Journal of Patient Experience最新文献_第3页

Patients With Experience of Hospitalization for Acute Severe Ulcerative Colitis Prefer Inpatient to Home-Based Care.

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-24 eCollection Date: 2025-01-01 DOI: 10.1177/23743735241301918

Mustafa Mohamedrashed, Saiumaeswar Yogakanthi, Ayushi Chauhan, Sarah Lucas, Mayur Garg

{"title":"Patients With Experience of Hospitalization for Acute Severe Ulcerative Colitis Prefer Inpatient to Home-Based Care.","authors":"Mustafa Mohamedrashed, Saiumaeswar Yogakanthi, Ayushi Chauhan, Sarah Lucas, Mayur Garg","doi":"10.1177/23743735241301918","DOIUrl":"10.1177/23743735241301918","url":null,"abstract":"Acute severe ulcerative colitis (ASUC) comprises a severe manifestation of inflammatory bowel disease that requires close monitoring and aggressive treatment. This study aimed to evaluate the experience of patients admitted to a single tertiary service with ASUC, focusing on perception of the received therapy and preferences regarding location of care. Patients admitted with ASUC were invited to complete a short online survey. Data regarding disease characteristics, management, and outcomes were obtained through retrospective chart review. Of the 24 patients meeting Truelove and Witt's criteria for ASUC, 20 (74.07%, median age 34 [interquartile range 29-48] years, 13 [65%] female) responded. The majority of study participants reported receiving excellent overall inpatient care (15 out of 20, 75%), a strong agreement that they felt safe as an inpatient (17 out of 20, 85%) and felt their individual needs were met and questions were answered during hospitalization (15 out of 20, 75%). A preference toward inpatient management rather than an ambulatory setting was noted (14 out of 20, 70%). In conclusion, patients admitted with ASUC experienced a high degree of satisfaction with their care, with a preference toward inpatient care.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735241301918"},"PeriodicalIF":1.6,"publicationDate":"2025-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11851743/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143504732","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Orchestrating Excellent Health and Care Experiences: The Essential Role of Leadership.

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-24 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251323354

Laura Cooley, Shirin Amouei

引用次数: 0

Does Communication Effectiveness Assessed by Communication Scholars Correlate with Patient Perception of Clinician Empathy?

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-21 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251323674

Haley Ponce, Rafael Cordero, Jacinta Tran, Natalie Wellman, David Ring

{"title":"Does Communication Effectiveness Assessed by Communication Scholars Correlate with Patient Perception of Clinician Empathy?","authors":"Haley Ponce, Rafael Cordero, Jacinta Tran, Natalie Wellman, David Ring","doi":"10.1177/23743735251323674","DOIUrl":"10.1177/23743735251323674","url":null,"abstract":"In a prior study, communication scholar ratings of clinician communication effectiveness did not correlate with perceived clinician empathy, which is one aspect of patient experience. We repeated the analysis with a different rating of communication effectiveness to increase confidence that the lack of association was not due to an inadequate rating tool. Video-recorded visits (108) were rated by 3 trained observers using the Communication Quality Analysis with acceptable reliability. Patients completed measures of perceived clinician empathy, pain accommodation, health anxiety, and depression symptoms. Negative binomial regression analysis sought factors associated with perceived clinician empathy. Only accommodation of pain met the criterion for entry into a multivariable model for perceived clinician empathy (ρ = 0.17; P = .08). No factors were associated with perceived clinician empathy, including independently rated communication effectiveness. The consistent finding of no correlation between communication effectiveness and patient perception clinician empathy using a second rating tool does not diminish the importance of effective patient-clinician communication, but it does reinforce the need to identify suitable measures of modifiable factors associated with poor patient experience.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251323674"},"PeriodicalIF":1.6,"publicationDate":"2025-02-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11846112/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143484408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Does the Internet Provide Accurate Information About Foregoing Treatment for Common Musculoskeletal Conditions.

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-21 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251323390

Ruth Simpson, Sruthi Gade, Anita Prabhu, George E Sayegh, David Ring

{"title":"Does the Internet Provide Accurate Information About Foregoing Treatment for Common Musculoskeletal Conditions.","authors":"Ruth Simpson, Sruthi Gade, Anita Prabhu, George E Sayegh, David Ring","doi":"10.1177/23743735251323390","DOIUrl":"10.1177/23743735251323390","url":null,"abstract":"We studied how websites address the consequences of leaving common musculoskeletal conditions untreated, two that have a benign, self-limiting course without treatment (de Quervain tendinopathy, lateral epicondylitis) and one that is expected to have progressive nerve deterioration without treatment (carpal tunnel syndrome). Using a common search engine, the first 120 websites addressing each diagnosis were rated for statements regarding disease progression and need for surgery without treatment. Most sites stated that disease would worsen without treatment: carpal tunnel syndrome (99%), lateral epicondylitis (91%), and de Quervain tendinopathy (72%). For each condition, approximately a third of the websites stated surgery might become necessary. The observation of inadequate distinction between conditions that deteriorate with treatment from those that resolve without treatment emphasizes the potential for harm by reinforcing common misconceptions such as \"this is taking too long\" or \"this will not resolve without treatment\" and by jeopardizing personal health agency. Producers of online medical information can add an item to their quality checklist that ensures that people are accurately informed about a choice to not seek treatment.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251323390"},"PeriodicalIF":1.6,"publicationDate":"2025-02-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11846101/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143484411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Motivational Interviewing is "Doing" What Matters: Integrating Motivational Interviewing Spirit and Skills into What Matters to You? Conversations.

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-13 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251317041

Damara Gutnick, Sarah McNeilly

引用次数: 0

Reflecting on the Deaf Experience in Healthcare.

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-12 eCollection Date: 2025-01-01 DOI: 10.1177/23743735241311091

Bruna Tavares Leite, Ligia F N Reato, Patrícia Pereira, Luciana Pereira

{"title":"Reflecting on the Deaf Experience in Healthcare.","authors":"Bruna Tavares Leite, Ligia F N Reato, Patrícia Pereira, Luciana Pereira","doi":"10.1177/23743735241311091","DOIUrl":"10.1177/23743735241311091","url":null,"abstract":"This paper examines the integration of Deaf culture into patient-centered healthcare, focusing on resolving the challenges encountered by the Deaf community. It evaluates the contrast between the traditional medical model of disability and the cultural perspective of the Deaf community, advocating for healthcare systems to incorporate the cultural distinctiveness of Deaf patients. Utilizing an autoethnographic method, the paper shares the experience of a Deaf researcher in healthcare, thereby illuminating the communication and cultural obstacles prevalent in healthcare interactions. This research proposed pragmatic solutions, including the establishment of Deaf-centric communication protocols, and the cultural competency training of healthcare professionals. These strategies aimed to promote equitable access to health services and technology. The findings of this paper contribute to the field of healthcare, particularly in enhancing the patient experience for the Deaf community. The paper emphasized the importance of creating inclusive and empathetic healthcare environments and advocated for a joint effort among policymakers, healthcare practitioners, and the Deaf community to develop solutions that effectively address their specific needs.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735241311091"},"PeriodicalIF":1.6,"publicationDate":"2025-02-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11822821/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143415748","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Use of Hospital Patient and Family Advisory Councils: A Scoping Study.

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-09 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251316995

Barbara Lewis, Chris Cochran, Erika Marquez, Neeraj Bhandari, Jennifer Pharr, Soumya Upadhyay, Stowe Shoemaker

{"title":"Use of Hospital Patient and Family Advisory Councils: A Scoping Study.","authors":"Barbara Lewis, Chris Cochran, Erika Marquez, Neeraj Bhandari, Jennifer Pharr, Soumya Upadhyay, Stowe Shoemaker","doi":"10.1177/23743735251316995","DOIUrl":"10.1177/23743735251316995","url":null,"abstract":"With the aim of fostering patient-centered care, Patient and Family Advisory Councils (PFACs) have emerged as a way for hospitals to garner input for initiatives and programs from patients and patients' families who have used the hospitals' services. Despite their inception in the early 1980s, only 54% of United States hospitals field a PFAC. This scoping study entailed searching 6 databases in July 2024 and reviewing 143 articles about hospital PFACs from around the world to understand how hospitals use PFACs, measure the results, and acknowledge the success factors. Patient and Family Advisory Council engagement ranged from stamping approval for a project to providing feedback or codesigning the project from the inception, with feedback as the most popular. Of the articles about specific PFACs, 70% either dealt with a condition, such as cancer, the type of person, such as youth, or both. The literature review revealed that few articles cited PFAC project metrics and outcomes, although some articles mentioned PFAC success factors, the most prevalent of which was the training of patients and staff, as well as leadership.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251316995"},"PeriodicalIF":1.6,"publicationDate":"2025-02-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11808756/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392174","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Examining Symptom Management and Quality of Life of Loop Diuretic-Induced Overactive Bladder Among Heart Failure Patients: Physician and Patient Perspectives.

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-06 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251316416

Xin Pan, Christopher S Wilcox, Bertram Pitt, Salim Shah, Anandi V Law

{"title":"Examining Symptom Management and Quality of Life of Loop Diuretic-Induced Overactive Bladder Among Heart Failure Patients: Physician and Patient Perspectives.","authors":"Xin Pan, Christopher S Wilcox, Bertram Pitt, Salim Shah, Anandi V Law","doi":"10.1177/23743735251316416","DOIUrl":"10.1177/23743735251316416","url":null,"abstract":"Loop diuretics are strongly recommended in patients with chronic congestive heart failure (HF) to alleviate signs and symptoms of fluid overload. Loop diuretics help relieve congestive symptoms and reduce mortality, but may have side effects. This survey study examined the impact of loop diuretic-induced overactive bladder (LD-OAB) symptoms on quality of life (QOL) in HF patients; and management of OAB by HF patients and physicians. We found that (1) HF patients noted less severity of symptoms but similar QOL with non-HF. (2) HF patients (58.8%) self-managed and underreported symptoms to physicians compared to non-HF (74.8%); accordingly 65% of physicians noticed and managed symptoms. (3) Patients used mechanical solutions (pads/diapers, Kegel exercises, and fluid reduction), and physicians adjusted diuretic doses or prescribed medications for OAB. Our study highlighted that HF patients' QOL associated with bladder symptoms was not better than the non-HF group despite milder symptoms. Many HF patients either did not report or coped with/self-managed their loop diuretic-induced bladder symptoms, pointing to a need for better awareness of patient experiences and patient-physician communication.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251316416"},"PeriodicalIF":1.6,"publicationDate":"2025-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11800244/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143366197","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Diverse Patient Experiences of Internet-Based Cognitive Behavioral Therapy with Guided Peer Support for Generalized Anxiety Disorders.

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-02 eCollection Date: 2025-01-01 DOI: 10.1177/23743735241310322

Jill Nault Connors, Ernani Magalhaes, Kevin Prather, Nida Khan, Claire Draucker, Johanne Eliacin, Chet Montgomery, Julie Hayden, Michael Millard, Kurt Kroenke, Paul Musey

{"title":"Diverse Patient Experiences of Internet-Based Cognitive Behavioral Therapy with Guided Peer Support for Generalized Anxiety Disorders.","authors":"Jill Nault Connors, Ernani Magalhaes, Kevin Prather, Nida Khan, Claire Draucker, Johanne Eliacin, Chet Montgomery, Julie Hayden, Michael Millard, Kurt Kroenke, Paul Musey","doi":"10.1177/23743735241310322","DOIUrl":"10.1177/23743735241310322","url":null,"abstract":"Opportunities exist to improve patient experience in the emergency department for low-risk (ie, non-cardiac) chest pain patients with anxiety and panic as the underlying cause of symptoms. Referral to internet-based cognitive behavioral therapy (iCBT) with guided support is a scalable, evidence-based option that is underused, particularly among non-white patients. In collaboration with a diverse group of patient and community partners, we co-developed and tested an existing iCBT course for generalized anxiety disorder with delivery of guided support by a peer recovery specialist with concordant lived experience. We analyzed patient partner feedback from debriefing sessions during the testing phase using conventional content analysis. Results revealed overall positive experiences with both iCBT lessons and peer support calls. Key points derived from qualitative findings include: (1) iCBT lesson content resonated reasonably well with the diverse group of patient partners, (2) the peer relationship was key to individualizing application of content to various lived experiences, and (3) the guided discussion should be participant-driven and based on content that resonates most with the participant. In conclusion, iCBT with guided peer support was acceptable to patient partners involved in co-development and testing who were representative of a diverse patient population.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735241310322"},"PeriodicalIF":1.6,"publicationDate":"2025-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11789107/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143123862","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Development and Validation of the Patient Experience Assessment Scale (PXAS) in Tertiary Care Hospital - Oman.

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-02 eCollection Date: 2025-01-01 DOI: 10.1177/23743735241311090

Naima Khamis Al-Bulushi, Zainab Ali Al-Mukhaini, Jehan Al Fannah, Afaf Ali Al Zadjali, Huda Al Zidi, Zubaida Mahmood Al-Balushi, Aida Khalfan Al-Hadidi, Samir Al-Adawi

{"title":"Development and Validation of the Patient Experience Assessment Scale (PXAS) in Tertiary Care Hospital - Oman.","authors":"Naima Khamis Al-Bulushi, Zainab Ali Al-Mukhaini, Jehan Al Fannah, Afaf Ali Al Zadjali, Huda Al Zidi, Zubaida Mahmood Al-Balushi, Aida Khalfan Al-Hadidi, Samir Al-Adawi","doi":"10.1177/23743735241311090","DOIUrl":"10.1177/23743735241311090","url":null,"abstract":"Background: Evaluating the patient's perspective is crucial for high-quality healthcare. Traditional satisfaction surveys have limitations due to subjectivity. Valid ecological measures are lacking in non-western populations. Objective: Validate Patient Experience Assessment Scale (PXAS) for tertiary care hospital. Methods: The development of PXAS involved domain identification, scale creation, language review, and validity assessment. Experts crafted a 12-question scale with a net promoter score (NPS). Language experts reviewed for clarity and equivalence. The content and face validity were evaluated using the content validity index (CVI) and the face validity index. SPSS analyzed data for reliability and test-retest over 3 to 4 weeks. Results: 464 participants were included, mainly aged 31 to 40, participated. PXAS showed good reliability (Cronbach's alpha = 0.88) and test-retest (r = 0.72). The content validity (I-CVI: 0.83-1.0; S-CVI = 0.93) and the validity of the face (98.3% agreement) were excellent. Most were satisfied (45% excellent and 41.2% very good), and 37% would highly recommend the hospital. Conclusions: PXAS is reliable and valid scale to assess the patient experience in tertiary hospitals. Further studies of its properties are warranted.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735241311090"},"PeriodicalIF":1.6,"publicationDate":"2025-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11789113/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143123861","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0