Ziyan Wu, Margaret Moreland, Maya L Jotwani, Melissa A Christino, David Borsook, Christine B Sieberg
{"title":"Interactive interdisciplinary pain research in adolescent and young adult females: a pilot investigation of brain, physiological, and emotional functioning following orthopedic surgery.","authors":"Ziyan Wu, Margaret Moreland, Maya L Jotwani, Melissa A Christino, David Borsook, Christine B Sieberg","doi":"10.1093/jpepsy/jsaf041","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf041","url":null,"abstract":"<p><strong>Objective: </strong>In this pilot investigation, we aimed to explore the neurological and biobehavioral mechanisms underlying pain outcomes in adolescent and young adult (AYA) females following orthopedic surgery, an area largely unexplored.</p><p><strong>Methods: </strong>Functional near-infrared spectroscopy was used to investigate brain responses in the primary sensory cortex (sensory pain processing) and the prefrontal regions (emotional processing) in 24 AYA females who underwent orthopedic surgery within the previous 2 years compared to 20 group-matched controls without a surgical or chronic pain history. A battery of self-reported pain-related and emotional functioning measures (PROMIS; pain catastrophizing) were also administered. Cortical activations and functional connectivity (FC), involving the prefrontal (PFC) and somatosensory cortices (SMC), were assessed during resting state and a descending pain modulation task (conditioned pain modulation).</p><p><strong>Results: </strong>In the control group, PFC-SMC FC in response to pain was significantly linked to anxiety, whereas this correlation was absent in the post-surgical cohort.</p><p><strong>Conclusion: </strong>These results highlight distinct altered responses in sensory and emotional brain functioning in AYA females following orthopedic surgery. We suggest that such changes may be related to the involvement of the PFC-SMC communication in the maintenance of chronic pain.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144692065","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lily M Messenger, William A Pickrell, Shayla C Holub, Jackie A Nelson
{"title":"Reported and observed daily feeding coparenting: links to marital quality among mothers and fathers of preschoolers.","authors":"Lily M Messenger, William A Pickrell, Shayla C Holub, Jackie A Nelson","doi":"10.1093/jpepsy/jsaf058","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf058","url":null,"abstract":"<p><strong>Objective: </strong>Parents' ability to cooperate and work as a team in feeding their children relates to positive health and relational outcomes. However, our understanding of feeding coparenting largely relies on parents' perceptions. It is unclear how mothers' and fathers' perceptions of feeding coparenting relate to objective ratings of these behaviors at mealtime and whether features of the marital relationship relate to measurements of feeding coparenting and discrepancies in couple members' perceptions of these dynamics.</p><p><strong>Methods: </strong>The current study analyzed daily self-reports and observer ratings of feeding coparenting among dyads for 1 week, along with parent perceptions of marital quality, in a sample of 63 mother-father dyads present at their preschool-age child's dinner meal (266 dinner observations).</p><p><strong>Results: </strong>Using a series a multilevel models, results showed mothers' daily perceptions of feeding coparenting related to ratings of feeding coparenting balance; parents' perceptions of daily feeding coparenting related to their reports of marital quality; and lower maternal feeding coparenting perceptions relative to their partner's perceptions related to lower mother-reported marital quality and higher father-reported marital quality.</p><p><strong>Conclusions: </strong>Findings are discussed in terms of measurement considerations and contextual factors impacting feeding coparenting.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144692068","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Canice E Crerand, Kristina I Suorsa-Johnson, Michelle M Ernst, Y Frances Fei, Jennifer Hansen-Moore, Nadia Jaffal, LaTeesa N James, Tess Jewell, Jodie Johnson, Elizabeth Lanphier, Christine M Pennesi, Hailey Umbaugh, Madeline McClinchie, Kate M Saylor, Alexandra Britt, David E Sandberg
{"title":"Stigma in differences of sex development: a scoping review.","authors":"Canice E Crerand, Kristina I Suorsa-Johnson, Michelle M Ernst, Y Frances Fei, Jennifer Hansen-Moore, Nadia Jaffal, LaTeesa N James, Tess Jewell, Jodie Johnson, Elizabeth Lanphier, Christine M Pennesi, Hailey Umbaugh, Madeline McClinchie, Kate M Saylor, Alexandra Britt, David E Sandberg","doi":"10.1093/jpepsy/jsaf033","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf033","url":null,"abstract":"<p><strong>Objective: </strong>Differences of sex development (DSD) affect somatic sex determination and differentiation and are associated with stigmatization risks. This scoping review evaluated reports of stigma experiences described by individuals with DSD, caregivers of individuals with DSD, and non-affected individuals (e.g., laypeople).</p><p><strong>Methods: </strong>A multi-step, iterative process was used for the search strategy. Databases utilized included Cochrane Library, PubMed, Ovid MEDLINE (Ovid MEDLINE(R) and Epub Ahead of Print, In-process & Other Non-Indexed Citations, Daily and Versions(R)), Embase (Elsevier), CINAHL Complete (EBSCO), PsychInfo (EBSCO), LGBT Life (EBSCO), and Scopus (Elsevier). Peer-reviewed, English language, quantitative or qualitative studies that evaluated stigma or stigma-related attitudes toward individuals with DSD published from 1955 through August 2024 were included. Stigma was categorized as felt (feared rejection), enacted (bullying), or systemic/structural (e.g., institutionalized policies).</p><p><strong>Results: </strong>Searches yielded 6,892 articles after eliminating duplicates. Following full-text screening, 206 articles were included in the review indicating that DSD-specific stigma was measured. However, measuring stigma was a specific study aim in a minority of publications (51 articles, 25%), with evidence for felt (164 articles, 80%), enacted (127 articles, 62%), and structural/systemic stigma (70 articles, 34%) reported across informants and DSD diagnosis. Few studies utilized validated DSD-specific stigma measures.</p><p><strong>Conclusions: </strong>Stigma is commonly reported in the literature across the spectrum of DSD conditions but is rarely measured. Stigma was predominantly assessed using open-ended questions, with limited use of validated measures. Results have implications for clinical care, including stigma-related screening and intervention and the need for future research using standardized stigma assessments.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144692078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jan T Mooney, Cynthia Sinha, Nitya Bakshi, Anjanette Nuñez, Taylor Adkins, Staci Thomas, Katie Beasley, Tinu Akintobi, Lori Crosby, Susmita Kashikar-Zuck, Carlton Dampier, Gregory D Myer, Trisha Kesar, Charles T Quinn, Soumitri Sil
{"title":"Physical activity among adolescents and young adults living with chronic pain and sickle cell disease: a qualitative examination.","authors":"Jan T Mooney, Cynthia Sinha, Nitya Bakshi, Anjanette Nuñez, Taylor Adkins, Staci Thomas, Katie Beasley, Tinu Akintobi, Lori Crosby, Susmita Kashikar-Zuck, Carlton Dampier, Gregory D Myer, Trisha Kesar, Charles T Quinn, Soumitri Sil","doi":"10.1093/jpepsy/jsaf055","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf055","url":null,"abstract":"<p><strong>Objectives: </strong>Chronic pain among youth with sickle cell disease (SCD) is associated with significant functional disability. Physical activity is recommended for pediatric chronic pain and is safe, feasible, and beneficial for individuals with SCD, yet uptake is limited. This study describes the adolescent- and caregiver-centered lived experience of physical activity within the context of SCD and chronic pain to inform intervention targets.</p><p><strong>Methods: </strong>Adolescents aged 12-18 years with any SCD genotype and medium or greater risk of chronic pain (Pediatric Pain Screening Tool) were recruited across two sites for an intervention development study. Semi-structured interviews elicited perspectives related to physical activity and its role in pain management. A deductive-inductive approach was used with the Fear Avoidance Model as an analytic framework.</p><p><strong>Results: </strong>Adolescents (n = 12; 15.1 ± 1.5 years) were Black/African American, even sex distribution, with 92% Medicaid-covered. Caregivers (n = 12; 39.4 ± 5.8 years) were Black/African American, and 100% were mothers/stepmothers. Physical activity facilitators included structured social activities and older age. Barriers included triggering or worsening pain and safety concerns expressed by caregivers and adults. Caregivers emphasized that adolescents developing self-awareness helps them modify physical activity to prevent pain. Benefits of physical activity to manage pain included minimizing stiffness and pain exacerbation and sustained pain reduction.</p><p><strong>Conclusions: </strong>Physical activity to manage chronic SCD pain may require individualization and adaptation to address patient and caregiver concerns. Future intervention targets need to address unique facilitators and barriers, minimize challenges, and promote benefits of physical activity for chronic SCD pain.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144692066","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Taylor Gates, Harrison Powers, Cathleen Odar Stough
{"title":"Quality of life in youth with overweight and obesity in early childhood: a systematic review.","authors":"Taylor Gates, Harrison Powers, Cathleen Odar Stough","doi":"10.1093/jpepsy/jsaf059","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf059","url":null,"abstract":"<p><strong>Objective: </strong>Quality of life (QoL) has been found to be poorer among school-age children with overweight (OW) and obesity (OB) compared to their normal weight peers; however, research has yet to examine whether young children (i.e., <6 years old) with OW and OB also display poorer QoL. Therefore, this paper systematically reviewed the literature examining QoL among young children with OW or OB.</p><p><strong>Methods: </strong>A systematic review using early childhood, pediatric, obesity, and QoL search terms was conducted in PubMed and PsycINFO in January 2024 and on January 29, 2025. A total of 1,340 articles were initially identified, with 13 studies meeting inclusion criteria (i.e., presented original research in English, participants were children with OW or OB <6 years old, included at least one measure of QoL, total participants across all studies, N = 79,581). A narrative review was used to synthesize results, and quality assessment ratings were conducted using previously developed scientific merit criteria.</p><p><strong>Results: </strong>Most cross-sectional articles (n = 6) supported that young children with OW or OB displayed poorer QoL than normal weight peers. Poorer physical functioning among youth with OW and OB was consistent across studies. Intervention studies with lifestyle behavior components demonstrated success in improving physical functioning among youth with OW and OB.</p><p><strong>Conclusions: </strong>QoL was found to be poorer for young children with OW or OB compared to their peers, and physical functioning was shown to improve in weight-management interventions, confirming the importance of screening QoL in this population.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144692067","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Maia Thornton, Heidi Williamson, Toity Deave, James Kiff, Diana Harcourt
{"title":"The Visible Difference Parenting Toolkit: development of an ACT-based intervention to improve the well-being of parents and caregivers of children with appearance-affecting conditions and injuries.","authors":"Maia Thornton, Heidi Williamson, Toity Deave, James Kiff, Diana Harcourt","doi":"10.1093/jpepsy/jsaf054","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf054","url":null,"abstract":"<p><strong>Objectives: </strong>Caregivers of children with appearance-affecting conditions or injuries can experience common psychosocial challenges, regardless of the cause or nature of their child's visible difference. Despite these common challenges, there is a lack of evidence-based cross-condition support for caregivers of children with visible differences.</p><p><strong>Methods: </strong>A self-guided acceptance and commitment therapy-based e-book intervention was developed utilizing a Participatory Action Research approach. Twenty-two caregivers of children with a range of visible differences reviewed the full pilot e-book intervention and responded to an online acceptability survey.</p><p><strong>Results: </strong>While several changes aimed at increasing the accessibility of the intervention materials were discussed, overall the feedback suggested that The Visible Difference Parenting Toolkit addressed an unmet support need. Both the content and the format of the intervention were found to be acceptable by parents, with ehealth Impact Questionnaire scores of >80. Participants recommended specific changes related to accessibility including adding features such as hyperlinks and a search bar to enable users to navigate the e-book.</p><p><strong>Conclusions: </strong>Caregivers reported that the content of The Visible Difference Parenting Toolkit was relevant to their lived experiences of caring for a child with a visible difference. Parents also reported that the presentation and format of The Visible Difference Parenting Toolkit was clear and accessible. The intervention addresses a previously unmet support need and is an acceptable intervention for caregivers of children with a visible difference.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144650949","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Charles Lepage, Laurie Tremblay, Annie Bernier, Marie-Noëlle Simard, Célia Matte-Gagné, Anne Gallagher
{"title":"Trajectories of behavioral and emotional problems in preschoolers with congenital heart disease.","authors":"Charles Lepage, Laurie Tremblay, Annie Bernier, Marie-Noëlle Simard, Célia Matte-Gagné, Anne Gallagher","doi":"10.1093/jpepsy/jsaf057","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf057","url":null,"abstract":"<p><strong>Objectives: </strong>To characterize intraindividual trajectories of behavioral and emotional problems in children with congenital heart disease (CHD) between 2 and 5 years of age, and to explore the predictors of these trajectories.</p><p><strong>Methods: </strong>Sixty-six patients (42 boys) followed at the neurocardiac clinic of the Sainte-Justine University Hospital in Montréal, Québec, Canada were recruited. Their behavioral and emotional problems at 2, 3 ½, and 5 years of age were reported by parents.</p><p><strong>Results: </strong>Correlations revealed moderate to high rank-order stability in child behavioral and emotional problems across time. Multilevel growth curves indicated significant fluctuations in intraindividual levels of these problems across time, which were not explained by child aging. Lower gestational age was associated with higher levels of anxious/depressed symptoms at age 2 years, which persisted through time. Severe forms of CHD were associated with a time-related decrease in three types of problems: attention, attention deficit and hyperactivity, and oppositional and defiant.</p><p><strong>Conclusions: </strong>Levels of parent-reported behavioral and emotional problems in children with CHD tend to persist from ages 2 to 5 years, suggesting the importance of early screening. However, unexplained intraindividual changes were also identified, highlighting the necessity to investigate other parental risk factors, for instance. Infants with a lower gestational age should be given special consideration since they continued to display more anxious/depressed symptoms up to school entry compared to children with CHD born at term. The decrease observed in some symptoms for children with severe CHD could result from altered parental perceptions or adverse effects of prolonged hospitalizations.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144692079","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Tabitha McCarty, Hailey Inverso, Randi Streisand, Sydney Garretson, Emma Straton, Nkemjika Okonkwo, Sarah S Jaser
{"title":"Diabetes distress among caregivers of adolescents with type 1 diabetes.","authors":"Tabitha McCarty, Hailey Inverso, Randi Streisand, Sydney Garretson, Emma Straton, Nkemjika Okonkwo, Sarah S Jaser","doi":"10.1093/jpepsy/jsaf051","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf051","url":null,"abstract":"<p><strong>Objective: </strong>Diabetes distress (DD), the negative emotional response related to the burdens of diabetes management, has been studied primarily in adults with type 2 diabetes and youth with type 1 diabetes (T1D), but less is known about DD among caregivers of youth with T1D.</p><p><strong>Methods: </strong>Caregivers of adolescents with T1D (n = 198, Mage = 45.6 ± 7.3, 84% female, 66% non-Hispanic White) were enrolled in a two-site randomized clinical trial aimed at treating DD among adolescents. The current study is a secondary analysis of baseline data to examine factors associated with DD among caregivers. Caregivers completed measures of DD, diabetes-related family conflict, and adolescents' diabetes self-management behaviors. Caregivers also reported on demographic factors, and clinical data were extracted from adolescents' medical records.</p><p><strong>Results: </strong>Female caregivers, caregivers of younger adolescents, caregivers reporting lower household income, caregivers of lower subjective social status, and single/nonpartnered caregivers reported significantly higher caregiver DD. Further, after adjusting for demographic factors, higher diabetes-related family conflict and lower adolescent diabetes self-management behaviors were associated with significantly higher caregiver DD.</p><p><strong>Conclusions: </strong>Correlates of caregiver DD provide insight into potential risks and modifiable factors that may help clinicians develop interventions to target caregiver DD to improve outcomes in both caregivers and adolescents with T1D.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-07-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144609992","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Grayson N Holmbeck, Olivia Clark, Taylor Hilderbrand, Tessa Kritikos, Alexandra M Psihogios, Monique Ridosh, Colleen Stiles-Shields
{"title":"The daily phone diary in adolescents and young adults with spina bifida: utility and psychometric evidence.","authors":"Grayson N Holmbeck, Olivia Clark, Taylor Hilderbrand, Tessa Kritikos, Alexandra M Psihogios, Monique Ridosh, Colleen Stiles-Shields","doi":"10.1093/jpepsy/jsaf043","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf043","url":null,"abstract":"<p><strong>Objective: </strong>This study provided descriptive, psychometric, and correlational data on activity involvement, including engagement with and adherence to medical care activities, using the daily phone diary (DPD) methodology within the context of an ongoing longitudinal study of adolescents and young adults (AYAs) with spina bifida (SB).</p><p><strong>Methods: </strong>As part of a longitudinal study, AYAs with SB aged 16-24 at Time 5 (n = 68) and aged 19-26 at Time 6 (n = 75) completed a DPD across 3 days, along with measures of demographics, condition severity, and medically related psychosocial constructs.</p><p><strong>Results: </strong>Findings revealed that AYAs spent roughly two-thirds of their time either sleeping or engaged in recreational activities in their homes. They were more likely to spend time at home (with 50% of this time engaged in less active activities such as TV watching) and less time engaged in school and work activities than has been found in AYAs with other chronic medical conditions. Participants were also more likely to report low rates of catheterization, suggesting adherence challenges. The DPD method showed satisfactory stability over time. DPD data on medical care activities demonstrated adequate convergent validity as well as correlations with lesion level and measures of medical responsibility and medical skill mastery.</p><p><strong>Conclusions: </strong>This study supports the use of the DPD method to assess engagement with and adherence to medical care activities in AYAs with SB. It also provides an assessment of engagement in other activities, such as in-home recreation and out-of-home school- and work-related activities.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-07-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144612342","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Samantha A Carreon, Caryn R R Rodgers, Aurelia Minuti, Ana M Gutierrez-Colina, Marissa N Baudino, LaTerrica Williams, Ashley M Butler
{"title":"Systematic review of culturally targeted behavioral and psychosocial interventions among children from racially and ethnically minoritized backgrounds with chronic health conditions in the United States.","authors":"Samantha A Carreon, Caryn R R Rodgers, Aurelia Minuti, Ana M Gutierrez-Colina, Marissa N Baudino, LaTerrica Williams, Ashley M Butler","doi":"10.1093/jpepsy/jsaf035","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf035","url":null,"abstract":"<p><strong>Objective: </strong>Few reviews have evaluated culturally targeted interventions for youth who have chronic health conditions. This systematic review aimed to describe health, psychosocial, behavioral, and sociocultural outcomes of culturally targeted interventions among children from racially and ethnically minoritized backgrounds who have a chronic condition in the United States.</p><p><strong>Methods: </strong>A systematic literature review was conducted (January 1, 2013 through July 1, 2023). We reviewed randomized and non-randomized controlled clinical trials investigating culturally targeted, psychologist-involved interventions among children (ages 0-18 years) from racially/ethnically minoritized backgrounds in the United States with obesity, asthma, diabetes, sickle cell disease, cancer, cystic fibrosis, epilepsy, lupus, arthritis, and human immunodeficiency virus. Studies were included that compared culturally targeted interventions to non-targeted interventions or no intervention. Searches were conducted in PubMed, Embase, Central, and PsycINFO. Covidence was used for data screening, assessment, and extraction. Risk of bias was assessed with the Cochrane risk of bias version 2 tool. Extracted outcome variables included child health and healthcare utilization, and child and parent psychosocial, behavioral, and sociocultural outcomes.</p><p><strong>Results: </strong>The review included one study evaluating the effectiveness of the Physician Asthma Care Education (PACE) intervention compared to PACE Plus, a culturally enhanced version, among African American and Latino youth with asthma. Participants included 112 primary care providers and 867 pediatric patients.</p><p><strong>Conclusions: </strong>Health, psychosocial/behavioral, and sociocultural outcomes of culturally targeted interventions for racially and ethnically minoritized youth with chronic health conditions in the United States are unknown. Future research should prioritize the development and evaluation of culturally targeted interventions for these populations.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-07-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144609993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}