Journal of Patient Experience最新文献_第2页

A Qualitative Description Study of the Patient's Experience With Community-Based Virtual Crisis Care in Canada: Illustrating the Potential Positives and Negatives of Remote Support on Recovery. 加拿大基于社区的虚拟危机护理患者体验的定性描述研究：说明远程支持对康复的潜在积极和消极影响。

IF 1.8

Journal of Patient Experience Pub Date : 2025-10-01 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251360511

Angela Buchel, Jocelyne Lemoine, James M Bolton, Jennifer M Hensel

{"title":"A Qualitative Description Study of the Patient's Experience With Community-Based Virtual Crisis Care in Canada: Illustrating the Potential Positives and Negatives of Remote Support on Recovery.","authors":"Angela Buchel, Jocelyne Lemoine, James M Bolton, Jennifer M Hensel","doi":"10.1177/23743735251360511","DOIUrl":"10.1177/23743735251360511","url":null,"abstract":"The study's objective is to describe how individuals accessing a virtual crisis stabilization program following discharge from an emergency mental health visit perceived the service as either facilitating or hindering recovery. Interested service users were identified through feedback surveys and contacted for an interview. Demographic and service utilization variables were obtained from the survey data. Interview data were analyzed thematically using an inductive approach focused on exploring perspectives related to recovery. Twenty-one participants were interviewed; one with a support person. Four recovery thematic categories were identified: (1) connection to others is possible or lacking; (2) access to care providers/therapeutic relationship; (3) ability to remain at home; and (4) virtual service provision. Each category generated subthemes that demonstrated both positive and negative impacts of the virtual service. Lived experience highlights typical aspects of crisis intervention, as well as unique themes related to the home environment and virtual care option. It is important to identify these contextual factors when determining if virtual care is right for an individual. Some areas for service improvement were also highlighted.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251360511"},"PeriodicalIF":1.8,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12489190/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145233621","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Dear Breast Cancer Oncology: Where is the Behavioral Health Care? 亲爱的乳腺癌肿瘤学：行为保健在哪里？

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-30 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251383590

Kelly N Gable

引用次数: 0

Diagnosing and Treating Venous Thoracic Outlet Syndrome: A Teenager's Experience and Perspective. 诊断和治疗静脉胸廓出口综合征：一个青少年的经验和观点。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-30 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251383608

Anna Bessonette

引用次数: 0

Amplifying the Future of Patient Voices and Cross-Disease Networking Through the Advocacy Exchange. 通过倡导交流放大患者声音和跨疾病网络的未来。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-29 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251383223

Brad Love, Sheila Thorne, Laudy Robinson, Eileen Shannon, Katie Stout, David Craig, Jasmine Greenamyer

{"title":"Amplifying the Future of Patient Voices and Cross-Disease Networking Through the Advocacy Exchange.","authors":"Brad Love, Sheila Thorne, Laudy Robinson, Eileen Shannon, Katie Stout, David Craig, Jasmine Greenamyer","doi":"10.1177/23743735251383223","DOIUrl":"10.1177/23743735251383223","url":null,"abstract":"Patient advocacy is essential for progress in healthcare to improve clinical practice and treatments, but advocacy is neither well understood nor supported. Advocacy work is often placed on those already negotiating social burdens, caregiving, and diagnoses. The Advocacy Exchange (TAE) rose as a community-led, public-private partnership, becoming the largest cross-cultural, cross-therapeutic, global network of health-related advocates. TAE is co-created with leaders from the nonprofit, healthcare, governmental, and business sectors as an innovative accelerator of advocacy-industry relationships, integrating patient experience into healthcare systems and supporting individuals on advocacy journeys, whether they are 3 days or 3 decades postdiagnosis. Across 4 years of online gatherings, resource sharing, and partnership-matching, TAE has reached 77,500 website visitors from 120 countries with 7100 registrants representing more than 325 organizations. Forty-five live sessions co-created with advocates show robust community participation for sessions on health equity, patient dignity, and patient voice, leading to 50-plus hours of YouTube content viewed 97,000 times with 15 million social media impressions. Survey data show an engaged community grateful for peer connections and collective problem-solving. Lessons learned can serve to accelerate public-private partnerships and amplify patient voices. Themes include: (1) individuals being forced into advocacy by need; (2) consistent presence of barriers and discrimination in healthcare; (3) importance of discussing hard subjects; (4) need for neutral meeting spaces; and (5) opportunities to bridge industries and advocacy for progress. TAE will broaden its umbrella by building more partnerships for community members, targeting access and equity in healthcare, and shaping the understanding of advocacy.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251383223"},"PeriodicalIF":1.8,"publicationDate":"2025-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12480812/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145208164","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Healthcare Professionals' Perceptions of Patients' Out-of-ICU Activities: Exploring Opportunities for Humanizing ICU Care. 医疗保健专业人员对患者ICU外活动的看法：探索人性化ICU护理的机会。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-26 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251383260

Nobuko Sasano, Masami Yasuda, Ryoko Takahashi, Toru Uehara

{"title":"Healthcare Professionals' Perceptions of Patients' Out-of-ICU Activities: Exploring Opportunities for Humanizing ICU Care.","authors":"Nobuko Sasano, Masami Yasuda, Ryoko Takahashi, Toru Uehara","doi":"10.1177/23743735251383260","DOIUrl":"10.1177/23743735251383260","url":null,"abstract":"Patients hospitalized in an intensive care unit (ICU) are vulnerable to dehumanization. To provide ICU patients and their family members with more enjoyable and meaningful ICU experiences, our hospital has implemented out-of-ICU activities, including outdoor excursions and whole-body shower bathing as an early rehabilitation strategy. Herein, we investigated healthcare professionals' perceptions regarding how these out-of-ICU activities affect both the patients' physical and mental conditions and the humanized care of ICU patients. We conducted a survey that asked 17 questions (benefits, harms, \"What if you or your family member were the one in the ICU?\" and humanization) and provided a free-writing section. Thirty-six physicians, 38 nurses, 9 therapists, and 7 clinical engineering technicians responded (84% response rate). Most respondents perceived that the out-of-ICU program improves patients' conditions and promotes humanized care in the ICU. These preliminary findings provide valuable insights, though larger and more rigorous studies are needed to confirm and extend the results.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251383260"},"PeriodicalIF":1.8,"publicationDate":"2025-09-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12475325/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145186796","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Acceptance and Adoption of Artificial Intelligence Among Cancer Survivors Seeking Information: A Literature Review. 寻求信息的癌症幸存者对人工智能的接受和采用：文献综述。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-26 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251380949

Prabal Chourasia, Melissa Coffel, Jamie Lynn Conklin, William A Wood, Saif Khairat

{"title":"Acceptance and Adoption of Artificial Intelligence Among Cancer Survivors Seeking Information: A Literature Review.","authors":"Prabal Chourasia, Melissa Coffel, Jamie Lynn Conklin, William A Wood, Saif Khairat","doi":"10.1177/23743735251380949","DOIUrl":"10.1177/23743735251380949","url":null,"abstract":"With artificial intelligence (AI) on the rise in healthcare, we investigated the acceptance and adoption of AI among cancer survivors who are seeking information. We searched 3 databases-PubMed, Scopus, and CINAHL for original research studies examining cancer survivors' acceptance and adoption of AI while seeking information. We screened 858 articles, resulting in the inclusion of 12 studies. Cancer survivors' perceived benefits of AI include diagnostic accuracy, improved healthcare access, and reduced healthcare costs. Concerns included the loss of human interaction, data loss, and privacy issues. Adoption and acceptance of AI-based Chatbots and cancer trial search tools were also demonstrated. Regarding the ethical use of AI, cancer survivors shared a desire for data de-identification, disclosure, and transparency. Cancer survivors accepted AI as an adjunct to physicians. Patients demonstrated acceptance and adoption of both AI-based educational tools and search engines. Developing AI models with better explainability and education can improve cancer survivors' acceptance and adoption of AI.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251380949"},"PeriodicalIF":1.8,"publicationDate":"2025-09-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12475323/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145186462","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

From Frustration to Understanding: The Effectiveness of an Emergency Department Waiting Room Video in Enhancing Patient Satisfaction. 从沮丧到理解：急诊科候诊室视频提高患者满意度的有效性。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-26 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251383265

Anindro Bhattacharya, Zhongqi Alice Hou, Abhinav Pathrabe, Aarav Sethia, Ansh Tandon, Zubin Hussain, Neil A Ray

引用次数: 0

Not All PID is an STD: A Patient's Perspective on Dismissal, Delay, and Diagnostic Bias. 并非所有的PID都是性病：一个病人对忽视、延迟和诊断偏差的看法。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-24 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251383591

Vaishnavi J Patel, Devki Patel, Kedar J Patel, Aakaash Duggal

引用次数: 0

Empowering Heart Failure Patients: The Role, Importance, and Considerations of Active Patient Engagement in Improving Delivery of Guideline-Directed Medical Therapy. 增强心力衰竭患者的能力：患者积极参与在改善指导药物治疗中的作用、重要性和考虑因素

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-24 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251380970

Michele Senni, Beth Towery Davidson, Naresh Kanumilli, Teresa Levitch, Corrado Farchioni, Cynthia Chauhan, Petrina Stevens, Elmas Malvolti, Ana Marija Gjurovic, Caroline Brigitte Katzer, James King, Javed Butler

{"title":"Empowering Heart Failure Patients: The Role, Importance, and Considerations of Active Patient Engagement in Improving Delivery of Guideline-Directed Medical Therapy.","authors":"Michele Senni, Beth Towery Davidson, Naresh Kanumilli, Teresa Levitch, Corrado Farchioni, Cynthia Chauhan, Petrina Stevens, Elmas Malvolti, Ana Marija Gjurovic, Caroline Brigitte Katzer, James King, Javed Butler","doi":"10.1177/23743735251380970","DOIUrl":"10.1177/23743735251380970","url":null,"abstract":"Heart failure (HF) is a chronic syndrome that is associated with frequent rehospitalization. Patient-focused research suggests that increased health-management activation may lead to favorable clinical outcomes. This article introduces a case study of the development of a patient education and activation tool for use by HF-specialist clinicians, \"ENGAGE in HF,\" and advocates for wider adoption of co-creation involving people living with HF. Following a behavioral assessment of unmet needs in the HF-patient population in scientific literature, people living with HF were invited to comment on the content plan and excerpts from the tool. Afterwards, HF-specialist clinicians provided their scientific perspective and assessed the content's practical utility. The co-created tool aims to improve dialogue between clinicians and patients. It allows clinicians to personalize conversations, considering each patient's capacity to integrate information and their readiness to engage in shared decision making. Feedback from initial dissemination of the ENGAGE in HF tool among cardiologists in China suggests that use of such tools may lead to improvements in patient education, symptom management, and adherence to medication.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251380970"},"PeriodicalIF":1.8,"publicationDate":"2025-09-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12461044/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145186813","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Patient Experience of Ocular Melanoma: An Interpretive Description. 眼黑色素瘤的患者经验：解释性描述。

IF 1.8

Journal of Patient Experience Pub Date : 2025-09-23 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251383212

Jennifer M L Stephens, Chenoa Williams

{"title":"The Patient Experience of Ocular Melanoma: An Interpretive Description.","authors":"Jennifer M L Stephens, Chenoa Williams","doi":"10.1177/23743735251383212","DOIUrl":"10.1177/23743735251383212","url":null,"abstract":"The purpose of this study was to explore the patient experience of individuals diagnosed with ocular melanoma (OM). This qualitative study was guided by Interpretive Description. Nine participants (N = 9) participated in interviews. A focus group (n = 7) was conducted at the end of the study to discuss and confirm themes. WORD, EXCEL, and NVIVO were used for data collection and analysis and EQUATOR guidelines (COREQ) were followed. This study revealed three themes: the entangled self, perils of survivorship, and self-advocacy. The participants in this study described how they discovered their OM, the treatments they faced, and the deep sense of loss from the disruption of sight. The participants also highlighted the importance of understanding OM as an ongoing, lifelong cancer experience that is rarely acknowledged by healthcare providers. Understanding the journey of OM patients as cancer survivors is critical for both oncology and general healthcare providers. With improved recognition, better patient-centered care could be provided affecting both physiological and psychological health of OM patients.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251383212"},"PeriodicalIF":1.8,"publicationDate":"2025-09-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12457750/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145151134","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0