Journal of Patient Experience最新文献_第4页

Link From Hospital to Home: Ensuring Quality Transitions for CKD Patients. 从医院到家庭的连接：确保CKD患者的质量过渡。

IF 1.8

Journal of Patient Experience Pub Date : 2025-08-28 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251367076

Emily Simon, Melissa Feeney, Joan Mendenhall, Caroline Ruff, Tammy Cheung, Farhad Modarai, Muhammad Sohaib

{"title":"Link From Hospital to Home: Ensuring Quality Transitions for CKD Patients.","authors":"Emily Simon, Melissa Feeney, Joan Mendenhall, Caroline Ruff, Tammy Cheung, Farhad Modarai, Muhammad Sohaib","doi":"10.1177/23743735251367076","DOIUrl":"10.1177/23743735251367076","url":null,"abstract":"Patients living with chronic kidney disease (CKD) suffer significantly higher readmission rates after discharge than the national all-hospital 30-day rate. Federal-based programs have introduced payment models incentivizing prevention-oriented activities, like transitional care management (TCM) programs, that help patients safely transition from one care facility to their homes. In this quality improvement case study, we assessed our value-based kidney care organization's TCM clinical program, which empowers patients in their post-hospitalization journey by promoting increased awareness of their condition, adherence to medications, and care navigation, ultimately minimizing the likelihood of complications or readmission. CKD patients with moderate to high risk for readmission were included in the analysis. The findings demonstrated that enrollment in the TCM program reduced total hospital readmission rates compared to those who declined enrollment at 7-, 14-, and 30-days postdischarge (P < .01; 7-days, 42% lower; 14-days, 37% lower; 30-days, 25% lower). To reduce patient utilization and increase quality of care after a hospitalization, healthcare organizations should deploy a patient-centered transitional care approach in their care models.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251367076"},"PeriodicalIF":1.8,"publicationDate":"2025-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12394859/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973341","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Validity and Reliability of the Newly Developed Patient-Reported Experience Measures Tool for Effectively Assessing the Quality of Care and Patient Safety During Antenatal Services. 有效性和可靠性的新开发的病人报告的经验措施工具，有效地评估护理质量和产前服务期间的病人安全。

IF 1.8

Journal of Patient Experience Pub Date : 2025-08-21 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251371769

Anuradha Pichumani, Deepthy Balakrishnan, Lallu Joseph, Nitin Raithatha, Anju Indran

{"title":"Validity and Reliability of the Newly Developed Patient-Reported Experience Measures Tool for Effectively Assessing the Quality of Care and Patient Safety During Antenatal Services.","authors":"Anuradha Pichumani, Deepthy Balakrishnan, Lallu Joseph, Nitin Raithatha, Anju Indran","doi":"10.1177/23743735251371769","DOIUrl":"10.1177/23743735251371769","url":null,"abstract":"Maternal mortality and morbidity do not adequately represent women's healthcare experiences. Traditional clinical outcomes must be complemented with tools that assess patients' subjective experiences to provide a comprehensive view of care effectiveness. The proposed Antenatal Patient-Reported Experience Measures (PREM) tool, developed with input from women who have experienced maternity care, highlights relevant aspects for pregnant mothers and ensures reliability and cross-cultural validation. A multiphase study conducted in 15 Indian hospitals employed purposive sampling. Phase 1 involved forming an expert group, conducting focus group discussions, establishing a standard operating procedure, and creating the PREM Questionnaire. Phases 2 and 3 included a pilot study with 220 participants and a field study with 518 respondents. A PREM tool with 22 expert-sourced questions achieved an internal consistency value of 0.7205, indicating acceptable reliability. The mean content validity index was 0.998, demonstrating high validity, and the content validity ratio was 0.95. Experts deemed 21 out of 22 questions essential. The PREM tool displayed good reliability and strong content validity. The validated PREM enhances antenatal care outcomes by prioritizing women's perspectives.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251371769"},"PeriodicalIF":1.8,"publicationDate":"2025-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12374095/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973344","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

I Want to be Known as a Whole Human Being: A Qualitative Study About Patients' Experiences of Empathy in Health Care. 我想被称为一个完整的人：关于医疗保健中患者共情体验的定性研究。

IF 1.8

Journal of Patient Experience Pub Date : 2025-08-21 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251369702

Johanna von Knorring, Arja Lehti, Kristina Lindvall, Olof Semb

{"title":"I Want to be Known as a Whole Human Being: A Qualitative Study About Patients' Experiences of Empathy in Health Care.","authors":"Johanna von Knorring, Arja Lehti, Kristina Lindvall, Olof Semb","doi":"10.1177/23743735251369702","DOIUrl":"10.1177/23743735251369702","url":null,"abstract":"Empathy is crucial in forming a good relationship between patients and healthcare providers. Research on empathy in health care has largely focused on healthcare providers and students and less on the patient's perspective. This study's aim was to investigate patients' experience of empathy in healthcare interactions, to better understand and accommodate to patients' needs. Semi-structured interviews with patients were analyzed inspired by constructivist Grounded Theory. Three categories were formed-\"I need you to focus on me,\" \"I am more than my disease\" and \"I know myself and the disease\" and the core category: \"I want to be known as a whole human being.\" This study has provided a deeper insight on how empathy can be operationalized in healthcare interactions from a patient perspective. Patients experience health care interactions as dependent on empathic engagement and hampered by inequity due to knowledge hierarchies and lack of personal sharing. This study emphasizes patientś need for doctors to be more personal, and to experience a mutual sharing with their doctors to not feel vulnerable or left out in the consultation.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251369702"},"PeriodicalIF":1.8,"publicationDate":"2025-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12374116/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973291","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Assessment of Patient Experience During Active Surveillance for Prostate Cancer. 前列腺癌主动监测期间患者体验的评估。

IF 1.8

Journal of Patient Experience Pub Date : 2025-08-18 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251369557

Devon M Langston, Matthew J DePuccio, Ann Scheck McAlearney, Sooyoung Kim, Alice A Gaughan, Alicia Scimeca, Shawn Dason, Tasha Posid, John O DeLancey

{"title":"Assessment of Patient Experience During Active Surveillance for Prostate Cancer.","authors":"Devon M Langston, Matthew J DePuccio, Ann Scheck McAlearney, Sooyoung Kim, Alice A Gaughan, Alicia Scimeca, Shawn Dason, Tasha Posid, John O DeLancey","doi":"10.1177/23743735251369557","DOIUrl":"10.1177/23743735251369557","url":null,"abstract":"Active surveillance is a preferred strategy for patients with low-risk prostate cancer to delay and/or avoid side effects of treatment. While its impact on health-related quality of life (HRQOL) has been studied, factors influencing follow-up adherence and patient involvement in active surveillance protocols remain less understood. This study aimed to explore patient perspectives on testing modalities, frequencies, and satisfaction with active surveillance. HRQOL surveys and active surveillance-specific questions assessed patients undergoing active surveillance at a US academic medical center between 2019 and 2021 after Institutional Review Board approval. Respondents were invited to interviews and thematic analysis identified key themes. Forty-six participants completed surveys and 12 were interviewed. Satisfaction with active surveillance was reported by 93.3%, and 97.7% indicated a willingness to opt for the same treatment again. Anxiety and urinary function were key factors influencing quality of life. Trust in the doctor's recommendations, avoiding side effects, and feeling it is a good way to monitor their cancer were common reasons for choosing active surveillance. Addressing organizational factors, treatment equity, and evolving patient perspectives can refine active surveillance protocols. Understanding patient experiences can inform tailored protocols and improve patient-provider communication, enhancing patients' well-being and adherence.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251369557"},"PeriodicalIF":1.8,"publicationDate":"2025-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12365426/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973330","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

What Factors Are Associated With Trust and Experience With the Clinician? 哪些因素与临床医生的信任和经验有关？

IF 1.8

Journal of Patient Experience Pub Date : 2025-08-18 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251370185

Laura Bashour, Amin Razi, Jada Thompson, Rick Looman, David Ring, Niels Brinkman

引用次数: 0

Associations of Patient Experience With Doctor-Patient Communication and Patient-Reported Physical and Mental Health in Seriously Ill Adults. 重症成人患者经历与医患沟通和患者报告的身心健康的关系。

IF 1.8

Journal of Patient Experience Pub Date : 2025-08-14 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251352601

Sarah F D'Ambruoso, Anne M Walling, Neil S Wenger, Rebecca L Sudore, Lisa Gibbs, Maryam Rahimi, Ron D Hays

{"title":"Associations of Patient Experience With Doctor-Patient Communication and Patient-Reported Physical and Mental Health in Seriously Ill Adults.","authors":"Sarah F D'Ambruoso, Anne M Walling, Neil S Wenger, Rebecca L Sudore, Lisa Gibbs, Maryam Rahimi, Ron D Hays","doi":"10.1177/23743735251352601","DOIUrl":"10.1177/23743735251352601","url":null,"abstract":"The importance of effective doctor-patient communication is well established; however, rigorous evaluations of its association with patient-reported outcomes among seriously ill patients are needed. We analyzed 2 waves of survey data from adults with serious illnesses in primary care clinics. We administered the Consumer Assessment of Healthcare Providers and Systems (CAHPS®) communication scale, Patient-Reported Outcomes Measurement and Information System (PROMIS®) global health items, and the PROMIS-29 depression and anxiety scales. We evaluated a structural equation model to assess relationships between patient experience and self-reported global physical and mental health in 779 patients at baseline and 12 months later. Average age was 69, with 52% male, 18% Hispanic, 9% Asian, and 7% Black; 24% had a high school education or less. Better global health (PROMIS) at baseline was associated with better doctor-patient communication (CAHPS) at 12 months (β = 0.09, P = .005), and better doctor-patient communication at baseline was related to better mental health at follow-up (β = 0.07, P = .0105). The results suggest that patients' overall health may influence doctor-patient communication, and this communication may impact patients' mental health over time.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251352601"},"PeriodicalIF":1.8,"publicationDate":"2025-08-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12357017/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144875908","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Optimizing the Journey for Patients With Nontuberculous Mycobacterial (NTM) Lung Disease in the United Kingdom. 优化英国非结核分枝杆菌（NTM）肺病患者的旅程

IF 1.8

Journal of Patient Experience Pub Date : 2025-08-12 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251367077

Fiona McDonald, Lorraine Coleman, Claire Gillett, Shirley Harwood, Sally McCann, Sarah Minty, Tanya Sinnett, Behalf Of Ntm Patient Care Uk

{"title":"Optimizing the Journey for Patients With Nontuberculous Mycobacterial (NTM) Lung Disease in the United Kingdom.","authors":"Fiona McDonald, Lorraine Coleman, Claire Gillett, Shirley Harwood, Sally McCann, Sarah Minty, Tanya Sinnett, Behalf Of Ntm Patient Care Uk","doi":"10.1177/23743735251367077","DOIUrl":"10.1177/23743735251367077","url":null,"abstract":"Nontuberculous mycobacterial lung disease (NTM-LD) is a chronic infection with increasing global incidence, which primarily affects individuals with preexisting lung conditions such as bronchiectasis and chronic obstructive pulmonary disease. Despite the availability of clinical guidelines and newly published Standards of Care, variability in healthcare professionals' (HCPs) familiarity with NTM-LD results in delayed diagnoses, inconsistent care, and suboptimal patient outcomes. Based on our own experiences as NTM-LD patients, we highlight key issues in the management of NTM-LD, including diagnostic inefficiencies, variable access to specialized care, mixed experience of empathy, and insufficient information provision. We provide recommendations that we hope will optimize the patient journey and improve outcomes for individuals with NTM-LD. These include improving HCP education, ensuring the involvement of a multidisciplinary team from the point of diagnosis, enhancing patient participation in decision-making, and promoting access to support networks. The challenges and solutions we propose are globally relevant and highlight the need for clear communication and integrated care pathways. A collaborative, patient-centered approach is crucial to effectively managing this complex disease in both primary and secondary care settings.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251367077"},"PeriodicalIF":1.8,"publicationDate":"2025-08-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12344231/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144849322","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Impact of Discrimination and Poor Provider Communication on Public Trust in Cancer Advice From Physicians. 歧视和提供者沟通不良对公众对医生癌症建议信任的影响。

IF 1.8

Journal of Patient Experience Pub Date : 2025-08-06 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251362537

Aaron Shaykevich, Martha Wojtowycz

{"title":"The Impact of Discrimination and Poor Provider Communication on Public Trust in Cancer Advice From Physicians.","authors":"Aaron Shaykevich, Martha Wojtowycz","doi":"10.1177/23743735251362537","DOIUrl":"10.1177/23743735251362537","url":null,"abstract":"Trust in physicians is an important factor influencing patient engagement and health outcomes. While prior studies have explored the role of trust in cancer patients, there is limited research assessing trust in physicians regarding cancer-related information, including prevention, among the general population. This study aims to assess the impact of negative healthcare experiences, including poor provider communication and discrimination, on physician trust in cancer-related advice. This study utilized the Health Information National Trends Survey 6, a nationally representative survey. Binary logistic regression was performed to identify associations between covariates and trust in physicians' cancer information. Patients reporting dissatisfaction across all 7 patient-communication categories exhibited the lowest rates of trust among all covariates (aOR: 0.34, CI [0.28-0.42]). Respondents who experienced racial or ethnic discrimination in healthcare were less likely to express high trust (aOR: 0.65, CI [0.50-0.84]). Racial disparities were also identified, with non-Whites and Hispanics reporting lower levels of trust. This study highlights the significant association of negative healthcare interactions on trust in physicians' cancer-related advice and underscores the need for improved patient-centered communication.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251362537"},"PeriodicalIF":1.8,"publicationDate":"2025-08-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12329197/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144800499","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Challenges of COVID: Lessons Learned From Living Kidney Donors' Experience. COVID的挑战：从活体肾脏捐赠者的经验中吸取的教训。

IF 1.8

Journal of Patient Experience Pub Date : 2025-07-30 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251360491

Kelly L Nottingham, Rebekah Perkins Crawford, Sophia D Starkie, Libby K Shaffer

{"title":"Challenges of COVID: Lessons Learned From Living Kidney Donors' Experience.","authors":"Kelly L Nottingham, Rebekah Perkins Crawford, Sophia D Starkie, Libby K Shaffer","doi":"10.1177/23743735251360491","DOIUrl":"10.1177/23743735251360491","url":null,"abstract":"The COVID pandemic disrupted healthcare systems worldwide, affecting medical care delivery, including transplant centers. As sites of tertiary healthcare delivery, living kidney donations were particularly impacted, with delays, communication challenges, and an increased burden on potential donors. This qualitative study explored the lived experiences of individuals navigating the predonation evaluation (PDE) during the pandemic. Through 25 semistructured interviews, the participants shared insights into delays in care, inconsistent communication, pandemic-related emotions, and unexpected facilitators. The constant comparative analysis method identified key themes, including (1) delays in care due to COVID, (2) inconsistent communication due to COVID, (3) pandemic-related emotions, and (4) pandemic-era shifts that facilitated living kidney donor (LKD) PDE. The data highlighted the importance of maintaining patient-centered care, effective communication and pointed to specific ways to improve the patient's experience. These themes highlight mitigating strategies to address future care for other types of LKD disruptions.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251360491"},"PeriodicalIF":1.8,"publicationDate":"2025-07-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12317246/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144776427","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Using Online Reviews to Drive Person-Centered Care: An HCAHPS-Validated Approach. 使用在线评论推动以人为本的护理：hcahps验证方法。

IF 1.8

Journal of Patient Experience Pub Date : 2025-07-28 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251360471

Joseph G Taylor, Meghan P Leaver, Alex Griffiths

{"title":"Using Online Reviews to Drive Person-Centered Care: An HCAHPS-Validated Approach.","authors":"Joseph G Taylor, Meghan P Leaver, Alex Griffiths","doi":"10.1177/23743735251360471","DOIUrl":"10.1177/23743735251360471","url":null,"abstract":"Person-centered care focuses on the needs of the individual receiving care, and involves cooperation between patients and health professionals to develop and monitor care. This research demonstrates that online patient reviews provide a rich, real-time, and detailed source of patient experience that can be used for this purpose. This study also shows that unstructured online data can be quantified using machine learning and natural language processing to automatically flag and rate patient reviews. We describe a supervised learning approach, training a model on a large dataset of manually annotated patient reviews. We report model scores of 99% accuracy in predicting overall score, and 93% to 99% in predicting relevance to seven domains of patient experience, such as Effective Treatment, Fast Access, and Emotional Support. Furthermore, we show statistically significant alignment between these aggregated online patient reviews and HCAHPS star ratings-a \"gold-standard\" measure of care quality for hospitals in the United States. This approach enables benchmarking between health systems and evaluating the impact of interventions on patient experience, while quantifying and enhancing the patient-centeredness of care.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251360471"},"PeriodicalIF":1.8,"publicationDate":"2025-07-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12304609/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144745411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0