Journal of Pediatric Psychology最新文献_第10页

The PedsQL Family Impact Module for Assessment of Foster and Kinship Caregiver Functioning in Pediatric Primary Care. 儿童初级保健中寄养和亲属照顾者功能评估的PedsQL家庭影响模块。

IF 2.1 3区心理学

Journal of Pediatric Psychology Pub Date : 2026-03-01 DOI: 10.1093/jpepsy/jsaf098

Maegan L Calvert, Lindsey A Thomas, Heidi M Kloster, Takakuni Suzuki, Jill McLeigh

{"title":"The PedsQL Family Impact Module for Assessment of Foster and Kinship Caregiver Functioning in Pediatric Primary Care.","authors":"Maegan L Calvert, Lindsey A Thomas, Heidi M Kloster, Takakuni Suzuki, Jill McLeigh","doi":"10.1093/jpepsy/jsaf098","DOIUrl":"10.1093/jpepsy/jsaf098","url":null,"abstract":"Objective: Caregivers of children in child welfare encounter many unique challenges, increasing their potential risk for caregiver stress. To support children and their caregivers, providers must accurately assess caregiver stress before they can deliver a brief intervention or make an appropriate referral. The current study utilized the PedsQL Family Impact Module to assess foster and kinship caregiver's well-being. Method: This study assessed the construct validity of PedsQL FIM through confirmatory factor analysis, mean differences between medically complex and noncomplex children, and its correlation with child behavior problems in caregivers of children in child welfare.Results: Caregivers reported above-average well-being. The factor structure of PedsQL FIM did not fit the data well, and no differences in well-being were found between caregivers of medically complex and noncomplex children. Small correlations (r = 0.14-0.26) were found between caregiver well-being and child externalizing problems.Conclusions: Although the PedsQL FIM has demonstrated reliability and validity within other special populations, the use of the PedsQL FIM to assess well-being of caregivers of children in child welfare needs further exploration to ensure its validity with these caregivers.","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"302-316"},"PeriodicalIF":2.1,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13017387/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145844341","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Where you are matters: Daily health-related quality of life in parents of children with special healthcare needs. 你在哪里很重要：有特殊保健需要的儿童的父母的日常健康相关生活质量。

IF 2.1 3区心理学

Journal of Pediatric Psychology Pub Date : 2026-03-01 DOI: 10.1093/jpepsy/jsaf036

Lyndsey N Graham, Shevaun D Neupert

{"title":"Where you are matters: Daily health-related quality of life in parents of children with special healthcare needs.","authors":"Lyndsey N Graham, Shevaun D Neupert","doi":"10.1093/jpepsy/jsaf036","DOIUrl":"10.1093/jpepsy/jsaf036","url":null,"abstract":"Objective: Parents of children with special healthcare needs (CSHCNs) tend to report low health-related quality of life (HRQoL) in general, however, little is known about parents' day-to-day experiences particularly while their child is in the hospital. Hospital experiences are especially important for families of CSHCN, who are known to spend a considerable amount of time at the hospital. The goals of this study were to examine how daily HRQoL fluctuates in parent caregivers, and to further examine the role of context (hospital vs. home) in daily HRQoL.Method: One hundred parents of CSHCN (18-69 years, M = 38.12, SD = 8.64) were recruited to participate in the TRIUMPH study (To Research, Illuminate, and Understand Medical Parent Health) from inpatient pediatric units at one children's hospital. For 14 consecutive days, participants received email prompts to complete online survey measures reporting on their daily HRQoL.Results: Multilevel models indicated that daily HRQoL fluctuated significantly at both between- and within-person levels. Further, daily HRQoL was significantly lower and had significantly more within-person variability on hospital days as compared to home days.Conclusions: Our results indicated that parents' HRQoL is both poorer and more volatile within the hospital environment. Our results call attention to the need to assess intraindividual variability in parents of CSHCN, as it is clear that parent caregivers are a nuanced population with contextually relevant support needs.","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"206-211"},"PeriodicalIF":2.1,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144143977","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Bouncing Back Better: development of a family intervention program after young child burn injury. 恢复得更好：幼儿烧伤后家庭干预计划的发展。

IF 2.1 3区心理学

Journal of Pediatric Psychology Pub Date : 2026-03-01 DOI: 10.1093/jpepsy/jsaf027

Nakisa Asefnia, Aaron Mun, Carrie Tully

{"title":"Bouncing Back Better: development of a family intervention program after young child burn injury.","authors":"Nakisa Asefnia, Aaron Mun, Carrie Tully","doi":"10.1093/jpepsy/jsaf027","DOIUrl":"10.1093/jpepsy/jsaf027","url":null,"abstract":"Objective: Burn injuries are a common form of unintentional childhood injury. The psychological sequelae of pediatric burn injury on the injured child and caregivers can be significant, including traumatic stress, anxiety, and depression. Factors such as parent capacity for monitoring and child ADHD (attention-deficit/hyperactivity disorder) symptoms can significantly increase the risk of injury in early childhood. A dual-foci intervention was created to improve family functioning and coping after a burn injury. The current proof-of-concept study examines the Bouncing Back Better (BBB) intervention, which targets parent mood and child externalizing behaviors after unintentional burn injury.Methods: BBB intervention was completed by 10 parent-child dyads (12 enrolled). Inclusion comprised children (2-5 years) who sustained an unintentional burn injury and demonstrated hyperactivity symptoms upon standard clinical care psychosocial screening. BBB included four (30-45 min) sessions that involve CBT-focused behavioral intervention skills. Feasibility was assessed through recruitment, enrollment, and retention rates. Acceptability was assessed through satisfaction questionnaires and qualitative interviews. Proof-of-concept was demonstrated through analyses of findings from validated measures of depression, distress, and ADHD symptoms.Results: Findings support acceptability and feasibility of the intervention and provide evidence of a successful proof-of-concept by demonstrating significant decreases in reported parental depression symptoms and improvements in child inattentive and hyperactive behaviors.Conclusions: An intervention focused on both caregiver well-being and child behaviors improves overall family functioning. Future research aims to expand the BBB intervention to a larger sample and examine initial efficacy through pilot testing using a randomized design and a larger team of treatment providers.","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"179-190"},"PeriodicalIF":2.1,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144162943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A scoping review of caregiver burden in caregivers of children with multiple conditions. 对患有多种疾病的儿童的照顾者负担的范围审查。

IF 2.1 3区心理学

Journal of Pediatric Psychology Pub Date : 2026-03-01 DOI: 10.1093/jpepsy/jsaf086

Johanna R Michlig, Astrīda S Kaugars

{"title":"A scoping review of caregiver burden in caregivers of children with multiple conditions.","authors":"Johanna R Michlig, Astrīda S Kaugars","doi":"10.1093/jpepsy/jsaf086","DOIUrl":"10.1093/jpepsy/jsaf086","url":null,"abstract":"Objective: Increasing numbers of caregivers in the United States face challenges caring for children with special health care needs. Research has identified unique challenges for caregivers, including limited resources and mental health issues. Caregiver burden involves various strains from the ongoing care of a loved one. This scoping review explored the emotional, financial, physical, and social dimensions of burden among caregivers of children with multiple conditions. It also examined study characteristics, measurement tools, and associations among constructs.Method: A scoping review followed PRISMA-ScR guidelines using PubMed and PsycINFO for literature searches focused on caregiver burden and experiences.Results: Eighteen studies met inclusion criteria with three categories emerging: studies on children with medical complexity (n = 3), varied pediatric conditions (n = 7), and specific conditions (n = 8). Significant associations between caregiver burden and the number of co-occurring conditions were noted overall, as well as differences in burden for caregivers of children with and without co-occurring conditions.Conclusions: This review discusses the general findings, strengths, and limitations of the existing body of research. Future research should aim for more diverse samples and assess caregiver burden longitudinally. Pediatric psychologists should work to assess and reduce caregiver burden in families, especially for caregivers whose children have multiple diagnoses.","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"269-280"},"PeriodicalIF":2.1,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145379269","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Visible Difference Parenting Toolkit: development of an ACT-based intervention to improve the well-being of parents and caregivers of children with appearance-affecting conditions and injuries. 可见差异育儿工具包：开发基于act的干预措施，以改善患有外貌影响疾病和受伤儿童的父母和照顾者的福祉。

IF 2.4 3区心理学

Journal of Pediatric Psychology Pub Date : 2026-03-01 DOI: 10.1093/jpepsy/jsaf054

Maia Thornton, Heidi Williamson, Toity Deave, James Kiff, Diana Harcourt

{"title":"The Visible Difference Parenting Toolkit: development of an ACT-based intervention to improve the well-being of parents and caregivers of children with appearance-affecting conditions and injuries.","authors":"Maia Thornton, Heidi Williamson, Toity Deave, James Kiff, Diana Harcourt","doi":"10.1093/jpepsy/jsaf054","DOIUrl":"10.1093/jpepsy/jsaf054","url":null,"abstract":"Objectives: Caregivers of children with appearance-affecting conditions or injuries can experience common psychosocial challenges, regardless of the cause or nature of their child's visible difference. Despite these common challenges, there is a lack of evidence-based cross-condition support for caregivers of children with visible differences.Methods: A self-guided acceptance and commitment therapy-based e-book intervention was developed utilizing a Participatory Action Research approach. Twenty-two caregivers of children with a range of visible differences reviewed the full pilot e-book intervention and responded to an online acceptability survey.Results: While several changes aimed at increasing the accessibility of the intervention materials were discussed, overall the feedback suggested that The Visible Difference Parenting Toolkit addressed an unmet support need. Both the content and the format of the intervention were found to be acceptable by parents, with ehealth Impact Questionnaire scores of >80. Participants recommended specific changes related to accessibility including adding features such as hyperlinks and a search bar to enable users to navigate the e-book.Conclusions: Caregivers reported that the content of The Visible Difference Parenting Toolkit was relevant to their lived experiences of caring for a child with a visible difference. Parents also reported that the presentation and format of The Visible Difference Parenting Toolkit was clear and accessible. The intervention addresses a previously unmet support need and is an acceptable intervention for caregivers of children with a visible difference.","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"229-238"},"PeriodicalIF":2.4,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13016643/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144650949","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Who gets to decide what's important? 谁来决定什么是重要的？

IF 2.1 3区心理学

Journal of Pediatric Psychology Pub Date : 2026-03-01 DOI: 10.1093/jpepsy/jsag004

Blyth T Lord

引用次数: 0

Adolescents with diet-dependent chronic illness: motivation for healthy eating and well-being. 患有饮食依赖型慢性病的青少年：健康饮食和幸福的动机。

IF 2.1 3区心理学

Journal of Pediatric Psychology Pub Date : 2026-02-01 DOI: 10.1093/jpepsy/jsaf080

Lika Hatzir, Rivka Tuval-Mashiach, Orit Pinhas-Hamiel, Mona Kidon, Tamar Silberg

{"title":"Adolescents with diet-dependent chronic illness: motivation for healthy eating and well-being.","authors":"Lika Hatzir, Rivka Tuval-Mashiach, Orit Pinhas-Hamiel, Mona Kidon, Tamar Silberg","doi":"10.1093/jpepsy/jsaf080","DOIUrl":"10.1093/jpepsy/jsaf080","url":null,"abstract":"Objective: Type 1 diabetes (T1D) and life-threatening food allergies (FAs) are two diet-dependent chronic illnesses (DDCIs) that require rigorous self-management centered on strict dietary monitoring. Grounded in self-determination theory, this study aimed to investigate differences in motivation for healthy eating and well-being among adolescents coping with DDCI, compared to individuals without DDCI. Additionally, it explored the mediating role of general health practices in the relationship between motivation for healthy eating and well-being.Methods: A total of N = 116 adolescents, aged 10-18 years (T1D: N = 36, M±SD age = 15.28 ± 1.85; FA: N = 39, M±SD age = 13.31 ± 2.40; no-DDCI: N = 41, M±SD = 14.71 ± 1.76), completed questionnaires assessing motivation for healthy eating, general health practices, and well-being.Results: Internal motivation for healthy eating was positively associated with general health practices in all 3 groups. A moderated-mediation model revealed that among adolescents with DDCI, internal motivation for healthy eating was positively associated with psychological well-being. Internal motivation was also positively associated with physical well-being, but only among adolescents with FA. Conversely, only among adolescents with T1D, external motivation for healthy eating was negatively associated with psychological and physical well-being. Lack of motivation for healthy eating was negatively associated with general health practices among adolescents with T1D and individuals without DDCI.Conclusions: Adolescents with DDCI face challenges in adhering to healthy eating recommendations and translating knowledge into action. Targeted interventions are necessary to enhance internal and autonomously driven motivation for dietary changes. Personalized nutrition programs for adolescents living with DDCI may effectively promote self-management and overall well-being in this population.","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"85-95"},"PeriodicalIF":2.1,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145151532","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The relation between sleep and pain sensitization in pediatric sickle cell disease. 儿童镰状细胞病患者睡眠与疼痛致敏的关系

IF 2.4 3区心理学

Journal of Pediatric Psychology Pub Date : 2026-02-01 DOI: 10.1093/jpepsy/jsaf102

Parker A Kell, Matthew C Morris, Zachary C Wilde, Andrea P Golden, Harrison Dickens, Wynette Williams-Kirkwood, Hannah A Ford, Cynthia W Karlson

{"title":"The relation between sleep and pain sensitization in pediatric sickle cell disease.","authors":"Parker A Kell, Matthew C Morris, Zachary C Wilde, Andrea P Golden, Harrison Dickens, Wynette Williams-Kirkwood, Hannah A Ford, Cynthia W Karlson","doi":"10.1093/jpepsy/jsaf102","DOIUrl":"10.1093/jpepsy/jsaf102","url":null,"abstract":"Objective: Sickle cell disease (SCD) is an inherited blood disorder characterized by acute pain crises and heightened chronic pain prevalence. Approximately 30%-40% of pediatric patients with SCD have chronic pain, contributing to poorer psychosocial outcomes. Central sensitization (central nervous system hyperexcitability) may heighten chronic SCD pain, yet few investigations have examined factors related to central sensitization in pediatric SCD. Sleep has been identified as a modifiable factor that may influence central sensitization and contribute to pain outcomes in both chronic pain-free and clinical populations.Methods: Our study examined the role of sleep in relation to central sensitization in 55 participants (26 girls: mean age = 16.43 years) with severe SCD genotypes (hemoglobin Type SS n = 54, Type S beta-zero thalassemia n = 1). Mean-level and within-person variability sleep indices were measured at home over 7 days using wrist actigraphy and daily sleep diaries. To measure central sensitization, participants completed one session of quantitative sensory testing. Conditioned pain modulation (CPM) (n = 34) assessed endogenous pain inhibition, and temporal summation (n = 39) assessed pain facilitation. Multilevel models assessed pain ratings for each task.Results: When controlling for age, sex assigned at birth, and task unpleasantness, lower actigraphy-derived sleep efficiency was associated with worse pain inhibition during CPM. Sleep was unrelated to pain facilitation during temporal summation.Conclusions: Findings provide further evidence linking poor sleep to increased pain via impaired pain inhibition but may be best captured using objective sleep measures in pediatric SCD. Interventions aimed at improving sleep efficiency may have downstream effects on clinical pain in this population.","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"134-143"},"PeriodicalIF":2.4,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13396786/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145566037","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Commentary: rethinking nutrition motivation for adolescents with diet-dependent chronic illness. 评论：重新思考青少年饮食依赖性慢性疾病的营养动机。

IF 2.1 3区心理学

Journal of Pediatric Psychology Pub Date : 2026-02-01 DOI: 10.1093/jpepsy/jsaf105

Anne E Chuning, Ann M Davis

引用次数: 0

Associations between actigraphic and self-reported sleep and mental health in adolescents and young adults with cystic fibrosis. 在患有囊性纤维化的青少年和年轻成人中，活动图和自我报告的睡眠与心理健康之间的关系

IF 2.4 3区心理学

Journal of Pediatric Psychology Pub Date : 2026-02-01 DOI: 10.1093/jpepsy/jsaf103

Jordana McMurray, Kimberley Widger, Anne L Stephenson, Robyn Stremler

{"title":"Associations between actigraphic and self-reported sleep and mental health in adolescents and young adults with cystic fibrosis.","authors":"Jordana McMurray, Kimberley Widger, Anne L Stephenson, Robyn Stremler","doi":"10.1093/jpepsy/jsaf103","DOIUrl":"10.1093/jpepsy/jsaf103","url":null,"abstract":"Objective: To compare sleep and mental health outcomes in adolescents and young adults (AYA) with cystic fibrosis (CF) and healthy controls and to explore associations between sleep and mental health in CF.Methods: In this cross-sectional study AYA with CF and healthy AYA aged 14-25 years completed 7 days/nights of actigraphy, the Pittsburgh Sleep Quality Index, PROMIS-Sleep Disturbance scale, PROMIS-Sleep-Related Impairment scale, State Trait Anxiety Inventory, and Center for Epidemiologic Studies Depression scale. For participants with CF, disease characteristics were collected from the Canadian Cystic Fibrosis Registry. Linear regression models were used to determine differences between groups and to examine associations between sleep and mental health outcomes.Results: Eighty-six participants, 45 with CF (median age = 19 years, IQR = 6 years, 51.1% female, 82.2% on elexacaftor/tezacaftor/ivacaftor, ETI) and 41 healthy comparator participants (median age = 16 years, IQR = 4 years, 53.7% female) participated. No significant differences were found between groups in actigraphically measured sleep, self-reported sleep, or anxiety or depression symptoms. In participants with CF, poorer self-reported sleep quality was significantly associated with greater anxiety (p < .001) and depression symptoms (p < .001), but actigraphically measured sleep was not.Conclusions: AYA with CF had comparable sleep, anxiety, and depression outcomes as their healthy peers. Only self-reported sleep had a significant relationship with mental health symptoms. These findings stress the importance of concurrent assessment of sleep and mental health in the clinical setting and may inform future longitudinal research. Better understanding relationships between sleep and mental health in AYA with CF could have a significant impact on well-being and quality of life.","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"144-154"},"PeriodicalIF":2.4,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13016971/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145530851","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0