Palliative & Supportive Care最新文献

{"title":"Palliative care psychiatry: A structural component of comprehensive palliative care.","authors":"Guida Da Ponte, Antonio Serrano García, Ianna Laisa Souza Sirqueira, Henrique Gonçalves Ribeiro, Génesis Alejandra Castillo Benavides, Rodrigo Corrado, José Antonio López, Tirso Ventura Faci","doi":"10.1017/S1478951526103733","DOIUrl":"https://doi.org/10.1017/S1478951526103733","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e244"},"PeriodicalIF":2.4,"publicationDate":"2026-09-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149070504","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A decade of palliative care needs in humanitarian settings: A systematic scoping review of literature between 2012 and 2022.","authors":"Michelle McGannan, Victoria Barber-Fleming, David Fearon, Liz Grant","doi":"10.1017/S1478951526103617","DOIUrl":"10.1017/S1478951526103617","url":null,"abstract":"<p><strong>Objectives: </strong>To better understand the palliative care needs of people with serious and/or chronic conditions, and their families, in humanitarian settings in low-and middle-income countries between 2012 and 2022.</p><p><strong>Methods: </strong>A systematic scoping review methodology was employed to enable a wide-ranging search of this under-researched area. Databases and websites were systematically searched, in addition to correspondence to key experts.</p><p><strong>Results: </strong>Eighty-eight documents were included, comprising 63 publications in peer-reviewed journals, 5 conference abstracts, 4 conference posters, 7 case reports, 5 reports, 2 research snapshots, 1 survey report, and 1 master's thesis. The majority of literature was from the Public Health Emergency setting including 42 documents related to COVID and 30 to Ebola. Significantly less literature was identified from other settings: refugee populations (<i>n</i> = 10), multiple settings (<i>n</i> = 3), natural disaster contexts (<i>n</i> = 2), and conflict settings (<i>n</i> = 1). Sixty-four documents considered patient needs, 17 considered combined patient/family needs and 7 focused on family needs. Forty-six documents focused on adults, 25 on adults/children, 6 on children with 11 having no age specification. Findings from individual humanitarian contexts were mapped to palliative care domains and themes presented narratively.</p><p><strong>Significance of results: </strong>The literature from Public Health Emergencies (Ebola and COVID) overshadowed other humanitarian contexts, demonstrating the comparative paucity of research in refugee, natural disaster, and conflict settings. The voice of children appeared under-represented, as did the perspective of family/caregivers. While there was strong research on pain and physical symptoms, holistic needs were also identified, highlighting the diversity of palliative care needs in humanitarian settings.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e238"},"PeriodicalIF":2.4,"publicationDate":"2026-09-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149070432","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Finding meaning in critical illness: Integrating spiritual and existential care into intensive care.","authors":"Sarah E Byrne-Martelli, Megan Miller, Jennifer Ross Majumdar, Christina Puchalski, William E Rosa, Jacopo D'Andria Ursoleo","doi":"10.1017/S147895152610371X","DOIUrl":"https://doi.org/10.1017/S147895152610371X","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e237"},"PeriodicalIF":2.4,"publicationDate":"2026-09-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149070443","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Teaching the invitation, not the keepsake: Extending simulation-based memory-making education.","authors":"Weerapong Lilitwat, Thomas Albert Hall Iv","doi":"10.1017/S1478951526103691","DOIUrl":"https://doi.org/10.1017/S1478951526103691","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e240"},"PeriodicalIF":2.4,"publicationDate":"2026-09-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149070417","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Working with hope: Learning from bereaved parents.","authors":"Naomi T Katz, Jenny L Hynson, Lynn Gillam","doi":"10.1017/S1478951526103678","DOIUrl":"https://doi.org/10.1017/S1478951526103678","url":null,"abstract":"<p><strong>Objectives: </strong>The complexity of hope in serious childhood illness can be underestimated in clinical practice. We sought to explore the lived experience of hope among bereaved parents to help clinicians interpret and engage with parents' varied and changing expressions of hope over the course of their child's illness.</p><p><strong>Methods: </strong>Semi-structured interviews were conducted with bereaved parents of children known to a statewide pediatric palliative care service who died aged 16 years or younger from any medical condition. A phenomenological framework underpinned the study, and reflexive thematic analysis was employed. Institutional ethics approval was obtained.</p><p><strong>Results: </strong>Twenty bereaved parents, including 6 fathers, participated. Their children ranged in age from 1 day to 16 years. Overall, parents' hopes were personal, multidimensional, and changed over time. Four main themes emerged: (1) Objects of hope, including survival, experiences in life, day-to-day normality, memory-making, and experiences at end-of-life; (2) patterns of hope, including hope's dynamic nature, alignment between parents, and hope and prognostic awareness; (3) factors that influence hope, including hope's intrinsic nature, clinical information, and clinician communication; and (4) the value of hope, both positive and negative.</p><p><strong>Significance of results: </strong>The study's findings support existing research describing hope as multidimensional, dynamic, and potentially coexisting with prognostic awareness. We share new insights into how clinicians can work with parental hope in ways that can be both beneficial and detrimental. Additionally, we describe how some parents may perceive hope as potentially harmful.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e239"},"PeriodicalIF":2.4,"publicationDate":"2026-09-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149070496","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Meaning-centered psychotherapy for existential distress in advanced cancer: A culturally informed case report from Vietnam.","authors":"Phuong Linh Hua, Thi Anh Thu Nguyễn","doi":"10.1017/S1478951526103563","DOIUrl":"10.1017/S1478951526103563","url":null,"abstract":"<p><strong>Objectives: </strong>Existential distress is common among patients with advanced cancer receiving palliative care and is associated with hopelessness, loss of meaning, spiritual distress, and desire for death. Meaning-centered psychotherapy (MCP) has shown potential in reducing existential suffering and improving psychological well-being in patients with advanced cancer. This article presents a case report describing the application of MCP in a young woman with advanced cancer experiencing depressive symptoms, trauma-related distress, hopelessness, and loss of meaning near the end of life.</p><p><strong>Methods: </strong>We report the case of a 24-year-old Vietnamese woman with advanced cancer who was referred for psychological intervention because of severe depressive symptoms, emotional instability, passive wishes for death, and childhood relational trauma. Sixteen psychotherapy sessions were delivered within a multidisciplinary palliative care team. The intervention followed a phased approach, beginning with Trauma-Focused Cognitive Behavioral Therapy-informed stabilization and subsequently transitioning to adapted Individual MCP. Clinical outcomes were evaluated using the Depression Anxiety Stress Scale-21, Beck Depression Inventory-II, and qualitative clinical observations.</p><p><strong>Results: </strong>Psychological reassessment demonstrated marked reductions in depression, anxiety, and stress, accompanied by improved emotional regulation, interpersonal functioning, illness acceptance, and relational reconnection. As her condition deteriorated, psychotherapy increasingly emphasized spiritual reflection, reconciliation, and preparation for death. Before death, she reaffirmed her Christian faith, received baptism, and fulfilled her wish for a Protestant funeral ceremony.</p><p><strong>Significance of results: </strong>This case illustrates the feasibility of integrating adapted MCP within multidisciplinary palliative care to address existential distress, facilitate meaning reconstruction, support spiritual integration, and promote end-of-life preparation in patients with advanced cancer.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e235"},"PeriodicalIF":2.4,"publicationDate":"2026-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149041369","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Palliative care nurses' goals of spiritual care.","authors":"Rita Mascio, Sandra Lynch, Jane Phillips, Megan Best","doi":"10.1017/S1478951526103381","DOIUrl":"https://doi.org/10.1017/S1478951526103381","url":null,"abstract":"<p><strong>Objectives: </strong>Personal, self-selected goals are important determinants of behavior in work settings. The present study aimed to elicit palliative care nurses' personal self-set goals of spiritual care and to test whether these goals were related to their spiritual care understanding.</p><p><strong>Methods: </strong>Data were collected from a convenience sample of palliative care nurses who completed an anonymous, online survey asking qualitative data about how they understand spiritual care and their goals for spiritual care. We conducted content analysis on the goal data to create categories of goals and created sub-groups of nurses based on their understanding of spiritual care. We constructed a co-occurrence table showing the frequency with which goals and spiritual care understandings co-occur across nurses and used a goodness-of-fit test and visual inspection to assess the relationship between goals and understanding.</p><p><strong>Results: </strong>Four categories of goals emerged: <i>patient well-being, patient's family well-being, task performance</i>, and <i>self-oriented</i> goals. There was no apparent relationship between goals and spiritual care understanding.</p><p><strong>Significance of results: </strong>Palliative care nurses' goals for spiritual care are characterized by greater variety than implied by prescriptive spiritual care models/guides that assume some type of patient well-being goal. That there was no relationship between goal and spiritual care understanding may be due to the goal-elicitation question evoking higher-order goals that are unrelated to specific spiritual care behaviors, which may be more influenced by lower-order goals.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e236"},"PeriodicalIF":2.4,"publicationDate":"2026-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149041364","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Global gaps in bereavement education and emotional burden among oncology residents: A 25-country cross-sectional survey.","authors":"Raffaele Giusti, Fotios Loupakis, Mirella Moro, Monica Mariniello, Elena Liotta, Marco Filetti, Maria Anna Siciliano, Giampiero Porzio","doi":"10.1017/S1478951526103587","DOIUrl":"https://doi.org/10.1017/S1478951526103587","url":null,"abstract":"<p><strong>Objectives: </strong>Bereavement care is integral to oncology but seldom formalized in residency curricula. We assessed bereavement education, self-perceived preparedness, and emotional burden among oncology residents, and explored associations between formal training and preparedness.>.</p><p><strong>Methods: </strong>We conducted an anonymous web-based cross-sectional survey of 165 oncology residents from 25 countries. Items assessed demographics, training characteristics, formal bereavement education, caregiver interactions, preparedness, challenges, and emotional consequences. Associations between formal training and 4-level preparedness used χ²; a binary contrast (≥\"Somewhat prepared\" vs <\"Somewhat prepared\") estimated odds ratios (ORs). Pearson's assessed correlation between caregiver-interaction frequency and preparedness.r.</p><p><strong>Results: </strong>Respondents were 55.2% female; 47.9% worked in academic centers; 44.2% had ≥5 years of training. Formal bereavement education was uncommon (17.0%). Preparedness was \"Somewhat/Very\" in 53.3% and \"Not very/Not at all\" in 46.7%. Training was associated with higher preparedness (χ²=13.03, df=3, =0.0046); being at least \"Somewhat prepared\" was more likely with training (OR 3.94, 95% CI 1.51-10.33). Interaction frequency correlated weakly with preparedness (=0.15). Common challenges were emotional fatigue (64.8%), fear of overstepping professional boundaries (56.4%), lack of training (53.3%), and time constraints (50.3%). Emotional consequences were frequent: 54.5% occasionally and 27.3% deeply affected; 36.6% had considered leaving residency. Nearly all endorsed bereavement education as integral to oncology training (99.4%).</p><p><strong>Significance of results: </strong>Training gaps co-exist with substantial emotional burden. Structured bereavement curricula, mentorship, and reflective practice may strengthen preparedness and resilience and improve caregiver support. Prospective studies should evaluate implementation strategies and effects on clinician well-being and care delivery.>.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e234"},"PeriodicalIF":2.4,"publicationDate":"2026-09-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149031472","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Advance care planning and documentation of goals of care designation among adults (≥18 years) living with human immunodeficiency virus (HIV): A cross-sectional study.","authors":"Avantika Vashisht, Raman Brar, Jacqueline McMillan","doi":"10.1017/S1478951526103435","DOIUrl":"https://doi.org/10.1017/S1478951526103435","url":null,"abstract":"<p><strong>Objectives: </strong>Antiretroviral therapy has transitioned human immunodeficiency virus (HIV) into a manageable chronic condition. As such, advance care planning is critical to providing patient-centered care for aging persons with HIV. The objectives of the study were to determine the proportion of adults living with HIV in Southern Alberta with a documented goals of care designation and explore factors influencing this documentation.</p><p><strong>Results: </strong>Ten percent (255/2567) of adults with HIV had a goal of care documentation in the electronic health record. Documentation did not differ by age, sex, or family physician status. Among patients with an ED visit in the prior year, 21% (225/1065) had a goal of care documentation compared to 2% of those without (<i>p</i> < 0.0001). Among those hospitalized in the prior year, 56% (203/364) had a goal of care documentation, compared to 2% of those without (<i>p</i> < 0.0001).</p><p><strong>Significance of results: </strong>A minority of adults living with HIV had a goal of care documentation.. These findings highlight missed opportunities and areas for improvement for advanced care discussions. There is an urgent need to enhance advanced care planning in this population.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e227"},"PeriodicalIF":2.4,"publicationDate":"2026-09-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149041409","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"When the prognosis was wrong (again).","authors":"Vangipuram Shankar","doi":"10.1017/S1478951526103629","DOIUrl":"https://doi.org/10.1017/S1478951526103629","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"24 ","pages":"e232"},"PeriodicalIF":2.4,"publicationDate":"2026-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149018282","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}