Journal of Patient Experience最新文献_第4页

Developing and Validating a User-Friendly Quality Benchmark: Enhancing the Integrity of Online Health Information for Patients and Clinicians.

IF 1.6

Journal of Patient Experience Pub Date : 2025-01-31 eCollection Date: 2025-01-01 DOI: 10.1177/23743735241309468

Lubna Daraz, Cicek Dogu

{"title":"Developing and Validating a User-Friendly Quality Benchmark: Enhancing the Integrity of Online Health Information for Patients and Clinicians.","authors":"Lubna Daraz, Cicek Dogu","doi":"10.1177/23743735241309468","DOIUrl":"10.1177/23743735241309468","url":null,"abstract":"The quality of online health information remains one of the leading causes in combating misinformation for patients and the public. However, assessing online health content is challenging for those without medical expertise. This article briefly outlines the development and validation of an evidence-based online health information evaluation tool. A systematic approach with five phases was adopted: (1) synthesizing the current state of the reliability of online health information, (2) conducting content analysis of existing quality assessment tools, (3) drafting a comprehensive list of quality criteria, (4) developing and validating a quality benchmark, and (5) disseminating the results. Collaborative input from healthcare providers, patients, caregivers, and the public developed and validated a quality benchmark. The quality benchmark consists of 5 quality criteria and 8 accompanying descriptions that define each quality criterion. A printable version of the benchmark is provided in the article to facilitate easy implementation by both patients and healthcare providers. The benchmark is recommended for use and intended to empower patients with a skill set to navigate through online misinformation, facilitating access to credible health information and promoting improved health outcomes.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735241309468"},"PeriodicalIF":1.6,"publicationDate":"2025-01-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11783465/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143081592","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Natural Language Processing (NLP): Identifying Linguistic Gender Bias in Electronic Medical Records (EMRs).

IF 1.6

Journal of Patient Experience Pub Date : 2025-01-31 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251314843

Site Xu, Mu Sun

{"title":"Natural Language Processing (NLP): Identifying Linguistic Gender Bias in Electronic Medical Records (EMRs).","authors":"Site Xu, Mu Sun","doi":"10.1177/23743735251314843","DOIUrl":"10.1177/23743735251314843","url":null,"abstract":"With the rise of feminism, women report experiencing doubt or discrimination in medical settings. This study aims to explore the linguistic mechanisms by which physicians express disbelief toward patients and to investigate gender differences in the use of negative medical descriptions. A content analysis of 285 electronic medical records was conducted to identify 4 linguistic bias features: judging, reporting, quoting, and fudging. Sentiment classification and knowledge graph with ICD-11 were used to determine the prevalence of these features in the medical records, and logistic regression was applied to test gender differences. A total of 2354 descriptions were analyzed, with 64.7% of the patients identified as male. Descriptions of female patients contained fewer judgmental linguistic features but more fudging-related linguistic features compared to male patients (judging: OR 0.69, 95% CI 0.54-0.88, p < 0.01; fudging: OR 1.38, 95% CI 1.09-1.75, p < 0.01). No significant differences were found in the use of reporting (OR 0.95, 95% CI 0.61-1.47, p = 0.81) and quoting (OR 0.99, 95% CI 0.72-1.36, p = 0.96) between male and female patients. This study highlights how physicians may express disbelief toward patients through linguistic biases, particularly through the use of judging and fudging language. Both male and female patients may face different types of systematic bias from physicians, with female patients experiencing more fudging-related language and less judgmental language compared to male patients. These differences point to a potential mechanism through which gender disparities in healthcare quality may arise, underscoring the need for further investigation and action to address these biases.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251314843"},"PeriodicalIF":1.6,"publicationDate":"2025-01-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11786286/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143081606","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Lived Experience of Suffering by Nigerian Female Breast Cancer Survivors: A Phenomenological Perspective. 尼日利亚女性乳腺癌幸存者的痛苦生活体验：现象学视角

IF 1.6

Journal of Patient Experience Pub Date : 2025-01-28 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251314858

Chinomso Ugochukwu Nwozichi, Margaret Olutosin Ojewale, Omolabake Salako, Deliverance Brotobor, Elizabeth Olaogun

{"title":"The Lived Experience of Suffering by Nigerian Female Breast Cancer Survivors: A Phenomenological Perspective.","authors":"Chinomso Ugochukwu Nwozichi, Margaret Olutosin Ojewale, Omolabake Salako, Deliverance Brotobor, Elizabeth Olaogun","doi":"10.1177/23743735251314858","DOIUrl":"10.1177/23743735251314858","url":null,"abstract":"Breast cancer is a significant public health concern globally, and its impact extends beyond physical survival. Survivors often grapple with a myriad of challenges, including psychological distress, social isolation, and financial hardship. These challenges are often exacerbated in low-resource settings like Nigeria, where limited access to quality healthcare, socioeconomic disparities, and cultural stigma surrounding cancer can significantly impact the quality of life for survivors. This study aims to explore the suffering perceived by long-term breast cancer survivors in Nigeria, focusing on their lived experiences during and after treatment. Using a phenomenological approach, in-depth interviews were conducted with 22 women who have survived breast cancer for over 5 years. Data were analyzed using thematic analysis to capture the essence of their suffering, allowing for a deep understanding of their lived experiences. Five main domains emerged: (1) Physical Suffering, (2) Emotional Distress, (3) Social Suffering, (4) Financial Strain, and (5) Spiritual and Resilient Coping. Participants described their suffering as a multifaceted journey marked by physical pain, emotional turmoil, social stigma, financial challenges, and resilience fostered through spirituality and support systems. The phenomenological analysis revealed that the participants' suffering extended beyond the physical, touching every aspect of their lives and reshaping their identities and perceptions of self. The findings highlight the complex nature of suffering among breast cancer survivors in Nigeria, underscoring the need for comprehensive survivorship care that addresses physical, psychosocial, and spiritual dimensions. By understanding the essence of their suffering, healthcare providers can develop more compassionate, context-specific care strategies that validate and support the holistic needs of survivors.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251314858"},"PeriodicalIF":1.6,"publicationDate":"2025-01-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11792020/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143190888","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Gendered Experiences of Intravenous Iron Infusion Reactions: A Patient Perspective.

IF 1.6

Journal of Patient Experience Pub Date : 2025-01-28 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251314842

Roxanna Nasseri Pebdani

{"title":"Gendered Experiences of Intravenous Iron Infusion Reactions: A Patient Perspective.","authors":"Roxanna Nasseri Pebdani","doi":"10.1177/23743735251314842","DOIUrl":"10.1177/23743735251314842","url":null,"abstract":"Hypophosphatemia following iron infusion is thought to be a relatively rare complication of intravenous iron infusion, though research is beginning to demonstrate that it occurs more often than previously assumed. Still, healthcare professionals are often unaware of this potential complication. This, coupled with the medical bias women can receive in health settings-plus the over-representation of women receiving intravenous iron-means that symptoms of hypophosphatemia may be misinterpreted or worse, misdiagnosed. This article presents an account of a patient experience of hypophosphatemia following intravenous iron. Key points include: healthcare providers should be aware of this potential complication, healthcare providers must be prepared to listen, assess, address, and treat potential hypophosphatemia that occurs after receiving an iron infusion, and physicians should monitor phosphate, particularly in patients who develop fatigue, nausea, bone pain, and other symptoms of hypophosphatemia after receiving an iron infusion. Further research on the prevalence, impact, and duration of hypophosphatemia following iron infusion is needed.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251314842"},"PeriodicalIF":1.6,"publicationDate":"2025-01-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11773511/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061209","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Addressing the Underrepresentation of African American Mental Health Professionals: A Call to Action.

IF 1.6

Journal of Patient Experience Pub Date : 2025-01-24 eCollection Date: 2025-01-01 DOI: 10.1177/23743735241307382

Victor Ajluni, Georgia Michalopoulou

引用次数: 0

Enhancing Patient Choice Through the Development of Physical Therapist Online Biographies.

IF 1.6

Journal of Patient Experience Pub Date : 2025-01-23 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251315050

Evan K Perrault, Jeff Stein

{"title":"Enhancing Patient Choice Through the Development of Physical Therapist Online Biographies.","authors":"Evan K Perrault, Jeff Stein","doi":"10.1177/23743735251315050","DOIUrl":"10.1177/23743735251315050","url":null,"abstract":"Provider web profiles are becoming popular locations for patients to seek information before their visits. This industry insight assesses patients' utilization of a physical therapy clinic's website to determine the impact the addition of physical therapist biographies had on patient perceptions and physical therapist selection. Forty-six percent of first-time patients (n = 786) indicated visiting the clinic's website prior to their visit. After biographies were added, these website visitors rated the website as more helpful, and indicated a greater perception of certainty regarding the services the clinic provides. A greater percentage of website visitors made a purposeful selection of therapist after therapist biographies were posted online than prior to biographies being posted. These findings indicate that improvements to a clinic's website can positively impact patient empowerment in making personal healthcare decisions. Simply adding biographies of physical therapists to clinics' websites can have significant effects on reducing first-time patients' uncertainty, as well as providing a greater level of patient-centered care by offering information to empower patients to be more active participants in their healthcare choices.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251315050"},"PeriodicalIF":1.6,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11755516/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143029926","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Engaging Patients with Headache in the Veterans Health Administration (VHA): ACTIvated Veterans Engagement Group (ACTIVE) to Improve Delivery of Patient-Centered Headache Services.

IF 1.6

Journal of Patient Experience Pub Date : 2025-01-23 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251314621

Olivia M Datre, Sean A Baird, Hayley M Lindsey, Roberta E Goldman, Jason J Sico, Teresa M Damush

{"title":"Engaging Patients with Headache in the Veterans Health Administration (VHA): ACTIvated Veterans Engagement Group (ACTIVE) to Improve Delivery of Patient-Centered Headache Services.","authors":"Olivia M Datre, Sean A Baird, Hayley M Lindsey, Roberta E Goldman, Jason J Sico, Teresa M Damush","doi":"10.1177/23743735251314621","DOIUrl":"10.1177/23743735251314621","url":null,"abstract":"In 2018, the Veterans Health Administration (VHA) established the original 19 Headache Centers of Excellence (HCoE) program, and an evaluation center. This study utilized a Veteran engagement group method to elicit input from Veteran patients living with chronic headache on daily needs, social determinants of health, and preferences and suggestions for headache programs, services, and research priorities. Four engagement groups were conducted between July 13th and August 22nd of 2022 with Veterans who experience headache and received care at a VHA HCoE. Engagement groups were audio-recorded, de-identified, transcribed, and analyzed using rapid qualitative content matrix analysis. Participants also completed a baseline survey on demographics, technology use, headache history, and health. Patients perceived care coordination, social support, gender specific preferences and access to complementary and integrative therapies to be important aspects of headache care delivered by HCoEs. Participants expressed strong interest in effective, interactive peer support groups to share and learn from each other's experiences with headaches and treatments. Findings underscore the demand for coordinated, interdisciplinary headache care integrating complementary health approaches and addressing gender-specific needs.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251314621"},"PeriodicalIF":1.6,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11758523/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143048210","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Impact of Standardized Reporting Systems on Patient Experience in Radiology.

IF 1.6

Journal of Patient Experience Pub Date : 2025-01-22 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251314648

Igor Toker, Sven Jansen, Daniel Lorenz

引用次数: 0

The Diagnostic Journey of Dysautonomia Patients: Insights from a Patient-Reported Outcome Study. 自主神经异常患者的诊断之旅：来自患者报告的结果研究的见解。

IF 1.6

Journal of Patient Experience Pub Date : 2025-01-21 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251314651

John A O'Dell, Ash Walker, Andrew J Latham, Daniel J Parisian, Lindsay E Branch, Dreena D Vanderburg, Ava A Cox, Shelley Chavis, Silvia E Smith

{"title":"The Diagnostic Journey of Dysautonomia Patients: Insights from a Patient-Reported Outcome Study.","authors":"John A O'Dell, Ash Walker, Andrew J Latham, Daniel J Parisian, Lindsay E Branch, Dreena D Vanderburg, Ava A Cox, Shelley Chavis, Silvia E Smith","doi":"10.1177/23743735251314651","DOIUrl":"10.1177/23743735251314651","url":null,"abstract":"Dysautonomia refers to any disorder involving altered function of the autonomic nervous system. Dysautonomia can be debilitating as it often affects multiple organ systems. The diagnostic journey for individuals affected by dysautonomia can be hindered by symptom overlap with other conditions and by limited access to autonomic specialists. The present patient-reported outcome study aims to characterize the diagnostic journey of 672 adult individuals affected by different types of dysautonomia. The average time to diagnosis was 7.7 years (SD 10 years) and diagnosis was made primarily by cardiologists, followed by neurologists, and internists or primary care physicians. Common comorbid conditions are Ehlers-Danlos syndrome, mast cell disorders, vitamin deficiency, fibromyalgia, and myalgic encephalomyelitis, all of which can contribute to the symptoms burden and can potentially confound the diagnostic process. We suggest that the prolonged time to diagnosis contributes to morbidity and compounds the psychological and economic burden of dysautonomia. Raising awareness about the numerous obstacles that hinder the diagnostic process among both clinicians and dysautonomia patients is the first step to reduce morbidity and improve clinical outcomes.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251314651"},"PeriodicalIF":1.6,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11748159/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013758","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Understanding Patient Registries for Diabetes: A Scoping Review of Published Literature. 了解糖尿病患者登记：已发表文献的范围综述。

IF 1.6

Journal of Patient Experience Pub Date : 2025-01-21 eCollection Date: 2025-01-01 DOI: 10.1177/23743735251314620

Lana Moayad, Paige Alliston, Saira Khalid, Donna Fitzpatrick-Lewis, Hertzel C Gerstein, Diana Sherifali

{"title":"Understanding Patient Registries for Diabetes: A Scoping Review of Published Literature.","authors":"Lana Moayad, Paige Alliston, Saira Khalid, Donna Fitzpatrick-Lewis, Hertzel C Gerstein, Diana Sherifali","doi":"10.1177/23743735251314620","DOIUrl":"10.1177/23743735251314620","url":null,"abstract":"Background: Diabetes registries have grown in prevalence and incorporated patient engagement opportunities to support diabetes management. We aimed to understand the goals, purpose, and context for diabetes registries defined as patient-focused and how people with diabetes are engaging with these registries. Methods: We searched Pubmed, MEDLINE, Embase, and Emcare using the following criteria: (1) the population is people with diabetes mellitus, including type 1, type 2, and/or gestational diabetes; and (2) the study describes a patient focused registry. Results: The search identified 346 citations, 9 of which were included. The goals of the registries included: developing referral systems, evaluating community-based interventions, collecting self-reported data, improving access to care, and fostering diabetes communities. The delivery settings were community-based, outpatient, or primary care. The methods of delivery and level of patient engagement varied between registries. Conclusions: This scoping review identified 9 diabetes registries, with varying goals, purposes and levels of patient engagement. It highlights a need for registries centered on people with diabetes to promote engagement and facilitate long-term diabetes self-management.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251314620"},"PeriodicalIF":1.6,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11748152/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013809","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0