Palliative & Supportive Care最新文献

{"title":"The screen and the bedside.","authors":"Vangipuram Sai Shreya","doi":"10.1017/S1478951526103125","DOIUrl":"10.1017/S1478951526103125","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e184"},"PeriodicalIF":2.4,"publicationDate":"2026-06-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13312350/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148346986","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Practicing with what you left.","authors":"Zongyu Li","doi":"10.1017/S1478951526103113","DOIUrl":"10.1017/S1478951526103113","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e181"},"PeriodicalIF":2.4,"publicationDate":"2026-06-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13312360/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148333631","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Dementia and the hands of time.","authors":"Anthony Mark","doi":"10.1017/S1478951526103137","DOIUrl":"10.1017/S1478951526103137","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e182"},"PeriodicalIF":2.4,"publicationDate":"2026-06-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13312353/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148333598","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Shifting sands: How parents engage with the idea of their child's death.","authors":"Naomi T Katz, Jenny L Hynson, Lynn Gillam","doi":"10.1017/S1478951526103046","DOIUrl":"10.1017/S1478951526103046","url":null,"abstract":"<p><strong>Objectives.: </strong>While parental prognostic awareness is a vital concept, its complexity can sometimes be underestimated. Our study aimed to understand how parents of children with serious illness engage with the idea of their child's death from a lived experience perspective.</p><p><strong>Methods.: </strong>Bereaved parents of children known to a statewide pediatric palliative care service, who died at the age of 16 years or younger from any medical condition, participated in semi-structured interviews. Reflexive thematic analysis was employed, informed by a phenomenological framework.</p><p><strong>Results.: </strong>Twenty bereaved parents (6 fathers) participated; children ranged in age from 1 day to 16 years. Findings were categorized into 2 main themes: (1) Daily realities of engaging with the idea of death, with subthemes: variability in contemplating death, conversations with their child, conversations with family and friends, conversations with clinicians, making treatment decisions, and not engaging with death, and (2) factors influencing engagement, with subthemes: implicit factors, changes in clinical condition, and clinician communication.</p><p><strong>Significance of results.: </strong>Parents' engagement with the idea of their child's death was individual and dynamic. Our findings offer tangible examples of how parents contemplate and operationalize this engagement over time, helping clinicians appreciate the complex and non-binary nature of prognostic awareness. Clinicians should explore how parents engage with the idea of their child's death both during and outside clinical encounters over time, acknowledge their role in supporting and guiding parents, and recognize that there is no single way for parents to process the idea of their child's death.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e180"},"PeriodicalIF":2.4,"publicationDate":"2026-06-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13312368/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148320056","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Structure of the spiritual pain of bereaved caregivers of cancer patients: A preliminary scale development.","authors":"Hiroko Sumi, Shuji Hiramoto, Kento Masukawa, Tatsuya Morita, Yoshiyuki Kizawa, Satoru Tsuneto, Yasuo Shima, Mitsunori Miyashita, Yuki Shirai, Keiko Tamura","doi":"10.1017/S1478951526102776","DOIUrl":"10.1017/S1478951526102776","url":null,"abstract":"<p><strong>Background: </strong>Although spiritual pain in cancer patients has been extensively studied, little is known about the spiritual pain experienced by bereaved caregivers in Japan.</p><p><strong>Objectives: </strong>This preliminary scale development aimed to clarify the structure of spiritual pain experienced by bereaved caregivers of cancer patients.</p><p><strong>Methods: </strong>This preliminary scale development was conducted as a secondary analysis of the nationwide J-HOPE4 survey, a cross-sectional questionnaire study of bereaved family members of cancer patients. Thirty-five items related to spiritual pain were analyzed using exploratory factor analysis (EFA).</p><p><strong>Results: </strong>Responses were obtained from 930 bereaved caregivers in general hospitals and palliative care units. Seven constructs were obtained through the EFA: Loneliness, Life's heartlessness, A sense of unfinished business, Distress over patient deterioration, Remorse, Regret, and A sense of loss.</p><p><strong>Conclusion: </strong>This preliminary scale development provides insights into the structure of spiritual pain experienced by bereaved caregivers of cancer patients. Further validation using independent samples is required.</p><p><strong>Significance of results: </strong>Seven factors of spiritual pain were identified among bereaved caregivers of cancer patients, and understanding this multidimensional experience may inform supportive care.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e178"},"PeriodicalIF":2.4,"publicationDate":"2026-06-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13312367/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148309880","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The first reader: Montaigne and the body's particularity.","authors":"Henry Bair","doi":"10.1017/S1478951526102995","DOIUrl":"10.1017/S1478951526102995","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e179"},"PeriodicalIF":2.4,"publicationDate":"2026-06-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13312349/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148303491","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patterns of interaction between patients, family members, and health professionals as markers of identity in palliative care.","authors":"Isabel Galriça Neto","doi":"10.1017/S1478951526103009","DOIUrl":"10.1017/S1478951526103009","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e177"},"PeriodicalIF":2.4,"publicationDate":"2026-06-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13312363/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148296972","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Learning to remain: Silence, suffering, and the hidden curriculum of care.","authors":"Renato Lorenzon Maisano","doi":"10.1017/S1478951526103071","DOIUrl":"10.1017/S1478951526103071","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e176"},"PeriodicalIF":2.4,"publicationDate":"2026-06-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13280583/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148279308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Ensuring a good death: Priorities and concerns of healthcare personnel across healthcare settings.","authors":"Siren Eriksen, Anne Marie Mork Rokstad, Elisabeth Wiken Telenius, Kariann Krohne","doi":"10.1017/S1478951526102843","DOIUrl":"10.1017/S1478951526102843","url":null,"abstract":"<p><strong>Objectives: </strong>The primary objective of healthcare personnel involved in end-of-life care is to ensure a good and dignified death. However, end-of-life care is delivered across various healthcare settings. This qualitative study aimed to identify the priorities and concerns related to end-of-life care shared by healthcare personnel working in hospitals, nursing homes, and municipal home care.</p><p><strong>Methods: </strong>Twenty-two healthcare personnel from across Norway participated in virtual focus group interviews. Participants represented 3 distinct healthcare settings and had diverse professional backgrounds. Each interview was audio-recorded and transcribed verbatim. Qualitative content analysis was conducted and informed by theory on professional competence.</p><p><strong>Results: </strong>The analysis demonstrated that ensuring a good death was a shared focus among participants. Across settings, they expressed aligned priorities and concerns regarding end-of-life care. They likened their role to that of a pilot boat skipper, guiding the end-of-life process with a clear focus on: 1) offering support and information, 2) providing symptom relief, and 3) ensuring a presence at the bedside. Each of these themes highlights a key priority in end-of-life care across healthcare settings, along with its associated concerns.</p><p><strong>Significance of results: </strong>This study demonstrates that healthcare personnel across hospitals, nursing homes, and municipal home care share core priorities of what constitutes a good and dignified death. The findings challenge setting-specific assumptions in end-of-life care and support an emphasis on shared core competencies in education and practice. Overall, the study contributes to a more unified understanding of end-of-life care by highlighting foundational care values that transcend organizational boundaries and professional backgrounds, thereby supporting policies that promote continuity and coherence across care environments.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e174"},"PeriodicalIF":2.4,"publicationDate":"2026-06-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13280588/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148273404","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Elevating relevance of autoethnography in palliative care research.","authors":"Haryo Kunto Wibisono, Andra Pratama Juliyanto, Ahmad Yusroni, Muhammad Khairul Anwar, Nabila Septia Rosa, Weni Rosdiana","doi":"10.1017/S1478951526103010","DOIUrl":"10.1017/S1478951526103010","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e175"},"PeriodicalIF":2.4,"publicationDate":"2026-06-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13280585/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148273491","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}