Palliative & Supportive Care最新文献

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Health professionals' and leaders' views on routine using patient-centered outcome measures in a Chinese palliative care unit: A qualitative study. 卫生专业人员和领导对中国姑息治疗单位常规使用以患者为中心的结果测量的看法:一项定性研究
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2025-08-26 DOI: 10.1017/S1478951525100369
Yunyun Dai, Barbara A Daveson, Jinfeng Ding, Yongyi Chen, Junchen Guo, Yu Cheng, Claire Johnson
{"title":"Health professionals' and leaders' views on routine using patient-centered outcome measures in a Chinese palliative care unit: A qualitative study.","authors":"Yunyun Dai, Barbara A Daveson, Jinfeng Ding, Yongyi Chen, Junchen Guo, Yu Cheng, Claire Johnson","doi":"10.1017/S1478951525100369","DOIUrl":"https://doi.org/10.1017/S1478951525100369","url":null,"abstract":"<p><strong>Background: </strong>A person-centered outcomes-based quality improvement program is lacking within palliative care in Mainland China. The well-established Australian Palliative Care Outcome Collaboration (PCOC) national model improves palliative care quality.</p><p><strong>Objectives: </strong>This study aimed to explore the barriers and facilitators perceived by healthcare providers to integrating the PCOC model in a Chinese hospital-based palliative care unit.</p><p><strong>Methods: </strong>A qualitative descriptive study was conducted using semi-structured focus group and individual interviews. A rapid deductive analysis approach was selected for data analysis. The Consolidated Framework for Implementation Research framework was used to guide the study design, data collection, analysis, and interpretation.</p><p><strong>Results: </strong>Eighteen healthcare professionals participated in this study, four focus group interviews and five individual interviews were completed. Barriers to the PCOC integration included clinical application and workload concerns (patients in terminal stage, patients' dialects, workload concerns, and staff shortages); attitudinal barriers (negative attitudes toward PCOC); psychological barriers (numbness to their work) and barriers related to knowledge and self-efficacy (lack of knowledge, capacity, and self-efficacy in palliative care). Facilitators included adapting the program to local contexts, ongoing education and feedback, effective PCOC data use, a supportive work and clinical environment and staff's perceived advantages of the model across clinical, research and process domains.</p><p><strong>Significance of results: </strong>The successful integration of the PCOC program hinges on local adaptation, improved data utilization, education, and IT support. In regions with less developed palliative care, enhancing professionals' knowledge and self-efficacy is crucial. Incorporating assessment and clinical response protocols into technology can accelerate palliative care development and implementation.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e151"},"PeriodicalIF":2.1,"publicationDate":"2025-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144974181","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Social determinants of multimorbidity in older adults in sub-saharan Africa: A systematic review. 撒哈拉以南非洲老年人多重发病的社会决定因素:一项系统综述。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2025-08-26 DOI: 10.1017/S1478951525100576
Sunkanmi Folorunsho, Raji Abdullateef, Medinah Suleiman, Munirat Sanmori
{"title":"Social determinants of multimorbidity in older adults in sub-saharan Africa: A systematic review.","authors":"Sunkanmi Folorunsho, Raji Abdullateef, Medinah Suleiman, Munirat Sanmori","doi":"10.1017/S1478951525100576","DOIUrl":"https://doi.org/10.1017/S1478951525100576","url":null,"abstract":"<p><strong>Background: </strong>Multimorbidity is increasingly common among older adults in Sub-Saharan Africa (SSA), yet the role of social determinants in shaping its prevalence and outcomes remains underexplored.</p><p><strong>Objectives: </strong>This review aimed to (a) identify the prevalence, types, and patterns of multimorbidity among older adults in SSA; (b) examine the influence of social determinants such as income, education, healthcare access, and geographic location; (c) evaluate current approaches for prevention and management; and (d) propose directions for future research.</p><p><strong>Methods: </strong>A systematic search of six databases (PubMed, EMBASE, PsycINFO, Google Scholar, CINAHL, and Global Index Medicus) was conducted to identify quantitative studies published between 2000 and 2024 on adults aged 50 and above. Of 841 records screened, 16 studies met inclusion criteria and passed quality appraisal. The review protocol was registered in PROSPERO (CRD42024607875).</p><p><strong>Results: </strong>Multimorbidity ranged from 5.4% in Botswana to 71% in Nigeria. Cardiometabolic conditions often co-occurred with infectious and mental disorders. Poverty and low education significantly increased risk (OR: 1.44-7.44). Rural residents faced limited healthcare access, while urban dwellers had higher risks from lifestyle factors. Obesity and food insecurity further heightened vulnerability, especially among women and older adults.</p><p><strong>Significance of results: </strong>Findings indicate that social determinants critically shape multimorbidity risk and outcomes in SSA. Integrated care models, targeted interventions, and policies addressing structural inequalities are urgently needed. Future research should apply longitudinal and qualitative approaches to clarify causal pathways and inform context-sensitive strategies.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e150"},"PeriodicalIF":2.1,"publicationDate":"2025-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144974319","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Dyspnea, anxiety, and death anxiety in patients with COPD. 慢性阻塞性肺病患者的呼吸困难、焦虑和死亡焦虑
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2025-08-22 DOI: 10.1017/S1478951525100382
Gamze Yeğin, Songül Karadağ
{"title":"Dyspnea, anxiety, and death anxiety in patients with COPD.","authors":"Gamze Yeğin, Songül Karadağ","doi":"10.1017/S1478951525100382","DOIUrl":"https://doi.org/10.1017/S1478951525100382","url":null,"abstract":"<p><strong>Objective: </strong>This study was conducted to identify dyspnea, anxiety, and death anxiety in patients with Chronic Obstructive Pulmonary Disease (COPD).</p><p><strong>Method: </strong>The study was carried out with 200 COPD patients who applied to the chest diseases outpatient clinic of a state hospital between December 2022 and June 2023.</p><p><strong>Results: </strong>A total of 73.0% of the patients with COPD participating in the study were male and their mean age was 66.73 ± 8.45 years. Their mean scores were 5.21 ± 2.46 on Modified Borg Scale, 2.62 ± 1.03 on the Modified Medical Research Council scale, 17.87 ± 7.96 on the Beck Anxiety Inventory, and 10.07 ± 4.02 on the Death Anxiety Scale. Patients with high dyspnea levels also had high levels of anxiety and death anxiety (<i>p</i> < 0.001).</p><p><strong>Significance of results: </strong>The patients with COPD had high levels of dyspnea, anxiety, and death anxiety. Based on the results of the study, it is recommended to plan evidence-based studies to alleviate dyspnea, anxiety, and death anxiety in patients with COPD.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e146"},"PeriodicalIF":2.1,"publicationDate":"2025-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144974218","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
What stays. 保持什么。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2025-08-22 DOI: 10.1017/S1478951525100709
Miguel Julião
{"title":"What stays.","authors":"Miguel Julião","doi":"10.1017/S1478951525100709","DOIUrl":"https://doi.org/10.1017/S1478951525100709","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e144"},"PeriodicalIF":2.1,"publicationDate":"2025-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144974249","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Measuring American adults' perceptions about human existence: A cross-sectional study. 测量美国成年人对人类存在的看法:一项横断面研究。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2025-08-22 DOI: 10.1017/S1478951525100497
Megan Rose Carr LaPorte, Linda Emanuel, Sheldon Solomon, Carolinne Viana Poffo, Isha Joshi, Yingwei Yao, Diana J Wilkie
{"title":"Measuring American adults' perceptions about human existence: A cross-sectional study.","authors":"Megan Rose Carr LaPorte, Linda Emanuel, Sheldon Solomon, Carolinne Viana Poffo, Isha Joshi, Yingwei Yao, Diana J Wilkie","doi":"10.1017/S1478951525100497","DOIUrl":"https://doi.org/10.1017/S1478951525100497","url":null,"abstract":"<p><strong>Objectives: </strong>Awareness of death shapes our existence; it prompts both distress and a maturation process called existential maturation. Presently, direct quantitative measures of existential maturation are unavailable to study treatments for existential distress that enhance psychological well-being. We examined the effect of a mortality salience stimulus on implicit death thoughts over time. We also examined the associations among existing measures of constructs conceptualized as relevant to an eventual measure of existential maturation in a representative sample.</p><p><strong>Methods: </strong>A cross-sectional Qualtrics panel of 1,000 adults, representative of the United States' urban and rural populations, completed a 20-minute survey. The self-report Human Existence survey included an embedded mortality salience stimulus (Death Anxiety Beliefs and Behaviors Scale) and valid, reliable measures of implicit death-thought accessibility (DTA), existential isolation, existential distress, flourishing, transcendence, attachment, connections, peace, and other related constructs.</p><p><strong>Results: </strong>The DTA measure did not replicate previous research on mortality salience. We found significant positive correlations between existential isolation and existential distress, and between flourishing and transcendence. However, correlations of death anxiety with isolation, flourishing, and transcendence were surprisingly low. In multivariate analysis, avoidant attachment was negatively associated with existential isolation and distress; death anxiety was positively associated with anxious/ambivalent attachment. Transcendence was negatively associated with avoidant attachment and positively associated with being at peace and connections. Flourishing was positively associated with being at peace and connections.</p><p><strong>Significance of results: </strong>An ineffective death reminder or the DTA online format may have affected DTA results. Striking relationships between attachment style and EM indicators confirm they are interrelated. Measures for existential maturation and related phenomena still lack implicit measures to assess nonconscious components.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e143"},"PeriodicalIF":2.1,"publicationDate":"2025-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144974226","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Caring with time and despite de time: Reflections on prognosis. 随时关怀与随时关怀:对预后的思考。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2025-08-22 DOI: 10.1017/S1478951525100680
João Carlos Geber-Junior, Daniel Neves Forte
{"title":"Caring with time and despite de time: Reflections on prognosis.","authors":"João Carlos Geber-Junior, Daniel Neves Forte","doi":"10.1017/S1478951525100680","DOIUrl":"https://doi.org/10.1017/S1478951525100680","url":null,"abstract":"","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e148"},"PeriodicalIF":2.1,"publicationDate":"2025-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144974223","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluating the impact of early dignity therapy on quality of life in patients with brain tumors: A pilot study. 评估早期尊严治疗对脑肿瘤患者生活质量的影响:一项试点研究。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2025-08-22 DOI: 10.1017/S1478951525100217
Aaron Palachi, Janet Ellis, Mahiya Habib, Claire Moroney, Elie Isenberg-Grzeda, Margaret Fitch, Mary Jane Esplen, Arjun Saghal, Melissa B Korman
{"title":"Evaluating the impact of early dignity therapy on quality of life in patients with brain tumors: A pilot study.","authors":"Aaron Palachi, Janet Ellis, Mahiya Habib, Claire Moroney, Elie Isenberg-Grzeda, Margaret Fitch, Mary Jane Esplen, Arjun Saghal, Melissa B Korman","doi":"10.1017/S1478951525100217","DOIUrl":"https://doi.org/10.1017/S1478951525100217","url":null,"abstract":"<p><strong>Objectives: </strong>Brain tumors are associated with negative changes in sense of self and increased distress early in the illness trajectory. Dignity Therapy (DT) is a brief 2-session therapeutic intervention for patients at end-of-life (EOL) that helps conserve a patient's sense of dignity or self. DT has shown positive results for patients at EOL including increased meaning, improved quality of life (QOL), and reduced distress, with limited research to date on patients early in their illness trajectory (non-EOL). This pre-post design pilot study investigated the benefits and feasibility of DT for 2 groups of patients with incurable brain tumors.</p><p><strong>Methods: </strong>A total of 51 participants were recruited, of whom 39 participated. Participants were grouped as EOL (prognosis < 1 year, <i>n</i> = 21) and non-EOL (prognosis > 1 year, <i>n</i> = 18). Participants completed self-report measures to determine changes in QOL, psychosocial well-being (i.e., spiritual well-being, connection, and posttraumatic growth), and death anxiety, at baseline, 1 week, and 5 weeks post-intervention.</p><p><strong>Results: </strong>The intervention had a high completion rate, with 37 of 39 participants (95%) completing DT. Linear regression models fitted with generalized estimating equations (GEEs) showed within- and between-group significant changes in all domains for both groups, but were particularly beneficial for non-EOL participants.</p><p><strong>Significance of results: </strong>This study demonstrated that DT effectively enhanced psychosocial well-being in patients with brain tumors, including reductions in death anxiety and dignity-related distress. Non-EOL participants benefited most and had higher completion rates, highlighting the intervention's feasibility and the need for further research in earlier stages of terminal illness.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e145"},"PeriodicalIF":2.1,"publicationDate":"2025-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144974169","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Scrambler therapy for chemotherapy-induced peripheral neuropathy: A case report. 扰频器治疗化疗引起的周围神经病变1例报告。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2025-08-22 DOI: 10.1017/S1478951525100503
Zhu Wang, Michael Carducci, Giuseppe Marineo, Thomas Smith
{"title":"Scrambler therapy for chemotherapy-induced peripheral neuropathy: A case report.","authors":"Zhu Wang, Michael Carducci, Giuseppe Marineo, Thomas Smith","doi":"10.1017/S1478951525100503","DOIUrl":"https://doi.org/10.1017/S1478951525100503","url":null,"abstract":"<p><strong>Background: </strong>Chemotherapy-induced peripheral neuropathy (CIPN) is a common and debilitating side effect of cancer treatment, significantly affecting patients' quality of life. Current pharmacological treatments are often ineffective or poorly tolerated, necessitating alternative therapeutic approaches. Scrambler Therapy (ST), a non-invasive neuromodulation technique, has shown potential for reducing neuropathic pain, but optimal dosing regimens remain undefined.</p><p><strong>Objective: </strong>This case study aims to evaluate the effectiveness of Scrambler Therapy in reducing pain levels and improving functional status in a patient with chemotherapy-induced peripheral neuropathy.</p><p><strong>Methods: </strong>A single patient diagnosed with CIPN was treated with Scrambler Therapy over a series of sessions. Pain levels and functional status were measured using standardized assessment tools before, during, and after the therapy to evaluate the impact of ST on symptom relief and daily functioning.</p><p><strong>Results: </strong>After completing the Scrambler Therapy sessions, the patient reported significant reductions in pain intensity and notable improvements in functional status. These improvements were sustained several weeks and months following the therapy, indicating the potential long-term benefits of ST for managing CIPN.</p><p><strong>Conclusion: </strong>This case study demonstrates the potential of Scrambler Therapy as an effective treatment option for reducing pain and improving functional status in patients with chemotherapy-induced peripheral neuropathy. These findings suggest that ST may provide a promising non-invasive alternative to current treatments for managing neuropathic pain in cancer patients.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e149"},"PeriodicalIF":2.1,"publicationDate":"2025-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144974305","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
AutoFOCUS: A mindfulness-based intervention for caregivers of autologous hematopoietic stem cell transplant recipients. AutoFOCUS:自体造血干细胞移植受者护理人员的正念干预。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2025-08-22 DOI: 10.1017/S1478951525100485
Valerie Yepez, Min-Jeong Yang, Sierra Washington, Sarah Jones, Ranjita Poudel, Joseph Pidala, Marilyn Horta, Christine Vinci
{"title":"AutoFOCUS: A mindfulness-based intervention for caregivers of autologous hematopoietic stem cell transplant recipients.","authors":"Valerie Yepez, Min-Jeong Yang, Sierra Washington, Sarah Jones, Ranjita Poudel, Joseph Pidala, Marilyn Horta, Christine Vinci","doi":"10.1017/S1478951525100485","DOIUrl":"10.1017/S1478951525100485","url":null,"abstract":"<p><strong>Objectives: </strong>Autologous hematopoietic stem cell transplant (HCT) cancer caregivers experience significant burden and stress with limited tailored resources. Mindfulness interventions hold promise in alleviating caregiver distress. Predicated on our previous work with allogeneic HCT caregivers, this single-arm trial tested the feasibility and acceptability of a modified mindfulness-based intervention, AutoFOCUS, among autologous HCT caregivers.</p><p><strong>Methods: </strong>Participants received the 6-session AutoFOCUS face-to-face via telehealth, with assessments at baseline, end of treatment, and 1-month post-treatment. Feasibility was assessed through recruitment, retention, and session attendance, and acceptability was measured via satisfaction and intent to continue using skills learned. Exploratory outcome measures included distress, anxiety, perceived stress, affect, and post-traumatic growth. Data from the smartphone app that supplemented the face-to-face component of the intervention were collected. In-depth interviews gathered participant feedback.</p><p><strong>Results: </strong>Twenty-six caregivers (mean age = 57.7 years, 89% female) were enrolled and 19 completed at least 4 sessions, 14 completed all 6 sessions, and 22 completed the 1-month follow-up. High satisfaction (M = 3.56/4; SD = 0.43) and intent to utilize the skills learned in the future (M = 8.58/10; SD = 1.81/4) were reported. Significant reductions in distress (<i>p</i> < .001, (effect sizes [ES]) = 0.99), anxiety (<i>p</i> = .032, [ES] = 0.53), perceived stress (<i>p</i> = .035, [ES] = 0.52), and negative affect (<i>p</i> = .008, [ES] = 0.69) were reported, along with a significant increase in post-traumatic growth (<i>p</i> = .009, [ES] = 0.67) from baseline to end of treatment. App use was moderate. Interview results highlighted positive perceptions and supported quantitative results.</p><p><strong>Significance of results: </strong>AutoFOCUS was feasible and acceptable. Future studies should explore the efficacy of this treatment on a larger scale with a comparison condition.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e147"},"PeriodicalIF":2.1,"publicationDate":"2025-08-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12491394/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144974189","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Delivering psychosocial support to family caregivers of cancer patients: Insights from Iranian psychosocial oncology professionals and family caregivers highlighting the need for change. 向癌症患者的家庭照顾者提供社会心理支持:来自伊朗社会心理肿瘤学专业人员和家庭照顾者的见解,强调了变革的必要性。
IF 2.1 4区 医学
Palliative & Supportive Care Pub Date : 2025-08-15 DOI: 10.1017/S1478951525100618
Baharan Ghavami, Fariba Zarani, Ladan Fata, Mohammad Reza Sharbafchi, Jacqueline Bender
{"title":"Delivering psychosocial support to family caregivers of cancer patients: Insights from Iranian psychosocial oncology professionals and family caregivers highlighting the need for change.","authors":"Baharan Ghavami, Fariba Zarani, Ladan Fata, Mohammad Reza Sharbafchi, Jacqueline Bender","doi":"10.1017/S1478951525100618","DOIUrl":"10.1017/S1478951525100618","url":null,"abstract":"<p><strong>Objectives: </strong>Supporting a family member with cancer poses significant challenges for family caregivers, who have unmet supportive care needs. Psychosocial oncology professionals (PSOP) are often the primary source of support for cancer caregivers in Iran. Given the lack of supportive care resources, innovative strategies are needed to support caregivers. This study explores the views of PSOP and caregivers regarding the challenges, potential solutions, and the role of digital technologies in supporting caregivers.</p><p><strong>Methods: </strong>Employing a qualitative descriptive design, we conducted individual interviews and focus groups with 30 participants (15 PSOPs and 15 caregivers), recruited from five settings in Tehran, Iran(2023-2024). All sessions were audio-recorded, transcribed verbatim, and analyzed using thematic analysis.</p><p><strong>Results: </strong>PSOP identified challenges in delivering psychosocial care to caregivers , including inconsistency, uncertainty, and fragmented use of technology. Their recommendations included flexible psychosocial care via blended multi-modal digital technologies, professional development opportunities, and formal recognition and integration within the oncology setting. Caregivers experiencing frustration with the healthcare system expressed a need for family-centered care, flexible psychosocial care, and organized peer support networks.</p><p><strong>Significance of results: </strong>Current psychosocial care in Iran is insufficient and misaligned with the preferences of PSOP and caregivers. PSOP and caregivers advocate for flexible psychosocial care through blended digital strategies. Public health strategists in Iran, as a low-resource setting with a family-centered context, should optimize resource utilization by prioritizing the training of PSOP, developing blended digital interventions, and leveraging trained peers to provide navigation and support to families, thereby easing the PSOP workload.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e141"},"PeriodicalIF":2.1,"publicationDate":"2025-08-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144856710","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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