Diabetes distress among caregivers of adolescents with type 1 diabetes.

IF 2.7 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL
Tabitha McCarty, Hailey Inverso, Randi Streisand, Sydney Garretson, Emma Straton, Nkemjika Okonkwo, Sarah S Jaser
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Abstract

Objective: Diabetes distress (DD), the negative emotional response related to the burdens of diabetes management, has been studied primarily in adults with type 2 diabetes and youth with type 1 diabetes (T1D), but less is known about DD among caregivers of youth with T1D.

Methods: Caregivers of adolescents with T1D (n = 198, Mage = 45.6 ± 7.3, 84% female, 66% non-Hispanic White) were enrolled in a two-site randomized clinical trial aimed at treating DD among adolescents. The current study is a secondary analysis of baseline data to examine factors associated with DD among caregivers. Caregivers completed measures of DD, diabetes-related family conflict, and adolescents' diabetes self-management behaviors. Caregivers also reported on demographic factors, and clinical data were extracted from adolescents' medical records.

Results: Female caregivers, caregivers of younger adolescents, caregivers reporting lower household income, caregivers of lower subjective social status, and single/nonpartnered caregivers reported significantly higher caregiver DD. Further, after adjusting for demographic factors, higher diabetes-related family conflict and lower adolescent diabetes self-management behaviors were associated with significantly higher caregiver DD.

Conclusions: Correlates of caregiver DD provide insight into potential risks and modifiable factors that may help clinicians develop interventions to target caregiver DD to improve outcomes in both caregivers and adolescents with T1D.

1型糖尿病青少年照顾者的糖尿病困扰
目的:糖尿病困扰(DD)是一种与糖尿病管理负担相关的负性情绪反应,主要在2型糖尿病成人和1型糖尿病青年(T1D)中进行了研究,但对T1D青年护理者的DD了解较少。方法:将青少年T1D患者的护理人员(n = 198, Mage = 45.6±7.3,84%为女性,66%为非西班牙裔白人)纳入一项旨在治疗青少年DD的双中心随机临床试验。目前的研究是对基线数据的二次分析,以检查护理人员中与DD相关的因素。照顾者完成了DD、糖尿病相关家庭冲突和青少年糖尿病自我管理行为的测量。护理人员还报告了人口统计因素,并从青少年的医疗记录中提取了临床数据。结果:女性照护者、低龄青少年照护者、家庭收入较低的照护者、主观社会地位较低的照护者和单身/无伴侣照护者的照护者DD显著较高。此外,在调整人口统计学因素后,较高的糖尿病相关家庭冲突和较低的青少年糖尿病自我管理行为与较高的照护者DD显著相关。照顾者DD的相关因素提供了对潜在风险和可改变因素的洞察,这可能有助于临床医生制定针对照顾者DD的干预措施,以改善照顾者和患有T1D的青少年的结局。
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来源期刊
Journal of Pediatric Psychology
Journal of Pediatric Psychology PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
6.00
自引率
11.10%
发文量
89
期刊介绍: The Journal of Pediatric Psychology is the official journal of the Society of Pediatric Psychology, Division 54 of the American Psychological Association. The Journal of Pediatric Psychology publishes articles related to theory, research, and professional practice in pediatric psychology. Pediatric psychology is an integrated field of science and practice in which the principles of psychology are applied within the context of pediatric health. The field aims to promote the health and development of children, adolescents, and their families through use of evidence-based methods.
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