Journal of Patient Experience最新文献

Visual Hallucinations and Illusions as Missed Diagnostic Clues in Autoimmune Disease: A Patient Perspective. 视幻觉和错觉作为自身免疫性疾病的遗漏诊断线索：一个病人的观点。

IF 1.8

Journal of Patient Experience Pub Date : 2026-04-15 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261439465

Rupert Harwood

引用次数: 0

Using a Quality Improvement Priority Metric to Promote Uniformly High-Quality Care: An Illustrative Example Using Child HCAHPS Survey Data. 使用质量改进优先度量来促进统一的高质量护理：使用儿童HCAHPS调查数据的说明性示例。

IF 1.8

Journal of Patient Experience Pub Date : 2026-04-13 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261437482

Denise D Quigley, Marc N Elliott, Mary E Slaughter, Ron D Hays

{"title":"Using a Quality Improvement Priority Metric to Promote Uniformly High-Quality Care: An Illustrative Example Using Child HCAHPS Survey Data.","authors":"Denise D Quigley, Marc N Elliott, Mary E Slaughter, Ron D Hays","doi":"10.1177/23743735261437482","DOIUrl":"https://doi.org/10.1177/23743735261437482","url":null,"abstract":"Patient experience data are used to set performance targets and monitor effectiveness of quality improvement (QI) activities. However, assessing and determining areas that need improvement can be challenging, especially when there are many measures, making it harder to synthesize and identify clear priorities. We describe a QI priority metric and technique for assessing cross-sectional patient experience data that explicitly examine subgroup performance and priorities. The QI priority metric combines 2 patient experience metrics (case-mix-adjusted mean for a patient experience measure and partial correlation of that measure with an overall rating) into a single priority value, allowing leaders to quickly identify improvement areas across multiple measures and patient groups. We examined the priority metric overall and by patient groups (ie, by race, ethnicity, and language preference). We found the priority metric synthesized and identified 2 priority areas for improvement for the entire patient population and revealed several additional improvement priorities specific to patient groups. This metric has the potential to be an informative and self-educating technique for promoting uniformly high-quality care and enhancing performance.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261437482"},"PeriodicalIF":1.8,"publicationDate":"2026-04-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13080214/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147700160","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Designing Nutrition Studies for Long COVID and Related Infection-Associated Chronic Illness: Qualitative Insights From a Patient-Reported Evaluation of Ketogenic Metabolic Therapy. 设计长期COVID和相关感染相关慢性疾病的营养研究：来自患者报告的生酮代谢治疗评估的定性见解。

IF 1.8

Journal of Patient Experience Pub Date : 2026-04-13 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261442541

Dana Dharmakaya Colgan, Lita Buttolph, Tabitha Grow, Diane D Stadler, Mary Ruddick, Todd E Davenport, Heather Zwickey

{"title":"Designing Nutrition Studies for Long COVID and Related Infection-Associated Chronic Illness: Qualitative Insights From a Patient-Reported Evaluation of Ketogenic Metabolic Therapy.","authors":"Dana Dharmakaya Colgan, Lita Buttolph, Tabitha Grow, Diane D Stadler, Mary Ruddick, Todd E Davenport, Heather Zwickey","doi":"10.1177/23743735261442541","DOIUrl":"https://doi.org/10.1177/23743735261442541","url":null,"abstract":"Background: Long COVID affects over 400 million people worldwide and has no FDA-approved treatments. Patients often rely on self-directed strategies, making their lived experiences an essential, yet underutilized, source of evidence. Ketogenic metabolic therapy (KMT) has demonstrated mechanisms relevant to Long COVID, including improved mitochondrial energy production, reduced oxidative stress, and modulation of inflammation, but remains underexplored.Methods: We conducted a cross-sectional, mixed-methods study of adults who completed Enable Your Healing, a 12-week virtual program integrating KMT with lifestyle components. Recruitment emails were sent to 194 participants; 41 completed the online REDCap survey. Quantitative data were summarized descriptively. Qualitative data were analyzed using conventional content analysis.Results: Participants (mean age 41; 90% female) reported diagnoses including postviral dysautonomia, myalgic encephalomyelitis/chronic fatigue syndrome, and Long COVID. Four themes emerged: program benefits, challenges, recommendations, and scientific considerations. Key insights included the value of multicomponent synergy, extended duration, and prioritization of functional outcomes.Conclusion: Findings suggest nutrition trials for infection-associated chronic illnesses, including Long COVID, should consider incorporating longer intervention periods, multicomponent design, patient-centered outcomes, lived-experience integration, and tailored supports to optimize feasibility and impact.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261442541"},"PeriodicalIF":1.8,"publicationDate":"2026-04-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13080129/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147700135","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring Patient Heterogeneity in Service Quality Gaps and Satisfaction: Insights from Outpatient Care. 探索服务质量差距和满意度的患者异质性：来自门诊护理的见解。

IF 1.8

Journal of Patient Experience Pub Date : 2026-04-13 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261437458

Vinaya Saji Inchiyil, Aqueel Fatma Syed

{"title":"Exploring Patient Heterogeneity in Service Quality Gaps and Satisfaction: Insights from Outpatient Care.","authors":"Vinaya Saji Inchiyil, Aqueel Fatma Syed","doi":"10.1177/23743735261437458","DOIUrl":"https://doi.org/10.1177/23743735261437458","url":null,"abstract":"Patient heterogeneity shapes outpatient perceptions of healthcare service quality, yet this diversity is often underexamined. This research brief applies the SERVQUAL framework to assess expectation-perception gaps and patient satisfaction among 94 outpatients at a tertiary teaching hospital. Descriptive analysis showed tangibility as a relative strength, while reliability and empathy exhibited the largest observed gaps, indicating unmet expectations for dependable and compassionate care. Dichotomized satisfaction scores revealed highest satisfaction for tangibility (86%) and assurance (82%), with comparatively lower satisfaction for reliability and empathy (75%), aligning with observed service gaps. Variation in internal consistency across SERVQUAL dimensions further reflects variability in patient experiences rather than uniform service evaluation. Findings suggest that standardized service delivery alone may not ensure equitable satisfaction in high-volume outpatient settings. Targeted interventions, such as scheduling improvements, communication training, and patient-support roles, may enhance trust and perceived quality. Embedding patient experience metrics within quality dashboards is recommended to advance equitable outpatient care. Limitations include a modest sample size and descriptive design. Nonetheless, the study provides early, context-sensitive insights to inform patient-centered quality improvement in resource-constrained outpatient care.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261437458"},"PeriodicalIF":1.8,"publicationDate":"2026-04-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13080138/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147700146","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Lived Experiences of Patients With Sickle Cell Disease and Kidney Failure: Insights From a Qualitative Study. 镰状细胞病和肾衰竭患者的生活经历：来自定性研究的见解。

IF 1.8

Journal of Patient Experience Pub Date : 2026-04-07 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261439469

Husam Alzayer, Eman Alabbad, Basil Alnasrallah, Abduallah Alqawain, Manaf Aljishi

{"title":"Lived Experiences of Patients With Sickle Cell Disease and Kidney Failure: Insights From a Qualitative Study.","authors":"Husam Alzayer, Eman Alabbad, Basil Alnasrallah, Abduallah Alqawain, Manaf Aljishi","doi":"10.1177/23743735261439469","DOIUrl":"https://doi.org/10.1177/23743735261439469","url":null,"abstract":"Patients with sickle cell disease (SCD) experience multisystem complications, with sickle cell nephropathy being a major contributor to chronic kidney disease and kidney failure (KF). Despite the high burden of SCD-associated KF, little is known about how patients experience and cope with this unique multimorbidity. We conducted a dual-center qualitative study using face-to-face semistructured interviews, recruited 10 patients, and performed thematic analysis. Interviews were conducted in Arabic, transcribed verbatim, and translated into English by bilingual nephrologists. Data were coded iteratively using inductive coding. We identified 4 themes that describe patients' lived experiences with SCD and KF: (1) adjustment to KF; (2) pain, fatigue, and crisis management; (3) knowledge, education, and awareness; and (4) fragmented care and systemic barriers. Religious faith, family support, and resilience emerged as important coping mechanisms, while patients reported feeling unprepared for dialysis and inadequately informed about modality choices. These findings highlight the need for multidisciplinary, patient-centered services, structured education on dialysis options, and improved interprofessional coordination, providing insights to inform future interventions.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261439469"},"PeriodicalIF":1.8,"publicationDate":"2026-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13058185/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147646974","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Development of the Japanese Version of the Views on Inpatient Care (VOICE-J): Service Users' Perspectives on Psychiatric Inpatient Care. 《住院护理观》日文版的发展（旁白）：服务使用者对精神科住院护理的看法。

IF 1.8

Journal of Patient Experience Pub Date : 2026-04-06 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261439462

Yuki Miyamoto, Risa Kotake, Emiko Otsu-Mitsui, Manami Tsunemoto, Tomoko Shinmura, Utako Sawada, Kaori Tsuzuki, Neteru Masukawa, Jo Evans, Daisuke Nishi

{"title":"Development of the Japanese Version of the Views on Inpatient Care (VOICE-J): Service Users' Perspectives on Psychiatric Inpatient Care.","authors":"Yuki Miyamoto, Risa Kotake, Emiko Otsu-Mitsui, Manami Tsunemoto, Tomoko Shinmura, Utako Sawada, Kaori Tsuzuki, Neteru Masukawa, Jo Evans, Daisuke Nishi","doi":"10.1177/23743735261439462","DOIUrl":"https://doi.org/10.1177/23743735261439462","url":null,"abstract":"The quality of psychiatric inpatient care is a pressing concern in Japan, where hospitalization is prolonged and coercive practices remain common. Incorporating patients' perspectives is essential for evaluation and service improvement. The Views on Inpatient Care (VOICE) scale, originally developed in the United Kingdom through co-production between service users and researchers, assesses inpatients' experiences. This study aimed to develop a Japanese version (VOICE-J) through rigorous translation and cross-cultural verification, and to evaluate its psychometric properties among psychiatric inpatients. People with lived experience contributed at every stage, from item review to questionnaire usability. The validation survey was conducted in a private psychiatric hospital in Tokyo, with 134 inpatients providing analyzable responses. VOICE-J demonstrated excellent internal consistency (Cronbach's α = 0.94), strong negative correlations with patient satisfaction (Japanese version of Client Satisfaction Questionnaire, 8-item, CSQ-8J) and recovery-oriented support (Brief INSPIRE-J), and good test-retest reliability (intraclass correlation coefficient = 0.85). Known-groups validity was partially supported, with more positive evaluations among voluntary and self-requested admissions. VOICE-J offers a reliable, patient-centered instrument for assessing psychiatric inpatient care in Japan and supports quality improvement through patients' perspectives.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261439462"},"PeriodicalIF":1.8,"publicationDate":"2026-04-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13053959/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147639975","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Diagnostic Uncertainty and Continuity in Pediatric Oncology: A Caregiver's Perspective. 儿科肿瘤学诊断的不确定性和连续性：护理者的观点。

IF 1.8

Journal of Patient Experience Pub Date : 2026-04-02 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261439549

AlAnood Saud AlRoomi

引用次数: 0

Compassionate Communication Starts with Listening. 富有同情心的沟通始于倾听。

IF 1.8

Journal of Patient Experience Pub Date : 2026-04-01 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261439537

Valeri Lantz-Gefroh

引用次数: 0

Evaluation of Patient Experience in a Private Hospital in Costa Rica-A Retrospective Study. 哥斯达黎加一家私立医院患者体验评价——回顾性研究

IF 1.8

Journal of Patient Experience Pub Date : 2026-03-31 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261438031

Georgia Hanley-Vargas, Adriana Anchía-Alfaro, Diego Quesada-Loría, Sebastián Arguedas-Chacón, Abigail Fallas-Mora, Sergio Restrepo-Arango, Esteban Zavaleta-Monestel

{"title":"Evaluation of Patient Experience in a Private Hospital in Costa Rica-A Retrospective Study.","authors":"Georgia Hanley-Vargas, Adriana Anchía-Alfaro, Diego Quesada-Loría, Sebastián Arguedas-Chacón, Abigail Fallas-Mora, Sergio Restrepo-Arango, Esteban Zavaleta-Monestel","doi":"10.1177/23743735261438031","DOIUrl":"https://doi.org/10.1177/23743735261438031","url":null,"abstract":"This study evaluated patient experience in a private hospital in Costa Rica using the Picker Patient Experience Questionnaire-33 (PPE-33). A digital survey administered via Qualtrics® targeted patients treated in emergency, surgical, or inpatient units between November 2024 and February 2025. A total of 567 valid responses were analyzed, exceeding the required sample size. The mean PPE-33 score indicated a satisfaction rate of 67.6%. The lowest-rated dimension was Patient Rights (27.9%), with few patients reporting being informed about their rights. In comparison, higher scores were observed for patient information (90.4%) and for confidentiality, privacy, pain management, and care (82.0%). Statistically significant differences were observed only by occupational status (p = .0122), with no variation by sex, age, educational level, or marital status. The emergency department consistently showed the lowest ratings across several dimensions. Overall, the findings highlight strengths and persistent gaps in patient-centered care and support the use of digital surveys as a feasible tool for monitoring patient experience and guiding quality improvement efforts in similar private hospital settings.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261438031"},"PeriodicalIF":1.8,"publicationDate":"2026-03-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13039608/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147610263","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Determinants of Hepatitis-Related Service Quality by Patients in Ghana: Implications for Quality Improvement. 加纳患者肝炎相关服务质量的决定因素：对质量改进的影响。

IF 1.8

Journal of Patient Experience Pub Date : 2026-03-29 eCollection Date: 2026-01-01 DOI: 10.1177/23743735261437570

Ekuwa Dede Ackon, Charles Ampong Adjei, Josephine Mpomaa Kyei, William Menkah, Emmanuel A Marfo, Mary Asor Asirifi

{"title":"Determinants of Hepatitis-Related Service Quality by Patients in Ghana: Implications for Quality Improvement.","authors":"Ekuwa Dede Ackon, Charles Ampong Adjei, Josephine Mpomaa Kyei, William Menkah, Emmanuel A Marfo, Mary Asor Asirifi","doi":"10.1177/23743735261437570","DOIUrl":"10.1177/23743735261437570","url":null,"abstract":"Hepatitis B infection remains a public health concern in Ghana with about 8.4% of the adult population chronically infected. A number of these patients access care in health facilities, yet the extent to which they perceive the care quality is not documented. We used exploratory descriptive qualitative study to understand the factors that shape 16 patients' perceptions of hepatitis-related service quality in a tertiary hospital in Ghana. We adopted the service quality model by Brady and Cronin to guide the study. Participants were recruited purposively, and data analysis followed the procedure of Braun and Clarke. We found distinct patient concerns encompassing various aspects of care, including privacy, waiting times, clinic accessibility, and staff attitudes and expertise. Nurse-front desk interactions and education provided on hepatitis treatment emerged as areas requiring improvement. The physical environment, including cleanliness and ambient conditions, influenced patient satisfaction; however, systemic challenges such as long waiting time and insufficient clinic operational days were identified as major sources of discontent. There is the need for a patient-centered approach in healthcare delivery, integrated services, enhanced privacy measures, and a comfortable and welcoming healthcare environment.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261437570"},"PeriodicalIF":1.8,"publicationDate":"2026-03-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13033861/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147595482","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0