Journal of Pediatric Psychology最新文献

{"title":"The daily phone diary in adolescents and young adults with spina bifida: utility and psychometric evidence.","authors":"Grayson N Holmbeck, Olivia Clark, Taylor Hilderbrand, Tessa Kritikos, Alexandra M Psihogios, Monique Ridosh, Colleen Stiles-Shields","doi":"10.1093/jpepsy/jsaf043","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf043","url":null,"abstract":"<p><strong>Objective: </strong>This study provided descriptive, psychometric, and correlational data on activity involvement, including engagement with and adherence to medical care activities, using the daily phone diary (DPD) methodology within the context of an ongoing longitudinal study of adolescents and young adults (AYAs) with spina bifida (SB).</p><p><strong>Methods: </strong>As part of a longitudinal study, AYAs with SB aged 16-24 at Time 5 (n = 68) and aged 19-26 at Time 6 (n = 75) completed a DPD across 3 days, along with measures of demographics, condition severity, and medically related psychosocial constructs.</p><p><strong>Results: </strong>Findings revealed that AYAs spent roughly two-thirds of their time either sleeping or engaged in recreational activities in their homes. They were more likely to spend time at home (with 50% of this time engaged in less active activities such as TV watching) and less time engaged in school and work activities than has been found in AYAs with other chronic medical conditions. Participants were also more likely to report low rates of catheterization, suggesting adherence challenges. The DPD method showed satisfactory stability over time. DPD data on medical care activities demonstrated adequate convergent validity as well as correlations with lesion level and measures of medical responsibility and medical skill mastery.</p><p><strong>Conclusions: </strong>This study supports the use of the DPD method to assess engagement with and adherence to medical care activities in AYAs with SB. It also provides an assessment of engagement in other activities, such as in-home recreation and out-of-home school- and work-related activities.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-07-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144612342","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Systematic review of culturally targeted behavioral and psychosocial interventions among children from racially and ethnically minoritized backgrounds with chronic health conditions in the United States.","authors":"Samantha A Carreon, Caryn R R Rodgers, Aurelia Minuti, Ana M Gutierrez-Colina, Marissa N Baudino, LaTerrica Williams, Ashley M Butler","doi":"10.1093/jpepsy/jsaf035","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf035","url":null,"abstract":"<p><strong>Objective: </strong>Few reviews have evaluated culturally targeted interventions for youth who have chronic health conditions. This systematic review aimed to describe health, psychosocial, behavioral, and sociocultural outcomes of culturally targeted interventions among children from racially and ethnically minoritized backgrounds who have a chronic condition in the United States.</p><p><strong>Methods: </strong>A systematic literature review was conducted (January 1, 2013 through July 1, 2023). We reviewed randomized and non-randomized controlled clinical trials investigating culturally targeted, psychologist-involved interventions among children (ages 0-18 years) from racially/ethnically minoritized backgrounds in the United States with obesity, asthma, diabetes, sickle cell disease, cancer, cystic fibrosis, epilepsy, lupus, arthritis, and human immunodeficiency virus. Studies were included that compared culturally targeted interventions to non-targeted interventions or no intervention. Searches were conducted in PubMed, Embase, Central, and PsycINFO. Covidence was used for data screening, assessment, and extraction. Risk of bias was assessed with the Cochrane risk of bias version 2 tool. Extracted outcome variables included child health and healthcare utilization, and child and parent psychosocial, behavioral, and sociocultural outcomes.</p><p><strong>Results: </strong>The review included one study evaluating the effectiveness of the Physician Asthma Care Education (PACE) intervention compared to PACE Plus, a culturally enhanced version, among African American and Latino youth with asthma. Participants included 112 primary care providers and 867 pediatric patients.</p><p><strong>Conclusions: </strong>Health, psychosocial/behavioral, and sociocultural outcomes of culturally targeted interventions for racially and ethnically minoritized youth with chronic health conditions in the United States are unknown. Future research should prioritize the development and evaluation of culturally targeted interventions for these populations.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-07-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144609993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Commentary: Moving from research to clinical support for caregivers of children with cleft lip and/or palate.","authors":"Frances P R Cooke, Christina M Sharkey","doi":"10.1093/jpepsy/jsaf046","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf046","url":null,"abstract":"","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144592635","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Commentary: psychosocial features of pediatric long COVID and the challenges of considering temporal and environmental context during a pandemic.","authors":"Melanie C Willis, David J Hansen","doi":"10.1093/jpepsy/jsaf052","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf052","url":null,"abstract":"","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-07-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144567938","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Mood and sleep in young adults with type 1 diabetes.","authors":"Samantha A Carreon, Marissa N Baudino, Charles G Minard, Sarah K Lyons, Randi Streisand, Barbara J Anderson, Siripoom V McKay, Tricia S Tang, Sara Nowakowski, Ashley M Butler, Sridevi Devaraj, Marisa E Hilliard","doi":"10.1093/jpepsy/jsaf038","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf038","url":null,"abstract":"<p><strong>Objective: </strong>Depression is associated with sleep problems, and both are associated with higher HbA1c in people with type 1 diabetes (T1D). However, little is known about depressed mood and sleep in young adults with T1D. The aims of this secondary analysis were to provide descriptive statistics of multiple aspects of mood and sleep in young adults with T1D and evaluate associations of depressed mood, diabetes distress, and sleep quality and duration.</p><p><strong>Methods: </strong>At baseline of a behavioral intervention trial, young adults with T1D completed self-report measures of sleep, diabetes distress, and depressive symptoms. We described sleep metrics across racial/ethnic groups and conducted hierarchical regression models to evaluate associations of depressive symptoms and diabetes distress with sleep quality and duration, adjusting for demographic and clinical factors.</p><p><strong>Results: </strong>Participants (n = 100) were 58% female, 12% Black/African American, 25% Hispanic/Latine, 54% non-Hispanic White, 9% multiple or another race/ethnicity, and 34% had public or no insurance. Mean HbA1c was 8.8 ± 2.0%. Approximately one-fifth of participants reported elevated depressive symptoms (19%) or high diabetes distress (20%), 27% reported poor sleep quality, and 28% reported <7 hr of sleep per night. Both regression models were significant, with diabetes distress but not depressive symptoms significantly associated with sleep quality (β = .38, p = .003) and duration (β = .32, p = .016) after controlling for other variables.</p><p><strong>Conclusions: </strong>As diabetes-specific mood may be particularly relevant for sleep among young adults with T1D, routine screening and behavioral support for sleep health and diabetes distress may be warranted.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-07-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144555396","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A pragmatic guide to data integration for pediatric researchers: the nuts and bolts of mixed methods analysis.","authors":"Kathleen A Knafl, Janet A Deatrick, Veronica M Swallow, Yelena P Wu, Debbe Thompson","doi":"10.1093/jpepsy/jsaf050","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf050","url":null,"abstract":"<p><strong>Objective: </strong>To provide pragmatic guidance on data analysis, integration, and reporting guidance for investigators new to mixed methods research.</p><p><strong>Methods: </strong>Three core mixed methods designs (convergent, explanatory sequential, and exploratory sequential) are described. Key decision points related to data integration-specifying intent, data selection, data preparation, integration strategies, use of analysis software, reporting-are explained, including comparison of decision points across the different mixed methods designs.</p><p><strong>Results: </strong>Recommendations for addressing key decisions during analysis are provided and supported with published examples from mixed methods studies focused on pediatric populations.</p><p><strong>Conclusions: </strong>Integration of qualitative and quantitative data is the defining characteristic of mixed methods research but can be challenging to fully achieve and adequately report. Decision-making about the aims of the mixed methods analysis and how they will be achieved should begin early in the research process through collaboration among team members' with expertise and experience in qualitative, quantitative, and mixed methods studies. A variety of approaches to data integration and write-up of the integrated results can be taken and are reviewed in the current manuscript.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-06-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144530476","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Anxiety in children and adolescents with chronic physical health conditions: an updated meta-analysis.","authors":"Martin Pinquart, Alexander Thorwarth","doi":"10.1093/jpepsy/jsaf048","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf048","url":null,"abstract":"<p><strong>Objective: </strong>The present meta-analysis aimed to test whether young people with chronic physical health conditions (CPHC) show elevated anxiety levels.</p><p><strong>Methods: </strong>Studies were included if they (a) compared levels of anxiety symptoms or the prevalence of anxiety disorders between young people with CPHC and their peers without such conditions or test norms, or they provided sufficient information for comparison with test norms or a control group from that country with a similar mean age, (b) assessed children or adolescents (≤18 years), and (c) were published or made available by September 2024. Risk for bias was evaluated using the Mixed Methods Appraisal Tool. A systematic search in the electronic databases, PsycInfo, MEDLINE, Google Scholar, and PSYNDEX, and cross-referencing identified 1,251 papers for inclusion in the multi-level meta-analysis.</p><p><strong>Results: </strong>On average, children with CPHC had higher anxiety symptoms compared to controls (g = 0.31), with the highest effect sizes observed in young people with thalassemia (g = 0.80), chronic headache (g = 0.60), chronic fatigue syndrome (g = 0.54), and hearing impairment (g = 0.51). Higher between-group differences were observed in observer-ratings compared to self-ratings, in studies comparing participants with peers rather than test norms, in samples with higher proportions of female participants and ethnic minorities, and in studies from developing countries. Results also varied depending on which anxiety measure was used and certain indicators of study quality.</p><p><strong>Conclusions: </strong>Efforts are needed to screen young people with CPHC for anxiety symptoms and implement measures to prevent or reduce elevated symptoms.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-06-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144512619","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Gritting through it: caregiver grit as a source of resilience in families affected by pediatric cancer.","authors":"Christina M Sharkey, Rachel S Fisher, J Carrick Carter, Rene McNall-Knapp, Sunnye Mayes, Katherine A Traino, Larry L Mullins","doi":"10.1093/jpepsy/jsaf047","DOIUrl":"https://doi.org/10.1093/jpepsy/jsaf047","url":null,"abstract":"<p><strong>Objective: </strong>Children treated for cancer and their caregivers exhibit considerable resilience, yet a subset are at risk for adjustment difficulties. Limited research has utilized a resilience-based theoretical framework, conceptualized as the process of harnessing resources. Grit, defined as perseverance and passion toward long-term goals, is one internal resource to consider. The present study investigates the role of caregiver grit in caregiver and child psychological adjustment following a pediatric cancer diagnosis.</p><p><strong>Methods: </strong>Participants were caregivers of children within 1 year of a cancer diagnosis (meandays = 105.9, SD = 75.04). Parents provided self-reports of grit and posttraumatic stress symptoms and proxy-reports of their child's behavioral and emotional symptoms.</p><p><strong>Results: </strong>On average, caregivers (N = 107, 89.6% female, 73.4% White, 42.6% college or higher degree) reported a grit score of 3.40 (SD = 0.67), comparable to the general population. A subset of participants (46.7% of caregivers and 21.5% of children) had psychosocial symptoms above clinical cut-offs. Higher caregiver grit was associated with lower caregiver posttraumatic stress symptoms (F(1,79) = 13.77, p < .001, R2 = 14.8%) and lower child psychological difficulties, F(1,70) = 18.78, p < .001, R2 = 21.2%. Caregiver posttraumatic stress symptoms mediated the relationship between caregiver grit and child psychological difficulties (β = -0.23, 95%BC [-0.47, -0.04]).</p><p><strong>Conclusion: </strong>Among families affected by pediatric cancer, higher levels of caregiver grit were associated with lower caregiver posttraumatic stress symptoms, and in turn, lower child psychological difficulties. Results suggest that grit is a potential target for promoting both caregiver and child resilience in pediatric cancer services. Longitudinal research should examine how caregivers harness grit, as a possible component of resilience, throughout the cancer treatment and survivorship trajectory.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2025-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144310615","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effectiveness of a group intervention to improve mental health in siblings of children with chronic disorders: a cluster randomized controlled trial.","authors":"Solveig M Kirchhofer, Trude Fredriksen, Stian Orm, Matteo Botta, Erica Zahl, Hugo Cogo-Moreira, Caitlin M Prentice, Torun M Vatne, Yngvild B Haukeland, Wendy K Silverman, Krister W Fjermestad","doi":"10.1093/jpepsy/jsaf021","DOIUrl":"10.1093/jpepsy/jsaf021","url":null,"abstract":"<p><strong>Objective: </strong>We evaluated the effectiveness of SIBS, a preventive intervention for siblings and parents of children with chronic disorders (CDs).</p><p><strong>Methods: </strong>This two-arm, unmasked cluster randomized controlled trial registered on ClinicalTrials.gov (NCT04056884), included 288 siblings (M age = 10.4 years, SD = 1.9) and parents of children with CDs (mainly neurodevelopmental disorders) randomly assigned to intervention (k = 34, n = 137) or waitlist control (k = 35, n = 151) groups. Eligible siblings were aged 8-16 years and had a sibling diagnosed with a CD. SIBS is manual-based and was delivered as five sessions over 2 weeks in primary care and hospital settings across Norway. Three sessions are separate for siblings and parents, and two are integrated sibling-parent dialogues. The primary outcome was sibling mental health, rated by siblings, parents, and teachers. The secondary outcome was parent-child communication, rated by siblings and parents. Analyses included intention-to-treat (ITT) and complier average causal effects (CACE).</p><p><strong>Results: </strong>Although not statistically significant, at 3-month follow-up, the intervention group showed fewer mental health problems (ITT: sibling-rated d = -0.16, 95% CI [-0.49, 0.17]; parent-rated d = -0.10, 95% CI [-0.48, 0.12]; teacher-rated d = -0.18, 95% CI [-0.50, 0.29]) and higher-quality parent-child communication (ITT: sibling-rated d = 0.21, 95% CI [-0.10, 0.52]; parent-rated d = 0.24, 95% CI [-0.07, 0.55]) compared to waitlist.</p><p><strong>Conclusions: </strong>The SIBS intervention demonstrated small, consistent positive effects on sibling mental health and parent-child communication. This suggests SIBS is a promising preventive program for siblings of children with CDs.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"443-453"},"PeriodicalIF":2.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12206298/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143721984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The importance of friendship: influence of peer relationships on physical and mental health in youth with spina bifida.","authors":"Madeleine C Suhs, Breana L Bryant, Taylor L Hilderbrand, Grayson N Holmbeck","doi":"10.1093/jpepsy/jsaf020","DOIUrl":"10.1093/jpepsy/jsaf020","url":null,"abstract":"<p><strong>Objective: </strong>To evaluate associations between peer relationship factors (i.e., quality and quantity) and mental and physical health outcomes in youth with spina bifida (SB).</p><p><strong>Methods: </strong>One hundred and forty youth with SB (Mage = 11.43; 53.6% female) were recruited as part of a larger longitudinal study. Families of youth with SB were invited to ask the child's closest friend to participate. The study included questionnaire (youth- and parent-report) and observational peer interaction data.</p><p><strong>Results: </strong>Observational peer interaction data were associated with mental and physical health in youth with SB. The number of friends was negatively associated with withdrawn/depressed behavior. Self-reported friendship quality and peer emotional support were not associated with physical health outcomes in youth with SB. However, peer emotional support was positively associated with emotional quality of life.</p><p><strong>Conclusions: </strong>Friendship quality, particularly observed peer interaction characteristics, was associated with better mental and physical health adjustment. The quantity of friendships was not associated with physical health outcomes but was associated with mental health outcomes. Findings have implications for clinical interventions geared toward improving social functioning in youth with SB.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"479-487"},"PeriodicalIF":2.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12206297/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143626538","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}