Journal of Patient Experience最新文献

Patient Satisfaction in the Headache Care at the Veterans Health Administration Headache Centers of Excellence: A Cross-Sectional Study. 退伍军人健康管理局头痛卓越中心的患者头痛护理满意度：一项横断面研究。

IF 1.6

Journal of Patient Experience Pub Date : 2025-06-11 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251346615

Addison L Kimber, Brenda T Fenton, Bin Zhou, Sarah E Anthony, Jason J Sico, Elizabeth K Seng

{"title":"Patient Satisfaction in the Headache Care at the Veterans Health Administration Headache Centers of Excellence: A Cross-Sectional Study.","authors":"Addison L Kimber, Brenda T Fenton, Bin Zhou, Sarah E Anthony, Jason J Sico, Elizabeth K Seng","doi":"10.1177/23743735251346615","DOIUrl":"10.1177/23743735251346615","url":null,"abstract":"This cross-sectional study compared patient satisfaction with headache care in Veterans Health Administration (VHA) Headache Centers of Excellence (HCoE) and HCoE facilities versus traditional headache care. Using the VHA Survey of Healthcare Experiences of Patients specialty care survey, we analyzed responses from 4317 (14% response rate) veterans with a VHA headache visit who received care from (1) a Veterans Affairs (VA) HCoE provider; (2) a non-HCoE provider within a VA medical center containing an HCoE; or (3) a provider in a VA medical center without an HCoE. Compared to patients at non-HCoE facilities, both HCoE patients and HCoE facility patients reported higher overall satisfaction with their VHA care in general (OR = 1.32, 95% CI = 1.05-1.64; OR = 1.46, 95% CI = 1.38-1.54), respectively. Despite a modest response rate, HCoE and HCoE facility patients reported significantly higher satisfaction across other domains including access and communication, in models adjusting for demographics. These findings advance the conversation regarding the value of HCoEs in delivering high-quality, patient-centered care and expanding HCoE resources may improve satisfaction. Future research should formally investigate methods of improving satisfaction.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251346615"},"PeriodicalIF":1.6,"publicationDate":"2025-06-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12163267/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144303171","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Updating the Definition for Humanism in Healthcare: Kind, Safe, and Trustworthy. 更新医疗人文主义的定义：善良、安全、可信。

IF 1.6

Journal of Patient Experience Pub Date : 2025-06-06 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251340506

Kathleen A Reeves

引用次数: 0

An Assessment of Harm in Adults-Adverse Childhood Experiences Screening in Primary Care: A Survey-Based Study. 初级保健中成人不良童年经历筛查的危害评估：一项基于调查的研究。

IF 1.6

Journal of Patient Experience Pub Date : 2025-06-05 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251344505

Katelyn M Inch, Craig Olmstead, Brenna A Kaschor

{"title":"An Assessment of Harm in Adults-Adverse Childhood Experiences Screening in Primary Care: A Survey-Based Study.","authors":"Katelyn M Inch, Craig Olmstead, Brenna A Kaschor","doi":"10.1177/23743735251344505","DOIUrl":"10.1177/23743735251344505","url":null,"abstract":"The Adverse Childhood Experiences Questionnaire (ACE-Q) screens for adverse childhood experiences (ACEs), which are linked to increased disease risk. Although pediatric studies report no adverse effects of ACE-Q use, primary care data is limited. This study examined adult patients' experiences with ACE-Q screening in primary care. Adults (18+) at a primary care center in London, Ontario, completed the ACE-Q and a follow-up questionnaire evaluating ACE screening experience. Correlations assessed relationships between ACE-Q scores and follow-up responses. Among 260 participants, 81% reported at least one ACE. Most (82%) felt comfortable discussing stressful childhood experiences with their healthcare provider. Higher ACE scores were associated with increased discomfort (rs = -0.166, P = 0.007), feeling upset by the ACE-Q (rs = 0.173, P = 0.005), and greater interest in learning about ACEs (rs = 0.177, P = 0.004). Overall, ACE-Q screening in primary care was generally well-received, with most patients recognizing its relevance despite some discomfort. These findings highlight the potential for integrating ACE screening into routine primary care to address long-term health risks. Further research is needed to confirm findings and optimize screening practices.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251344505"},"PeriodicalIF":1.6,"publicationDate":"2025-06-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12144381/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144250185","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient-Reported Experiences of Home-Based Breathing Exercises After Cardiac Surgery: A Prospective Questionnaire-Based Cohort Study. 心脏手术后患者报告的家庭呼吸练习经历：一项前瞻性问卷队列研究。

IF 1.6

Journal of Patient Experience Pub Date : 2025-06-04 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251348849

Elisabeth Westerdahl, Charlotte Urell, Henrik Johansson, Barbara Cristina Brocki, Marcus Jonsson

{"title":"Patient-Reported Experiences of Home-Based Breathing Exercises After Cardiac Surgery: A Prospective Questionnaire-Based Cohort Study.","authors":"Elisabeth Westerdahl, Charlotte Urell, Henrik Johansson, Barbara Cristina Brocki, Marcus Jonsson","doi":"10.1177/23743735251348849","DOIUrl":"10.1177/23743735251348849","url":null,"abstract":"This study assessed patient-reported experiences and perceived respiratory outcomes of home-based deep breathing exercises 3 months after cardiac surgery. A postal questionnaire was sent to 120 patients at a Swedish university hospital, with 92 respondents (77%). The majority (89%) performed breathing exercises after discharge, with 77% reporting them as very easy to perform. Most patients continued the exercises for 2 to 4 weeks (41%) or 1 to 2 months (20%), typically practicing 3 times per day. The exercises were well tolerated, with 87% experiencing no discomfort. Motivation was generally high-43% felt very motivated, and 78% found the exercises useful. While chest pain was reported as low and 56% experienced improved breathing, nearly half of the respondents reported difficulties with coughing, and 10% sought medical care for respiratory infections. Overall, home-based deep breathing exercises were perceived as beneficial and well accepted. However, engagement and adherence varied, highlighting the need for tailored support to encourage sustained participation.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251348849"},"PeriodicalIF":1.6,"publicationDate":"2025-06-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12138212/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144235426","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring Patients' Motivations in Using Platelet-Rich Plasma as Their Primary Care Therapy for Managing Knee Osteoarthritis: A Focus Group Discussion. 探讨患者使用富血小板血浆作为治疗膝关节骨性关节炎的主要护理治疗的动机：焦点小组讨论

IF 1.6

Journal of Patient Experience Pub Date : 2025-06-04 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251323387

Maria Ruth Pineda-Cortel, Jan Tyrone Cabrera, Adrian Villavieja, Mary Monica Bernardo-Bueno, Minerva Daya, John Emil Alegre, Renz Cleve Vergara, Rinnel Brenan Bonifacio, Consuelo G Suarez

{"title":"Exploring Patients' Motivations in Using Platelet-Rich Plasma as Their Primary Care Therapy for Managing Knee Osteoarthritis: A Focus Group Discussion.","authors":"Maria Ruth Pineda-Cortel, Jan Tyrone Cabrera, Adrian Villavieja, Mary Monica Bernardo-Bueno, Minerva Daya, John Emil Alegre, Renz Cleve Vergara, Rinnel Brenan Bonifacio, Consuelo G Suarez","doi":"10.1177/23743735251323387","DOIUrl":"10.1177/23743735251323387","url":null,"abstract":"Knee osteoarthritis (KOA) is a degenerative disease that causes pain and burden in patients. Aside from surgery, clinicians tout the potential use of platelet-rich plasma. This study explores motivation in terms of perceptions, experiences, and recommendations of KOA patients who received platelet-rich plasma (PRP) as primary care therapy. A qualitative approach via focus group discussion was conducted. Data were analyzed using thematic analysis and visualized using MAXQDA. Patients' motivation for the use of PRP was based on three factors: (1) their perception of PRP as a therapy, (2) their lived experiences post-PRP therapy, and (3) their willingness to recommend PRP to others as a primary care therapy. The elements of each theme were identified and ranked based on how often the patients expressed the same thought, with willingness (f=5), alternative therapy (f=7), and pain (f=27) ranking highest. Physicians' recommendations, preference for a non-surgical approach, and later on, reduced pain and improved quality of life made them believe in the effectiveness of PRP as primary care therapy to alleviate KOA symptoms.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251323387"},"PeriodicalIF":1.6,"publicationDate":"2025-06-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12138209/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144235425","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Diverse Experiences and Challenges of Individuals With Alopecia Areata: Survey Results From Finland. 斑秃患者的不同经历和挑战：来自芬兰的调查结果。

IF 1.6

Journal of Patient Experience Pub Date : 2025-06-03 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251346633

Johanna M Mandelin, Laura Rehn, Mikko Kosunen, Merja Väkeväinen, Saara Rannanpää

{"title":"The Diverse Experiences and Challenges of Individuals With Alopecia Areata: Survey Results From Finland.","authors":"Johanna M Mandelin, Laura Rehn, Mikko Kosunen, Merja Väkeväinen, Saara Rannanpää","doi":"10.1177/23743735251346633","DOIUrl":"10.1177/23743735251346633","url":null,"abstract":"Alopecia areata (AA) is a chronic disease that significantly impacts well-being and quality of life. Despite its burden, professional support and treatment utilization remain low. This study investigated the experiences of 226 individuals in Finland with AA through an online survey. Most (82.7%) had at least one comorbid condition, most commonly atopic dermatitis (45.1%) and allergic rhinitis (43.4%). Depression and anxiety were reported by 22.1% and 23.0% of respondents, respectively. Those with ≥50% hair loss were significantly less likely to report higher overall well-being (odds ratio 0.60; 95% CI 0.38-0.96; P = .03), and experienced a greater negative impact on their relationships and social situations compared to those with <50% hair loss. The majority (82.7%) had not received any treatment for AA during the past year. Social media and peer support were the most common information sources. These findings highlight the need for improved patient education, and professional support. Healthcare providers should proactively offer guidance on treatment options and assess comorbidities to improve individual well-being.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251346633"},"PeriodicalIF":1.6,"publicationDate":"2025-06-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12134506/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144227136","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient-Centered Care: A Qualitative Analysis of Patient and Caregiver Experiences in a Hospital at Home Program. 以患者为中心的护理：对居家医院项目中患者和护理人员经验的定性分析。

IF 1.6

Journal of Patient Experience Pub Date : 2025-06-02 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251347706

Matthew D Dalstrom, Colleen J Klein, Meagan Rothrock-Magana, Melinda Cooling

{"title":"Patient-Centered Care: A Qualitative Analysis of Patient and Caregiver Experiences in a Hospital at Home Program.","authors":"Matthew D Dalstrom, Colleen J Klein, Meagan Rothrock-Magana, Melinda Cooling","doi":"10.1177/23743735251347706","DOIUrl":"10.1177/23743735251347706","url":null,"abstract":"This descriptive qualitative study aimed to address a gap in the literature by exploring the experiences of Hospital at Home (HaH) patients and caregivers. HaH programs, which deliver hospital-level care to patients in their homes, are increasingly popular outside the United States. Yet, there is less emphasis on understanding the experiences of patients and caregivers while actively receiving hospital-level care in the home and how their insights can enhance care delivery. A purposeful sample of 12 patients and five caregivers participated in semistructured interviews during the acute care stage and 30 days after their discharge from hospital-level care in the home. Thematic analysis revealed three main themes: (1) patient-centered communication and education, (2) differences in medical care at home, and (3) the impact of technology on the overall experience. These themes provide valuable insights into the factors that patients and caregivers believe positively and negatively influence their experiences within the HaH program. Moreover, the themes highlight aspects of the HaH model that are important to patients/caregivers and those that can be improved.Clinical trialsgov: Number: NCT05952999Analysis of the Virtual Acute Care at Home Experience (HaH)URL: https://www.clinicaltrials.gov/search?term = NCT05952999.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251347706"},"PeriodicalIF":1.6,"publicationDate":"2025-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12130647/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144217198","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Impressions of Recording a Brief Audio File Known as a TIMS (This is My Story) File. 录制一个简短的音频文件的印象，称为TIMS（这是我的故事）文件。

IF 1.6

Journal of Patient Experience Pub Date : 2025-06-02 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251346585

Elizabeth Tracey, Jason Wilson, Rohan Mathur, David Hager

引用次数: 0

Targeting the Beast Along My Illness Trajectory: A Qualitative Study of Females With Triple-Negative Breast Cancer. 沿着我的疾病轨迹瞄准野兽：女性三阴性乳腺癌的定性研究。

IF 1.6

Journal of Patient Experience Pub Date : 2025-06-02 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251345475

Josianne Scerri, Janice Agius, Michael Galea

{"title":"Targeting the Beast Along My Illness Trajectory: A Qualitative Study of Females With Triple-Negative Breast Cancer.","authors":"Josianne Scerri, Janice Agius, Michael Galea","doi":"10.1177/23743735251345475","DOIUrl":"10.1177/23743735251345475","url":null,"abstract":"Breast cancer subtypes differ in prevalence, aggressiveness, and availability of targeted therapies. However, research often examines the lived experiences of individuals with breast cancer collectively. One subtype, Triple-Negative Breast Cancer (TNBC) is an aggressive form of cancer that lacks targeted therapy and has higher recurrence and mortality rates. This study aims to explore the lived experiences of individuals diagnosed with TNBC, from diagnosis through active treatment. Audio-recorded interviews were conducted with 11 women who had completed treatment for TNBC. Ages ranged between 26 and 63 years. Data collected were analyzed using interpretative phenomenological analysis. Four group experiential themes were extracted: \"Living in shellshock,\" \"Fighting the aggressive beast,\" \"Pulling out the beast,\" and \"Facing the unknown.\" Participants described substantial emotional distress stemming from the aggressive progression of TNBC and its earlier onset. The rarity of TNBC further intensified perceptions of reduced survival odds. This study underscores the importance of comprehensive care for TNBC patients, incorporating ongoing engagement with TNBC survivors, access to mental health services, and inclusive screening that includes younger women.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251345475"},"PeriodicalIF":1.6,"publicationDate":"2025-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12130651/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144217199","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Informing Eating Disorder Support Through Lived Experience. 通过生活经验告知饮食失调的支持。

IF 1.6

Journal of Patient Experience Pub Date : 2025-05-30 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251346617

Samantha H Irwin, Abigail McCluskey, Sunny Y Dong, Isra Amsdr, Anne Marie Portelli, Carla Southward, Britt Udall, Francine Buchanan, Matt Carwana, Nadia Roumeliotis, Popcorn Executive Committee

{"title":"Informing Eating Disorder Support Through Lived Experience.","authors":"Samantha H Irwin, Abigail McCluskey, Sunny Y Dong, Isra Amsdr, Anne Marie Portelli, Carla Southward, Britt Udall, Francine Buchanan, Matt Carwana, Nadia Roumeliotis, Popcorn Executive Committee","doi":"10.1177/23743735251346617","DOIUrl":"10.1177/23743735251346617","url":null,"abstract":"An increase in eating disorder hospitalizations was observed amongst Canadian adolescents during COVID-19 public health restrictions. To help understand why this may have occurred, youth with lived experience of an eating disorder share their interpretations of these findings. This article, written by youth patient partners, provides insights into how unpredictable changes to daily routines and health system challenges during the COVID-19 pandemic might have influenced eating disorder hospitalizations. The increase in hospitalizations during the pandemic, combined with our lived experience advisory, underscores gaps in current approaches to supporting young people with eating disorders. We provide suggestions for clinicians, researchers, and policymakers stemming from our patient experiences in hopes that equitable, accessible, and patient-centered support can be prioritized to improve eating disorder-related care. This collaboration establishes a precedent for incorporating the voices of youth patient partners to better translate and mobilize research. These reflections serve as an example of how youth patient partner involvement can inspire future research, healthcare, and policy to advance care for those impacted by eating disorders.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251346617"},"PeriodicalIF":1.6,"publicationDate":"2025-05-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12126641/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144200373","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0