Journal of Patient Experience最新文献_第10页

A Formative Evaluation of Diabetes Self-Management Education and Support Within the Virtual Medical Center. 虚拟医疗中心内糖尿病自我管理教育和支持的形成性评估。

IF 1.5

Journal of Patient Experience Pub Date : 2024-05-29 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241256463

Tai-Lyn Wilkerson, Kathy J Meyers, Soumya Subramaniam, Rene Hearns, Lauren D Stevenson, Sherry Ball

{"title":"A Formative Evaluation of Diabetes Self-Management Education and Support Within the Virtual Medical Center.","authors":"Tai-Lyn Wilkerson, Kathy J Meyers, Soumya Subramaniam, Rene Hearns, Lauren D Stevenson, Sherry Ball","doi":"10.1177/23743735241256463","DOIUrl":"10.1177/23743735241256463","url":null,"abstract":"The Diabetes Self-Management Education and Support (DSMES) program provides education and medical monitoring of diabetes to Veterans through the Virtual Medical Center (VMC). Qualitative interviews were conducted with 15 key stakeholders (4-DSMES VMC trainers, 5-clinical faculty, and 6-Veterans) from across Ohio urban and rural populations for up to 1h about their experiences using the program and suggestions for improvement. All the Veterans interviewed were able to access care within the DSMES VMC and reported a positive experience using the program, and improved diabetes self-management. Other stakeholders suggested more administrative and technical support for the DSMES VMC to increase awareness for VA staff and Veterans of the program to improve recruitment, and to shift to a web-based platform that is more easily accessible by clicking a link to reduce technical issues with downloading the program. These findings can inform future implementation efforts using technology to increase access to care allowing better health education for Veterans.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241256463"},"PeriodicalIF":1.5,"publicationDate":"2024-05-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11138191/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141181026","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Chaplain in the Pediatric ER: A Nurse and Mom's Perspective. 儿科急诊室的牧师：护士和妈妈的视角。

IF 1.5

Journal of Patient Experience Pub Date : 2024-05-29 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241259586

Vicki Black

引用次数: 0

Perspectives of Healthcare Professionals on Clinician-Patient Communication of Cardiovascular Disease Risk. 医护人员对临床医生与患者就心血管疾病风险进行沟通的看法。

IF 1.5

Journal of Patient Experience Pub Date : 2024-05-27 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241257386

Mark Campbell, John William McEvoy, Gavin Calpin, Fiona Concannon, Sam Redfern

{"title":"Perspectives of Healthcare Professionals on Clinician-Patient Communication of Cardiovascular Disease Risk.","authors":"Mark Campbell, John William McEvoy, Gavin Calpin, Fiona Concannon, Sam Redfern","doi":"10.1177/23743735241257386","DOIUrl":"10.1177/23743735241257386","url":null,"abstract":"When the consultation is predominantly verbal, existing research in clinician-patient communication indicates that many patients struggle to understand and recall medical consultations or may not understand the extent of their illness or the purpose of their treatment plan. When the clinician-patient discussion centers around the risk of a repeated cardiovascular disease (CVD) related event, qualitatively assessing what factors affect the communication of this risk may guide the creation of effective communication solutions. Semi-structured interviews were conducted with 17 clinicians treating patients at stages along the cardiac rehabilitation patients' journey. Thematic analysis identified factors that prevent patients from understanding the risk they face of experiencing a repeated cardiac event. Results indicate a clearer understanding of the cardiac rehabilitation patient journey by means of a patient journey map; an overview of how CVD risk is currently communicated; and the factors that affect communication of these risks in the form of themes and sub-themes. Findings shape the proposal of an evidence informed model of opportunities for enhanced digital media supported communication in cardiac rehabilitation.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241257386"},"PeriodicalIF":1.5,"publicationDate":"2024-05-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11131389/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141162400","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Can Unmet Needs Be Addressed by Adjunctive Therapies? Findings from a Patient Perspectives Survey in Adults with Type 1 Diabetes. 辅助疗法能否满足未满足的需求？1型糖尿病成人患者观点调查的结果。

IF 1.5

Journal of Patient Experience Pub Date : 2024-05-25 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241257811

Bella D Lamaro, Jerry R Greenfield, Jennifer R Snaith

{"title":"Can Unmet Needs Be Addressed by Adjunctive Therapies? Findings from a Patient Perspectives Survey in Adults with Type 1 Diabetes.","authors":"Bella D Lamaro, Jerry R Greenfield, Jennifer R Snaith","doi":"10.1177/23743735241257811","DOIUrl":"10.1177/23743735241257811","url":null,"abstract":"Many individuals with type 1 diabetes (T1D) do not achieve their management goals. The patient perspective on unmet needs in T1D may guide the role of adjunctive therapies, including glucagon like peptide-1 receptor agonists (GLP-1RAs). A quantitative online survey (n = 133) assessed (1) self-reported demographic and management data, (2) management priorities, satisfaction, and willingness to use adjunctive therapies and (3) conducted a risk-benefit analysis using three masked drug profiles (1.8 mg vs 0.6 mg liraglutide vs placebo). A subgroup of respondents (n = 20) participated in semi-structured interviews to extend upon survey insights. Needs were unmet by current treatment in 28% of surveyed individuals. The greatest unmet needs included (1) glycemia, (2) management-related fatigue, and (3) weight management. Most respondents (94%) indicated that they would use adjunctive therapies. The preferred administration route was daily tablets (66%) followed by weekly injections (32%). Metabolic improvements were most valued (reduction in hypoglycemia, hyperglycemia). Most respondents (94%) preferred the liraglutide risk-benefit profile (1.8 mg, then 0.6 mg) over placebo. Individuals with T1D self-report many unmet needs. While not currently approved in T1D, GLP-1RA properties align with many management priorities reported by individuals with T1D.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241257811"},"PeriodicalIF":1.5,"publicationDate":"2024-05-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11128168/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141155345","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Social Determinants of Health Impacting the Experience of Young Adults With Cancer at a Single Community Urban Hospital: A Retrospective Cohort Study. 影响年轻成人癌症患者在一家城市社区医院就医体验的健康社会决定因素：回顾性队列研究

IF 1.5

Journal of Patient Experience Pub Date : 2024-05-16 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241255450

John M Cunningham, Kelly Ferraro, Joshua Durfee, Kimberly A Indovina

{"title":"Social Determinants of Health Impacting the Experience of Young Adults With Cancer at a Single Community Urban Hospital: A Retrospective Cohort Study.","authors":"John M Cunningham, Kelly Ferraro, Joshua Durfee, Kimberly A Indovina","doi":"10.1177/23743735241255450","DOIUrl":"10.1177/23743735241255450","url":null,"abstract":"Adolescent and young adult (AYA) cancer patients receive palliative medicine consultation at a late stage and face diagnostic delays. Failure to address social determinants of health (SDOH) and AYA-specific needs can adversely impact patient experience. This retrospective observational cohort study used data from chart review to assess the frequency of SDOH impacting AYA patients and setting of initial diagnosis at a US urban safety-net hospital. The association of SDOH variables with delays in treatment, loss of follow-up, and no-shows was tested using Chi-square and t-tests. One hundred seventy five patient charts were reviewed. Sixty-two percent were diagnosed in acute care settings. Substance use disorders, financial, employment, and insurance issues were associated with delayed treatment, with weak to moderate effect sizes. Mental health diagnoses, substance use disorder, homelessness, and financial burdens were associated with patient no-shows, with moderate to large effect sizes. Twenty-five percent of patients received palliative medicine consultation; 70% of these occurred at end of life. This study demonstrates the impact of SDOH on AYA cancer care and the need for policy allowing for intervention on SDOH.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241255450"},"PeriodicalIF":1.5,"publicationDate":"2024-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11100384/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141064342","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Untapped Power of "We Don't Know": Epistemological Humility in the Era of COVID-19. 我们不知道 "的力量尚未开发：COVID-19 时代认识论上的谦逊。

IF 1.5

Journal of Patient Experience Pub Date : 2024-05-16 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241252475

Jolaade Kalinowski, Elizabeth A Hintz, Chigozirim Izeogu

{"title":"The Untapped Power of \"We Don't Know\": Epistemological Humility in the Era of COVID-19.","authors":"Jolaade Kalinowski, Elizabeth A Hintz, Chigozirim Izeogu","doi":"10.1177/23743735241252475","DOIUrl":"10.1177/23743735241252475","url":null,"abstract":"The SARS-CoV-2 (COVID-19) pandemic introduced many challenges and nuances that have transformed medical practice and research. The uncertainty caused by COVID-19 led to inevitable challenges to patient-provider relationships. The ever-changing landscape of COVID-19 research and policy proved to be challenging for the medical community and patients. These challenges also exacerbated long-standing issues regarding patient-provider communication and trust. On the other hand, these challenges gave voice to a burgeoning patient advocacy community. Through social media, advocacy and patient organizing, patients harnessed their power and organized over challenges relating to COVID-19 fears and concerns, ramifications of \"Long COVID,\" and much more. During this unprecedented pandemic, there was a realization that the science and research surrounding COVID-19 is evolving and that there may be a benefit to embracing the dynamic nature of research and the scientific process. We propose that providers and the medical community should consider epistemological humility, which acknowledges insufficiencies related to the state of medical knowledge with a sense of understanding and respect for not having all of the answers. We argue that there is untapped potential in saying, \"We don't know\" and explaining why. There is an implicit culture that providers should be responsible for knowing everything and solving every problem. Epistemological humility challenges this culture, and inherently gives credence and voice to patient perspectives. We assert that epistemological humility is necessity when addressing contemporary health challenges such as COVID-19.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241252475"},"PeriodicalIF":1.5,"publicationDate":"2024-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11102663/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141066697","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Assessment of Heart Failure Post-discharge Management Strategies, Needs and Acceptance of Mobile Application-based Remote Patient Management in South India. 评估南印度心力衰竭出院后管理策略、需求以及对基于移动应用的远程患者管理的接受程度。

IF 1.5

Journal of Patient Experience Pub Date : 2024-05-15 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241253557

H T Lalthanthuami, Lakshmi Ramamoorthy, Santhosh Satheesh, D K S Subrahmanyam, G Zayaraz

{"title":"Assessment of Heart Failure Post-discharge Management Strategies, Needs and Acceptance of Mobile Application-based Remote Patient Management in South India.","authors":"H T Lalthanthuami, Lakshmi Ramamoorthy, Santhosh Satheesh, D K S Subrahmanyam, G Zayaraz","doi":"10.1177/23743735241253557","DOIUrl":"https://doi.org/10.1177/23743735241253557","url":null,"abstract":"The demand for digital platforms in managing heart failure (HF) is expected to increase with promising effects on readmission and health expenditure. The study aims to explore current post-discharge management strategies and identify the need and acceptance of digital platforms, to ensure the development of a user-friendly mobile application for HF patients. Using a cross-sectional analytical research design, 90 consecutive patients diagnosed with HF who were discharged from a Tertiary Care Center were enrolled. Tele-interview was conducted using a self-developed and validated tool. The mean age of participants was 55.54 ± 10.33 years. The participants' adherence to HF management strategies was low in terms of physical exercise and weight monitoring. More than one-third were willing to self-record their measurements and use a mobile application. The common mobile application features requested were medication information/reminder (88.6%), health education (84.3%), chat with nurses (84.3%), physical activity (81.4%), symptoms (78.6%), diet (78.6%) and weight management (72.9%). The findings from this initial phase of mobile development are expected to help leverage better development of digital interventions for HF patients.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241253557"},"PeriodicalIF":1.5,"publicationDate":"2024-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11097740/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140959238","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Understanding Patients' Negative Experiences with Telehealth: A Content Analysis of Survey Data. 了解患者对远程医疗的负面体验：调查数据的内容分析。

IF 1.5

Journal of Patient Experience Pub Date : 2024-05-02 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241240881

Maya Hamaker, Nicholas Hyman, Komal Lodaria, Hannah B Jackson, Taylor B Sewell, Kevin Chen

{"title":"Understanding Patients' Negative Experiences with Telehealth: A Content Analysis of Survey Data.","authors":"Maya Hamaker, Nicholas Hyman, Komal Lodaria, Hannah B Jackson, Taylor B Sewell, Kevin Chen","doi":"10.1177/23743735241240881","DOIUrl":"https://doi.org/10.1177/23743735241240881","url":null,"abstract":"Understanding differences in how demographic groups experience telehealth may be relevant in addressing potential disparities in telehealth usage. We seek to identify and examine themes most pertinent to patients' negative telehealth experiences by age and race in order to inform interventions to improve patients' future telehealth experiences. We performed a content analysis of Press Ganey patient experience surveys from adult patients at 17 primary care sites of a large, public healthcare system with visits from April 30, 2020 to August 27, 2021. We used sentiment analysis to identify negative comments. We coded for content themes and analyzed their frequency, stratifying by age and race. We analyzed 745 negative comments. Most frequent themes differed by demographic categories, but overall, the most commonly applied codes were \"Contacting the Clinic\" (n = 97), \"Connectivity\" (n = 84), and \"Webside Manner\" (n = 79). The top three codes accounted for >40% of the negative codes in each race category and >35% of the negative codes in each age category. While there were common negative experiences among groups, patients of different demographics highlighted different aspects of their telehealth experiences for potential improvement.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241240881"},"PeriodicalIF":1.5,"publicationDate":"2024-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11064744/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140869633","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Patient's Experience of Working with Multiple Allied Health Professional Students - A Qualitative Interview Study. 病人与多名专职医疗专业学生共事的经历--定性访谈研究。

IF 1.5

Journal of Patient Experience Pub Date : 2024-04-28 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241241461

Adele Anderson, Julie Morrow, Anita Knighton, Andrew Lloyd, Jane Noble, Gemma Bradley

{"title":"The Patient's Experience of Working with Multiple Allied Health Professional Students - A Qualitative Interview Study.","authors":"Adele Anderson, Julie Morrow, Anita Knighton, Andrew Lloyd, Jane Noble, Gemma Bradley","doi":"10.1177/23743735241241461","DOIUrl":"https://doi.org/10.1177/23743735241241461","url":null,"abstract":"There are increasing numbers of learners in clinical settings as part of approaches to meet workforce demands. As a result, patients are now working with multiple learners at the same time, yet little is known about how people experience this. The aim of this study was to explore the patient experience of working with multiple allied health professional students. Structured interviews were carried out with 22 patients across hospital wards in one hospital in the North-West of England. Data was analysed using thematic analysis and four themes were identified: consent to work with multiple students; responses to working with multiple students; multiple students and feelings of safety; making connections with multiple students. Findings indicated that patients experienced positive relationships and feelings of safety with groups of students. However, patients were given limited advance or tailored information about working with a group of students which is an important area to address.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241241461"},"PeriodicalIF":1.5,"publicationDate":"2024-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11057343/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140863640","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Experiencing COVID-19 Through the Patient Lens to Promote Empathy: Pilot Testing a Virtual Reality Learning Opportunity. 通过患者视角体验 COVID-19，促进移情：试点测试虚拟现实学习机会。

IF 1.5

Journal of Patient Experience Pub Date : 2024-04-25 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241241462

Heather Thomson, Lisa Di Prospero, Sarah Xiao, Laurie Legere, Tamara Harth, Laura Rashleigh, Maria Parzanese, Lorraine Graves, Kyle Wilcocks, Fahad Alam

{"title":"Experiencing COVID-19 Through the Patient Lens to Promote Empathy: Pilot Testing a Virtual Reality Learning Opportunity.","authors":"Heather Thomson, Lisa Di Prospero, Sarah Xiao, Laurie Legere, Tamara Harth, Laura Rashleigh, Maria Parzanese, Lorraine Graves, Kyle Wilcocks, Fahad Alam","doi":"10.1177/23743735241241462","DOIUrl":"https://doi.org/10.1177/23743735241241462","url":null,"abstract":"Understanding the patient's experience with COVID-19 was essential to providing high-quality, person-centered care during the pandemic. Having empathy or being able to understand and respond to the patient's experience may lead to improved outcomes for both patients and clinicians. There is mixed evidence about how best to teach empathy, particularly related to promoting empathy during COVID-19. Literature suggests that virtual reality may be effective in empathy-related education. In collaboration with four patient partners with lived experience, a 360° VR video was developed reflecting their stories and interactions with the healthcare system. The aim of this study was to pilot test the video with interprofessional healthcare providers (HPs) to explore acceptability and utility, while also seeking input on opportunities for improvement. Eleven HPs reviewed the video and participated in one of three focus groups. Focus group data were analyzed using thematic analysis. Data suggest that video content is acceptable and useful in promoting a better understanding of the patient's experience. Building on these encouraging findings, additional iterations of videos to promote empathy will be developed and tested.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241241462"},"PeriodicalIF":1.5,"publicationDate":"2024-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11044778/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140870168","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0