Palliative & Supportive Care最新文献

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Development and cultural adaptation of the HOPE spiritual assessment tool to Swedish (HOPE-SE): Expert evaluation in specialized palliative care. 瑞典HOPE精神评估工具(HOPE- se)的发展和文化适应:专业姑息治疗的专家评估。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2026-05-08 DOI: 10.1017/S1478951526102533
Johan Sundelöf, Bodil Holmberg, Christina Melin-Johansson
{"title":"Development and cultural adaptation of the HOPE spiritual assessment tool to Swedish (HOPE-SE): Expert evaluation in specialized palliative care.","authors":"Johan Sundelöf, Bodil Holmberg, Christina Melin-Johansson","doi":"10.1017/S1478951526102533","DOIUrl":"https://doi.org/10.1017/S1478951526102533","url":null,"abstract":"<p><strong>Objectives: </strong>The HOPE spiritual assessment tool (HOPE tool), developed by Anandarajah and Hight, is a clinician-administered tool used to support the identification of patients' existential, spiritual, and religious concerns. In Sweden, a foundational translation exists, but a culturally adapted version suited to a secular and multicultural context is lacking. This study aimed to develop a culturally adapted Swedish version (HOPE-SE) and assess its comprehensibility (face validity) and perceived relevance and coverage (content validity) among specialized palliative care professionals.</p><p><strong>Methods: </strong>Building on an earlier Swedish translation of the original 18-item HOPE, we conducted an observational cross-sectional development and expert evaluation study, in accordance with the STROBE (Strengthening the Reporting of Observational Studies in Epidemiology) guidelines, to simplify wording, improve item focus, streamline flow, and add prompts addressing non-religious existential concerns, resulting in a 16-item draft (HOPE-SE). Expert evaluation was conducted by 18 interdisciplinary experts in specialized palliative care (nurses, <i>n</i> = 6; physicians, <i>n</i> = 9; social workers, <i>n</i> = 3) who provided structured written feedback and participated in cognitive debriefing interviews. The written evaluation was summarized descriptively. The interviews were analyzed using descriptive content analysis of transcripts of the digitally recorded interviews.</p><p><strong>Results: </strong>Experts generally perceived HOPE-SE as understandable, acceptable, and clinically useful for initiating conversations about existential, spiritual, and religious concerns. Feedback led to minor wording refinements, clarification of potentially sensitive formulations, and the addition of a brief consent-based introduction to support timing and patient autonomy. The final HOPE-SE was approved by all experts and by the original HOPE author.</p><p><strong>Significance of results: </strong>HOPE-SE provides the first expert-reviewed Swedish conversation guide addressing existential, spiritual, and religious needs, intended to support spiritual history-taking in a multicultural healthcare context. Patient studies are needed to evaluate content validity and implementation in Swedish settings.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e137"},"PeriodicalIF":2.1,"publicationDate":"2026-05-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147844662","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Manic and hypomanic states in cancer patients: A systematic review. 癌症患者的躁狂和轻躁状态:系统回顾。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2026-05-08 DOI: 10.1017/S1478951526102466
Kyoko Osawa, Daisuke Fujisawa
{"title":"Manic and hypomanic states in cancer patients: A systematic review.","authors":"Kyoko Osawa, Daisuke Fujisawa","doi":"10.1017/S1478951526102466","DOIUrl":"https://doi.org/10.1017/S1478951526102466","url":null,"abstract":"<p><strong>Objectives: </strong>While there have been reports on the relationship between cancer and depression, reports on the association between cancer and manic states, a reciprocal state of depression, have been relatively few. Therefore, we conducted a systematic review on the relationships between cancer and manic states, focusing on their etiology, clinical course, and impact on cancer treatments.</p><p><strong>Methods: </strong>A systematic review was conducted using four electronic databases, following the PRISMA guidelines. The scope of the study included research on manic or hypomanic states associated with cancer in patients with no prior history of mental illness, published from 1950 to August, 2021. The study protocol was registered with PROSPERO (CRD42020182372).</p><p><strong>Results: </strong>Fifty-six studies, including 67 cases, were identified. The etiology of manic states in cancer patients was classified into organic, drug-induced, and psychogenic, with steroids being the most predominant causative agent. Approximately half of the patients discontinued cancer treatment following the onset of manic states. This was associated with a low rate of pharmacological treatment during the acute and maintenance phase of mania. The onset of manic states was most frequent during cancer treatment; however, about 15% of the cases exhibit manic symptoms before cancer diagnosis.</p><p><strong>Significance of results: </strong>This systematic review illustrated the clinical characteristics of manic state regarding differences in the etiology, timing of onset, pharmacological treatments, duration to remission, recurrence, and impact on cancer treatment. Manic states, which are comorbid with cancer, have significant clinical impacts on cancer prognosis. Therefore, appropriate pharmacological treatment for manic states is critical to consolidate appropriate cancer treatment. A substantial proportion of patients exhibit manic symptoms prior to the diagnosis of cancer, warranting further investigation into the possibility of the concept of \"premonitory mania.\"</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e138"},"PeriodicalIF":2.1,"publicationDate":"2026-05-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147844670","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring home care nurses' perceived competence and self-efficacy in palliative care delivery: A cross-sectional study. 探讨家庭护理护士在姑息治疗服务中的感知能力和自我效能:一项横断面研究。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2026-05-07 DOI: 10.1017/S1478951526102594
Joanne Ta, Joanne Tay, Kathryn Pfaff
{"title":"Exploring home care nurses' perceived competence and self-efficacy in palliative care delivery: A cross-sectional study.","authors":"Joanne Ta, Joanne Tay, Kathryn Pfaff","doi":"10.1017/S1478951526102594","DOIUrl":"https://doi.org/10.1017/S1478951526102594","url":null,"abstract":"<p><strong>Background: </strong>Integration of home-based palliative care (PC) enables patients to receive care at home, fosters family involvement, and reduces healthcare costs. Despite its benefits, nurses report challenges in delivering competent PC, and limited research has explored how home care nurses perceive their own competence and self-efficacy within this context.</p><p><strong>Objectives: </strong>The study aimed to explore Ontario nurses' perceived competence and self-efficacy in home-based PC delivery. It also examined the relationship between both constructs, perceived competence and self-efficacy.</p><p><strong>Methods: </strong>A cross-sectional design was used with 2 validated survey tools: the 10-domain Palliative Care Nursing Self-Competence scale and the 2-domain Palliative Care Self-Efficacy scale. Ontario home care and nursing organizations were contacted to assist with recruitment by disseminating a Qualtrics survey link via mass email to nurses who had provided home-based PC. A minimum of 219 participants was required based on a G*Power analysis. Data were collected over 2 months with 2 reminder emails. Descriptive analysis and Spearman's rank correlation were conducted to address the research questions.</p><p><strong>Results: </strong>Seventy-two registered nurses and 38 registered practical nurses reported the highest levels of perceived competence in addressing functional care, while spiritual care emerged as the most challenging domain. Self-efficacy was higher in psychosocial care than in symptom management. A strong positive correlation was found between perceived competence and self-efficacy (<i>ρ</i> = .69, <i>p</i> <.001), highlighting the interconnected nature of these constructs in home-based PC.</p><p><strong>Significance of results: </strong>Nurses' low perceived competence and self-efficacy in spiritual care and symptom management highlight gaps in meeting patients' holistic care needs. Nurses must be better equipped to manage the psychosocial and spiritual care needs of patients and families. Strengthening training and resources can enhance holistic PC delivery and nurses' preparedness, thereby supporting nurse retention and the quality and sustainability of home-based PC.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e136"},"PeriodicalIF":2.1,"publicationDate":"2026-05-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147844703","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Integrated palliative nursing interventions for older adults with cancer: Effects on quality of life, psychological outcomes, and symptom burden. 老年癌症患者的综合姑息护理干预:对生活质量、心理结局和症状负担的影响
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2026-05-07 DOI: 10.1017/S147895152610248X
Ateya Megahed Ibrahim, Donia Elsaid Fathi Zaghamir
{"title":"Integrated palliative nursing interventions for older adults with cancer: Effects on quality of life, psychological outcomes, and symptom burden.","authors":"Ateya Megahed Ibrahim, Donia Elsaid Fathi Zaghamir","doi":"10.1017/S147895152610248X","DOIUrl":"https://doi.org/10.1017/S147895152610248X","url":null,"abstract":"<p><strong>Objectives: </strong>Older adults with cancer frequently experience high symptom burden, psychological distress, and reduced quality of life. Integrating palliative nursing interventions into routine oncology care has the potential to improve these outcomes, yet evidence examining their measurable effects remains limited. This study aimed to examine the effects of integrated palliative nursing interventions on quality of life, psychological outcomes, and symptom burden among older adults with cancer.</p><p><strong>Methods: </strong>A quasi-experimental one-group pre-test-post-test design was conducted at King Khaled Hospital, Al-Kharj, Saudi Arabia, including 80 older adults (≥60 years) with confirmed cancer diagnosis. Participants received a structured 6-week integrated palliative nursing intervention comprising 12 sessions (2 sessions/week) addressing physical, psychological, social, functional, and spiritual needs. Outcome measures included the Functional Assessment of Cancer Therapy-General (FACT-G) for quality of life, the National Comprehensive Cancer Network (NCCN) Distress Thermometer for psychological outcomes, and the Edmonton Symptom Assessment System (ESAS-r) for symptom burden. Pre- and post-intervention assessments were conducted, and data were analyzed using paired <i>t</i>-tests, Pearson correlations, and multiple linear regression.</p><p><strong>Results: </strong>All 80 participants completed the study, and no attrition was observed during the 6-week intervention period. Post-intervention, participants demonstrated significant improvements in overall quality of life (FACT-G total: 39.65 ± 5.51 → 66.41 ± 6.25, <i>p</i> < .001) and all subscales. Distress scores (NCCN) decreased from 21.93 ± 2.49 to 6.99 ± 2.37 (<i>p</i> < .001), and total symptom burden (ESAS) declined from 63.56 ± 6.31 to 41.09 ± 6.88 (<i>p</i> < .001). Regression analysis identified baseline scores as significant predictors of post-intervention outcomes: pre-intervention FACT-G scores and cancer type for quality of life [<i>R</i><sup>2</sup> = 0.660, <i>F</i> (8, 71) = 17.199, <i>p</i> < .001), pre-intervention NCCN scores for distress (<i>R</i><sup>2</sup> = 0.219, F (8, 71) = 2.487, <i>p</i> = .019), and pre-intervention ESAS scores for symptom burden (<i>R</i><sup>2</sup> = 0.757, <i>F</i> (8, 71) = 27.697, <i>p</i> < .001). These results indicated that baseline status strongly predicts post-intervention outcomes, while demographic and clinical variables had minimal impact.</p><p><strong>Significance of the results: </strong>Structured integrated palliative nursing interventions significantly enhance quality of life and reduce psychological distress and symptom burden in older adults with cancer. Incorporating multidimensional, patient-centered palliative care within routine oncology practice can improve clinical outcomes, with baseline status serving as an important determinant of intervention effectiveness.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e134"},"PeriodicalIF":2.1,"publicationDate":"2026-05-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147844736","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Musical Rounds: A multisite, mixed-methods feasibility study of a musical legacy session in palliative care. 音乐回合:一个多地点,混合方法的可行性研究的音乐遗产会议在姑息治疗。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2026-05-07 DOI: 10.1017/S1478951526102624
Melanie Ambler, Mukta Awasthi, Lynn Gerber, Bryant Lin, Claire E Wakefield
{"title":"Musical Rounds: A multisite, mixed-methods feasibility study of a musical legacy session in palliative care.","authors":"Melanie Ambler, Mukta Awasthi, Lynn Gerber, Bryant Lin, Claire E Wakefield","doi":"10.1017/S1478951526102624","DOIUrl":"https://doi.org/10.1017/S1478951526102624","url":null,"abstract":"<p><strong>Objectives: </strong>Patients hospitalized with a life-limiting illness, along with their loved ones, frequently experience anxiety, stress, and pain. Legacy building through storytelling and music may alleviate emotional strain and provide comfort. Musical Rounds is a novel music medicine program designed to reduce distress and support legacy building for adult patients receiving palliative care and their loved ones.</p><p><strong>Methods: </strong>This multisite, mixed-methods, pre-post feasibility study was conducted across 3 hospitals in California, USA. Participants engaged in live bedside recording sessions in which personal stories were shared with real-time musical improvisation provided by a clinician-musician. Afterward, participants received a personalized edited recording combining voice and improvised music. Pain, stress, anxiety, and comfort were assessed before and after each session using a 0-10 numeric rating scale. Perceived mood changes were assessed through directed qualitative content analysis.</p><p><strong>Results: </strong>We invited 100 adult patients hospitalized with a life-limiting illness and their loved ones to participate. If patients were unable to respond, loved ones participated on their behalf. Patients (<i>n</i> = 79) demonstrated statistically significant within-group differences between pre- and post-session assessments, including lower pain (-1.58, <i>p</i> < .001), stress (-2.89, <i>p</i> < .001), and anxiety (-2.73, <i>p</i> < .001), and higher comfort (+1.61, <i>p</i> < .001). Loved ones (<i>n</i> = 42) reported lower stress (-3.14, <i>p</i> < .001) and anxiety (-2.86, <i>p</i> < .001), and higher comfort (+1.83, <i>p</i> = .004). Directed content analysis indicated perceived mood improvement in 59% (47/80) of patients and 68% (30/44) of loved ones.</p><p><strong>Significance of results: </strong>Musical Rounds, a personalized music and storytelling session for hospitalized patients with life-limiting illness and their loved ones, was associated with lower self-reported stress, pain (patients only), and anxiety, and higher comfort and perceived mood across 3 hospitals. Findings demonstrate the feasibility and suggest potential benefits of music medicine-supported legacy building in palliative care. Controlled studies with independent assessors are needed to further evaluate efficacy.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e135"},"PeriodicalIF":2.1,"publicationDate":"2026-05-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147844090","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Anticipatory grief among caregivers of people living with dementia: A scoping review. 痴呆症患者护理人员的预期悲伤:一项范围审查。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2026-05-06 DOI: 10.1017/S1478951526102478
Nury Alejandra Rodriguez Colmenares, Loreli Alvarez, James Gilbreath, Adelais Markaki, Julie Schexnayder, Frank Puga
{"title":"Anticipatory grief among caregivers of people living with dementia: A scoping review.","authors":"Nury Alejandra Rodriguez Colmenares, Loreli Alvarez, James Gilbreath, Adelais Markaki, Julie Schexnayder, Frank Puga","doi":"10.1017/S1478951526102478","DOIUrl":"10.1017/S1478951526102478","url":null,"abstract":"<p><strong>Objectives: </strong>As Alzheimer's disease and related dementias (ADRD) progress, family caregivers may experience grief before the death of the person living with ADRD. This type of grief is commonly referred to as anticipatory grief, which can contribute to increased psychological distress (i.e., depressive and anxiety symptoms) and potentially affect caregivers' long-term mental health. This scoping review aimed to synthesize evidence on risk and resilience factors associated with anticipatory grief, its relationship with caregiver mental health, and psychosocial interventions targeting anticipatory grief among caregivers of people living with ADRD.</p><p><strong>Methods: </strong>Guided by the Stress Process Model and the Grief-Stress Model, a literature search was conducted in PubMed, CINAHL, Embase, Scopus, Web of Science, and PsycINFO in May 2025.</p><p><strong>Results: </strong>Thirty articles met the inclusion criteria. Caregiver characteristics, such as being a spousal caregiver and greater caregiving involvement, were associated with higher levels of anticipatory grief. Caregiving-related stressors and relationship changes across the ADRD trajectory were consistently linked to anticipatory grief across studies, while psychosocial resources, such as adaptive coping and social support, were generally associated with lower levels of anticipatory grief. Anticipatory grief was consistently associated with depressive symptoms. Intervention studies were limited, but those focused on acceptance and preparedness showed potential for reducing anticipatory grief.</p><p><strong>Significance of results: </strong>Anticipatory grief represents an important dimension of caregiver mental health that reflects ongoing loss. Conceptualizing anticipatory grief within caregiving stress frameworks highlights how vulnerability to distress may emerge from the interplay between caregiving stressors, relationship changes, and psychosocial resources. This conceptual framing may inform future research and palliative care interventions to support the well-being of family caregivers across the dementia trajectory.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e130"},"PeriodicalIF":2.1,"publicationDate":"2026-05-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147844575","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding the desire for hastened death in terminal cancer: Implications for whole-person palliative care. 理解晚期癌症患者加速死亡的愿望:对全人姑息治疗的影响。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2026-05-04 DOI: 10.1017/S147895152610265X
Beulah Joy Damasco, Hazel Agbayani, Giovanni Jan Sanchez
{"title":"Understanding the desire for hastened death in terminal cancer: Implications for whole-person palliative care.","authors":"Beulah Joy Damasco, Hazel Agbayani, Giovanni Jan Sanchez","doi":"10.1017/S147895152610265X","DOIUrl":"https://doi.org/10.1017/S147895152610265X","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e133"},"PeriodicalIF":2.1,"publicationDate":"2026-05-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147822243","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Beyond intervention: The clinical meaning of non-intervention in serious illness. 超越干预:大病不干预的临床意义。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2026-05-04 DOI: 10.1017/S1478951526102545
João Carlos Geber-Júnior
{"title":"Beyond intervention: The clinical meaning of non-intervention in serious illness.","authors":"João Carlos Geber-Júnior","doi":"10.1017/S1478951526102545","DOIUrl":"https://doi.org/10.1017/S1478951526102545","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e131"},"PeriodicalIF":2.1,"publicationDate":"2026-05-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147822306","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Relational-temporal dignity at the end of life: Ethical foundations for the DiRePal model in the algorithmic age. 生命终结时的关系-时间尊严:算法时代DiRePal模型的伦理基础。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2026-05-04 DOI: 10.1017/S1478951526102648
Abel García Abejas
{"title":"Relational-temporal dignity at the end of life: Ethical foundations for the DiRePal model in the algorithmic age.","authors":"Abel García Abejas","doi":"10.1017/S1478951526102648","DOIUrl":"https://doi.org/10.1017/S1478951526102648","url":null,"abstract":"<p><strong>Objectives: </strong>The increasing presence of artificial intelligence (AI), electronic patient-reported outcomes (ePROMs), and digital infrastructures in palliative care is transforming how clinical encounters are organized and how suffering is interpreted. These technological shifts heighten the risk of relational compression and a reduction of dignity to measurable outputs. This paper proposes the DiRePal model (Relational-Temporal Dignity in Palliative Care) as a philosophical framework to re-examine dignity beyond coherent narrative identity or autonomy-centered ethics, emphasizing relational presence, temporal sensitivity, and structural conditions of care.</p><p><strong>Methods: </strong>A philosophical-ethical analysis informed by narrative identity (P. Ricoeur), ethics of alterity (E. Levinas), capabilities theory (M. Nussbaum), and care ethics (J. Tronto). Critical readings of dignity frameworks, AI ethics, and digital health literature were synthesized to develop a relational-temporal account of dignity and 2 operational concepts: the temporal dignity indicator and the architecture of prudence.</p><p><strong>Results: </strong>While digital tools can enhance communication and support anticipatory care, they also risk reducing patients to data profiles, narrowing listening practices, and eroding opportunities for narrative, silence, and relational presence. The DiRePal model reframes dignity as a fluctuating, co-constructed achievement that depends on temporal attentiveness, ethical listening, institutional conditions, and prudent integration of AI and ePROMs. It further expands dignity to include post-biographical dimensions such as memory, grievability, and digital legacy.</p><p><strong>Significance of results: </strong>End-of-life care in the algorithmic age requires an ethics that recognizes dignity as relational, temporal, and structurally mediated. The DiRePal model offers clinicians and institutions a conceptual grammar to resist technological reductionism, protect time for presence, and safeguard the narrative and post-biographical continuity of persons whose voices may be fragmented, vulnerable, or digitally extended.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e132"},"PeriodicalIF":2.1,"publicationDate":"2026-05-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147822230","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Definitional confusion in nurses' and physicians' attitudes toward euthanasia in India: A systematic review and meta-analysis. 印度护士和医生对安乐死态度的定义混乱:系统回顾和荟萃分析。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2026-05-04 DOI: 10.1017/S1478951526102235
Komal Kashyap, Joris Gielen
{"title":"Definitional confusion in nurses' and physicians' attitudes toward euthanasia in India: A systematic review and meta-analysis.","authors":"Komal Kashyap, Joris Gielen","doi":"10.1017/S1478951526102235","DOIUrl":"https://doi.org/10.1017/S1478951526102235","url":null,"abstract":"<p><strong>Introduction: </strong>In India, the term <i>euthanasia</i> is frequently used to describe a wide range of end-of-life practices, including withdrawal of life-sustaining treatment and administration of lethal drugs. Such usage diverges from more narrow definitions that restrict euthanasia to the intentional administration of lethal drugs.</p><p><strong>Objectives and significance of the results: </strong>This systematic review and meta-analysis examines how euthanasia has been defined and operationalized in quantitative studies of Indian physicians' and nurses' attitudes, and estimates the prevalence of approval when euthanasia is defined narrowly.</p><p><strong>Methods: </strong>Following PRISMA 2020 guidelines, searches were conducted in PubMed, EMBASE, PsycINFO, and CINAHL for studies published from 2010 onward. Two investigators independently screened studies, extracted data, and assessed risk of bias using the Mixed Methods Appraisal Tool (MMAT). Studies were included in the meta-analysis only if they reported attitudes toward euthanasia as narrowly defined.</p><p><strong>Results: </strong>Nine studies met inclusion criteria for the systematic review. Definitions of euthanasia varied considerably, and several studies combined attitudes toward treatment withdrawal with attitudes toward the administration of lethal drugs. Four studies reporting on 519 nurses and physicians provided data suitable for meta-analysis. Approval of euthanasia, defined as the intentional administration of lethal drugs, ranged from 12% to 20%, with a pooled prevalence of 16% (95% confidence interval: 0.13-0.19). This prevalence is notably lower than in earlier reports on Indian healthcare professionals' attitudes.</p><p><strong>Conclusion: </strong>Definitional inconsistency substantially affects reported attitudes toward euthanasia in Indian research. When euthanasia is defined narrowly, approval among healthcare professionals is low and consistent across studies. These findings highlight the need for conceptual clarity in future research to support accurate interpretation of empirical data and to strengthen the contribution of studies on ethical attitudes to ethical and palliative care scholarship.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e110"},"PeriodicalIF":2.1,"publicationDate":"2026-05-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147822270","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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