{"title":"Same-Day Access for Head and Neck Cancer: Effect on Patient Outcome and Quality-Related Benchmarks.","authors":"Allen M Chen","doi":"10.1177/23743735251314652","DOIUrl":"10.1177/23743735251314652","url":null,"abstract":"<p><p>Delays in cancer treatment are detrimental across nearly every disease site in oncology including head and neck cancer. This study aimed to evaluate the impact of same-day access for patients with newly diagnosed head and neck cancer referred for radiation therapy consultation. From March 2021 to March 2023, a total of 50 consecutive patients who completed curative treatment were matched to a control subject who did not use the same-day initiative based on age, gender, histology, performance status, primary tumor site, stage, p16 status, treatment, and smoking history. With a median follow up of 30 months, there were no differences in 3-year overall survival, progression-free survival, or local-regional control between the 2 cohorts (<i>P</i> > .05, for all). However, the same-day access initiative was associated with significant reductions in time from diagnosis to first day of radiation (49 days vs 71 days, <i>P</i> < .001); time from diagnosis to completion of diagnostic work-up (32 days vs 43 days, <i>P</i> = .01); and time from diagnosis to completion of all treatment (91 days vs 111 days, <i>P</i> < .001).The same-day access initiative was associated with significant reductions in time from diagnosis to first day of radiation (49 days vs 71 days, <i>P</i> < .001); time from diagnosis to completion of diagnostic work-up (32 days vs 43 days, <i>P</i> = .01); and time from diagnosis to completion of all treatment (91 days vs 111 days, <i>P</i> < .001). The same-day access initiative thus enhanced multidisciplinary coordination and expedited treatment for patients with head and neck cancer.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251314652"},"PeriodicalIF":1.6,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11748145/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013752","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rachel K Myers, Hillary M Kapa, Stephanie M Garcia, Laura Vega, Joel A Fein
{"title":"Development of a Brief Client Satisfaction and Quality Improvement Tool for Hospital-Based Violence Intervention Programs: Opportunities for Enhancing Client Perspectives.","authors":"Rachel K Myers, Hillary M Kapa, Stephanie M Garcia, Laura Vega, Joel A Fein","doi":"10.1177/23743735251314622","DOIUrl":"10.1177/23743735251314622","url":null,"abstract":"<p><p>Hospital-based violence intervention programs (HVIPs) are evidence-informed strategies to promote recovery among victims of violence. Limited tools exist to capture client-reported perspectives of program relevance, responsiveness, acceptability, and impact. We conducted a quality improvement project to develop an HVIP-specific tool that can be used to collect information regarding client satisfaction with services to inform ongoing and future program improvement efforts. Four former adolescent clients and 5 caregivers who received services participated in cognitive interviews to share interpretation of questionnaire items, improvements to response options, comfort responding, and missing topics. Participants demonstrated understanding of survey items and offered alternate wording to improve clarity, reduce redundancy, and clarify response options. Revisions based on participant and staff feedback resulted in a 12-item HVIP Client Satisfaction Questionnaire. Our tool provides an opportunity to collect client-reported perspectives regarding satisfaction and perceived short-term program impact to inform continued improvement activities. This tool could be utilized by HVIPs and other violence prevention programs to engage clients in quality improvement efforts in support of program values to be trauma-informed and client centered.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251314622"},"PeriodicalIF":1.6,"publicationDate":"2025-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11742158/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013729","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Gary M Rothenberg, Jordan Munson, Ezra Josephson, Jon Bloom
{"title":"Moving Beyond the Device: Key Lessons in Creating a Positive Patient Experience for a Remote Foot Health Program.","authors":"Gary M Rothenberg, Jordan Munson, Ezra Josephson, Jon Bloom","doi":"10.1177/23743735251314646","DOIUrl":"10.1177/23743735251314646","url":null,"abstract":"<p><p>The burden of diabetic foot ulcers is largely underappreciated, even by the healthcare community. Living with advanced, complex chronic diseases can be challenging for the patient and often requires additional time and resource utilization by the provider. The use of novel technology within medicine should be focused on fostering excellent experiences, thereby promoting satisfaction and ultimately, quality care. Using a remote foot temperature monitoring program, we have learned that 3 strategies support positive experience including: design for ease of use, patient and provider support, and continuous process improvement. Further key points include: (1) foot ulcers and amputations are a significant source of morbidity, mortality, and decreased quality of life for people living with diabetes; (2) remote patient monitoring innovations in technology can help connect patients, healthcare providers, and data; (3) technology should serve as an extension of the patient-provider trust relationship and help improve systemic efficiency; and (4) future considerations for successful patient experiences must also address healthcare disparities and promote health equity.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251314646"},"PeriodicalIF":1.6,"publicationDate":"2025-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11742145/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013736","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Quang Loc Duyen Vo, Minh Trung Nguyen, Thi Ngoc Yen Dang, Thi Hong Dung Quach, Huynh Kim Ngoc Truong, Rebecca Susan Dewey, Thi Thu Tran, Van De Tran
{"title":"Patient Experience Regarding Medication-Related Information Received in a Rural Private Polyclinic Setting in Vietnam.","authors":"Quang Loc Duyen Vo, Minh Trung Nguyen, Thi Ngoc Yen Dang, Thi Hong Dung Quach, Huynh Kim Ngoc Truong, Rebecca Susan Dewey, Thi Thu Tran, Van De Tran","doi":"10.1177/23743735241310260","DOIUrl":"10.1177/23743735241310260","url":null,"abstract":"<p><p>Inadequate provision of medication-related information can lead to nonadherence to treatment. This study aims to investigate patient satisfaction regarding medication-related information provided by healthcare professionals and to identify factors associated with patient experience regarding information. A cross-sectional descriptive study was conducted in October 2023 among 400 patients at a rural private polyclinic in Ben Tre, Vietnam by using a self-administered questionnaire. The key findings of this study showed that over half of the participants expressed overall satisfaction with the information provided (52%), with 57.5% satisfaction on the action and use subscale, and 56.8% satisfaction on the potential problems subscale. Patients aged 41 to 60 (<i>P</i> = .018), those older than 60 (<i>P</i> = .001), those with more than 2 dependents (<i>P</i> = .038), and those receiving information only from nurses (<i>P</i> = .009) were more likely to be satisfied with the information they received. Patient satisfaction with medication-related information received was low. Healthcare professionals should ensure timely and comprehensive communication about medications, particularly regarding potential side effects. While this study primarily focused on satisfaction, the closely related concept of patient experience warrants further exploration in future studies with a more deliberate focus.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735241310260"},"PeriodicalIF":1.6,"publicationDate":"2025-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11748076/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013679","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Recruiting and Engaging Virtual Patient and Family Advisors for Rapid, Robust Feedback to Support a Large, Geographically Dispersed Clinical Practice.","authors":"Kevin Phipps","doi":"10.1177/23743735241310092","DOIUrl":"https://doi.org/10.1177/23743735241310092","url":null,"abstract":"<p><p>A large clinical practice group sought to create a unique Patient and Family Advisory Council (PFAC) recruitment and engagement model to support shifts in advisor expectations and support a medical group spread out across a large geographic area by providing rapid, custom patient and family feedback for quality, safety, and experience improvement. Patients are actively recruited through an online, automated application process linked to our patient surveys. Within 6 months of automated recruitment, the PFAC grew to over 200 members representing all clinical specialties and a variety of patient demographics, skills, and experiences. Rapid patient feedback through PFACs has elevated the voice of patients in dozens of projects and within specialties that have not utilized patient feedback or engaged a traditional PFAC in the past. Patients who may not have participated in a traditional PFAC have shared their perspectives on a variety of topics not captured in traditional patient surveys. Underrepresented patient populations are engaging in virtual PFAC opportunities much more than traditional PFACs.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735241310092"},"PeriodicalIF":1.6,"publicationDate":"2025-01-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11736738/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013704","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Caitlin A LaGrotte, Caitlin Baldwin, Krystal Hunter, Emily Damuth, Nancy Loperfido, Tatheer Moosavi, Pearl Parker, Nitin Puri
{"title":"Patient and Family Experience: Targets for Improvements in Care and Communication in the ICU.","authors":"Caitlin A LaGrotte, Caitlin Baldwin, Krystal Hunter, Emily Damuth, Nancy Loperfido, Tatheer Moosavi, Pearl Parker, Nitin Puri","doi":"10.1177/23743735251314650","DOIUrl":"10.1177/23743735251314650","url":null,"abstract":"<p><p>This process improvement project sought to further explore the experience of patients and family members within an intensive care unit (ICU) hospital setting to develop specific interventions that can be executed to provide better patient-centered outcome. We surveyed 103 family members using the satisfaction with care subscale of Family Satisfaction with the ICU survey (FS-ICU) (validated ICU experience survey). 103 patients also completed FS-ICU subscale with a modification to make it applicable to patients. Additional questions explored their interest in supportive services and factors contributing to distress with the goal of understanding the gaps in multidisciplinary care and supportive services. Overall, the findings of this project emphasize the importance of (1) understanding patients' experience and satisfaction with care, in addition to families', (2) gathering data with measurement tools that is specific enough to the care environment allowing for unique feedback and areas for improvement, and (3) identifying psychological needs and faith-based support to intervene on challenging experiences.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735251314650"},"PeriodicalIF":1.6,"publicationDate":"2025-01-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11736736/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013738","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Building Narratives of Effectiveness and Customer Orientation at the Interface of Different Actors in the Lifestyle Guidance Service Process.","authors":"Heli Tiusanen, Sanna Ryynänen, Marjo Suhonen","doi":"10.1177/23743735241312802","DOIUrl":"10.1177/23743735241312802","url":null,"abstract":"<p><p>Co-production is expected to lead to more efficient and effective services. In response, this study aims to describe and understand the construction of effectiveness and the manifestation of customer orientation among the actors involved in the service process of lifestyle guidance. A qualitative narrative study was designed, and data were collected through the thematic interviews (n = 9) with the management, employees and customers of a Finnish public healthcare and social welfare organisation. The main narratives were as follows: (1) Shared value creation narrative, (2) Organisational strategy and customer meeting narrative, (3) Service co-production narrative and (4) Effective service process narrative. Based on the context, input, process and product (CIPP) model, they construct a plot narrative about the customer's need for individual guidance and the goal of transferring responsibility to the organisation. They create cross-pressure on the service process of lifestyle guidance. Achieving the effectiveness of lifestyle guidance requires the service provider to ensure the service is implemented more flexibly between general, self-directed and individually supportive guidance.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735241312802"},"PeriodicalIF":1.6,"publicationDate":"2025-01-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11736741/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013720","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Yuta Koto, Wakana Yamashita, Kumiko Kitamura, Norio Sakai
{"title":"Experiences of Patients and Families Living with Krabbe Disease.","authors":"Yuta Koto, Wakana Yamashita, Kumiko Kitamura, Norio Sakai","doi":"10.1177/23743735241309470","DOIUrl":"10.1177/23743735241309470","url":null,"abstract":"<p><p>The challenges faced by patients with Krabbe disease remain unelucidated. This study aimed to identify these challenges and facilitate the development of methods for assessing the quality of life. This qualitative descriptive study used in-person or online semistructured interviews from March to December 2022 using a qualitative content analysis approach. Data were collected from one patient each for the late infantile, juvenile, and adult types of Krabbe disease. In total, 249 codes were extracted from the verbatim transcripts and integrated into 40 subcategories and eight categories. The categories were integrated into three themes: the impact of symptoms on daily life, challenges for healthcare systems, and challenges faced by family members. Patients experienced physical symptoms, social life challenges, and medical care difficulties. Additionally, families felt burdened caring for these patients. In conclusion, support systems for patients and their families during treatment and in their living environments should be developed to aid in managing these challenges. Moreover, a comprehensive scale that accurately reflects the social challenges faced by these patients and their families is needed.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735241309470"},"PeriodicalIF":1.6,"publicationDate":"2025-01-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11736735/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143013732","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Investigating Inpatient Acceptance of a Unique Telemedicine Service Trialled in the Acute Ward in Rural Australia.","authors":"Carol Joy Reid, Catherine Church","doi":"10.1177/23743735241311716","DOIUrl":"https://doi.org/10.1177/23743735241311716","url":null,"abstract":"<p><p>This study investigated inpatient acceptance of a unique telemedicine clinical service piloted from December 2022 to June 2025 in 3 rural acute wards in Victoria, Australia. The use of virtual care was complementary to the visiting general practitioner (GP) model common in rural hospitals. The qualitative study employed 3 researcher-designed questions: Did you feel safe using the virtual healthcare doctor?; Did you feel the care you experienced was as it should be? And; If you were offered virtual care again, would you use it? Participants (<i>n</i> = 38) were predominantly over 65 years (95%). Findings describe safe care as being able to understand the virtual doctor, be listened to, and ask questions. Participants affirmed that the care experienced was helpful due to prompt in-hospital clinical interventions organized by the virtual weekend coverage. Most were first-time users of virtual care and recognized that rural doctors need a break. Barriers to acceptance of the service were concerns about the loss of in-person visits with their local doctor and that virtual care could replace local GPs.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735241311716"},"PeriodicalIF":1.6,"publicationDate":"2025-01-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11705345/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142956465","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Improving Patient Experience by Understanding Barriers and Incentives to Telehealth Adoption Among Physicians at a Large Academic Medical Center.","authors":"Alessandro Luna, Taylor B Sewell","doi":"10.1177/23743735241310961","DOIUrl":"https://doi.org/10.1177/23743735241310961","url":null,"abstract":"<p><p>Patients benefit from and appreciate the option to use telehealth with their providers. Such patient expectations have therefore led to new questions about the factors that affect providers' willingness to adopt telehealth as part of their clinical practice. We interviewed 19 physicians across four specialties with differential rates of telehealth use (Psychiatry, Anesthesiology, Physical Medicine & Rehabilitation [PM&R], and Ophthalmology) to discern the barriers and incentives to telehealth adoption among physicians. We then conducted a qualitative analysis of interview transcripts, following precepts of Directed Content Analysis. Conclusions drawn from matrix building and thematic analysis were verified with negative evidence searches and if-then tests. Robust investigations for outliers and rival explanations in responses were used to disconfirm findings. The results of this analysis revealed distinct barriers and incentives to telehealth adoption for the four specialties. Physicians in psychiatry and anesthesiology are refining the strengths and applications of telehealth based on the characteristic needs of their specialties. Physicians in PM&R and ophthalmology face additional barriers to acquiring physical exam data, leading them to use telehealth as a supplement to, rather than as a replacement for, core functions of patient care. The insights stemming from these barriers and incentives can be used to build thoughtful telehealth applications for physicians, allowing them to provide effective clinical care while also improving the patient experience.</p>","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"12 ","pages":"23743735241310961"},"PeriodicalIF":1.6,"publicationDate":"2025-01-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11705322/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142956395","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}