Journal of Patient Experience最新文献_第8页

Evaluating Patient Experiences with Patient-Centered and Inclusive Care in Academic Obstetrics and Gynecology Outpatient Clinics. 评估学术妇产科门诊中以患者为中心的包容性护理的患者体验。

IF 1.6

Journal of Patient Experience Pub Date : 2024-11-22 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241297620

Julia Bhuiyan, Charisse Loder

{"title":"Evaluating Patient Experiences with Patient-Centered and Inclusive Care in Academic Obstetrics and Gynecology Outpatient Clinics.","authors":"Julia Bhuiyan, Charisse Loder","doi":"10.1177/23743735241297620","DOIUrl":"10.1177/23743735241297620","url":null,"abstract":"Ensuring patient satisfaction is crucial in obstetrics and gynecology (OB/GYN) care. This study aimed to assess patient satisfaction and experiences with respectful and culturally competent care in an institution's OB/GYN clinics following the initiation of diversity, equity, and inclusion programming. A survey was conducted from September 2021 to February 2022 among patients who had completed outpatient OB/GYN visits, focusing on staff and provider cultural competency, treatment discussion, clinic accommodations, and comfort during sensitive exams. Results from 246 participants indicated that most had positive interactions with clinic staff and healthcare providers. However, disparities emerged, with black or African American participants reporting lower satisfaction and a higher incidence of unfair treatment due to race. These findings highlight the need for additional educational endeavors to equip clinical care teams with skills for providing respectful, inclusive, and culturally competent care. Future qualitative research can further explore patient experiences with inclusive practices in OB/GYN care.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241297620"},"PeriodicalIF":1.6,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11583494/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142711421","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"It was not normal, and I had to find a doctor and tell him." Kenyan Women's Response to Cervical Cancer Symptoms. "这不正常，我必须找到医生并告诉他"。肯尼亚妇女对宫颈癌症状的反应。

IF 1.6

Journal of Patient Experience Pub Date : 2024-11-21 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241283200

Rahma Mkuu, Charity Hungu, Francis Makokha, Idethia Harvey, Benda Kithaka, Sharon Mweni, Chemtai Mungo, Daniela Rivero-Mendoza, Jaclyn M Hall, Joystacy Mutegi, Dorothy Ochieng, John Kaindi, Ann K Horsburgh, Carla Fisher, Ramzi G Salloum

{"title":"\"It was not normal, and I had to find a doctor and tell him.\" Kenyan Women's Response to Cervical Cancer Symptoms.","authors":"Rahma Mkuu, Charity Hungu, Francis Makokha, Idethia Harvey, Benda Kithaka, Sharon Mweni, Chemtai Mungo, Daniela Rivero-Mendoza, Jaclyn M Hall, Joystacy Mutegi, Dorothy Ochieng, John Kaindi, Ann K Horsburgh, Carla Fisher, Ramzi G Salloum","doi":"10.1177/23743735241283200","DOIUrl":"10.1177/23743735241283200","url":null,"abstract":"This study aimed to characterize the cervical cancer diagnosis experience of Kenyan women undergoing treatment for cervical cancer. We analyzed qualitative interviews with 29 women living in rural Kenya who were currently undergoing cervical cancer treatment at Machakos Cancer Care and Research Centre at Machakos Level 5 Referral Hospital in eastern Kenya. Semistructured qualitative interviews were conducted in Kiswahili and English and then de-identified and translated to English during transcription. The main themes generated were identified through an inductive approach to determine how women experienced cervical cancer symptoms and their process of navigating healthcare. Three themes emerged from the qualitative interviews: (1) delaying seeking care, (2) misinterpreting or misdiagnoses, and (3) grappling with the costly diagnosis process. Women misattributed early signs of cervical cancer to benign conditions. Women sought care only after experiencing severe symptoms. When they sought care, women reported facing lengthy and costly screening processes before receiving a cervical cancer diagnosis. There is a need to educate women on the early symptoms of cervical cancer and to increase the institutional capacity and availability of cervical cancer screening resources in healthcare facilities.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241283200"},"PeriodicalIF":1.6,"publicationDate":"2024-11-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11580070/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142688763","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Factors Associated With Psychiatry Consultation for Musculoskeletal Trauma Patients. 肌肉骨骼创伤患者接受精神病学咨询的相关因素。

IF 1.6

Journal of Patient Experience Pub Date : 2024-11-14 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241299912

Sean T Campbell, Joost T P Kortlever, Amanda M Franciscus, Divy Ravindranath, David Ring, Julius A Bishop

{"title":"Factors Associated With Psychiatry Consultation for Musculoskeletal Trauma Patients.","authors":"Sean T Campbell, Joost T P Kortlever, Amanda M Franciscus, Divy Ravindranath, David Ring, Julius A Bishop","doi":"10.1177/23743735241299912","DOIUrl":"10.1177/23743735241299912","url":null,"abstract":"In an online, survey-based experiment, musculoskeletal surgeon members of the science of variation group (n = 243) and a group of consult-liaison psychiatrists (n = 18) read 5 hypothetical scenarios of patients recovering from musculoskeletal trauma, each containing 5 randomized patient variables, and indicated their recommendation for psychiatry consultation or not. Factors associated with recommendation for psychiatry consultation included younger age, history of a psychiatric disorder, and pre-injury use of antipsychotic medications, and scenarios involving psychosis, suicidality, hallucinations in the setting of substance withdrawal, and questionable capacity for informed consent, but not with sadness alone. Musculoskeletal surgeons can collaborate with psychiatrists to develop comprehensive care for inpatients with musculoskeletal trauma starting with relatively pressing mental health needs and perhaps expanding into treatment of sadness or worry that can manifest as greater symptom intensity and a delayed recovery trajectory.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241299912"},"PeriodicalIF":1.6,"publicationDate":"2024-11-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11561979/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142628505","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Does an "EZ" Survey Improve the Data Quality of the Consumer Assessment of Healthcare Providers and Systems (CAHPS^®) Clinician and Group Survey 3.1? EZ "调查是否能提高医疗保健提供者及系统消费者评估 (CAHPS®) 临床医师和团体调查 3.1 的数据质量？

IF 1.6

Journal of Patient Experience Pub Date : 2024-11-14 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241297622

Ron D Hays, Julie A Brown, Charleen Mikail, Denise D Quigley

{"title":"Does an \"EZ\" Survey Improve the Data Quality of the Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Clinician and Group Survey 3.1?","authors":"Ron D Hays, Julie A Brown, Charleen Mikail, Denise D Quigley","doi":"10.1177/23743735241297622","DOIUrl":"10.1177/23743735241297622","url":null,"abstract":"Completing self-administered patient experience surveys is challenging for many patients. We randomized adult patients receiving care from an urban safety net provider to complete the Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Clinician and Group Survey 3.1 (CG-CAHPS 3.1), or an \"EZ\" survey created using plain language principles. We compared response rates, item missingness, item-scale correlations, and reliability of patient experience scores based on 264 completed surveys (64% female, 66% Hispanic, 33% high school education or less). The CG-CAHPS 3.1 survey response rate was higher (20% vs 16%), and failure to follow skip instructions was more common for the EZ survey. Internal consistency reliability for multi-item scales was similar, but provider-level reliability was higher for the EZ than for the CG-CAHPS 3.1 survey measures. Cognitive interviews with patients are needed to assess whether the wording of the EZ survey is responsible for the lower response rates and more skip pattern errors. Future studies are also required to provide additional information about the psychometric properties of the CG-CAHPS 3.1 and EZ surveys.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241297622"},"PeriodicalIF":1.6,"publicationDate":"2024-11-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11565615/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142649261","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

An Adaptive Pacing Intervention for Adults Living With Long COVID: A Narrative Study of Patient Experiences of Using the PaceMe app. 针对长期慢性阻塞性肺病成人的自适应起搏干预：PaceMe 应用程序患者使用体验的叙述性研究。

IF 1.6

Journal of Patient Experience Pub Date : 2024-11-10 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241272158

Rachel Meach, David Carless, Nilihan E M Sanal-Hayes, Marie Mclaughlin, Lawrence D Hayes, Jacqueline L Mair, Jane Ormerod, Natalie Hilliard, Joanne Ingram, Nicholas F Sculthorpe

{"title":"An Adaptive Pacing Intervention for Adults Living With Long COVID: A Narrative Study of Patient Experiences of Using the PaceMe app.","authors":"Rachel Meach, David Carless, Nilihan E M Sanal-Hayes, Marie Mclaughlin, Lawrence D Hayes, Jacqueline L Mair, Jane Ormerod, Natalie Hilliard, Joanne Ingram, Nicholas F Sculthorpe","doi":"10.1177/23743735241272158","DOIUrl":"https://doi.org/10.1177/23743735241272158","url":null,"abstract":"Adaptive pacing (AP) is a self-management technique which seeks to balance energy and rest in individuals with chronic health conditions. Adaptive pacing can help people with myalgic encephalomyelitis/chronic fatigue syndrome learn how to manage their energy expenditure thereby reducing their risk of post-exertional malaise (PEM) and other symptoms. Given some symptom similarity, AP also has rehabilitation potential for people experiencing disability from long COVID. The purpose of this study was to explore patient experiences of an AP intervention (the \"PaceMe\" app) to determine its value for individuals experiencing long COVID. Twenty-five participants each took part in two narrative interviews (at intervention start point and at 3-6 months). Data were analyzed using narrative thematic analysis. Our analysis identified 4 themes relating to key benefits of the PaceMe app: (1) PEM management, (2) Support, (3) Validation, and (4) Control and Agency. By illuminating the critical facts and centring patient voices, these findings contribute a better understanding of the experiences and needs of those with long COVID and highlight the value of a digital health intervention as a vital component of rehabilitation.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241272158"},"PeriodicalIF":1.6,"publicationDate":"2024-11-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11552046/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142628088","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient Perspectives of Integrated Behavioral Health in Primary Care: A Mixed Methods Analysis. 患者对初级保健中综合行为健康的看法：混合方法分析。

IF 1.6

Journal of Patient Experience Pub Date : 2024-11-03 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241293877

Dennis Gurfinkel, Vanessa Owen, Carlee Kreisel, Patrick Hosokawa, Samantha Kluger, Courtney Legge, Jacqueline Calderone, Alisha Eskew, Maryann Waugh, Jay H Shore, Shandra M Brown Levey, Jodi Summers Holtrop

{"title":"Patient Perspectives of Integrated Behavioral Health in Primary Care: A Mixed Methods Analysis.","authors":"Dennis Gurfinkel, Vanessa Owen, Carlee Kreisel, Patrick Hosokawa, Samantha Kluger, Courtney Legge, Jacqueline Calderone, Alisha Eskew, Maryann Waugh, Jay H Shore, Shandra M Brown Levey, Jodi Summers Holtrop","doi":"10.1177/23743735241293877","DOIUrl":"10.1177/23743735241293877","url":null,"abstract":"Integrated and collaborative care models, in which mental/behavioral health providers work closely with primary care providers within a primary care setting, help support the quadruple aim of improved health outcomes, patient satisfaction, provider experience, and lower cost. In this paper, we describe patients' general perspectives of integrated care and their unique experiences accessing this care within one health system. Qualitative (interviews with patients) and quantitative (surveys with patients) methods were used to collect and analyze these results separately and together. The results highlight important features to the provision of integrated care from the perspective of patients using integrated care. They include the importance and experience of access, whole-person care and a team-based approach, the availability and use of telehealth when appropriate, having high quality mental health providers, scheduling and service usage suggestions, and means to connect with longer-term services for ongoing mental health care when needed.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241293877"},"PeriodicalIF":1.6,"publicationDate":"2024-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11533315/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142576994","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Behind the Scenes of Isotretinoin: My Journey and Recommendations. 异维A酸的幕后故事：我的旅程和建议。

IF 1.6

Journal of Patient Experience Pub Date : 2024-11-03 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241297488

Nupur Singh

{"title":"Behind the Scenes of Isotretinoin: My Journey and Recommendations.","authors":"Nupur Singh","doi":"10.1177/23743735241297488","DOIUrl":"10.1177/23743735241297488","url":null,"abstract":"Isotretinoin is a form of Vitamin A used in treatment of severe, refractory acne vulgaris with treatment duration ranging anywhere from 3 to 12 months. The side effects of isotretinoin require monthly dermatologist visits and utilize a risk-management program called iPLEDGE REMS run by the Federal Drug Administration (FDA), which verifies that patients are not pregnant while starting or while taking isotretinoin. The physical and mental side effects experienced on isotretinoin are unique to each patient and can be severely debilitating. My own experience taking isotretinoin for 8 months was filled with multiple unexpected side effects that affected both my physical and mental health. As a result, I strongly believe dermatologists should help patients in analyzing the risk versus benefit profile of isotretinoin, present all other options, and ultimately emphasize patient-provider shared-decision making. Furthermore, at monthly visits dermatologists should be required to implement open dialogue regarding side effects to avoid patient feelings of fear and shame. Additionally, the iPLEDGE REMS system should consider creating a systematic documentation of symptoms to help normalize experiences and guide treatment plans.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241297488"},"PeriodicalIF":1.6,"publicationDate":"2024-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11533305/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142576991","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient-Clinician Communication During Cardiology Telemedicine Consultations: A Feasibility Study. 心脏病远程医疗会诊期间患者与医生之间的交流：可行性研究。

IF 1.6

Journal of Patient Experience Pub Date : 2024-11-03 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241293618

Timethia J Bonner, Bryant Noss, Sharonne N Hayes, Katie Ennis, David O Warner, Skye Buckner, Adam J Milam

{"title":"Patient-Clinician Communication During Cardiology Telemedicine Consultations: A Feasibility Study.","authors":"Timethia J Bonner, Bryant Noss, Sharonne N Hayes, Katie Ennis, David O Warner, Skye Buckner, Adam J Milam","doi":"10.1177/23743735241293618","DOIUrl":"10.1177/23743735241293618","url":null,"abstract":"While studies have evaluated the utility of telehealth in replacing in-person clinical encounters, there is a dearth of literature examining the quality of patient-physician communication with telehealth encounters. Accordingly, this study assessed the feasibility of using virtual cardiology clinical encounters to examine patient-physician interaction, communication, and perceptions of the clinical encounter. Telemedicine cardiology clinical encounters were audio- and video-recorded following the encounter, patients, and cardiologists completed an electronic survey to assess perceptions of the encounter. Qualitative analysis of the communication and statistical analysis of the survey data was conducted, providing descriptive data. The study included 11 patient-physician dyads; all patients were non-Hispanic White. Cardiologists were more racially and ethnically diverse (63% Asian). Most patients agreed telemedicine was comparable to in-person encounters (85.7%), with all cardiologists reporting that patients appeared satisfied with the encounter. We utilized an assessment tool to examine patient-physician communication in the recorded virtual encounters. This study suggests examining patient-physician communication using virtual clinical encounters is feasible, although there are barriers that need addressing for larger studies.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241293618"},"PeriodicalIF":1.6,"publicationDate":"2024-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11533301/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142576997","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Association Between Patient-Reported Enablement and Customer Satisfaction in 140 055 Primary Care Patients After Doctor Appointment. 140 055 名初级保健患者就诊后的患者报告能力与客户满意度之间的关系。

IF 1.6

Journal of Patient Experience Pub Date : 2024-10-30 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241293631

Antti-Jussi Ämmälä, Simo Taimela

{"title":"Association Between Patient-Reported Enablement and Customer Satisfaction in 140 055 Primary Care Patients After Doctor Appointment.","authors":"Antti-Jussi Ämmälä, Simo Taimela","doi":"10.1177/23743735241293631","DOIUrl":"10.1177/23743735241293631","url":null,"abstract":"Customer satisfaction and enablement are key facets of healthcare quality. We examined their interplay within a large sample of predominantly working-age primary care patients. Our dataset encompasses 140 055 customer satisfaction reports, with concurrently gathered measures of patient enablement, delivered after doctor appointments. We used the customer satisfaction (CSAT) score and the patient enablement instrument (PEI). Additionally, we assessed 3 dimensions of customer satisfaction in conjunction with the CSAT score and calculated a sum score. Age and gender were included as covariates. Our findings from linear regression analyses are twofold: (1) customer satisfaction and enablement are interconnected, yet they maintain a degree of distinctiveness, as indicated by a beta coefficient of 0.45 on a 5-point scale, and (2) within the customer experience on a dichotomous scale, negative experiences exert a more substantial impact (betas between -0.77 and -0.97) on enablement than positive experiences (betas between 0.24 and 0.40). In addition, a dose-response relationship was observed between the sum of customer experiences and PEI. Ensuring that patients' voices are acknowledged, their queries are addressed, and they have comprehensible guidance regarding the progression of their treatment, are fundamental aspects of interactions with patients.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241293631"},"PeriodicalIF":1.6,"publicationDate":"2024-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11528676/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142568424","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Five-Dimension Patient Experience Model and Its Applications in Healthcare Using the Example of Spinal Cord Injury and COPD. 以脊髓损伤和慢性阻塞性肺病为例，介绍五维患者体验模型及其在医疗保健领域的应用。

IF 1.6

Journal of Patient Experience Pub Date : 2024-10-30 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241293965

Carlos Bezos Daleske

引用次数: 0