Journal of Patient Experience最新文献_第5页

Does an "EZ" Survey Improve the Data Quality of the Consumer Assessment of Healthcare Providers and Systems (CAHPS^®) Clinician and Group Survey 3.1? EZ "调查是否能提高医疗保健提供者及系统消费者评估 (CAHPS®) 临床医师和团体调查 3.1 的数据质量？

IF 1.6

Journal of Patient Experience Pub Date : 2024-11-14 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241297622

Ron D Hays, Julie A Brown, Charleen Mikail, Denise D Quigley

{"title":"Does an \"EZ\" Survey Improve the Data Quality of the Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Clinician and Group Survey 3.1?","authors":"Ron D Hays, Julie A Brown, Charleen Mikail, Denise D Quigley","doi":"10.1177/23743735241297622","DOIUrl":"10.1177/23743735241297622","url":null,"abstract":"Completing self-administered patient experience surveys is challenging for many patients. We randomized adult patients receiving care from an urban safety net provider to complete the Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Clinician and Group Survey 3.1 (CG-CAHPS 3.1), or an \"EZ\" survey created using plain language principles. We compared response rates, item missingness, item-scale correlations, and reliability of patient experience scores based on 264 completed surveys (64% female, 66% Hispanic, 33% high school education or less). The CG-CAHPS 3.1 survey response rate was higher (20% vs 16%), and failure to follow skip instructions was more common for the EZ survey. Internal consistency reliability for multi-item scales was similar, but provider-level reliability was higher for the EZ than for the CG-CAHPS 3.1 survey measures. Cognitive interviews with patients are needed to assess whether the wording of the EZ survey is responsible for the lower response rates and more skip pattern errors. Future studies are also required to provide additional information about the psychometric properties of the CG-CAHPS 3.1 and EZ surveys.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241297622"},"PeriodicalIF":1.6,"publicationDate":"2024-11-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11565615/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142649261","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

An Adaptive Pacing Intervention for Adults Living With Long COVID: A Narrative Study of Patient Experiences of Using the PaceMe app. 针对长期慢性阻塞性肺病成人的自适应起搏干预：PaceMe 应用程序患者使用体验的叙述性研究。

IF 1.6

Journal of Patient Experience Pub Date : 2024-11-10 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241272158

Rachel Meach, David Carless, Nilihan E M Sanal-Hayes, Marie Mclaughlin, Lawrence D Hayes, Jacqueline L Mair, Jane Ormerod, Natalie Hilliard, Joanne Ingram, Nicholas F Sculthorpe

{"title":"An Adaptive Pacing Intervention for Adults Living With Long COVID: A Narrative Study of Patient Experiences of Using the PaceMe app.","authors":"Rachel Meach, David Carless, Nilihan E M Sanal-Hayes, Marie Mclaughlin, Lawrence D Hayes, Jacqueline L Mair, Jane Ormerod, Natalie Hilliard, Joanne Ingram, Nicholas F Sculthorpe","doi":"10.1177/23743735241272158","DOIUrl":"https://doi.org/10.1177/23743735241272158","url":null,"abstract":"Adaptive pacing (AP) is a self-management technique which seeks to balance energy and rest in individuals with chronic health conditions. Adaptive pacing can help people with myalgic encephalomyelitis/chronic fatigue syndrome learn how to manage their energy expenditure thereby reducing their risk of post-exertional malaise (PEM) and other symptoms. Given some symptom similarity, AP also has rehabilitation potential for people experiencing disability from long COVID. The purpose of this study was to explore patient experiences of an AP intervention (the \"PaceMe\" app) to determine its value for individuals experiencing long COVID. Twenty-five participants each took part in two narrative interviews (at intervention start point and at 3-6 months). Data were analyzed using narrative thematic analysis. Our analysis identified 4 themes relating to key benefits of the PaceMe app: (1) PEM management, (2) Support, (3) Validation, and (4) Control and Agency. By illuminating the critical facts and centring patient voices, these findings contribute a better understanding of the experiences and needs of those with long COVID and highlight the value of a digital health intervention as a vital component of rehabilitation.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241272158"},"PeriodicalIF":1.6,"publicationDate":"2024-11-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11552046/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142628088","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient Perspectives of Integrated Behavioral Health in Primary Care: A Mixed Methods Analysis. 患者对初级保健中综合行为健康的看法：混合方法分析。

IF 1.6

Journal of Patient Experience Pub Date : 2024-11-03 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241293877

Dennis Gurfinkel, Vanessa Owen, Carlee Kreisel, Patrick Hosokawa, Samantha Kluger, Courtney Legge, Jacqueline Calderone, Alisha Eskew, Maryann Waugh, Jay H Shore, Shandra M Brown Levey, Jodi Summers Holtrop

{"title":"Patient Perspectives of Integrated Behavioral Health in Primary Care: A Mixed Methods Analysis.","authors":"Dennis Gurfinkel, Vanessa Owen, Carlee Kreisel, Patrick Hosokawa, Samantha Kluger, Courtney Legge, Jacqueline Calderone, Alisha Eskew, Maryann Waugh, Jay H Shore, Shandra M Brown Levey, Jodi Summers Holtrop","doi":"10.1177/23743735241293877","DOIUrl":"10.1177/23743735241293877","url":null,"abstract":"Integrated and collaborative care models, in which mental/behavioral health providers work closely with primary care providers within a primary care setting, help support the quadruple aim of improved health outcomes, patient satisfaction, provider experience, and lower cost. In this paper, we describe patients' general perspectives of integrated care and their unique experiences accessing this care within one health system. Qualitative (interviews with patients) and quantitative (surveys with patients) methods were used to collect and analyze these results separately and together. The results highlight important features to the provision of integrated care from the perspective of patients using integrated care. They include the importance and experience of access, whole-person care and a team-based approach, the availability and use of telehealth when appropriate, having high quality mental health providers, scheduling and service usage suggestions, and means to connect with longer-term services for ongoing mental health care when needed.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241293877"},"PeriodicalIF":1.6,"publicationDate":"2024-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11533315/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142576994","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Behind the Scenes of Isotretinoin: My Journey and Recommendations. 异维A酸的幕后故事：我的旅程和建议。

IF 1.6

Journal of Patient Experience Pub Date : 2024-11-03 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241297488

Nupur Singh

{"title":"Behind the Scenes of Isotretinoin: My Journey and Recommendations.","authors":"Nupur Singh","doi":"10.1177/23743735241297488","DOIUrl":"10.1177/23743735241297488","url":null,"abstract":"Isotretinoin is a form of Vitamin A used in treatment of severe, refractory acne vulgaris with treatment duration ranging anywhere from 3 to 12 months. The side effects of isotretinoin require monthly dermatologist visits and utilize a risk-management program called iPLEDGE REMS run by the Federal Drug Administration (FDA), which verifies that patients are not pregnant while starting or while taking isotretinoin. The physical and mental side effects experienced on isotretinoin are unique to each patient and can be severely debilitating. My own experience taking isotretinoin for 8 months was filled with multiple unexpected side effects that affected both my physical and mental health. As a result, I strongly believe dermatologists should help patients in analyzing the risk versus benefit profile of isotretinoin, present all other options, and ultimately emphasize patient-provider shared-decision making. Furthermore, at monthly visits dermatologists should be required to implement open dialogue regarding side effects to avoid patient feelings of fear and shame. Additionally, the iPLEDGE REMS system should consider creating a systematic documentation of symptoms to help normalize experiences and guide treatment plans.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241297488"},"PeriodicalIF":1.6,"publicationDate":"2024-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11533305/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142576991","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient-Clinician Communication During Cardiology Telemedicine Consultations: A Feasibility Study. 心脏病远程医疗会诊期间患者与医生之间的交流：可行性研究。

IF 1.6

Journal of Patient Experience Pub Date : 2024-11-03 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241293618

Timethia J Bonner, Bryant Noss, Sharonne N Hayes, Katie Ennis, David O Warner, Skye Buckner, Adam J Milam

{"title":"Patient-Clinician Communication During Cardiology Telemedicine Consultations: A Feasibility Study.","authors":"Timethia J Bonner, Bryant Noss, Sharonne N Hayes, Katie Ennis, David O Warner, Skye Buckner, Adam J Milam","doi":"10.1177/23743735241293618","DOIUrl":"10.1177/23743735241293618","url":null,"abstract":"While studies have evaluated the utility of telehealth in replacing in-person clinical encounters, there is a dearth of literature examining the quality of patient-physician communication with telehealth encounters. Accordingly, this study assessed the feasibility of using virtual cardiology clinical encounters to examine patient-physician interaction, communication, and perceptions of the clinical encounter. Telemedicine cardiology clinical encounters were audio- and video-recorded following the encounter, patients, and cardiologists completed an electronic survey to assess perceptions of the encounter. Qualitative analysis of the communication and statistical analysis of the survey data was conducted, providing descriptive data. The study included 11 patient-physician dyads; all patients were non-Hispanic White. Cardiologists were more racially and ethnically diverse (63% Asian). Most patients agreed telemedicine was comparable to in-person encounters (85.7%), with all cardiologists reporting that patients appeared satisfied with the encounter. We utilized an assessment tool to examine patient-physician communication in the recorded virtual encounters. This study suggests examining patient-physician communication using virtual clinical encounters is feasible, although there are barriers that need addressing for larger studies.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241293618"},"PeriodicalIF":1.6,"publicationDate":"2024-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11533301/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142576997","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Association Between Patient-Reported Enablement and Customer Satisfaction in 140 055 Primary Care Patients After Doctor Appointment. 140 055 名初级保健患者就诊后的患者报告能力与客户满意度之间的关系。

IF 1.6

Journal of Patient Experience Pub Date : 2024-10-30 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241293631

Antti-Jussi Ämmälä, Simo Taimela

{"title":"Association Between Patient-Reported Enablement and Customer Satisfaction in 140 055 Primary Care Patients After Doctor Appointment.","authors":"Antti-Jussi Ämmälä, Simo Taimela","doi":"10.1177/23743735241293631","DOIUrl":"10.1177/23743735241293631","url":null,"abstract":"Customer satisfaction and enablement are key facets of healthcare quality. We examined their interplay within a large sample of predominantly working-age primary care patients. Our dataset encompasses 140 055 customer satisfaction reports, with concurrently gathered measures of patient enablement, delivered after doctor appointments. We used the customer satisfaction (CSAT) score and the patient enablement instrument (PEI). Additionally, we assessed 3 dimensions of customer satisfaction in conjunction with the CSAT score and calculated a sum score. Age and gender were included as covariates. Our findings from linear regression analyses are twofold: (1) customer satisfaction and enablement are interconnected, yet they maintain a degree of distinctiveness, as indicated by a beta coefficient of 0.45 on a 5-point scale, and (2) within the customer experience on a dichotomous scale, negative experiences exert a more substantial impact (betas between -0.77 and -0.97) on enablement than positive experiences (betas between 0.24 and 0.40). In addition, a dose-response relationship was observed between the sum of customer experiences and PEI. Ensuring that patients' voices are acknowledged, their queries are addressed, and they have comprehensible guidance regarding the progression of their treatment, are fundamental aspects of interactions with patients.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241293631"},"PeriodicalIF":1.6,"publicationDate":"2024-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11528676/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142568424","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Five-Dimension Patient Experience Model and Its Applications in Healthcare Using the Example of Spinal Cord Injury and COPD. 以脊髓损伤和慢性阻塞性肺病为例，介绍五维患者体验模型及其在医疗保健领域的应用。

IF 1.6

Journal of Patient Experience Pub Date : 2024-10-30 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241293965

Carlos Bezos Daleske

引用次数: 0

The Wounded Healer in Shared Traumatic Reality After the Seventh of October Attack: "That the Personal World and the Professional World are Shattered". 十月七日袭击事件后共同创伤现实中的伤愈者："个人世界和职业世界都已破碎"。

IF 1.6

Journal of Patient Experience Pub Date : 2024-10-29 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241292989

Liraz Cohen-Biton

{"title":"The Wounded Healer in Shared Traumatic Reality After the Seventh of October Attack: \"That the Personal World and the Professional World are Shattered\".","authors":"Liraz Cohen-Biton","doi":"10.1177/23743735241292989","DOIUrl":"10.1177/23743735241292989","url":null,"abstract":"In Shared Traumatic Reality (STR), therapists and patients face similar threats, leading to increased stress and blurred personal-professional boundaries for healthcare providers. It impacts everyone in the community, as witnessed in the southern region of Israel. The challenge for caregivers aiding displaced individuals was unique-providing therapy while caring for their children. STR poses challenges but also growth opportunities. Experiencing trauma firsthand offers insights, fostering professional and personal development. Despite the difficulties of handling loss and traumatic stories, this reality demands new coping mechanisms for healthcare providers to grow through adversity. Community involvement aids professional empowerment amidst STR, reinforcing therapists' identification with patients. This new reality reveals remarkable resilience among those who endured tragedies, offering lessons in vicarious resilience. The concept of the wounded healer (WH) reflects how personal trauma can enhance therapeutic abilities by profoundly empathizing with patients' pain. Navigating personal hardships is crucial to avoid projecting onto patients during therapy. The WH's identification with patient trauma strengthens the therapeutic bond, leading to better outcomes.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241292989"},"PeriodicalIF":1.6,"publicationDate":"2024-10-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11528677/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142568719","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Gaining Insights Into Patients' Experiences of Remote Diagnostic Screening for Chronic Kidney Disease in Patients With Diabetes. 深入了解患者对糖尿病患者慢性肾病远程诊断筛查的体验。

IF 1.6

Journal of Patient Experience Pub Date : 2024-10-29 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241293624

Carl Deaney, Danielle Reesby

{"title":"Gaining Insights Into Patients' Experiences of Remote Diagnostic Screening for Chronic Kidney Disease in Patients With Diabetes.","authors":"Carl Deaney, Danielle Reesby","doi":"10.1177/23743735241293624","DOIUrl":"10.1177/23743735241293624","url":null,"abstract":"Introduction: Chronic kidney disease (CKD) affects a significant portion of the UK population and is a pressing public health issue. Current screening methods have a low patient uptake rate. This retrospective study explores the patient experience of remote diagnostic screening. Objective: This article retrospectively analyses patient-reported experiences, focusing on at-home urinary screening to detect CKD. Intervention: Our primary care network commissioned a remote diagnostic service for adult patients with diabetes (Types I and II) who had not taken urinary albumin: creatinine ratio test within 12 months. Patients were provided with an at-home kit and guided by a smartphone application. Qualitative clinical data was collected during screening, with a questionnaire capturing patients' experiences. Impact: A total of 60% of eligible patients performed testing, and 35% were detected to have abnormal results. A total of 80% of patients preferred remote screening. Conclusions: This study provides evidence for remote CKD screening and opens avenues for innovation. Most patients reported a positive experience, underscoring the potential of this approach to improve health outcomes, especially in higher-risk populations.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241293624"},"PeriodicalIF":1.6,"publicationDate":"2024-10-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11523146/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142548221","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Prehospital Patient and Family Aftercare Service in Helicopter Emergency Medical Services: A Patient's Perspective. 直升机紧急医疗服务中的院前病人和家属善后服务：病人的视角。

IF 1.6

Journal of Patient Experience Pub Date : 2024-10-29 eCollection Date: 2024-01-01 DOI: 10.1177/23743735241293403

Chris Rolfe, Stuart Plumbley, Sarita Taneja, Joanne Griggs

{"title":"Prehospital Patient and Family Aftercare Service in Helicopter Emergency Medical Services: A Patient's Perspective.","authors":"Chris Rolfe, Stuart Plumbley, Sarita Taneja, Joanne Griggs","doi":"10.1177/23743735241293403","DOIUrl":"10.1177/23743735241293403","url":null,"abstract":"Over the past decade the medical profession has witnessed patient and family aftercare becoming increasingly rooted within a patient-centric approach. Furthermore, there has been strong consensus within the Helicopter Emergency Medical Service (HEMS) sector for a Patient and Family Aftercare Service (PFAS) at Air Ambulance Charity Kent Surrey Sussex to further support an individual's experience from their core primary retrieval, through to the rehabilitation experience. This patient narrative highlights key interconnections between HEMS and an aftercare team that are important to the patient experience. Firstly, the clinical team provide prompt and expert medical intervention, which is crucial in managing critical injury and illness at the scene of an injury. Secondly, the narrative explores the emotional support provided by the healthcare professionals. Thirdly, the role of the support network, comprising of family, friends, and the wider community is discussed as integral for both physical and emotional rehabilitation post-incident. Furthermore, the narrative highlights that ongoing engagement from PFAS is important to continued rehabilitation and enhanced quality of life.","PeriodicalId":45073,"journal":{"name":"Journal of Patient Experience","volume":"11 ","pages":"23743735241293403"},"PeriodicalIF":1.6,"publicationDate":"2024-10-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11528659/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142568573","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0