{"title":"痴呆症家庭照顾者应对和临终前悲伤的系统回顾。","authors":"Yi-Qi Wangliu, Run-Ping Che","doi":"10.1017/S1478951525000082","DOIUrl":null,"url":null,"abstract":"<p><strong>Objectives: </strong>Research on grief among family caregivers of individuals with dementia has seen a notable increase. Our objective was to synthesize the relationship between coping factors and pre-death grief (PDG).</p><p><strong>Design: </strong>(Prospero protocol: CRD42024560208) We conducted a systematic review of literature from PubMed, Web of Science, Scopus, PsycInfo, and Medline up to July 2024. Included studies encompassed quantitative, qualitative, and mixed methods approaches. During the study selection process, we excluded data on intervention effectiveness and studies not published in English. The quality of the studies was evaluated using the Mixed Methods Appraisal Tool. Evidence was summarized narratively.</p><p><strong>Participants: </strong>Participants in this study are family caregivers who take care of dementia patients.</p><p><strong>Methods: </strong>We included data from 12 studies in our analysis. The majority of these investigations were carried out in Western countries. The research primarily involved spousal or adult child caregivers and centered on PDG. We included validated measures of PDG in each study.</p><p><strong>Significance of results: </strong>Among the reviewed studies, five reported on coping strategies, while seven addressed coping resources. Overall, the findings indicated that the application of coping strategies, specifically positive coping strategies, is effective in alleviating PDG and mitigating the effects of caregiving burden on PDG. Coping resources - including self-efficacy, sense of coherence, and support from friends and family - appear to have a beneficial impact in reducing PDG. Additionally, the quality of relationships with friends and family members was found to be a significant factor. Moreover, spiritual and religious beliefs, along with community faith, have been identified as crucial elements in alleviating grief experienced by caregivers.</p><p><strong>Conclusion: </strong>Knowing what coping strategies and resources are beneficial to decrease PDG experiences among dementia caregivers.</p>","PeriodicalId":47898,"journal":{"name":"Palliative & Supportive Care","volume":"23 ","pages":"e86"},"PeriodicalIF":1.9000,"publicationDate":"2025-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"A systematic review of coping and pre-death grief among dementia family caregivers.\",\"authors\":\"Yi-Qi Wangliu, Run-Ping Che\",\"doi\":\"10.1017/S1478951525000082\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objectives: </strong>Research on grief among family caregivers of individuals with dementia has seen a notable increase. 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We included validated measures of PDG in each study.</p><p><strong>Significance of results: </strong>Among the reviewed studies, five reported on coping strategies, while seven addressed coping resources. Overall, the findings indicated that the application of coping strategies, specifically positive coping strategies, is effective in alleviating PDG and mitigating the effects of caregiving burden on PDG. Coping resources - including self-efficacy, sense of coherence, and support from friends and family - appear to have a beneficial impact in reducing PDG. Additionally, the quality of relationships with friends and family members was found to be a significant factor. 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引用次数: 0
摘要
目的：研究悲伤的家庭照顾者的个人痴呆症已经看到了显着增加。我们的目的是综合应对因素与死亡前悲伤（PDG）之间的关系。设计：（普洛斯普洛协议：CRD42024560208）我们对截至2024年7月PubMed， Web of Science, Scopus， PsycInfo和Medline的文献进行了系统综述。纳入的研究包括定量、定性和混合方法。在研究选择过程中，我们排除了干预有效性的数据和非英文发表的研究。使用混合方法评价工具评价研究的质量。证据被叙述地总结了。参与者：本研究的参与者是照顾痴呆症患者的家庭照顾者。方法：我们在分析中纳入了12项研究的数据。这些调查大多数是在西方国家进行的。该研究主要涉及配偶或成年儿童照顾者，并以PDG为中心。我们在每项研究中都纳入了经过验证的PDG测量。结果的意义：在回顾的研究中，5项研究报告了应对策略，7项研究报告了应对资源。总体而言，研究结果表明，应对策略的应用，特别是积极应对策略的应用，可以有效地减轻护理负担对PDG的影响。应对资源——包括自我效能感、连贯性和来自朋友和家人的支持——似乎对减少PDG有有益的影响。此外，与朋友和家人的关系质量也是一个重要因素。此外，精神和宗教信仰以及社区信仰已被确定为减轻照顾者所经历的悲伤的关键因素。结论：了解哪些应对策略和资源有利于减少痴呆照护者的PDG体验。
A systematic review of coping and pre-death grief among dementia family caregivers.
Objectives: Research on grief among family caregivers of individuals with dementia has seen a notable increase. Our objective was to synthesize the relationship between coping factors and pre-death grief (PDG).
Design: (Prospero protocol: CRD42024560208) We conducted a systematic review of literature from PubMed, Web of Science, Scopus, PsycInfo, and Medline up to July 2024. Included studies encompassed quantitative, qualitative, and mixed methods approaches. During the study selection process, we excluded data on intervention effectiveness and studies not published in English. The quality of the studies was evaluated using the Mixed Methods Appraisal Tool. Evidence was summarized narratively.
Participants: Participants in this study are family caregivers who take care of dementia patients.
Methods: We included data from 12 studies in our analysis. The majority of these investigations were carried out in Western countries. The research primarily involved spousal or adult child caregivers and centered on PDG. We included validated measures of PDG in each study.
Significance of results: Among the reviewed studies, five reported on coping strategies, while seven addressed coping resources. Overall, the findings indicated that the application of coping strategies, specifically positive coping strategies, is effective in alleviating PDG and mitigating the effects of caregiving burden on PDG. Coping resources - including self-efficacy, sense of coherence, and support from friends and family - appear to have a beneficial impact in reducing PDG. Additionally, the quality of relationships with friends and family members was found to be a significant factor. Moreover, spiritual and religious beliefs, along with community faith, have been identified as crucial elements in alleviating grief experienced by caregivers.
Conclusion: Knowing what coping strategies and resources are beneficial to decrease PDG experiences among dementia caregivers.
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