Ibrahim Al Shhadat, Lisa-Maria Wobst, Gabriele Meyer, Rustem Makhmutov, Steffen Fleischer
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The systematic literature search was conducted in MEDLINE via PubMed, CINAHL, Cochrane Library, and Web of Science. Study statements were analyzed with a clear distinction between PC as EOL care and other EOL decisions, such as euthanasia, withdrawal, or withholding of one or more life-sustaining treatments or medications.</p><p><strong>Results: </strong>Sixty studies published between 1998 and 2022 were included. Only a few studies made statements about EOL care. The majority of studies focused on forms of euthanasia and indicated negative attitudes toward euthanasia, assisted suicide, and some other EOL decisions. Reasons for rejection include theological arguments, ethical and moral considerations, and others. Reasons for acceptance were principles of good death and dying, medical justifications, and others. 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引用次数: 0
摘要
目的：伊斯兰信仰的人使用姑息治疗（PC）服务被认为是有限的。基本缺乏适合目标群体的个人电脑服务，缺乏相关知识和接受度。从治疗到PC的转变通常被认为是有问题的。在伊斯兰信仰人群中，影响个人电脑使用和生命终结（EOL）决定和偏好的因素在很大程度上尚不清楚。方法：采用乔安娜布里格斯研究所的方法进行范围审查。在2022年8月底之前以英语、德语或阿拉伯语发表的任何设计的研究都有资格纳入。通过PubMed、CINAHL、Cochrane Library和Web of Science在MEDLINE进行系统文献检索。对研究报告进行了分析，明确区分了PC作为EOL护理和其他EOL决定，如安乐死，退出或保留一种或多种维持生命的治疗或药物。结果：纳入了1998年至2022年间发表的60项研究。只有少数研究发表了关于EOL护理的声明。大多数研究集中在安乐死的形式上，并表明了对安乐死、协助自杀和其他一些EOL决定的负面态度。拒绝的理由包括神学论证、伦理和道德考虑等。接受的理由有善终和临终原则、医学理由和其他。确定了使用个人护理的以下障碍：法律和政策、缺乏必要的资源、文化规范和价值观、卫生保健系统的结构、患者、亲属和卫生保健人员以及其他人之间的沟通和互动。结果的意义：本综述确定了穆斯林群体在做出EOL决策时的偏好和困难，并确定了特定PC的障碍。研究结果提示了如何克服这些障碍。
The use of palliative care by people of Islamic faith and their preferences and decisions at the end of life: A scoping review.
Objectives: The use of palliative care (PC) services from people of Islamic faith is seen limited. There are a fundamental lack of PC services appropriate to the target group and a lack of knowledge and acceptance. The transition from curative to PC is often perceived as problematic. Factors influencing PC use and end-of-life (EOL) decisions and preferences among people of Islamic faith are largely unclear.
Methods: A scoping review was carried out using the methodology of the Joanna Briggs Institute. Studies of any design, published in English, German, or Arabic, and published by the end of August 2022, were eligible for inclusion. The systematic literature search was conducted in MEDLINE via PubMed, CINAHL, Cochrane Library, and Web of Science. Study statements were analyzed with a clear distinction between PC as EOL care and other EOL decisions, such as euthanasia, withdrawal, or withholding of one or more life-sustaining treatments or medications.
Results: Sixty studies published between 1998 and 2022 were included. Only a few studies made statements about EOL care. The majority of studies focused on forms of euthanasia and indicated negative attitudes toward euthanasia, assisted suicide, and some other EOL decisions. Reasons for rejection include theological arguments, ethical and moral considerations, and others. Reasons for acceptance were principles of good death and dying, medical justifications, and others. The following barriers to the use of PC were identified laws and policies, lack of necessary resources, cultural norms and values, structure of the health-care system, communication and interaction between patients, relatives, and health-care staff, and others.
Significance of results: This review identifies the preferences for and difficulties in making EOL decisions and identifies barriers to specific PC for the Muslim population. Findings suggest how these barriers might be overcome.
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