Journal of Patient Experience最新文献_第2页

Feasibility of a Patient Decision Aid for Advance Care Planning Among Adults With a History of Intensive Care Admission: A Pilot Randomized Trial. 有重症监护住院史的成人患者决策辅助预先护理计划的可行性：一项试点随机试验。

IF 1.8

Journal of Patient Experience Pub Date : 2026-03-27 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261437631

Kanako Yamamoto

{"title":"Feasibility of a Patient Decision Aid for Advance Care Planning Among Adults With a History of Intensive Care Admission: A Pilot Randomized Trial.","authors":"Kanako Yamamoto","doi":"10.1177/23743735261437631","DOIUrl":"https://doi.org/10.1177/23743735261437631","url":null,"abstract":"This pilot randomized controlled trial investigated whether a patient decision aid (PtDA) could enhance preparedness for advance care planning (ACP) among participants treated in the intensive care unit (ICU) following surgery. Participants were recruited online through a private research company in Japan. The intervention group received a researcher-developed PtDA aligned with international standards, while the control group received an informational pamphlet. The SURE test, a screening tool for decisional conflict, was used as the primary outcome to assess confidence in health-related decision-making. A post-intervention web-based survey was also conducted to assess participants' preferences for ACP support from healthcare professionals. The proportion of participants unable to make an ACP decision was significantly lower in the intervention group (P < .05); more participants scored 4 on the SURE test, indicating full decisional confidence (P < .05). Participants expressed needs for healthcare professional presence and psychological support during ACP discussions with families. These findings suggest that a PtDA may effectively enhance decision-making about ACP among ICU survivors, even outside clinical settings, and highlight its potential as a scalable tool supporting post-discharge ACP in community-based contexts.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261437631"},"PeriodicalIF":1.8,"publicationDate":"2026-03-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13050404/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147628950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient Perspectives on Late-Onset Pompe Disease: Insights From a 2025 Patient Snapshot Survey on Diagnosis, Treatment, and Quality of Life. 患者对迟发性庞贝病的看法：来自2025年患者诊断、治疗和生活质量快照调查的见解

IF 1.8

Journal of Patient Experience Pub Date : 2026-03-24 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261433788

Benjamin W Gallarda, Ross A Leslie, Felicia Oyedepo, Claire Almeida, Kevin Ampeh, Guiomar Gonzalez, Benedikt Schoser

{"title":"Patient Perspectives on Late-Onset Pompe Disease: Insights From a 2025 Patient Snapshot Survey on Diagnosis, Treatment, and Quality of Life.","authors":"Benjamin W Gallarda, Ross A Leslie, Felicia Oyedepo, Claire Almeida, Kevin Ampeh, Guiomar Gonzalez, Benedikt Schoser","doi":"10.1177/23743735261433788","DOIUrl":"10.1177/23743735261433788","url":null,"abstract":"Late-onset Pompe disease (LOPD) is a rare neuromuscular disorder, where delays in diagnosis can result in inconsistent patient management and suboptimal use of effective treatments, thereby increasing patient burden. We conducted an exploratory, cross-sectional survey of 20 adults with LOPD in the UK and USA, recruited via patient advocacy groups and vetted databases. Our results showed that patients with LOPD experienced substantial delays from symptom onset to diagnosis. Interactions with healthcare professionals (HCPs) were inconsistent, and LOPD awareness among HCPs was insufficient. Patients were generally satisfied with their treatment, with 90% of patients reporting mild to no discomfort with enzyme replacement therapy or other treatments. However, 60% of patients implemented various nonpharmacological therapies to manage pain or other aspects of LOPD. These exploratory findings highlight persistent gaps in diagnosis and care, emphasizing the need for improved HCP education and integrated support services.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261433788"},"PeriodicalIF":1.8,"publicationDate":"2026-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13013990/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147522243","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Implementing Early Depression Screening as Routine Practice in Pharmacy Settings. 实施早期抑郁症筛查作为常规做法在药房设置。

IF 1.8

Journal of Patient Experience Pub Date : 2026-03-18 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261415769

Yoanna Vutova, Georgi Slavchev, Desislava Ignatova, Мaria Kamusheva

{"title":"Implementing Early Depression Screening as Routine Practice in Pharmacy Settings.","authors":"Yoanna Vutova, Georgi Slavchev, Desislava Ignatova, Мaria Kamusheva","doi":"10.1177/23743735261415769","DOIUrl":"10.1177/23743735261415769","url":null,"abstract":"This study examined the feasibility and impact of implementing routine depression screening in pharmacy settings through a 4-phase approach. A systematic literature review identified evidence supporting pharmacist-led screenings as effective and acceptable, with studies reporting improved detection rates and positive patient outcomes. Legislative analysis revealed strong international frameworks, particularly in the United States and United Kingdom, emphasizing pharmacists' role in mental health care. A situational analysis in Bulgaria highlighted a significant unmet need, with high prevalence of depressive symptoms among chronically ill patients and limited access to mental health specialists. These findings underscore the potential of community pharmacies to bridge care gaps. Based on the evidence, key recommendations include developing pharmacist training programs, advocating for supportive legislation and funding, launching public awareness campaigns to reduce stigma, and establishing collaborative referral networks with other healthcare providers. Implementing these measures can facilitate early detection, timely intervention, and improved public health outcomes by leveraging the accessibility and expertise of pharmacists in mental healthcare.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261415769"},"PeriodicalIF":1.8,"publicationDate":"2026-03-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13010034/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147515635","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Experience of Spanish Cancer Patients and Professionals With Quality of Life Assessment in Clinical Practice. 西班牙癌症患者及专业人员生活质量评估在临床实践中的经验。

IF 1.8

Journal of Patient Experience Pub Date : 2026-03-03 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261428898

Juan Ignacio Arraras, Jose Juan Illarramendi, Ana Manterola, Susana de la Cruz, Lucia Teijeira, Esteban Salgado, Maria Jose Lecumberri, Berta Ibañez, Ruth Vera

{"title":"The Experience of Spanish Cancer Patients and Professionals With Quality of Life Assessment in Clinical Practice.","authors":"Juan Ignacio Arraras, Jose Juan Illarramendi, Ana Manterola, Susana de la Cruz, Lucia Teijeira, Esteban Salgado, Maria Jose Lecumberri, Berta Ibañez, Ruth Vera","doi":"10.1177/23743735261428898","DOIUrl":"https://doi.org/10.1177/23743735261428898","url":null,"abstract":"This study evaluates the perspectives of Spanish patients with cancer and professionals on using graphic charts for clinical practice. One hundred patients with breast or lung cancer completed EORTC QLQ-C30 and specific questionnaires for both tumor locations. Personalized bar charts with Quality of Life areas and comparisons with reference values from previous studies at our institution were presented during medical consultations. Five oncologists were also interviewed. Eighty-eight patients agreed or strongly agreed that results were in line with expectations, while 22 reported having some or much difficulty in understanding the graphs. Patients' results were related to age, education level, tumor site, and treatment stage. All oncologists believed the graphs could improve communication with patients. However, they suggested they may increase their workload and identified lack of time as the main handicap to their implementation in practice. Nevertheless, all reported that they would discuss the graphs with their patients. In conclusion, the perspectives of Spanish patients and professionals on using graphic charts were positive. This supports including QOL assessment in daily clinical practice in our context.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261428898"},"PeriodicalIF":1.8,"publicationDate":"2026-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12957588/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147366829","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Caregiver's Perspective on Male Breast Cancer in India: Stigma, Disclosure, and the Lived Experience. 一个看护者的观点对男性乳腺癌在印度：耻辱，披露，和生活经验。

IF 1.8

Journal of Patient Experience Pub Date : 2026-03-02 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261431128

Souvik Mondal

{"title":"A Caregiver's Perspective on Male Breast Cancer in India: Stigma, Disclosure, and the Lived Experience.","authors":"Souvik Mondal","doi":"10.1177/23743735261431128","DOIUrl":"https://doi.org/10.1177/23743735261431128","url":null,"abstract":"Male breast cancer (MBC), a comparatively rare type of malignancy, is often diagnosed very late with extremely poor prognosis and early deaths of the patients, largely due to cultural stigma and societal taboo surrounding masculinity, and limited healthcare awareness. My experience as a caregiver for a distant relative from a rural village in West Bengal, India, whose stage-IV MBC was detected after a 15-month delay and early demise, exposed the profound impact of cultural expectations and shame on delayed diagnosis, patient outcomes, and heavy family burden. Our journey unveiled more challenges, such as family nondisclosure, social isolation, and extreme emotional distress stemming from the management of a cancer that is culturally perceived as feminine. This perspective emphasizes critical shortcomings in Male Breast Cancer awareness and care, highlighting the urgent need for culturally responsive education, family-centered counseling to alleviate shame and stigma, and policy reforms to enable earlier diagnosis and sustained and compassionate support for patients and caregivers.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261431128"},"PeriodicalIF":1.8,"publicationDate":"2026-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12954013/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147356944","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"Moments of Clarity": A Qualitative Study to Understand Factors Protecting Patients in Active Drug Rehab from Deaths of Despair. “清晰时刻”：一项定性研究，以了解保护积极戒毒患者免于绝望死亡的因素。

IF 1.8

Journal of Patient Experience Pub Date : 2026-02-25 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261422278

Kaléi H Crimi, Kristin Cunningham, Lisa Albert, Pauline Hwang, Michael Evans, Heather Stuckey, Daniel R George, Emily Brignone, Judith Hupcey, Jennifer Kraschnewski

{"title":"\"Moments of Clarity\": A Qualitative Study to Understand Factors Protecting Patients in Active Drug Rehab from Deaths of Despair.","authors":"Kaléi H Crimi, Kristin Cunningham, Lisa Albert, Pauline Hwang, Michael Evans, Heather Stuckey, Daniel R George, Emily Brignone, Judith Hupcey, Jennifer Kraschnewski","doi":"10.1177/23743735261422278","DOIUrl":"https://doi.org/10.1177/23743735261422278","url":null,"abstract":"Over the past three decades, US mortality rates resulting from suicide, drug overdose, and alcohol-related liver disease-collectively referred to as Deaths of Despair (DoD)-have risen sharply. While epidemiologic patterns are well documented, less is known about the lived experiences of those vulnerable to DoD and the factors that support recovery. This study partnered with an addiction recovery center in a central Pennsylvania community disproportionately affected by despair-related conditions. Seventeen individuals in active recovery participated in in-depth interviews to explore pathways leading to despair and addiction, and sources of resilience. Thematic analysis using MAXQDA software identified three primary themes with subthemes: barriers to recovery (grief from personal loss, isolation, and ineffective coping with pain), shifts from despair (ie, \"moments of clarity\") (change in motivation, remorse, and embarrassment), and recovery support (higher power and family, community and healthcare support). These findings provide qualitative insight into the biopsychosocial dynamics of despair and recovery and highlight the importance of grief support, coordinated pain management, emotional reflection, and social and spiritual resources. Such insights may inform clinical practice, community programs, and policy interventions aimed at reducing DoD and supporting long-term recovery.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261422278"},"PeriodicalIF":1.8,"publicationDate":"2026-02-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12946397/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147327708","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Hospital Patient and Family Advisory Councils: A Quantitative Study on How Councils are Used and Predictors of Effective Councils. 医院病人和家属咨询委员会：关于如何使用委员会和有效委员会的预测因素的定量研究。

IF 1.8

Journal of Patient Experience Pub Date : 2026-02-20 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261415786

Barbara Lewis, Chris Cochran, Stowe Shoemaker, Neeraj Bhandari, Soumya Upadhyay, Erika Marquez

{"title":"Hospital Patient and Family Advisory Councils: A Quantitative Study on How Councils are Used and Predictors of Effective Councils.","authors":"Barbara Lewis, Chris Cochran, Stowe Shoemaker, Neeraj Bhandari, Soumya Upadhyay, Erika Marquez","doi":"10.1177/23743735261415786","DOIUrl":"https://doi.org/10.1177/23743735261415786","url":null,"abstract":"Patient and family advisory councils (PFACs) are a key strategy in advancing patient-centeredness, heralded by the Institute of Medicine as a goal to improve healthcare quality. Although PFACs have been around since the 1980s, they exist in only 54% of US hospitals, according to the American Hospital Association's annual survey of 6100 hospitals. This research aimed to identify key predictors of PFAC effectiveness, since previous studies had lacked descriptions of these factors. Using the C-OAR-SE theory, this quantitative, validated survey of 60 questions was answered by 203 respondents who worked or had worked with PFACs in US hospitals. The results revealed that leadership support was significantly associated with increased meeting content, stronger measurement practices, and more frequent decision-making and involvement with policies and procedures. PFACs, focused on conditions or patient types rather than general PFACs, scored higher on multiple factors, including meeting content, measurement practices, level of engagement, and coaching and training members. This study highlights the key drivers of effective operations and reinforces the value of patient-centeredness in integrating the patient and family voice into hospital initiatives through PFACs.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261415786"},"PeriodicalIF":1.8,"publicationDate":"2026-02-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12924927/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147277362","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Pilot Study Evaluating Traditional and Artificial Intelligence (AI)-Generated Bedside Art Interventions in Hospital Care. 一项评估医院护理中传统和人工智能（AI）生成的床边艺术干预的试点研究。

IF 1.8

Journal of Patient Experience Pub Date : 2026-02-11 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261423084

Brian R Smith, Lauren A Toomer, Emily Vu, Breanna Collins, Alexis E Ivec, Connor Sayle, Courtney J Smith, Jenny Shi, Melanie Ambler, Bryant Lin

{"title":"A Pilot Study Evaluating Traditional and Artificial Intelligence (AI)-Generated Bedside Art Interventions in Hospital Care.","authors":"Brian R Smith, Lauren A Toomer, Emily Vu, Breanna Collins, Alexis E Ivec, Connor Sayle, Courtney J Smith, Jenny Shi, Melanie Ambler, Bryant Lin","doi":"10.1177/23743735261423084","DOIUrl":"10.1177/23743735261423084","url":null,"abstract":"The psychological burden of hospitalization adversely affects patient well-being and recovery trajectories, prompting an investigation into whether personalized artwork-created either traditionally or through artificial intelligence (AI)-offers a viable therapeutic approach. This pilot study evaluated traditional artist-created and AI-generated personalized artwork in an inpatient setting. Adult inpatients (n = 37) at Stanford Hospital underwent a personalized artwork intervention. Participants completed preintervention and postintervention surveys assessing changes in psychological measures, including pain, stress, anxiety, comfort, and attitudes toward art in healthcare. A 15-min structured interview exploring personal interests and meaningful life experiences informed the creation of personalized artwork, either by an artist or using a commercially available AI art generation platform. Altogether, the art interventions were associated with significant reductions in anxiety and stress, and increased comfort. Linear regression analysis showed no significant differences in effectiveness between traditional and AI-generated art modalities. Patient satisfaction was high, with 74% reporting the experience exceeded expectations, 72% indicating it meaningfully improved their hospital experience, and 85% of participants being \"very likely\" to recommend it to others. This pilot study suggests that personalized art interventions, whether created traditionally or via AI, can be effectively implemented in hospital settings and may improve patient well-being.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261423084"},"PeriodicalIF":1.8,"publicationDate":"2026-02-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12901852/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146203210","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient Perspectives on Episodic Dizziness and a Hypothetical At-Home Diagnostic Tool. 患者对间歇性头晕的看法和一种假设的家庭诊断工具。

IF 1.8

Journal of Patient Experience Pub Date : 2026-02-09 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261416352

Donald Paul Keating, Kristen Kay Steenerson, Ankur Gupta, Peter Luke Santa Maria

{"title":"Patient Perspectives on Episodic Dizziness and a Hypothetical At-Home Diagnostic Tool.","authors":"Donald Paul Keating, Kristen Kay Steenerson, Ankur Gupta, Peter Luke Santa Maria","doi":"10.1177/23743735261416352","DOIUrl":"10.1177/23743735261416352","url":null,"abstract":"Patients with frequent dizzy attacks will report dissatisfaction with current diagnostic tools and express interest in a wearable at-home dizzy attack monitor. Existing diagnostic approaches for recurrent dizziness are often inadequate, particularly for episodic events that occur outside clinical settings. This study aimed to evaluate patient perspectives on current diagnostic and treatment methods and assess interest in a proposed at-home dizzy attack monitoring device. A cross-sectional survey was administered to 250 adults with self-reported dizzy attacks between December 2021 and January 2022 via Survey Healthcare Global. The survey included expert-reviewed items covering attack frequency, diagnostic experiences, treatment satisfaction, and responses to a conceptual wearable monitor. Of the 250 participants (32% male, 68% female), 43% were dissatisfied with diagnostic tools and 44% with treatments. Dissatisfaction was highest among those experiencing weekly (47% diagnostic, 48% treatment) and daily (46% diagnostic, 54% treatment) attacks. Interest in the hypothetical wearable monitor was reported by 79% overall, increasing to 86% among weekly and 85% among daily attack groups. Patients with frequent dizzy attacks report significant dissatisfaction with current standards of care and show strong interest in novel technology that enables real-time, at-home capture of symptoms to support more accurate diagnosis.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261416352"},"PeriodicalIF":1.8,"publicationDate":"2026-02-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12886721/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146167186","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient Experience and Perception of First Language Usage in Healthcare: The Welsh Perspective. 病人的经验和感知第一语言的使用在医疗保健：威尔士的观点。

IF 1.8

Journal of Patient Experience Pub Date : 2026-02-09 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261417165

Maisie E Edwards, Owen Bodger, Menna Brown, Llinos Roberts, Luke D Roberts, Jeffrey S Davies, Alwena H Morgan

{"title":"Patient Experience and Perception of First Language Usage in Healthcare: The Welsh Perspective.","authors":"Maisie E Edwards, Owen Bodger, Menna Brown, Llinos Roberts, Luke D Roberts, Jeffrey S Davies, Alwena H Morgan","doi":"10.1177/23743735261417165","DOIUrl":"10.1177/23743735261417165","url":null,"abstract":"Research shows that using a patient's preferred language is vital for effective healthcare communication. Consultations in a second language can lead to treatment delays and misdiagnoses. In Wales, while Welsh and English have equal status in the public sector, independent primary care providers like General Practices (GPs) are not fully bound by Welsh Language Standards (WLS), resulting in inconsistent bilingual provision. This mixed methods study combined focus groups and a survey of 361 Welsh speakers to explore awareness of WLS and experiences of bilingual GP care. Analysis revealed low awareness (27%) of the WLS and significant unmet language needs. 71% had never been offered a Welsh-language consultation and 57% with English-speaking GPs said they would feel more comfortable having Welsh-medium consultations. In high Welsh-speaking areas, 32% felt restricted by not being able to use their first language during GP appointments. There was strong support for recording language preference in health records. Findings highlight both the need and desire for Welsh-language provision in primary care, and the importance of policy changes to support an \"active offer\" approach.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261417165"},"PeriodicalIF":1.8,"publicationDate":"2026-02-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12886726/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146167204","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0