Journal of Pediatric Psychology最新文献

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Exploratory factor analysis of the Illness Intrusiveness Rating Scale for parents of children with atypical genital appearance due to differences of sex development (DSD) 对因性别发育差异(DSD)而导致生殖器外观不典型的儿童的家长进行疾病侵扰性评分量表的探索性因子分析
IF 3.6 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-04-05 DOI: 10.1093/jpepsy/jsae027
Alexandra M DeLone, Rachel S Fisher, Katherine A Traino, Nathan L Basile, Cindy L Buchanan, Earl Y Cheng, Dix P Poppas, Amanda N Baraldi, Amy B Wisniewski, Larry L Mullins
{"title":"Exploratory factor analysis of the Illness Intrusiveness Rating Scale for parents of children with atypical genital appearance due to differences of sex development (DSD)","authors":"Alexandra M DeLone, Rachel S Fisher, Katherine A Traino, Nathan L Basile, Cindy L Buchanan, Earl Y Cheng, Dix P Poppas, Amanda N Baraldi, Amy B Wisniewski, Larry L Mullins","doi":"10.1093/jpepsy/jsae027","DOIUrl":"https://doi.org/10.1093/jpepsy/jsae027","url":null,"abstract":"Objective Illness intrusiveness refers to the subjective cognitive appraisal of a chronic health condition interfering in daily, valued activities and may be highly relevant for parents of children with atypical genital appearance due to differences of sex development (DSD). However, a measure of illness intrusiveness has not been validated for this population. The current study aimed to evaluate the factor structure of the Illness Intrusiveness Scale for Parents (IIS-P) and examine convergent validity. Methods Participants included 102 parents (Mage = 33.39 years, SD = 6.48; 58% mothers) of 65 children (<2 years old) diagnosed with DSD participating in a larger, longitudinal study. Parents completed the IIS-P as well as self-report measures of stigma, and anxious and depressive symptoms. An exploratory factor analysis (EFA) was conducted. Results EFA results supported a 1-factor intrusiveness solution (α = .93), as well as a 2-factor solution measuring intrusiveness on daily living (α = .92) and community connectedness (α = .85). The 1-factor solution and both factors of the 2-factor solution demonstrated significant convergent validity with stigma as well as anxious and depressive symptoms. Conclusions Support emerged for both 1- and 2-factor solutions of the IIS-P in parents of children with DSD. The decision to evaluate illness intrusiveness as a total score or to examine the subscales of daily living and community connectedness should be tailored to the unique aims of researchers and clinicians. Future research should conduct a confirmatory factor analysis with both 1- and 2-factor models with larger, more diverse samples of caregivers.","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":"101 1","pages":""},"PeriodicalIF":3.6,"publicationDate":"2024-04-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140596771","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Returning to sport after injury: the influence of injury appraisals and post-traumatic stress symptoms on adolescent risk-taking intentions post-injury. 受伤后重返运动场:受伤评价和创伤后应激症状对青少年受伤后冒险意图的影响。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-03-20 DOI: 10.1093/jpepsy/jsae001
Mackenzie Seasons, Barbara A Morrongiello
{"title":"Returning to sport after injury: the influence of injury appraisals and post-traumatic stress symptoms on adolescent risk-taking intentions post-injury.","authors":"Mackenzie Seasons, Barbara A Morrongiello","doi":"10.1093/jpepsy/jsae001","DOIUrl":"10.1093/jpepsy/jsae001","url":null,"abstract":"<p><strong>Objective: </strong>How youth think about injury risk can affect their decisions about whether to engage in behaviors that can lead to injury. Appraisals also influence the development of post-traumatic stress symptoms (PTSS), which occur in approximately 20% of children after a medically treated injury. The current study examined how the injury appraisals of youth are associated with the development of PTSS post-skateboarding injury, and if PTSS or perceived benefits of the sport are also associated with youths' intentions to return to the sport.</p><p><strong>Method: </strong>One hundred three youth who had a medically treated skateboarding injury within the last year provided survey data on injury appraisals, PTSS, the benefits of skateboarding, and intentions to return to the sport.</p><p><strong>Results: </strong>A two-stage moderated statistical mediation path model was specified. In the first stage, there was a positive relationship between pain at injury and PTSS, which was attenuated by the moderator, perceived bad luck. PTSS fully mediated the association between perceived pain at the time of injury and intentions to return to skateboarding. In the second stage of the mediation model, the moderator perceived benefits of skateboarding, reversed the negative relationship between PTSS and intentions to return to skateboarding.</p><p><strong>Conclusions: </strong>Skateboarders are a group at risk for injury that can lead to PTSS, and they also are likely to return to the sport despite PTSS. This research identifies factors that impact the decision to return to skateboarding after injury. Limitations of the study and implications for mental health support and injury prevention are provided.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"175-184"},"PeriodicalIF":2.7,"publicationDate":"2024-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139571802","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Topical Review: Getting into the head of youth with chronic pain: how theory of mind deficits may relate to the development and maintenance of pediatric pain. 专题回顾:了解患有慢性疼痛的青少年的想法:心智理论缺陷如何可能与小儿疼痛的发展和维持有关。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-03-20 DOI: 10.1093/jpepsy/jsae009
Bridget A Nestor, Joe Kossowsky, Sarah M Nelson
{"title":"Topical Review: Getting into the head of youth with chronic pain: how theory of mind deficits may relate to the development and maintenance of pediatric pain.","authors":"Bridget A Nestor, Joe Kossowsky, Sarah M Nelson","doi":"10.1093/jpepsy/jsae009","DOIUrl":"10.1093/jpepsy/jsae009","url":null,"abstract":"<p><strong>Objective: </strong>Theory of mind (ToM) is the ability to understand the thoughts, feelings, and mental states of others and is critical for effective social and psychological functioning. ToM deficits have been associated with various psychological disorders and identified in adult pain populations. For youth with chronic pain, ToM deficits may underlie the biological, psychological, and social factors that contribute to their experience of pain, but this remains poorly understood.</p><p><strong>Methods: </strong>This topical review explored the extant literature in the areas of ToM and chronic pain, particularly for pediatric populations, with respect to biological, psychological, and social elements of the biopsychosocial model of pain.</p><p><strong>Results: </strong>ToM deficits may be present alongside previously identified biological, psychological, and social correlates of pediatric pain, as a vulnerability, mechanism, and/or consequence. Biologically, ToM deficits may relate to cortisol abnormalities and neurobiological substrates of pain processing. Psychologically, ToM deficits may stem from pain-focused cognitions, thus impacting relationships and fueling impairment. Socially, chronic pain may preclude normative development of ToM abilities through social withdrawal, thereby exacerbating the experience of pain.</p><p><strong>Conclusion: </strong>Taken together, ToM deficits may be associated with increased risk for the development and/or maintenance of pediatric chronic pain, and pediatric chronic pain may similarly confer risk for ToM deficits. Future research should investigate the nature of ToM abilities in youth with chronic pain to test these hypotheses and ultimately inform ToM-focused and pain-based interventions, as this ability has been demonstrated to be modifiable.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"224-230"},"PeriodicalIF":2.7,"publicationDate":"2024-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10954304/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139747563","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Race/Ethnicity Inequities in the Association Between Movement Behaviors and Suicidal Thoughts/Ideation Among Adolescents. 青少年运动行为与自杀念头/意念之间的种族/民族不平等。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-03-20 DOI: 10.1093/jpepsy/jsad085
Diego Augusto Santos Silva, Markus Joseph Duncan, Nicholas Kuzik, Mark S Tremblay
{"title":"Race/Ethnicity Inequities in the Association Between Movement Behaviors and Suicidal Thoughts/Ideation Among Adolescents.","authors":"Diego Augusto Santos Silva, Markus Joseph Duncan, Nicholas Kuzik, Mark S Tremblay","doi":"10.1093/jpepsy/jsad085","DOIUrl":"10.1093/jpepsy/jsad085","url":null,"abstract":"<p><strong>Objective: </strong>We aimed to analyze the associations between movement behaviors (physical activity, screen time, and sleep), independently and jointly, and suicidal thoughts/ideation among Brazilian adolescents according to race/ethnicity.</p><p><strong>Methods: </strong>This cross-sectional study surveyed 4,081 adolescents aged 15-19 years (49.9% females) across all Brazilian geographic regions. Data were collected using a self-administered questionnaire. Within the sample, 31.0% (n = 1,264) self-reported as White and 69.0% (n = 2,817) as Black. Adolescents who declared one or more times/week suicidal thoughts/ideation were considered as a risk group. Accruing moderate-to-vigorous physical activity during leisure time, reduced recreational screen time, and good sleep quality were the exposures investigated. We evaluated both additive and multiplicative interactions between race/ethnicity and movement behaviors. Binary logistic regression was used to estimate the odds ratio (OR), marginal means effects, and 95% confidence intervals (95% CIs).</p><p><strong>Results: </strong>Black adolescents who met 1 (OR: 0.34; [95% CI: 0.22-0.52]), 2 (OR: 0.17 [0.11-0.27]), or 3 (OR: 0.13 [0.07-0.26]), and White adolescents who met 1 (OR: 0.35 [0.21-0.57]), 2 (OR: 0.14 [0.08-0.26]), or 3 (OR: 0.11 [0.04-0.31]) of the movement behavior targets had lower odds of suicidal thoughts/ideation than Black adolescents who did not meet any of the movement behavior targets. Black adolescents who did not meet any of the movement behavior targets had higher suicidal thoughts/ideation odds than the other adolescent's groups.</p><p><strong>Conclusions: </strong>We identified an inverse association between meeting individuals and combinations of movement behavior targets with suicidal thoughts/ideation. Among Black adolescents who did not meet any targets, these associations were more evident.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"166-174"},"PeriodicalIF":2.7,"publicationDate":"2024-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136399811","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Do preinjury life events moderate the outcomes of mild traumatic brain injuries in children? An A-CAP Study. 受伤前的生活事件会减缓儿童轻度脑外伤的后果吗?A-CAP 研究。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-03-20 DOI: 10.1093/jpepsy/jsae007
Safira Dharsee, Ken Tang, Miriam H Beauchamp, William Craig, Quynh Doan, Stephen B Freedman, Jocelyn Gravel, Roger Zemek, Keith Owen Yeates
{"title":"Do preinjury life events moderate the outcomes of mild traumatic brain injuries in children? An A-CAP Study.","authors":"Safira Dharsee, Ken Tang, Miriam H Beauchamp, William Craig, Quynh Doan, Stephen B Freedman, Jocelyn Gravel, Roger Zemek, Keith Owen Yeates","doi":"10.1093/jpepsy/jsae007","DOIUrl":"10.1093/jpepsy/jsae007","url":null,"abstract":"<p><strong>Objective: </strong>To examine preinjury life events as moderators of postconcussive symptoms (PCS) and quality of life (QoL) in children with pediatric mild traumatic brain injury (mTBI) versus orthopedic injury (OI).</p><p><strong>Methods: </strong>Participants were 633 children with mTBI and 334 with OI, ages 8-16.99, recruited from 5 pediatric emergency departments and followed for 6 months postinjury as part of a prospective cohort study. Preinjury life events were measured retrospectively using the Child and Adolescent Survey of Experiences, PCS using the Health and Behavior Inventory (HBI) and Post-Concussion Symptom Interview (PCS-I), and QoL using the Pediatric Quality of Life Inventory (PedsQL). Analyses involved longitudinal regression using restricted cubic splines, with group, positive and negative life events, and time as primary predictors. Covariates included age, sex, race, socioeconomic status, preinjury history (i.e., headache, migraine, previous concussion), and parent-rated retrospective PCS-I, HBI, and PedsQL scores.</p><p><strong>Results: </strong>PCS and QoL were worse after mTBI than OI, but group differences declined with time (all p < .001). Group differences in PCS were larger at higher levels of positive life events, which predicted lower PCS (p= .03 to p < .001) and higher QoL (p = .048) after OI but not after mTBI. Negative life events predicted worse PCS and QoL in both groups (p = .002 to p < .001).</p><p><strong>Conclusions: </strong>Preinjury positive life events moderate outcomes after pediatric injury, with a protective effect seen in OI but not in mTBI. Negative life events are consistently associated with worse outcomes regardless of injury type.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"195-206"},"PeriodicalIF":2.7,"publicationDate":"2024-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140066071","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Latent Profiles of Sleep Disturbance and Impairment in Elementary School-Age Youth: Concurrent and Longitudinal Associations with Emotional, Behavioral, and Academic Functioning. 小学学龄青少年睡眠障碍和损害的潜在特征:与情绪、行为和学业功能的同步和纵向关联。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-03-20 DOI: 10.1093/jpepsy/jsad077
Tarrah B Mitchell, John L Cooley, Caroline Cummings, Gabriela Lelakowska, Laurel D Wolfe, Brianna T Ricker, Rebecca Farias
{"title":"Latent Profiles of Sleep Disturbance and Impairment in Elementary School-Age Youth: Concurrent and Longitudinal Associations with Emotional, Behavioral, and Academic Functioning.","authors":"Tarrah B Mitchell, John L Cooley, Caroline Cummings, Gabriela Lelakowska, Laurel D Wolfe, Brianna T Ricker, Rebecca Farias","doi":"10.1093/jpepsy/jsad077","DOIUrl":"10.1093/jpepsy/jsad077","url":null,"abstract":"<p><strong>Objective: </strong>The links from youth sleep problems to emotional, behavioral, and academic functioning are well documented. Latent variable mixture modeling (LVMM) has been used to explore these relations; however, additional research is needed in diverse samples and with self-reports of sleep-related difficulties. The objectives of the current study were to identify profiles based on patterns of sleep disturbance and impairment and explore associations among profiles and functioning at baseline and over a subsequent 6-month period.</p><p><strong>Methods: </strong>Participants were 278 third- through fifth-grade students (M age = 9.27; 51.8% male; 51.1% Hispanic/Latine) and homeroom teachers. Children completed measures of sleep disturbance and impairment, emotion (dys)regulation, and depressive, anxiety, and anger symptoms. Teachers completed measures of youth's emotional and conduct problems, emotion (dys)regulation, and academic performance. LVMM was conducted.</p><p><strong>Results: </strong>Three profiles emerged: (1) \"Average Sleep Disturbance and Impairment\" (n = 148); (2) \"Elevated Sleep Disturbance and Average Sleep Impairment\" (n = 40); and (3) \"Elevated Sleep Disturbance and Impairment\" (n = 90). Overall, youth with above average sleep problems had worse functioning at baseline. Further, youth in Profile 3 exhibited increases in self-reported symptoms of depression, anxiety, and anger, as well as worsening teacher-reported academic performance and conduct problems. In contrast, youth in Profile 2 exhibited improvements in self-reported symptoms of depression, anxiety, and anger, as well as teacher-reported emotion regulation, conduct problems, and academic performance.</p><p><strong>Conclusions: </strong>Results highlight the importance of examining self-reports of sleep problems and the need for intervention among children exhibiting elevated sleep disturbance and impairment.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"153-163"},"PeriodicalIF":2.7,"publicationDate":"2024-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138446670","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Commentary: Broadening the Reach: Multidimensional Sleep Health and Cultural Diversity in Pediatric Sleep Research. 评论:扩大影响:儿科睡眠研究中的多维睡眠健康和文化多样性。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-03-20 DOI: 10.1093/jpepsy/jsae002
Jordan A Davidson, Stacey L Simon
{"title":"Commentary: Broadening the Reach: Multidimensional Sleep Health and Cultural Diversity in Pediatric Sleep Research.","authors":"Jordan A Davidson, Stacey L Simon","doi":"10.1093/jpepsy/jsae002","DOIUrl":"10.1093/jpepsy/jsae002","url":null,"abstract":"","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"164-165"},"PeriodicalIF":2.7,"publicationDate":"2024-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139467128","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The study of psychosocial outcomes of parents bereaved by pediatric illness: a scoping review of methodology and sample composition. 儿科疾病丧子父母的社会心理结果研究:方法论和样本组成的范围审查。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-03-20 DOI: 10.1093/jpepsy/jsae008
Rachel S Fisher, Taylor M Dattilo, Alexandra M DeLone, Nathan L Basile, Ansley E Kenney, Kylie N Hill, Hui-Fen Chang, Cynthia A Gerhardt, Larry L Mullins
{"title":"The study of psychosocial outcomes of parents bereaved by pediatric illness: a scoping review of methodology and sample composition.","authors":"Rachel S Fisher, Taylor M Dattilo, Alexandra M DeLone, Nathan L Basile, Ansley E Kenney, Kylie N Hill, Hui-Fen Chang, Cynthia A Gerhardt, Larry L Mullins","doi":"10.1093/jpepsy/jsae008","DOIUrl":"10.1093/jpepsy/jsae008","url":null,"abstract":"<p><strong>Objective: </strong>Parents of children who died of a medical condition experience a range of psychosocial outcomes. The current scoping review aims to summarize the outcomes assessed, methodology, and sample characteristics of recent psychosocial research conducted with this population.</p><p><strong>Methods: </strong>Included studies were limited to peer-reviewed, psychosocial outcomes research published between August 2011 and August 2022, written in English, and including caregiver study participants of children who died of a medical condition. Data sources were scholarly journal articles from 9 electronic databases, including Scopus, Web of Science, Academic Search Primer, ProQuest Research Library, PubMed, Embase, PsycINFO, Psychology & Behavioral Sciences Collection, and Health Source: Nursing/Academic Edition. The Mixed Methods Appraisal Tool-2018 evaluated methodological quality.</p><p><strong>Results: </strong>The study sample included 106 studies, most of which were either qualitative (60%) or quantitative (29%). Mixed-methods studies (8%) and randomized clinical trials (2%) were also identified. Study quality was variable, but most studies met all quality criteria (73%). Studies primarily represented cancer populations (58%), White participants (71%), and mothers (66%). Risk-based psychosocial outcomes (e.g., grief) were more commonly assessed than resilience-based outcomes.</p><p><strong>Conclusions: </strong>The current scoping review revealed that recent research assessing the psychosocial outcomes of bereaved parents is limited in the representation of diverse populations, primarily qualitative, of broadly strong methodological quality, and oriented to psychosocial risk. To enhance the state of the science and inform evidence-based psychosocial services, future research should consider varied methodologies to comprehensively assess processes of risk and resilience with demographically and medically diverse populations.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"207-223"},"PeriodicalIF":2.7,"publicationDate":"2024-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139997872","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding the impacts of chronic pain on autistic adolescents and effective pain management: a reflexive thematic analysis adolescent-maternal dyadic study. 了解慢性疼痛对自闭症青少年的影响及有效的疼痛管理:青少年与母亲的反思性主题分析研究。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-03-20 DOI: 10.1093/jpepsy/jsae004
Abbie Jordan, Amelia Parchment, Jeremy Gauntlett-Gilbert, Abigail Jones, Bethany Donaghy, Elaine Wainwright, Hannah Connell, Joseline Walden, David J Moore
{"title":"Understanding the impacts of chronic pain on autistic adolescents and effective pain management: a reflexive thematic analysis adolescent-maternal dyadic study.","authors":"Abbie Jordan, Amelia Parchment, Jeremy Gauntlett-Gilbert, Abigail Jones, Bethany Donaghy, Elaine Wainwright, Hannah Connell, Joseline Walden, David J Moore","doi":"10.1093/jpepsy/jsae004","DOIUrl":"10.1093/jpepsy/jsae004","url":null,"abstract":"<p><strong>Objective: </strong>Sensory elements are core features in chronic pain and autism, yet knowledge of the pain experience in autistic adolescents is limited. Little is known regarding how autistic adolescents experience chronic pain, manage their pain and perceive psychological treatment for their chronic pain.</p><p><strong>Methods: </strong>Ten autistic adolescents (6 female, 3 male, and 1 self-identified as agender) with chronic pain and their mothers (n = 10) participated in semistructured interviews concerning their perceptions of living with chronic pain. Participants were recruited from U.K. pain management services. According to preference, interviews were conducted individually (n = 10) or dyadically (n = 10 participants across 5 dyads). Data were analyzed using inductive reflexive thematic analysis.</p><p><strong>Results: </strong>Two themes were generated. Theme 1, \"overstimulated and striving for control\" described how adolescents' experience of heightened sensitivity enhanced adolescents' levels of anxiety and subsequent pain, illustrating a reciprocal relationship between anxiety, pain, and sensory elements. Theme 2, \"not everyone fits the mold\" captured how autistic adolescents positioned themselves as distinct from others due to the unique nature of being autistic and living with pain. This sense of difference negatively impacted adolescents' ability to engage with and benefit from the standard treatment for chronic pain.</p><p><strong>Conclusions: </strong>Findings suggest that autistic adolescents living with pain experience pain and face barriers to effective pain treatment. Our results identify the need for educational resources to facilitate clinicians to better understand the experience of autistic adolescents living with pain. In turn, such understanding may improve treatment and outcomes in this population.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"185-194"},"PeriodicalIF":2.7,"publicationDate":"2024-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10954305/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139703733","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
2024 Society of Pediatric Psychology Annual Conference Abstracts: What's Next? Defining the Path Forward for Pediatric Psychology. 2024 年儿科心理学会年会摘要:下一步是什么?确定儿科心理学的前进之路。
IF 3.6 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-03-15 DOI: 10.1093/jpepsy/jsae010
{"title":"2024 Society of Pediatric Psychology Annual Conference Abstracts: What's Next? Defining the Path Forward for Pediatric Psychology.","authors":"","doi":"10.1093/jpepsy/jsae010","DOIUrl":"10.1093/jpepsy/jsae010","url":null,"abstract":"","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":"49 Supplement_1","pages":""},"PeriodicalIF":3.6,"publicationDate":"2024-03-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140132908","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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