Journal of Patient Experience最新文献_第2页

Factors Affecting Engagement in Screening Clinics; Exploring the Experiences of Patients with Rare Endocrine Gene Disorders.

IF 1.6

Journal of Patient Experience Pub Date : 2025-03-16 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251316120

Samia Elyoussfi, Priscilla Harries, Meriel Norris, Lorraine DeSouza, William Drake

{"title":"Factors Affecting Engagement in Screening Clinics; Exploring the Experiences of Patients with Rare Endocrine Gene Disorders.","authors":"Samia Elyoussfi, Priscilla Harries, Meriel Norris, Lorraine DeSouza, William Drake","doi":"10.1177/23743735251316120","DOIUrl":"10.1177/23743735251316120","url":null,"abstract":"The aim was to explore the patient experience of those attending screening appointments for rare endocrine syndromes. Obtaining insights into the factors that potentially enhanced or detracted from attendance and engagement with the clinics could assist in developing strategies to promote patient engagement. A qualitative approach using semi-structured interviews was employed to understand individuals' perceptions and experience of the screening clinics. Twelve interviews were conducted with patients (age 10-66 years, purposive sampling). Four main themes were identified: (1) Perception at a distance, (2) Seeing my future self (3) The body and person in clinic and (4) The patient or doctor, who knows best? These highlighted several areas which could be used to inform approaches to promote enhanced patient engagement: the importance of careful management of projections of self, balancing information overload and honesty, interpersonal relationships and humanisation of care and assisting with the early navigation for the non-expert individual.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251316120"},"PeriodicalIF":1.6,"publicationDate":"2025-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11912168/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651237","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient-healthcare Professional Dialog from the Patient's Perspective: Concept Analysis Based on Literature Review.

IF 1.6

Journal of Patient Experience Pub Date : 2025-03-16 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251324395

Akiko Yamada

{"title":"Patient-healthcare Professional Dialog from the Patient's Perspective: Concept Analysis Based on Literature Review.","authors":"Akiko Yamada","doi":"10.1177/23743735251324395","DOIUrl":"10.1177/23743735251324395","url":null,"abstract":"Patient communication with healthcare professionals regarding their health is essential for patient engagement in healthcare; however, some medical professionals do not facilitate this process. This study aimed to analyze the concept of patient-healthcare professional dialog from the patient perspective, using Walker and Avant's eight stage methodology. The findings show that patient-healthcare professional dialog can be defined as the process in which patients exchange and share opinions with healthcare professionals who stay close to them, fostering a trusting partnership, while participating in the decision-making process regarding their medical care. The identified antecedents for dialog were the need for communication, time and space for dialog, and being acquainted with each other. Dialog determined the emergence of a desire for recovery and feelings of reassurance. This concept analysis has proven useful to understand patients in their entirety as individuals. It introduces a new framework for communication training programs, promoting patients' active involvement in their healthcare.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251324395"},"PeriodicalIF":1.6,"publicationDate":"2025-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11912173/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651241","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patients' Experiences Participating Within an Interdisciplinary Primary Care Program for Low Back Pain.

IF 1.6

Journal of Patient Experience Pub Date : 2025-03-13 eCollection Date: 2025-01-01 DOI: 10.1177/23743735241311752

Amédé Gogovor, Matthew Hunt, Richard Hovey, Sara Ahmed

{"title":"Patients' Experiences Participating Within an Interdisciplinary Primary Care Program for Low Back Pain.","authors":"Amédé Gogovor, Matthew Hunt, Richard Hovey, Sara Ahmed","doi":"10.1177/23743735241311752","DOIUrl":"https://doi.org/10.1177/23743735241311752","url":null,"abstract":"A common recommendation to improve the management of low back pain (LBP) is the use of interdisciplinary teams. However, many challenges remain in establishing interdisciplinary care, particularly in community-based primary care settings. This study explored patients' experiences with interdisciplinary care for LBP using an applied phenomenological research approach. Semistructured open-ended interviews were conducted with fifteen adults enrolled in a 6-month interdisciplinary LBP program within an integrated care network. The analysis included detailed descriptions of participants' experiences and interpretations by the researchers of the main themes: (i) challenging start-\"It's intimidating,\" (ii) desire for flexibility-\"I didn't need as much,\" (iii) better collaboration-\"They are all together,\" (iv) grasping the pain issue-\"They helped,\" (v) care was responsive to needs and experience-\"Always centered on me, not general,\" (vi) meanings of recovery-\"I'm able to function.\" Participants viewed the interdisciplinary LBP program as the culmination of a long journey toward recovery. The findings identified as important to patients contribute to our understanding of how to optimize patient-centered care for individuals living with chronic pain.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735241311752"},"PeriodicalIF":1.6,"publicationDate":"2025-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11907624/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651326","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient Opinions and Satisfaction Regarding Pharmacists Delivering Vaccinations in Community Pharmacies.

IF 1.6

Journal of Patient Experience Pub Date : 2025-03-13 eCollection Date: 2025-01-01 DOI: 10.1177/23743735241309473

Urszula Religioni, Regis Vaillancourt, Justyna Kazmierczak, Eliza Blicharska, Mariola Borowska, Beata Chełstowska, Jarosław Pinkas, Agnieszka Barańska, Krystian Wdowiak, Agnieszka Neumann-Podczaska, Katarzyna Plagens-Rotman, Katarina Fehir-Sola, Agnieszka Pochrzęst-Motyczyńska, Piotr Merks

{"title":"Patient Opinions and Satisfaction Regarding Pharmacists Delivering Vaccinations in Community Pharmacies.","authors":"Urszula Religioni, Regis Vaillancourt, Justyna Kazmierczak, Eliza Blicharska, Mariola Borowska, Beata Chełstowska, Jarosław Pinkas, Agnieszka Barańska, Krystian Wdowiak, Agnieszka Neumann-Podczaska, Katarzyna Plagens-Rotman, Katarina Fehir-Sola, Agnieszka Pochrzęst-Motyczyńska, Piotr Merks","doi":"10.1177/23743735241309473","DOIUrl":"https://doi.org/10.1177/23743735241309473","url":null,"abstract":"Vaccinations are among the most effective measures at preventing the spread of infectious diseases. Pharmacists in Poland were authorized to administer protective vaccinations in 2021. The study aims to research patient experience with vaccinations in connection with pharmacist assistance of pharmacists. This study was conducted in Polish community pharmacies among patients who had received such a vaccination. The research tool was a questionnaire consisting of questions on patient satisfaction and some personal data. Ultimately, 342 patients take part in our research. All respondents believe that vaccinations administered in pharmacies are a convenient form of preventive care. The respondents also appreciated the qualifications and skills of the pharmacists in administering the vaccine and indicated that they would use the pharmacy vaccination service again. Patients utilizing the opportunity to receive vaccinations at the pharmacy were satisfied with the quality of service provided by the pharmacists. They emphasize the convenience of this service and appreciate the pharmacists' qualifications. The vast majority of the respondents think that the role of pharmacists in delivering protective vaccinations should be expanded.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735241309473"},"PeriodicalIF":1.6,"publicationDate":"2025-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11907534/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651239","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Perspectives on Patient Experience: Findings from Healthcare Providers in a Web-Based Cross-Sectional Study Within a Healthcare Network in Brazil.

IF 1.6

Journal of Patient Experience Pub Date : 2025-03-13 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251325138

Helidea de Oliveira Lima, Giseli Rodrigues Carvalho, Rodrigo Nogueira, Verena B N A Campello, Ana Claudia Lopes Fernandes de Araújo, Álvaro Nonato de Souza, Bruno Pereira Stuchi, Vanessa de Melo Torres, Deborah Simões, Leopoldo Muniz da Silva

{"title":"Perspectives on Patient Experience: Findings from Healthcare Providers in a Web-Based Cross-Sectional Study Within a Healthcare Network in Brazil.","authors":"Helidea de Oliveira Lima, Giseli Rodrigues Carvalho, Rodrigo Nogueira, Verena B N A Campello, Ana Claudia Lopes Fernandes de Araújo, Álvaro Nonato de Souza, Bruno Pereira Stuchi, Vanessa de Melo Torres, Deborah Simões, Leopoldo Muniz da Silva","doi":"10.1177/23743735251325138","DOIUrl":"https://doi.org/10.1177/23743735251325138","url":null,"abstract":"The perceptions of healthcare providers regarding patient experience are essential for enhancing healthcare services and improving the overall patient journey. This study aimed to analyze patient experience efforts across six dimensions within a network of private hospitals in Brazil, leveraging insights derived from the perspectives of healthcare providers. A web-based survey was conducted, including questions about the following dimensions: (1) Governance and Leadership; (2) infrastructure and access; (3) staff and provider engagement; (4) Patient & Family Engagement; (5) Policy & Measurement; and (6) Quality & Clinical Excellence. All dimensions were classified as \"making progress,\" except for the \"Staff & Provider Engagement\" dimension, which was classified as \"getting started\". Professional experience did not influence perceptions of any dimension. A comparison of scores between physicians and nursing staff revealed the largest mean difference among the professional categories (p < 0.001). The key dimensions for implementing and developing patient experiences were positively identified by professionals of the multidisciplinary team in the study context. Healthcare professionals' engagement has emerged as the primary factor identified as an opportunity to improve patient experience.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251325138"},"PeriodicalIF":1.6,"publicationDate":"2025-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11907549/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651328","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Reimagining the ADHD Experience: Transforming Parent Engagement in ADHD Care.

IF 1.6

Journal of Patient Experience Pub Date : 2025-03-13 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251321238

Brooke T McLaughlin, Martha L Bruce, Susanne E Tanski

{"title":"Reimagining the ADHD Experience: Transforming Parent Engagement in ADHD Care.","authors":"Brooke T McLaughlin, Martha L Bruce, Susanne E Tanski","doi":"10.1177/23743735251321238","DOIUrl":"https://doi.org/10.1177/23743735251321238","url":null,"abstract":"In response to the needs of families of children with attention-deficit/hyperactivity disorder (ADHD), we set out to create a carefully designed and evidence-informed parent tool (The ADHD Playbook) with the goal to increase parental knowledge and confidence around effective engagement in the care of their child with ADHD. Evidence suggests that families do better when parents are actively engaged in leading their child's care team, serving as confident and informed caregivers and advocates. To this end, the ADHD Playbook was developed to fit unmet educational needs and is based on current guidelines from The American Academy of Pediatrics, review of the literature, parent/physician feedback, and professional design to ensure a user-centered focus. As the Playbook is intended for use in the primary care setting and at the time of ADHD diagnosis, the Playbook fulfills a time-critical need for families. This Playbook holds promise for broad public health impact due to easy scalability and the potential to decrease barriers to care and increase equity via semisubspecialty resources offered in the primary care setting.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251321238"},"PeriodicalIF":1.6,"publicationDate":"2025-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11907528/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651330","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Unlocking Patient and Professional Value Through Patient Experience: Preliminary Development and Validation of the Patient Experience Assessment of In-Center Hemodialysis (PEACHD) Survey.

IF 1.6

Journal of Patient Experience Pub Date : 2025-03-13 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251314653

Nicola Spezia, Cristina Masella, Carla Colturi, Gianvincenzo Melfa, Ines Ullo, Silvio Pianca, Maria Laura Costantino, Giustina Casagrande

{"title":"Unlocking Patient and Professional Value Through Patient Experience: Preliminary Development and Validation of the Patient Experience Assessment of In-Center Hemodialysis (PEACHD) Survey.","authors":"Nicola Spezia, Cristina Masella, Carla Colturi, Gianvincenzo Melfa, Ines Ullo, Silvio Pianca, Maria Laura Costantino, Giustina Casagrande","doi":"10.1177/23743735251314653","DOIUrl":"https://doi.org/10.1177/23743735251314653","url":null,"abstract":"Patient experience is a crucial measure of healthcare quality with the potential to increase value for several health stakeholders. However, various barriers often hinder its impact on quality improvement. Therefore, valid and reliable instruments developed through structured and collaborative processes are needed to establish methodological and organizational practices and ensure consensus and credibility among all stakeholders. This study presents the development and validation of the Patient Experience Assessment of in-Center Hemodialysis (PEACHD) survey. An expert panel, cognitive interviews, and a pilot test were conducted, involving both people receiving hemodialysis care and professionals from four Italian hospitals. The questionnaire evaluates key aspects of the in-center hemodialysis experience, including the provision of medical information, involvement in treatment decision-making, and communication with professionals. The PEACHD survey demonstrated strong content and face validity, acceptable construct validity, and good internal consistency reliability. Pilot data highlighted that the professional delivering care (i.e. nephrologist or dialysis nurse) significantly influenced patient experience and emphasized the need for a holistic and person-centered approach. The PEACHD survey enables effective patient experience evaluation, enhancing value for both service users and professionals.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251314653"},"PeriodicalIF":1.6,"publicationDate":"2025-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11907551/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651332","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Ennui in Long-Term Cancer: Existential Consequences Experienced by an Academic.

IF 1.6

Journal of Patient Experience Pub Date : 2025-03-03 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251325129

Annette M Lane

引用次数: 0

A Mixed-Methods Analysis of Negative Patient Experiences in Emergency Department Care: Identifying Challenges and Evidence-Informed Strategies Across the Care Continuum.

IF 1.6

Journal of Patient Experience Pub Date : 2025-03-02 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251323795

J K Fujioka, M Walker, D Rajab, S A Bartels

{"title":"A Mixed-Methods Analysis of Negative Patient Experiences in Emergency Department Care: Identifying Challenges and Evidence-Informed Strategies Across the Care Continuum.","authors":"J K Fujioka, M Walker, D Rajab, S A Bartels","doi":"10.1177/23743735251323795","DOIUrl":"10.1177/23743735251323795","url":null,"abstract":"This mixed-methods study explores negative patient experiences within emergency departments (EDs), aiming to uncover systemic challenges and propose evidence-informed solutions. Of 2114 shared ED experiences, 306 (14.5%) were reported as \"bad\" or \"very bad.\" Younger age, Indigenous status, financial instability, mental health disabilities, and non-heteronormative sexual identities were associated with negative ED experiences. Our research highlights key issues across the ED care continuum. During triage and registration, patients felt judged and perceived that their health concerns were under prioritized. Prolonged wait times contributed to feelings of neglect. During assessments, privacy concerns and lack of communication were prominent. Perceptions of misdiagnosis and stigmatization emerged as major concerns during the diagnosis and treatment phases. At discharge, insufficient follow-up and unclear instructions were frequently reported. Our findings underscore the need for improved communication, enhanced training to reduce stigma, and multi-pronged strategies to address the root causes of patient dissatisfaction. These insights can guide healthcare practitioners and policymakers in fostering a more inclusive and supportive ED environment, ultimately improving patient experiences and outcomes.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251323795"},"PeriodicalIF":1.6,"publicationDate":"2025-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11873856/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143543982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Let's Talk About Myopia: Literature Review and Stakeholder Survey to Develop a Roadmap for Advocacy.

IF 1.6

Journal of Patient Experience Pub Date : 2025-03-02 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251323355

Annegret Dahlmann-Noor, Hamza Noor

{"title":"Let's Talk About Myopia: Literature Review and Stakeholder Survey to Develop a Roadmap for Advocacy.","authors":"Annegret Dahlmann-Noor, Hamza Noor","doi":"10.1177/23743735251323355","DOIUrl":"10.1177/23743735251323355","url":null,"abstract":"Myopia (short-sightedness) in children is a public health concern, as prevalence and severity are rising. By 2050, half the world population may have myopia, with a fifth at risk of uncorrectable sight-loss. Effective treatments to slow the worsening of myopia are not publicly funded. Here we aimed to complete the first 2 of these stages of designing an effective myopia advocacy campaign, that is, issue identification and research/analysis. We carried out a literature review on myopia/eye care advocacy campaigns and an online key stakeholder survey with exploratory open-ended questions distributed to a convenience sample of 30 individuals known from previous informal discussions, including parents, a young adult, facilitators/representatives of UK and European myopia patient advocacy groups/charities, professional organizations and industry. We extracted data from included publications into a prespecified table and used thematic analysis to summarize survey responses. The main issues identified are perceived lack of public/professional awareness, complications and interventions, and public funding. The most important rationales for eye-healthy behavior and interventions are: short/medium-term improvement in quality of life linked to lower levels of short-sightedness, and long-term reduction of risk of sight-threatening complications and healthcare costs. A myopia advocacy campaign should increase public/professional awareness, provide education and information for eye/healthcare practitioners, families, teachers and other professionals, lead to public funding, and promote collaborations between stakeholders to enable funding for appropriate interventions.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251323355"},"PeriodicalIF":1.6,"publicationDate":"2025-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11873846/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143543984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0