S. Bashirian, A. Soltanian, Mahdieh Seyedi, S. Khazaei, E. Jenabi, K. Razjouyan, Hadi Zarafshan, M. Barati, M. Afshari
{"title":"The psychometric properties of the Iranian version of Autism Diagnostic Interview-Revised (ADI-R) in children with autism spectrum disorder","authors":"S. Bashirian, A. Soltanian, Mahdieh Seyedi, S. Khazaei, E. Jenabi, K. Razjouyan, Hadi Zarafshan, M. Barati, M. Afshari","doi":"10.1108/aia-01-2021-0003","DOIUrl":"https://doi.org/10.1108/aia-01-2021-0003","url":null,"abstract":"\u0000Purpose\u0000The purpose of this paper is to assess the validity of the Autism Diagnostic Interview-Revised (ADI-R) in an Iranian population to determine its efficacy in identifying children with autism spectrum disorder (ASD) who parents have Persian-speaking parents.\u0000\u0000\u0000Design/methodology/approach\u0000A case–control study was performed in March until July 2020 in Hamadan city, Iran. The case group was children were examined by the clinicians used a coding scheme based on the DSM-IV criteria for ASD. The control group was all children in the family, including healthy siblings, were asked to participate in the study. The reliability, content and face validity were performed to assess the psychometric properties of the tool. Confirmatory factor analysis (CFA) was performed to evaluate the four-dimensional structure of the tool (Scores A, B, C and D). Statistical analysis was performed using AMOS for SPSS 21, and the statistical significant level was less than 0.05.\u0000\u0000\u0000Findings\u0000The quantitative content validity analysis revealed that the mean of content validity ratio (CVR) and content validity index (CVI) for all domains was 0.94 and 0.91, respectively. For CFA, four domains A, B, C and D were used and demonstrated a good fit (CFI = 0.92 and RMSEA = 0.06). The sensitivity, specificity, positive predictive value (PPV) and negative predictive value (NPV) in domains A, B (verbal), C and D were 100%. For domain B (non-verbal), the sensitivity, specificity, PPV and NPV were 86.7%, 100%, 100% and 88.2%, respectively.\u0000\u0000\u0000Research limitations/implications\u0000This study showed that ADI-R has sufficient ability to discriminate between children with ASD and those with no psychiatric diagnosis, and it is a reliable tool in Iran. The sensitivity and specificity for correctly diagnosing ASD was high, regardless of the age and cognitive level of the examiner.\u0000\u0000\u0000Originality/value\u0000To the best of the authors’ knowledge, this is the first paper on psychometric properties of ADI-R in children with ASD.\u0000","PeriodicalId":43640,"journal":{"name":"Advances in Autism","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2021-06-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41833512","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ashleigh Hillier, Nataliya Poto, David Schena, Abigail Buckingham, A. Frye
{"title":"An individualized life-skills coaching program for adults with autism","authors":"Ashleigh Hillier, Nataliya Poto, David Schena, Abigail Buckingham, A. Frye","doi":"10.1108/AIA-08-2020-0051","DOIUrl":"https://doi.org/10.1108/AIA-08-2020-0051","url":null,"abstract":"\u0000Purpose\u0000The lack of services for adults on the autism spectrum is of growing concern. Given the huge variation in how autism impacts people, individualized approaches might be particularly effective. The purpose of this paper is to present an overview of a community-based life-skills coaching program for adults with autism “LifeMAP.”\u0000\u0000\u0000Design/methodology/approach\u0000LifeMAP is structured around individualized meetings between a client and their coach where they identify, prioritize and make progress toward self-selected goals. LifeMAP was established in 2008 and has since served around 2,600 clients. This paper provides an outline of the LifeMAP program, how sessions with clients are structured, goals that adults with autism prioritize and preliminary data on progress toward goal attainment.\u0000\u0000\u0000Findings\u0000Findings indicated that the LifeMAP program model was effective in supporting progress toward goals, increasing confidence toward goals and reducing anxiety.\u0000\u0000\u0000Originality/value\u0000Given the scope of the LifeMAP program, this overview is unique in providing pertinent information to others looking for effective and authentic strategies to support autistic adults and those transitioning from high school. This study provides a realistic perspective on how programs are applied in community-based settings, outside a structured, formal lab setting. It is concluded that individualized intervention approaches might be key to successful outcomes for adults with autism.\u0000","PeriodicalId":43640,"journal":{"name":"Advances in Autism","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2021-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42497033","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ivana Vasilevska Petrovska, A. Giannakopoulou, Vassiliki Tsecoura, A. Winstanley, R. Miletto, Georgeta Georgeta Constanta Rosca, Biserka Ivanova, Vasiliki Kaisa, Vladimir Trajkovski
{"title":"Parental perspectives on support needs and availability of autism services in South and South-Eastern Europe","authors":"Ivana Vasilevska Petrovska, A. Giannakopoulou, Vassiliki Tsecoura, A. Winstanley, R. Miletto, Georgeta Georgeta Constanta Rosca, Biserka Ivanova, Vasiliki Kaisa, Vladimir Trajkovski","doi":"10.1108/AIA-11-2020-0066","DOIUrl":"https://doi.org/10.1108/AIA-11-2020-0066","url":null,"abstract":"Purpose Amid the expanding demand on the autism service delivery system, little knowledge is accumulated regarding access and availability of support and services in the region of Southern and South-Eastern Europe – critical for improvement of individual outcomes, as well as family quality of life. The purpose of this paper is to explore how service delivery systems are responding to the specific needs of autistic individuals with autism, as perceived by parents. Design/methodology/approach A qualitative exploratory descriptive method was used. Thematic analysis was used as a pragmatic method to report on the experiences of parents (92% mothers, n = 55) of children, youth and young autistic adults (76% male) across six South and South-Eastern European counties that participated in a survey involving a combination of qualitative and quantitative data collection. Findings Thematic analysis revealed three broad themes: challenging pathways to service utilization, insufficient service options and providers’ competences and lack of continuous and meaningful support across life span. Originality/value The findings from this study add to the small body of literature specific to South and South-Eastern Europe, by exposing problems related to meeting the needs of autistic children and youth and potential ways to strengthen services, as perceived by parents. The findings have potential policy ramifications for the region in which the research was conducted.","PeriodicalId":43640,"journal":{"name":"Advances in Autism","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"62019382","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Editorial","authors":"E. Chaplin, J. McCarthy, S. Hardy","doi":"10.1108/aia-10-2020-058","DOIUrl":"https://doi.org/10.1108/aia-10-2020-058","url":null,"abstract":"","PeriodicalId":43640,"journal":{"name":"Advances in Autism","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2020-12-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42475584","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
H. Pesonen, Tiina Itkonen, M. Saha, A. Nordahl-Hansen
{"title":"Framing autism in newspaper media: an example from Finland","authors":"H. Pesonen, Tiina Itkonen, M. Saha, A. Nordahl-Hansen","doi":"10.1108/aia-01-2020-0003","DOIUrl":"https://doi.org/10.1108/aia-01-2020-0003","url":null,"abstract":"Purpose\u0000Media play a significant role in the process of raising public awareness about autism spectrum disorder (ASD). Despite an increase in ASD media coverage, there is scarcity of research that examines how the actual frame is constructed and how the news stories are narrated. This study aims to examine the extent to which Finnish print media papers extend medical and societal narration of ASD to other issue domains and the extent to which newspaper stories use a positive, negative or neutral narrative.\u0000\u0000\u0000Design/methodology/approach\u0000The authors analyzed 210 full newspaper reports from the largest daily appearing newspaper by circulation in Finland from 1990 to 2016. The authors used the newspaper’s electronic database to conduct a systematic papers search. The authors then used coding scheme about news story framing, which was followed by a detailed content analysis of the papers.\u0000\u0000\u0000Findings\u0000Approximately two-thirds of the papers consisted of a straightforward informational or clinical lens to educate the public (n = 110). This is in line with international studies. However, the authors’ analysis revealed four additional themes of medical and societal ASD reporting.\u0000\u0000\u0000Social implications\u0000The study increases understanding about how the media can shape the public perception of ASD, which in turn might influence how autistic individuals are accepted in the society, as well as how they feel that they belong.\u0000\u0000\u0000Originality/value\u0000While ASD itself is at the center of neutral news reporting, this study’s results imply how to construct ASD from new paradigms. Linking ASD to a culture, and thus extending it to the more commonly accepted notion of deafness as a culture, might shape the public’s perceptions about ASD.","PeriodicalId":43640,"journal":{"name":"Advances in Autism","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2020-10-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1108/aia-01-2020-0003","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47446729","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
H. Pesonen, M. Waltz, E. Syurina, M. Fabri, Sarah Krukels, Mona Algner, Bertrand Monthubert, Timo Lorenz
{"title":"Stakeholders’ views on effective employment support strategies for autistic university students and graduates entering the world of work","authors":"H. Pesonen, M. Waltz, E. Syurina, M. Fabri, Sarah Krukels, Mona Algner, Bertrand Monthubert, Timo Lorenz","doi":"10.1108/AIA-10-2019-0035","DOIUrl":"https://doi.org/10.1108/AIA-10-2019-0035","url":null,"abstract":"\u0000Purpose\u0000This paper aims to examine effective support strategies for facilitating the employment of autistic students and graduates by answering the following research question: What constitutes effective employment support for autistic students and graduates?\u0000\u0000\u0000Design/methodology/approach\u0000Data were collected using the method of empathy-based stories (MEBS) as part of a multinational European project’s Web-based survey. The data consisted of 55 writings about effective strategies and 55 writings about strategies to ]avoid when working with autistic students and graduates. The material was analysed using qualitative inductive content analysis. Narratives were created to illustrate desirable and undesirable environments and processes as they would be experienced by students, supported by original excerpts from the stories.\u0000\u0000\u0000Findings\u0000The analysis revealed that effective employment support for autistic students and graduates comprised three dimensions of support activity: practices based on the form and environment of support, social interaction support and autism acceptance and awareness. These dimensions were present in both recommended and not recommended support strategy writings.\u0000\u0000\u0000Originality/value\u0000The results add to the literature on autism and employment with its focus on the novel context of autistic university students and graduates. Effective strategies will be based on person-centred planning, to include not only the individual impact of autism but also individual career goals, workplace characteristics in the chosen field, employer needs and allocation of the right support. There is no one-size-fits-all strategy, but rather an individualized process is needed, focused on the identification of strengths, the adaptation of employment and work processes and improved understanding and acceptance of autism by management, colleagues and administration in the workplace.\u0000","PeriodicalId":43640,"journal":{"name":"Advances in Autism","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2020-10-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48197682","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Not a stranger to the dark: discrimination against autistic students and employees","authors":"Timo Lorenz, Chelsea Brüning, M. Waltz, M. Fabri","doi":"10.1108/AIA-10-2019-0036","DOIUrl":"https://doi.org/10.1108/AIA-10-2019-0036","url":null,"abstract":"\u0000Purpose\u0000The purpose of this paper is to reveal barriers and their coherences between discrimination and self-perceived employability which students and employees on the autism spectrum often face and need to overcome. These include discrimination based on disability, when applying for a job or retaining employment. This research located barriers in three different categories: formality – problems that focus on organizational structures in the application process; social – communication and interaction problems; and job demand barriers – obstacles that epitomize work-related strains.\u0000\u0000\u0000Design/methodology/approach\u0000Barriers and discrimination can prevent individuals from accessing the labor market which can lead to severe consequences for an individual on the autism spectrum, such as poverty, social deprivation or lack of health promotion and equal treatment. Self-perceived employability can be regarded as an additional strength, as it describes the perception of an individual’s own skills and versatility to acquire and keep a job. In total, 53 German-speaking individuals on the autism spectrum participated in an online survey.\u0000\u0000\u0000Findings\u0000Results showed statistically significant coherences between both, formality and social barriers with discrimination. Formality barriers also indicated statistically significant coherences with self-perceived employability. A mediation model with discrimination as mediator between each category of barriers and self-perceived employability was examined. The non-significant results suggest that discrimination does not work as a superior construct but as a sole influence next to barriers and self-perceived employability.\u0000\u0000\u0000Originality/value\u0000Individuals on the autism spectrum epitomize a less common research approach. Moreover, diversity policies and practices in the workplace often do not focus on including individuals on the autism spectrum even though the employment rates for this specific group of potential highly qualified employees were reported to be consistently lower when compared to any other group of disabled people. Findings suggest possible starting points for future research, which are discussed alongside practical strategies to overcome barriers and change discriminatory attitudes toward skilled individuals on the autism spectrum.\u0000","PeriodicalId":43640,"journal":{"name":"Advances in Autism","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2020-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48565668","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Dysfunctional perceptual antecedent can justify the social orienting deficit in autism spectrum disorder: an eye-tracking study","authors":"Cristina Carrozza, R. Fabio","doi":"10.1108/aia-03-2020-0015","DOIUrl":"https://doi.org/10.1108/aia-03-2020-0015","url":null,"abstract":"\u0000Purpose\u0000Children with Autism Spectrum Disorder (ASD) show reduced attention to social stimuli. The reasons for these impairments are still being debated by researchers. The aim of this study is to analyse if reduced attention towards social stimuli is determined by initial underlying difficulties in the control of visual attention. Among the variables that could produce these difficulties, the authors considered geometric complexity and typology of geometric figures.\u0000\u0000\u0000Design/methodology/approach\u0000To test this hypothesis, in this paper, an eye-tracker paradigm was used for assessing visual exploration and recognition memory towards geometric figures (curved vs rectilinear) with two levels of geometric complexity (low and high) in 17 children with ASD matched with 17 children with typical development (TD).\u0000\u0000\u0000Findings\u0000The results showed that the ASD group seemed indifferent to both the geometric complexity and the typology of figures (curved and rectilinear), whereas the TD group showed higher performances with highly complex and curved geometric figures than with low complex and rectilinear geometric figures.\u0000\u0000\u0000Research limitations/implications\u0000Because of the chosen research approach, the research results may lack generalizability. Therefore, researchers are encouraged to test the proposed hypotheses further.\u0000\u0000\u0000Practical implications\u0000This paper includes implications upon the presence of an unspecified visual attention deficit that is present from the early stages of the processing of stimuli.\u0000\u0000\u0000Social implications\u0000The understanding of this deficit from the early stages of the processing of stimuli can help educators to intervene at an early stage when disturbances in social relationships are starting.\u0000\u0000\u0000Originality/value\u0000This study contributes to understanding the presence of dysfunctional perceptual antecedents that could determine general difficulties in paying attention to social stimuli in ASD subjects.\u0000","PeriodicalId":43640,"journal":{"name":"Advances in Autism","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2020-08-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1108/aia-03-2020-0015","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49585840","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Editorial","authors":"E. Chaplin, J. McCarthy","doi":"10.1108/aia-07-2020-056","DOIUrl":"https://doi.org/10.1108/aia-07-2020-056","url":null,"abstract":"","PeriodicalId":43640,"journal":{"name":"Advances in Autism","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2020-07-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1108/aia-07-2020-056","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45487967","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Gender differences in mental health prevalence in autism","authors":"F. Sedgewick, J. Leppanen, K. Tchanturia","doi":"10.1108/AIA-01-2020-0007","DOIUrl":"https://doi.org/10.1108/AIA-01-2020-0007","url":null,"abstract":"\u0000Purpose\u0000Mental health conditions are known to be more common amongst autistic than non-autistic people. To date, there is little work exploring gender differences in mental health amongst autistic people and no work including non-binary/trans people. This paper aims to address this gap.\u0000\u0000\u0000Design/methodology/approach\u0000This was a large-scale online study, with 948 participants between 18 and 81 years old. Participants self-reported autism, anxiety, depression and eating disorder status. Analyses were run examining gender differences in the rates of these conditions in each group.\u0000\u0000\u0000Findings\u0000Autistic people are more likely to have anxiety and depression than non-autistic people of all genders. Autistic women and non-binary people experienced mental health issues at higher rates than men and at similar rates to each other. Autistic people were twice as likely as non-autistic people to have all eating disorders. Further, gendered patterns of eating disorders seen in the non-autistic population are also present in the autistic population.\u0000\u0000\u0000Research limitations/implications\u0000There are inherent issues with self-report of diagnoses online, but this study showed that using screening questionnaires is effective.\u0000\u0000\u0000Originality/value\u0000This is the first paper to look at gender differences in common mental health issues amongst autistic and non-autistic adults. It highlights that there are significant gendered patterns in the prevalence of mental health issues in both the autistic and non-autistic population and that these have an impact for how treatment should be approached to be effective.\u0000","PeriodicalId":43640,"journal":{"name":"Advances in Autism","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2020-06-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1108/AIA-01-2020-0007","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42514964","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}