{"title":"Patients' Experiences With Pregnancy of Unknown Location: A Qualitative Study.","authors":"Rafa Ifthikhar, Kellie E Schueler, Sheila K Mody","doi":"10.1177/23743735261458035","DOIUrl":"10.1177/23743735261458035","url":null,"abstract":"<p><p>Pregnancy of unknown location (PUL) is a common early pregnancy diagnosis, yet patient experiences are not well understood. This study explored emotions and experiences of individuals diagnosed with PUL. Participants aged 18-45 completed semi-structured interviews, and data were analyzed using thematic analysis. Amongst 30 participants, a diverse range of pregnancy types and intentions were represented. We grouped the data into four findings 1) Participants experienced anxiety and negative emotions related to diagnostic uncertainty 2) Effective coping strategies included social support, resilience, and acceptance. 3) Positive experiences were linked to empathetic, responsive providers. 4) Limited access to outpatient care led many to seek emergency care, often characterized by long waits and lack of privacy. In conclusion, patients with PUL experienced considerable anxiety and negative emotions which persisted across different pregnancy intentions and outcomes. Many considered this to be a major life event. Experiences were improved by personal coping skills and having caring providers. Due to lack of urgent outpatient appointments, many patients sought care in the emergency department which was sometimes associated with worse experiences overall.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261458035"},"PeriodicalIF":2.0,"publicationDate":"2026-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13254438/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148253887","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Facing the Side Effects: Patient-Reported Adverse Outcomes of NSAIDs for Chronic Pain Management in North India.","authors":"Kavita Bakshi, Ritu Tyagi, Garima Jaglan, Priyanka Rani, Acharya Balkrishna, Pratima Singh, Anurag Varshney","doi":"10.1177/23743735261459747","DOIUrl":"10.1177/23743735261459747","url":null,"abstract":"<p><p>Non-Steroidal Anti-inflammatory Drugs (NSAIDs) are widely used for pain and inflammation relief and are available over the counter in India. Despite common adverse drug events (ADEs), formal reporting and patient awareness remain low. This cross-sectional study in a primary care facility in Haridwar, Uttarakhand, assessed 201 patients aged 18 to 75 years using NSAIDs for at least three months for chronic pain. A structured de novo questionnaire (Cronbach's α 0.85) evaluated their knowledge, attitude, practices (KAP), risk factors, and self-reported ADEs. Results showed 47% lacked NSAID knowledge, 66% held negative attitudes, and 55% did not comply with prescriptions. Around 63% were at risk of complications, and 67% experienced ADEs. Most (68%) wanted to stop NSAIDs, while 58% favored alternative therapies for pain management. The study revealed limited awareness of NSAID risks in this region, with many experiencing ADEs and at risk of complications. The findings highlight the urgent need for educational programs and revisiting current NSAID usage guidelines to prevent ADEs and promote safer alternatives in India.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261459747"},"PeriodicalIF":2.0,"publicationDate":"2026-06-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13247291/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148220037","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Emily Jaarsma, Zane Ahlfinger, Nadia Azib, Amin Razi, John Wickman, David Ring, Niels Brinkman
{"title":"Patient-Clinician Trust Is Independent of General Interpersonal Trust Among People Seeking Musculoskeletal Specialty Care.","authors":"Emily Jaarsma, Zane Ahlfinger, Nadia Azib, Amin Razi, John Wickman, David Ring, Niels Brinkman","doi":"10.1177/23743735261458039","DOIUrl":"10.1177/23743735261458039","url":null,"abstract":"<p><p>This cross-sectional study of individuals seeking outpatient musculoskeletal specialty care investigated whether lower general interpersonal trust, measured using the validated Interpersonal Trust Scale (ITS), is associated with worse patient experience as measured with the Trust and Experience with Clinician Scale (TRECS-7). A total of 294 adult patients completed TRECS-7, ITS, as well as measures of levels of unhelpful thoughts and distress regarding sensations, social health, and personal health agency. There was no correlation between ITS and TRECS scores. K-means cluster analysis identified four statistical subgroups of patient psychosocial factors. Higher mean TRECS-7 scores were observed in clusters characterized by high personal health agency and favorable psychosocial health, while lower mean clinician-specific trust scores were seen in clusters with low agency and problematic psychosocial health-independent of levels of general interpersonal trust. In the context of musculoskeletal specialty care, difficulty establishing trust with a patient may therefore signal relatively low personal health agency, highlighting a potential target for health and care strategies aimed at enhancing experience.</p><p><strong>Level of evidence: </strong>III (Observational, Cross-sectional Study).</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261458039"},"PeriodicalIF":2.0,"publicationDate":"2026-06-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13242583/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148206315","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ye Eun G Jung, Sara E Golden, Courtney Maxcy, Aluko A Hope, Katrina Hauschildt, Thomas S Valley, Edlyn Wolwowicz, Nandini Sarma, Catherine L Hough, Kelly C Vranas
{"title":"Patients' Experiences of Care During Hospitalization for Acute Respiratory Failure During COVID-19: A Multi-Center Qualitative Study.","authors":"Ye Eun G Jung, Sara E Golden, Courtney Maxcy, Aluko A Hope, Katrina Hauschildt, Thomas S Valley, Edlyn Wolwowicz, Nandini Sarma, Catherine L Hough, Kelly C Vranas","doi":"10.1177/23743735261457756","DOIUrl":"10.1177/23743735261457756","url":null,"abstract":"<p><strong>Background: </strong>An improved understanding of patients' lived experiences can identify opportunities to advance patient-centered care, particularly during times of limited healthcare resources.</p><p><strong>Objectives: </strong>To better understand the patient experiences of hospitalization and inform the development of hospital-level strategies to improve inpatient patient-centered care.</p><p><strong>Methods: </strong>In this multicenter national qualitative study, we conducted semi-structured interviews of patients hospitalized with COVID-19. Using thematic analysis, we organized our findings around the Levels of Personhood conceptual model.</p><p><strong>Results: </strong>We interviewed 47 adults, including 26 (55%) who identified as female, 14 (30%) as Black, and 19 (40%) as Hispanic/Latino. Median age was 61 (IQR 49-66) and 21% of patients had ICU admissions. We identified three themes: (1) Preserving biologic personhood is important to maintain autonomy; (2) Prioritizing individual personhood is crucial for healing and medical decision-making; (3) Maintaining sociologic personhood is necessary for recovery. We identified several in-hospital interventions aimed at improving patient-centered care.</p><p><strong>Conclusions: </strong>We identified themes describing patients' lived experiences of hospitalization and propose a modified model of personhood that can be leveraged to study and design interventions aimed at improving patient-centered hospital care.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261457756"},"PeriodicalIF":2.0,"publicationDate":"2026-06-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13237473/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148200424","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Does Patient Experience Correlate With Overall Hospital Quality Ratings?","authors":"Samer Badr, Tarek Nahle, Shakibur Rahman, Amine Al Soueidy, Martha Stefaniak, Marisha Burden, Jean-Sebastien Rachoin","doi":"10.1177/23743735261457768","DOIUrl":"10.1177/23743735261457768","url":null,"abstract":"<p><p>Publicly reported patient experience (PE) scores and overall hospital quality and safety ratings (QSR) increasingly influence consumers' healthcare choices and reimbursement, but their correlation remains unclear. We analyzed 2,384 adult US acute care hospitals' public data from Google® (Google), the Leapfrog Group® (Leapfrog), Hospital Compare<sup>®</sup> (HC), US News and World Report<sup>®</sup> (USN), and Healthgrades<sup>®</sup> (HG). We abstracted QSR from three sources (Leapfrog, HC, and USN) and PE from four sources (HC, USN, HG, and Google). We found significant differences in PE scores across QSR categories in Leapfrog and HC (Kruskal-Wallis Test, all P < 0.001) and between USN-ranked and non-ranked institutions (Mann-Whitney U test, P < 0.001), indicating better PE in hospitals with higher QSR scores. We performed a logistic regression that showed that some but not all QSR were independently associated with PE. In conclusion, our study adds to the evidence that PE and quality often, though not always, correlate.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261457768"},"PeriodicalIF":2.0,"publicationDate":"2026-06-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13237466/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148200429","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Emma N Johnson, Lindsay E Stewart, Edward C Jauch, Jane H Brice, Mehul D Patel
{"title":"Stroke Survivor and Caregiver Perspectives on Seeking Emergency Medical Care.","authors":"Emma N Johnson, Lindsay E Stewart, Edward C Jauch, Jane H Brice, Mehul D Patel","doi":"10.1177/23743735261458028","DOIUrl":"10.1177/23743735261458028","url":null,"abstract":"<p><p>Early recognition of acute stroke and activation of emergency medical services (EMS) are critical for timely treatment and improved patient outcomes. We aimed to identify facilitators and barriers to calling 9-1-1 for acute stroke from the perspectives of stroke survivors and caregivers. We conducted 42 semi-structured interviews of stroke survivors and caregivers in North Carolina, recruited from an online platform and stroke support groups. Interviews explored recognition of stroke signs and care-seeking decisions. Interviews were analyzed thematically. Facilitators of timely 9-1-1 calls included prior stroke experience, knowledge of stroke signs, severe/rapid-onset symptoms, and the presence of bystanders. Barriers included perceiving mild symptoms, believing EMS was unnecessary, fear of overreacting, financial concerns, and distrust of healthcare providers. Early recognition and EMS activation were sometimes facilitated by contacting a healthcare professional within the patient's social network. Public stroke education needs to address common misperceptions about symptom severity, appropriate use of EMS, and ambulance costs.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261458028"},"PeriodicalIF":2.0,"publicationDate":"2026-06-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13237252/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148200418","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Resilience in the Face of Aggression: Coping Strategies of Women With Triple Negative Breast Cancer.","authors":"Josianne Scerri, Janice Agius, Michael Galea","doi":"10.1177/23743735261458022","DOIUrl":"10.1177/23743735261458022","url":null,"abstract":"<p><p>Triple-negative breast cancer (TNBC) is the most aggressive breast cancer subtype, characterized by poor prognosis, lack of targeted therapies, and significant impact on younger women. Coping with a TNBC diagnosis requires extensive strategies, yet there is a dearth of literature targeting this aspect. This study contributes through an in-depth exploration of the coping strategies of adult women diagnosed with TNBC. Eleven participants aged 26-63 years were recruited through purposive sampling. Data were gathered via semi-structured interviews and analyzed using interpretative phenomenological analysis. Five themes emerged: reaching out for support; remaining present for family; searching for meaning; regaining control through lifestyle changes and distraction. Coping strategies were identified as multidimensional and synergistic, encompassing social support that provides emotional and informational resources; spirituality that offers existential meaning and resilience; lifestyle modifications that enhance physical and psychological self-regulation; and cognitive strategies, such as information seeking and distraction, that facilitate adjustment to stressors. These results underscore the need for personalized survivorship care that addresses the well-being of TNBC patients, acknowledging the interconnected nature of their coping mechanisms.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261458022"},"PeriodicalIF":2.0,"publicationDate":"2026-06-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13234493/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148200386","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Diana W Njuguna, Ann W Muthiru, Bahaty Riogi, Omar Abdihamid, Charles Waihenya, Stephen Chege, Rukia Kibaya, Sharon Mweni, Idah Kinya, Lydia Nyabuto, Jennifer Murithi, Ibrahim Kuno, Amanda Caballero, Umar Afzal, Francis Makokha, Ewan Cobran
{"title":"\"When the Doctor Said Cancer, Everything Stopped\": A Qualitative Study of the Lived Experiences of Men With Prostate Cancer in Kenya.","authors":"Diana W Njuguna, Ann W Muthiru, Bahaty Riogi, Omar Abdihamid, Charles Waihenya, Stephen Chege, Rukia Kibaya, Sharon Mweni, Idah Kinya, Lydia Nyabuto, Jennifer Murithi, Ibrahim Kuno, Amanda Caballero, Umar Afzal, Francis Makokha, Ewan Cobran","doi":"10.1177/23743735261457761","DOIUrl":"10.1177/23743735261457761","url":null,"abstract":"<p><p>Prostate cancer is a growing public health concern in Kenya, where it is frequently diagnosed at advanced stages and managed within resource-constrained health systems. This study examined the lived experiences of men diagnosed with prostate cancer, focusing on how the illness shaped their identities, relationships, and daily lives. We conducted a qualitative study using in-depth interviews with 130 men recruited from oncology clinics across five counties (Nairobi, Garissa, Meru, Machakos, and Kisii). Audio recordings were transcribed and translated verbatim into English, where necessary, by trained research assistants. Thematic analysis was conducted following the Braun and Clarke's six-phase framework, with NVivo 12 Plus supporting data management. Five core themes emerged: 1) emotional and existential disruption at diagnosis; (2) treatment as both a source of hope and hardship; (3) geographic and financial barriers to care; (4) challenges to masculine identity and dignity; and (5) the dual role of family and community as sources of both support and stigma. Prostate cancer precipitated profound identity shifts for Kenyan men, transforming lived experiences from those of strong providers to vulnerable patients and disrupting deeply rooted social and personal roles. These findings underscore the need for holistic, culturally responsive cancer care that integrates psychosocial support from the point of diagnosis and addresses structural barriers to access. Such approaches are essential for advancing patient-centered prostate cancer care in Kenya and similar settings.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261457761"},"PeriodicalIF":2.0,"publicationDate":"2026-06-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13237245/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148200403","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mary Beth McCullough, Nick R Orton, Gail Kemp, Abby Y Yang
{"title":"Rethinking \"Chronic Pain\": Patient Perspectives on Developing an Integrated Psychology and Physical Therapy Treatment.","authors":"Mary Beth McCullough, Nick R Orton, Gail Kemp, Abby Y Yang","doi":"10.1177/23743735261458016","DOIUrl":"10.1177/23743735261458016","url":null,"abstract":"<p><p>Chronic pain affects approximately 20% of U.S. adults and is associated with substantial psychological distress and functional impairment, underscoring the need for effective, patient-centered interventions. Evidence supports the use of cognitive-behavioral therapy (CBT) and physical therapy (PT) in chronic pain management; however, there remains limited guidance regarding how to integrate these principles within a single manualized intervention. This study describes the early-stage, formative phase of a multi-stage project to adapt an existing CBT manual for chronic pain by incorporating PT principles. Two focus groups with adults living with chronic pain were co-facilitated by a psychologist and a physical therapist, and data were analyzed using thematic analysis. Participants described frustration with communication and care coordination, dissatisfaction with the label \"chronic pain,\" reliance on trial-and-error treatments, loss of identity and independence, an emotionally complex relationship with pain, and identified priorities relevant to intervention adaptation. Findings were used to inform patient-centered adaptations, including incorporating pain neuroscience education, reconsidering use of the term \"chronic pain,\" and adding modules addressing identity, advocacy, and interprofessional collaboration. These findings provide formative, patient-informed insights to guide the early-stage refinement of integrated pain interventions and inform subsequent phases of manual development and testing.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261458016"},"PeriodicalIF":2.0,"publicationDate":"2026-06-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13237452/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148200439","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sama Amirkhani-Ardeh, Aderonke Agboji, Trina Fyfe, Tammy Klassen-Ross, Shannon Freeman
{"title":"Technology and Inpatient Care: Addressing Communication Barriers and Social Isolation.","authors":"Sama Amirkhani-Ardeh, Aderonke Agboji, Trina Fyfe, Tammy Klassen-Ross, Shannon Freeman","doi":"10.1177/23743735261458025","DOIUrl":"10.1177/23743735261458025","url":null,"abstract":"<p><p>Social isolation and communication barriers are critical challenges faced by hospitalized patients, particularly those in long-stay, Alternate Level of Care (ALC), and acute care units. This scoping review of published literature aimed to answer the research question: How technologies including communication technologies are being used to address social isolation and communication barriers among hospitalized older adults, and what is known about their influence on patient experience. CINAHL, APA PsycINFO, PubMed, ScienceDirect, and Web of Science were searched for studies published from 2015-2025. Thirty-five articles met the inclusion criteria, including qualitative, quantitative, and mixed methods research. Key contributors to social isolation included restricted mobility, cognitive decline, and limited visitation and emotional wellbeing. Communication barriers stemmed from institutional routines, physical impairments, and lack of access to digital tools. These challenges are linked to negative outcomes such as depression, anxiety, cognitive deterioration, and diminished quality of life. Technology-based solutions, ranging from video calls and tablets to wearable devices demonstrate potential in bridging communication gaps and reducing social isolation. Video and phone call tools can improve communication and connection, but they do not work the same for everyone. Involving patients, caregivers, and healthcare staff in designing technology may help make these tools more useful, easier to use, and more sustainable in healthcare settings. This scoping review identifies the need for accessible and well-supported digital interventions to improve communication and well-being among older adult inpatients. Future research needs stronger study designs, bigger sample sizes, and interventions that are better matched to patients' needs.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"13 ","pages":"23743735261458025"},"PeriodicalIF":2.0,"publicationDate":"2026-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13234491/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148200452","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}