Beatriz Santos, Maeva Rousseau, Ralitza Gauthier, Alexandra Calmy, Marie P Schneider
{"title":"Patient Experiences With Nirmatrelvir/Ritonavir for COVID-19 in a Collaborative Care Model: A Cross-Sectional Study on Self-Management, Information, and Medication Impact.","authors":"Beatriz Santos, Maeva Rousseau, Ralitza Gauthier, Alexandra Calmy, Marie P Schneider","doi":"10.1177/23743735251342126","DOIUrl":"https://doi.org/10.1177/23743735251342126","url":null,"abstract":"<p><p>In response to the COVID-19 pandemic, nirmatrelvir/ritonavir was approved as the first per os treatment to prevent severe disease progression. This study explores patients' self-management of nirmatrelvir/r and its impact on their long-term medications, and their experience of the information provided by pharmacists and physicians. Adults receiving nirmatrelvir/r from September 2022 to March 2023 were interviewed via a semistructured telephone survey. Sociodemographic, clinical data, and experience with nirmatrelvir/r and cotreatments were collected and analyzed descriptively. Of the 281 patients receiving nirmatrelvir/r, 100 (36%) participated in this study. Ninety (90%) adhered to nirmatrelvir/r, while 5 (5%) reported early discontinuation and 5 (5%) increased time between dosages. Information gaps regarding side effects, risks, benefits, and mechanisms of action were identified. Due to interactions with nirmatrelvir/r, 43% (n = 43/85) of cotreatments were temporarily interrupted, and 13% (n = 11/85) of doses were adjusted. Patient management of nirmatrelvir/r and cotreatments was successful, but satisfaction toward nirmatrelvir/r information could be improved. This study highlights the importance of ongoing efforts to ensure communication strategies, patient education, and interprofessional collaboration in providing treatments with drug-drug interactions.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251342126"},"PeriodicalIF":1.6,"publicationDate":"2025-05-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12078955/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144081237","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
George E Sayegh, Scott Wallace, Karl Koenig, Elizabeth Teisberg, David Ring
{"title":"Experience Group Insights of Obese Adults Aged 35-50 with Knee Osteoarthritis.","authors":"George E Sayegh, Scott Wallace, Karl Koenig, Elizabeth Teisberg, David Ring","doi":"10.1177/23743735251341717","DOIUrl":"https://doi.org/10.1177/23743735251341717","url":null,"abstract":"<p><p>Fifteen patients between 35 and 50 years of age, with a body mass index (BMI) over 35 with knee osteoarthritis participated in small group, facilitator-guided, interactive discussions (experience groups). Using initial inductive coding followed by deductive classification, 2 coders identified themes related to outcomes including difficulty engaging in meaningful work and social isolation in the capability realm, feelings of depression in the comfort realm, and desiring small achievable goals and consistent support in the calm realm. Themes regarding gaps in care included lack of roadmap and inadequate support. The obstacles to health were debilitating pain, despair due to isolation and stigmatization, hopelessness regarding treatment, perceived lack of clinician empathy and distrust, and frustration with the association of knee osteoarthritis with aging. Effective musculoskeletal specialty care can anticipate these patient needs, particularly for circumstances where nonoperative, accommodative health strategies are favored.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251341717"},"PeriodicalIF":1.6,"publicationDate":"2025-05-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12067351/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144049751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Patient Perspective on Dental Care Amidst COVID-19 Pandemic: A Survey During Omicron Stage.","authors":"Paratcha Pingsuthiwong, Paswach Wiriyakijja, Pagaporn Pantuwadee Pisarnturakit, Keskanya Subbalekha","doi":"10.1177/23743735251342125","DOIUrl":"https://doi.org/10.1177/23743735251342125","url":null,"abstract":"<p><p>The COVID-19 pandemic influenced dental care behaviors, with increased concern over virus transmission. This study provides insights into Thai patient behaviors and attitudes about dental care during the Omicron wave. A cross-sectional survey was conducted via Google Forms in June 2022, collecting sociodemographic data, attitudes, and behaviors related to dental care during the pandemic. Nine hundred and seventy-eight responses were analyzed using descriptive statistics, the Mann-Whitney <i>U</i>-test, and multiple linear regression. Nearly half of the respondents expressed high to extreme concerns about delayed dental care affecting oral health (49.3%) and the risk of contracting COVID-19 in dental settings (45.7%). Individuals who avoided dental visits increased from 8.1% before the pandemic to 36.3% during the pandemic. However, 59.4% of respondents reported confidence in avoiding COVID-19 when dental workers strictly followed preventive measures. The study highlights concern over delayed dental care and COVID-19 risks, leading to increased avoidance of visits. However, strict preventive measures by dental workers boosted confidence, emphasizing the need for effective infection control to ensure continued access to dental care.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251342125"},"PeriodicalIF":1.6,"publicationDate":"2025-05-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12065987/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144020600","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Namam Ali Azadi, Arash Ziapour, Fatemeh Mohammadkhah, Fatemeh Darabi, Javad Yoosefi Lebni, Fakhreddin Chaboksavar, Murat Yıldırım, Neda Kianipour
{"title":"Effects of an Educational Health Belief Model Program on Promoting Preventive Behaviors for Breast Cancer Among Women in Iran.","authors":"Namam Ali Azadi, Arash Ziapour, Fatemeh Mohammadkhah, Fatemeh Darabi, Javad Yoosefi Lebni, Fakhreddin Chaboksavar, Murat Yıldırım, Neda Kianipour","doi":"10.1177/23743735251341719","DOIUrl":"https://doi.org/10.1177/23743735251341719","url":null,"abstract":"<p><p>Breast cancer is regarded as a healthcare issue for women worldwide and affects women of all races, ethnicities, and social classes. The study aimed to examine the effects of the health belief model (HBM)-based educational program on knowledge, practices, and how to prevent breast cancer in women who go to health centers in Iran, which is in the province of Alborz in Iran. A quasi-experimental study was carried out based on a pretest-posttest design with the control group in 2022. A study targeted 128 women in 2 interventions (n = 64) and control (n = 64) groups. The data were collected from participants using a researcher-made questionnaire developed based on key constructs of the HBM, before and 2 months after the educational intervention. Educational intervention was held for 6 sessions of 60 min duration each. The health belief model evaluates 7 components of individuals, including perceived susceptibility, perceived severity, perceived barriers, perceived benefits, self-efficacy, cues to action, and practice. The Mann-Whitney test was utilized to compare the levels of quantitative variables between the 2 groups. A chi-squared test was utilized for the categorical variables. A robust analysis of covariance (ANCOVA) was employed to evaluate the effect of the intervention on all 7 HBM components. The results showed that using the health belief model can increase awareness, perceived benefits, perceived susceptibility, perceived severity, and self-efficacy of women for the prevention of breast cancer.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251341719"},"PeriodicalIF":1.6,"publicationDate":"2025-05-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12062650/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144051574","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Stacie Vilendrer, Cassandra Bragdon, Rebecca K Miller-Kuhlmann, Nirali Vora, Carl A Gold, Marcy Winget
{"title":"Towards a Novel Patient Experience Survey System: Incorporating Physician Perspectives into Performance Feedback Dashboard Design.","authors":"Stacie Vilendrer, Cassandra Bragdon, Rebecca K Miller-Kuhlmann, Nirali Vora, Carl A Gold, Marcy Winget","doi":"10.1177/23743735251341724","DOIUrl":"https://doi.org/10.1177/23743735251341724","url":null,"abstract":"<p><p>We aim to incorporate physician insights into the development of a performance dashboard based on a novel patient experience survey system at a large academic health system. A multidisciplinary team of physicians, researchers, and designers met regularly to develop the dashboard informed by Clinical Performance Feedback Intervention Theory. Semistructured qualitative interviews with frontline physicians underwent combined inductive-deductive thematic analysis to inform dashboard improvements. A total of 20 interviews were conducted April-July 2023 with 9 neurologists and 6 primary care physicians in 2 phases. Physician preferences converged along design, content, and administration features, which were incorporated into the dashboard and accepted by physicians during phase 2. Important themes included establishment of survey credibility, preference for qualitative over quantitative data, and associated incentive structure. Dashboard design required an intuitive data overview with features such as hover-over insights that allowed deeper exploration. Physicians valued patient comments over quantitative data, prompting further redesign of the dashboard to prioritize qualitative insights, contrasting with the national emphasis on quantitative benchmarks.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251341724"},"PeriodicalIF":1.6,"publicationDate":"2025-05-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12064888/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144024031","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Impact of Self-Management Abilities, Sleep Quality, and Anxiety on the Well-Being of Patients With Benign Prostatic Hyperplasia: A Cross-Sectional Analysis.","authors":"Shu Lingzhi, Hongchen Zhang, Yuhong Luo","doi":"10.1177/23743735251341726","DOIUrl":"https://doi.org/10.1177/23743735251341726","url":null,"abstract":"<p><p>Current benign prostatic hyperplasia (BPH) management prioritizes urological symptoms while neglecting psychological impacts on subjective well-being (SWB). Although chronic disease-SWB associations are established, limited evidence exists regarding interactive effects of psychosocial factors (sleep, anxiety, self-management) in BPH populations. This multicenter cross-sectional study enrolled 412 BPH patients from 6 tertiary hospitals in Northwest China. Validated instruments assessed key variables: Pittsburgh Sleep Quality Index for sleep quality, Self-Rating Anxiety Scale for psychological distress, Memorial University of Newfoundland Happiness Scale for SWB, and Chinese Self-Management Ability Scale for behavioral competencies. Structural equation modeling elucidated pathway relationships. Of the patients, 72.5% experienced sleep disorders, and 79.0% reported anxiety. Regression analysis indicated that income (β = 1.378, <i>P</i> < .01) and self-management abilities (β = 0.074, <i>P</i> < .01) positively impacted SWB, while anxiety (β = -0.155, <i>P</i> < .01) and sleep disorders (β = -0.581, <i>P</i> < .01) negatively affected it. The structural equation model revealed a direct effect of self-management abilities on SWB of 0.20 and an indirect effect of 0.16. This study contributes to the field by proposing a comprehensive, patient-centered model of care that can improve both the quality of life and long-term outcomes for BPH patients.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251341726"},"PeriodicalIF":1.6,"publicationDate":"2025-05-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12062591/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144037914","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Complexities of Navigating the Healthcare System as an Autistic Individual with Ehlers-Danlos Syndrome: A Patient Perspective.","authors":"Sarah Clark","doi":"10.1177/23743735251333601","DOIUrl":"https://doi.org/10.1177/23743735251333601","url":null,"abstract":"<p><p>Autistic individuals with hypermobile Ehlers-Danlos syndrome (hEDS) often face unique challenges navigating healthcare systems due to lack of clinician awareness, diagnostic delays, misdiagnoses, and systemic barriers. Drawing on my own lived experience within the UK's National Health Service (NHS), this patient perspective article integrates personal narratives with the research and literature, highlighting critical gaps in clinical care, offering practical recommendations to enhance equity and inclusion. <i>Recommendations include:</i> improved clinician education on neurodivergence and overlapping conditions, improving holistic patient-centred communication, and collaborative care models that prioritise patient needs, learning from lived expertise.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251333601"},"PeriodicalIF":1.6,"publicationDate":"2025-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12033544/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144055638","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Addressing Health Communication Gaps: Improving Patient Experiences and Outcomes Through Human-Centered Design.","authors":"Sylvie Leotin","doi":"10.1177/23743735251334015","DOIUrl":"https://doi.org/10.1177/23743735251334015","url":null,"abstract":"<p><p>Communication gaps within healthcare systems significantly compromise patient outcomes. This article explores systemic challenges through the dual lens of personal experience as a cancer survivor and professional insights as a human-centered design leader. Drawing on an IRB-approved study and literature review, it examines how ineffective communication creates barriers to patient understanding and safety, with disproportionate impacts on marginalized populations. The article introduces an innovative application of human-centered design methodology to transform healthcare communication by prioritizing patient needs and experiences. Seven evidence-based strategies provide actionable frameworks for healthcare stakeholders to enhance communication clarity, accessibility, and effectiveness, creating a more equitable, patient-centered healthcare system that serves all populations effectively.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251334015"},"PeriodicalIF":1.6,"publicationDate":"2025-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12033540/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144029540","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Two Is Better Than One: Clinical Assessments.","authors":"Ahlam A Ayyad, Fahamina Ahmed","doi":"10.1177/23743735251315135","DOIUrl":"https://doi.org/10.1177/23743735251315135","url":null,"abstract":"<p><p>Developing patient clinical assessments has evolved historically. It is an important skillset for all health care professionals to address the most appropriate treatment options for patients while collaborating with the interdisciplinary team. Implementing pharmacy and medical student collaborations can help pave the way in assessing patients in hospital and ambulatory care settings. Medical students' proper diagnosis and pharmacy students' medical recommendations can potentially reduce medical errors. Ultimately, interdisciplinary collaboration enhances clinical assessments, promotes evidence-based medicine, optimizes treatment regimens and monitoring, and improves overall health-related outcomes.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251315135"},"PeriodicalIF":1.6,"publicationDate":"2025-04-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12033629/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144020486","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Se Min Oh, Jun Su Park, Bomgyeol Kim, Suk-Yong Jang, Sang Gyu Lee, Tae Hyun Kim
{"title":"General Hospitals with High-Tech Medical Equipment and Patient Experience.","authors":"Se Min Oh, Jun Su Park, Bomgyeol Kim, Suk-Yong Jang, Sang Gyu Lee, Tae Hyun Kim","doi":"10.1177/23743735251330468","DOIUrl":"https://doi.org/10.1177/23743735251330468","url":null,"abstract":"<p><p>This study investigates the relationship between the retention of high-tech medical equipment in medical institutions in South Korea and patient experience evaluation outcomes. Data were sourced from the third Patient Experience Assessment conducted by the Health Insurance Review and Assessment Service (HIRA), a South Korean agency, and HIRA's 2021 data on medical equipment. A total of 320 institutions equipped with CT, MRI, and PET scans or only CT and MRI were analyzed. The dependent variable was the average score across six patient experience dimensions: overall, nurses, doctors, medication and treatment, hospital environment, and guarantee of patient rights. Multiple regression analysis revealed that institutions with CT, MRI, and PET scans scored higher in-patient experience, particularly in the overall dimension (2.15 points), hospital environment (2.22 points), patient rights (1.77 points), and doctors (1.54 points). These findings suggest that high-tech medical equipment positively influences patient satisfaction with care quality. Medical institutions should consider these factors when aiming to enhance patient experience.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251330468"},"PeriodicalIF":1.6,"publicationDate":"2025-04-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12033505/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144052968","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}