Journal of Patient Experience最新文献_第10页

Birthing Parent Experiences of Postpartum at-Home Blood Pressure Monitoring Versus Office-Based Follow up After Diagnosis of Hypertensive Disorders of Pregnancy. 分娩父母在确诊妊娠高血压疾病后接受产后居家血压监测与办公室随访的体验。

IF 1.6

Journal of Patient Experience Pub Date : 2024-08-08 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241272217

Kristin P Tully, Sonum Tharwani, Kartik K Venkatesh, Laarni Lapat, Narges Farahi, Angelica Glover, Alison M Stuebe

{"title":"Birthing Parent Experiences of Postpartum at-Home Blood Pressure Monitoring Versus Office-Based Follow up After Diagnosis of Hypertensive Disorders of Pregnancy.","authors":"Kristin P Tully, Sonum Tharwani, Kartik K Venkatesh, Laarni Lapat, Narges Farahi, Angelica Glover, Alison M Stuebe","doi":"10.1177/23743735241272217","DOIUrl":"10.1177/23743735241272217","url":null,"abstract":"Hypertensive disorders of pregnancy are a leading cause of pregnancy-related morbidity and mortality. The primary objective of this study was to compare the frequency of documentation of postpartum blood pressure through remote blood pressure monitoring with text-message delivered reminders versus office-based follow-up 7-10 days postpartum. The secondary objective was to examine barriers and facilitators of both care strategies from the perspectives of individuals who experienced a hypertensive disorder of pregnancy. We conducted a randomized controlled trial at a tertiary care academic medical center in the southeastern US with 100 postpartum individuals (50 per arm) from 2018 to 2019. Among 100 trial participants, blood pressure follow-up within 7-10 days postpartum was higher albeit not statistically significant between postpartum individuals randomized to the remote assessment intervention versus office-based standard care (absolute risk difference 18.0%, 95% CI -0.1 to 36.1%, p = 0.06). Patient-reported facilitators for remote blood pressure monitoring were maternal convenience, clarity of instructions, and reassurance from the health assessments. These positive aspects occurred alongside barriers, which included constraints due to newborn needs and the realities of daily postpartum life.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241272217"},"PeriodicalIF":1.6,"publicationDate":"2024-08-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11311182/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141917664","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Quality of Care and Management of Atopic Dermatitis Across Different Levels of Healthcare-A Survey-Based Patient Experience. 不同级别医疗机构对特应性皮炎的护理和管理质量--基于调查的患者体验。

IF 1.6

Journal of Patient Experience Pub Date : 2024-08-07 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241272206

Thrasyvoulos Tzellos, Synne Ildahl Svendsen, Mari Øvergaard, Eldrid Oftestad, Mari Lahelma, Anna-Kaisa Asikainen, Randeep Mandla

{"title":"Quality of Care and Management of Atopic Dermatitis Across Different Levels of Healthcare-A Survey-Based Patient Experience.","authors":"Thrasyvoulos Tzellos, Synne Ildahl Svendsen, Mari Øvergaard, Eldrid Oftestad, Mari Lahelma, Anna-Kaisa Asikainen, Randeep Mandla","doi":"10.1177/23743735241272206","DOIUrl":"10.1177/23743735241272206","url":null,"abstract":"Atopic dermatitis (AD) is a chronic and fluctuating disease. Optimal management of AD and related comorbidities requires seamless coordination across multiple layers of the healthcare system. The objective of this survey was to explore patients' experiences with current management of AD. Out of 251 responders to this anonymous survey, 76% reported to have moderate or severe AD. Sixty-nine percent with moderate and 45% with severe AD were followed up at primary care level only. Use of advanced systemic treatment options was rare, and the majority experienced itch (97%), dry skin, rash, negative impact on self-esteem and comorbidities despite ongoing treatment. Only 36% received a treatment plan, more often in secondary (78.3%) than primary care (25.0%). Forty-three percent did not know who was responsible for their follow-up and 54% felt no one was responsible. Treatment options were commonly not known or understood. The survey results demonstrate undertreatment, lack of a holistic approach for management of AD. A national pathway including clear referral criteria and timelines can streamline management of AD across multiple levels of the healthcare system.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241272206"},"PeriodicalIF":1.6,"publicationDate":"2024-08-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11307345/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141907928","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Smartphone Use by Caregivers for Patients With Heart Failure During Hospitalization: An Investigation. 心力衰竭患者住院期间护理人员使用智能手机的情况：一项调查

IF 1.6

Journal of Patient Experience Pub Date : 2024-08-07 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241273658

XianNan Huang, Liuxue Lu, Xingshou Pan, Teng Fang Lai, Da Huang, ZhengJiang Liu

{"title":"Smartphone Use by Caregivers for Patients With Heart Failure During Hospitalization: An Investigation.","authors":"XianNan Huang, Liuxue Lu, Xingshou Pan, Teng Fang Lai, Da Huang, ZhengJiang Liu","doi":"10.1177/23743735241273658","DOIUrl":"10.1177/23743735241273658","url":null,"abstract":"This study investigated the use of smartphones by family caregivers for hospitalized patients with chronic heart failure (CHF). In total, 120 patients and their unpaid family caregivers participated in this study. The caregivers were divided into two groups based on the perceived importance of smartphones in patient care. Both groups completed the General Demographic Information Survey, Problematic Mobile Phone Use Questionnaire, Barthel Index Scale, Modified Early Warning Score (MEWS), Johns Hopkins Fall Risk Assessment Tool (JH-FRAT), and Family Burden Scale of Diseases Survey. Moreover, left ventricular ejection fraction (LVEF) and stroke volume (SV) were measured in all participants. The age of hospitalized patients with CHF was correlated with the Barthel Index Scale, MEWS, and JH-FRAT, whereas LVEF and SV were correlated with MEWS. The important group had a much higher financial burden than the nonimportant group. Linear regression analysis revealed that financial burden and mental health had a remarkable impact on the content of mobile calls about treatment. Furthermore, the economic status of family caregivers determined the importance of smartphone calls in the care of patients with CHF during hospitalization.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241273658"},"PeriodicalIF":1.6,"publicationDate":"2024-08-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11307366/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141907929","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Risk Management During the Transition From Hospital to Home: A Multiple Case Study Documenting the Experience of Patients Living With a Major Neurocognitive Disorder, Their Caregivers, and Healthcare Professionals. 从医院向家庭过渡期间的风险管理：记录重大神经认知障碍患者、其护理人员和医护人员经历的多重案例研究。

IF 1.6

Journal of Patient Experience Pub Date : 2024-08-05 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241259553

Véronique Provencher, Chantal Viscogliosi, Julie Lacerte, Monia D'Amours, Didier Mailhot-Bisson, Lise Gagnon, Guy Lacombe

{"title":"Risk Management During the Transition From Hospital to Home: A Multiple Case Study Documenting the Experience of Patients Living With a Major Neurocognitive Disorder, Their Caregivers, and Healthcare Professionals.","authors":"Véronique Provencher, Chantal Viscogliosi, Julie Lacerte, Monia D'Amours, Didier Mailhot-Bisson, Lise Gagnon, Guy Lacombe","doi":"10.1177/23743735241259553","DOIUrl":"10.1177/23743735241259553","url":null,"abstract":"Understanding the risks in the months following hospital discharge is crucial for healthcare professionals to ensure the need for assistance is met. However, this may be challenging in the case of patients living with a major neurocognitive disorder (PLMNCD). Thus, it is important to incorporate patients' and caregivers' experiences of the transition from hospital to home in the risk assessment. This multiple case study comprised 7 PLMNCD, their caregivers, and occupational therapists. Fifty-four interviews, conducted just before, as well as 3 weeks and 3 to 6 months after hospital discharge, were qualitatively analyzed. Results revealed that risk management during the hospital-to-home transition is a dynamic process aimed at establishing a satisfactory routine while avoiding adverse events. This risk management process, which identifies challenges over time and between stakeholders, involves (a) determining the seriousness and acceptability of risks, (b) reflecting on ways to manage risks, and (c) taking steps to manage risks. This knowledge will help to provide more appropriate care and services that strike a balance between safety and autonomy.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241259553"},"PeriodicalIF":1.6,"publicationDate":"2024-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11301727/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141898615","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Assessing Stroke Awareness and Behavioural Response Following the National 'Act Fast' Stroke Awareness Campaign - Insights from a Cross-Sectional Survey in Qatar. 评估全国 "快速行动 "脑卒中认知运动后的脑卒中认知和行为反应--来自卡塔尔横断面调查的启示。

IF 1.6

Journal of Patient Experience Pub Date : 2024-08-05 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241242717

Zain A Bhutta, Sameer A Pathan, Tuukka Puolakka, Naveed Akhtar, Stephen H Thomas, Tim Harris, Ashfaq Shuaib, Peter A Cameron, Maaret Castren

{"title":"Assessing Stroke Awareness and Behavioural Response Following the National 'Act Fast' Stroke Awareness Campaign - Insights from a Cross-Sectional Survey in Qatar.","authors":"Zain A Bhutta, Sameer A Pathan, Tuukka Puolakka, Naveed Akhtar, Stephen H Thomas, Tim Harris, Ashfaq Shuaib, Peter A Cameron, Maaret Castren","doi":"10.1177/23743735241242717","DOIUrl":"10.1177/23743735241242717","url":null,"abstract":"Evaluating stroke campaigns and associated behavioural changes is crucial to assess intervention effectiveness and inform future strategies. We aimed to evaluate patient's and bystanders' foreknowledge of stroke signs and symptoms and their response at stroke onset. We interviewed stroke patients using a validated questionnaire or their bystanders if the stroke patient had disabling stroke. The questionnaire was administered to 165 participants, 142 (86.1%) stroke patients and 23 (13.9%) bystanders. The mean age was 52.6 (SD = 11.7), and male-female ratio was 7:1. Among the participants, 33 (20.1%) had foreknowledge of stroke signs, and of these, 27 (16.5%) were aware of the stroke campaign in Qatar. The behavioural responses at stroke onset included; activating Emergency Medical Services (EMS) (n = 55, 33.3%), calling friends/relatives (n = 69, 41.8%), driving to hospital (n = 33, 20%), waiting for improvement in condition (n = 21, 12.7%). There was no association of ethnicity, marital status, or campaign awareness with EMS activation. Despite limited community awareness of stroke signs and campaign, help-seeking behaviour through EMS activation was generally high, underscoring the need for focused educational efforts and public health interventions.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241242717"},"PeriodicalIF":1.6,"publicationDate":"2024-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11301737/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141898614","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Effectiveness of Rational Emotive Behavior Therapy on Death Anxiety and Depression During the COVID-19 Disease: A Historical Approach. 理性情绪行为疗法对 COVID-19 疾病期间死亡焦虑和抑郁的疗效：历史方法。

IF 1.6

Journal of Patient Experience Pub Date : 2024-07-25 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241259554

Eric C Ndukwu, Peter U Iwunna, Edith N Ndukwu, Daniel Orifamah

引用次数: 0

Perspectives and Satisfaction of Consumers with Hypertension and Diabetes on Services Provided by Community Pharmacy. 高血压和糖尿病患者对社区药房服务的看法和满意度。

IF 1.6

Journal of Patient Experience Pub Date : 2024-07-25 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241261237

Ivan Eduku Mozu, Afia Frimpomaa Asare Marfo, Mercy Opare-Addo, Nana Ofori Adomako, Pauline Boachie-Ansah, Joseph Attakorah, John Abeeku Graham-Bannerman

{"title":"Perspectives and Satisfaction of Consumers with Hypertension and Diabetes on Services Provided by Community Pharmacy.","authors":"Ivan Eduku Mozu, Afia Frimpomaa Asare Marfo, Mercy Opare-Addo, Nana Ofori Adomako, Pauline Boachie-Ansah, Joseph Attakorah, John Abeeku Graham-Bannerman","doi":"10.1177/23743735241261237","DOIUrl":"10.1177/23743735241261237","url":null,"abstract":"Non-communicable diseases are increasing, but detection and control are inadequate. Active involvement of community pharmacies in their management can improve the situation. This is an exploratory study to unearth the perceptions and expectations of customers of services offered by community pharmacies. A cross-sectional study was conducted in two regions of Ghana. A total of 535 clients participated. Counseling was the most patronized (71.0%) service with medication review (38.5%) being the least. The most readily available service was sale of prescription medications (63.7%). Proximity (72.1%) was the most influential factor for selecting a pharmacy to visit. Clients perceived the dispensing of medications (64.3%) as the principal role of the pharmacists. The presence of a pharmacist and good and quick customer service were of statistical significance to customer satisfaction. Customers visited facilities mostly for blood pressure monitoring and to refill their medications, and counseling was the most patronized service. These call for planning multifaceted approaches to improve the care of patients with chronic disease.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241261237"},"PeriodicalIF":1.6,"publicationDate":"2024-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11282543/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141789430","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Corrigendum to "Please keep on beating"-Participation in a Creative Workshop Offers Unexpected Benefits to Women With Takotsubo Cardiomyopathy. 请继续跳动"--参加创意工作坊为患有塔克次氏心肌病的女性带来意想不到的益处》的更正。

IF 1.6

Journal of Patient Experience Pub Date : 2024-07-23 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241263462

引用次数: 0

A Community-Guided Approach to Bronchiolitis: A Needs Assessment and Illness Perception Study. 支气管炎的社区指导方法：需求评估和疾病认知研究。

IF 1.6

Journal of Patient Experience Pub Date : 2024-07-23 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241257384

Andrea Rivera-Sepulveda, Monica Hakim, Lauren Aronson, Todd F Glass, Kathryn Blake, Kenneth Alexander, Eric W Schrimshaw

{"title":"A Community-Guided Approach to Bronchiolitis: A Needs Assessment and Illness Perception Study.","authors":"Andrea Rivera-Sepulveda, Monica Hakim, Lauren Aronson, Todd F Glass, Kathryn Blake, Kenneth Alexander, Eric W Schrimshaw","doi":"10.1177/23743735241257384","DOIUrl":"https://doi.org/10.1177/23743735241257384","url":null,"abstract":"The factors influencing caregivers' understanding of pediatric respiratory diseases, such as bronchiolitis, can guide patient care and the acceptability of treatment methods within the healthcare system. This study aims to identify illness perceptions and perform a needs assessment among caregivers of children diagnosed with respiratory diseases. This is a prospective, cross-sectional, questionnaire-driven study of a representative sample of caregivers whose children had an acute respiratory illness. The telephone-administered questionnaire was comprised of (1) demographic items; (2) illness perception questionnaire-revised (IPQ-R); and (3) items about personal barriers, the latter 2 of which employed a 5-point Likert response. Cronbach's alpha (α) was used to measure the internal consistency reliability for each item within the IPQ-R. The Pearson 2-tailed correlation coefficient was used to correlate questionnaire items. We included 75 caregivers whose children have been diagnosed with bronchiolitis (51%), reactive airway disease (RAD) (35%), asthma (33%), and wheezing (44%). We found no significance between the child's diagnosis and the site of recruitment. The most important components of the illness perception were illness coherence (α=0.849), psychological attributions (α=0.903), and barriers to diagnosis (α=0.633). Understanding caregivers' perceptions of respiratory diseases will lead to better treatment acceptance. We must clarify the terms used to define bronchiolitis from viral-induced wheezing, RAD, and the first asthma episode in older infants. Identifying caregivers' gaps in knowledge will help establish a cohesive approach to personalized treatment of respiratory diseases in children and their diagnosis.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241257384"},"PeriodicalIF":1.6,"publicationDate":"2024-07-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11268019/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141761508","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Systematizing Complaints About Healthcare and Services at University Hospitals: Content Analysis of Patient/Family Letters. 大学医院医疗保健和服务投诉系统化：患者/家属信件内容分析。

IF 1.5

Journal of Patient Experience Pub Date : 2024-06-14 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241261232

Kenji Takao, Shingo Ueki, Mai Kabayama

{"title":"Systematizing Complaints About Healthcare and Services at University Hospitals: Content Analysis of Patient/Family Letters.","authors":"Kenji Takao, Shingo Ueki, Mai Kabayama","doi":"10.1177/23743735241261232","DOIUrl":"10.1177/23743735241261232","url":null,"abstract":"Patient/family complaints are a valuable source of information for providing patient-oriented healthcare. This study aimed to identify and systematize patient/family complaints about healthcare services, focusing on complaints caused by \"things.\" A qualitative descriptive study was designed. Open data of patient and family voices published on the website of university hospital were collected from 27 hospitals for the period June 2020 to August 2020. From the collected data, we excluded praise and compliments, and complaints regarding \"people.\" The results revealed 1,476 complaints, with 1,755 codes. Patient/family complaints were categorized into five domains (access to hospital or line of flow in the hospital, outpatient, inpatient, facilities/equipment, publicity/documents), 46 categories, and 150 sub-categories. A total of 545 codes were excluded to avoid duplication: [1] 253 related to hardware, [2] 222 related to operations, and [3] 70 related to maintenance. This study may provide useful data to inform future studies using patient/family complaints to improve healthcare services for hospitals aiming to provide patient-centered care.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241261232"},"PeriodicalIF":1.5,"publicationDate":"2024-06-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11179509/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141332927","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0