Journal of Patient Experience最新文献_第7页

Patient Partner Perspectives: The Experience of Participating in a Co-Designed Virtual Reality Project. 患者合作伙伴的观点：参与共同设计的虚拟现实项目的体验。

IF 1.6

Journal of Patient Experience Pub Date : 2024-12-12 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241302932

Heather Thomson, Lisa Di Prospero, Sarah Xiao, Tamara Harth, Laurie Legere, Laura Rashleigh, Maria Parzanese

{"title":"Patient Partner Perspectives: The Experience of Participating in a Co-Designed Virtual Reality Project.","authors":"Heather Thomson, Lisa Di Prospero, Sarah Xiao, Tamara Harth, Laurie Legere, Laura Rashleigh, Maria Parzanese","doi":"10.1177/23743735241302932","DOIUrl":"10.1177/23743735241302932","url":null,"abstract":"Patient partners (PP) are well positioned to make meaningful contributions to healthcare through their lived experiences and personal narratives. However, researchers must ensure that patients are engaged authentically and collaboratively in knowledge generation. As part of a larger project, 4 PP were engaged in the co-design of a virtual reality video aimed at promoting an understanding of patients' lived experience with COVID-19 during the initial phase of the pandemic. This paper reports on findings from follow-up evaluation interviews with PP about their experiences participating in this project. Thematic analysis of interview transcripts resulted in 2 major themes as well as facilitators and barriers to PP engagement. Primary reasons to participate in the project were to contribute and give back to the community and make a difference for patients impacted by COVID-19. Engagement resulted in positive experiences and impacts for PP. Facilitators to engagement included feeling heard, being valued, and treated with respect. Barriers included length of time required to complete the project as well as PP health status.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241302932"},"PeriodicalIF":1.6,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11635880/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142819480","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Laypeople's Perspective on Physician Work-Hour Restrictions in Japan: A Cross-Sectional Study. 日本普通民众对医生工时限制的看法：一项横断面研究。

IF 1.6

Journal of Patient Experience Pub Date : 2024-12-12 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241305337

Hirohisa Fujikawa, Junji Haruta

{"title":"Laypeople's Perspective on Physician Work-Hour Restrictions in Japan: A Cross-Sectional Study.","authors":"Hirohisa Fujikawa, Junji Haruta","doi":"10.1177/23743735241305337","DOIUrl":"10.1177/23743735241305337","url":null,"abstract":"The aim of the study was to examine laypeople's perspectives on the impending implementation of physician work-hour restrictions in Japan, which had received limited research attention. We conducted a nationwide cross-sectional study in January 2024. The participants were monitors of an internet survey company who responded to closed questions regarding the expected effect of work-hour regulations, along with an open-ended question regarding their expectations or concerns about these restrictions. The data were analyzed using descriptive statistics for closed questions and content analysis for the open-ended questions. The study included 484 laypeople. A significant portion (25.4%) was unaware of the scheduled start of work-hour restrictions. Approximately half of the participants had a neutral view of the overall impact of the restrictions. Content analysis of the open-ended responses identified 130 (60.2%) comments as \"expectations\" and 70 (32.4%) as expressing \"concerns,\" with a notable number of comments deemed to indicate that the respondents were \"unsure\" or found the changes \"irrelevant\" to them. This study indicates a substantial gap between the views of physicians and laypeople on this issue.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241305337"},"PeriodicalIF":1.6,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11638991/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142830373","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Mixed Methods Analysis of Caregiver Satisfaction With the Early Autism Evaluation Hub System. 护理人员对早期自闭症评估中心系统满意度的混合方法分析。

IF 1.6

Journal of Patient Experience Pub Date : 2024-12-12 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241305531

Ann Marie Martin, Jordan Huskins, Angela Paxton, Amira Nafiseh, Mary R Ciccarelli, Brandon Keehn, Rebecca McNally Keehn

{"title":"Mixed Methods Analysis of Caregiver Satisfaction With the Early Autism Evaluation Hub System.","authors":"Ann Marie Martin, Jordan Huskins, Angela Paxton, Amira Nafiseh, Mary R Ciccarelli, Brandon Keehn, Rebecca McNally Keehn","doi":"10.1177/23743735241305531","DOIUrl":"10.1177/23743735241305531","url":null,"abstract":"Community-based methods for autism evaluation may be one solution for ameliorating delays in diagnosis, which are exacerbated for children from minoritized backgrounds. However, limited research has examined caregiver satisfaction with community-based models of autism evaluation. Thus, our objective was to use a mixed-methods approach to investigate caregiver satisfaction with their child's autism evaluation conducted across a statewide system of primary care autism diagnosis. Results indicated overall high satisfaction and no significant differences were found between satisfaction total scores nor caregiver stress and any child/family demographic variables. Satisfaction and stress were also not related to autism diagnostic outcome, clinician diagnostic certainty, or diagnostic accuracy. Qualitative suggestions for evaluation improvement include more thorough explanation of diagnosis and service recommendations. Overall, our findings indicate high caregiver satisfaction with multiple dimensions of community-based autism evaluation in the primary care setting, suggesting this may be a feasible and sustainable model that caregivers find acceptable.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241305531"},"PeriodicalIF":1.6,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11638985/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142828684","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Examining the Perceptions and Experiences of Dental Care Among Immigrant Free Clinic Patients. 移民免费诊所患者对牙科保健的认知与体验。

IF 1.6

Journal of Patient Experience Pub Date : 2024-12-12 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241305334

Sia Chauhan, Dustin J Breakfield, Danaya Amornnimit, Mason Luceford, Brenda Spearman, Akiko Kamimura

{"title":"Examining the Perceptions and Experiences of Dental Care Among Immigrant Free Clinic Patients.","authors":"Sia Chauhan, Dustin J Breakfield, Danaya Amornnimit, Mason Luceford, Brenda Spearman, Akiko Kamimura","doi":"10.1177/23743735241305334","DOIUrl":"10.1177/23743735241305334","url":null,"abstract":"Dental anxiety, the fear related to dental services, can be presented in diverse ways, hindering those in need of dental treatment. This anxiety often results in higher levels of untreated dental issues, affecting oral health-related quality of life primarily due to insufficient dental care or dental care avoidance. Identifying its causes is crucial for effective support and preventative care. This study explores dental care perceptions and experiences among patients at free clinics, offering valuable insights to improve dental support and care for uninsured and underserved individuals. Two hundred ninety-three immigrant patients, mainly Spanish speakers, participated from October 2023 to January 2024. Findings reveal that 14% experienced dental phobia, primarily linked to local anesthetic shots. The majority of patients reported unmet dental needs, highlighting dental care disparities. Understanding how dental phobia contributes to dental care needs is vital to understand, in order to improve oral health outcomes. Future research should address additional barriers like language, finances, and awareness of services. Additionally, exploring other anxiety factors beyond pain, noise, discomfort, and aesthetics is essential.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241305334"},"PeriodicalIF":1.6,"publicationDate":"2024-12-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11635897/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142819398","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Handcrafting Joy to Support Both the Patient and Clinician Experience. 手工制作快乐以支持患者和临床医生的体验。

IF 1.6

Journal of Patient Experience Pub Date : 2024-12-09 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241302936

Noor Fathima Shaik, David Do, Roy Rosin

{"title":"Handcrafting Joy to Support Both the Patient and Clinician Experience.","authors":"Noor Fathima Shaik, David Do, Roy Rosin","doi":"10.1177/23743735241302936","DOIUrl":"10.1177/23743735241302936","url":null,"abstract":"A patient's hospital stay is too often wrapped in fear and worry. Healthcare leaders have emphasized the immense need to improve patient experience and address patients' individual needs. In addition to helping with the medical aspect of healing, we believe health systems can encourage and empower providers to perform acts of kindness to help elevate the otherwise stressful experience of being hospitalized. We describe an initiative focused on tailoring joyful surprises, like unexpected gifts, to help support both patients and clinicians, aiming to improve patient experience and satisfaction while reducing provider burnout. In sharing the stories of the interactions between the providers and patients, it is clear that not only has this program brought joy to our patients, but that it has also helped reconnect our providers with their sense of meaning and purpose in caring for people and meeting their needs. Thus, we herein describe a patient-centered initiative that enables healthcare providers to provide unique and joyful surprises for their patients in a manner that is readily scalable, cost-effective, accessible, and deeply impactful.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241302936"},"PeriodicalIF":1.6,"publicationDate":"2024-12-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11629406/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142808214","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient-Reported Experience Measures in Pediatric Healthcare-A Rapid Evidence Assessment. 儿童医疗保健中患者报告经验措施——快速证据评估

IF 1.6

Journal of Patient Experience Pub Date : 2024-12-09 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241290481

C Bartholdson, E Broström, M D Iversen, J Granhagen Jungner

{"title":"Patient-Reported Experience Measures in Pediatric Healthcare-A Rapid Evidence Assessment.","authors":"C Bartholdson, E Broström, M D Iversen, J Granhagen Jungner","doi":"10.1177/23743735241290481","DOIUrl":"10.1177/23743735241290481","url":null,"abstract":"This study aimed to describe what is known in the scientific literature about patient-reported experience measures (PREMs) in pediatric healthcare and identify areas for further exploration. PubMed, Web of Science, CINAHL, Google Scholar, COCHRANE, and SveMed+ combined with free text search in FireFox and Safari web browsers using Medical Subject Headings terms were used. Outcomes of interest were patient experience and measures of these constructs. Of the 316 studies identified, 68 met the inclusion criteria. Forty-eight studies (72%) were published between 2015 and 2020 and more than half (53%) were published in Europe. Most studies of PREMs in pediatric healthcare included adult proxies as participants. Seventy-eight percent of studies consisted of > 100 participants. Thirty-six studies (53%) were quantitative studies, 26 (38%) were evaluative studies of patient experience measures, and 6 (9%) were qualitative in design. Three hundred eleven domains were identified and further categorized into 14 domain areas. This research is important because it aims to amplify the voices of children in healthcare and establish a foundation for developing validated pediatric-PREMs that is grounded in children's firsthand experiences of care, rather than relying primarily on proxy accounts.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241290481"},"PeriodicalIF":1.6,"publicationDate":"2024-12-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11629420/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142808216","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient Engagement in a Hybrid Care Pathway for Hypertension: Not One Size Fits All. 高血压患者参与的混合护理途径：不是一刀切的。

IF 1.6

Journal of Patient Experience Pub Date : 2024-12-08 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241297626

Job van Steenkiste, Iris Verberk-Jonkers, Stéphanie de Koning, Joyce Voss-de Haan, Bianca de Jong-Verhagen, Daan Dohmen

{"title":"Patient Engagement in a Hybrid Care Pathway for Hypertension: Not One Size Fits All.","authors":"Job van Steenkiste, Iris Verberk-Jonkers, Stéphanie de Koning, Joyce Voss-de Haan, Bianca de Jong-Verhagen, Daan Dohmen","doi":"10.1177/23743735241297626","DOIUrl":"10.1177/23743735241297626","url":null,"abstract":"We evaluated current experiences and future needs for the long-term engagement of patients in a hypertension hybrid care pathway (Maasstad Hospital, NL). Patients >18 y/o with ≥3 months care pathway participation were recruited by telephone and divided into three age/focus groups with distinct digital skills and attitudes toward lifestyle interventions (group 1:18-40 y/o, group 2:40-65 y/o, group 3:>65 y/o). We used deductive thematic content analysis to cluster the results to the different digital elements (remote monitoring, communication, digital lifestyle intervention) of the care pathway. Fifteen patients were interviewed in March 2023 (Group 1;2;3, 3;6;6 participants). The care pathway improved disease insight, engagement, and shared decision capabilities in all groups. For further improved adherence and engagement, all patients indicated the need to incorporate a more personalized approach and interaction with their healthcare provider. In addition, the oldest group preferred simplification of the telemonitoring application, while the other groups preferred enrichment with more complex information. To ensure optimal engagement, digital elements in hybrid care pathways should be personalized and tailored to individual as well as to age-specific needs.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241297626"},"PeriodicalIF":1.6,"publicationDate":"2024-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11626661/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142802753","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

COVID for One: Identifying Obstacles to Self-Management of COVID-19 for Single Adults. COVID for One：确定单身成年人自我管理COVID-19的障碍。

IF 1.6

Journal of Patient Experience Pub Date : 2024-12-08 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241302742

Linda Treiber, Christie Emerson, Jenna Shackleford

{"title":"COVID for One: Identifying Obstacles to Self-Management of COVID-19 for Single Adults.","authors":"Linda Treiber, Christie Emerson, Jenna Shackleford","doi":"10.1177/23743735241302742","DOIUrl":"10.1177/23743735241302742","url":null,"abstract":"Given the complexities of healthcare provision, it is imperative to understand how single adults experience their interactions with medical professionals and health care organizations, manage care and treatment, and navigate the barriers encountered. This study's purpose is to understand physical and mental health experiences in consideration of social determinants of health, barriers, and coping strategies for single adults diagnosed with COVID-19. An interpretive phenomenology study design was used with 12 individuals who were single and living alone during the COVID-19 pandemic. Semi-structured, open-ended interviews revealed important aspects of the COVID-19 illness experience. Interviews were transcribed for coding and thematic analysis. Analysis of patient interview data identified 4 themes: Dealing with Isolation, Dying Alone, Managing Stigma, and Making a Support Plan. The findings offer insight into what it means to have COVID-19 for single adults who live alone. These findings can be used to help improve the illness experiences of those with COVID-19 and other serious or complex conditions.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241302742"},"PeriodicalIF":1.6,"publicationDate":"2024-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11626653/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142802752","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient Engagement in Evidence-Based Practice Frameworks. 循证实践框架中的患者参与。

IF 1.6

Journal of Patient Experience Pub Date : 2024-12-04 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241302941

Jarrod Dusin, Jill Peltzer

{"title":"Patient Engagement in Evidence-Based Practice Frameworks.","authors":"Jarrod Dusin, Jill Peltzer","doi":"10.1177/23743735241302941","DOIUrl":"10.1177/23743735241302941","url":null,"abstract":"Evidence-based practice (EBP) is the cornerstone of contemporary healthcare, promoting the integration of scientific evidence, clinical expertise, and patient values to inform clinical decision-making and enhance patient outcomes. While patient engagement is recognized as a critical component of EBP, the extent to which it is incorporated in various EBP frameworks is unclear. This study is a secondary analysis of a scoping review which evaluated EBP frameworks used in healthcare settings. In the current study, our objective was to assess the level of patient engagement within those frameworks. To achieve this, we employed a patient engagement framework which characterizes engagement as a continuum, spanning consultation to involvement to shared leadership/partnership, across 3 healthcare domains: direct care, organizational design and governance, and policymaking. Our analysis revealed a gap in integrating patient values and preferences within EBP frameworks. Only 3 of the assessed frameworks showed a high degree of engagement across all domains. Future research should focus on developing strategies for implementing and evaluating meaningful engagement in EBP.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241302941"},"PeriodicalIF":1.6,"publicationDate":"2024-12-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11618891/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142787410","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Identifying the Barriers to Self-Wound Management in Singapore-A Preliminary Study in the Primary Healthcare Sector. 识别新加坡自我创伤管理的障碍——初级卫生保健部门的初步研究。

IF 1.6

Journal of Patient Experience Pub Date : 2024-11-26 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241297491

Ling Jia Goh, Xiaoli Zhu

{"title":"Identifying the Barriers to Self-Wound Management in Singapore-A Preliminary Study in the Primary Healthcare Sector.","authors":"Ling Jia Goh, Xiaoli Zhu","doi":"10.1177/23743735241297491","DOIUrl":"10.1177/23743735241297491","url":null,"abstract":"Singapore's growing elderly population faces a rising burden of chronic wounds. Studies have shown the beneficial effects of shared wound management where the patient actively manages their wound with guidance from their healthcare professionals. However, this concept faces challenges due to patient resistance. This study investigates barriers hindering patients' participation in self-wound care. Addressing these barriers to aid the development of targeted strategies can increase the uptake of self-wound care. A locally validated survey was conducted among 328 patients in the polyclinics to assess their hesitancy toward self-wound care. A lower score on the scale indicated a high hesitation toward the concept of self-wound care. Forty-five percent of the participants expressed hesitation toward self-care. Strong family support emerged as a crucial factor in encouraging participation. Conversely, concerns about improper technique, missed diagnoses, and wound infection were prevalent. Logistic difficulties also influenced anxieties. Younger patients and those with higher education exhibited less apprehension. Educational interventions, tailored to address anxieties and empower patients with proper techniques, are critical. Fostering communication within families and examining the process of acquiring wound dressing materials are crucial in overcoming these barriers to self-wound care.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241297491"},"PeriodicalIF":1.6,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11603495/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142751982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0