p><strong>Results: </strong>Ten 60-120-min meetings with 4-6 family partners occurred over 4 years. Themes representing the partnership process and project modifications included enhancing flexibility, centering cultural humility, and incorporating contextual factors (coronavirus pandemic, police violence, racism). These factors were especially relevant as project participants were primarily Black mothers and/or of lower-SES backgrounds. Family partner recommendations highlighted the need for collaborative, meaningful, and communicative relationships in pediatric intervention research.</p><p><strong>Conclusions: </strong>The extent of recommended project modifications highlights the importance of family partnerships to support equity and cultural humility in pediatric psychology research and practice. Findings also underscore the need for representation of racial and ethnic minoritized scholars and families in this work.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144112412","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Stigma among youth with sickle cell disease in community and medical settings: a scoping review.","authors":"Elana R Abelson, Kristen E Jastrowski Mano, Lori E Crosby","doi":"10.1093/jpepsy/jsaf028","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf028","url":null,"abstract":"<p><strong>Objective: </strong>Sickle cell disease (SCD), the most common genetic disorder in the United States, disproportionately affects Black individuals. A major aspect of SCD is the experience of vaso-occlusive episodes, a feature often characterized by debilitating pain which may necessitate emergency department (ED) visits. In the ED, adults with SCD often experience discrimination due to intersecting identities of race and disease status. Considerably less is known about experiences of discrimination for youth with SCD. This review aims to: (1) critically examine available research on the experiences of discrimination and stigma among youth with SCD in the United States, (2) describe measures currently used to assess pediatric stigma and/or discrimination, and (3) identify gaps in the literature to guide research.</p><p><strong>Method: </strong>We conducted a scoping review using a modified version of the Preferred Reporting Items for Systematic Review (PRISMA) and Meta-Analyses guidelines. Data were searched from database inception to May 2023. Initially, 285 articles were retrieved; after duplicate removal, 214 articles remained.</p><p><strong>Results: </strong>Reports of stigma varied by informant (i.e., caregiver, youth, or providers), method (i.e., qualitative or quantitative), and measure.</p><p><strong>Conclusions: </strong>A better understanding of experiences of stigma and discrimination across development for youth with SCD is needed. Research aimed at reducing stigma and discrimination and its consequences in youth with SCD is warranted to enhance quality of life and improve health outcomes.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144112414","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Commentary: Enhancing positive mental health outcomes for siblings of children with chronic conditions through group intervention.","authors":"Stephanie V Madden, Samantha A Miadich","doi":"10.1093/jpepsy/jsaf042","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf042","url":null,"abstract":"","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144025229","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Longitudinal psychological well-being in caregivers of young children with cleft lip and/or palate.","authors":"Nicola M Stock, Debora Blaso, Paul White, Laura Shepherd, Bruna Costa, Karine Edme, Richa Aspland, Matthew Hotton","doi":"10.1093/jpepsy/jsaf029","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf029","url":null,"abstract":"<p><strong>Objective: </strong>Caregivers of children with chronic conditions can experience psychological distress and an impact on quality of life (QoL). Cleft lip and/or palate (CL/P) is one of the most common congenital conditions worldwide. Utilizing data extracted from The Cleft Collective cohort studies in the United Kingdom, this study investigated longitudinal psychological well-being in caregivers of young children with CL/P, to inform screening practices and early intervention.</p><p><strong>Methods: </strong>Baseline (post-diagnosis) and 5-year questionnaire data were extracted for 525 caregivers (342 biological mothers, 183 fathers/partners). Outcome measures included the PedsQL-Family Impact Module, the Perceived Stress Scale, and the Hospital Anxiety and Depression Scale.</p><p><strong>Results: </strong>QoL significantly improved from T1 (post-birth) to T2 (5 years) as reported by mothers and fathers/partners. At T2, scores on all measures were aligned with, or more favorable than, norms. A minority continued to report clinically significant levels of distress at 5 years. Predictors of poorer outcomes on all measures included a less positive life orientation, more negative appraisals of CL/P, less favorable baseline scores, lower healthcare satisfaction, and prior mental health conditions. Outcomes were also less favorable for caregivers of children with combined cleft lip and palate compared to other cleft types. Reductions in negative appraisals of CL/P were significantly associated with improved QoL over time.</p><p><strong>Conclusions: </strong>QoL and psychological well-being in caregivers is generally positive at 5 years. A minority experienced poorer outcomes and routine assessment by a multidisciplinary team is therefore recommended. Targeting early negative appraisals may help to facilitate long-term caregiver adjustment.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144053238","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Pediatric long COVID: relationships with premorbid history of anxiety or depression and health-related quality of life.","authors":"Ellen Henning, Rashelle Musci, Sara B Johnson, Cindy Villatoro, Laura A Malone","doi":"10.1093/jpepsy/jsaf034","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf034","url":null,"abstract":"<p><strong>Objective: </strong>Up to 25% of youth may develop long COVID following COVID-19 infection. Mood changes are commonly reported; however, few studies use validated measures. This study describes prevalence of self-reported anxious and depressive symptoms among youth with long COVID. We also examined the association of these symptoms with prior mental health diagnosis and health-related quality of life.</p><p><strong>Methods: </strong>We conducted a retrospective study of pediatric patients (n = 139) evaluated in a pediatric post-COVID-19 rehabilitation clinic who met criteria for long COVID. Patients were included if they completed the Pediatric Quality of Life Inventory (PedsQL), the Multidimensional Anxiety Scale for Children, second edition (MASC 2), and/or the Children's Depression Inventory, second edition (CDI 2). Relationships between prior anxiety or mood disorder and current depressive and anxious symptoms were assessed using chi-square tests. Relationships between depressive and anxious symptoms and health-related quality of life were examined using multiple linear regression.</p><p><strong>Results: </strong>Almost 40% of patients had elevated scores for anxious or depressive symptoms. Prior anxiety or mood disorder diagnosis was associated with higher scores. Depression scores, and specifically the Ineffectiveness subscale, were inversely associated with PedsQL scores.</p><p><strong>Conclusions: </strong>Prevalence of anxious and depressive symptoms in this clinical sample was high. Screening measures for mood and anxiety overlap with physical symptoms of long COVID and use of collateral information is recommended. The relationship between the Ineffectiveness subscale and the PedsQL warrants further investigation to evaluate if they assess the same domain or if negative perception of abilities contributes to health-related quality of life.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144062775","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Siblings in families of children with chronic disorders: a model of risk and protective factors.","authors":"Solveig M Kirchhofer, Stian Orm, Nancy E Briggs, Trude Fredriksen, Erica Zahl, Caitlin M Prentice, Matteo Botta, Lauren Kelada, Ursula M Sansom-Daly, Torun M Vatne, Krister W Fjermestad","doi":"10.1093/jpepsy/jsaf017","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf017","url":null,"abstract":"<p><strong>Objective: </strong>We empirically tested a family systems model's ability to explain variance in psychosocial adjustment among siblings of children with chronic developmental and physical disorders (CDs). The model included the impact of CD severity, family social support, parental mental health, and parent-sibling communication quality. We hypothesized that family social support would moderate the relationship between CD severity and parent mental health, and that sibling-reported communication quality with their parents would mediate the relationship between parent mental health and sibling psychosocial adjustment.</p><p><strong>Methods: </strong>We used baseline data from a sibling intervention trial (SIBS-RCT) comprising 288 families with siblings aged 8-16 years and their parents, recruited from health services and user organizations. Parents reported CD severity, parental mental health, and family social support. Siblings self-reported their psychosocial adjustment, including mental health, CD-related adjustment, quality of life, and prosocial behavior. We employed structural equation modeling to test the hypothesized relationships.</p><p><strong>Results: </strong>Higher parent-sibling communication quality was significantly associated with better sibling-reported quality of life and more prosocial behavior. Lower levels of paternal depression were significantly associated with better sibling-reported quality of life and mental health, whereas maternal depression was not. We did not find support for the hypothesized mediating and moderating pathways for family social support and parent-sibling communication.</p><p><strong>Conclusions: </strong>The findings highlight the importance of addressing paternal mental health and parent-sibling communication in promoting sibling psychosocial adjustment. Future studies should use comprehensive, multi-informant approaches and consider the complex interplay of family factors in the context of childhood CD.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144021145","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Online environmental scan and content analysis of social stories about needle procedures.","authors":"Olivia Dobson, Carter Janssen, Anna Taddio, Frank J Symons, C Meghan McMurtry","doi":"10.1093/jpepsy/jsaf025","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf025","url":null,"abstract":"<p><p>Needle procedures are often difficult for autistic children. Preparatory education is an evidence-based strategy that is especially important for autistic children given they commonly struggle with unpredictability. Carol Gray developed Social Stories to walk autistic children through new/challenging situations step-by-step. Although needle-related Social Stories exist online, no research has investigated whether their content aligns with best practices for needle pain and fear management and Gray's guidelines for Social Story development.</p><p><strong>Objective: </strong>This study aimed to characterize the content of online Social Stories about vaccination and venipuncture. Specifically, the degree to which Social Stories (a) depict evidence-based/helpful and unhelpful coping strategies, (b) follow Gray's guidelines, and (c) depict accurate procedural steps, was examined in an exploratory manner.</p><p><strong>Methods: </strong>An online environmental scan (systematic method of collecting and synthesizing information) characterized the content of Social Stories. A Google search was conducted, including free, English-language stories. After screening, two coders conducted deductive content analysis (>80 codes) with the sample of 82 eligible Social Stories; frequency statistics and quotes were derived.</p><p><strong>Results: </strong>Most Social Stories focused on vaccination (89%). Social Stories commonly conveyed evidence-based strategies (e.g., 70% depicted distraction), accurate procedural information (e.g., >80% depicted step of needle insertion), and followed Gray's guidelines (e.g., 90% had meaningful titles). Several areas for improvement exist, including allowing for user customization and depicting less commonly shown evidence-based strategies like topical anesthetics.</p><p><strong>Conclusion: </strong>Social Stories may have utility for supporting autistic children and their caregivers through needle procedures. Examining effectiveness/outcomes of usage is a future research avenue.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144032574","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}