Journal of Patient Experience最新文献_第8页

Health Workers' Perception on Fall Risk Prevention: A Photovoice Method. 医务工作者对预防跌倒风险的看法：摄影舆论法

IF 1.6

Journal of Patient Experience Pub Date : 2024-10-03 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241273674

Arlina Dewi, Winda Azmi Meisari, Muhammad Luthfi Almanfaluthi, Dwi Ambarwati, Rachmawati Dewi, Diny Rachma Putri Handini, Sutrisno Sutrisno, Trisna Setya Dewi

{"title":"Health Workers' Perception on Fall Risk Prevention: A Photovoice Method.","authors":"Arlina Dewi, Winda Azmi Meisari, Muhammad Luthfi Almanfaluthi, Dwi Ambarwati, Rachmawati Dewi, Diny Rachma Putri Handini, Sutrisno Sutrisno, Trisna Setya Dewi","doi":"10.1177/23743735241273674","DOIUrl":"https://doi.org/10.1177/23743735241273674","url":null,"abstract":"Health workers' awareness can affect hospital fall prevention success. Enhancing awareness can be achieved by exploring their perspectives on the phenomenon. This study aims to explore health workers' perceptions regarding fall risk prevention in hospitals. This study employed qualitative methods using photovoice. The participants were 20 health workers. The data collection was done within several steps, such as (1) The photographs of fall prevention were collected at 5 different hospitals within 3 months; (2) 20 photos were selected to be shown in the photo exhibition; (3) Participants were asked to reflect on the meaning of the photographs during photo exhibition, individually through Google Form and interview using SHOWED guidelines. This study identified 4 themes, including (1) the importance of fall risk identification, including environmental and physiological identification and the use of the appropriate assessment instrument based on age range; (2) the role of family and patient education, but does not guarantee that those who are educated have better attention; (3) involvement of nonhealthcare workers, such as security guide's contribution to identify patients; (4) application of fall protection and signs is crucial stuff to be applied in an appropriate way to prevent patients from falls. Health workers encountered both positive and negative aspects related to fall prevention strategies in hospital settings. Health workers' perspectives can be considered by stakeholders to help improve hospital fall prevention regulations.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241273674"},"PeriodicalIF":1.6,"publicationDate":"2024-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11483835/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477222","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Adolescent Perception of Stiffness After Spinal Fusion Surgery. 青少年对脊柱融合手术后僵硬感的看法。

IF 1.6

Journal of Patient Experience Pub Date : 2024-09-30 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241282937

Sarah E Lindsay, Austin Thompson, Jenny Hummel, Matthew F Halsey, Scott Yang

{"title":"Adolescent Perception of Stiffness After Spinal Fusion Surgery.","authors":"Sarah E Lindsay, Austin Thompson, Jenny Hummel, Matthew F Halsey, Scott Yang","doi":"10.1177/23743735241282937","DOIUrl":"10.1177/23743735241282937","url":null,"abstract":"Posterior spinal instrumented fusion (PSIF) is a treatment option for adolescent spinal deformity. PSIF leads to loss of spinal segment motion. It is unclear the extent to which spinal stiffness is perceived by adolescent patients after fusion. Focus groups of adolescents between ages 11 and 21 years who underwent PSIF for spinal deformity were performed. Focus groups were evaluated for common themes, and a 36-question survey was designed. Survey responses were analyzed relative to last instrumented vertebra (LIV) and Scoliosis Research Society-22 (SRS-22) scores. Five focus groups were held with 18 patients in total. Three main themes were identified by participants: 56% identified difficulty bending forward, 44% identified difficulty hunching while sitting, and 56% identified difficulty with twisting motions. Patients with more distal LIV reported significant more difficulty with self-care/grooming (P = .014) and chores (P < .001). SRS-22 function/activity scores correlated well with survey categories in self-care/grooming (r = .61; P = .049) and recreation (r = .69; P = .019). Focus groups suggest that spinal stiffness is frequently perceived and leads to alteration in daily tasks in adolescents after spinal fusion.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241282937"},"PeriodicalIF":1.6,"publicationDate":"2024-09-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11462581/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142394034","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Utilization of Empathy and Self-awareness Models to Deescalate Violence in the Ambulatory Clinic Setting. 在门诊环境中利用移情和自我意识模式缓解暴力。

IF 1.6

Journal of Patient Experience Pub Date : 2024-09-15 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241272261

Kevin Phipps

{"title":"The Utilization of Empathy and Self-awareness Models to Deescalate Violence in the Ambulatory Clinic Setting.","authors":"Kevin Phipps","doi":"10.1177/23743735241272261","DOIUrl":"10.1177/23743735241272261","url":null,"abstract":"Our objective was to understand how empathy and self-awareness content, alongside traditional deescalation training, might impact ambulatory clinic staff responses to patient and family escalation events. Verbal and physical workplace violence is escalating across healthcare organizations, including ambulatory clinics. Deescalation content is often developed with acute care, psychiatric, or emergency care in mind. There is a need for relevant and empathic deescalation training for ambulatory clinic staff to address their specific needs. We developed empathic and self-reflective deescalation training which was interactive and relevant to ambulatory clinic staff. Staff were trained using both in-person and virtual modalities. Participant self-reflection pre- and postintervention questionnaires indicated increases in understanding and application of deescalation methodologies. Multiple ambulatory clinics where staff participated saw a decrease in patient complaints and grievances. Participating ambulatory clinics also saw an improvement in the likelihood to recommend practice. However, participating ambulatory clinics did not see a reduction in reported patient-involved workplace violence events. Ensuring both empathy and self-awareness content in deescalation training, along with relevant ambulatory clinic scenarios, support ambulatory staff to respond effectively and appropriately to escalation events, helps reduce patient complaints, and improves patient satisfaction.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241272261"},"PeriodicalIF":1.6,"publicationDate":"2024-09-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11450709/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142381904","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"Short, Modern, Smart": Humanizing Healthcare Experiences Through Modernized Feedback. "简短、现代、智能"：通过现代化的反馈使医疗保健体验人性化。

IF 1.6

Journal of Patient Experience Pub Date : 2024-09-12 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241272168

Colleen Russell, Amber Maraccini, Tami Salmi

{"title":"\"Short, Modern, Smart\": Humanizing Healthcare Experiences Through Modernized Feedback.","authors":"Colleen Russell, Amber Maraccini, Tami Salmi","doi":"10.1177/23743735241272168","DOIUrl":"https://doi.org/10.1177/23743735241272168","url":null,"abstract":"Humanizing healthcare experiences is imperative for global healthcare organizations, emphasizing connections, empathy, and trust between patients, providers, and the broader community. Patients seek personalized, compassionate care, while employees prioritize supportive workplaces. Modernized feedback programs recognize consumer preferences for convenience and accessibility, leveraging technology like artificial intelligence (AI) for real-time insights. Northwestern Medicine's \"Short, Modern, Smart\" feedback program exemplifies this, focusing on efficiency, contemporary needs, and technology for action. Key considerations include (1) Short: Streamlining surveys for efficiency, (2) Modern: Prioritizing open-ended comments for personalized insights, and (3) Smart: Leveraging AI for proactive understanding. Recommendations for organizations include implementing formal change management, adopting unified metrics for comprehensive experience measurement, and leverage AI to connect feedback back to humans. In conclusion, humanizing healthcare starts with effective feedback collection and actioning. Northwestern Medicine's approach offers insights, emphasizing streamlined processes, personalized engagement, and technological empowerment, which organizations should prioritize for growth and continuous improvement.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241272168"},"PeriodicalIF":1.6,"publicationDate":"2024-09-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11406636/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298070","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient Experience in Neoplastic Disease in Light of the Statements of Doctors Who Are Oncological Patients. 从身为肿瘤患者的医生的陈述看肿瘤患者的经历。

IF 1.6

Journal of Patient Experience Pub Date : 2024-09-09 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241279643

Tomira Chmielewska-Ignatowicz, Urszula Religioni, Mariola Borowska, Jakub Pawlikowski, Artur Białoszewski, Agnieszka Neumann-Podczaska, Piotr Merks

{"title":"Patient Experience in Neoplastic Disease in Light of the Statements of Doctors Who Are Oncological Patients.","authors":"Tomira Chmielewska-Ignatowicz, Urszula Religioni, Mariola Borowska, Jakub Pawlikowski, Artur Białoszewski, Agnieszka Neumann-Podczaska, Piotr Merks","doi":"10.1177/23743735241279643","DOIUrl":"https://doi.org/10.1177/23743735241279643","url":null,"abstract":"This study aimed to explore oncological doctor-patients experiences concerning the neoplastic disease. The study involved 20 Polish doctors with cancer. Respondents answered open questions related to cancer management and opinions about themselves as oncological patients. The results of the study indicate that doctor-patients deny their susceptibility to illness, which leads to prophylaxis ignorance. Many doctors diagnosed themselves with the disease, but they needed a clear verbal confirmation of the diagnosis by another physician. Respondents well assessed professional skills of doctor-colleagues. However, communication competencies of their doctors were assessed critically. Medical narratives may become an incentive to deepen the discourse on the quality of the relationship between a doctor and a doctor-oncological patient. They may also lead to further research on the anthropological, psychological, and sociological understanding of disease.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241279643"},"PeriodicalIF":1.6,"publicationDate":"2024-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11384523/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298071","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

User Satisfaction with Primary Health Care Rehabilitation Services in a South African Metropolitan District. 南非大都会地区用户对初级保健康复服务的满意度。

IF 1.6

Journal of Patient Experience Pub Date : 2024-08-31 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241261222

Lebogang Maseko, Hellen Myezwa, Fasloen Adams

{"title":"User Satisfaction with Primary Health Care Rehabilitation Services in a South African Metropolitan District.","authors":"Lebogang Maseko, Hellen Myezwa, Fasloen Adams","doi":"10.1177/23743735241261222","DOIUrl":"10.1177/23743735241261222","url":null,"abstract":"Rehabilitation services are critical to improve health outcomes, particularly at community level within primary healthcare settings. As groups with an interest in the health system, rehabilitation service users' and caregivers' involvement in various aspects of health system strengthening is important for healthcare planning and evaluation. This study aimed to explore rehabilitation service users' perceptions of the rehabilitation services and their effect on their functioning in the Johannesburg Metropolitan District. A qualitative study was conducted using purposive sampling of participants attending rehabilitation at nine provincially funded clinics. Semi-structured interviews were conducted, and data were analysed using reflexive thematic analysis. The findings revealed the theme of happy with rehabilitation services and five associated categories, namely (1) service provider actions, (2) service organisation, (3) service user actions, (4) service access, and (5) service outcomes. The participants expressed overall satisfaction with their experiences of rehabilitation services, highlighting the importance of effective communication, patient-centred care, strong therapeutic relationships, and active patient engagement to achieve positive outcomes. This study provides the evidence for maintaining and extending rehabilitation at the PHC level in support of the health policy changes proposed for South Africa.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241261222"},"PeriodicalIF":1.6,"publicationDate":"2024-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11366094/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113212","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Journey Through Grief: Experiences of Loss Among Patients With Long COVID. 悲伤之旅：长期 COVID 患者的丧亲之痛》。

IF 1.6

Journal of Patient Experience Pub Date : 2024-08-30 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241272267

Ann Scheck McAlearney, Leanna P Eiterman, Elizabeth Mayers, Jennifer L Eramo, Sarah R MacEwan

{"title":"A Journey Through Grief: Experiences of Loss Among Patients With Long COVID.","authors":"Ann Scheck McAlearney, Leanna P Eiterman, Elizabeth Mayers, Jennifer L Eramo, Sarah R MacEwan","doi":"10.1177/23743735241272267","DOIUrl":"10.1177/23743735241272267","url":null,"abstract":"Long COVID is a growing health concern with data continuing to emerge about the psychosocial consequences of this new chronic condition. We aimed to improve understanding of the experiences of patients with Long COVID, focusing on emotional impacts arising from experiences of loss and grief caused by persistent physical symptoms and changes in lifestyle and social support. Patients (n = 21) were recruited August to September 2022 from a post-COVID recovery clinic to participate in semistructured interviews. We found that Long COVID patients (1) reported experiencing loss across multiple domains including loss of physical health, mental health, social support and connections, roles in their families, and self-identities, and (2) described experiences of grief that mirrored the 5 stages of grief in the Kubler-Ross model: denial, anger, bargaining, depression, and for some, acceptance. Our findings highlight the importance of evaluating the experiences of loss and grief among Long COVID patients as well as support systems for this patient population. Providers may be encouraged to incorporate mental health and bereavement support resources to address critical needs of Long COVID patients.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241272267"},"PeriodicalIF":1.6,"publicationDate":"2024-08-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11366084/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113211","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Cross-Sectional Study of Patient Satisfaction Among Immigrants in the Pediatric Outpatient Clinic of Firoozabadi Hospital. 关于 Firoozabadi 医院儿科门诊中移民患者满意度的横断面研究。

IF 1.6

Journal of Patient Experience Pub Date : 2024-08-28 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241272175

Elahe Moslemi Arimi, Mahnaz Solhi, Shayan Eghdami, Seyedeh Melika Kharghani Moghadam, Mohammad Mohammadi, Mehrab Fathi, Maryam Kachuei

{"title":"A Cross-Sectional Study of Patient Satisfaction Among Immigrants in the Pediatric Outpatient Clinic of Firoozabadi Hospital.","authors":"Elahe Moslemi Arimi, Mahnaz Solhi, Shayan Eghdami, Seyedeh Melika Kharghani Moghadam, Mohammad Mohammadi, Mehrab Fathi, Maryam Kachuei","doi":"10.1177/23743735241272175","DOIUrl":"https://doi.org/10.1177/23743735241272175","url":null,"abstract":"Patient satisfaction is important in healthcare as it affects the quality of care and can lower costs in hospitals. This study aimed to measure immigrant satisfaction with outpatient services at Firoozabadi Hospital's pediatric clinic. Data were collected from immigrant patients from January to July 2023. The Patient Satisfaction Questionnaire 18 and the personal information checklist were used in oral interviews with caregivers. The overall satisfaction score was 72.95 out of 90, with a standard deviation of 12.57. Financial issues received the lowest satisfaction scores, while interpersonal manner received the highest ratings. Out of the 241 respondents, 48.6% were completely satisfied, 32.7% were satisfied, 10.6% had no opinion, and 4.4% expressed dissatisfaction. Satisfaction levels were not correlated with income, education, possession of identification documents or health insurance, and length of stay in Iran. Overall, most participants were happy with the outpatient services, but many lacked health insurance. Providing easier access to health insurance for immigrants could help reduce dissatisfaction with expensive medical bills.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241272175"},"PeriodicalIF":1.6,"publicationDate":"2024-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11359437/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113210","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Application of the PAPERS Grading Criteria Within a Rapid Evidence Review to Determine the Psychometric and Pragmatic Properties of Patient Empowerment Tools. 在快速证据审查中应用 PAPERS 分级标准，以确定患者赋权工具的心理测量和实用特性。

IF 1.6

Journal of Patient Experience Pub Date : 2024-08-21 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241272191

Katherine E Woolley, Nia J Jones, Ayesha Rahim, Kathleen L Withers, Robert Letchford

{"title":"Application of the PAPERS Grading Criteria Within a Rapid Evidence Review to Determine the Psychometric and Pragmatic Properties of Patient Empowerment Tools.","authors":"Katherine E Woolley, Nia J Jones, Ayesha Rahim, Kathleen L Withers, Robert Letchford","doi":"10.1177/23743735241272191","DOIUrl":"10.1177/23743735241272191","url":null,"abstract":"Self-management of long-term conditions requires health professionals to understand and develop capabilities that empower the population they serve. A rapid evidence review was undertaken to assess the current evidence based on the psychometric properties of patient empowerment tools. MEDLINE was searched, and data were extracted for each publication and scored using a modified Psychometric and Pragmatic Evidence Rating Scale (PAPERS) evidence rating scale. The results were grouped into the following domains: (a) health literacy; (b) patient activation; (c) long-term conditions; (d) self-management needs and behaviors. A full-text review of 65 publications led to the inclusion of 29 primary studies. The highest scoring tools were selected with respect to performance for each domain: (a) Newest Vital Sign and the Brief Health Literacy Screen; (b) Consumer Health Activation Index and PAM-13; (c) LTCQ and LTCQ8; and (d) SEMCD and Patient Enablement Instrument. PAPERS was a useful tool in determining the generalizability, validity, and reliability of these patient empowerment tools. However, further research is required to establish whether an individual's health literacy status influences patient empowerment tool outcomes.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241272191"},"PeriodicalIF":1.6,"publicationDate":"2024-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11339745/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142037330","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Experiences of Parents and Caregivers of Children Who Underwent Gastrostomy Tube Insertion. 植入胃造瘘管儿童的家长和护理人员的经历。

IF 1.6

Journal of Patient Experience Pub Date : 2024-08-21 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241272225

Ciara Kinsella, Aisling Dunphy, Siobhan McCormack, Charlotte Wilson, Annemarie E Bennett

{"title":"Experiences of Parents and Caregivers of Children Who Underwent Gastrostomy Tube Insertion.","authors":"Ciara Kinsella, Aisling Dunphy, Siobhan McCormack, Charlotte Wilson, Annemarie E Bennett","doi":"10.1177/23743735241272225","DOIUrl":"10.1177/23743735241272225","url":null,"abstract":"Gastrostomy feeding is a route of enteral nutrition for children with feeding difficulties. This study investigated caregiver experiences of the transition to gastrostomy feeding. A survey was administered to caregivers of children <18 years in a major pediatric center in Ireland. Experiences of decision-making, support, and adjusting to tube feeding were examined. Seventy-six caregivers participated. Median satisfaction with the information provided by the hospital was high. Almost half (48%) spoke to another caregiver of a child with a gastrostomy prior to their own child's gastrostomy insertion and most (88%) felt reassured by this. Concerns following insertion included managing the tube and their child's oral intake and feelings about the tube. The oral intake of 83% of children who had some intake prior to gastrostomy insertion did not change or increased following insertion. Most (89%) would make the same decision to insert the tube. Feelings associated with the transition included relief and stress. Gastrostomy tube insertion presents logistical and psychosocial challenges for caregivers. Peer support from other caregivers may alleviate some of these challenges.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241272225"},"PeriodicalIF":1.6,"publicationDate":"2024-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11339735/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142037331","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0