Stigma in differences of sex development: a scoping review.

IF 2.7 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL
Canice E Crerand, Kristina I Suorsa-Johnson, Michelle M Ernst, Y Frances Fei, Jennifer Hansen-Moore, Nadia Jaffal, LaTeesa N James, Tess Jewell, Jodie Johnson, Elizabeth Lanphier, Christine M Pennesi, Hailey Umbaugh, Madeline McClinchie, Kate M Saylor, Alexandra Britt, David E Sandberg
{"title":"Stigma in differences of sex development: a scoping review.","authors":"Canice E Crerand, Kristina I Suorsa-Johnson, Michelle M Ernst, Y Frances Fei, Jennifer Hansen-Moore, Nadia Jaffal, LaTeesa N James, Tess Jewell, Jodie Johnson, Elizabeth Lanphier, Christine M Pennesi, Hailey Umbaugh, Madeline McClinchie, Kate M Saylor, Alexandra Britt, David E Sandberg","doi":"10.1093/jpepsy/jsaf033","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>Differences of sex development (DSD) affect somatic sex determination and differentiation and are associated with stigmatization risks. This scoping review evaluated reports of stigma experiences described by individuals with DSD, caregivers of individuals with DSD, and non-affected individuals (e.g., laypeople).</p><p><strong>Methods: </strong>A multi-step, iterative process was used for the search strategy. Databases utilized included Cochrane Library, PubMed, Ovid MEDLINE (Ovid MEDLINE(R) and Epub Ahead of Print, In-process & Other Non-Indexed Citations, Daily and Versions(R)), Embase (Elsevier), CINAHL Complete (EBSCO), PsychInfo (EBSCO), LGBT Life (EBSCO), and Scopus (Elsevier). Peer-reviewed, English language, quantitative or qualitative studies that evaluated stigma or stigma-related attitudes toward individuals with DSD published from 1955 through August 2024 were included. Stigma was categorized as felt (feared rejection), enacted (bullying), or systemic/structural (e.g., institutionalized policies).</p><p><strong>Results: </strong>Searches yielded 6,892 articles after eliminating duplicates. Following full-text screening, 206 articles were included in the review indicating that DSD-specific stigma was measured. However, measuring stigma was a specific study aim in a minority of publications (51 articles, 25%), with evidence for felt (164 articles, 80%), enacted (127 articles, 62%), and structural/systemic stigma (70 articles, 34%) reported across informants and DSD diagnosis. Few studies utilized validated DSD-specific stigma measures.</p><p><strong>Conclusions: </strong>Stigma is commonly reported in the literature across the spectrum of DSD conditions but is rarely measured. Stigma was predominantly assessed using open-ended questions, with limited use of validated measures. Results have implications for clinical care, including stigma-related screening and intervention and the need for future research using standardized stigma assessments.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7000,"publicationDate":"2025-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Pediatric Psychology","FirstCategoryId":"102","ListUrlMain":"https://doi.org/10.1093/jpepsy/jsaf033","RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PSYCHOLOGY, DEVELOPMENTAL","Score":null,"Total":0}
引用次数: 0

Abstract

Objective: Differences of sex development (DSD) affect somatic sex determination and differentiation and are associated with stigmatization risks. This scoping review evaluated reports of stigma experiences described by individuals with DSD, caregivers of individuals with DSD, and non-affected individuals (e.g., laypeople).

Methods: A multi-step, iterative process was used for the search strategy. Databases utilized included Cochrane Library, PubMed, Ovid MEDLINE (Ovid MEDLINE(R) and Epub Ahead of Print, In-process & Other Non-Indexed Citations, Daily and Versions(R)), Embase (Elsevier), CINAHL Complete (EBSCO), PsychInfo (EBSCO), LGBT Life (EBSCO), and Scopus (Elsevier). Peer-reviewed, English language, quantitative or qualitative studies that evaluated stigma or stigma-related attitudes toward individuals with DSD published from 1955 through August 2024 were included. Stigma was categorized as felt (feared rejection), enacted (bullying), or systemic/structural (e.g., institutionalized policies).

Results: Searches yielded 6,892 articles after eliminating duplicates. Following full-text screening, 206 articles were included in the review indicating that DSD-specific stigma was measured. However, measuring stigma was a specific study aim in a minority of publications (51 articles, 25%), with evidence for felt (164 articles, 80%), enacted (127 articles, 62%), and structural/systemic stigma (70 articles, 34%) reported across informants and DSD diagnosis. Few studies utilized validated DSD-specific stigma measures.

Conclusions: Stigma is commonly reported in the literature across the spectrum of DSD conditions but is rarely measured. Stigma was predominantly assessed using open-ended questions, with limited use of validated measures. Results have implications for clinical care, including stigma-related screening and intervention and the need for future research using standardized stigma assessments.

性发育差异中的耻感:范围综述。
目的:性别发育差异(DSD)影响躯体性别决定和分化,并与污名化风险相关。这一范围审查评估了由DSD患者、DSD患者的照料者和未受影响的个体(如外行人)描述的耻辱经历的报告。方法:采用多步骤迭代搜索策略。使用的数据库包括Cochrane Library, PubMed, Ovid MEDLINE(R)和Epub Ahead of Print, In-process & Other Non-Indexed citation, Daily and Versions(R)), Embase(爱思唯尔),CINAHL Complete (EBSCO), PsychInfo (EBSCO), LGBT Life (EBSCO)和Scopus(爱思唯尔)。从1955年到2024年8月发表的同行评审、英语语言、定量或定性研究评估了对DSD患者的耻辱感或与耻辱感相关的态度。污名被归类为感觉(害怕被拒绝)、制定(欺凌)或系统性/结构性(例如制度化的政策)。结果:剔除重复条目后,检索结果为6892篇。在全文筛选之后,206篇文章被纳入综述,表明测量了dsd特异性病耻感。然而,在少数出版物(51篇文章,25%)中,测量耻辱感是一个特定的研究目标,在告密者和DSD诊断中报告了感觉(164篇文章,80%)、颁布(127篇文章,62%)和结构性/系统性耻辱感(70篇文章,34%)的证据。很少有研究使用经过验证的dsd特异性柱头测量方法。结论:耻辱感在文献中广泛报道,但很少被测量。病耻感主要采用开放式问题进行评估,有限地使用了有效的措施。研究结果对临床护理具有重要意义,包括与病耻感相关的筛查和干预,以及未来使用标准化病耻感评估进行研究的必要性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
Journal of Pediatric Psychology
Journal of Pediatric Psychology PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
6.00
自引率
11.10%
发文量
89
期刊介绍: The Journal of Pediatric Psychology is the official journal of the Society of Pediatric Psychology, Division 54 of the American Psychological Association. The Journal of Pediatric Psychology publishes articles related to theory, research, and professional practice in pediatric psychology. Pediatric psychology is an integrated field of science and practice in which the principles of psychology are applied within the context of pediatric health. The field aims to promote the health and development of children, adolescents, and their families through use of evidence-based methods.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信