Journal of Pediatric Psychology最新文献

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Optimism, pessimism, and physical health among youth: a scoping review. 青少年的乐观、悲观情绪与身体健康:范围界定综述。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-08-01 DOI: 10.1093/jpepsy/jsae045
Eloïse J Fairbank, James Borenstein-Laurie, Nicole M Alberts, Carsten Wrosch
{"title":"Optimism, pessimism, and physical health among youth: a scoping review.","authors":"Eloïse J Fairbank, James Borenstein-Laurie, Nicole M Alberts, Carsten Wrosch","doi":"10.1093/jpepsy/jsae045","DOIUrl":"10.1093/jpepsy/jsae045","url":null,"abstract":"<p><strong>Objective: </strong>High levels of optimism (and low levels of pessimism) are associated with improved physical health in adults. However, relatively less is known about these relations in youth. The present study aimed to review the literature investigating optimism, pessimism, and physical health in children and adolescents from populations with and without health conditions.</p><p><strong>Methods: </strong>We conducted a scoping review up until February 2024. Studies were included if they sampled youth (average age ≤18 years) and treated optimism or pessimism as predictors of health behaviors or outcomes. Data on study and sample characteristics, health outcome, optimism construct, and findings were extracted from eligible papers and results were synthesized.</p><p><strong>Results: </strong>Sixty studies were retained. Most studies were conducted in North America, with adolescents, and used cross-sectional designs and self-reported measures of health. Measures of optimism and pessimism differed across studies. Roughly one-third of studies sampled medical populations. Health categories included substance use, diet and physical activity, sexual health practices, medical adherence, other health behaviors, cardiometabolic health, subjective health/health-related quality of life, pain, sleep, and oral health. Generally, we observed adaptive associations between optimism and health. Higher optimism and lower pessimism were most consistently associated with lower rates of substance use and lower cardiometabolic risk.</p><p><strong>Conclusions: </strong>The presence of optimism or the absence of pessimism appears to be associated with various adaptive health outcomes among youth with and without health conditions. Developmental, methodological, and clinical considerations for future research are discussed, such as conducting longitudinal studies with objective measures of health and psychometrically validated instruments.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"580-595"},"PeriodicalIF":2.7,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11335150/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141327986","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effects of a neuropsychosocial teleassistance intervention on social cognition and health-related quality of life of pediatric patients with neuromuscular diseases. 神经心理社会远程协助干预对儿科神经肌肉疾病患者的社会认知和健康相关生活质量的影响。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-08-01 DOI: 10.1093/jpepsy/jsae013
Irune García, Oscar Martínez, Imanol Amayra, Monika Salgueiro, Alicia Aurora Rodríguez, Juan Francisco López-Paz
{"title":"Effects of a neuropsychosocial teleassistance intervention on social cognition and health-related quality of life of pediatric patients with neuromuscular diseases.","authors":"Irune García, Oscar Martínez, Imanol Amayra, Monika Salgueiro, Alicia Aurora Rodríguez, Juan Francisco López-Paz","doi":"10.1093/jpepsy/jsae013","DOIUrl":"10.1093/jpepsy/jsae013","url":null,"abstract":"<p><strong>Objective: </strong>This study aimed to determine the effects of a neuropsychosocial teleassistance group-based intervention on improving social cognitive functioning and health-related quality of life (HRQoL) in pediatric neuromuscular diseases (NMD).</p><p><strong>Methods: </strong>Thirty-five pediatric patients with NMD were assigned to the neuropsychosocial intervention program (n = 20) or waiting list control condition (n = 15). The intervention group received an integrative approach that combines training in social cognition with cognitive behavioral therapy. All participants completed a neuropsychological and clinical assessment at baseline and follow-up, which included tests of social cognition, both for emotion recognition and theory of mind, and HRQoL. Repeated-measures multivariate analysis of covariance was used to determine the effects of the teleassistance program.</p><p><strong>Results: </strong>Group × Time interactions revealed significant improvements in the intervention group as compared with the control group for different social cognition's indicators (AR NEPSY-II: p = .003, η2p = .24; TM NEPSY: p < .001, η2p = .35; Verbal task: p < .001, η2p = .35; Happé's Strange Stories: p = .049, η2p = .11) and HRQoL (Psychosocial health: p = .012, η2p = .18; Emotional functioning: p = .037, η2p = 0.13; Social functioning: p = .006, η2p = .21; Total: p = .013, η2p = .17), showing medium to large effects.</p><p><strong>Conclusions: </strong>Patients receiving the neuropsychosocial intervention showed improvements in their social cognition performance and psychosocial HRQoL, providing evidence about the positive effects of the program in pediatric patients with NMD. This should be considered in further research and interventions in this field.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"525-535"},"PeriodicalIF":2.7,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140060844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Systematic review and meta analysis of psychological interventions to prevent or treat pediatric chronic disease in rural communities. 对农村社区预防或治疗儿科慢性病的心理干预进行系统回顾和元分析。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-07-09 DOI: 10.1093/jpepsy/jsae054
Brittany D Lancaster, Tristen Hefner, Calissa J Leslie-Miller, Kody Sexton, Dana M Bakula, Jason Van Allen, Christopher C Cushing, Crystal S Lim, David M Janicke, Elissa Jelalian, Katie Dayani, Ann M Davis
{"title":"Systematic review and meta analysis of psychological interventions to prevent or treat pediatric chronic disease in rural communities.","authors":"Brittany D Lancaster, Tristen Hefner, Calissa J Leslie-Miller, Kody Sexton, Dana M Bakula, Jason Van Allen, Christopher C Cushing, Crystal S Lim, David M Janicke, Elissa Jelalian, Katie Dayani, Ann M Davis","doi":"10.1093/jpepsy/jsae054","DOIUrl":"https://doi.org/10.1093/jpepsy/jsae054","url":null,"abstract":"<p><strong>Objective: </strong>The purpose of this systematic review and meta-analysis was to examine the effectiveness of psychological interventions at improving physical or mental health outcomes for youth living in rural communities who have, or are at-risk for, any chronic medical condition in comparison to control interventions conducted in rural communities.</p><p><strong>Methods: </strong>Following prospective registration (OSF.IO/7TDQJ), 7 databases were searched through July 1, 2023. Studies were included if they were a randomized control trial of a psychological intervention conducted with youth living in a rural area who had, or were at-risk for, a chronic medical condition. Risk of bias was assessed with the Cochrane risk of bias version 2 tool. A qualitative synthesis and meta-analysis were conducted.</p><p><strong>Results: </strong>15 studies met inclusion criteria. Obesity studies (n = 13) primarily focused on body mass index metrics, with limited significant findings across studies. Asthma treatment interventions (n = 2) showed no impact on hospitalizations. 3 studies evaluated mental health outcomes with no significant group differences observed. We meta-analytically analyzed 9 studies that evaluated body mass index z-scores and identified an overall null effect (Hedge's g = 0.01, 95% CI [-0.07, 0.09], p = .85).</p><p><strong>Conclusions: </strong>Most included studies focused on pediatric obesity, and there was a limited range of health outcomes reported. Compared to controls, minimal significant improvements in health outcomes were identified for psychological interventions for youth living in rural communities. Future efforts may benefit from situating this work more systematically within a health disparities framework with a focus on understanding mechanisms of disparities and translating this work into interventions and policy changes.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2024-07-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141564845","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correction to: Pandemic-Related Social Disruption and Well-Being in Pediatric Gastrointestinal Diseases. 更正:与流行病相关的社会混乱和小儿胃肠道疾病患者的福祉。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-07-01 DOI: 10.1093/jpepsy/jsae017
{"title":"Correction to: Pandemic-Related Social Disruption and Well-Being in Pediatric Gastrointestinal Diseases.","authors":"","doi":"10.1093/jpepsy/jsae017","DOIUrl":"10.1093/jpepsy/jsae017","url":null,"abstract":"","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"524"},"PeriodicalIF":2.7,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11514242/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140060842","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The rehabilitation treatment beliefs questionnaire-revised: assessing adolescents' treatment beliefs. 康复治疗信念问卷修订版:评估青少年的治疗信念。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-07-01 DOI: 10.1093/jpepsy/jsae037
Gloria Metzner, Manuela Glattacker
{"title":"The rehabilitation treatment beliefs questionnaire-revised: assessing adolescents' treatment beliefs.","authors":"Gloria Metzner, Manuela Glattacker","doi":"10.1093/jpepsy/jsae037","DOIUrl":"10.1093/jpepsy/jsae037","url":null,"abstract":"<p><strong>Objective: </strong>While there are several studies on children's and adolescents' beliefs about illness and medication treatment, there is limited research on their treatment beliefs in the context of rehabilitation. The Rehabilitation Treatment Beliefs Questionnaire (RTBQ) was the first instrument available to assess pediatric patients' rehabilitation-related treatment beliefs. However, the RTBQ had some limitations that we aimed to address in this study: We revised the content of the RTBQ to include previously unaddressed dimensions of rehabilitation-related treatment beliefs, and we thoroughly tested its psychometric properties based on a sizeable, multicenter sample of adolescents with different chronic diseases.</p><p><strong>Methods: </strong>Across 11 pediatric rehabilitation clinics throughout Germany, eligible patients aged 12-18 years with any chronic physical or mental health condition were invited to participate in an online survey. Psychometric evaluation included item analysis, exploratory factor analysis, internal consistency and construct validity.</p><p><strong>Results: </strong>The sample comprised N = 294 adolescents (M = 14.2 years) with various chronic conditions. Psychometric testing demonstrated a coherent factor structure with 6 interpretable scales covering process and outcome expectations, expectations of one's own role in the treatment process, structural expectations, concerns, and emotions, the latter three representing previously unaddressed dimensions of rehabilitation-related treatment beliefs. Internal consistency was acceptable to good. Construct validity analyses showed mostly hypotheses-consistent correlations with related constructs.</p><p><strong>Conclusions: </strong>The revised RTBQ provides a psychometrically well-tested, adolescent-specific, and disease-generic instrument that captures multiple dimensions of rehabilitation-related treatment beliefs. Practical implications include identifying adolescents' beliefs about rehabilitation treatment in order to actively involve them in their illness management.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"501-511"},"PeriodicalIF":2.7,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141094553","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Giving adolescents with cystic fibrosis a voice: Predicting cystic fibrosis nutritional adherence from their decision-making involvement. 让患有囊性纤维化的青少年有发言权:从青少年的决策参与中预测囊性纤维化患者的营养依从性。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-07-01 DOI: 10.1093/jpepsy/jsae034
Jennifer Kelleher, Kristine Durkin, David A Fedele, Kathryn Moffett, Stephanie S Filigno, Courtney Lynn, Robin S Everhart, Lori J Stark, Christina L Duncan
{"title":"Giving adolescents with cystic fibrosis a voice: Predicting cystic fibrosis nutritional adherence from their decision-making involvement.","authors":"Jennifer Kelleher, Kristine Durkin, David A Fedele, Kathryn Moffett, Stephanie S Filigno, Courtney Lynn, Robin S Everhart, Lori J Stark, Christina L Duncan","doi":"10.1093/jpepsy/jsae034","DOIUrl":"10.1093/jpepsy/jsae034","url":null,"abstract":"<p><strong>Objective: </strong>Suboptimal nutritional adherence in adolescents with cystic fibrosis (awCF) has been associated with lower lung function. AwCF often have more independence in dietary decisions than younger children, yet little research has examined how adolescent decision-making relates to nutritional adherence. This study explored whether components of adolescent decision-making involvement facilitate enzyme and caloric adherence in awCF.</p><p><strong>Methods: </strong>37 families participated and completed study procedures. AwCF and caregivers completed electronic surveys, including the Decision-Making Involvement Scale (DMIS). The DMIS evaluated awCF behaviors during nutrition-related decision-making/discussions with caregivers using DMIS subscales: Child Seek (asking for help/advice from caregivers), Child Express (awCF stating opinions) and Joint/Options (awCF participating in joint decision-making or caregiver providing options). AwCF completed 2, 24-hr diet recalls via videoconferencing/phone to estimate adherence. Chart reviews collected medical information. DMIS subscales were regressed onto enzyme and caloric adherence.</p><p><strong>Results: </strong>43% of awCF met calorie recommendations; 48.6% took all enzymes as prescribed. Caloric adherence was positively correlated with adolescent- and parent-reported Child Seek (r = 0.53; r = 0.36) and adolescent-reported Joint/Options (r = 0.41). Per adolescent-report, the caloric adherence regression model was significant, with Child Seek contributing unique variance in caloric adherence (β = .62, p = .03). Parent-reported adolescent-decision-making involvement significantly predicted caloric adherence, but none of the subscales contributed unique variance. No other regressions were significant.</p><p><strong>Conclusions: </strong>When awCF participated in nutrition-related discussions with a caregiver, especially with questions, caloric adherence was better. Future research should examine whether family factors influence these results. AwCF are encouraged to ask questions in nutrition discussions.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"491-500"},"PeriodicalIF":2.7,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11258803/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140946345","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Body image and psychosocial outcomes in youth and young adults with differences of sex development: a multi-method study. 有性别发展差异的青年和青少年的身体形象和心理社会结果:一项多方法研究。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-07-01 DOI: 10.1093/jpepsy/jsae041
Canice E Crerand, Ayah Shehata, Hailey Umbaugh, Hillary M Kapa, Jennifer Hansen-Moore, Leena Nahata, Cindy Buchanan, Diane Chen, Joseph Rausch, Shivika Udaipuria, Venkata R Jayanthi, Yee-Ming Chan, Keeley J Pratt, Elizabeth Buschur, Justin Indyk, Amy C Tishelman
{"title":"Body image and psychosocial outcomes in youth and young adults with differences of sex development: a multi-method study.","authors":"Canice E Crerand, Ayah Shehata, Hailey Umbaugh, Hillary M Kapa, Jennifer Hansen-Moore, Leena Nahata, Cindy Buchanan, Diane Chen, Joseph Rausch, Shivika Udaipuria, Venkata R Jayanthi, Yee-Ming Chan, Keeley J Pratt, Elizabeth Buschur, Justin Indyk, Amy C Tishelman","doi":"10.1093/jpepsy/jsae041","DOIUrl":"10.1093/jpepsy/jsae041","url":null,"abstract":"<p><strong>Objective: </strong>Differences of sex development (DSD) can affect the physical health, appearance, and psychosocial functioning of affected individuals, but little is known about how subjective appearance perceptions (body image) impact psychosocial outcomes. This study evaluated body image and its associations with psychosocial outcomes including quality of life, resilience, and psychosocial adjustment.</p><p><strong>Methods: </strong>This cross-sectional, multi-method study assessed body image and psychosocial outcomes including quality of life, adjustment, and resilience in 97 youth and young adults with DSD (mean age = 17 ± 3.7 years; 56% assigned female in infancy) using psychometrically sound instruments. A subsample (n = 40) completed qualitative interviews.</p><p><strong>Results: </strong>Quantitative results indicated that overall, participants were satisfied with their physical appearance, although less so with their primary sex characteristics. Body image dissatisfaction was associated with poorer psychosocial adjustment, quality of life, and resilience. Qualitatively, youth and young adults reported a variety of perceptions, both positive and negative, related to their body image and the impact of living with a DSD condition. Themes identified included appearance management; effects of DSD on body image; diagnostic factors and features; attitudes about diagnosis; and treatment.</p><p><strong>Conclusions: </strong>Body image is significantly associated with psychosocial outcomes in youth and young adults with DSD, with qualitative findings highlighting both positive and negative body image experiences. Results have implications for clinical care including screening for appearance concerns, normalization of appearance variations, and intervention development to better support healthy body image and psychosocial functioning in youth and young adults with DSD.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"512-523"},"PeriodicalIF":2.7,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141312038","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Growth of condition-related knowledge among youth with spina bifida: associations with neurocognitive functioning and self-management skills. 脊柱裂青少年病情相关知识的增长:与神经认知功能和自我管理技能的关联。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-07-01 DOI: 10.1093/jpepsy/jsad097
Olivia E Clark, Zoe R Smith, Taylor Hilderbrand, Grayson N Holmbeck
{"title":"Growth of condition-related knowledge among youth with spina bifida: associations with neurocognitive functioning and self-management skills.","authors":"Olivia E Clark, Zoe R Smith, Taylor Hilderbrand, Grayson N Holmbeck","doi":"10.1093/jpepsy/jsad097","DOIUrl":"10.1093/jpepsy/jsad097","url":null,"abstract":"<p><strong>Objective: </strong>This study aims to characterize the growth in condition-related knowledge in youth with spina bifida (SB), identify neurocognitive predictors of growth, and examine associations between growth in knowledge and subsequent levels of medical self-management skills.</p><p><strong>Methods: </strong>Participants were recruited from a larger longitudinal study involving 140 youth with SB and caregivers, who completed questionnaires and interviews every 2 years over 8 years. The current study included the youth report of condition-related knowledge and medical self-management skills. Youth attention and executive functioning were assessed via parent and teacher reports and performance-based assessment. Latent growth curves were conducted in Mplus Version 8 (Múthen, L. K., & Múthen, B. O. [1998]. Mplus User's Guide. [Eighth]. Muthén & Muthén) to examine change over time in youth-reported condition-related knowledge. Neurocognitive variables were included as predictors of growth in knowledge and regression analyses were used to predict medical self-management skills from growth in condition-related knowledge.</p><p><strong>Results: </strong>Youth condition-related knowledge increased linearly. Better youth performance on working memory and attention performance-based tasks predicted a higher intercept for condition-related knowledge at T1, but not slope. Teacher and parent reports of inattention and executive dysfunction were not consistent predictors of intercept and growth. Slope of condition-related knowledge was not predictive of subsequent youth self-management skills.</p><p><strong>Conclusions: </strong>Youth with SB gain condition-related knowledge over time. However, executive dysfunction and inattention may impede gains in condition-related knowledge. Thus, executive functioning supports, attention-related interventions, and psychoeducation may support condition-related knowledge gains and later medical self-management skills, but further research assessing family and cultural factors is needed.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"449-458"},"PeriodicalIF":2.7,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11258814/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139431969","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Systematic review and meta-analysis of interventions to promote medication adherence among children, adolescents, and young adults with medical conditions. 对促进患有疾病的儿童、青少年和年轻成人坚持服药的干预措施进行系统回顾和荟萃分析。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-06-21 DOI: 10.1093/jpepsy/jsae036
Meghan E McGrady, Mary E Keenan-Pfeiffer, Amy C Lang, Amy E Noser, Anshul P Tyagi, Julia K Herriott, Rachelle R Ramsey
{"title":"Systematic review and meta-analysis of interventions to promote medication adherence among children, adolescents, and young adults with medical conditions.","authors":"Meghan E McGrady, Mary E Keenan-Pfeiffer, Amy C Lang, Amy E Noser, Anshul P Tyagi, Julia K Herriott, Rachelle R Ramsey","doi":"10.1093/jpepsy/jsae036","DOIUrl":"10.1093/jpepsy/jsae036","url":null,"abstract":"<p><strong>Objective: </strong>This meta-analysis examined the efficacy of adherence-promotion interventions for children, adolescents, and young adults prescribed a medication for > 90 days as part of a treatment regimen for a medical condition.</p><p><strong>Methods: </strong>A systematic literature review was conducted to identify randomized controlled trials of adherence-promotion interventions published between 2013 and 2023 and including children, adolescents, and/or young adults with a medical condition. A total of 38 articles representing 39 trials met inclusion criteria. A narrative synthesis was conducted to summarize included trials and a random-effects model was used to compute an overall intervention effect. Effect sizes by adherence outcome assessment methodology, participant age, and technology use were also computed.</p><p><strong>Results: </strong>Pediatric adherence-promotion interventions demonstrate a medium effect with those randomized to an intervention displaying greater improvements in medication adherence than those randomized to a comparator condition (SMD = 0.46, 95% CI: 0.31, 0.60, n = 37; 95% Prediction Interval: -0.32, 1.23).</p><p><strong>Conclusions: </strong>Adherence interventions for children, adolescents, and young adults with medical conditions increase adherence.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":""},"PeriodicalIF":2.7,"publicationDate":"2024-06-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141437680","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perceived transition readiness among adolescents and young adults with neurofibromatosis type 1 and plexiform neurofibromas: a cross-sectional descriptive study. 患有 1 型神经纤维瘤病和丛状神经纤维瘤的青少年和年轻人的过渡准备意识:一项横断面描述性研究。
IF 2.7 3区 心理学
Journal of Pediatric Psychology Pub Date : 2024-06-13 DOI: 10.1093/jpepsy/jsae006
Atara Siegel, Robin Lockridge, Kari L Struemph, Mary Anne Toledo-Tamula, Paige Little, Pamela L Wolters, Anne Dufek, Cecilia Tibery, Melissa Baker, Brigitte C Wideman, Staci Martin
{"title":"Perceived transition readiness among adolescents and young adults with neurofibromatosis type 1 and plexiform neurofibromas: a cross-sectional descriptive study.","authors":"Atara Siegel, Robin Lockridge, Kari L Struemph, Mary Anne Toledo-Tamula, Paige Little, Pamela L Wolters, Anne Dufek, Cecilia Tibery, Melissa Baker, Brigitte C Wideman, Staci Martin","doi":"10.1093/jpepsy/jsae006","DOIUrl":"10.1093/jpepsy/jsae006","url":null,"abstract":"<p><strong>Objectives: </strong>Neurofibromatosis type 1 (NF1) is a genetic cancer predisposition syndrome that can impact multiple organ systems and is associated with plexiform neurofibroma tumors, requiring care from birth through adulthood. Adolescents and young adults (AYAs) with NF1 face several barriers to transition from pediatric to adult care. This cross-sectional study aimed to assess transition readiness in this population and to evaluate relationships between specific NF1 symptoms and transition readiness.</p><p><strong>Methods: </strong>AYAs (aged 16-24) enrolled in existing studies related to NF1 were eligible. AYAs and their parents completed measures of transition readiness (Transition Readiness Assessment Questionnaire version 4 [TRAQ-4]), and AYAs also completed a transition readiness interview (UNC TRxANSITION).</p><p><strong>Results: </strong>Thirty-eight AYAs (mean age = 19.95 ± 2.68 years) participated in the study. Average TRAQ scores indicated that AYAs were still learning Self-Management skills (M = 3.37, SD = 1.08) and Self-Advocacy skills (M = 3.98, SD = 0.67). Older AYAs had higher TRAQ scores for Self-Management (r = 0.70, p < .001) and Self-Advocacy (r = 0.41, p = .011) than younger AYAs. Parents and AYAs had similar TRAQ scores. About one third of AYAs (37.8%, n = 14) expressed uncertainty about how NF1 might affect them in the future. The remaining AYAs mostly expressed concerns regarding tumor growth, pain, or cancer.</p><p><strong>Conclusions: </strong>In this small study, preliminary findings suggest that AYAs with NF1 express confidence in many areas of transition readiness but continue to require support, particularly with Self-Management skills. Given the gaps in understanding of future health risks, AYAs with NF1 would benefit from early assessment, psychoeducation, and support for transition readiness to adult care.</p>","PeriodicalId":48372,"journal":{"name":"Journal of Pediatric Psychology","volume":" ","pages":"383-391"},"PeriodicalIF":2.7,"publicationDate":"2024-06-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11175589/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139747562","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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