Journal of Patient Experience最新文献_第9页

Scaling Phone-Based PROM Collection Across Low-Resource Settings: Learnings From MomCare, a Digital Pregnancy Care Bundle. 在低资源环境下扩展基于手机的PROM收集：从数字怀孕护理包MomCare中学习。

IF 1.8

Journal of Patient Experience Pub Date : 2026-02-08 eCollection Date: 2026-01-01 DOI: 10.1177/23743735251415087

Femke Heddema, Elizabeth Opondo, Nkirote Kalaine, Joel Lehmann, Julie Fleischer, Spencer Connell

{"title":"Scaling Phone-Based PROM Collection Across Low-Resource Settings: Learnings From MomCare, a Digital Pregnancy Care Bundle.","authors":"Femke Heddema, Elizabeth Opondo, Nkirote Kalaine, Joel Lehmann, Julie Fleischer, Spencer Connell","doi":"10.1177/23743735251415087","DOIUrl":"10.1177/23743735251415087","url":null,"abstract":"Scalable approaches for collecting patient-reported outcome and experience measures (PROMs/PREMs) are essential to operationalize value-based healthcare (VBHC). This paper presents implementation insights from MomCare, a digital pregnancy care bundle in Kenya and Tanzania that scaled phone-based PROM/PREM collection to over 7000 women. It describes implications of its implementation approach on patient reach, data quality, and cost. It highlights how design choices, such as standardization, contextualization, and automation, contribute to enhancing feasibility and generating value. Transitioning from SMS surveys to computer-assisted telephone interviewing enabled increased patient reach and improved data quality, while costs lowered with scale. These findings indicate that phone-based PROM/PREM collection is scalable in resource-constrained health systems. Lessons from MomCare offer actionable insights for embedding patient voices into quality improvement and VBHC models, providing practical recommendations for strengthening patient-centered care in low- and middle-income countries.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735251415087"},"PeriodicalIF":1.8,"publicationDate":"2026-02-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12883715/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146158421","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Trends in Patient Misperception and Decisional Regret During Treatment for Advanced Cancer: An Exploratory, Single-Center Study of English-Speaking Adults. 晚期癌症治疗过程中患者误解和决策后悔的趋势：一项针对英语成人的探索性单中心研究。

IF 2

Journal of Patient Experience Pub Date : 2026-02-08 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261416349

Morgane Bulpin, Pedro Luiz Lage Bodour Danielian, Neha Garg, Laura Elizabeth Dodge, Eric Miller, David Einstein, Rushad Patell, Mary Kathleen Buss

{"title":"Trends in Patient Misperception and Decisional Regret During Treatment for Advanced Cancer: An Exploratory, Single-Center Study of English-Speaking Adults.","authors":"Morgane Bulpin, Pedro Luiz Lage Bodour Danielian, Neha Garg, Laura Elizabeth Dodge, Eric Miller, David Einstein, Rushad Patell, Mary Kathleen Buss","doi":"10.1177/23743735261416349","DOIUrl":"10.1177/23743735261416349","url":null,"abstract":"Oncologic patients often misunderstand the benefits and toxicities of palliative-intent therapies. This exploratory, single-center study investigated how these perceptions evolve, their impact on end-of-life (EOL) care quality, and regret. English-speaking adults were surveyed longitudinally about treatment expectations. Patient perceptions were compared to their oncologists' assessments. Of 119 patients (mean age 65, 61.8% male), 80 (67%) completed at least 1 follow-up survey. Patients' perceptions of treatment response, symptom palliation, and survival did not become more accurate over time. Perceptions over cure tended to become more accurate, and perceptions of toxicity were consistently accurate. Among deceased participants (n = 47), 55.1% experienced poor quality EOL care, based on a composite measure of EOL quality. Perception accuracy at baseline was not associated with EOL quality outcomes (P = .93). Patients with hospice involvement had less accurate perceptions (P = .03). Twenty-nine patients completed the end-of-treatment survey, none expressed regret. Findings suggest patients' expectations of treatment do not become more accurate over time. EOL outcomes were not associated with more accurate perceptions. Surviving patients did not regret treatment.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261416349"},"PeriodicalIF":2.0,"publicationDate":"2026-02-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13010042/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147515625","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient Experience in a Stroke Prevention Clinic: Guiding Quality Improvement in northeastern Ontario. 安大略东北部中风预防诊所的患者经验：指导质量改进。

IF 1.8

Journal of Patient Experience Pub Date : 2026-02-06 eCollection Date: 2026-01-01 DOI: 10.1177/23743735251408775

Venkadesan Rajendran, Susan Bursey, Chantal Liddard, Lisa Zeman, Ravinder-Jeet Singh

{"title":"Patient Experience in a Stroke Prevention Clinic: Guiding Quality Improvement in northeastern Ontario.","authors":"Venkadesan Rajendran, Susan Bursey, Chantal Liddard, Lisa Zeman, Ravinder-Jeet Singh","doi":"10.1177/23743735251408775","DOIUrl":"10.1177/23743735251408775","url":null,"abstract":"Patient satisfaction is a key determinant of healthcare quality; however, its assessment in stroke prevention clinics (SPCs) remains inadequate. This quality improvement (QI) project aimed to establish a baseline for patient experience at an SPC in Northeastern Ontario. Our QI team developed a satisfaction survey based on the Donabedian Model. Conducted over 30 days in July 2025, 43 of 51 invited patients completed the survey, resulting in an 84% response rate. Qualitative feedback was gathered for the thematic analysis. Patients reported high satisfaction across the Donabedian framework domains, with over 90% understanding their care steps and feeling dignified. Pareto analysis identified discharge education as a key area for improvement. Despite an 88% satisfaction rate, this domain was prioritized to enhance post-discharge patient preparedness, potentially reducing readmission risk. A limitation of this study was the small, single-site, and brief data collection period. This initiative established a baseline for patient experience and highlighted post-discharge education as a critical area of improvement.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735251408775"},"PeriodicalIF":1.8,"publicationDate":"2026-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12881318/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146144160","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Sources of Knowledge, Family and Peer Support, Disclosure, and Posting on Social Media Platforms Among Patients with Systemic Autoimmune Rheumatic Diseases (SARDs): A Survey-Based Cross-Sectional Study. 系统性自身免疫性风湿病（SARDs）患者的知识来源、家庭和同伴支持、披露和在社交媒体平台上发帖：一项基于调查的横断面研究

IF 1.8

Journal of Patient Experience Pub Date : 2026-02-04 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261415662

Hana Alahmari, Kholoud Almaabadi, Waleed Hafiz, Abdulaziz Alqahtani, Mohammed Alqahtani, Meshal Alayidh, Anas Abudasir, Ali Alhayani, Faisal Alqahtani

{"title":"Sources of Knowledge, Family and Peer Support, Disclosure, and Posting on Social Media Platforms Among Patients with Systemic Autoimmune Rheumatic Diseases (SARDs): A Survey-Based Cross-Sectional Study.","authors":"Hana Alahmari, Kholoud Almaabadi, Waleed Hafiz, Abdulaziz Alqahtani, Mohammed Alqahtani, Meshal Alayidh, Anas Abudasir, Ali Alhayani, Faisal Alqahtani","doi":"10.1177/23743735261415662","DOIUrl":"10.1177/23743735261415662","url":null,"abstract":"Systemic autoimmune rheumatic diseases (SARDs), like rheumatoid arthritis and systemic lupus erythematosus, impose significant burdens on patients. This cross-sectional survey explores knowledge sources about SARDs, emotional and practical support from family and peers, and willingness to disclose their condition publicly, particularly through social media, among a Middle Eastern population. A descriptive, cross-sectional study was conducted at the University Hospital (Abha), the University Hospital (Makkah), and Alhabib Private Hospital (Jeddah), involving 301 adults aged 18 to 50 with SARDs. A structured questionnaire assessed sociodemographic data, clinical information, support systems, and disclosure practices. Data were analyzed using SPSS v25.0 (P < .05). In total, 84.7% of participants received disease information from their treating physicians, while 50.2% turned to social media. Over half (55.1%) felt supported by families, and 49.5% noted workplace cooperation. However, 32.2% cited fear of stigma, and 14.6% felt like a burden as barriers to disclosure. Enhancing patient education, expanding support groups, and raising awareness about autoimmune diseases are vital for improving social support and encouraging disclosure without stigma.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261415662"},"PeriodicalIF":1.8,"publicationDate":"2026-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12873079/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146144152","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring the Journey of Patients Rehabilitated with Removable Complete Dentures: A Constructivist Grounded Theory Study. 探索可摘全口义齿患者的康复之旅：一个建构主义的理论基础研究。

IF 1.8

Journal of Patient Experience Pub Date : 2026-02-03 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261415783

Shamiso Chakaipa, Pieter J Van Dam, Sue Pearson, Sarah J Prior

{"title":"Exploring the Journey of Patients Rehabilitated with Removable Complete Dentures: A Constructivist Grounded Theory Study.","authors":"Shamiso Chakaipa, Pieter J Van Dam, Sue Pearson, Sarah J Prior","doi":"10.1177/23743735261415783","DOIUrl":"10.1177/23743735261415783","url":null,"abstract":"Understanding denture patient experiences is vital for improving care outcomes. This research explored the lived experiences of patients undergoing rehabilitation with removable complete dentures, a topic often overlooked in qualitative oral healthcare research. Using a constructivist grounded theory approach, 25 adults treated through the public health service in Tasmania's Southern Dental Clinic between 2017 and 2022 were interviewed to gain insight into their journeys. Semistructured, face-to-face interviews were recorded, transcribed, and analyzed using NVivo 12, following a structured coding and memoing process. The study uncovered a 4-phase progression: journeying to the unknown (confronting unfamiliar experiences), transitioning to knowing (developing understanding), deciding on the known (making informed choices), and living in the known (applying gained knowledge). These phases form the foundation of the substantive theory renormalizing the disrupted, which illustrates how patients continuously move between disruption and efforts to restore normalcy. This theory challenges the traditional view that denture rehabilitation ends with denture placement. It calls for interdisciplinary, person-centered support to address the emotional, psychological, and practical challenges patients face, ultimately improving long-term outcomes for those living with complete dentures.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261415783"},"PeriodicalIF":1.8,"publicationDate":"2026-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12868585/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146126759","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Can the Subjective Aspects of Health be Measured and Visually Displayed Without Harming Patient Experience? A Randomized Control Trial. 健康的主观方面是否可以在不损害患者体验的情况下进行测量和视觉显示？随机对照试验。

IF 1.8

Journal of Patient Experience Pub Date : 2026-01-30 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261415771

Rafael Cordero, Haley Ponce, Niels Brinkman, David Ring, Prakash Jayakumar

引用次数: 0

Remote Monitoring in Adults With Congenital Heart Disease: A Patient Experience Study. 成人先天性心脏病的远程监测：一项患者体验研究

IF 1.8

Journal of Patient Experience Pub Date : 2026-01-30 eCollection Date: 2026-01-01 DOI: 10.1177/23743735251399968

Kuldeepa Veeratterapillay, Isobel Chaudhry, Debbie McParlin, Bill Chaudhry, Louise Coats

{"title":"Remote Monitoring in Adults With Congenital Heart Disease: A Patient Experience Study.","authors":"Kuldeepa Veeratterapillay, Isobel Chaudhry, Debbie McParlin, Bill Chaudhry, Louise Coats","doi":"10.1177/23743735251399968","DOIUrl":"10.1177/23743735251399968","url":null,"abstract":"Surveillance for long-term complications in adults with congenital heart disease (ACHD) presently relies on outpatient visits. Self-monitoring is increasingly being utilised to reduce the burden of care. This study explores the experiences of ACHD patients undertaking self-monitoring using wearable technology. A prospective observational cohort study was undertaken with ACHD patients across the United Kingdom. A CardiacSense watch recording vital signs and user-initiated electrocardiograms (ECGs) was sent to participants via post. Watch activity was monitored, and participants completed a postmonitoring questionnaire. Fifty-three individuals were screened. Thirty-three eligible participants were sent watches, and 24 (75% female, median age 44.5 years) completed the study. Participants wore watches for 12.3 days (range 1.6-29.8). Younger age was associated with shorter duration of watch-wearing (R = 0.413, P = .05), and men tended to record more ECGs than women (P = .009). Factors affecting engagement included comfort, digital literacy, and reported levels of anxiety and depression. ACHD engaged well with self-monitoring. Several factors, such as age, comorbidities, and digital literacy, influenced patient participation. Recommendations, grounded in patient experience, are suggested to ensure optimal adoption of self-monitoring in this population.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735251399968"},"PeriodicalIF":1.8,"publicationDate":"2026-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12861371/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146107534","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Improving Accurate Documentation of Limited English Proficiency Patients at a Tertiary Affiliated Urgent Care Center in New York City. 改善纽约市三级附属紧急护理中心英语水平有限患者的准确记录。

IF 2

Journal of Patient Experience Pub Date : 2026-01-30 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261418003

Jaskiran Dhinsa, Vibhor Mahajan, Ka Ming Ngai

{"title":"Improving Accurate Documentation of Limited English Proficiency Patients at a Tertiary Affiliated Urgent Care Center in New York City.","authors":"Jaskiran Dhinsa, Vibhor Mahajan, Ka Ming Ngai","doi":"10.1177/23743735261418003","DOIUrl":"10.1177/23743735261418003","url":null,"abstract":"Limited English proficiency (LEP) poses a significant barrier to effective communication and patient-centered care. Despite regulatory mandates, documentation of preferred language and interpreter use in electronic health records (EHRs) remains inconsistent, especially in urgent care settings were time and staffing constraints limit workflow interventions. This study evaluates a pragmatic, low-cost quality improvement initiative implemented at a tertiary-affiliated urgent care center (UCC) in New York City, serving a highly multilingual, predominantly non-White population, to improve documentation accuracy for LEP patients. From January to June 2023, triage nurses were trained to apply pink flag stickers on the doors of patients requiring interpreter services and to document language needs in the EPIC EHR system. Weekly error rates, defined as the proportion of patients labeled as \"English-speaking\" with documented interpreter use, were tracked using time-series and segmented regression analysis. Among 6604 encounters, the baseline error rate was 79.3%. One-week postintervention, this rate dropped by 21.1%, though not statistically significant (P = .55). The trend remained variable, underscoring the need for sustained education and engagement. While the intervention was not technology-based, it was designed to overcome practical EHR integration barriers unique to the UCC setting. The approach highlights how modest workflow adjustments drive frontline awareness and prompt action. Despite its limitations-including a single-site design, short duration, and data inconsistencies, this study contributes a replicable model for improving communication equity for LEP patients. Broader implementation may inform system-level strategies that enhance patient experience and documentation quality.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261418003"},"PeriodicalIF":2.0,"publicationDate":"2026-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13519182/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148841268","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Measuring the Impact of Humanistic Care: A Six-Item Scale to Enhance Patient Trust. 衡量人文关怀的影响：六项量表增强患者信任。

IF 1.8

Journal of Patient Experience Pub Date : 2026-01-29 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261420462

Chris Brainard, Amber Maraccini

引用次数: 0

Assessment of Patient Satisfaction Levels and Determinants in Outpatient Clinics of Ministry of Health Tertiary Hospitals in Saudi Arabia: A Survey Analysis. 沙特阿拉伯卫生部三级医院门诊病人满意度评估及其决定因素：调查分析。

IF 1.8

Journal of Patient Experience Pub Date : 2026-01-29 eCollection Date: 2026-01-01 DOI: 10.1177/23743735251406343

Mervat M El Dalatony, Abdulrahman O Almalki, Abdulhakim M Alabdulmunim, Ghaida A Alzayer, Ghofran H Sulaimani, Jumanah A Alhazmi, Mashael M Almutawaa, Noura M Al-Shehri, Mohammed S Aldossary

{"title":"Assessment of Patient Satisfaction Levels and Determinants in Outpatient Clinics of Ministry of Health Tertiary Hospitals in Saudi Arabia: A Survey Analysis.","authors":"Mervat M El Dalatony, Abdulrahman O Almalki, Abdulhakim M Alabdulmunim, Ghaida A Alzayer, Ghofran H Sulaimani, Jumanah A Alhazmi, Mashael M Almutawaa, Noura M Al-Shehri, Mohammed S Aldossary","doi":"10.1177/23743735251406343","DOIUrl":"10.1177/23743735251406343","url":null,"abstract":"Patient satisfaction is key in determining healthcare quality and essential in Saudi Arabia's Vision 2030 healthcare transformation. This study assessed outpatient satisfaction with healthcare services across Saudi Arabia. This is a secondary analysis of a nationwide, cross-sectional, standardized, self-administered Press-Ganey survey from various regions of Saudi Arabia. Patient satisfaction was measured across 10 domains across healthcare services with a 5-point Likert scale, which was then converted to a percentage-based mean score. Statistical analyses were done using SPSS, with results considered statistically significant at P < .05. Differences in patient satisfaction scores were observed. Males reported slightly higher satisfaction than females in 9 out of 10 domains, with mean scores of 78.6% for males and 77.3% for females. Adults over 65 years reported the highest overall satisfaction with a mean score of 81.1%. Regional differences were observed, with the Southern region reporting the highest satisfaction across all domains (82.6%) while the Western region reported the lowest (74.4%). Areas with the lowest satisfaction included waiting times, disabled patients' accessibility, and administrative support, although scores in these domains still reflected generally favorable patient experiences. This study reveals the impact of demographic and regional differences on patients' satisfaction with outpatient services across Saudi Arabia, with lower satisfaction among young adults and females.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735251406343"},"PeriodicalIF":1.8,"publicationDate":"2026-01-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12855723/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146107462","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0