Journal of Patient Experience最新文献

Ennui in Long-Term Cancer: Existential Consequences Experienced by an Academic.

IF 1.6

Journal of Patient Experience Pub Date : 2025-03-03 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251325129

Annette M Lane

引用次数: 0

A Mixed-Methods Analysis of Negative Patient Experiences in Emergency Department Care: Identifying Challenges and Evidence-Informed Strategies Across the Care Continuum.

IF 1.6

Journal of Patient Experience Pub Date : 2025-03-02 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251323795

J K Fujioka, M Walker, D Rajab, S A Bartels

{"title":"A Mixed-Methods Analysis of Negative Patient Experiences in Emergency Department Care: Identifying Challenges and Evidence-Informed Strategies Across the Care Continuum.","authors":"J K Fujioka, M Walker, D Rajab, S A Bartels","doi":"10.1177/23743735251323795","DOIUrl":"10.1177/23743735251323795","url":null,"abstract":"This mixed-methods study explores negative patient experiences within emergency departments (EDs), aiming to uncover systemic challenges and propose evidence-informed solutions. Of 2114 shared ED experiences, 306 (14.5%) were reported as \"bad\" or \"very bad.\" Younger age, Indigenous status, financial instability, mental health disabilities, and non-heteronormative sexual identities were associated with negative ED experiences. Our research highlights key issues across the ED care continuum. During triage and registration, patients felt judged and perceived that their health concerns were under prioritized. Prolonged wait times contributed to feelings of neglect. During assessments, privacy concerns and lack of communication were prominent. Perceptions of misdiagnosis and stigmatization emerged as major concerns during the diagnosis and treatment phases. At discharge, insufficient follow-up and unclear instructions were frequently reported. Our findings underscore the need for improved communication, enhanced training to reduce stigma, and multi-pronged strategies to address the root causes of patient dissatisfaction. These insights can guide healthcare practitioners and policymakers in fostering a more inclusive and supportive ED environment, ultimately improving patient experiences and outcomes.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251323795"},"PeriodicalIF":1.6,"publicationDate":"2025-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11873856/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143543982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Let's Talk About Myopia: Literature Review and Stakeholder Survey to Develop a Roadmap for Advocacy.

IF 1.6

Journal of Patient Experience Pub Date : 2025-03-02 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251323355

Annegret Dahlmann-Noor, Hamza Noor

{"title":"Let's Talk About Myopia: Literature Review and Stakeholder Survey to Develop a Roadmap for Advocacy.","authors":"Annegret Dahlmann-Noor, Hamza Noor","doi":"10.1177/23743735251323355","DOIUrl":"10.1177/23743735251323355","url":null,"abstract":"Myopia (short-sightedness) in children is a public health concern, as prevalence and severity are rising. By 2050, half the world population may have myopia, with a fifth at risk of uncorrectable sight-loss. Effective treatments to slow the worsening of myopia are not publicly funded. Here we aimed to complete the first 2 of these stages of designing an effective myopia advocacy campaign, that is, issue identification and research/analysis. We carried out a literature review on myopia/eye care advocacy campaigns and an online key stakeholder survey with exploratory open-ended questions distributed to a convenience sample of 30 individuals known from previous informal discussions, including parents, a young adult, facilitators/representatives of UK and European myopia patient advocacy groups/charities, professional organizations and industry. We extracted data from included publications into a prespecified table and used thematic analysis to summarize survey responses. The main issues identified are perceived lack of public/professional awareness, complications and interventions, and public funding. The most important rationales for eye-healthy behavior and interventions are: short/medium-term improvement in quality of life linked to lower levels of short-sightedness, and long-term reduction of risk of sight-threatening complications and healthcare costs. A myopia advocacy campaign should increase public/professional awareness, provide education and information for eye/healthcare practitioners, families, teachers and other professionals, lead to public funding, and promote collaborations between stakeholders to enable funding for appropriate interventions.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251323355"},"PeriodicalIF":1.6,"publicationDate":"2025-03-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11873846/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143543984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patients With Experience of Hospitalization for Acute Severe Ulcerative Colitis Prefer Inpatient to Home-Based Care.

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-24 eCollection Date: 2025-01-01 DOI: 10.1177/23743735241301918

Mustafa Mohamedrashed, Saiumaeswar Yogakanthi, Ayushi Chauhan, Sarah Lucas, Mayur Garg

{"title":"Patients With Experience of Hospitalization for Acute Severe Ulcerative Colitis Prefer Inpatient to Home-Based Care.","authors":"Mustafa Mohamedrashed, Saiumaeswar Yogakanthi, Ayushi Chauhan, Sarah Lucas, Mayur Garg","doi":"10.1177/23743735241301918","DOIUrl":"10.1177/23743735241301918","url":null,"abstract":"Acute severe ulcerative colitis (ASUC) comprises a severe manifestation of inflammatory bowel disease that requires close monitoring and aggressive treatment. This study aimed to evaluate the experience of patients admitted to a single tertiary service with ASUC, focusing on perception of the received therapy and preferences regarding location of care. Patients admitted with ASUC were invited to complete a short online survey. Data regarding disease characteristics, management, and outcomes were obtained through retrospective chart review. Of the 24 patients meeting Truelove and Witt's criteria for ASUC, 20 (74.07%, median age 34 [interquartile range 29-48] years, 13 [65%] female) responded. The majority of study participants reported receiving excellent overall inpatient care (15 out of 20, 75%), a strong agreement that they felt safe as an inpatient (17 out of 20, 85%) and felt their individual needs were met and questions were answered during hospitalization (15 out of 20, 75%). A preference toward inpatient management rather than an ambulatory setting was noted (14 out of 20, 70%). In conclusion, patients admitted with ASUC experienced a high degree of satisfaction with their care, with a preference toward inpatient care.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735241301918"},"PeriodicalIF":1.6,"publicationDate":"2025-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11851743/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143504732","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Orchestrating Excellent Health and Care Experiences: The Essential Role of Leadership.

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-24 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251323354

Laura Cooley, Shirin Amouei

引用次数: 0

Does Communication Effectiveness Assessed by Communication Scholars Correlate with Patient Perception of Clinician Empathy?

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-21 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251323674

Haley Ponce, Rafael Cordero, Jacinta Tran, Natalie Wellman, David Ring

{"title":"Does Communication Effectiveness Assessed by Communication Scholars Correlate with Patient Perception of Clinician Empathy?","authors":"Haley Ponce, Rafael Cordero, Jacinta Tran, Natalie Wellman, David Ring","doi":"10.1177/23743735251323674","DOIUrl":"10.1177/23743735251323674","url":null,"abstract":"In a prior study, communication scholar ratings of clinician communication effectiveness did not correlate with perceived clinician empathy, which is one aspect of patient experience. We repeated the analysis with a different rating of communication effectiveness to increase confidence that the lack of association was not due to an inadequate rating tool. Video-recorded visits (108) were rated by 3 trained observers using the Communication Quality Analysis with acceptable reliability. Patients completed measures of perceived clinician empathy, pain accommodation, health anxiety, and depression symptoms. Negative binomial regression analysis sought factors associated with perceived clinician empathy. Only accommodation of pain met the criterion for entry into a multivariable model for perceived clinician empathy (ρ = 0.17; P = .08). No factors were associated with perceived clinician empathy, including independently rated communication effectiveness. The consistent finding of no correlation between communication effectiveness and patient perception clinician empathy using a second rating tool does not diminish the importance of effective patient-clinician communication, but it does reinforce the need to identify suitable measures of modifiable factors associated with poor patient experience.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251323674"},"PeriodicalIF":1.6,"publicationDate":"2025-02-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11846112/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143484408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Does the Internet Provide Accurate Information About Foregoing Treatment for Common Musculoskeletal Conditions.

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-21 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251323390

Ruth Simpson, Sruthi Gade, Anita Prabhu, George E Sayegh, David Ring

{"title":"Does the Internet Provide Accurate Information About Foregoing Treatment for Common Musculoskeletal Conditions.","authors":"Ruth Simpson, Sruthi Gade, Anita Prabhu, George E Sayegh, David Ring","doi":"10.1177/23743735251323390","DOIUrl":"10.1177/23743735251323390","url":null,"abstract":"We studied how websites address the consequences of leaving common musculoskeletal conditions untreated, two that have a benign, self-limiting course without treatment (de Quervain tendinopathy, lateral epicondylitis) and one that is expected to have progressive nerve deterioration without treatment (carpal tunnel syndrome). Using a common search engine, the first 120 websites addressing each diagnosis were rated for statements regarding disease progression and need for surgery without treatment. Most sites stated that disease would worsen without treatment: carpal tunnel syndrome (99%), lateral epicondylitis (91%), and de Quervain tendinopathy (72%). For each condition, approximately a third of the websites stated surgery might become necessary. The observation of inadequate distinction between conditions that deteriorate with treatment from those that resolve without treatment emphasizes the potential for harm by reinforcing common misconceptions such as \"this is taking too long\" or \"this will not resolve without treatment\" and by jeopardizing personal health agency. Producers of online medical information can add an item to their quality checklist that ensures that people are accurately informed about a choice to not seek treatment.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251323390"},"PeriodicalIF":1.6,"publicationDate":"2025-02-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11846101/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143484411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Motivational Interviewing is "Doing" What Matters: Integrating Motivational Interviewing Spirit and Skills into What Matters to You? Conversations.

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-13 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251317041

Damara Gutnick, Sarah McNeilly

引用次数: 0

Reflecting on the Deaf Experience in Healthcare.

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-12 eCollection Date: 2025-01-01 DOI: 10.1177/23743735241311091

Bruna Tavares Leite, Ligia F N Reato, Patrícia Pereira, Luciana Pereira

{"title":"Reflecting on the Deaf Experience in Healthcare.","authors":"Bruna Tavares Leite, Ligia F N Reato, Patrícia Pereira, Luciana Pereira","doi":"10.1177/23743735241311091","DOIUrl":"10.1177/23743735241311091","url":null,"abstract":"This paper examines the integration of Deaf culture into patient-centered healthcare, focusing on resolving the challenges encountered by the Deaf community. It evaluates the contrast between the traditional medical model of disability and the cultural perspective of the Deaf community, advocating for healthcare systems to incorporate the cultural distinctiveness of Deaf patients. Utilizing an autoethnographic method, the paper shares the experience of a Deaf researcher in healthcare, thereby illuminating the communication and cultural obstacles prevalent in healthcare interactions. This research proposed pragmatic solutions, including the establishment of Deaf-centric communication protocols, and the cultural competency training of healthcare professionals. These strategies aimed to promote equitable access to health services and technology. The findings of this paper contribute to the field of healthcare, particularly in enhancing the patient experience for the Deaf community. The paper emphasized the importance of creating inclusive and empathetic healthcare environments and advocated for a joint effort among policymakers, healthcare practitioners, and the Deaf community to develop solutions that effectively address their specific needs.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735241311091"},"PeriodicalIF":1.6,"publicationDate":"2025-02-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11822821/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143415748","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Use of Hospital Patient and Family Advisory Councils: A Scoping Study.

IF 1.6

Journal of Patient Experience Pub Date : 2025-02-09 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251316995

Barbara Lewis, Chris Cochran, Erika Marquez, Neeraj Bhandari, Jennifer Pharr, Soumya Upadhyay, Stowe Shoemaker

{"title":"Use of Hospital Patient and Family Advisory Councils: A Scoping Study.","authors":"Barbara Lewis, Chris Cochran, Erika Marquez, Neeraj Bhandari, Jennifer Pharr, Soumya Upadhyay, Stowe Shoemaker","doi":"10.1177/23743735251316995","DOIUrl":"10.1177/23743735251316995","url":null,"abstract":"With the aim of fostering patient-centered care, Patient and Family Advisory Councils (PFACs) have emerged as a way for hospitals to garner input for initiatives and programs from patients and patients' families who have used the hospitals' services. Despite their inception in the early 1980s, only 54% of United States hospitals field a PFAC. This scoping study entailed searching 6 databases in July 2024 and reviewing 143 articles about hospital PFACs from around the world to understand how hospitals use PFACs, measure the results, and acknowledge the success factors. Patient and Family Advisory Council engagement ranged from stamping approval for a project to providing feedback or codesigning the project from the inception, with feedback as the most popular. Of the articles about specific PFACs, 70% either dealt with a condition, such as cancer, the type of person, such as youth, or both. The literature review revealed that few articles cited PFAC project metrics and outcomes, although some articles mentioned PFAC success factors, the most prevalent of which was the training of patients and staff, as well as leadership.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251316995"},"PeriodicalIF":1.6,"publicationDate":"2025-02-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11808756/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392174","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0