The daily phone diary in adolescents and young adults with spina bifida: utility and psychometric evidence.

IF 2.7 3区心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL

Journal of Pediatric Psychology Pub Date : 2025-07-11 DOI:10.1093/jpepsy/jsaf043

Grayson N Holmbeck, Olivia Clark, Taylor Hilderbrand, Tessa Kritikos, Alexandra M Psihogios, Monique Ridosh, Colleen Stiles-Shields

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引用次数: 0

Abstract

Objective: This study provided descriptive, psychometric, and correlational data on activity involvement, including engagement with and adherence to medical care activities, using the daily phone diary (DPD) methodology within the context of an ongoing longitudinal study of adolescents and young adults (AYAs) with spina bifida (SB).

Methods: As part of a longitudinal study, AYAs with SB aged 16-24 at Time 5 (n = 68) and aged 19-26 at Time 6 (n = 75) completed a DPD across 3 days, along with measures of demographics, condition severity, and medically related psychosocial constructs.

Results: Findings revealed that AYAs spent roughly two-thirds of their time either sleeping or engaged in recreational activities in their homes. They were more likely to spend time at home (with 50% of this time engaged in less active activities such as TV watching) and less time engaged in school and work activities than has been found in AYAs with other chronic medical conditions. Participants were also more likely to report low rates of catheterization, suggesting adherence challenges. The DPD method showed satisfactory stability over time. DPD data on medical care activities demonstrated adequate convergent validity as well as correlations with lesion level and measures of medical responsibility and medical skill mastery.

Conclusions: This study supports the use of the DPD method to assess engagement with and adherence to medical care activities in AYAs with SB. It also provides an assessment of engagement in other activities, such as in-home recreation and out-of-home school- and work-related activities.

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青少年和青年脊柱裂患者的每日电话日记：效用和心理测量证据。

目的：本研究在一项正在进行的脊柱裂（SB）青少年和年轻人（AYAs）纵向研究的背景下，使用每日电话日记（DPD）方法，提供了有关活动参与的描述性、心理测量学和相关数据，包括参与和坚持医疗活动。方法：作为纵向研究的一部分，16-24岁的SB患者在时间5 （n = 68）和19-26岁的SB患者在时间6 （n = 75）完成了为期3天的DPD，并测量了人口统计学、病情严重程度和医学相关的社会心理结构。结果：调查结果显示，asa大约有三分之二的时间要么在家里睡觉，要么在家里从事娱乐活动。与患有其他慢性疾病的青少年相比，他们更有可能呆在家里（其中50%的时间从事不太活跃的活动，如看电视），花在学校和工作活动上的时间也更少。参与者也更有可能报告导管插入率较低，这表明坚持存在挑战。随着时间的推移，DPD方法显示出令人满意的稳定性。关于医疗保健活动的DPD数据显示出足够的收敛效度，以及与病变程度和医疗责任和医疗技能掌握措施的相关性。结论：本研究支持使用DPD方法来评估SB的asa对医疗保健活动的参与和坚持。它还提供了对其他活动的参与的评估，如家庭娱乐和家庭外的学校和工作相关活动。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Pediatric Psychology PSYCHOLOGY, DEVELOPMENTAL-

CiteScore

6.00

自引率

11.10%

发文量

期刊介绍： The Journal of Pediatric Psychology is the official journal of the Society of Pediatric Psychology, Division 54 of the American Psychological Association. The Journal of Pediatric Psychology publishes articles related to theory, research, and professional practice in pediatric psychology. Pediatric psychology is an integrated field of science and practice in which the principles of psychology are applied within the context of pediatric health. The field aims to promote the health and development of children, adolescents, and their families through use of evidence-based methods.