Palliative & Supportive Care最新文献_第5页

"It's not a one-person show" E-learning course in neuropalliative care: A qualitative analysis of participants' educational gains and self-reported outcomes. "这不是一个人的表演 "神经姑息治疗电子学习课程：对参与者教育收获和自我报告结果的定性分析。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-09-27 DOI: 10.1017/S147895152400124X

Sarah K Bublitz, Mara Lugassy, Roop Gursahani, Winnie Lau, Susan DeSanto-Madeya, Jessica Besbris, Neha M Kramer, John Y Rhee, Seema R Rao, Krithika S Rao, Naveen Salins, Piret Paal

{"title":"\"It's not a one-person show\" E-learning course in neuropalliative care: A qualitative analysis of participants' educational gains and self-reported outcomes.","authors":"Sarah K Bublitz, Mara Lugassy, Roop Gursahani, Winnie Lau, Susan DeSanto-Madeya, Jessica Besbris, Neha M Kramer, John Y Rhee, Seema R Rao, Krithika S Rao, Naveen Salins, Piret Paal","doi":"10.1017/S147895152400124X","DOIUrl":"https://doi.org/10.1017/S147895152400124X","url":null,"abstract":"Objectives: Patients with progressive neurologic illness still lack access to quality palliative care services. Barriers to the comprehensive provision of neuropalliative care include gaps in palliative care education. To address this barrier, a novel international model of neuropalliative care education e-learning program was launched in 2022.Methods: This is a qualitative study on the self-reported learning outcomes and educational gains of participants of a neuropalliative care e-learning course.Results: Thematic analysis shows changes in the participants' perceptions of neuropalliative care and several specific educational gains. After attending the course, participants recognized neuropalliative care as a multiprofessional and interdisciplinary effort requiring more than medical knowledge and disease-specific treatment skills. They gained understanding of the complexity of prognosis in neurological diseases, as well as ethical concepts as the basis to approach difficult decisions. Valuing the needs of patients and caregivers, as well as honest and open communication were recognized as key components of the caring process. In particular, providing emotional support and building relationships to enhance the spiritual component of care were avidly discussed as essential nonmedical treatment options.Significance of results: E-learning courses are helping to close the gaps in healthcare professionals' knowledge and skills about neuropalliative care.","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142337060","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Digging deeper: A critique of the mediation study of spirituality in ALS patients. 深入挖掘：对 ALS 患者灵性中介研究的评论。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-09-27 DOI: 10.1017/S1478951524001275

Hartika Utami Fitri, Rikas Saputra, Kadek Suhardita, I Made Suarta, Maria Oktasari, Siti Aminah, Palasara Brahmani Laras

引用次数: 0

Strengthening and expanding cross-cultural care: The strategic role of chaplains in palliative care. 加强和扩大跨文化关怀：牧师在姑息关怀中的战略角色。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-09-27 DOI: 10.1017/S1478951524001366

Rizky Andana Pohan, Khairiyah Khadijah, Putri Bunga Aisyah Pohan, Ririn Dwi Astuti, Ranesya Azzahra Pohan, Muhammad Rayhanif Annizam Pohan, Marimbun Marimbun

引用次数: 0

What is left. 还剩下什么？

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-09-27 DOI: 10.1017/S1478951524001317

Christopher Kim

引用次数: 0

The association of compassion with dignity and symptoms in end-of-life cancer patients 临终癌症患者的尊严与症状之间的关联

IF 2.2 4区医学

Palliative & Supportive Care Pub Date : 2024-09-18 DOI: 10.1017/s1478951524000956

Andrea Bovero, Irene Di Girolamo, Rossana Botto, Giuliano Carlo Geminiani

{"title":"The association of compassion with dignity and symptoms in end-of-life cancer patients","authors":"Andrea Bovero, Irene Di Girolamo, Rossana Botto, Giuliano Carlo Geminiani","doi":"10.1017/s1478951524000956","DOIUrl":"https://doi.org/10.1017/s1478951524000956","url":null,"abstract":"Objectives Compassion is essential in palliative care; however, there is a lack of evidence of the association between this construct and patients’ dignity-related distress. The present study aimed to investigate the association between end-of-life cancer patients’ sense of dignity, the level of compassion of the healthcare professionals (HCPs) noticed and perceived by the patients, and levels of compassion that HCPs felt they had toward patients, investigating through specific attitudes and behaviors. Furthermore, the relationship between compassion and patients’ physical and psychological symptoms, such as levels of anxiety and depression, was also investigated. Methods The study was cross-sectional. The sample consisted of 105 end-of-life cancer patients and 40 HCPs. Patients had a Karnofsky Performance Status of 50 or lower and a life expectancy of less than 4 months. For each patient, sociodemographic data were collected, and a set of rating scales assessing compassion, dignity as well as physical and psychological symptoms were administered. Results The results showed significant negative associations between patients’ perception of compassion and dignity-related distress as well as significant negative associations between patients’ perception of compassion and patients’ symptoms. Significance of results Compassion seems to be involved in diminishing dignity-related distress and alleviating physical and psychological symptoms. Other studies are needed to understand whether patients’ symptoms or whether specific HCPs’ conditions influence compassion. Exploring compassion and at the end-of-life could encourage a dignity-conserving care.","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2024-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142265342","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exhalation. 呼气。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-09-16 DOI: 10.1017/S1478951524000993

David Haosen Xiang

引用次数: 0

Tenderly. 温柔地

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-09-16 DOI: 10.1017/S147895152400155X

Henna Hundal

引用次数: 0

Expressive Aphasia. 表达性失语症。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-09-16 DOI: 10.1017/S1478951524001093

David Haosen Xiang

引用次数: 0

A commentary on "Spirituality moderates the relationship between cancer caregiver burden and depression" (La. I.S, 2023). 关于 "灵性调节癌症护理负担与抑郁之间的关系 "的评论（La. I.S, 2023）。

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-09-16 DOI: 10.1017/S1478951524001391

Riza Amalia

引用次数: 0

A little rain. 小雨

IF 1.9 4区医学

Palliative & Supportive Care Pub Date : 2024-09-16 DOI: 10.1017/S1478951524001354

David Haosen Xiang

引用次数: 0