Journal of Patient Experience最新文献_第3页

Leveraging Data-Driven Insights to Improve the Health Experience for Patients Starting and Staying on Treatment. 利用数据驱动的洞察力来改善患者开始和坚持治疗的健康体验。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-22 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251381444

Sarah Small, James Sexton, Desiree Priestley

{"title":"Leveraging Data-Driven Insights to Improve the Health Experience for Patients Starting and Staying on Treatment.","authors":"Sarah Small, James Sexton, Desiree Priestley","doi":"10.1177/23743735251381444","DOIUrl":"https://doi.org/10.1177/23743735251381444","url":null,"abstract":"Patients face significant challenges throughout their treatment journey, including barriers to medication access and difficulties maintaining adherence. This industry insight presents an innovative shift from retrospective, reactive patient support to a proactive, real-time, data-driven model that enables precision engagement strategies delivering the right support at the right time. This work highlights how [Otsuka Precision Health] leverages its robust data platform to generate insights that inform individualized patient experiences. The core innovation lies in real-time integration of pharmacy claims, support cases, and payer information, which distinguishes this approach from traditional reactive support models. These insights empower Field Support Representatives to collaborate with patients and healthcare teams, to proactively improve access, adherence, and continuity of care. By addressing healthcare system complexities and patient challenges, Otsuka Precision Health Patient Services creates a more patient-centered model that streamlines treatment initiation and sustains adherence, ultimately enhancing health outcomes.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251381444"},"PeriodicalIF":1.8,"publicationDate":"2025-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12454949/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145138842","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Knowledge of Parkinson's Disease, Perceptions of Deep Brain Stimulation, and Attitudes Toward Its Use Among Patients in Morocco: A Cross-Sectional Study. 摩洛哥患者对帕金森病的了解、对深部脑刺激的感知和对其使用的态度：一项横断面研究。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-18 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251380956

Mohamed Daghi, Abdelhakim Lakhdar, Hicham El Otmani

{"title":"Knowledge of Parkinson's Disease, Perceptions of Deep Brain Stimulation, and Attitudes Toward Its Use Among Patients in Morocco: A Cross-Sectional Study.","authors":"Mohamed Daghi, Abdelhakim Lakhdar, Hicham El Otmani","doi":"10.1177/23743735251380956","DOIUrl":"10.1177/23743735251380956","url":null,"abstract":"Parkinson's disease (PD) is a chronic neurodegenerative disorder requiring informed decision making, especially regarding advanced treatments such as deep brain stimulation (DBS). However, patient knowledge and perceptions in low-resource settings like Morocco remain poorly understood. This study assessed PD patients' knowledge and attitudes/perceptions toward DBS in Morocco. A cross-sectional study was conducted among PD patients in 5 cities in the Casablanca-Settat region. Data were collected using a 7-item PD knowledge tool and a DBS attitudes/perceptions questionnaire. A total of 370 patients were recruited, with a mean PD knowledge score of 4.5 out of 7, with higher scores linked to greater education. Only 31.9% had heard of DBS, and 39.4% were willing to undergo it if recommended. Willingness was higher among patients from the private sector, those with longer disease duration, and those at advanced stages. A common misconception was that DBS cures PD (25.9%). Barriers to DBS access included high cost, fear of surgery, lack of specialists, and insufficient information. Gaps in PD knowledge and misconceptions about DBS persist, highlighting the need for targeted educational initiatives in Morocco.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251380956"},"PeriodicalIF":1.8,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12446817/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145114493","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Insights on the Future Priorities of Patient Experience Research as Care Experience Research. 关于患者体验研究作为护理体验研究的未来重点的见解。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-18 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251380945

Rachyl Pines

引用次数: 0

Integrating Art-Based Approaches in Psycho-Oncology Practice: Insights From a Pilot Creative Arts Workshop Designed for Cancer Patients Receiving Psychiatric Care. 在心理肿瘤学实践中整合基于艺术的方法：来自为接受精神病学治疗的癌症患者设计的试点创意艺术工作坊的见解。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-17 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251380955

Jacynthe Rivest, Amelie Pellerin, Véronique Desbeaumes Jodoin, Julie Haslam, Joé T Martineau, David Caron, Marc Chammas

{"title":"Integrating Art-Based Approaches in Psycho-Oncology Practice: Insights From a Pilot Creative Arts Workshop Designed for Cancer Patients Receiving Psychiatric Care.","authors":"Jacynthe Rivest, Amelie Pellerin, Véronique Desbeaumes Jodoin, Julie Haslam, Joé T Martineau, David Caron, Marc Chammas","doi":"10.1177/23743735251380955","DOIUrl":"10.1177/23743735251380955","url":null,"abstract":"Living with cancer involves numerous challenges during illness journey, including a high rate of significant distress and an increased risk of psychiatric disorders. Addressing these complex and multidimensional needs requires innovative and patient-centered approaches. Integrative interventions, such as art-based practices, have shown evidence-based benefits in reducing symptoms of anxiety and depression in adults with cancer. However, access to such complementary interventions remains limited in routine clinical care. Our team developed and implemented a creative arts workshop specifically designed for cancer patients treated for comorbid psychiatric disorders as a complementary intervention to standard psychiatric care. This article briefly outlines the workshop, as well as some institutional and clinical challenges encountered during implementation. Actionable insights and practical recommendations for institutions interested in adopting similar initiatives are also discussed. By providing an engaging space for emotional expression, the creative arts workshop was well received by participants and contributed positively to their care experience. Future research should focus on its feasibility, acceptability, and effectiveness on psychological well-being and quality of life in this vulnerable population.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251380955"},"PeriodicalIF":1.8,"publicationDate":"2025-09-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12444048/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145114487","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Sex Disparities in Patient Satisfaction in Cardiac Surgery Patients. 心脏手术患者满意度的性别差异。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-17 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251379951

Stefanie Ma, Kavi O'Connor, Sashane John, Xueqi Huang, Nicole Sherman, Pey-Jen Yu

{"title":"Sex Disparities in Patient Satisfaction in Cardiac Surgery Patients.","authors":"Stefanie Ma, Kavi O'Connor, Sashane John, Xueqi Huang, Nicole Sherman, Pey-Jen Yu","doi":"10.1177/23743735251379951","DOIUrl":"10.1177/23743735251379951","url":null,"abstract":"Although differences between males and females in the diagnosis and management of cardiovascular diseases are well recognized, there is a paucity of studies evaluating the impact of sex on the perception and satisfaction of cardiovascular care. The purpose of this study is to evaluate potential sex-based disparities in patient experiences with their postoperative care after cardiac surgery. Responses from Hospital Consumer Assessment of Health Care Providers and Systems surveys from patients who underwent open cardiac surgery at a single institution were compared based on sex. Propensity-score matching was performed based on age, race, and type of operation. Answers to survey items were compared between male- and female-matched cohorts. Female patients gave lower overall hospital rankings than their male counterparts (P = .005). Female patients also gave lower scores for questions regarding room cleanliness (P = .02), staff working together (P = .01), and health management education for discharge (P = .02) compared to male patients. Our study demonstrates that there is a disparity in patient satisfaction between males and females among patients undergoing cardiac surgery. Females undergoing cardiac surgery report worse experiences than their male counterparts.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251379951"},"PeriodicalIF":1.8,"publicationDate":"2025-09-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12444064/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145114514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Barriers and Facilitators to the Recruitment and Engagement of Diverse Populations Into Patient and Family Advisory Councils: A Scoping Review. 患者和家属咨询委员会招募和参与不同人群的障碍和促进因素：范围审查。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-15 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251376068

Madison P Leia, Kaitlin See, Colleen Cuthbert

{"title":"Barriers and Facilitators to the Recruitment and Engagement of Diverse Populations Into Patient and Family Advisory Councils: A Scoping Review.","authors":"Madison P Leia, Kaitlin See, Colleen Cuthbert","doi":"10.1177/23743735251376068","DOIUrl":"10.1177/23743735251376068","url":null,"abstract":"Patient and family advisory councils (PFACs) serve as structured collaborative groups where patients and caregivers partner with healthcare professionals to shape policies, service delivery, and research. Despite guidelines emphasizing the need for diverse representation, PFACs often remain socio-demographically homogenous, excluding vulnerable populations from critical discussions that shape healthcare outcomes. This scoping review examines barriers and facilitators influencing the recruitment and engagement of diverse populations in PFACs. A systematic search identified studies focusing on recruitment and engagement barriers and facilitators targeting under-represented groups. Forty-three studies that met the inclusion criteria were included in the review. Findings reveal that while race/ethnicity, socioeconomic status, and age are commonly considered diversity factors, other key populations such as individuals with disabilities, migrants, and those with lived experiences of homelessness, are often overlooked. Facilitators that can improve reach to these vulnerable populations include culturally tailored outreach, relationship-building with community leaders, and reducing logistical barriers. This review provides actionable recommendations for improving diversity in PFACs, ensuring equitable patient engagement that reflects the full spectrum of healthcare experiences.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251376068"},"PeriodicalIF":1.8,"publicationDate":"2025-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12437180/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145082079","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Rediscovering Healing Through Touch: A Medical Student's Patient Perspective. 通过触摸重新发现治疗：一个医科学生的病人观点。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-09 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251375935

Eric Willians Santana

引用次数: 0

Greater Personal Health Agency Is Associated With Greater Patient Receptiveness to Mindset Exercises. 更大的个人健康机构与更大的病人接受心态练习有关。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-05 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251376078

Niels Brinkman, Rebecca Ludden, Ali Azarpey, Job N Doornberg, David Ring, Prakash Jayakumar

{"title":"Greater Personal Health Agency Is Associated With Greater Patient Receptiveness to Mindset Exercises.","authors":"Niels Brinkman, Rebecca Ludden, Ali Azarpey, Job N Doornberg, David Ring, Prakash Jayakumar","doi":"10.1177/23743735251376078","DOIUrl":"10.1177/23743735251376078","url":null,"abstract":"Among 203 patients presenting for musculoskeletal specialty care between November 2023 and January 2024, we measured the relationship of openness to mindset exercises such as cognitive behavioral therapy (training the mind to default to healthier thoughts and feelings about bodily sensations) with levels of personal health agency accounting for other personal factors. Factors associated with greater openness to mindset exercises in linear regression included greater personal health agency (RC = 0.17), younger age (RC = -0.030), and 4-year college education (RC = 1.5). In a second linear regression, greater personal health agency was associated with older age (RC = 0.053), greater trust in the clinician (RC = 0.25), injury diagnosis (RC = 1.8), less distress regarding symptoms (RC = -0.25), less unhelpful thinking regarding symptoms (RC = -0.43), and retirement (RC = -1.7). In cluster analysis, we found that increasingly lower openness to mindset exercises was associated with increasingly worse levels of distress and unhelpful thoughts, lower personal health agency, and slightly varying social health and trust in clinician. The finding that greater responsibility for one's health, including openness to mindset exercises, corresponds with a healthy understanding and emotional response to bodily sensations, greater social security, and greater trust in the clinician directs specialists to prioritize building trust, gently reorienting common misconceptions about bodily sensations, and assistance with social stressors.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251376078"},"PeriodicalIF":1.8,"publicationDate":"2025-09-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12413530/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145013394","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Hospital Patient and Family Advisory Council Accelerators and Barriers: A Qualitative Study. 医院病人和家属咨询委员会促进因素和障碍：一项定性研究。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-01 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251367662

Barbara Lewis, Erika Marquez, Chris Cochran, Neeraj Bhandari, Soumya Upadhyay, Stowe Shoemaker

{"title":"Hospital Patient and Family Advisory Council Accelerators and Barriers: A Qualitative Study.","authors":"Barbara Lewis, Erika Marquez, Chris Cochran, Neeraj Bhandari, Soumya Upadhyay, Stowe Shoemaker","doi":"10.1177/23743735251367662","DOIUrl":"10.1177/23743735251367662","url":null,"abstract":"Patient and Family Advisory Councils (PFACs), comprised of patients who have used the hospital's services and their family members, provide hospitals with input on a wide range of initiatives. This qualitative study aims to uncover the facilitators that accelerate and the barriers that inhibit councils and provide hospitals with a blueprint to help them start and strengthen PFACs. Grounded in partnership theory, this exploratory qualitative study used a thematic analysis framework to examine first-person accounts of launching and sustaining a PFAC. The sampling was derived from three groups of potential participants. Participants from 20 hospitals and systems agreed to discuss their councils. Five key themes emerged from the interviews: The PFAC landscape improved after the pandemic, garnering support across the organization is necessary, recruiting ideal members and diversifying the council is critical, effective PFAC operation takes planning, and process and outcome measures can identify the impact and the value of PFACs. Evidence supports patient engagement through PFAC partnerships. However, to ensure a thriving PFAC, the councils require intentional design, diverse participation representing hospital demographics, broad organizational commitment, and systematic evaluation to ensure sustainability and meaningful impact on patient experience and care delivery.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251367662"},"PeriodicalIF":1.8,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12402559/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144993783","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Transplant Journeys in Canada: A Cross-Sectional Survey of Transplant Patients, Caregivers, and Donors. 加拿大的移植旅程：对移植患者、护理人员和捐赠者的横断面调查。

IF 1.8

Journal of Patient Experience Pub Date : 2025-08-29 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251371781

Marc Hall, Arfan Afzal, Danielle E Fox, Carrie Thibodeau, Lydia Lauder, Kristi Coldwell, Sandra J Davidson, Sarah L Dewell

{"title":"Transplant Journeys in Canada: A Cross-Sectional Survey of Transplant Patients, Caregivers, and Donors.","authors":"Marc Hall, Arfan Afzal, Danielle E Fox, Carrie Thibodeau, Lydia Lauder, Kristi Coldwell, Sandra J Davidson, Sarah L Dewell","doi":"10.1177/23743735251371781","DOIUrl":"10.1177/23743735251371781","url":null,"abstract":"Those on transplant journeys must try to understand and navigate a complex healthcare system. Little is known about whether the challenges they face differ based on their individual characteristics. This study was done to understand the experiences of those on transplant journeys in Canada. Using an online 57-question cross-sectional survey developed in collaboration with a patient-advisory committee, data was captured on transplant patients, caregivers, and living donors (n = 935). Descriptive statistics and logistic regression analyses are reported. This article includes analyses not previously reported from this larger mixed-methods project. Most participants were female (70.1%), English speaking (92.6%), and white (87.8%). The top 3 concerns identified by participants included financial (42.6%), coordination of care (37.7%), and mental health (37.2%), which affected journey types, organ types, and sociodemographic groups differently. Understanding the perspectives of those going through transplant journeys is critical to inform system change. Further, identifying how individual characteristics influence transplant journeys is essential to person-centered care that creates a lasting impact on the organ donation and transplant system and health outcomes.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251371781"},"PeriodicalIF":1.8,"publicationDate":"2025-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12397590/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973273","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0