Palliative & Supportive Care最新文献

{"title":"Validation of the Spanish Subjective End-of-Life Health Literacy Scale through community-based workshops in Argentina.","authors":"Clément Meier, Verónica Inés Veloso, Bélen Carballo, Vilma A Tripodoro","doi":"10.1017/S147895152610340X","DOIUrl":"https://doi.org/10.1017/S147895152610340X","url":null,"abstract":"<p><strong>Objectives: </strong>To culturally adapt and validate the Spanish version of the Subjective End-of-Life Health Literacy Scale (S-EOL-HLS) through community-based workshops in Argentina.</p><p><strong>Methods: </strong>The S-EOL-HLS was translated following the forward-backward method and iteratively refined through community workshops conducted in urban and rural settings. Initial testing took place in 5 workshops (<i>n</i> = 57), followed by face validity assessment by an expert panel (<i>n</i> = 11). Based on this feedback, additional workshops were conducted alongside cognitive interviews, and a subset of participants completed a test-retest assessment. Participants completed the adapted scale and a brief sociodemographic questionnaire. Psychometric evaluation was performed using exploratory factor analysis on the initial sample and confirmatory factor analysis on a second sample (<i>n</i> = 120), together with assessments of internal consistency and construct validity.</p><p><strong>Results: </strong>The analyses supported a 3-factor structure representing functional, interactive, and critical dimensions of end-of-life health literacy. Factor loadings ranged from 0.57 to 0.91, with items loading primarily on their intended domains. The model demonstrated acceptable fit and high internal consistency (Cronbach's <i>α</i> = 0.89). Qualitative feedback from participants and experts improved the clarity and contextual relevance of the Spanish version. While most participants reported ease in understanding technical end-of-life terminology, greater uncertainty was observed for interactive and decision-making items, indicating challenges in applying information to personal treatment choices.</p><p><strong>Significance of results: </strong>The Spanish S-EOL-HLS demonstrated evidence of content validity, construct validity, and good psychometric performance in an Argentine context. Beyond its measurement properties, the scale also served as a structured prompt for reflection and dialogue in community settings.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e231"},"PeriodicalIF":2.4,"publicationDate":"2026-09-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149013233","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"The doctors will tell you things that they understand - Not what we understand.\" Community voices on developing a palliative care model for Cook Islands Māori in New Zealand.","authors":"Amy Evelyn Henry, Mayor Pokino, El-Shadan Tautolo, Jan Dewar, Josephine Herman, Ioana Mulipola","doi":"10.1017/S1478951526103344","DOIUrl":"10.1017/S1478951526103344","url":null,"abstract":"<p><strong>Objectives: </strong>This study aimed to identify the enablers and barriers to accessing primary and specialist palliative care services for Cook Islands Māori in New Zealand, and to collaborate with community members to explore the practical application of a tailored palliative care model.</p><p><strong>Methods: </strong>Three focus group interviews were held with Cook Islands Māori community members (<i>n</i> = 18). A culturally responsive research methodology, Tivaevae, was used to guide data collection and analysis. An advisory group was established to provide cultural and clinical oversight.</p><p><strong>Results: </strong>This study presents the findings from the first phase of model validation, exploring Cook Islands Māori peoples' use of palliative care services in New Zealand. The study identified key moments when families needed clear and accessible health information, during prognostic disclosure and during moments of responsibility transfer. These key moments provide opportunities for families to develop the tools to care and plan. This, in turn, enables family members to choose their preferred place of care and to develop family or community-guided care pathways based on Cook Islands Māori culture and faith.</p><p><strong>Significance of results: </strong>While improvements in cultural safety and cross-cultural communication have been made, there are still groups who experience barriers to accessing palliative care. Identifying key moments when care can be enhanced is key to developing systems that can deliver culturally responsive care for minority groups. Conceptual models show the beliefs, motivations, and values that guide care. However, models must be usable for both community members and clinicians, and critically, must support meaningful and positive outcomes.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e225"},"PeriodicalIF":2.4,"publicationDate":"2026-09-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149013107","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Caregiver perceptions toward naloxone for cancer patients at risk of opioid overdose.","authors":"Varsha Pawate, Jaya S Amaram-Davila, Aline Rozman de Moraes, Lisa Williams, Eduardo Bruera, Akhila Reddy","doi":"10.1017/S1478951526103423","DOIUrl":"https://doi.org/10.1017/S1478951526103423","url":null,"abstract":"<p><strong>Objective: </strong>A knowledge gap persists regarding how patients with cancer requiring opioids and their caregivers perceive a co-prescription of naloxone. This study aims to understand caregivers of cancer patients' perceptions, beliefs, knowledge, and confidence regarding naloxone.</p><p><strong>Methods: </strong>This prospective cross-sectional survey study was conducted at an outpatient palliative and supportive care clinic in a tertiary cancer center in the US between May 2020 and April 2022. Survey questions were based on an in-depth review of previous literature and opioid studies. Patients at risk for opioid overdose received naloxone prescriptions from our team. The survey study examined the proportion of caregivers who perceived a prescription of naloxone benefits the cancer patient and assessed the association between the patients' and caregivers' perceptions. We collected patient demographics and clinical information data. The survey was administered via telephone interview based on the caregivers' availability.</p><p><strong>Results: </strong>A total of 150 cancer patients and 29 caregivers were included in the analysis. A total of 100/150 (67%) patients and 23/29 (79%) caregivers perceived naloxone as beneficial. Cohen's κ showed fair agreement between the patients and their caregivers (Cohen's κ = 0.34, p = 0.034). A total of 26/29 (89.7%) caregivers felt confident in administering naloxone and calling for help. A total of 29/29 (100%) caregivers agreed that concurrent use of alcohol with pain medications increases risk of overdose.</p><p><strong>Significance of results: </strong>Cancer patients and caregivers perceived naloxone as beneficial and not likely to cause harm. Agreement between patients and caregivers was only fair, suggesting that better communication regarding naloxone is needed. More research is needed to identify barriers toward safe opioid prescription and increase awareness toward naloxone.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e230"},"PeriodicalIF":2.4,"publicationDate":"2026-09-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149013094","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A qualitative study exploring the pros and cons of universal pediatric palliative care referral at diagnosis for children with cancer - CORRIGENDUM.","authors":"Leeat Granek, S C M Veldhuijzen van Zanten, Dave Lysecki, Adam Rapoport, Natasha Datoo, Fyeza Hasan, Sumit Gupta, Lori Wiener, Kimberley Widger, Anthony Chan, Alisha Kassam, Karen Fergus, Emily McCullogh, Donna Johnston","doi":"10.1017/S1478951526103186","DOIUrl":"https://doi.org/10.1017/S1478951526103186","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e221"},"PeriodicalIF":2.4,"publicationDate":"2026-09-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149013120","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The hidden cost of loss: Professional bereavement and its effect on nurses' professional quality of life.","authors":"Esra Eryüksel, Azize Atli Özbaş","doi":"10.1017/S1478951526103514","DOIUrl":"https://doi.org/10.1017/S1478951526103514","url":null,"abstract":"<p><strong>Objective: </strong>Professional bereavement is a frequently overlooked yet significant experience among nurses, particularly in contexts involving serious illness and end-of-life care. Its impact on professional quality of life remains insufficiently understood. This study aimed to examine the relationship between professional bereavement and professional quality of life among nurses.</p><p><strong>Methods: </strong>This descriptive correlational study was conducted with 176 nurses working in three hospitals in Ankara, Türkiye, between January and June 2022. Data were collected using the Professional Bereavement Scale and the Professional Quality of Life Scale. Pearson correlation and multiple linear regression analyses were performed to examine relationships and predictive effects.</p><p><strong>Results: </strong>Nurses' short-term reactions to professional bereavement were moderate, whereas cumulative effects were above average. Nurses with postgraduate education had significantly higher accumulated global change scores than those with a bachelor's degree. Short-term bereavement reactions showed weak positive correlations with compassion satisfaction, burnout, and compassion fatigue, whereas cumulative changes showed moderate positive correlations with compassion satisfaction and compassion fatigue. Regression analysis indicated that both short-term and cumulative dimensions of professional bereavement significantly predicted professional quality of life, with cumulative changes explaining 30-38% of the variance in compassion fatigue.</p><p><strong>Significance of results: </strong>Professional bereavement is a significant predictor of nurses' professional quality of life, highlighting the need for bereavement-focused support to promote psychological well-being and sustainable care. This study uniquely demonstrates differential effects of short-term versus cumulative professional bereavement on compassion satisfaction, burnout, and compassion fatigue and suggests that postgraduate education may paradoxically increase vulnerability to cumulative grief among nurses.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e229"},"PeriodicalIF":2.4,"publicationDate":"2026-09-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149013149","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Addressing death anxiety in caregivers of patients with malignant glioma: A Phase 1a Define trial investigating the suitability of CALM therapy.","authors":"Kelcie D Willis, Lillia Thumma, Amber Fox, Morgan P Reid, Bruce Rybarczyk, Suzanne E Mazzeo, Jared W Keeley, Gary Rodin, Ashlee R Loughan","doi":"10.1017/S1478951526103460","DOIUrl":"https://doi.org/10.1017/S1478951526103460","url":null,"abstract":"<p><strong>Objectives: </strong>Managing Cancer and Living Meaningfully (CALM) therapy may be a beneficial intervention for addressing death anxiety in caregivers yet has not been formally evaluated in this population. The purpose of this Phase 1a Define trial was to evaluate the suitability of CALM for caregivers of patients diagnosed with malignant glioma using qualitative stakeholder interviews prior to pilot testing.</p><p><strong>Methods: </strong>Twenty-two bereaved caregivers participated in a focus group and completed subsequent caregiver-reported outcome measures. During the focus group, caregivers received information about CALM and provided feedback on the intervention's relevance and recommendations to improve its content and delivery for the caregiving experience. A team of coders qualitatively analyzed responses using thematic, deductive, latent analysis (kappa = 0.86).</p><p><strong>Results: </strong>Results suggest that CALM is highly relevant to the caregiving experience and may benefit caregivers emotionally, increase preparedness and self-efficacy in their role, improve their communication with the patient, and provide a unique opportunity to receive specialized care. Potential hurdles for participation included limited time and energy, concerns about burdening the patient by sharing their emotions, and worries that their loved one would not be emotionally or cognitively capable of participating. Participants also recommended additional content areas relevant to caregiving (i.e., burden and bereavement) and provided suggestions to improve CALM's delivery (timing, initial presentation, session format, and logistics).</p><p><strong>Significance of results: </strong>Participants' feedback was largely positive and supports piloting an optimized CALM protocol among malignant glioma caregivers. Further research is needed to determine CALM's effectiveness in caregivers of patients with malignant gliomas.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e224"},"PeriodicalIF":2.4,"publicationDate":"2026-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148963985","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Prevalence of distress and changes over time among patients with idiopathic pulmonary fibrosis and progressive pulmonary fibrosis.","authors":"Tomoko Umimura, Koji Sugano, Kei Matsuno, Saori Hotta, Mitsuhiro Fujii, Hiroaki Ihara, Kazuhisa Takahashi","doi":"10.1017/S1478951526103496","DOIUrl":"https://doi.org/10.1017/S1478951526103496","url":null,"abstract":"<p><strong>Objectives: </strong>Patients with idiopathic pulmonary fibrosis (IPF) and progressive pulmonary fibrosis (PPF) frequently experience respiratory symptoms and declines in activities of daily living (ADL) and quality of life (QOL). However, effective treatment and palliative care strategies remain limited. This study aimed to clarify physical and psychological distress and to evaluate 1-year symptom changes in patients with IPF and PPF.</p><p><strong>Methods: </strong>Consecutive patients with IPF or PPF were recruited and evaluated at registration (T0), 26 weeks (T1), and 52 weeks (T2). Symptoms, ADL, QOL, depressive condition, laboratory findings, and other factors were assessed throughout the 52-week follow-up.</p><p><strong>Results: </strong>Of the 70 patients, 32 had IPF and 38 had PPF. Repeated-measures analysis of variance showed that dyspnea in patients with IPF worsened from T1 to T2 (p = 0.02). In contrast, cough, which is one of the major symptoms in PPF worsened from T0 to T1 (p = 0.01) and T0 to T2 (p = 0.02). QOL in patients with PPF also declined from T0 to T1 (p = 0.03).</p><p><strong>Significance of results: </strong>Patients with IPF and PPF demonstrated several clinical signs and symptoms. In this 1-year follow-up study, dyspnea tended to be worse in patients with IPF and cough in PPF patients, and QOL was temporarily worse in PPF patients. Respiratory symptoms are directly related to the patient's daily life and lead to reduced QOL. Therefore, further long-term studies in this population are required.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e223"},"PeriodicalIF":2.4,"publicationDate":"2026-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148963935","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychometric validation of the Arabic version of the Functional Assessment of Chronic Illness Therapy-Treatment Satisfaction-General (FACIT-TS-G) Questionnaire among patients with cancer.","authors":"Celine Jakal, Nelly Kheir, Mirna Fawaz, Ali Hemade, Sahar Obeid, Clemence Matta, Feten Fekih-Romdhane, Souheil Hallit","doi":"10.1017/S1478951526103484","DOIUrl":"https://doi.org/10.1017/S1478951526103484","url":null,"abstract":"<p><strong>Background: </strong>Treatment satisfaction is an important patient-reported outcome reflecting patients' perceptions of treatment effectiveness, tolerability, and overall experience with care. Valid and culturally adapted instruments are needed to assess treatment satisfaction among Arabic-speaking patients with cancer in Lebanon. This study aimed to validate the Arabic version of the Functional Assessment of Chronic Illness Therapy-Treatment Satisfaction (FACIT-TS) Scale among Lebanese patients with cancer.</p><p><strong>Methods: </strong>A cross-sectional study was conducted among patients with cancer from Lebanon. Participants completed the Arabic FACIT-TS along with measures assessing quality of life, psychological distress, and perceived social support. Confirmatory factor analysis (CFA) was performed to evaluate the factorial structure of the scale.</p><p><strong>Results: </strong>CFA supported a unidimensional structure of the Arabic FACIT-TS with satisfactory fit indices. The scale demonstrated good internal consistency (Cronbach's α = 0.87; McDonald's ω = 0.87). Measurement invariance across gender was supported at configural, metric, scalar, and strict levels. No significant difference in treatment satisfaction scores was observed between male and female patients. Higher treatment satisfaction was associated with better quality of life, greater perceived social support, and reduced psychological distress.</p><p><strong>Conclusion: </strong>The Arabic version of the FACIT-TS demonstrated satisfactory reliability and validity among patients with cancer. The instrument appears to be a psychometrically sound tool for assessing treatment satisfaction among Lebanese patients with cancer and may support the integration of patient-reported outcomes into clinical practice and research within Lebanese oncology settings and potentially similar Arabic-speaking clinical contexts pending further validation.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e226"},"PeriodicalIF":2.4,"publicationDate":"2026-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148931350","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effect of mindfulness-based stress reduction on nursing interns' death anxiety, stress, and palliative care self-efficacy during oncology end-of-life training.","authors":"Donia Elsaid Fathi Zaghamir, Ateya Megahed Ibrahim, Hala Samir Ahmed El-Husseiny","doi":"10.1017/S1478951526103447","DOIUrl":"https://doi.org/10.1017/S1478951526103447","url":null,"abstract":"<p><strong>Objectives: </strong>Nursing interns often experience high levels of death anxiety and stress, which can reduce their comfort and confidence in caring for dying patients. This study evaluated the effects of an 8-week Mindfulness-Based Stress Reduction (MBSR) program on death anxiety, perceived stress, and attitudes toward care of the dying among nursing interns during palliative and oncology rotations.</p><p><strong>Methods: </strong>A quasi-experimental pre-post design was used with 120 final-year Bachelor of Science in nursing interns at Prince Sattam Bin Abdulaziz University, Saudi Arabia. Participants completed the 8-week MBSR program following Kabat-Zinn's original protocol, including weekly 2-hour sessions, a silent retreat, and daily home practice. Pre- and post-intervention assessments were conducted using the Death Attitude Profile-Revised (DAP-R), Perceived Stress Scale (PSS-10), and Frommelt Attitude Toward Care of the Dying Scale Form B (FATCOD-B). Data were analyzed using paired t-tests, effect sizes (Cohen's <i>d</i>), Pearson correlations, and multiple linear regression to identify predictors of post-intervention attitudes.</p><p><strong>Results: </strong>Post-intervention, nursing interns showed a significant reduction in death anxiety (DAP-R: 134.67 ± 6.70 vs. 118.46 ± 7.85; <i>t</i> = 33.39, <i>p</i> < 0.001, <i>d</i> = 3.05) and perceived stress (PSS-10: 20.29 ± 2.94 vs. 19.41 ± 3.36; <i>t</i> = 4.25, <i>p</i> < 0.001, <i>d</i> = 0.39). Attitudes toward caring for dying patients improved significantly (FATCOD-B: 84.10 ± 4.99 vs. 90.01 ± 5.64; <i>t</i> = -16.95, <i>p</i> < 0.001, <i>d</i> = 1.55). Baseline FATCOD-B scores were the strongest predictor of post-intervention attitudes (<i>β</i> = 0.778, <i>p</i> < 0.001). Correlations between constructs were weak, indicating that death anxiety, perceived stress, and care attitudes represent distinct dimensions.</p><p><strong>Significance of results: </strong>These findings highlight that mindfulness training can enhance emotional resilience, reduce anxiety and stress, and positively shape attitudes toward caring for dying patients. Integrating MBSR into nursing education during palliative rotations may better prepare interns to provide compassionate, human-centered end-of-life care, ultimately improving patient and family experiences in terminal illness settings.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e222"},"PeriodicalIF":2.4,"publicationDate":"2026-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148931386","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Beyond decision-making self-efficacy: The role of spiritual well-being in advance care planning among frail older adults.","authors":"Padmi Dhyah Yulianti, Arri Handayani, Agus Setiawan","doi":"10.1017/S1478951526103253","DOIUrl":"https://doi.org/10.1017/S1478951526103253","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e217"},"PeriodicalIF":2.4,"publicationDate":"2026-09-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148921308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}