Journal of Pediatric Psychology最新文献

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Systematic review of interventions for dietary adherence in pediatric disease management.
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2025-02-11 DOI: 10.1093/jpepsy/jsae109
Elizabeth K Towner, Heather D Gibbs, Ella Hu, Susana R Patton
{"title":"Systematic review of interventions for dietary adherence in pediatric disease management.","authors":"Elizabeth K Towner, Heather D Gibbs, Ella Hu, Susana R Patton","doi":"10.1093/jpepsy/jsae109","DOIUrl":"https://doi.org/10.1093/jpepsy/jsae109","url":null,"abstract":"<p><strong>Objective: </strong>Though diet is important in the management of many pediatric chronic medical conditions, the last comprehensive review of interventions targeting dietary adherence was published over 20 years ago. This systematic review provides an update on efficacy and existing gaps for dietary adherence interventions in pediatric disease management.</p><p><strong>Method: </strong>We searched PubMed, MEDLINE, Embase, CENTRAL, PsychINFO, Web of Science, and Scopus up to July 1, 2023 for randomized controlled or clinical trials of interventions that targeted dietary adherence in youth 0-18 years old with a chronic medical condition (not obesity), included nutrition education and behavioral/psychological support, and reported dietary adherence outcomes. We identified manuscripts (N = 15) that spanned four broad diet types (healthy, carbohydrate-modified, elimination, single-nutrient modified), 10 pediatric chronic medical conditions, and 1,110 participants. Primary (dietary adherence) and secondary (disease metrics) outcome findings are organized by diet type; other descriptive information is collapsed across trials.</p><p><strong>Results: </strong>Overall, interventions yielded moderate-high adherence for most diet types. Interventions used similar approaches for nutrition education (e.g., meal plans) and behavioral support (e.g., goal setting, monitoring, feedback). Risk of bias was assessed using the Quality Criteria Checklist for Primary Research (Academy of Nutrition and Dietetics Evidence Analysis Process) revealing bias may be present in five trials.</p><p><strong>Conclusions: </strong>Interventions targeting dietary adherence remain sparse. Research is needed to examine adherence in all pediatric chronic conditions where diet is a component of disease management and to identify factors impacting dietary adherence and best practices for intervening on dietary adherence. This protocol is registered on April 5, 2024 at the Open Source Framework: https://doi.org/10.17605/OSF.IO/46YNF.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-02-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143391974","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Systematic review and meta-analysis of behavioral interventions for sleep disruption in pediatric neurodevelopmental and medical conditions.
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2025-02-11 DOI: 10.1093/jpepsy/jsae096
Dana Kamara, Angel Bernard, Emma L M Clark, Kara M Duraccio, David G Ingram, Tianjing Li, Christi R Piper, Emily Cooper, Stacey L Simon
{"title":"Systematic review and meta-analysis of behavioral interventions for sleep disruption in pediatric neurodevelopmental and medical conditions.","authors":"Dana Kamara, Angel Bernard, Emma L M Clark, Kara M Duraccio, David G Ingram, Tianjing Li, Christi R Piper, Emily Cooper, Stacey L Simon","doi":"10.1093/jpepsy/jsae096","DOIUrl":"https://doi.org/10.1093/jpepsy/jsae096","url":null,"abstract":"<p><strong>Objective: </strong>To perform a systematic review and meta-analysis of randomized controlled trials (RCTs) of behavioral interventions for sleep disruption in children with neurodevelopmental and medical conditions.</p><p><strong>Methods: </strong>A comprehensive literature search was designed and run for studies published between 1970 and July 1, 2023. Original, peer-reviewed RCTs of children ages birth to 18 years with/at risk for sleep disruption and a neurodevelopmental and/or medical condition were included. Interventions without behavioral components, lifestyle interventions, or pharmaceutical interventions were excluded. Primary outcomes included sleep health domains, and secondary outcomes were condition symptomatology and quality of life.</p><p><strong>Results: </strong>Data from 15 RCTs were examined (1,374 participants, 78% male, 71% White). Sleep disruptions were predominantly insomnia symptoms. Intervention content included parent training, sleep hygiene education, and relaxation strategies. Adaptations to the interventions for use in children with neurodevelopmental and/or medical conditions included behavioral strategies commonly used in those conditions, sleep education specific to the condition, and/or use of case examples specific to the condition. No studies reported on adverse effects. Behavioral sleep interventions had a significant effect on sleep satisfaction, bedtime resistance, and ADHD symptoms at postintervention. At follow-up, effects were maintained only for sleep satisfaction. Parent rating of child sleep duration improved at follow-up but not postintervention.</p><p><strong>Conclusions: </strong>Despite being at high risk for comorbid sleep disruption, children with neurodevelopmental and/or medical conditions are underrepresented in the sleep intervention literature. Future research is needed with larger, more diverse samples and increased methodological rigor to address sleep disruption in these pediatric populations.</p><p><strong>Protocol registration: </strong>Open Science Framework Preregistration doi.org/10.17605/OSF.IO/KE58C, date of registration December 9, 2023.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-02-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143391971","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Feasibility and acceptability of a telehealth, individually-tailored healthy lifestyle intervention for adolescent and young adult pediatric cancer survivors. 针对青少年和年轻成人儿科癌症幸存者的远程医疗、个人定制健康生活方式干预的可行性和可接受性。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2025-02-01 DOI: 10.1093/jpepsy/jsae082
Melissa A Faith, Allison Schimmel-Bristow, Dianna M Boone, Julia D Johnston, Elizabeth Henschen, Lynda Beaupin, Sarah Sobalvarro
{"title":"Feasibility and acceptability of a telehealth, individually-tailored healthy lifestyle intervention for adolescent and young adult pediatric cancer survivors.","authors":"Melissa A Faith, Allison Schimmel-Bristow, Dianna M Boone, Julia D Johnston, Elizabeth Henschen, Lynda Beaupin, Sarah Sobalvarro","doi":"10.1093/jpepsy/jsae082","DOIUrl":"10.1093/jpepsy/jsae082","url":null,"abstract":"<p><strong>Objective: </strong>Poor nutrition and physical activity pose negative health risks for adolescent and young adult pediatric cancer survivors (AYACS). Our pilot randomized controlled trial (RCT) evaluated feasibility and acceptability of a telehealth intervention (ENHANCE) supporting AYACS' nutrition and physical activity.</p><p><strong>Methods: </strong>We randomized 58 AYACS and their adult care partner, when applicable, to the ENHANCE or control condition. Inclusion required an age of 15-25 years, previous chemotherapy or radiation therapy, and no eating disorder history. We utilized a 2:1 (ENHANCE [n = 35]: control [n = 23]) double-blind block randomization protocol in blocks of 6. ENHANCE comprised 12 (60-min) sessions that included education, skill-building, and values-based healthy lifestyle decision-making. The first five sessions included motivational interviewing and the final seven sessions included problem-solving training/goal setting. We evaluated feasibility based on eligibility, enrollment, attrition, and study completion percentages. We assessed fidelity using the Session Content-Fidelity Rating Tool and the Motivational Interviewing Treatment Integrity Coding form. We assessed acceptability using the Abbreviated Acceptability Rating Profile, the Revised Helping Alliance Questionnaire, and participants' exit interviews.</p><p><strong>Results: </strong>ENHANCE was feasible and highly acceptable; all but one participant who started the intervention completed all 12 sessions and all participants reported enjoying the intervention via objective assessment and during exit interviews. Interventionists delivered ENHANCE with high fidelity.</p><p><strong>Conclusions: </strong>ENHANCE was highly acceptable among AYACS and care partners. The telehealth study design was feasible, suggesting benefits and feasibility of a future, larger, multisite RCT. Promising findings support our methodological decisions as important considerations to inform a larger RCT.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"151-161"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142337167","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Psychosocial correlates of alcohol and substance use in college youth with type 1 diabetes. 大学生青少年1型糖尿病患者酒精和物质使用的社会心理相关性
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2025-02-01 DOI: 10.1093/jpepsy/jsae103
Rebecca K Tsevat, Elissa R Weitzman, Lauren E Wisk
{"title":"Psychosocial correlates of alcohol and substance use in college youth with type 1 diabetes.","authors":"Rebecca K Tsevat, Elissa R Weitzman, Lauren E Wisk","doi":"10.1093/jpepsy/jsae103","DOIUrl":"10.1093/jpepsy/jsae103","url":null,"abstract":"<p><strong>Objective: </strong>Adolescents and young adults with chronic diseases face unique challenges during the college years and may consume alcohol and other substances to cope with stressors. This study aimed to assess the patterns of substance use and to determine psychosocial correlates of these behaviors among college youth with type 1 diabetes (T1D).</p><p><strong>Methods: </strong>College youth with T1D were recruited via social media and direct outreach into a web-based study. Participants answered validated questions about substance use, and they completed validated screeners of depressive and anxiety symptoms (PHQ-2 and GAD-2), illness acceptance (ICQ), interpersonal support (ISEL), and grit (Grit scale). Descriptive statistics, bivariate analyses, and multivariable regression evaluated substance use behaviors as a function of psychosocial factors while adjusting for age and sex.</p><p><strong>Results: </strong>Alcohol (84.06%) and marijuana (41.30%) were the most common substances reported. In bivariate analyses, depressive symptoms were positively associated (p = .01) and illness acceptance was inversely associated (p = .02) with marijuana use. Higher grit scores were inversely associated with marijuana use (p < .001) and prescription drug misuse (p = .04). The significant associations between marijuana use and depressive symptoms (adjusted odds ratio [AOR] 1.31, 95% confidence interval [CI] 1.04-1.66), illness acceptance (AOR 0.96, 95% CI 0.91-0.99), and grit (AOR 0.32, 95% CI 0.17-0.60) persisted after adjustment for age and sex.</p><p><strong>Conclusions: </strong>Substance use is prevalent among college youth with T1D. While psychosocial factors such as depressive symptoms may confer an increased risk, illness acceptance and grit may be protective-especially against marijuana use. Providers should address both positive and negative psychosocial factors to mitigate substance use in this population.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"197-204"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11831027/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142899489","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"Being alone for a whole year [is hard]" Families reflect on the emotional toll of stem cell transplantation for sickle cell disease. “一整年的孤独(是艰难的)”家庭反映了镰状细胞病干细胞移植的情感损失。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2025-02-01 DOI: 10.1093/jpepsy/jsae101
Dara M Steinberg, Carly Mulinda, Katerina Castaño, Katie DiCola, Molly L Tanenbaum, Abigail Onderwyzer Gold, Melissa P Beauchemin, Monica Bhatia
{"title":"\"Being alone for a whole year [is hard]\" Families reflect on the emotional toll of stem cell transplantation for sickle cell disease.","authors":"Dara M Steinberg, Carly Mulinda, Katerina Castaño, Katie DiCola, Molly L Tanenbaum, Abigail Onderwyzer Gold, Melissa P Beauchemin, Monica Bhatia","doi":"10.1093/jpepsy/jsae101","DOIUrl":"10.1093/jpepsy/jsae101","url":null,"abstract":"<p><strong>Objective: </strong>Sickle cell disease (SCD) is associated with significant morbidity and mortality. Hematopoietic stem cell transplantation (HCT) can improve health-related quality of life (HRQOL) but may be physically and emotionally challenging. Thus, the aim of this study was to understand the experience of HCT from the perspective of youth and young adults (YYAs) post-HCT for SCD and their parents.</p><p><strong>Methods: </strong>YYAs were recruited from an urban hospital. Sociodemographic and HCT-specific information was analyzed for all enrolled. YYAs and/or their primary caregivers during HCT, participated in semi-structured interviews (e.g., pre-HCT knowledge, challenges, advice for families/health care providers). Interviews were audio-recorded, transcribed, and analyzed using content analysis.</p><p><strong>Results: </strong>There were 19 YYAs enrolled (63.2% male; 68.4% Black or African American; 47.4% Hispanic or Latino; M days post-HCT = 1946.53 ± 1329.13; M age at HCT = 10.95 ± 6.10 years old; M current age 15.74 ± 5.78 years old). Interviews were done with six YYAs alone, five YYA-caregiver dyads, and eight caregivers alone. The caregivers were all mothers. Participants reported underestimating the emotional impact HCT would have on themselves and their family members. They experienced challenges related to isolation, academics, finances, and post-HCT medical needs. In contrast, they felt well prepared for physiological aspects of HCT. They sought HCT to improve YYAs' HRQOL and encouraged others to consider it, but to be cognizant of the potential psychosocial impact.</p><p><strong>Conclusions: </strong>This study highlights the importance of preparing families for the psychosocial effects of HCT. Incorporating psychosocial assessment, education, and intervention throughout HCT has the potential to promote HRQOL for YYAs and their families.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"187-196"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142751965","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Commentary: Increasing accessibility and adaptability of healthy lifestyle interventions for youth survivors of childhood cancer.
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2025-02-01 DOI: 10.1093/jpepsy/jsae105
Liana R Galtieri, Joanna Patten
{"title":"Commentary: Increasing accessibility and adaptability of healthy lifestyle interventions for youth survivors of childhood cancer.","authors":"Liana R Galtieri, Joanna Patten","doi":"10.1093/jpepsy/jsae105","DOIUrl":"10.1093/jpepsy/jsae105","url":null,"abstract":"","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"162-163"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143042110","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family communication and courageous coping in Korean adolescents and young adults: a cross-sectional study. 韩国青少年的家庭沟通与勇敢应对:一项横断面研究。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2025-02-01 DOI: 10.1093/jpepsy/jsae088
Heeyeon Son, Susan G Silva, Sungsil Hong, Joan E Haase, Jung Woo Han, Sharron L Docherty
{"title":"Family communication and courageous coping in Korean adolescents and young adults: a cross-sectional study.","authors":"Heeyeon Son, Susan G Silva, Sungsil Hong, Joan E Haase, Jung Woo Han, Sharron L Docherty","doi":"10.1093/jpepsy/jsae088","DOIUrl":"10.1093/jpepsy/jsae088","url":null,"abstract":"<p><strong>Objective: </strong>Adolescents and young adults (AYAs) with cancer are a vulnerable population during a critical developmental transition that can benefit from the adoption of courageous coping. Parental support is crucial in enhancing adjustment and coping skills. The linkage between parent-adolescent communication (PAC) and the use of courageous coping (UCC), however, remains unclear. This study examined the association between PAC and UCC and possible mediators of this relationship among Korean AYAs with cancer.</p><p><strong>Methods: </strong>In this cross-sectional, correlational study, self-report data were collected from 144 AYAs aged 11-26 years. A path analytic approach was employed using a hierarchical regression model to test for the direct relationship between PAC and UCC and the indirect effects of a proposed primary mediator (family cohesion) and two intermediary mediators (uncertainty of illness, hope) on PAC-UCC relationship.</p><p><strong>Results: </strong>The mean age of the sample was 17 years (SD = 3.8), with 42% currently receiving cancer treatment. Greater PAC was significantly associated with increased UCC (mother figure: p = .0024, father figure: p  = .0042). Increased family cohesion significantly mediated the PAC-UCC relationship, indicated by a diminished PAC-UCC relationship after controlling for family cohesion (mother: p = .2753; father: p = .8107). Mediated mediation models indicated that increased hope stemming from decreased uncertainty was the mechanism through which family cohesion impacted the PAC-UCC relationship.</p><p><strong>Conclusions: </strong>Findings underscore that greater PAC can facilitate UCC among Korean AYAs with cancer and provide insights for therapeutic parent-child communication. Results further demonstrate the complex mediating role of fostering family cohesion, reducing uncertainty, and fostering hope can play in the PAC-UCC relationship.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"164-174"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142548376","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A systematic review of parent-child communication in pediatric asthma. 儿童哮喘中亲子沟通的系统综述。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2025-02-01 DOI: 10.1093/jpepsy/jsae104
Natalie C Koskela-Staples, Erin L Moorman, Emily Jackson, Carla L Fisher, David A Fedele
{"title":"A systematic review of parent-child communication in pediatric asthma.","authors":"Natalie C Koskela-Staples, Erin L Moorman, Emily Jackson, Carla L Fisher, David A Fedele","doi":"10.1093/jpepsy/jsae104","DOIUrl":"10.1093/jpepsy/jsae104","url":null,"abstract":"<p><strong>Objective: </strong>Parent-child communication is integral to pediatric asthma management. This review evaluates parent-child communication among youth with asthma and their caregivers. It aims to characterize the type of communication according to a unifying framework (Murphy, L. K., Murray, C. B., & Compas, B. E., Guest Editors: Cynthia A. Gerhardt, Cynthia A. Berg, Deborah J. Wiebe and Grayson N. Holmbeck (2017). Topical review: Integrating findings on direct observation of family communication in studies comparing pediatric chronic illness and typically developing samples. Journal of Pediatric Psychology, 42, 85-94. https://doi.org/10.1093/jpepsy/jsw051), assess sociodemographic factors associated with communication, and examine the relationship between parent-child communication and youth psychosocial and health-related outcomes.</p><p><strong>Methods: </strong>A systematic literature search was conducted using PubMed, PsycINFO, CINAHL, Web of Science, Cochrane Library, and Embase databases (June 2021; updated May 2024). Included studies reported original, peer-reviewed research on the relationship between parent-child communication and youth psychosocial or health outcomes among pediatric patients (mean age <18 years) with asthma and their primary caregiver(s). Study quality was evaluated using the Study Quality Assessment Tools of the NHLBI.</p><p><strong>Results: </strong>Sixty-six articles were included with data from 5,373 youth with asthma. Studies assessed both positive (warm and structured) and negative (hostile/intrusive and withdrawn) communication. Most studies used questionnaires and cross-sectional designs. Associations between sociodemographic and communication variables were largely nonsignificant. Greater positive and less negative communication was associated with better youth psychosocial and asthma outcomes overall.</p><p><strong>Conclusion: </strong>Parent-child communication may be an important target for interventions aimed at improving youth outcomes. More research is needed to develop communication-focused interventions that aim to enhance parents' and youths' communication skills (i.e., increase their use of positive communication approaches and/or reduce their use of negative communication approaches) and evaluate their impact on youth outcomes. Future research should also use more discussion tasks and longitudinal designs.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"205-232"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142855825","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family functioning in adolescents and young adults with differences of sex development.
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2025-02-01 DOI: 10.1093/jpepsy/jsae106
Jaclyn L Papadakis, Cindy L Buchanan, Yee-Ming Chan, Canice E Crerand, Jennifer Hansen-Moore, Leena Nahata, Joseph R Rausch, Amy C Tishelman, Diane Chen
{"title":"Family functioning in adolescents and young adults with differences of sex development.","authors":"Jaclyn L Papadakis, Cindy L Buchanan, Yee-Ming Chan, Canice E Crerand, Jennifer Hansen-Moore, Leena Nahata, Joseph R Rausch, Amy C Tishelman, Diane Chen","doi":"10.1093/jpepsy/jsae106","DOIUrl":"10.1093/jpepsy/jsae106","url":null,"abstract":"<p><strong>Objective: </strong>Family functioning influences various psychosocial outcomes for individuals with pediatric chronic health conditions (e.g., Leeman, J., Crandell, J. L., Lee, A., Bai, J., Sandelowski, M., & Knafl, K. (2016). Family Functioning and the Well-Being of Children With Chronic Conditions: a Meta-Analysis. Research in Nursing & Health, 39, 229-243), but this has not been examined among families of youth with differences of sex development (DSD). The objective of this study was to examine (a) differences in family functioning based on DSD-related and demographic characteristics, (b) the associations between family functioning and psychosocial outcomes, and (c) the moderating effects of current age.</p><p><strong>Methods: </strong>Participants were 57 adolescents and 40 young adults (AYA) ages 12-25 years (M  = 16.97) with DSD resulting in atypical genital appearance and/or discordance between phenotypic and chromosomal sex who participated in a cross-sectional study examining psychosocial outcomes. Participants completed the Family Environment Scale, the McMaster Family Assessment Device, the Perceived Acceptance Scale, and outcome measures including the Youth Self-Report/Adult Self-Report and the Connor-Davidson Resilience Scale. Analyses included t-tests and linear regressions with moderation effects.</p><p><strong>Results: </strong>AYA reported better family functioning if they were diagnosed at a younger age, learned about their diagnosis at a younger age, had 46, XY karyotype, and identified as male. General family functioning, family conflict, and family acceptance had the strongest associations with psychosocial outcomes. Greater family acceptance was associated with fewer total problems, and this association was stronger for adolescents (ps < .05).</p><p><strong>Conclusions: </strong>AYA with certain DSD-related characteristics may demonstrate more adaptive family functioning. Family functioning is strongly associated with psychosocial outcomes for AYA with DSD. Results highlight the importance of developing family-focused interventions to promote psychosocial functioning in AYA with DSD.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"233-242"},"PeriodicalIF":2.7,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143048375","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding the role of perfectionism in contributing to internalizing symptoms in youth with juvenile idiopathic arthritis. 了解完美主义在青少年特发性关节炎内化症状中的作用。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2025-02-01 DOI: 10.1093/jpepsy/jsae100
Yvonne N Brandelli, Sean P Mackinnon, Christine T Chambers, Jennifer A Parker, Adam M Huber, Jennifer N Stinson, Shannon A Johnson, Jennifer P Wilson
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