Family partnerships to support equity and cultural humility in pediatric intervention research.

IF 2.7 3区心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL

Journal of Pediatric Psychology Pub Date : 2025-05-20 DOI:10.1093/jpepsy/jsaf032

Ariel A Williamson, Brizhay Davis, Chimereodo Okoroji, Olivia Cicalese, Amanda Ayala, Kristina Boling-Smith, Bethany Harvey, Rachel Honore, L'Vonne McMillan, Amy Kratchman, Rosemary Laberee, Heather Cathrall, Alexander G Fiks, Jodi A Mindell, Thomas J Power

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引用次数: 0

Abstract

Objective: Family partnerships in community-engaged research (CEnR) can promote family-centered, equitable interventions. This paper describes the process (meeting frequency, content) of a collaborative research family partnership and related methodological modifications to support equity and cultural humility during a multi-phase project adapting and evaluating an early childhood sleep intervention (Sleep Well!) for families of primarily lower socioeconomic status (SES) backgrounds in urban (large, metropolitan) primary care.

Methods: The Children's Hospital of Philadelphia Research Family Partners Program consulted on initial project development. Research family partners collaborated to modify intervention content, delivery methods, and research procedures in an open-pilot (NCT04046341) and randomized controlled trial (NCT04473222). We reviewed family partners meeting agendas, presentations, and minutes to identify meeting frequency, content, and resulting project modifications and to generate related themes. Family partners also provided recommendations for researchers, including for those without existing institutional CEnR resources.

Results: Ten 60-120-min meetings with 4-6 family partners occurred over 4 years. Themes representing the partnership process and project modifications included enhancing flexibility, centering cultural humility, and incorporating contextual factors (coronavirus pandemic, police violence, racism). These factors were especially relevant as project participants were primarily Black mothers and/or of lower-SES backgrounds. Family partner recommendations highlighted the need for collaborative, meaningful, and communicative relationships in pediatric intervention research.

Conclusions: The extent of recommended project modifications highlights the importance of family partnerships to support equity and cultural humility in pediatric psychology research and practice. Findings also underscore the need for representation of racial and ethnic minoritized scholars and families in this work.

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家庭伙伴关系支持儿科干预研究中的公平和文化谦逊。

目的：社区参与研究中的家庭伙伴关系可以促进以家庭为中心的公平干预。本文描述了合作研究家庭伙伴关系的过程（会议频率，内容）和相关的方法修改，以支持多阶段项目中的公平和文化谦逊，以适应和评估城市（大型，大都市）初级保健中主要社会经济地位（SES）背景较低的家庭的早期儿童睡眠干预（睡得好！）。方法：费城儿童医院研究家庭合作伙伴项目在最初的项目开发中进行咨询。在一项开放试验（NCT04046341）和随机对照试验（NCT04473222）中，研究家庭合作伙伴合作修改了干预内容、递送方法和研究程序。我们回顾了家庭伙伴会议议程、演示文稿和会议记录，以确定会议频率、内容和最终的项目修改，并产生相关主题。家庭伙伴也为研究人员提供了建议，包括那些没有现有机构资源的研究人员。结果：4年内共进行了10次60-120分钟与4-6个家庭伙伴的会议。代表合作过程和项目修改的主题包括增强灵活性，以文化谦逊为中心，并纳入背景因素（冠状病毒大流行，警察暴力，种族主义）。这些因素尤其相关，因为项目参与者主要是黑人母亲和/或社会经济地位较低的背景。家庭伴侣的建议强调了在儿科干预研究中需要协作、有意义和交流的关系。结论：建议项目修改的程度突出了家庭伙伴关系在儿童心理学研究和实践中支持公平和文化谦逊的重要性。调查结果还强调了在这项工作中有必要代表种族和少数民族学者和家庭。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Pediatric Psychology PSYCHOLOGY, DEVELOPMENTAL-

CiteScore

6.00

自引率

11.10%

发文量

期刊介绍： The Journal of Pediatric Psychology is the official journal of the Society of Pediatric Psychology, Division 54 of the American Psychological Association. The Journal of Pediatric Psychology publishes articles related to theory, research, and professional practice in pediatric psychology. Pediatric psychology is an integrated field of science and practice in which the principles of psychology are applied within the context of pediatric health. The field aims to promote the health and development of children, adolescents, and their families through use of evidence-based methods.