Quality of Life Research最新文献

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Examining health-related quality of life in ambulatory adult patients with chronic heart failure: insights from Malaysia using EQ-5D-5L. 研究慢性心力衰竭非卧床成年患者的健康相关生活质量:来自马来西亚的 EQ-5D-5L 见解。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2024-08-01 Epub Date: 2024-06-05 DOI: 10.1007/s11136-024-03674-4
Yi Jing Tan, Siew Chin Ong, Vee Sim Yong, Wei Wern Khor, Lie Jin Pang, Yong Ying Choong, Ainul Mardhiyyah Zameram, Lin Yuing Tan, James Yau Hon Voo, Kar Kei Lam, Chia How Yen, Mohamed Jahangir Abdul Wahab, Zarina Banu Abdulla
{"title":"Examining health-related quality of life in ambulatory adult patients with chronic heart failure: insights from Malaysia using EQ-5D-5L.","authors":"Yi Jing Tan, Siew Chin Ong, Vee Sim Yong, Wei Wern Khor, Lie Jin Pang, Yong Ying Choong, Ainul Mardhiyyah Zameram, Lin Yuing Tan, James Yau Hon Voo, Kar Kei Lam, Chia How Yen, Mohamed Jahangir Abdul Wahab, Zarina Banu Abdulla","doi":"10.1007/s11136-024-03674-4","DOIUrl":"10.1007/s11136-024-03674-4","url":null,"abstract":"<p><strong>Purpose: </strong>Health-related quality-of-life (HRQoL) data for the chronic heart failure (HF) population in Malaysia are lacking. Using EQ-5D-5L, this study intended to describe their HRQoL, identify predictors of worse HRQoL, and derive EQ-5D-5L index scores for use in economic evaluations.</p><p><strong>Methods: </strong>A cross-sectional survey was conducted between April and September 2023 to collect EQ-5D-5L, sociodemographic, and clinical data from outpatients with HF across seven public specialist hospitals in Malaysia. Multivariable logistic and linear regression models were used to identify independent predictors of reported problems in the EQ-5D-5L dimensions, and predictors of index scores and EQ-VAS, respectively.</p><p><strong>Results: </strong>EQ-5D-5L data from 424 outpatients of multi-ethnic background (mean age: 57.1 years, 23.8% female, mean left ventricular ejection fraction: 35.7%, 89.7% NYHA class I-II) were collected using either Malay, English, or Chinese, achieving a 99.8% completion rate. Nearly half of the respondents reported issues in the Mobility, Usual Activities, and Pain/Discomfort dimensions. Mean EQ-5D-5L index was 0.820, lower than the general population, and significantly lower with NYHA class III-IV (0.747) versus NYHA class I (0.846) and NYHA class II (0.805). Besides NYHA class, independent predictors of worse HRQoL included Indian ethnicity, living alone, lower education, unemployment due to ill-health, and proxy-reported HRQoL, largely aligning with existing literature.</p><p><strong>Conclusion: </strong>Community-dwelling Malaysians with HF reported poorer HRQoL compared to the general population. The observed disparities in HRQoL among HF patients may be linked to specific patient characteristics, suggesting potential areas for targeted interventions. HRQoL assessment using EQ-5D-5L proves feasible and should be considered for routine implementation in local clinics.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":null,"pages":null},"PeriodicalIF":3.3,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141262695","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Validation practice in health: where do we go from here? 卫生领域的验证实践:何去何从?
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2024-08-01 Epub Date: 2024-07-05 DOI: 10.1007/s11136-024-03732-x
Melanie Hawkins
{"title":"Validation practice in health: where do we go from here?","authors":"Melanie Hawkins","doi":"10.1007/s11136-024-03732-x","DOIUrl":"10.1007/s11136-024-03732-x","url":null,"abstract":"","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":null,"pages":null},"PeriodicalIF":3.3,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11286619/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141535139","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Extending the PROMIS item bank "ability to participate in social roles and activities": a psychometric evaluation using IRT. 扩展 PROMIS 项目库 "参与社会角色和活动的能力":利用 IRT 进行心理计量评估。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2024-08-01 Epub Date: 2024-05-23 DOI: 10.1007/s11136-024-03666-4
Guido L Williams, Gerard Flens, Caroline B Terwee, Edwin de Beurs, Philip Spinhoven, Muirne C S Paap
{"title":"Extending the PROMIS item bank \"ability to participate in social roles and activities\": a psychometric evaluation using IRT.","authors":"Guido L Williams, Gerard Flens, Caroline B Terwee, Edwin de Beurs, Philip Spinhoven, Muirne C S Paap","doi":"10.1007/s11136-024-03666-4","DOIUrl":"10.1007/s11136-024-03666-4","url":null,"abstract":"<p><strong>Objective: </strong>Our objective was to explore whether the extension of the PROMIS item bank Ability to Participate in Social Roles and Activities (APSRA) with new items would result in more effective targeting (i.e., selecting items that are appropriate for each individual's trait level), and more reliable measurements across all latent trait levels.</p><p><strong>Methods: </strong>A sample of 1,022 Dutch adults completed all 35 items of the original item bank plus 17 new items (in Dutch). The new items presented in this publication have been translated provisionally from Dutch into English for presentation purposes. We evaluated the basic IRT assumptions unidimensionality, local independence, and monotonicity. Furthermore, we examined the item parameters, and assessed differential item functioning (DIF) for sex, education, region, age, and ethnicity. In addition, we compared the test information functions, item parameters, and θ scores, for the original and extended item bank in order to assess whether the measurement range had improved.</p><p><strong>Results: </strong>We found that the extended item bank was compatible with the basic IRT assumptions and showed good reliability. Moreover, the extended item bank improved the measurement in the lower trait range, which is important for reliably assessing functioning in clinical populations (i.e., persons reporting lower levels of participation).</p><p><strong>Conclusion: </strong>We extended the PROMIS-APSRA item bank and improved its psychometric quality. Our study contributes to PROMIS measurement innovation, which allows for the addition of new items to existing item banks, without changing the interpretation of the scores and while maintaining the comparability of the scores with other PROMIS instruments.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":null,"pages":null},"PeriodicalIF":3.3,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11286634/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141081846","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patient perspectives and preferences on cerclage and preterm birth: a focus group study. 患者对环扎术和早产的看法和偏好:焦点小组研究。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2024-08-01 Epub Date: 2024-06-18 DOI: 10.1007/s11136-024-03637-9
Nour Abdulrahman, Nicole B Burger, Susan van den Broek, Eugenie M Kaaijk, Martijn A Oudijk, Marjon A de Boer, Judith A F Huirne
{"title":"Patient perspectives and preferences on cerclage and preterm birth: a focus group study.","authors":"Nour Abdulrahman, Nicole B Burger, Susan van den Broek, Eugenie M Kaaijk, Martijn A Oudijk, Marjon A de Boer, Judith A F Huirne","doi":"10.1007/s11136-024-03637-9","DOIUrl":"10.1007/s11136-024-03637-9","url":null,"abstract":"<p><strong>Aim: </strong>This qualitative focus group study aims to asses cerclage-related symptoms, the impact of a cerclage on daily functioning and patient perspectives of their healthcare experience. This study extends beyond the current focus on surgical and obstetric outcomes of a cerclage, thereby contributing to a more comprehensive understanding of the challenges faced by individuals in the context of extreme preterm birth and fetal loss and the impact of a cerclage on multiple facets in life.</p><p><strong>Methods: </strong>Participants were recruited from the Amsterdam University Medical Center, Amsterdam, the Netherlands or via the website of a Dutch patient organization for (extreme) preterm birth. Eligible participants were ≥ 18 years old with a previous vaginal and/or abdominal cerclage with a subsequent delivery at ≥ 34 weeks of gestation with neonatal survival. Two focus group discussions (FGD) were performed. A predefined format was used, which was identical for both the vaginal and abdominal cerclage group. The International Classification of Functioning, Disability and Health (ICF-DH) was used to provide structure. Outcomes were a broad range of participants reported perspectives on physical, emotional, and social-related quality of life.</p><p><strong>Results: </strong>In the Vaginal Cerclage Group (VCG) and Abdominal Cerclage Group (ACG), respectively, 11 and 8 participants were included. Fear for a subsequent pregnancy loss was the most limiting factor to perform daily activities during pregnancy in all participants with a cerclage. Fear to conceive again because of prior second-trimester fetal loss was experienced by 27% in the VCG and 13% in the ACG. The majority of participants experienced a reduction in anxiety after placement of their cerclage (VCG = 64%, ACG = 75%). Decreased mobility/bedrest (VCG = 100%, ACG = 75%) and blood loss (VCG = 55%, ACG = 13%) were frequently mentioned complaints during pregnancy with cerclage. Other aspects mentioned in both groups were social isolation, the lack of societal participation, and the perceived need to quit work and sports. All participants in the abdominal cerclage group reported a lack of comprehensible and unambiguous information about obstetric management and expectations during pregnancy in secondary care hospitals. Clear communication between secondary and tertiary care hospitals about obstetric management following an abdominal cerclage, for example, about the need for cervical length measurements by ultrasound, the need for bedrest or advice concerning sexual activity was missing (63%). Psychologic support was desired in half of all participants, but was not offered to them.</p><p><strong>Conclusions: </strong>The fear of a subsequent pregnancy loss was reported as the most limiting factor in daily life by all participants. Cerclage placement resulted in the reduction of anxiety. Participants mentioned a significant impact of bedrest and activity restriction during preg","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":null,"pages":null},"PeriodicalIF":3.3,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11286660/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141420599","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Low resilience is associated with worse health-related quality of life in caregivers of service members and veterans with traumatic brain injury: a longitudinal study. 创伤性脑损伤军人和退伍军人的护理人员复原力低与健康相关生活质量下降有关:一项纵向研究。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2024-08-01 Epub Date: 2024-06-06 DOI: 10.1007/s11136-024-03680-6
Tracey A Brickell, Megan M Wright, Jamie K Sullivan, Nicole V Varbedian, Alicia A Rogers-Yosebashvili, Louis M French, Rael T Lange
{"title":"Low resilience is associated with worse health-related quality of life in caregivers of service members and veterans with traumatic brain injury: a longitudinal study.","authors":"Tracey A Brickell, Megan M Wright, Jamie K Sullivan, Nicole V Varbedian, Alicia A Rogers-Yosebashvili, Louis M French, Rael T Lange","doi":"10.1007/s11136-024-03680-6","DOIUrl":"10.1007/s11136-024-03680-6","url":null,"abstract":"<p><strong>Purpose: </strong>To examine [a] the association of caregiver health-related quality of life (HRQOL) and service member/veteran (SMV) neurobehavioral outcomes with caregiver resilience; [b] longitudinal change in resilience at the group and individual level; and [c] the magnitude of change at the individual level.</p><p><strong>Methods: </strong>Caregivers (N = 232) of SMVs with traumatic brain injury completed a resilience measure, and 18 caregiver HRQOL and SMV neurobehavioral outcome measures at a baseline evaluation and follow-up evaluation three years later. Caregivers were divided into two resilience groups at baseline and follow-up: [1] Low Resilience (≤ 45 T, baseline n = 99, follow-up n = 93) and [2] High Resilience (> 45 T, baseline n = 133, follow-up n = 139).</p><p><strong>Results: </strong>At baseline and follow-up, significant effects were found between Low and High Resilience groups for the majority of outcome measures. There were no significant differences in resilience from baseline to follow-up at the group-mean level. At the individual level, caregivers were classified into four longitudinal resilience groups: [1] Persistently Low Resilience (Baseline + Follow-up = Low Resilience, n = 60), [2] Reduced Resilience (Baseline = High Resilience + Follow-up = Low Resilience, n = 33), [3] Improved Resilience (Baseline = Low Resilience + Follow-up = High Resilience, n = 39), and [4] Persistently High Resilience (Baseline + Follow-up = High Resilience, n = 100). From baseline to follow-up, approximately a third of the Reduced and Improved Resilience groups reported a meaningful change in resilience (≥ 10 T). Nearly all of the Persistently High and Persistently Low Resilience groups did not report meaningful change in resilience (< 10 T).</p><p><strong>Conclusion: </strong>Resilience was not a fixed state for all caregivers. Early intervention may stall the negative caregiving stress-health trajectory and improve caregiver resilience.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":null,"pages":null},"PeriodicalIF":3.3,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141262699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Comment on "PRISMA-COSMIN guidance for reporting systematic reviews of outcome measurement instruments". 关于 "PRISMA-COSMIN 结果测量工具系统性综述报告指南 "的评论。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2024-08-01 Epub Date: 2024-07-09 DOI: 10.1007/s11136-024-03671-7
Kevin P Weinfurt
{"title":"Comment on \"PRISMA-COSMIN guidance for reporting systematic reviews of outcome measurement instruments\".","authors":"Kevin P Weinfurt","doi":"10.1007/s11136-024-03671-7","DOIUrl":"10.1007/s11136-024-03671-7","url":null,"abstract":"","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":null,"pages":null},"PeriodicalIF":3.3,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141559487","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Predictive factors and quality of life assessment among patients with spinal cord injury in the Middle East: a systematic review. 中东地区脊髓损伤患者的预测因素和生活质量评估:系统综述。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2024-08-01 Epub Date: 2024-05-03 DOI: 10.1007/s11136-024-03650-y
Ali Daoud, Zeina Nasser, Charbel Elias, Elias Elias
{"title":"Predictive factors and quality of life assessment among patients with spinal cord injury in the Middle East: a systematic review.","authors":"Ali Daoud, Zeina Nasser, Charbel Elias, Elias Elias","doi":"10.1007/s11136-024-03650-y","DOIUrl":"10.1007/s11136-024-03650-y","url":null,"abstract":"<p><strong>Purpose: </strong>Spinal cord injury (SCI) is impairment of the spinal cord that adversely affects patients' health and quality of life (QoL). The aim of the study was to assess the quality of life (QoL) and related factors in patients with traumatic spinal cord injury in Middle Eastern countries.</p><p><strong>Methods: </strong>PubMed, Ovid Medline, Cumulative Index to Nursing and Allied Health Literature (CINAHL), EBSCOhost, psycINFO, and Google Scholar were systematically searched for eligible studies published in peer-reviewed journals up till October 2023.</p><p><strong>Results: </strong>Out of 1060 papers found in the literature, only 18 studies from Iran, Lebanon, and Turkey met the inclusion criteria. The majority of the studies employed the SF-36 scale to assess for QoL. In general, all SCI patients had reduced QoL scores when compared to the healthy population. Some of the factors such as age, education level, the level of injury, time since injury onset, marriage, and job opportunities were correlated with SCI subjects QoL. Our papers were assessed and found to be of both good and high quality.</p><p><strong>Conclusion: </strong>This review emphasizes the significant shortage of QoL studies among SCI patients in the Middle East countries and highlights the importance of improving the QoL of this marginalized population. This work should enhance the governments to establish rehabilitation centers, social and economic support systems, and mental health services to diminish complications arising from SCI.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":null,"pages":null},"PeriodicalIF":3.3,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140852405","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Health-related quality of life among older adults following acute hospitalization: longitudinal analysis of a randomized controlled trial. 老年人急性住院后与健康相关的生活质量:随机对照试验的纵向分析。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2024-08-01 Epub Date: 2024-06-17 DOI: 10.1007/s11136-024-03689-x
Eirin Guldsten Robinson, Hanna Gyllensten, Anne Gerd Granas, Kjell H Halvorsen, Beate Hennie Garcia
{"title":"Health-related quality of life among older adults following acute hospitalization: longitudinal analysis of a randomized controlled trial.","authors":"Eirin Guldsten Robinson, Hanna Gyllensten, Anne Gerd Granas, Kjell H Halvorsen, Beate Hennie Garcia","doi":"10.1007/s11136-024-03689-x","DOIUrl":"10.1007/s11136-024-03689-x","url":null,"abstract":"<p><strong>Purpose: </strong>To describe the longitudinal change of health-related quality of life (HRQoL) over 12 months from acute hospitalization in older adults ≥ 70 years (IMMENSE study), and associated factors, to investigate how a medication optimization intervention influenced this change.</p><p><strong>Methods: </strong>The EQ-5D-3L was used at discharge and 1, 6 and 12 months after discharge during a randomized controlled trial including 285 participants. Multilevel logistic (EQ-5D-3L dimensions) and mixed model regression (EQ-5D-3L index scores, EQ-VAS) were used to explore the longitudinal change with/without the intervention, and associations with medications, comorbidities, and socioeconomic variables. Subgroup analyses were performed for non-long and long stayers with hospitalizations < or ≥ 14 days.</p><p><strong>Results: </strong>EQ-5D-3L index scores significantly declined after 12 months (β -0.06 [95% confidence interval (CI:) -0.10--0.02], p = 0.003). Non-long stayers showed significant improvement 1 month from discharge (β 0.05 [0.00-0.09], p = 0.040). The number of medications and receiving home-care services were the main factors associated with reduced HRQoL. Being home-dwelling was the main factor associated with higher HRQoL. Non-long stayers of the intervention group reported significantly higher EQ-VAS than the control group (β 4.02 [0.11-7.93], p = 0.044).</p><p><strong>Conclusion: </strong>We observed no significant difference in the longitudinal change in HRQoL between the two IMMENSE study groups over 12 months after hospitalization. However, the non-long stayer subgroup analysis indicates that the intervention may have had a long-term effect on HRQoL in some of intervention patients. The number of medications and the ability to live and care for oneself should be taken into consideration when planning future patient care and health-care services.</p><p><strong>Trial registration: </strong>The trial was registered in clinicaltrials.gov on 28/06/2016 before enrolment started (NCT02816086).</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":null,"pages":null},"PeriodicalIF":3.3,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11286627/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141331633","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
An empirical comparison of sleep-specific versus generic quality of life instruments among Australians with sleep disorders. 在患有睡眠障碍的澳大利亚人中,对睡眠专用工具和通用生活质量工具进行实证比较。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2024-08-01 Epub Date: 2024-06-24 DOI: 10.1007/s11136-024-03686-0
Taylor-Jade Woods, Billingsley Kaambwa
{"title":"An empirical comparison of sleep-specific versus generic quality of life instruments among Australians with sleep disorders.","authors":"Taylor-Jade Woods, Billingsley Kaambwa","doi":"10.1007/s11136-024-03686-0","DOIUrl":"10.1007/s11136-024-03686-0","url":null,"abstract":"<p><strong>Purpose: </strong>In Australian adults diagnosed with a sleep disorder(s), this cross-sectional study compares the empirical relationships between two generic QoL instruments, the EuroQoL 5-dimension 5-level (EQ-5D-5L) and ICEpop CAPability measure for Adults (ICECAP-A), and three sleep-specific metrics, the Epworth Sleepiness Scale (ESS), 10-item Functional Outcomes of Sleep Questionnaire (FOSQ-10), and Pittsburgh Sleep Quality Index (PSQI).</p><p><strong>Methods: </strong>Convergent and divergent validity between item/dimension scores was examined using Kendall's Tau-B correlation, with correlations below 0.30 considered weak, between 0.30 and 0.50 moderate and those above 0.50 strong (indicating that instruments were measuring similar constructs). Exploratory factor analysis (EFA) was conducted to identify shared underlying constructs.</p><p><strong>Results: </strong>A total of 1509 participants (aged 18-86 years) were included in the analysis. Convergent validity between dimensions/items of different instruments was weak to moderate. A 5-factor EFA solution, representing 'daytime dysfunction', 'fatigue', 'wellbeing', 'physical health', and 'perceived sleep quality', was simplest with close fit and fewest cross-loadings. Each instrument's dimensions/items primarily loaded onto their own factor, except for the EQ-5D-5L and PSQI. Nearly two-thirds of salient loadings were of excellent magnitude (0.72 to 0.91).</p><p><strong>Conclusion: </strong>Moderate overlap between the constructs assessed by generic and sleep-specific instruments indicates that neither can fully capture the complexity of QoL alone in general disordered sleep populations. Therefore, both are required within economic evaluations. A combination of the EQ-5D-5L and, depending on context, ESS or PSQI offers the broadest measurement of QoL in evaluating sleep health interventions.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":null,"pages":null},"PeriodicalIF":3.3,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11286652/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141443274","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The dyadic associations among self-efficacy, dyadic coping, and health-related quality of life between high-risk pregnant women and spouses: a cross-sectional study. 高危孕妇及其配偶的自我效能感、夫妻应对方式和与健康相关的生活质量之间的夫妻关系:一项横断面研究。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2024-08-01 Epub Date: 2024-05-28 DOI: 10.1007/s11136-024-03692-2
Mengjie Liu, Yu Fang, Mengshi Liu, Min Wu, Jingshuo Zhang, Tianchen Niu, Xiaoman Zhang
{"title":"The dyadic associations among self-efficacy, dyadic coping, and health-related quality of life between high-risk pregnant women and spouses: a cross-sectional study.","authors":"Mengjie Liu, Yu Fang, Mengshi Liu, Min Wu, Jingshuo Zhang, Tianchen Niu, Xiaoman Zhang","doi":"10.1007/s11136-024-03692-2","DOIUrl":"10.1007/s11136-024-03692-2","url":null,"abstract":"<p><strong>Aim: </strong>Health-related quality of life(HRQoL) is essential for high-risk pregnant women and their spouses. This study aimed to explore the dyadic associations (including actor and partner effects) among self-efficacy, dyadic coping, and HRQoL of high-risk pregnant women and their spouses and examine the mediating effect of dyadic coping.</p><p><strong>Methods: </strong>This cross-sectional study recruited participants from two Grade A tertiary hospitals in China from October 2022 to September 2023. A questionnaire including the Chinese version of the General Self-Efficacy Scale, Dyadic Coping Inventory, and 12 Short Form Health Survey Scales was used for the survey. The actor-partner interdependence mediation model was constructed to test dyadic associations and mediating effects.</p><p><strong>Results: </strong>In the actor effects, self-efficacy was positively associated with dyadic coping and HRQoL (P < 0.05). Regarding partner effects, pregnant women's self-efficacy was positively associated with spouses' dyadic coping and physical health (P < 0.05). Dyadic coping partially mediated the relationship between self-efficacy and HRQoL for both groups(P < 0.05).</p><p><strong>Conclusion: </strong>The HRQoL of high-risk pregnant women and their spouses requires urgent attention. Enhancing self-efficacy and dyadic coping in these couples is related to their improved physical and mental health. Healthcare professionals should consider interactions between couples and include them together in perinatal care. Intervention programs for couples or families based on existing positive psychology and dyadic interventions may work together to improve the HRQoL of couples.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":null,"pages":null},"PeriodicalIF":3.3,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141162461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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